1
When Disability Strikes
By Renée Bondi
As I rolled into the ballroom at the Hyatt Regency Hotel in Irvine, California, I couldn’t escape the irony.
In that very room, 11 years earlier, I had danced the last dance of my life with my fiancé, Mike. I was the
happiest woman on earth that night. There was no way I could have imaged that within 36 hours my
life would be turned upside down—never to be the same again. Waiting for my name to be announced
to accept the Goodwill Industries Walter Knott Service Award for Overcoming Disabilities, I looked
around and reflected on how different my life was now from my dreams on that night so long ago.
Sometimes our lives take turns we wouldn’t choose. Mine certainly did.
Years before, the ballroom had been decorated for the San Clemente High School Prom. I was a
29–year-old choir teacher. Our vocal music program had grown from only 18 students during my first
year to 150 students just a few years later. I had always been passionate about the arts and was blessed
to be able to merge my passion with my career. And I was about to marry my best friend—the love of
my life. The wedding was just two months away.
That Saturday, May 15, 1988, Mike flew into town for business and to be my date for the prom.
Mike was living in Denver, working for Lockheed Martin. We were prom chaperones and I was as excited
as the high school girls. Since I hadn’t seen Mike in four weeks, I’d looked forward to the evening.
We went to dinner at the Velvet Turtle, one of our favorite restaurants. During the entrée, he looked at
me mischievously, reached in his pocket and handed me my engagement ring! Mike slipped it on my
finger, and it fit perfectly.
When we weren’t busy with our chaperoning duties, Mike and I danced in each other’s arms. Danc-
ing was almost as important to me as singing. It was a storybook, romantic evening. But we never
danced together again.
Great Was the Fall
The next morning, Mike flew to Denver. I went to pick up my bridesmaidsdresses and gifts. The spring
musical was that afternoon, and I conducted the orchestra for a packed auditorium. The performance
was wonderful, the audience enthusiastic, and the actors and musicians proud. It was a banner day.
I didn’t make it home to the condominium I shared with a roommate, Dorothy, and her daughter,
until around 7 p.m. After dinner, I wrote some lesson plans and went to bed about 11 p.m.
I woke up out of a deep sleep, in mid-air thinking, Huh? Then I finished a flip off of my bed and landed
on the top of my head. BOOM! My feet were in the closet and my head was against the dust ruffle.
Still half asleep, it didn’t occur to me to wonder why I had dived off the end of my bed or if I was
really hurt. My only thought was to get back in bed. Rolling over onto my left shoulder, the right side
of my neck went CRACK! Oh, man! A pain jolted me back down. I rolled onto my right shoulder, and
the left side of my neck went CRACK! Oh, man! Again, the excruciating pain threw me back down. I re-
alized I needed help getting up. My roommate’s bedroom was upstairs, so I knew I’d have to be loud
to wake her up. Taking a deep breath, I tried to yell, “D o r o t h y!” But it was only a whisper. Come on,
I thought. You’re a singer; you teach breathing! So I took a breath from way down deep and tried again:
“D o r o t h y!” There was no improvement.
About the same time I was falling, Dorothy woke up—DING! She sat up in bed with a jolt for some
unknown reason. She thought she’d heard a voice. Getting out of bed, she walked to the stairs to see
if I was on the phone. I heard Dorothy’s voice calling, “Renee,” and her footsteps on the stairs, then
her hand on the doorknob. When she opened the door, I breathed a sigh of relief. Seeing me flat on
my back, she asked, “Why are you lying on the floor? It’s 2 o’clock in the morning!”
“I don’t know,” I responded in a whisper. “My neck is killing me. I don’t know what I did. I can’t
get up. Go call the paramedics.”
Dorothy stared at me for a moment and then picked up the phone to call 9-1-1. All of a sudden,
the strangest sensation came over my body. The only way to describe it would be as a wave, maybe a
wave of silence. Starting at my neck, I felt WHOOOOOOOSH as a wave slowly rippled from my neck…
WHOOOOOSH… down to my toes. What on earth was that? I thought. I can’t be paralyzed! All I did was go
to bed! No way! Although the thought did cross my mind, I couldn’t imagine I was actually paralyzed.
Looking back, however, I now firmly believe that the undulating wave was the onset of paralysis because
I never moved again.
To this day, we don’t know what caused me to dive off the end of my bed in the middle of the
night. Perhaps I dreamt that I was diving into a pool. Another idea came from a woman who heard
me tell my story during a concert in Wisconsin a few years back. She said a similar thing happened to
her friend and the cause was traced back to methyl methacrylate, a chemical used to apply acrylic fin-
gernails in the 1980s. In some cases, the chemical went through the cuticle into the bloodstream caus-
ing hallucinations or seizures. The week before my injury I had acrylic nails put on for the first time.
Unfortunately, I met this woman 15 years after my injury and by that time the chemical was no longer
in my system. In my heart of hearts, I believe that chemical is what caused my paralysis.
Initial Denial
After Dr. Palmer, the neurosurgeon, delivered the revolting news that I would never walk again, he said,
“I’ll let your family come in now.” He left and I was alone for a few minutes, trying to process what
he’d said. Simply put, I didn’t believe him. I was in total denial. It was as though there was a fog hovering
over me and everything seemed inconceivable, impossible. How could I have been dancing with Mike
just two nights before and now be permanently paralyzed? It just didn’t make sense.
Mom and Dad came to see me first. When I saw the depth of sadness and seriousness on their faces,
it was apparent that they did believe Dr. Palmer. They couldn’t muster the effort to cheer me up or as-
sure me that everything would be okay. Mom touched me and asked how I felt. It was really awkward.
My sisters and brother had the same expression—one of disaster.
Mike’s father called him and he immediately flew home. When he entered the ICU, he walked over,
put his cheek against mine and said, “Hi, honey. I’m here.” I looked up into his broad smile. I tried to
smile and whispered, “Well, I guess the good news is that now we’ll get the really good parking places.”
When D isab i lity Strik e s, By Renée Bond i
2
Mike laughed out loud! Later, he said that in that moment he knew we’d be okay because although
my body was broken, my personality and sense of humor were still intact.
After spending almost two weeks completely prone, it was time for the cardiac chair. A nurse and
a physical therapist would transfer me to the cardiac chair, positioned flat, like a gurney. I felt like a
Raggedy Ann doll, flopping to the left and right, or forward in the blink of an eye. They had to strap
me on at the chest, waist, and legs, so I wouldn’t fall off. I hated to be moved because any jostling trig-
gered the pain in my neck all over again.
They would crank up my back to about a 45-degree angle, and then we’d sit and wait to see if my
blood pressure would adjust to the new position. If that worked, they’d lower my feet and legs to
45 degrees, and, again, sit and wait. When my head was elevated and my feet were lowered, the blood
tended to pool in my legs because my body was not strong enough to pump it back up. When that
happened, I would either throw up or pass out, so at the first hint of discomfort, they’d take me back
to the prone position and start all over again. It was incredibly discouraging to realize how difficult
it was just to sit up, something people do without even thinking.
Getting to Work
I spent five months at Long Beach Memorial Hospital for inpatient physical therapy. A typical day started
with breakfast at 8:00, followed by getting dressed and in my wheelchair by 9:00, no easy feat. I’d roll
down the hallway to the physical therapy gym. Considering the shape I was in, I really needed someone
to make me laugh, and my physical therapist did! But she also made me work. In one exercise, she would
place my feet squarely on the floor and then hold me up in a seated position. Next, she would put my
arms behind me and prop me up like a picture frame so that I would learn to balance while sitting up.
It was weird trying to sit on my bottom when it felt numb, and prop up on my arms when they felt like
they were asleep. I also had to learn to find the center for my head. The head is heavy, and if my head
was off to one side I’d topple over. The only place on my torso where I had movement was my shoulders,
so I did thousands and thousands of shoulder shrugs with my physical therapist applying resistance.
Then I’d move on to occupational therapy. There was a contraption that came up over my head
and had strings that came down and attached to troughs on both sides. They put my arms in the
troughs, trying to train my shoulder muscles to direct my arms. I would do my shoulder shrugs to get
my arms to move, but my appendages flailed out of control. The occupational therapist would attach
a writing brace to my wrist, insert a pen, and place a piece of paper before me. “Now, Renée, just see if
you can mark anything—a line or scribble—just get the pen on the paper.” It was one of my first reality
checks. I had no control, not even a hint of muscle that would allow me to aim the pen or create enough
pressure to even make a mark. Tears spilled out of my eyes. “I can’t even write; I can’t even sign my
name!” But after a few minutes of sorrow, I’d shake it off and tell my therapist, “Okay let’s keep going.
Let’s just keep going.”
Physical and occupational therapies were my lifelines. I did therapy five days a week and had week-
ends off. I hated the weekends because I felt like we were wasting time. The weekends actually scared
me because I wasn’t making progress. I wanted to work seven days a week, because each day I worked
meant I was a day closer to walking, to returning to normal life again. At the time, I had a female room-
mate who would refuse her therapy sometimes. I couldn’t understand. After all, lying in bed would not
make you better. I came to realize that she couldn’t imagine living a life so dramatically different, and
more difficult. For her, the mountain seemed too steep to climb. In the first year, the steps forward
seem so very, very small that the patient feels they can’t make it to the top. So why try?
When D isab i lity Strik e s, By Renée Bond i
3
I remember a friend coming to visit me in the hospital at the end of the day. I was out in the hospital
patio getting fresh air after therapy. When she saw me outside, sitting up, she exclaimed, “Wow! How
great that you are out here!” All I could think was, “Big deal, so I made it outside. Whoop-dee-doo!”
I never got as excited over the baby steps as my family and friends did. They were just that, baby steps,
and I was no baby. Later, I realized the importance of those small accomplishments, but at the time
they seemed insignificant.
Who Am I?
The other huge concern was my sense of identity. I would think to myself: Who am I now? I knew who I
was when I was running around, but now? One day I was being taken from therapy back to my room and
I saw a mirror. “Stop!” I said to the orderly. “Can you turn me so I can look at myself?” It was the first
time I had seen myself in a mirror since the accident. I had the halo on. The metal hardware surrounded
my head and chest to keep my neck perfectly still in order for it to heal. I looked into the mirror and
made faces. Those are my eyes. That’s my nose. I’ve lost weight; I like it, looks good. Ooohh, but my hair. I hate the
way they’ve combed it back with no bangs. So this is what my visitors see when they come; they have to look through
all this hardware. I smiled at myself in the mirror, studied me, analyzed myself. Okay, it’s still me. Then I
said to the orderly, “Okay, I’m ready. Let’s go.” It’s funny; sometimes it’s good to stop and take stock
and consider not just what has changed but also what has remained stable. Whenever life seems to be
falling in around us, it can be reassuring to realize that never is everything lost.
Release to Prison
The day I left the hospital was one of the saddest days of our lives. Mike and I had both thought, had
expected, had hoped, that I’d walk out of Long Beach Memorial. Instead, I rolled out in my sip-n-puff
wheelchair. No more denial. This was it. I knew that, outside of a miracle, I’d never walk again. I realized
I would always be dependent on someone else to take care of my needs. I’d never drive a car, or ride a
horse, or sing, or teach again. With Mike’s hand on my shoulder, I cried all the way home.
Fear. Were we really ready for this? Could we really pull this off? The hospital had been safe. Not
fun, but safe. I knew what the schedule was each day, and I had trained professionals taking care of my
needs. It was their business to anticipate problems and to prevent them. If there was an emergency,
I knew that within seconds I’d be surrounded by hospital personnel who knew just what to do. Plus,
in the hospital, I didn’t have to face the “normal” world. During that first year, I could not be left alone.
I had to be physically put to bed and taken out of bed. I had to be bathed and dressed. My teeth had to
be brushed and my hair combed. Someone had to prepare my food and help me eat. If I needed some-
thing, someone had to bring it to me. I couldn’t go anywhere unless I was driven, and I had physical
therapy three times a week. It was like taking care of a 30-year-old baby! It was an enormous, time-con-
suming obligation. While my family wanted to be there for me, they had lives, families, and jobs of
their own.
Now What?
Places where I had walked and run, I now had to roll, and as I rolled by, people naturally looked my
way. I felt like I was on display. I was an oddity—no longer part of the normal landscape. Some well-
meaning observers would give me the oh-you-poor-thing look, which I hated. However, most adults
When D isab i lity Strik e s, By Renée Bond i
4
would generally glance and then look away. Children didn’t. They were openly intrigued by the woman
in the ugly contraption and wondered how it worked. I wasn’t comfortable with myself, but I tried to
make others as comfortable as I could by answering their questions and demonstrating my sip-n-puff.
As a result, I ended up spending most of my time in our condo. Occasionally, we would go out to
eat or to the mall. On these trips I felt very self-conscious, so I’d keep my eyes straight ahead. I didn’t
want to see the looks and stares as I went by. I loved it when my sister brought Brent, her darling three-
year-old son. I’d always want him to ride on my lap. I felt like his body concealed mine, and he was so
cute that people looked at him and not me.
New emotions became part of my personality. For example, one Saturday, not long after I’d gotten
home, Mike took me out for a spin in his little red Acura Legend. Mike,” I said. “I haven’t had ice
cream in forever. Could we stop at Baskin Robbins?”
“Sure!” So he whipped into the parking lot in front of 31 Flavors. Obviously, it wasn’t worth the
trouble to transfer me into the chair just for a quick trip into the ice cream shop. “I’ll be right back,”
he said, and disappeared.
This was the first time since the accident that I had been left alone in the car in a public place.
Suddenly my imagination went berserk. Realizing how absolutely defenseless I was, I began to imagine
all sorts of assaults directed at me. What if some man tries to open my car door and kidnap me or molest me?
Or, what if someone jumps in the car and starts to drive away with me in it? What if someone just reaches in and
yanks me out onto the pavement and steals the car? Every person who walked by became a potential attacker.
Like a whirlwind, a sudden awareness of my complete vulnerability gripped me and sent me reeling
into a state of pure, out-of-control panic. By the time Mike returned, I was shaking and my eyes were
full of fear. His tight embrace and words of comfort calmed my heart, making me feel safe once again.
Effects of Dependency
By far the most difficult part of being quadriplegic is the dependence on others for daily activities.
If I had any denial regarding my paralysis, receiving help from a caregiver for my most basic needs—
like bathing, dressing and eating—forced me to face reality. This triggered several emotions:
Overall sense of unworthiness I felt completely unworthy to be Mike’s wife. What could I do
for him? How could I go grocery shopping and make him dinner? How could I give him chil-
dren? How could I show him my love? How could I raise a child? Because I could not return his
love in tangible form, I felt unworthy of his love. Not only did I feel this way toward Mike, but
equally so with his parents and siblings. I knew that Mike had made the decision to stay with
me, but I couldn’t imagine they were in agreement. I was scared for my future in-laws to see
how difficult our life had become. Being a burden to them, my parents, siblings, neighbors and
friends, I ultimately felt unworthy of anyone’s love. After all, if you are always the taker in the
relationship and never the giver, you feel unworthy of their friendship.
Embarrassment it was humiliating to have someone see me naked, sitting in a shower chair.
One of my high school students became my weekend attendant. Imagine how embarrassing it
was to have her see me naked and wash my private parts.
Humiliation I no longer had control of my own body. One day I was sitting at my kitchen table
with my goddaughter, Marne Andersen. I began to smell a strong, pungent odor. I tried to ignore
When D isab i lity Strik e s, By Renée Bond i
5
it for a while, but it became too obvious to ignore. I discreetly moved my wheelchair around to
see if I was having a bowel problem. Much to my horror, there was a small brown puddle under
my chair. I had a bowel accident. No one was around but my teenage goddaughter. Humbly, I
told her my situation and we cut our time short so that I could phone my sister for help.
Frustration total dependence on others is draining. From trying to describe which blouse you’d
like to wear, or which book you want from the 200 on the shelf, or what tax document you are
looking for—finding just the right words to convey your thoughts can be extremely trying. Many
times it looks as though the disabled person is frustrated that the caregiver or spouse cannot
do the right thing, when in reality, they are irritated by their inability to explain their need. An-
other example is rolling out to the parking lot to find someone parked over the stripes, en-
croaching on the handicap stall. It becomes impossible to get in your vehicle, requiring the
person in the wheelchair to wait, sometimes for hours, until the other driver returns. Also, prior
to my accident, I never realized what a privilege it was to drive in the car alone. Time to think
through the meeting you are about to attend, or what items you need at the market, or the
words to say to an ill friend—I took it for granted. When one is dependent on others for trans-
portation, it is difficult to say, “Please stop talking so I can think about what is coming up.”
Some people would suggest, “Just say it!” But in reality, it’s hard to do.
Anger – frustration can multiply a thousand times. A young disabled person can feel anger that
they’re not able to participate in school or sporting activities like other children. He or she might
be resentful that a sibling can go to the beach with a friend or ride their bike to the park. As an
adult, I was very angry about the fact that I had to have my mother around to help me. After all,
I was an adult. It was not my mother who made me angry, but rather what she symbolized. I
didn’t want to still need my mother at 30, 40, or even 50 years old. When she came to help with
dinner or laundry, I would get angry because her presence was a reminder of my dependence and
the reality that I had not been able to experience the natural shift from child to adult. I tried
hard not to show my anger. Sometimes I succeeded, and at other times I failed miserably.
Financial Strain
Beyond the requisite attitude adjustments, the cost of paralysis is substantial and never ending. One
is forced to wonder where the money will come from for attendant care. If the disabled person is a can-
didate for money from the state, he or she gets a different caregiver every day. It is extremely difficult
to have someone new each day when it’s necessary to explain activities such as how to carefully transi-
tion from the bed to the wheelchair, or how you prefer your hair to look, or even where to find the
trash bags.
More often than not, the disabled person is not eligible for state aid. For example, if one works even
a part-time job, then they likely make too much money to qualify for state aid. A nagging question has
been, “How am I going to pay to get out of bed?” My husband’s salary goes toward the mortgage, food,
clothing and utilities. Where are we going to get an extra $40,000 a year to pay for my attendant care?
What if I was single and unable to work?
In my case, as God would have it, our pastor came to me soon after our wedding and offered me the
job of Youth Choir Director at our church. I took the position, with the understanding that I would
have volunteer parents to help pass out music, turn my pages and other simple tasks. The salary, however,
When D isab i lity Strik e s, By Renée Bond i
6
was certainly not $40,000! Working with the children and projecting my voice to the back row helped
strengthen my singing voice. Four years after my injury, after a tremendous amount of prayer and the
consistent use of my weakened singing voice, it had come back! Happy to hear I was singing again, a
wonderful man from our church suggested I make a recording of songs that gave me strength and hope
in the Lord. I never dreamt the recording would go beyond the walls of our church, but now, years later,
thousands have been sold. Those profits pay for my attendant care! Part of my emotional healing has
come from the fact that even though I cannot walk, my singing voice has been restored and I can help
others through their difficult times. Lamentations 3:22-23 says, “Because of the Lord’s great love we are not
consumed, for his compassions never fail. They are new every morning; great is your faithfulness.
Disability and God
So how does one become mentally healthy and whole again after having your world turned upside
down? Decide what kind of person you want to be—positive or negative—seeking the good or dwelling
on the bad. Invite people into your life to help—set aside your pride or your perfectionism and allow
others to do things for you like driving you to appointments and helping in your home. Volunteer to
help someone else going through a difficult time—this gets our focus off ourselves and gives us fulfill-
ment from serving others. And, most importantly, Enter into communion with Christ—accepting the
peace, grace and strength that come from surrendering all parts of our lives to him. Ironically, these
four steps spell DIVE. When the temptation to dive into depression looms; stop and remember to De-
cide, Invite, Volunteer and Enter into communion with our Lord, the great Comforter and Healer.
Unworthiness, embarrassment, humiliation, frustration, and anger are all painful emotions. But
through my wheelchair I have learned that I must trust God for my provision and peace. After years of
daily surrender, I am confident that He who began a good work in me, will be faithful to complete it
(Philippians 1:6). Although I am not physically whole, the Lord will continue to use my disability, tears
and all, to draw me close to him and to serve others.
When D isab i lity Strik e s, By Renée Bond i
7
Renée Bondi is a popular speaker and recording artist. She has been featured in magazines such as Today’s
Christian Woman and Woman’s World and on various radio and television shows, including “Hour of
Power.” Renée has released five inspirational CDs and is the president of Capo Recording and the founder
of Bondi Ministries. The Evangelical Christian Publishers Association nominated her book, The Last Dance
but Not the Last Song—My Story, for the Gold Medallion Award. Among her many awards and honors is
Woman of the Year from the California State Senate and recognition for Outstanding Service to the Com-
munity from the U.S. House of Representatives. Renée has a BA in Music Education.
1
Wolfensberger's 18 Wounds of Disability
By Jeff and Kathi McNair
The following is a presentation and discussion of the “18 woundsthat persons with disabilities may experience as a
result of the actions and attitudes of society. This material is drawn from the work of Dr. Wolf Wolfensberger in his training
on “Social Role Valorization,” and has been adapted for this curriculum by Dr. Jeff McNair and Kathi McNair.
1
Wound 1: Bodily or intellectual impairment
A person is born with or develops an impairment. It could, for example, be a physical (bodily) impair-
ment, such as cerebral palsy or an intellectual impairment.
Wound 2: Functional limitation
As a result of the bodily or intellectual impairment, there are functional limitations. So, due to cerebral
palsy I may not be able to walk. Due to intellectual disability, I may not be able to balance a checkbook.
Wound 3: Relegation to low social status/deviancy
Because of my bodily/intellectual impairment and/or functional limitation, society relegates me to a
low social status, such that I am considered deviant. Society defines the normal range so tightly, that
the slightest variation outside of that normal range is considered deviant and I experience ostracism.
The church can respond by seeing people as individuals and by viewing them in terms of their gifts. By allowing people
to express their gifts, there is a greater likelihood that they will be seen as contributing to the larger fellowship. However,
even with the most disabled of persons, their presence is indispensable to the life of the larger body (1 Cor. 12:22).
Wound 4: Disproportionate and relentless attitude of rejection
Because of my bodily/intellectual impairment and/or functional limitation I experience rejection by
society and the rejection is relentless in that it occurs all the time in most social environments. Even in
the context of a faith system, harmful rejection may occur: “you sinnedmay be expressed unconsciously
(unconscious rejection is still very harmful) and may be couched in terms of “positive” motives,
“we need quiet so we can worship.”
The church should counter this wound with “relentless acceptance.” We should tell people that there is almost nothing
that you could do that would cause us to reject you. This relentless acceptance would cause significant changes in the
way we do things at church, as at the moment our traditions have contributed to the relentless and disproportionate
rejection experienced by people with disabilities.
Wound 5: Cast into one or more historic deviancy roles; devalued social status causes devalued roles
or vice versa.
Thus, people can be considered as:
1. Non-human
a. Pre-human
b. No longer human
c. Sub-human (animal, vegetative/vegetable, insensate object)
d. other “alien” (non-human but not sub-human)
2. A menace/object of dread
3. Waste material, garbage, offal, excrement
4. Trivium
a. Not to be taken seriously
b. Object of ridicule
c. Joculator, jester, clown, etc.
5. An object of pity—accompanied by a desire to bestow happiness on people and associated
with the victim role. The person is “suffering.”
6. A recipient of charity
a. Ambiguous/borderline object-of-charity role; “nobility” in helping
b. Burden of dutiful caring; “cold charity”; entitled to only the minimum; should be grateful
“takers,” not “givers”
7. A child
a. Eternally
b. Once again
8. A sick/disease organism (leads to handicap); “Medicalization of everyday life”; psychiatriza-
tion of deviance
9. In death-related roles: dying, already dead, as good as dead, should be dead, should never
have lived
2
Each of the deviant role perceptions described above have been or are now present in the church. For example, people
will refer to adults with intellectual disabilities as “kids” (number 7 above), independent of their chronological age.
In each of these cases, the church should seek to do the counter—that is, the opposite—or at least make the effort not to
contribute to the kind of negative stereotyping described above.
Wound 6: Symbolic stigmatizing, “marking, deviancy imaging, branding”
Because of my bodily/intellectual impairment and/or functional limitation, I am given a label—e.g.,
“retard” or “mental age of a child”—and interactions with me cascade out of that characterization. The
church ought to be careful not to reflect society in the manner in which it deviancy-images people. Un-
fortunately, however, we are often guilty of this. For example, in California, about a tenth of one percent
Wolfen s berg er's 18 Wound s of D isabi l ity, by J e ff and K athi McNa i r
2
of Christian schools have programs for children with disabilities. How are the children of Christian
families who have a disability being imaged? They are imaged as either unworthy/unable to benefit or
as not a priority for a Christian education. That people with disabilities are not present in churches in-
dicates that they are imaged as not a priority for ministry or unable to respond to the Gospel, which
in turn causes the church itself to be deviancy-imaged by society as being self-serving.
The church can do a great deal to remove the stigma of deviancy imaging by simply seeking out people with disabilities
and bringing them into the church. People are often stereotyped when they are not known. The presence of people
with disabilities in the church would dispel stereotypes and the deviancy imaging would be destroyed by personal ex-
perience. Church members would then work to correct their own symbolic stigmatizing and also work to correct those
perceptions that they run across in the community.
Wound 7: Being multiply jeopardized/scapegoated
Because of my bodily/intellectual impairment and/or functional limitation, I am thought to be the
reason for many negative things that occur in the environments I find myself in. In the early 1900s
“feeblemindedness” was thought to be the cause of crime, degeneracy and disease in America, which
led to mandatory sterilization laws. In our society, people with disabilities are also often scapegoated
as the reason for divorce.
When a person with a disability arrives at a church, the response should be to ask, “What is the value added by the in-
clusion of this person in our congregation?” “What is God doing by bringing this person to us?” Typically, when a
person with autism (for example) comes, our response is, “Now what are we supposed to do with this person?Instead,
our response should be, “What can we gain by this person being in our fellowship that we would not gain if they were
not here, and how can we contribute to the life of this person God has brought to us?”
Wound 8: Distanciation: usually via segregation and also congregation
Because of my bodily/intellectual impairment and/or functional limitation, I am distanced from the
rest of society via physical or social segregation. One only needs to make an attempt to get involved
with people living in group homes to experience the degree they have been distanciated from the rest
of society. Minimally, one must get fingerprinted even to develop a friendship with such people.
On the other hand, because of my bodily/intellectual impairment and/or functional limitation I am always
grouped with people who have disabilities because we are easier to manage that way. The overwhelming
presentation of difference in a large, congregated group is itself a contributor to people being segregated.
People should only be segregated for really good reasons—e.g., because they are a danger to themselves or others. How-
ever, when a person with a disability arrives at a church, often our initial response is to develop a separate group for
people like him or her. There can be reasons for such groups. However, if the only involvement in church by persons
with disabilities is in the context of a separate group, we are contributing to the wounding of that person. Integration
of persons with disabilities into the typical life of the church will indeed cause the typical life of the church to change;
however, it is the right thing to do and that change moves the church in the right direction.
Wound 9: Absence or loss of natural, freely given relationships and substitution with artificial/
bought ones
Wolfen s berg er's 18 Wound s of D isabi l ity, by J e ff and K athi McNa i r
3
Because of my bodily/intellectual impairment and/or functional limitation my life is filled with people
who are paid to be with me, whether they be social workers, group home staff or day/vocational pro-
gram workers. Research indicates that the average individual living in a group home is visited by some-
one not paid to be with him only once every 20-30 months. Here again, this can be at least partially
attributed to the manner in which human service agencies provide their services. There are many al-
ternative ways in which services could be provided that would increase the likelihood of the develop-
ment of freely given relationships.
The church offers great potential for the development of many freely given relationships with persons with disabilities.
These can occur at the church itself; however, they should also occur in the community. Community relationships can
revolve around going to ball games or bowling or just a periodic visit to the group home. Churches also typically offer
myriad opportunities for participation in social activities. To have a friend call and ask you to do something with him
is something that far too many people with disabilities have not experienced.
Wound 10: Loss of control, perhaps even loss of autonomy and freedom
Because of my bodily/intellectual impairment and/or functional limitation, I am placed in settings that,
although they are described as being for my benefit, are largely designed on the basis of administrative
convenience. So, for example, adults living in a group home all go to bed at the same time, take showers
on the same evening and watch the same program on the television. Simple things such as taking a walk
in the community are often not possible because of the way in which staffing arrangements are made.
Additionally, those who would attempt to offer freedom are stifled because of the changes that these
freedoms cause in the lives of persons with disabilities. This includes aspects of religious freedom.
Autonomy and freedom are important aspects of life that the church can contribute to the lives of people with disabil-
ities. They are provided the opportunity to eat too much, to talk too much, to walk around and just to experience life
with less regulation. The first step in this is for the church to advocate for religious freedom in the lives of persons with
various disabilities who might not experience such freedom because of the constraints their care providers place upon
them in not allowing them to attend church.
Wound 11: Discontinuity with the physical environment and objects, (“physical discontinuation”)
Because of my bodily/intellectual impairment and/or functional limitation, I may not have access to
the physical environment in ways that those without impairments do. These restrictions are blamed
on my disability; however, they are more often due once again to issues of administrative convenience.
The church can provide people with disabilities with access to valued things in the environment, such as a personal
Bible, a crucifix that one wears or displays on a wall and materials about upcoming programs. During worship serv-
ices, people with disabilities may have access to participation in communion, with all that that entails in a given
context. These types of access validate the person as being like everyone else, thereby giving them value.
Wound 12: Social and relational discontinuity, even abandonment
Because of my bodily/intellectual impairment and/or functional limitation, I may be abandoned
by my family or by the larger society. Research indicates that nonreligious families are significantly
Wolfen s berg er's 18 Wound s of D isabi l ity, by J e ff and K athi McNa i r
4
more likely to view the care of their family member as being the responsibility of the state and
not their personal responsibility. Thus, people with disabilities end up having relationships only
with people who are paid to be with them. At the same time, research also indicates that religious
parents of children with disabilities feel supported by their personal faith, but not by their cor-
porate faith (the church), which indicates that parents also experience relationship discontinuity
and distanciation.
The church offers great potential for participation in ongoing relationships and prevention of abandonment. When a
person with a disability comes, he is greeted and welcomed and his name is called. Perhaps he has a nickname that
causes laughter in those around him. People bring him a cup of coffee the way he likes it. These things may seem small,
but they are proof of a relationship, proof of inclusion in the group.
Wound 13: Deindividualization, “mortification,” reducing humanness
Because of my bodily/intellectual impairment and/or functional limitation, I am viewed as less than
fully human, because of my degree of dependence upon others, my functional limitations and the
“drainI am on society, among other things. Abortion is disdained by most in the Christian world,
but even among Christians, exceptions may be made for disability. Because people with disabilities
are not perceived as being fully human, they experience some of the deindividualization that has been
described above. There are those in society who would ask the question, “What does it matter that
someone who is not fully a person has no freely-given relationships or limited freedom or has his life
restricted and managed?”
The church puts teeth in its pro-life position when people with all types of disabilities are present in the church. Even
apart from a relationship with such people, they are recognized as valued simply by their presence. As church members
develop relationships, they find that people with disabilities are people just like them. Growing up with people with
Down syndrome around cannot help but take the fear of Down syndrome from you. It can’t help but cause you to
second guess the recommendations of physicians pushing for prenatal diagnosis and abortion. The church also needs
to be active in speaking out against the deindividualization of people with disabilities in whatever form it is seen. This
advocacy begins with the actual presence of people with disabilities in the church.
Wound 14: Involuntary material poverty, material/financial exploitation
Because of my bodily/intellectual impairment and/or functional limitation, I can expect people to strip
me of what I have and prevent me from acquiring things. After all, what does it imply if I am a “ward
of the state” and I own a TV or stereo or nice clothes? The state is required only to maintain a subsis-
tence level of existence for me. This is “cold charity.” If I am victimized by staff that steal my posses-
sions—well, that is just too bad because staff are hard to find. The question might be asked whether I
would miss the stolen things anyway.
Although I myself may be poor, because I am a member of a church, I have access to the resources of the church. These
resources evidence themselves in a variety of ways. Research indicates that churches provide money, food, clothing
and education, among many other things. The church therefore has tremendous potential to minimize the wound of
poverty. Additionally, presence in the lives of people with disabilities can assist in the prevention of financial exploita-
tion. An extra set of eyes can work wonders.
Wolfen s berg er's 18 Wound s of D isabi l ity, by J e ff and K athi McNa i r
5
Wound 15: Impoverishment of experience, especially that of the typical valued world
Because of my bodily/intellectual impairment and/or functional limitation, I may never have been to
a restaurant or a ball game or a movie. If I do participate in these things, they are “special” events, not
typical events. Because care providers are held to minimal standards, group home outings can literally
be a once-a-month trip to the grocery store to get milk.
The kinds of typical experiences most people have can be provided via participation in churches. These include dinners
out, social outings, service projects and so on. Typically, people will be involved in nonreligious service projects and
assist only if they are asked. No wonder the range of experiences of those who participate in a church versus those who
don’t are significantly different!
Wound 16: Exclusion from knowledge and participation in higher-order value systems (e.g., religion)
that give meaning and direction to life and provide community
Because of my bodily/intellectual impairment and/or characteristic functional limitations, I am excluded
from religious groups. As a result of my lack of participation in such groups, I may lack moral guidance, am
not privy to the solace and comfort faith in God might bring and as a result am excluded from participation
in community and in society, as religious groups are the vehicle that many use to receive these benefits.
Through church participation, I learn that God loves me as I am, that I am not a mistake and that those who tell me
that I am a mistake are wrong. I learn about Jesus— who he is, what he did and what that means to me. I learn about
how to live. I learn about how God uses people like me to accomplish his purposes. I learn that if people are unkind to
me, particularly in a church situation, that I am not wrong—they are wrong for rejecting me. I come to a place where
I learn what it is to be loved and accepted by God through the love and acceptance I receive from those in the church.
Wound 17: Having one’s life “wasted”; mindsets contributing to life-wasting
Because of my bodily/intellectual impairment and/or functional limitation, my life is wasted by those
who are my care takers. I spend useless hours in day care or “vocational” settings, often due to the lack
of imagination of my care providers. That these settings exist as they do provides insight into the minds
of those who develop such programs, in terms of how they perceive people with disabilities.
When I come to church, I first learn that my life has value. I then learn that I have the potential to be of service to the
church. Churches need to be wise in how they assign the “low hanging fruit” of service. People who have the ability to
work with the children should be working with the children, not ushering. But for those to whom ushering is a challenge,
challenge them with ushering or greeting or handing out programs. I may spend my week in adult day care, but on
Sunday, I am an usher. I may make no money at all in my workshop all week, but on Sunday, I police the grounds
to be sure that the grounds are looking beautiful. Other opportunities might also be imagined such that people see
themselves as having responsibility that gives their life meaning.
Wound 18: Being the object of brutalization, killing thoughts and death making
Because of my bodily/intellectual impairment and/or functional limitation, society is increasingly seek-
ing to end the “burden” of my life. Abortions occur to prevent “suffering” of those with congenital dis-
Wolfen s berg er's 18 Wound s of D isabi l ity, by J e ff and K athi McNa i r
6
abilities, when in reality most of any suffering may be largely due to the way in which people are treated
by society rather than from the disability itself. Authors write about how the future may lead to the
limitation of health care access by those with disabilities.
As stated, the church can do tremendous good to reverse the trend toward eliminating persons with disabilities through
abortion and other means by having such people present in numbers that minimally reflect their numbers in the com-
munity. The church also holds responsibility to speak up in defense of the lives of persons with disabilities and to teach
regularly from the pulpit about the value of all life and the Christian’s responsibility in affirming that value. Unfortu-
nately, leadership is typically silent on these issues.
NOTES
1. Wolfensberger, W. (2000). “A Brief Overview of Social Role Valorization.” Mental Retardation, 38(2), 105-123.
2. Wolfensberger, W. (1972). Normalization: The Principle of Normalization in Human Services. Toronto: National Institute on Mental Retardation.
Wolfen s berg er's 18 Wound s of D isabi l ity, by J e ff and K athi McNa i r
7
Jeff and Kathi McNair are career special educators, and professors of special education.
They have been involved in ministry to adults with intellectual disabilities for over 30
years. Kathi’s area of expertise is students with learning disabilities. Jeff is the Director of the
Public Policy Center for Joni and Friends, and also directs the Disability Studies Program at
California Baptist University, one of the few graduate programs in disability ministry. He also
directs the university’s program in severe disabilities.
1
On Identification:
Same Lake, Different Boat
By Stephanie O. Hubach
Identify: to associate or affiliate oneself closely with a person or group.
T H E A M E R I C A N H E R I T A G E D I C T I O N A R Y
Bearing down on the pedals intently, I strained to maneuver my bike up one of the steepest hills in
town, weaving back to the safety of our house. The weather was hot, hot, hot— one of those incredibly
scorching summer days when the heat radiates off the pavement in waves, making the task of cycling
all the more arduous. Anyone watching from the outside would have observed that I was simply at-
tempting to ride a bicycle. But truth be known, on the inside I was running. Running away. Having
just moved to a small, rural Pennsylvania town from the fast-paced environment of a defense consulting
job in Washington, D.C., I had been trying to find a constructive way to fill my time until I found new
employment. After working sixty-hour weeks while completing my master’s degree, I was attempting
to slow down a bit and lead a more balanced life that included more time with my husband and other
people, and less time with data and spreadsheets.
On this particular day, I had decided to visit a local personal care home. In Pennsylvania, personal
care homes provide housing for individuals who do not need intensive nursing care, but cannot live
unassisted for any number of reasons. This means that they often house people with a variety of special
needs, including those with cognitive disabilities,
1
mental illness,
2
or physical disabilities. However, I
didn’t know any of that. I just thought there would be a few neatly dressed and mentally alert elderly
people who were sitting around watching TV, but were secretly waiting for the chance to engage in a
stimulating conversation or a rousing game of checkers with mes.
I was shocked at what I saw…and what I smelled…and what I heard. Upon opening the front door,
I was greeted by a long, dark, dingy hallway, and the smell of soiled diapers, and the sounds of human
woe. Although sensing that perhaps I had underestimated what I was getting myself into, I still cheer-
fully marched into the administrator’s office and offered to visit with anyone who was available. After
looking at me somewhat curiously, the woman directed me down the hallway to a room with a vaulted
ceiling where I was seated with a man named Paul, whose wife had recently died. The staff thought
perhaps my visit could help cheer him up. I had no idea what to say to him. He dutifully answered my
questions as we sat in the center of this room surrounded by people with various disabilities slumped
in their recliners, in wheelchairs, and on couches. I couldn’t wait to leave. After fifteen minutes, I had
tortured poor Paul long enough with my persistent questioning. Hoping to slip out without anyone
noticing, I was clearly distressed by my surroundings. The whole world seemed different when I stepped
outside. Trying to shake off how deeply disturbed I felt, I began pedaling home. I had attempted to
identify with people outside my comfort zone and determined it wasn’t for me.
Fast forward three and a half years later to a very frosty January when the weather was cold, cold,
cold. Subconsciously, I thought this delivery would be just like those depicted in the baby magazines,
full of glowing anticipation, where everyone is wearing white and everyone is happy. Instead, I found
myself in the hospital with my newborn son for his third admission in three weeks. Everything was in-
deed white, but everyone was not happy. This time, congestive heart failure had landed us in the nearest
children’s hospital about an hour from our home. That morning, Timmy had been diagnosed with a
very serious heart condition not uncommonly found in babies with Down syndrome. According to his
cardiologist, Timmy’s case was a “worst-case scenario” for this particular cardiac anomaly. The hole in
his heart was extremely large, about half the size of his little life-sustaining pump.
Still reeling from the news, we tried to settle into our assigned room that we were to share with
three other families for the next five days. Once again, I was shocked at what I saw…and what I smelled…
and what I heard. “Beep. Beep. Beep.” Amidst the constant blipping of monitors was the incessant cry-
ing of babies, not simply because they were hungry, but because they were often being probed with
needles. Usually, a nurse was trying to put in an intravenous line or draw blood for the afternoon lab
report. The nine-month-old baby across the room had lived in there for much of her short life. A little
girl who wandered down the hallway was literally missing half of her face. The sterile smells of hospital
bedding replaced that gentle Ivory Snow scent I longed for at home. But this time, I couldn’t walk out
the door and hop on my bike and ride back to the safety of our house. This was my world now. The
identification I had once ridden away from by choice was now mine by Providence.
Comfort and Identification
Most people are not immediately at ease with those who have disabilities—especially cognitive disabil-
ities or mental illness. While today’s generation of children has had greater exposure to individuals af-
fected by disability, most adults still struggle with a fear factor when first learning to relate to people
with disabilities. At times the fear is based on a stereotype that must be overcome. Sometimes it stems
from the awkward feeling that arrives when we just don’t know what to do or say. At times, we are con-
fronted with the honest truth that we wrongly look at disability as an abnormal part of life in a normal
world. In other instances, the discomfort comes from the vulnerable realization that disability is a con-
dition that any of us can (and many of us will) personally encounter at some point in our lifetime—
and that uncomfortable thought makes us want to run away.
There is also a societal component in that we live in a fragmented culture—one that is full of distinct
lobbying groups. Typically, these groups communicate at each other but not with each other. To the
degree that we passively absorb current postmodern cultural constructs about the impossibility of
communication across different groups of people, we will fail even to attempt to connect with others
whom we perceive to be different from ourselves. When we do this, we implicitly accept society’s view
of “community”—which is not a group of people bonded by intentionality but a group of people defined
On I d entif i cati o n: Sa m e Lak e , Diffe ren t Boat , by S t epha n ie H u b ach
2
entirely by their exclusivity. For example, notice how language has changed in the last generation. We
no longer refer to the “melting pot of America” to represent the cohesive bonding of this nation. In-
stead, “community” is a word used to define separate and distinct power groups. Listen carefully. You
hear it on the news every day: the Hispanic Community, the Black Community, the Muslim Commu-
nity, the Disability Community. When we focus on our differences, we tend to impart value—usually
negative—to those differences. Instead of connecting with people affected by disability by choosing to
stress our common humanity, we emphasize the differences to legitimize our desire to simply pursue
our own agendas—those specific to our “community”—whatever they may be.
There is a common expression: We’re all in the same boat. One doesn’t have to experience much of
life to recognize that this is an oversimplification of reality. A more accurate statement would be same
lake, different boat. It reflects the truth that, as human beings, we share a common story, but the details
of our experiences and our life circumstances may vary significantly. We are essentially the same but ex-
perientially different. However, the current societal emphasis goes far beyond this. Instead of seeing our-
selves in the same lake, but in different boats, we tend to see ourselves in different lakes entirely. The result
is that we end up feeling justified in simply seeking our own level of personal comfort in life—unaffected
by the needs or desires of those around us.
Let’s be honest. We all like comfort. One could even say that twenty-first century Americans are ob-
sessed with it. Our cars, our furniture, our clothes, our computer keyboards—even our coffee cups are
designed for ease of use. Just the right feel—a perfect fit. That’s comfort in the material sense. Now,
suppose someone says to you, “I just love my friends. I really identify with them.” What are they likely
referring to? It is highly probable that they are referring to a collection of people with whom their com-
fort level is high. To an outsider, it is a group where the commonality might be obvious across the indi-
viduals—consistent with society’s version of community. But The American Heritage Dictionary definition
of what it means to identify with another is much broader than this. It reads: “To associate or affiliate
oneself closely with a person or group.” This definition does not necessarily imply comfort or identifi-
cation that is easy—just identification that is purposeful.
Biblical Identification
The Bible is replete with rich teaching about and examples of genuine identification. From Genesis to
Revelation, the Scriptures demonstrate God’s intentional identification with us. Ponder the depth of
the word Emmanuel, which means God with us.From creation to the consummation of all things, God
is committed to intentional identification with the creatures he designed in his image. According to
Gerard Van Groningen, an Old Testament seminary professor, God’s divine covenants constitute a
“God-established, -maintained, and -implemented life-love bond.”
3
God’s covenants with his people
throughout the ages are exemplary of the Emmanuel principle.
Consider the covenant of creation, which is God’s implicit covenant with mankind made in the
context of the design of humanity. The bond of life and love is deeply rooted in God’s creation of man
as his image-bearer. It is the relationship between God and man, not just in the simplistic sense that
we usually think of the word relationship, but in the deeper sense of man’s essence—his bearing of the
divine image within himself—that binds man to God. Van Groningen continues, “This relationship is
an essential aspect of God’s covenant. The foundational idea of covenant is bond. God bound himself
to mankind as he bound mankind to himself. It was a bond of life and love.”
4
Not only are we created for loving service to God in his kingdom, but we bear the image of the King
himself within ourselves. Now, that’s identification! If God, who, in all his splendor and transcendence
Same Lake, Different B o at, b y Ste p hani e Huba c h
3
can choose to be imminent to us, shouldn’t we, who are clearly not transcendent, strive for association
with our fellow human beings?
How do we know this is possible for us? We can be confident of our calling to identification because
Jesus himself demonstrated it throughout his life. One of my favorite examples is in John’s gospel ac-
count of Jesus’ healing of the man who was born blind.
As he went along, he saw a man blind from birth. His disciples asked him, “Rabbi, who sinned,
this man or his parents, that he was born blind?” “Neither this man nor his parents sinned,”
said Jesus, “but this happened so that the work of God might be displayed in his life.” (John
9:1-3)
The disciples emphasize a sense of otherness in the way they refer to “this man” and in the way they
ask, “Who sinned?” Notice, however, that Jesus turns their question on its head and responds with a
statement reflecting God’s purposeful identification with the man’s life: “This happened so that the
work of God might be displayed in his life” (John 9:3). Jesus then proceeds to heal the man, but Jesus
does not disengage from the man born blind at that point even though the man goes on his own way.
The continuing account relays a subsequent squabble among the Pharisees, the man, and his family.
Under a barrage of questioning, the healed man repeatedly recounts his miraculous encounter with
the Christ, but the man is increasingly berated by those who do not want to accept it. Finally, the con-
flict ends with the Pharisees shouting at him, “You were steeped in sin at birth; how dare you lecture
us!” (John 9:34). And they throw him out.
However, the best part of the story comes in the next verse. It reads, “Jesus heard that they had
thrown him out, and when he found him…” (John 9:35). I love those words: “when he found him.” Jesus
went looking for the man. He was interested in more than just his disability. He was invested in him as
a person. Jesus then moves the relationship to another level and introduces himself as the Son of Man—
bringing the relationship full circle, back to a connection with God himself—the one who identified
with the man born blind even in his creation, when the image of God was stamped within. That’s pow-
erful!
Biblical Application
So, from the profound reality of God’s identification with us in our image-bearing and from Jesus’
practical example, how do we make the jump to our own application? What motivates us to connect
with others intentionally as God requires of us? Romans 12 gives a clue:
For by the grace given me I say to every one of you: Do not think of yourself more highly than
you ought, but rather think of yourself with sober judgment, in accordance with the measure
of faith God has given you. Just as each of us has one body with many members, and these
members do not all have the same function, so in Christ we who are many form one body,
and each member belongs to all the others. We have different gifts, according to the grace
given us. (Rom. 12:3-6a)
The first thing that motivates us to identify with others is a proper perspective on ourselves. “Do
not think of yourself more highly than you ought” (Rom. 12:3). We must recognize that we all have
needs—that is a normal part of life in an abnormal world. Our brokenness and neediness as humans is
On I d entif i cati o n: Sa m e Lak e , Diffe ren t Boat , by S t epha n ie H u b ach
4
universal; how it manifests itself is variable. It is same lake, different boat. Connecting to others in a con-
descending way is not an option. Intentionally associating with others because we can truly identify
with their human condition is essential.
Second, we will be motivated to identify with others when we realize that we rely on each other.
“Just as each of us has one body with many members, and these members do not all have the same
function, so in Christ we who are many form one body, and each member belongs to all the others”
(Rom. 12:4-5). There is an interdependent unity that comes from diversity in the body of Christ. Every-
one benefits when we choose intentional relationships with people of differing abilities. Notice that
the model for mutual reliance in Christ’s church is more intimate than same lake, different boat. It is same
body, different parts.
Third, we need to celebrate the giftedness of those with whom we connect. “We have different gifts,
according to the grace given us” (Rom. 12:6a). Because we are reliant on each other to bring complete-
ness to the body of Christ, everyone’s contribution is a gift in its own right. Note that our differing
abilities are seen as positive and purposeful. There is genuine joy in celebrating the unique qualities
that express God-given individuality in the context of unity.
Finally, “the grace given us” (Rom. 12:6a) is the ultimate basis for true person-to-person identifica-
tion. In the covenant family, grace is the glue that binds us to each other—regardless of nationality,
ability, gender, age, or any other defining characteristic. Those who have experienced God’s grace first-
hand know that our need for grace is universal. It is what allows us to relate to others, inside and outside
of the body of Christ, with humility and compassion. Of course, identification can be costly and some-
times a little uncomfortable on our part, but grace was exceedingly costly and excruciatingly painful
on God’s part. Remember: Emmanuel—God with us. Doesn’t that say it all?
Summary
When our son Freddy entered second grade, we were preparing to start Timmy in kindergarten at the
same elementary school. Knowing that Timmy occasionally pulled embarrassing stunts in public, I
was concerned that Freddy might feel self-conscious about sitting with Timmy on the school bus. So,
one day I asked Freddy how he felt about the prospect of riding on the bus together. Looking at me in
stunned amazement that I had even approached him with the question, Freddy replied indignantly, “I
would be proud to sit with my brother.”
How about you? Would you be proud to identify with your “brother” or “sister” who is disabled?
Then follow Jesus’ example—be intentional and go find them.
Personal Application Questions
1. How do you usually think about the concept of “identification”? Do you typically con-
sider identification to be related to comfort, commonality, or intentionality?
2. What fears do you have about relating to people who have disabilities?
3. How does God’s example of identification with us help you to overcome those fears?
4. What does it mean to say “same lake, different boat—we are all essentially the same but
experientially different”?
5. Whom will you choose to identify with today?
Reprinted from Same Lake, Different Boat: Coming Alongside People Touched by Disability by Stephanie O. Hubach, copyright 2006, P & R Publishing,
Phillipsburg, NJ.
On I d entif i cati o n: Sa m e Lak e , Diffe ren t Boat , by S t epha n ie H u b ach
5
NOTES
1. “‘Cognitive disabilities’ is often used by physicians, neurologists, psychologists and other professionals to include adults sustaining head injuries
with brain trauma after age 18, adults with infectious diseases or affected by toxic substances leading to organic brain syndromes and cognitive
deficits after age 18, and with older adults with Alzheimer diseases or other forms of dementia as well as other populations that do not meet the
strict definition of mental retardation.” Thus, cognitive disabilities is an “umbrella” term that includes intellectual disabilities (formerly referred to as
mental retardation) but is broader than intellectual disabilities alone. (Source: U.S. Administration on Developmental Disabilities)
2. “A mental illness is a disease that causes mild to severe disturbances in thought and/or behavior, resulting in an inability to cope with life’s ordinary
demands and routines. There are more than two hundred classified forms of mental illness. Some of the more common disorders are depression,
bipolar disorder, dementia, schizophrenia, and anxiety disorders.” (Source: National Mental Health Association)
3. Gerard Van Groningen, Messianic Revelation in the Old Testament, vol. I (Eugene, OR: Wipf and Stock, 1997), p. 59-60.
4. Ibid., 103.
On I d entif i cati o n: Sa m e Lak e , Diffe ren t Boat , by S t epha n ie H u b ach
6
Stephanie Hubach serves as Mission to North America’s Special Needs Ministries Director. Mission to
North America is an agency of the Presbyterian Church in America. She also currently serves on the
Lancaster Christian Council on Disability and the Faith Community Leadership Advisory Board. Steph is
the author of Same Lake, Different Boat: Coming Alongside People Touched by Disability and All Things Possible: Call-
ing Your Church Leadership to Disability Ministry. She has been published in byFaith magazine, Focus on the
Family magazine, and Breakpoint online magazine. Steph and her husband Fred have been married for
27 years. They have two deeply loved sons: Fred and Tim, the younger of whom has Down syndrome.
1
A True Friend Identifies
By Joni Eareckson Tada
Have you ever watched a football game and seen those crazy fans in the stands wearing face paint
and funny hats, braving temperatures well below zero? They scream at the top of their lungs to cheer
for their team, as if the players will actually listen to their instructions. And put them in front of a
TV camera and you would think they had just won the lottery! If you are watching the game at home,
you say to yourself, “Why do they do that?”
The answer isn’t found in the win-loss record of the team. In baseball, for example, some of the
most avid fans are Cub fans—and the Cubs haven’t won the pennant in eighty years! The answer lies
not in the team itself but in the heart of the true fan.
What the crazy fans in the stadium, as well as the more subdued fans in the living room (like
my husband, Ken, and I!), experience in our heart is called identification. We identify with the team.
Our identity as individuals is tied, even in a small way, to the team. As a resident of the Los Angeles
area, the Lakers are a part of me and I feel like a part of them. If they win, we’re happy. If they lose,
we’re sad. (Ken more than me!) And we will defend the honor of the team to any who would dis-
parage it.
A true fan will recount stories of past triumphs. Or quote statistics on the players. Or wear jackets,
hats, pins, and shirts with the team’s logo—even during the off-season. A true fan will do this because
he or she identifies with the team. Wouldn’t it be wonderful if we identified with one another as peo-
ple in the same way? Someone’s hurt becomes my hurt? Someone’s hope becomes my hope?
Nowhere is a sense of identification more needed than in relationships between nondisabled peo-
ple and disabled people. Whether you simply cross each other’s paths briefly or become intimate
friends, developing a sense of identification with a disabled person is the most important and re-
warding step you can take. To identify with a person with a disability will mean that you have taken
yet another step in conforming to the image of Christ.
If identification is that important, let’s define it and then describe it in further detail. Webster’s
dictionary says it is aprocess by which a person ascribes to himself the qualities or characteristics
of another person.” It is also described as “the perception of another person as an extension of one-
self” (that is, your pain is my pain; your joy, my joy).
Nobel Prize winner Herbert Simon describes identification this way: “We will say that a person
identifies himself with a group when, in making a decision, he evaluates the several alternatives of
choice in terms of their consequences for the specified group (or person).”
The essence of a friendship with a person with a disability is that we think about choices (how we
will act, what we will say) based upon their impact on that person and consider that person to be an ex-
tension of ourselves. It means that we will look at the world from their perspective and act accordingly.
Whether or not we identify with someone with a disability will depend upon these two factors: what
we know about a person and how well we value that person. Borrowing again from Herbert Simon,
these factors are called “premises.We make decisions about things and about people based on premises
of what we believe to be true (facts) as well as the things that are important to us or that we care about
(values).
To illustrate how we make decisions, imagine for a moment that you’re in the market for a car. Your
pragmatic nature determines that safety and economy might be important values to you. As you shop
for cars, you will base your decision on information related to those values. Miles per gallon, air bags
and antilock brakes will all be key factors in helping you determine which car you buy. (If you choose
a convertible sports car, you weren’t being honest about what you valued. Looks and speed were prob-
ably more important to you!)
When it comes to our attitudes toward other people, we go through a similar process. Because an
attitude is simply a decision we make with regard to a person, idea, or thing, our values and the infor-
mation available to us will be of central interest.
Let us take this line of thinking and illustrate how you can not only describe your attitude toward
a person with a disability, but also how you can grow in your relationship with that person or group
of people. At the same time, we will see other attitudes that are prevalent in our society today regarding
people with disabilities.
First, think about information regarding people with disabilities. You can have varying amounts
of accurate or inaccurate information (facts) about someone. Represented in graphic form, it looks
like this:
A Tr u e Fri e nd I d e ntif i es, b y Jon i Earecks o n Tada
2
+ Facts
- Facts
+ Facts
- Facts
Second, think about your value regarding people with disabilities. Your value can move in a positive
or negative direction and can be represented this way.
Those of you who remember (enjoyed or dreaded!) algebra class can see where I’m going with this.
Put the two lines together to form a graph of Facts and Value:
- Value + Value
- Value + Value
You will notice that when we formed this graph, we created four areas or quadrants. Look at each
quadrant to see what’s there.
Quadrant 1: Lesser value with little or inaccurate information.
This is the quadrant of Indifference. “I don’t know and I don’t care” is how someone with little value
and little or inaccurate information would express it. Very few would actually say it that way, but it is
prevalent in our society when it comes to working with disabled people. As a group, disabled people
have experienced discrimination and have had to work hard to get the most essential laws passed to
protect them from indifference.
Quadrant 2: Lesser value but with accurate and increasing amount of information.
This is the quadrant of Insensitivity. A person may know what is happening with people with disabilities
but may not respond positively because he or she doesn’t care or has become burned out from caring.
This often happens with those working professionally in the field of disability. The disabled person
may become just another “problem,” “case” or “file.”
Quadrant 3: Positive value but with inaccurate or inadequate information.
This is the quadrant of Ignorance. A lot of people in churches fall into this category. They care a lot—
Christ’s example and command prompt this—but they simply don’t know much about people with dis-
abilities. They are unaware. That is why much of disability ministry is geared toward building awareness.
Ignorance can be expressed in things such as assuming a person who is mentally disabled is also deaf.
Or a person in a wheelchair might be assumed to be mentally disabled. You can imagine how people
would interact in such cases and why friendships or acquaintances would be so hard to get started.
A Tr u e Fri e nd I d e ntif i es, b y Jon i Earecks o n Tada
3
- False
Indifference
- Value
+ Facts
Insensitivity
- Value
1
2
- Facts
Ignorance
+ Value
3
Qu
a
d
ra
n
t
4
:
P
o
s
itive
v
a
lu
e
w
ith
m
o
r
e
,
a
c
c
u
ra
te
in
f
o
r
m
a
tio
n
.
T
his
is
t
he
qua
d
r
a
nt
of
I
d
e
nt
if
ic
a
t
ion.
T
he
m
or
e
we
va
lue
a
p
e
r
s
on
wit
h
a
d
is
a
bilit
y
a
nd
t
he
m
or
e
we
kno
w
,
t
he
m
or
e
w
e
will
id
e
nt
if
y
wit
h
t
he
m
.
N
ot
ic
e
t
ha
t
wit
h
e
ve
n
a
lit
t
le
bit
of
inf
or
m
a
t
ion
a
nd
a
lit
t
le
bit
of
va
lue
,
you ha
ve
m
ove
d
awa
y f
r
om
whe
r
e
m
a
n
y p
e
op
le
a
r
e
in s
oc
ie
t
y
.
As
w
e
m
o
v
e
fu
r
t
h
e
r
i
n
t
o
t
h
e
q
u
ad
ran
t
o
f
Id
e
n
t
i
fi
c
at
i
o
n
,
w
e
l
e
arn
m
o
re
ab
o
u
t
a
p
e
rso
n
.
An
d
at
t
h
e
s
a
m
e
t
im
e
w
e
gr
o
w
in
our
a
p
p
r
e
c
ia
t
ion
a
nd
love
f
or
t
he
m
.
We
be
gin
t
o
le
a
r
n
s
e
c
r
e
t
s
of
wha
t
is
imp
ort
a
nt
t
o
t
h
e
m—simp
le
t
h
in
gs like
t
h
e
ir tast
e
s in
mu
sic
an
d
d
e
e
p
e
r t
h
in
gs like
t
h
e
ir mo
t
ivat
io
n
s in
lif
e
. All t
h
e
wh
ile
we
e
st
e
e
m
t
h
e
m
mo
re
h
igh
ly
an
d
vie
w
t
h
e
m
mo
re
an
d
mo
re
as
so
me
o
n
e
c
re
at
e
d
in
Go
d
’s
image
.
We
will
find
creat
ive
ways
o
f
lo
ving
t
he
perso
n
and
valuing
t
he
perso
n
t
he
way
Go
d
values
him
o
r
her.
We ha
ve com
e full circle in this chapter
no
w
. We said at the outset that our
goal in fr
iendship is
id
entification.
Exciting
for
each
Christian
is
that
if
we
d
ecid
e
to
value
and
learn
as
much
as
we
can
about a person with a disability, we will have expressed the mind of C
hrist by identifying
with that per
-
so
n.
Christ
identified wit
h
us
in
t
he
flesh.
H
e
b
ecame
o
ne
o
f
us
and
k
nows
o
ur
frame.
H
e
valued
us
enough to die f
or
us.
Imitating Christ in Friendship
That is what this is about, isn’t it? I
m
it
ating Chr
ist who was the ultim
ate Fr
iend.
Jesus
was
the
Fr
iend
of
sinner
s.
And
his
fr
iendship
was
so
str
ong
that
he
identif
ied
with
us
in
his
death when he took on our
sins and endur
ed the wr
ath of G
od. Oh, what an expr
ession of loving
fr
iend
-
ship to identif
y so closely with us!
Just as Jesus identif
ied with people in his death, he also identif
ied with us in his life. A
nd in the
thirty-
thr
ee year
s that Jesus spent on earth, he paid particular
attention to what was consider
ed to be
a r
ather
unlovely g
r
oup of
people—people with disabilities!
Did you kno
w that tw
enty-
f
ive out of
the
thirty-fo
ur
miracles
reco
rd
ed
in
the
G
o
sp
els
invo
lve
p
eo
p
le
with
d
isab
ilities?
On
ever
y
p
ag
e
yo
u
see
Jesus inter
acting with disabled people, befr
iending them
and m
eeting them
at their
point of need!
Jesus’ friendship with people with disabilities serves as a model for us. We can’t go wrong if we im
-
itate the way in which he identified with people with disabilities. He valued each disabled person as a
person. The story of the paralytic who was let down through the roof in Luke 5 highlights Jesus’ belief
that a disabled person was indeed a
person.
In verse 20, he addresses the man as “friend,” or literally
“man.” That one word cut right through the prevailing notion that disabled people were less than full
participants in society.
While eleva
ting
the st
a
tus of ea
ch disabled person to that of a true human, at the same time Jesus
sa
w tha
t ea
ch disa
bled person wa
s a
lso a
sinner.
We have a tendency to idealize people with disabilities
as
s
omehow
incapable
of
s
inning
.
But
Jesus didn’t sugarcoat human nature—even when it came to those
who mig
ht elicit sym
pa
thy or pity in our society. In some cases, Jesus pointed out the disabled person’s
need for forgiveness. The disability may not have been caused by the sin, as in the story of the blind man
in John 9, but that did not exclude the person with a disability from the community of sinners. Several
times Jesus told disabled people that their sins were forgiven or that they should sin no more.
Jesus not only knew the true nature of a disabled person, he also felt
compassion
for them. Whether
he was dealing with an individual or masses of people with disabilities, the Gospels often say that “he
A Tr u e Fri e nd I d e ntif i es, b y Jon i Earecks o n Tada
4
+ Facts
Identification
+ Value
4
had compassion” on them. He did not ignore the need of the day and trivialize it in light of more im-
portant matters like the kingdom. He took each person at their point of need and expressed tender
mercy. I like that synonym for compassion: “tender mercy.” When we identify with a person with a dis-
ability like Christ did, we will be tender in doing so. Whatever harshness or difficulty our disabled
friend might throw at us, we can be tender in our response.
Jesus included people with disabilities as a part of his mission on earth. When asked in Luke 7
whether or not he was the Messiah, look at how he answered: “Go back and report to John what you
have seen and heard: The blind receive sight, the lame walk, those who have leprosy are cured, the deaf
hear, the dead are raised and the good news is preached to the poor.” In our “mission” for Jesus, we
might have easily skipped over this group. But Jesus didn’t forget. And neither should we.
Jesus stopped to listen to people with disabilities. The story of Bartimaeus illustrates this characteristic
of Jesus. Bartimaeus, while sitting beside the road to Jericho, called out to Jesus. The disciples tried to
rebuke him. They were, after all, on their way to Jerusalem where Christ would be welcomed as King.
But as this large procession of people moved toward Jerusalem, it says that Jesus “stopped.” He engaged
Bartimaeus in conversation, learned his need, and then ministered to him. Stopping, slowing down,
turning off the road—all are acts that reflect the strength of Jesus’ identification with disabled people.
If Jesus
If Jesus identified so deeply with us, and if he identified so deeply with people with disabilities, it can be
our privilege to enter into a wonderful imitation of our Savior. We need not be intimate friends to iden-
tify. We need not be professional healthcare workers to meet needs. We need not be theologians to value
the essential worth of a disabled person. Submission to and imitation of Christ’s way is all we need.
Reprinted from Barrier-Free Friendships by Joni Eareckson Tada and Steve Jensen, copyright 1997, Zondervan Publishing House, Grand Rapids, Michigan.
A Tr u e Fri e nd I d e ntif i es, b y Jon i Earecks o n Tada
5
Joni Eareckson Tada is the founder of Joni and Friends International Disability Center, a nonprofit min-
istry with a global outreach. A diving accident in 1967 left Joni, then 17, a quadriplegic in a wheelchair.
Since then, Joni’s wisdom and influence have been shared with the world through bestselling books,
radio programs, television programs and frequent speaking. Her radio program is carried by over 1,000
broadcast outlets and heard by over a million listeners. Joni is also an accomplished artist and singer. She
has served on the National Council on Disability and the Disability Advisory Committee to the U.S. State
Department.
1
Seeing Life through Blinded Eyes
By Judy Redlich
In preparation for writing this paper, I surveyed some of my colleagues who are blind. They were glad
to help pastors and lay leaders feel comfortable ministering alongside people with blindness. Thus, we
(I, too, am blind) hope to paint a picture of who we are and how we would like you to see us. We rep-
resent the 1.3 million legally blind people in the United States.
1
Some lost their sight as babies. Others
became blind later in life or may be gradually losing their sight.
My Story
Like many premature babies who spent time in incubators prior to the 1950s, the retinas of my eyes
became detached due to an improperly regulated level of oxygen. Researchers identified this problem
only four months after my birth and began working toward a resolution. My mom said that my blind-
ness was a shock, but she and my dad always knew God would see them through. However, to my sib-
lings, I was simply their bratty little sister whether I could see or not. When I was four, we moved to a
neighborhood with sidewalks. I loved it when my dad walked beside me as I rode my bike up and down
the street. Later, the training wheels came off, and I rode a two-wheeler. I discovered that with a clothes-
pin or baseball card in the spokes of the bike in front of me, I could follow someone by listening to the
“flip, flip” sounds of the spokes against the card.
Definition and Causes of Blindness
Blindness is a loss of one’s vision that cannot be corrected with glasses or contact lenses. People with
“partial blindnesshave very limited vision. Those diagnosed with “complete blindness” cannot see any-
thing and do not see light. Typically, people with 20/200 vision or worse are considered “legally blind.”
2
In the United States, the leading causes of blindness are glaucoma, macular degeneration, diabetes
and accidents such as chemical burns or sports injuries.
Cataracts affect nearly 22 million people age 40 and older. By age 80, more than half of all
Americans have cataracts.
Glaucoma affects more than 2.3 million Americans age 40 and older. Another 2 million do
not know they have the disease.
More than 2 million Americans age 50 and older have advanced age-related macular degen-
eration (AMD), the stage that can lead to severe vision impairment. About 10 million have
early, intermediate or advanced AMD.
Diabetic retinopathy affects more than 4.4 million Americans age 40 and older. The
number of people, especially young people, with diabetes is increasing: 19 million
Americans age 20 and older have diagnosed or undiagnosed diabetes; about one-third
are unaware they have the disease. Generally, the longer a person has diabetes the more
likely they are to develop retinopathy.
3
Statistics regarding blindness in third-world countries are much higher due to poor health and
economic conditions. Thankfully, there are a number of ministries working to improve the plight of
people with blindness around the world.
Steps to Understanding and Acceptance
Although Gaylen had been vision-impaired since birth, she still struggled when Retinitis Pigmentosa
began to affect her central vision. “When I was diagnosed, the doctor sent me out the door with no in-
formation or support. Consequently, I dropped out of college. I eventually completed a liberal arts de-
gree and worked as a graphics editor/illustrator for a newspaper until 2003.” Today, Gaylen works hard
to get valuable information to persons newly diagnosed with Retinitis Pigmentosa. She serves on several
boards, and is very active with the American Council of the Blind. Gaylen also records and edits Bible
studies for people who cannot attend church or a small group.
What makes people with blindness feel accepted? The same thing that makes you feel accepted,
such as having sincere friends who make you feel wanted, not simply tolerated. I remember a painful
incident from my high school days. I enjoyed playing in the band until one day I overheard a classmate
say, “I wish Judy wasn’t in band, because we always have to figure out who is going to lead her around.”
Wow, did that hurt! It also caused me to become more independent, which sometimes prevented me
from getting close to others. The people I surveyed said they often felt the same.
Charlene, an independent living specialist in Hawaii, and her husband are both blind. They are cur-
rently very active in a church where they have many friends. But they couldn’t say that about their pre-
vious church. “We were left out of most of the activities and treated like invalids,” said Charlene. “We
just wanted them to know us as friends and to think of us as real living people, who work, eat, sleep
and play. We were hungry for honest fellowship. We tried to express our faith by serving at church in
different capacities, but discovered that it was lonely being cast aside and pitied.”
4
Charlene admitted
she was shy and should have done a better job of reaching out to others, but it was like fighting an up-
hill battle.
Stories like Charlene’s reveal how much Christians need to be trained to welcome every person who
walks into our churches. Here are a few helpful steps on serving people who are blind.
Step 1) Ask First
There will be times when you will wonder whether a person can or cannot see. It is okay to politely ask.
People tend to assume that because we’re blind we aren’t intelligent. As a result, they think it is accept-
able to make decisions for us. “I do need help at church dinners to get my food,” said Joleen, a retired
physical therapist from Washington. “Usually, my husband knows what I like and goes through the
line for both of us while I sit at the table. However, sometimes others serve my plate without asking for
Seei n g Lif e Throug h Blin d ed Ey e s, b y Judi t h Red l ich
2
my permission. There is just a way of doing such things graciously without making me feel inferior.”
Joleen also recommends people avoid grabbing a blind person’s arms when offering assistance, because
this could startle them, sending them off balance.
Step 2) Avoid Being Overprotective
Mark is a 17-year-old high school student whose blindness was caused by a genetic eye condition. “I
wish people wouldn’t walk on egg shells around me,” says Mark. “It’s not like I’m going to break or
something. Everyone is in a clique at school, but I am not in one. Being blind does not change a person,
any more than it would change you if you were to close your eyes. One Facebook group got it right
when they posted this motto: ‘I’m blind, I’ve got a mind. Now, get used to it!’”
Hannah, a student at Bowling Green State University in Ohio, hopes to get a master’s degree in
special education, focusing on the visually impaired. Although she lost much of her sight as a baby go-
ing through cancer, she could read large print until recently. Hannah is now learning Braille.
“I want to teach blind children things I was not taught at a young age, like reading Braille, using a
white cane and learning talking software,” said Hannah. “My church provided me with a large print
church directory. They put the words on screens in very large print. And I bought a pair of binoculars for
watching videos. I also enjoy listening to the New International Version Bible on CD.” Although Hannah
has found ways to participate in worship, she still longs for more genuine friendships and needs the help
of others. She can’t even go shopping without a companion because without assistance stores are pretty
lonely and daunting. She also needs rides to doctor’s appointments since taxi fares are very expensive.
Spending time with people who are blind is the best way to get over your fear of saying the wrong
thing or being overprotective. Inviting a blind person to share their story with your church or youth
group is a great way to begin a dialogue.
Step 3) Help Provide Special Accommodations
As a child, my family attended a Lutheran church where volunteers provided me with Sunday School
lessons in Braille. They also kept a Braille Lutheran Hymnal in the usher’s room so that my mother
could write down the hymns listed on the board. We’d pick the volumes containing those hymns to take
into the sanctuary. The Baptists, Assemblies of God and Lutherans often provide materials in Braille or
large print. However, only about 12 percent of blind people read Braille. Find out which format people
use and adapt to their needs.
Since many blind people use computers or other adaptive readers, email is now a great way to pro-
vide materials in advance for someone unable to read regular print. If your songbook or prayer book
is on computer, send electronic copies. This enables people with limited vision to bring the appropriate
liturgy or readings in their preferred format and participate during services. An 18- to 26-point font is
recommended for printed bulletins, hymns, or Sunday school materials. By law, materials may be re-
produced in alternative formats as long as they are not sold. It is not necessary to secure written per-
mission from the author or publisher for this use.
Beth’s family always challenged her to be an overcomer. In college she enjoyed studying choral
music direction, but her church wouldn’t permit blind students to train as altar servers. Thus, Beth
was especially hurt when they wouldn’t permit her to carry a heavy, wooden cross during the proces-
sional, like everyone else. She spoke up in a meeting with her pastor: “Please don’t treat blind people
like special charity projects. If we express interest in doing things like serving communion, please help
us find a way to do it, even if modifications need to be made. How can I get anything out of church if
I’m just sitting in the pew?”
Seei n g Lif e Throug h Blin d ed Ey e s, b y Judi t h Red l ich
3
Transportation can be a huge issue for blind persons. Beth must cross a large, busy intersection to
get to the church she prefers to attend. When she can’t find a ride, Beth walks to a different church be-
cause it’s a safer route. Unless someone helps her navigate a new route, providing specific landmarks,
Beth is understandably afraid of getting lost or being caught in an unfamiliar intersection. Something
as simple as providing a ride to and from church is a ministry opportunity.
What About the Children?
Children who have been blind since infancy have never seen color. But that doesn’t mean they won’t
enjoy art projects. My mother was the glitter glue and tracing wheel queen. She helped me outline col-
oring pages and bought me a box of crayons that were flat on one side so they wouldn’t roll off the
table. Here are some other helpful tips to engage blind children at church:
1. Coloring Pages Find crayons with flat sides or jumbo crayons. Make a Braille label for each
crayon. If children have limited vision, outline the picture with colored paint or glue so they
can see the outline. You can also give them a bottle of glue and a box of small items to create
their own pictures about their faith or a Bible story.
2. Drama – For skits, give children the script a week in advance or email it to their parents so
they can help them get ready to participate. Provide detailed acting directions such as “move
five steps to left stage.”
3. Music – Email songs in advance so parents can put the words into an alternative format.
4. Teacher’s Helpers If you ask children to take turns helping the teacher, please don’t exclude
blind children. Show them what to do and hold them accountable. Consider assigning
helpers in pairs so everyone will have a buddy to work with, rather than singling out the
blind students.
5. Embrace Differences – If a child uses a seeing-eye dog, ask him or her to give a class presen-
tation on guide dog do’s and don’ts.
See Inside Our Lives
People with limited vision might seem distant and hard to reach because well-meaning but thoughtless
people may have disappointed them. They might also do things more slowly due to their disability.
However, when church leaders are patient and don’t make assumptions, they may find a hardworking,
loyal volunteer. Many blind people are unemployed with time to contribute to their churches, and
many would enjoy learning new skills.
Jessie is a blind Licensed Professional Counselor from West Virginia. Her church would not accept
her offers to help with music. “Even though I’m a competent leader and professional in other aspects
of my life, my skills have not been utilized at church,” she comments. Jessie recently attended a new
church where they were eager to have her assist with music and would even provide transportation.
But her guide dog was another issue. “Their plan was that they would ‘be my eyes’ for the time I was
there. That I should leave the dog at home and ‘hold onto their hands’ while there. The dog was ab-
solutely forbidden.”
In my own church, when I got a seeing-eye dog, my pastor asked me to give a demonstration in
front of our congregation. He explained, “Velda is Judy’s eyes. Would you want someone coming up
and touching your eyes?”
Seei n g Lif e Throug h Blin d ed Ey e s, b y Judi t h Red l ich
4
Linda teaches music at a Christian school in Nebraska, gives private voice and piano lessons, and
works with the church choirs. Linda says her Baptist church is very disability friendly, even offering
her part-time employment and ministry opportunities. Linda partnered with another blind woman to
create electronic files of their hymnal, and each uses the King James Version Bible in an alternative for-
mat. She also moderates an email list for blind persons in communities of faith, through a division of
the National Federation of the Blind. Linda appreciates how inclusive her church is to her, as well as
to her friends who are visually impaired.
Robert has been blind since birth. He is Missions Chairman at Faith United Methodist Church in
West Monroe, Louisiana. Robert has been active in church most of his life. He holds a degree in com-
puter science with minors in music and business administration. How did he handle rejection in
church? Robert says:
In each case, the congregations tended to be insular. They were perfectly happy to have me come
and put money in the offering plate, but that was as far as my involvement went. My solution
to this rejection was to go to a different church. Currently, I sing in the choir, play bells in the
bell choir, serve on the Nominations Committee and the board of Trustees, am chair of the Mis-
sions committee and serve on the Staff Pastor Parish Relations Committee. In the past, I have
also been the lay delegate to the annual conference. God has given me gifts and talents and he
expects me to use what he has given me. It is my responsibility to put myself forward and vol-
unteer. I pay attention to the workings of the church and get involved as opportunities become
available. It doesn’t matter if you are blind or sighted; you get out of a church what you put in.
Ernest is a retired registered nurse. He found that moving from a small church, where everyone ac-
cepted him, to a large congregation was not easy. When he offered to help in programs, one leader
replied, “Well, I’m not sure what you can do.” Thankfully, attitudes toward Ernest eventually changed,
and now he and his wife often lead song service. He’s been in the church choir and has been a teacher
in a children’s division for the past four years. Ernest gives these reminders:
Don’t just walk past me because I don’t see you. Speak to me, not over me to another. When
talking to me, don’t walk away without letting me know you are leaving. Find out my
abilities/likes and give me some responsibilities. Greet me like you do anyone else. Being blind,
I think one of the hardest things is meeting people, whether in church or other places, and not
being able to look at folks to get their attention. Thus it is easy to be ignored by most of the
congregation.
Getting Real About Blindness
Debbie is a mother of eight and a grandmother of 15, and served as a children’s minister until she lost
her vision in 2006 because of multiple sclerosis. Her husband went through a catastrophic illness in
2008, and could no longer work as a restaurant manager. She wants to help others understand their
pain, loss and how to help.
“We never imagined both of us being ill in our 50s. A pastor should say, ‘Hey, I want to sit down
with you…get to know your family. I know you’ve had a lot of challenges recently, and perhaps you can
help me understand where you are coming from so I can help you and other people who may go
through your same challenge.’”
Seei n g Lif e Throug h Blin d ed Ey e s, b y Judi t h Red l ich
5
She says a brief conversation in a church hallway is not the place to bring up issues that are still
overwhelming. After several years Debbie is still grieving her loss of sight. She confesses to being afraid
to share her frustrations, at the risk of sounding unchristian or being whiny. She feels pastors don’t
really want an honest answer when they ask, “How are you?They want you to give the typical response,
“I’m doing great!”
Debbie said she still doesn’t quite know where she fits. The very people who looked to her for advice
and respected her in ministry now turn their backs. “What if Jesus came into one of our churches in a
wheelchair or blind—would he even be able to get in the door?” Debbie wonders.
Pastor Paul is the director of the Center for the Blind and the Assemblies of God U.S. Missions Na-
tional Representative for the Blind. He offers insights into walking alongside someone who is blind.
“First of all, find out where people are spiritually. Above all, let them know that even if they may have
to change their career, there is life after blindness.”
Pastor Paul is married with five children, and wants to encourage others. “Your faith is going to be
challenged. The Bible talks about the chaff being burned up by fire. You will find out what you really
believe or how firmly you believe what you’ve been teaching. Your entire belief system will be challenged.
Be prepared for that. If your faith is real, you will meet the challenge. It’s easy to say you believe some-
thing, until you are tested. There is hope and life after blindness. With the proper heart, and the right
techniques, you will probably find your ministry more fruitful because of your greater dependence on
the Lord. You’ll be able to empathize with those you counsel more. Most importantly, you don’t have
to give up your calling.”
Dave, a blind Lutheran pastor, and father of two says, “I find the most important thing a church
can do is accept a person for who he or she is, expecting of him or her as much as any other person,
and the willingness to utilize the individual’s gifts, with no emphasis or limitations.”
The next time you meet a blind person, ignore any fear that might hit you about that person being
different. The rule of thumb is to treat us the way you would like to be treated. Don’t baby us, don’t ig-
nore us. Develop a friendship with us, and anticipate it to be mutual rather than one-sided.
What are some hobbies people with vision loss enjoy? Here’s a list of just a few: playing golf, swim-
ming, hiking, reading, traveling, singing, biking, writing poetry, cooking, listening to music, cross-
country skiing and waterskiing. Do any of those match yours? Why not ask a blind person to join you
in one of your mutual interests? Do you share similar occupations? Does it surprise you that blind per-
sons are employed as musicians, web site designers, audio editors, computer programmers, psycholo-
gists, nurses, physical therapists, attorneys, school teachers, etc.?
There are areas where blind people can truly benefit from a friend willing to lend a helping hand,
such as grocery or clothes shopping, trips to the bank, transportation, reading mail, filing and organ-
izing printed paper work, matching and/or labeling clothing and jewelry, labeling canned goods.
Joleen sums it up for all of us: “I don’t want to feel like the amazing blind person, but rather a com-
mitted and capable member of our church family.”
In closing, please ponder the following beatitudes which sum up many of the stereotypes we face
as blind persons:
Blind Beatitudes
Blessed are they who refrain from shouting when they speak to me.
Blessed are they who talk directly to me and not to someone else.
Blessed are they who say who they are when entering a room and say hello to me.
Seei n g Lif e Throug h Blin d ed Ey e s, b y Judi t h Red l ich
6
Blessed are they who say goodbye to me when they leave so I am not left speaking to the air.
Blessed are they who do not hesitate to say “see” when talking to me.
Blessed are they who tap my shoulder gently when approaching from behind or the side when speaking to me.
Blessed are they who wait for me to extend my hand before shaking it.
Blessed are they who place my hand on an object such as the back of a chair when telling me where it
is, so I can seat myself.
Blessed are they who do not leave me in a strange environment without orienting me to it.
Blessed are they who offer me their arm to serve as my guide, instead of grabbing, pulling or shoving me.
Blessed are they who approach me in a crowd, offering to help when I appear disoriented.
Blessed are they who do not embarrass me in a group by referring to my blindness in word or action.
Blessed are they who laugh with me when I tell a joke related to blindness.
Blessed are they who read me the menu and its prices, allowing me to order my own meal.
Blessed are they who take me to the cashier so I may pay for my own meal.
Blessed are they who do not distract my guide dog from being my active eyes.
Blessed are they who treat me like a human being, for like it or not, I AM a human being.
Author Unknown, Contributed by Pat Seed
NOTES
1. U.S. National Library of Medicine, “Blindness,” Medline Plus, http://www.nlm.nih.gov/medlineplus/ency/article/003040.htm#Common%20Causes.
2. National Federation of the Blind, “Major Causes of Blindness,” Blind.net, http://www.blind.net/g2000000.htm
3. American Academy of Ophthalmology, “Eye Health Statistics at a Glance,” American Academy of Ophthalmology (updated May, 2009)
http://one.aao.org/SearchResults.aspx?q=Eye%20Health%20Statistics%20at%20a%20Glance&t=o&type=0
4. The quotes in this paper are from a “Questionnaire about Blindness,” by Judy Redlich, (Survey, 2009).
Seei n g Lif e Throug h Blin d ed Ey e s, b y Judi t h Red l ich
7
Judith Redlich has 32 years of experience in various aspects of the media industry. For twenty years, Judy
produced and hosted a television interview show, for twelve years she produced and hosted a weekly radio
talk show. As Manager of Joni and Friends Gateway she is responsible for administrating and implementing
all of the programs in St. Louis, Mo. Judy completed her Bachelor of Science in Journalism and Psychology
from Missouri Valley College. In 2009, The National Association of Professional and Executive Women
named Judy Woman of the Year” in Media Relations, and she received the 2006 Bronze Telly Award.
1
Ministering to People with
Autism Spectrum Disorders
By Dr. Laura Hendrickson
Tommy is a 24-year-old man with severe autism. He’s unable to speak, but moans loudly at intervals
and is in constant motion. Nobody knows whether he understands anything he hears, and he can be a
distraction during the Sunday service because he sits in the front row with his parents. If you were a
member of his church, would you be tempted to talk to the pastor about where the family should sit?
Rhonda is five, and diagnosed with autism. On the first day of the new quarter at Sunday school
she refused to take a seat, and stood at the back of the room, rocking rhythmically. When her teachers
tried to get her to sit down and listen to the Bible story, she screamed hysterically and threw herself on
the floor. Although Rhonda is able to speak, she seldom does unless she needs something. Her teachers
never know whether she’s learning anything from the class, because she gives no indication of interest.
Instead, she prefers to sit alone on the floor in the toy corner, lining blocks up in rows. She sometimes
gravitates to the periphery of the group when they’re singing or playing a game, but she never joins in.
Her teachers wonder whether Rhonda belongs in their class and wish they knew how to reach her.
Ten-year-old Joe is a real “little professor.” One morning he walked up to a woman he’d never seen
before, grabbed her wrist without even a greeting, and started to explain how her watch worked. Then
he launched into a lecture on world time zones and Greenwich Mean Time. A deacon asked Joe to help
set up chairs in the sanctuary, but he couldn’t get them lined up correctly. Instead of asking for assis-
tance, he began complaining loudly to himself. When this didn’t bring help, he started banging his head
rhythmically against one of the chairs. The pastor had been told that Joe had Asperger’s syndrome, but
he privately wondered whether the boy was just self-centered because his parents spoiled him. Maybe
he simply needed more consistent discipline and encouragement to prefer others ahead of himself.
Understanding Autism Spectrum Disorders
Autism spectrum disorders (ASD) are developmental disabilities, present from birth, characterized by
delays in three main areas of function. Most noticeably, people with ASD are impaired in their ability
to relate to others. Less able people with autism usually have little to no interest in relationships. Those
who are higher functioning may long for interpersonal connection, but may not possess the ability to
achieve it. They fail to connect with others because they don’t understand nonverbal cues like facial
expression, bodily stance, and tone of voice, and also because they don’t recognize that other people
have their own points of view, interests, and desires.
The cognitive hurdles people with ASD face are often more handicapping than their social prob-
lems. People on the autism spectrum range from gifted to mentally retarded, but at all levels of ability
there’s a tendency to focus on details at the expense of the big picture, and difficulty shifting attention
from one thing to another. Even people of the highest function find it almost impossible to respond
flexibly in a dynamic environment. Even very bright people on the spectrum still have slower mental
processing, problems with organization and prioritization, and struggle to react appropriately to un-
expected events.
Communication is the third area of delayed function, and the degree of impairment varies among
people with ASD. Some are unable to talk, while others neither speak nor understand the speech of
others. But even those who are very bright may have difficulty expressing their thoughts, and struggle
to comprehend an entire message the first time it’s spoken. For this reason, teenagers with Asperger’s
syndrome may be considered to be “stupid” by their peers, even if they are at the top of their class aca-
demically.
The term “autism spectrum disorder” is used to emphasize the commonalities between those with
high function and those who are less able. For example, Asperger’s syndrome is an ASD that is often
diagnosed in people who are clearly impaired in the area of social skills, but less obviously so in the
areas of cognition and communication. Autism is diagnosed when people have severe delays in all three
main areas. Although it may not be obvious at first glance, Tommy, Rhonda, and Joe are all affected by
the same condition—the only difference is in the severity.
Behaviors Associated with ASD
Behavior problems develop as a consequence of the social, cognitive, and communication handicaps
just mentioned. Inflexible thinking is a hallmark of ASD. Because mental processing is slow, people
with ASD find it much harder to keep up with a dynamic environment. Change makes them anxious,
so they develop behavior patterns that enable them to avoid it. For example, Rhonda feels safer in the
back of the Sunday school room because she’s separated herself from the demands she might face as
part of the group. People on the spectrum also commonly develop ritual behaviors and obsessions,
which can help them calm down by limiting their awareness of disturbing surroundings. Rhonda’s lin-
ing up blocks is an example of a ritual behavior. Similarly, Joe’s obsession with watches gives him some-
thing to focus his attention on when he’s anxious.
Because of their cognitive inflexibility, people with ASD are easily overwhelmed in situations where
there’s a lot going on simultaneously. When this happens, they tend to engage in self-stimulatory be-
havior to help deal with the confusion they feel. Tommy’s moaning, Joe’s head banging, and Rhonda’s
rocking are examples of self-stimulation. Severe tantrums or “meltdowns” may occur when a person
on the spectrum is no longer able to manage his or her emotions using self-stimulation alone. When
teachers attempted to prevent Rhonda from rocking and pressured her to sit with the other children,
she had a meltdown.
Joe’s angry complaining was evidence that a meltdown was imminent. When his distress wasn’t
remedied, he began to engage in painful self-stimulation. Without intervention, he could have wound
up picking up a chair and throwing it. Although children with Asperger’s syndrome may seem more
mature than children with autism of the same age, their coping abilities are still far less developed than
Mini s terin g to P eople with A utis m Spec t rum D i sorders , by D r. Laura Hendr i ckso n
2
their typical peers. Under enough pressure, a child with autism might act out in ways other children
wouldn’t consider.
Rhonda avoids other people because she feels little need to interact and is more comfortable know-
ing what to expect. On the other hand, Joe desires social intimacy, so he tries to connect with others.
Joe takes the conversational initiative and keeps it, because if he controls the direction of the interac-
tion, he’ll face less unpredictability and, therefore, less anxiety. However, his failure to obey unwritten
social rules and receive feedback through nonverbal cues keeps him from making a genuine connection
with others. When he reaches adulthood, he may suffer greatly from loneliness. Tommy is far less likely
to be lonely—even though his interactions will probably be minimal throughout his life—because he
has few felt social needs. Because Rhonda is still young, it’s hard to predict how she’ll function by the
time she’s an adult. Children with autism sometimes “move up the spectrum” when they receive effec-
tive help early on. By the time Rhonda is 10, she may still be functioning on a level similar to where she
is now, or she could behave very much like Joe does now.
ASD specialists have also found that kids like Joe can improve in the area of social competence
when the requisite skills are taught explicitly. They’re still learning how to quantify and teach these
“unwritten rules,but early efforts seem promising. With the right kind of help from ASD professionals,
Joe could well be indistinguishable from typical people his age by the time he’s grown, or he might
continue his current behavior.
How Can the Church Help?
Remember the questions about Tommy and Rhonda: Is there any point in encouraging people like
this to participate in their faith community? Can they have faith, and grow in Christ like typical peo-
ple do?
It’s important to remember that people on the autism spectrum weren’t born as the result of an
accident, which occurred outside the providence of God. Genesis 1:27 teaches that we’re all made in
His image and likeness, like our ancestors, Adam and Eve. That image has been marred by the fall, and
the disabilities of people with ASD clearly demonstrate this painful reality. But they are still human
beings made in the image of God, and, like the rest of us, they were born with the potential for rela-
tionship with Him. Scripture tells us that God personally superintended their development in the
womb and planned their life stories, as He did for our typical children (Psalm 139:13-16). So do they
belong in church, even if their presence complicates life for the rest of us? Absolutely!
What’s more, people with ASD are capable of learning, when they’re taught in a manner consistent
with their unique cognitive style. Proverbs 22:6 in the original Hebrew reads, “Train up a child in his way,
and when he is old he will not depart from it.” A child with ASD has innate strengths and weaknesses, like
the rest of us, which constitute his individual way. If we offer help based upon an understanding of
the ways that he is distinctive, he can learn.
Helping Young Children with Autism
How would I help Rhonda learn in her Sunday school class? I’d start by designating myself as her special
helper. Generally speaking, a class containing a child with ASD should have someone devoted exclu-
sively to him or her, because the child probably won’t participate without one-on-one involvement.
Autism professionals call this person a “shadow,” and their job is to stay with the child with ASD to
repeat what the teacher says in simpler language and to encourage their involvement.
Mini s terin g to P eople with A utis m Spec t rum D i sorders , by D r. Laura Hendr i ckso n
3
Because Rhonda is cognitively inflexible and easily overwhelmed, she’s not likely to notice what
the teacher is saying without help. So if I were shadowing Rhonda, I’d get down on her level, face-to-
face, because if she hears what’s been said, she’s more likely to respond. Before a transition occurred,
I’d tell Rhonda it was time to change activities and explain what she could expect next. Children with
ASD often have apraxia, which is difficulty getting themselves moving. Physical guidance like gentle
pressure on her shoulder might help to get Rhonda started. I’d go to her desk, put a crayon in her hand,
and initially guide her hand to start coloring. Then I’d praise her effusively, “Good coloring!” ASD spe-
cialists say that children on the spectrum often don’t respond to quiet speech, but cooperate when it’s
given enthusiastically. On the other hand, if a correction was necessary, I’d try not to make a big deal
out of it, because children with ASD are easily discouraged and tend to give up. This can provoke ob-
stinate behavior and even meltdowns.
Rhonda also needs firm limits and consistency. She may become confused and stop trying if the
rules aren’t exactly the same every time, or if they aren’t always enforced. Typical kids can deal with
some inconsistency in their environment. Because children with ASD struggle with change, it helps to
make the rules obvious, state them often, and enforce them 100 percent of the time.
I’d also be watching Rhonda for rocking or other clues that she was becoming overwhelmed. If she
seemed to be getting increasingly upset, I’d take her out of the classroom for a few minutes to a quiet
place where she could calm down. Once there, I’d talk to her very slowly, in a quiet, low-pitched voice
about what was happening in the room, trying to help her make sense of it. I’d also try to get Rhonda
to agree that she was ready to go back to the classroom before taking her, perhaps by reminding her
that it was almost time for a favorite activity.
If, in spite of my best efforts, Rhonda did begin having a meltdown in the classroom, I’d pick her
up quickly and take her to a quiet place. If she’s removed from the difficult environment, her loss of
control is likely to resolve sooner. I wouldn’t try to talk to her while she was upset, because more words
would further over-stimulate her. Once the incident was over, I’d try to talk with Rhonda about what
bothered her, and help her discern a way to cope better next time.
Helping People with Aspergers Syndrome
What can be done to help Joe? Are people with Asperger’s syndrome really seriously handicapped, or
do they just need more discipline and training on how to put others ahead of themselves?
It’s important to recognize that the Bible doesn’t exempt people with special needs from its com-
mands. This means that Joe, like the rest of us, needs to work hard at preferring others ahead of himself.
But because he has an impairment that makes it especially difficult for him to see things from others’
point of view, this is going to be much tougher for him. We also need to remember that just because a
child has a disability doesn’t mean that he or she doesn’t make sinful choices. People with Asperger’s
syndrome find the battle with their besetting sins (often anger and stubbornness) very difficult because
of their native inflexibility and emotional instability. However, they must continue to fight—within
the limits of their ability—because God commands all of us to do so.
This calls for great compassion on the part of those who seek to help a child with ASD. We want to
be sure that we don’t exempt him from the need to follow Christ in the area of his behavior because of
a misunderstanding of the nature of his disability. We must lead with patience, recognizing how much
harder it will be for that child to change.
Is Joe spoiled, as well as disabled? He could be. My son’s function was as low as Tommy’s at age
two, but he received effective early intervention, and was more like Joe by the time he reached 10. By
Mini s terin g to P eople with A utis m Spec t rum D i sorders , by D r. Laura Hendr i ckso n
4
God’s grace, today my son holds a job and is an honors college student. In his late teen years I had to
face the painful reality that, because I’d focused so much on adapting myself to his way when he was a
child, I’d failed to set a high enough standard for his behavior. He had a real disability, but that didn’t
mean that he couldn’t be overindulged, or that he didn’t need help to overcome his particular besetting
sins. Help for Joe might include individual counseling. He needs to be motivated to do something that
he doesn’t naturally desire to do, which is to work on understanding others and thinking of their needs
as well as his own. He can grow in this area, but first he has to be convinced of its importance, and un-
derstand that God requires it of him. He can learn to better control himself, even though he becomes
overwhelmed when things change too rapidly for his comfort level.
Does Joe need more discipline? It’s possible, depending on what standards his parents are using to
raise him. It’s likely that those who share his life need to better understand his unique way. This is not
to say that an effective approach to helping Joe couldn’t include making sure his parents understand
biblical principles of child training. But to be effective, his helpers also need to recognize that some
parenting techniques that work with typical children may tempt a child with Asperger’s syndrome to
further lose control. The biblical principles are non-negotiable, because God has commanded them in
His Word. But how we apply those principles to a child with ASD may be very different from how we
apply them to typical kids.
What makes understanding Joe a challenge is that he’s so intellectually competent. Yes, his interests
are a little strange, but he’s as capable of learning as a bright typical child. And yet he doesn’t have the
ability to think through a simple practical problem and modify his approach in response to a changing
environment. Because he’s cognitively inflexible, he’s also less likely to remember to ask for help when he
doesn’t know how to solve a problem. And because he’s easily overwhelmed, he may make sinful choices
in response, like voicing his frustration. If I saw a typical child at my church angrily complaining while
he reluctantly obeyed me, I might tell him that he was being disrespectful. I’d say that, to be pleasing to
God, obedience must be performed cheerfully from the heart. Perhaps I’d even remind him that God’s
Word commands him to “do everything without complaining or arguing” (Phil. 2:14). All this is true, and cer-
tainly should be explained to Joe at a later time, once he’s back under control. But when he’s already over-
whelmed, this correction might pitch him over the edge. And, more importantly, it doesn’t address the
heart of Joe’s anger, which is that he’s frustrated because he can’t figure out how to solve his problem.
So if I knew that Joe had Asperger’s syndrome, and saw that he was trying to line up chairs, I’d say
in a low, quiet voice, “Having trouble lining up the chairs? Let’s figure it out together.” Then I’d offer
information to help him modify his approach to the problem. For example I might say, “If we place
the metal frames together at the seat, I’ll bet that the legs will line up, too.” I know that this seems ob-
vious, but people with ASD sometimes have difficulty getting the big picture, particularly when they’re
already anxious. Joe would probably appreciate the feedback, if it were given quietly and matter-of-
factly. I’d work alongside him without saying any more than I had to, which would help him concen-
trate on his task. Once the job was done, I’d encourage him to take a break, knowing that he’d naturally
choose to isolate himself to calm down. Finally, I’d make sure that he received appropriate correction
about his sinful responses at a later time.
Helping People with Severe Autism
Everyone’s patience will be needed if a lower-functioning person with autism is to become an accepted
member of your church family. Given the severity of his disability, Tommy is unlikely to participate in
activities without his parents. Because many adults with autism continue to have meltdowns, the family
Mini s terin g to P eople with A utis m Spec t rum D i sorders , by D r. Laura Hendr i ckso n
5
needs support as they work to help him feel safe and under control. Life with Tommy may be particu-
larly trying during the years when his parents are training him to sit in church during the service.
Is there any point in doing such training? Can a lower-functioning person with autism understand
a church service? Remember that my son was much like Tommy at two, which was when his training
began. He was similar to Rhonda at four, and I worked to integrate him into his Sunday school class-
room, shadowing him myself. Today it’s clear to everyone that he has a fine mind, but this was far from
obvious during his “training years.”
We should seek to foster the relationship with God in any way we can, recognizing that there’s still
much about autism we don’t understand. The image of God implies that all human beings are capable
of relationship with Him regardless of their disability. Some people with autism who are unable to
speak and appear to have severe mental retardation have been taught to type, and once they’re able to
communicate, they prove to be as intellectually capable as you or me. Granted, this will not turn out
to be true for everyone, but even those with retardation shouldn’t be presumed incapable of under-
standing some measure of spiritual truth.
My son’s spiritual understanding at every age seemed to develop much slower than I would have
predicted based upon my knowledge of his intellectual abilities. This taught me that a lack of obvious
evidence of growth doesn’t mean that there’s no spiritual life in people with autism. We just may not
know how to recognize the early signs of their spiritual growth. We can be confident that there is some-
thing happening even in very low functioning spectrum people because we know that God made them—
like all people—for a relationship with Him.
I vividly recall the isolation and lack of understanding from others that I sometimes experienced
during my years raising a child with autism. Let’s always remember that love “is ever ready to believe
the best,(1 Corinthians 13:7, AMP). It may be that the parents of these challenging children are making
mistakes. God forbid we should minister condemnation instead of comfort to them, particularly when
there’s still so much we don’t understand about ASD. Instead, may He grant us grace and wisdom as
we seek to be channels of His love to these beautiful but very different people.
Mini s terin g to P eople with A utis m Spec t rum D i sorders , by D r. Laura Hendr i ckso n
6
Dr. Laura Hendrickson, trained as a medical doctor and board-certified as a psychiatrist, left her practice
18 years ago to work full-time at home with her son, Eric, who had just been diagnosed with severe autism.
She trained as a biblical counselor and currently ministers at the Institute for Biblical Counseling and
Discipleship in San Diego, CA. She is the author of Finding Your Child’s Way on the Autism Spectrum: Discovering
Unique Strengths, Mastering Behavior Challenges. Eric has, by God’s grace, advanced along the autism spectrum,
and today is an honor student at a top California university.
1
Dealing with the Emotions
of Those with Special Needs
By Mark W. Baker, Ph.D.
In my role as a psychologist I am often asked the question, “What’s the point of feelings, anyway?”
People come to my office disturbed by their feelings and struggling with everything from being over-
whelmed to being completely cut off from their emotions. As it turns out, feelings are vitally important
to who we are—and a crucial aspect of how we were created to be.
1
I often hear statements like, “I have to tell you up front, I’ve never really believed in psychology,”
or, “I don’t want to spend a lot of time wallowing in feelings. I don’t want you to just sit there and
listen to me; just tell me what I should do to get better and I’ll do it.”
These statements are predicated on the notion that emotions get in the way of effective living and
should not be trusted. These people think a lot of reasoning is good, and a lot of emotion is bad. While
this disdain for feelings can be traced back hundreds of years among Christian authors, it has led to a
number of difficulties in the lives of those trying to live authentically with their suffering. John was
someone who didn’t understand the point of feelings.
Living in Denial
A successful businessman who is married with three children, John was just about the perfect picture of
success until his car was broadsided at an intersection one day. John suffered a back injury, resulting in
paralysis in both legs and confining him to a wheelchair. With his typical determination and drive, he re-
covered from the accident, returned to work and refused to view himself as disabled—even though he is
never expected to walk again. John would simply say he is just a man who uses a wheelchair to get around.
However, what John said about himself differed from how he secretly felt inside. Although he tried to
hide it from everyone, over time John started battling anxiety. He was so embarrassed by his anxiety that
he planned his business meetings carefully so he could leave at a moment’s notice if necessary. Sometimes
he would cancel meetings altogether if he thought he was going to have a problem with anxiety.
The event that finally convinced John to seek help happened when he was about to leave for an im-
portant business trip. He had taken a car to the airport and was about to fly to New York to close an
important deal. Although John was a frequent flyer before the accident, he had cut back on his traveling
because of the anxiety. He didn’t admit it to anyone, but he was worried about how the trip was going
to go. As he approached the airport that day his hands started to feel clammy, his heart started beating
faster and he was feeling dizzy.
“Oh, no!” John thought to himself. “This trip is too important for me to blow it. I have to control this anxiety
no matter what.”
But try as he might, John couldn’t stop what was about to happen next. He learned willpower is
not enough when it comes to dealing with anxiety. As the driver pulled up to the curb at the airport,
John’s chest began to constrict and he was afraid he might be having a heart attack. He couldn’t get
out of the car. In fact, he was afraid to move.
“Take me to the hospital,” he cried out.
“What?” asked the driver.
“The hospital!” John shouted back. “I think I’m having a heart attack!”
Two hours later, when John’s wife arrived at the hospital, they both learned that John did not have
a heart attack. He had experienced a panic attack. In spite of his impressive willpower and positive at-
titude, John had run up against a problem he couldn’t solve with pure determination. He had figured
out how to overcome his inability to walk, refused to view himself as a victim and even returned to a
successful career. He had become an expert in facing difficult problems in life. But he was about to
embark on a journey of self-discovery to understand how to deal with a new problem he didn’t even
know he had—understanding the purpose of his emotions.
John entered therapy with me within a week of his panic attack. As he had with the other areas of
life, he started therapy with an agenda. He opened our first session with, “I’m looking for someone to
help me get control of my feelings.”
“Why is that?” I asked.
“Because they’re getting in the way!” he said, frustrated that I didn’t understand the obvious nature
of his goal.
“I see. So your feelings have become your enemy?” I responded.
“I guess so. I mean, I have so much going for me. The doctors tell me I am one of the best examples
of recovery from this kind of spinal injury, so whatever problems I have now must be in my head. There
are no victims in life you know, only people who think they are,” John said, defiantly.
“Well, control is a tough one,” I replied. “Before I prescribe a treatment for you, I think I need to
understand the exact nature of the complaint.”
Over the next several months of therapy John learned that his feelings were not his enemy, and, in
fact, they were his friends. All of them—even the uncomfortable ones. He learned that his take charge at-
titude had helped him return to a successful career in business despite the fact that he was now in a
wheelchair, but it was causing him to fail in his emotional life. John’s attempts to control his anxious
feelings and talk himself into positive feelings had been making matters worse. It was only when he
stopped trying to control his painful feelings and started learning to express them that he began to re-
move the roadblock that anxiety had become in his life.
The Bible tells us that, “it is with your heart that you believe and are justified, and it is with your mouth that
you confess and are saved,” (Romans 10:9). The action of confessing the truth out loud changes us. When
we take the convictions of our heart and speak them out loud something is transformed in us. Just as
confessing the truth in our hearts about the Lordship of Jesus connects us to God spiritually, so, too,
confessing the truth in our hearts about our deepest feelings connects us to God and others emotion-
ally. Then we are no longer alone in our pain.
In therapy John learned that he had not felt safe to express vulnerable feelings like sadness, hurt
and fear. His recovery from the accident had been rough and he had to set aside his hurt feelings to do
it. Although his strategy helped him survive a painful, life-changing injury, it was no longer helping
him. John didn’t know it at the time, but trying to control his anxiety was the main cause of his panic
Deal i ng wi t h the Emot i ons o f Tho s e wit h Spec i al N e eds, b y Ma r k W. Bake r, Ph.D.
2
attacks. It was blocking up his emotional system and causing him to overload. Accepting his feelings,
especially the painful ones, helped John release his anxiety. Trying to make his feelings go away had
the opposite effect. He came to see how his panic attacks were the result of his attempts to over control
his anxiety. John learned that all feelings are an important source of information, which can’t be ig-
nored. This realization was fundamental for his recovery.
John misunderstood his panic attacks as the result of being too emotional. The truth was he wasn’t
being emotional enough. He wasn’t just feeling anxiety; he had a good deal of fear, hurt and shame
that needed to be acknowledged as well. He learned that his anxiety did not have to mean something
bad was happening. Anxiety can be a signal that we need to pay attention. Once he stopped being
afraid of his anxiety and started listening to the feelings underneath, he stopped struggling with him-
self and allowed his feelings to flow. John learned that the intensity of his anxiety wasn’t his real prob-
lem; it was his fear of being anxious at all that was causing the panic attacks.
John came to see that feelings are not the problem—refusing to deal with them is. He couldn’t
control his feelings because feelings are not meant to be controlled. Feelings are meant to be ac-
knowledged and expressed to help us connect to God and others. Although it isn’t always easy for
John to do it, he doesn’t try to control his feelings anymore and his problem with anxiety has been
greatly reduced. His panic attacks are relatively rare now, and when he does have one it’s much less
intense.
The Purpose of Emotions
“Love the Lord your God with all your heart and with all your soul and with all your mind and with all your strength.”
—Mark 12:30
Jesus tells us to love the Lord your God with all your heart. The purpose of emotions is to connect to
God and others, and motivate us to grow. We were made for the purpose of relationship, first to God
and then to others. Feelings are instrumental in helping us do this. Feelings are the language of con-
nection. When expressed as they were intended, we know and feel known.
Proverbs 16:23 tells us, “A man’s heart guides his mouth.” Psychologists have now learned that the emo-
tional part of the brain responds five times faster than the thinking part of the brain. This means we
feel things five times faster than we can think. You have a feeling, and then come up with the reasons
why you feel the way you do. You might not like to think it, but you are not really a rational person.
You are probably more of a rationalizing one.
2
Of course, this does not mean that we are to be guided solely by our emotions. That would be just
as out of balance as trying to over-control them. What it does mean is that God has made us perfectly
equipped to deal with a complicated and sometimes difficult life. 1Thessalonians 5:23 says, “May God
himself, the God of peace, sanctify you through and through. May your whole spirit, soul and body be kept blameless
at the coming of our Lord Jesus Christ.” We have a spirit which is transcendent, a soul which is the seat of
our emotions, and a body which is our physical vehicle in this world. If we are wise in honoring all
three, we will grow into the whole people God made us to be.
The Problem of Pain
“My God, My God, why have you forsaken me?” Matthew 27:46
Even though God created emotions to help us connect to him and others, it doesn’t always work
that way. Sometimes when the pain of suffering is too great, the very emotions that were intended to
Deal i ng wi t h the Emot i ons o f Tho s e wit h Spec i al N e eds, b y Ma r k W. Bake r, Ph.D.
3
bond us to others actually create a separation. This is not due to a lack of faith; it is due to an emotional
reaction to intense pain. It is important to understand that the feeling of isolation is a psychological
property of trauma.
When Jesus was on the cross he uttered the loneliest words ever spoken. The son of God cried out
in his most intense moment of suffering, My God, My God, why have you forsaken me?” Theologians have
wrestled with this statement over the years, but one thing is certain. This is not a statement about a
lack of faith. It is a statement about a psychological property of trauma. Extreme trauma can make
you feel very alone. If you’ve ever felt isolated from others, or even abandoned by God in your suffering,
you are not the only one. Jesus himself felt this type of suffering.
One of the most helpful books on the subject of suffering over the last century is The Problem of
Pain by C.S. Lewis.
i
ii
He takes a realistic and sympathetic look at the intellectual problems raised by hu-
man suffering. Lewis says Christianity “creates rather than solves the problem of pain.”
3
His argument
is simple: “If God’s goodness is inconsistent with hurting us, then either God is not good or there is
no God.”
4
Other religions that don’t speak of a personal and loving god don’t have this problem. Pain
is simply a part of life and there is no personally loving god to complain to about it. In this way, Chris-
tianity creates the problem of pain.
After Lewis wrote The Problem of Pain he met Joy Gresham, a divorced American poet studying in
England. The two married and developed an intimate love relationship unlike any Lewis had ever ex-
perienced. Tragically, Gresham died of cancer leaving Lewis heartbroken and despondent. It was after
his own intense suffering that Lewis wrote A Grief Observed, his own story of surviving the intense pain
of grief and loss. In it he wrote,
Meanwhile, where is God? This is one of the most disquieting symptoms. When you are happy,
so happy that you have no sense of needing Him…and turn to Him with gratitude and praise,
you will be welcomed with open arms. But go to Him when your need is desperate, when all
other help is vain and what do you find? A door slammed in your face, and a sound of bolting
and double bolting on the inside. After that, silence. You may as well turn away.
5
Lewis’ honesty helps us understand intense suffering. Trauma is alienating, and can make you feel
like no one understands. If suffering is too great it can drive a wedge between you and others, even
God. This is not a failing or a weakness. It is a psychological property of trauma that you may experience
someday. If this happens, you may feel afraid and alone. But do not stop there. Even if you feel that the
Bible does not offer a good answer as to why pain exists when you feel alone and traumatized, it does
offer some pretty good answers as to how to deal with it when it comes your way.
The Solution to the Problem of Pain
When most people think of finding a solution to the problem of pain, they usually think about how
to make it go away. However, pain is an essential element in life as we know it. One of the reasons God
made us able to feel pain is to keep us safe. Without pain we would not get through a day without in-
juring ourselves unknowingly, which could have disastrous results.
Jesus said, “My prayer is not that you take them out of the world but that you protect them from the evil one.”
(John 17:15). Our challenge is to be in the world, but not of it. This means we will have all the same
physical and emotional challenges that everyone else in the world experiences, but we can face them
empowered from above. Pretending we don’t have feelings is trying to take ourselves out of the world
Deal i ng wi t h the Emot i ons o f Tho s e wit h Spec i al N e eds, b y Ma r k W. Bake r, Ph.D.
4
in which we live. Acknowledging and confessing these feelings to God and others is how we live here
and protect ourselves from the evil one.
The solution to the problem of pain is not to remove suffering, or ourselves, from the world. The
real solution is to never try to suffer alone. When we have been traumatized we may feel alone, but we
do not have to stay that way. The feeling of loneliness that often comes from suffering is God’s way
of driving us back into relationship with him and others. Feeling alone may not be a choice, but stay-
ing there is.
The Bible tells us, “A despairing man should have the devotion of his friends, even though he forsakes the fear
of the Almighty,” (Job 6:14). Even when our suffering causes us to feel isolated from God himself, we
were not created to suffer alone. This is when we need others to stand with us. Sometimes we don’t
know what to say to those who are suffering. That’s okay, because it is in those times that being with
them is more important than anything we could say. There is a comfort that comes from simply being
there that cannot be expressed in words. This is the solution to the problem of pain—do not try to
suffer alone.
Grief Work
One of the most important emotions to understand when working with families with special needs is
grief. It has been said that all emotional problems come from an inability to grieve. This means grieving
our losses is a necessary part of growth. In dealing with families with special needs there are often many
things to grieve, which is the path to acceptance of the life God has given them.
Part of my work with John was to help him grieve his losses in order to free him to live a full life go-
ing forward. His panic attacks came from his refusal to accept his life and the feelings that came with
it. When he came to me he was in the first stage of grief: Denial. He refused to define himself as disabled,
and this attitude had helped him in many ways. But this did not mean he could deny the feeling of
loss that comes with paralysis. God could heal him and give him the use of his legs again, as he has
done for people before. But the reality was that God wasn’t healing John.
Talking honestly about this brought John into the second stage of grief: Anger. Some days John
was angry with God for refusing to heal him, and many days he was angry with God or himself for al-
lowing the injuries to happen in the first place. This was not a lack of faith on John’s part—it was simply
a part of the process of grief in his life. Anger itself is not a sin. It is merely energy to help us do the
emotional work that God has for us to do today. As the Bible directs, “In your anger do not sin. Do not let
the sun go down while you are still angry.” (Eph. 4:26). At its core, anger is energy to solve a problem. And
in John’s life his anger was part of the energy to motivate him to grieve his losses.
This facilitated John’s progress to the next stage of his grief work: Bargaining. His prayer time often
took on the quality of a business negotiation with God. Sometimes he would promise to devote his
life to mission work if God would heal his legs, but mostly he would try to convince God that he could
be a more powerful witness if God granted him success in his work now that he was in a wheelchair.
This “If you would only…then I would…” type of prayer seemed earnest, but it was really a disguised form
of bargaining that kept him from full acceptance of his circumstances.
Once John and I identified his bargaining as a part of his grief process, he came to the next phase
of grief: Depression. The Bible says, “Sorrow is better than laughter, because a sad face is good for the heart.”
(Ecclesiastes 7:3). The ability to tolerate sorrow is a very important aspect of the grief process. Some-
times sorrow helps us get to the honest places in our hearts much better than laughter does. We do
not have to fear sadness because we have a God who comforts us there. The depression that comes as
Deal i ng wi t h the Emot i ons o f Tho s e wit h Spec i al N e eds, b y Ma r k W. Bake r, Ph.D.
5
a part of the grief process is God’s way of clearing a place in our hearts for new growth. This sadness
frees us from the way things were, to prepare us to fall in love with the way things are. The depression
of grief can feel bad, but it is actually good. If we have the courage to honestly feel it, then we are ready
for the final stage of grief: Acceptance.
Acceptance is not resignation or giving up—far from it. Acceptance is saying yes to the life God has
given you. It is the decision to no longer live in the past and embrace the strength that comes from the
indwelling of the Holy Spirit today. This does not mean that you will no longer have any feelings to
process. In fact, grief work is something that we often go through many times. Sometimes John goes
back and forth between the stages of grief without even realizing it. Grief work is not linear; you don’t
follow a straight line from denial to acceptance. You can bounce around between the stages depending
on what you are going through each day. However, an awareness of the stages of grief can help us iden-
tify the feelings and understand them as a normal part of the process of healing that God has provided
for us.
People Need People
God made us relational people, and he has given us emotions to help us connect and grow. Even when
the same emotions that were designed to help us connect to others may drive a wedge in relationships,
we still need relationships in order to be whole. Sometimes emotional suffering is so intense that you
will be in need of special help.
6
The Bible tells us, “Plans fail for lack of counsel, but with many advisers they
succeed.” (Proverbs 15:22). It may be difficult to reach out in our hardest moments, but this may be the
most important time to act. Even if it doesn’t feel like anyone can understand, you still need others.
There is a level of relationship that transcends understanding. This could come in the form of a special
friend, pastor or a professional therapist. The point is that we deal with our emotional needs by ac-
knowledging our feelings and confessing them to God and others. We live in a world with emotional
suffering, but we do not have to go through it alone.
NO TES
1. Mark Baker, Jesus, The Greatest Therapist Who Ever Lived. (HarperOne: San Francisco. 2007).
2. Daniel Goleman, Emotional Intelligence: Why it matters more than IQ. (Bantam Books: New York, 1995).
3. C.S. Lewis, The Problem of Pain: The intellectual problem raised by human suffering, examined with sympathy and realism. (Macmillan: New York, 1962).
4. Ibid, pg. 24.
5. C.S. Lewis, A Grief Observed, (Bantam Books: New York, 1963/1976) pg. 31.
6. Ibid, pg. 4
7. Robert Stolorow, Trauma and Human Existence: Autobiographical, psychoanalytic and philosophical reflections. (The Analytic Press: New York, 2007).
Deal i ng wi t h the Emot i ons o f Tho s e wit h Spec i al N e eds, b y Ma r k W. Bake r, Ph.D.
6
Dr. Mark W. Baker has a Ph.D. in Clinical Psychology and a Masters degree in Theology from Fuller
Theological Seminary, and a certificate in Psychodynamic Psychotherapy from the Southern California
Psychoanalytic Institute. He is licensed as a Clinical Psychologist as well as a Marriage, Family and Child
Therapist. Dr. Baker is the Executive Director of the La Vie Christian Counseling Center that has a staff
of twenty-five Christian Therapists with offices in Pasadena and Santa Monica, California. Dr. Baker’s
book, Jesus, The Greatest Therapist Who Ever Lived has sold nearly one million copies in several countries
around the world.
1
The Third Sermon in Defiance of the Nazis
by Bishop von Galen
The Third Sermon, preached in the Church of St. Lambert's
on August 3rd, 1941, in which the Bishop attacks the Nazi practice
of euthanasia and condemns the mercy killings
taking place in his own diocese.
1
[The following is from the book, Cardinal von Galen, by Rev. Heinrich Portmann, translated by R.L. Sedgwick, 1957,
pp. 239-246.]
My Beloved Brethren,
In today’s Gospel we read of an unusual event: Our Saviour weeps. Yes, the Son of God sheds tears.
Whoever weeps must be either in physical or mental anguish. At that time Jesus was not yet in bodily
pain and yet here were tears. What depth of torment He must have felt in His heart and Soul, if He, the
bravest of men, was reduced to tears. Why is He weeping? He is lamenting over Jerusalem, the holy city
He loved so tenderly, the capital of His race. He is weeping over her inhabitants, over His own compa-
triots because they cannot foresee the judgment that is to overtake them, the punishment which His
divine prescience and justice have pronounced. ‘Ah, if thou too couldst understand, above all in this
day that is granted thee, the ways that can bring thee peace!Why did the people of Jerusalem not know
it? Jesus had given them the reason a short time before. ‘Jerusalem, Jerusalem . . . how often have I been
ready to gather thy children together, as a hen gathers her chickens under her wings; and thou didst
refuse it! I your God and your King wished it, but you would have none of Me…’ This is the reason for
the tears of Jesus, for the tears of God… Tears for the misrule, the injustice and man’s willful refusal of
Him and the resulting evils, which, in His divine omniscience, He foresees and which in His justice He
must decree… It is a fearful thing when man sets his will against the will of God, and it is because of
this that Our Lord is lamenting over Jerusalem.
My faithful brethren! In the pastoral letter drawn up by the German Hierarchy on the 26th of June at
Fulda and appointed to be read in all the churches of Germany on July 6th, it is expressly stated: ‘Accord-
ing to Catholic doctrine, there are doubtless commandments which are not binding when obedience to
them requires too great a sacrifice, but there are sacred obligations of conscience from which no one can
release us and which we must fulfil even at the price of death itself. At no time, and under no circum-
stances whatsoever, may a man, except in war and in lawful defence, take the life of an innocent person.’
When this pastoral was read on July 6th I took the opportunity of adding this exposition:
For the past several months it has been reported that, on instructions from Berlin, patients who
have been suffering for a long time from apparently incurable diseases have been forcibly removed from
homes and clinics. Their relatives are later informed that the patient has died, that the body has been
cremated and that the ashes may be claimed. There is little doubt that these numerous cases of unex-
pected death in the case of the insane are not natural, but often deliberately caused, and result from
the belief that it is lawful to take away life which is unworthy of being lived.
This ghastly doctrine tries to justify the murder of blameless men and would seek to give legal sanc-
tion to the forcible killing of invalids, cripples, the incurable and the incapacitated. I have discovered
that the practice here in Westphalia is to compile lists of such patients who are to be removed elsewhere
as ‘unproductive citizens,’ and after a period of time put to death. This very week, the first group of
these patients has been sent from the clinic of Marienthal, near Münster.
Paragraph 21 of the Code of Penal Law is still valid. It states that anyone who deliberately kills a
man by a premeditated act will be executed as a murderer. It is in order to protect the murderers of
these poor invalids—members of our own families—against this legal punishment, that the patients
who are to be killed are transferred from their domicile to some distant institution. Some sort of disease
is then given as the cause of death, but as cremation immediately follows it is impossible for either
their families or the regular police to ascertain whether death was from natural causes.
I am assured that at the Ministry of the Interior and at the Ministry of Health, no attempt is made
to hide the fact that a great number of the insane have already been deliberately killed and that many
more will follow.
Article 139 of the Penal Code expressly lays down that anyone who knows from a reliable source of
any plot against the life of a man and who does not inform the proper authorities or the intended vic-
tim, will be punished…
When I was informed of the intention to remove patients from Marienthal for the purpose of put-
ting them to death I addressed the following registered letter on July 29th to the Public Prosecutor,
the Tribunal of Münster, as well as to the Head of the Münster Police:
‘I have been informed this week that a considerable number of patients from the provincial clinic
of Marienthal are to be transferred as citizens alleged to be “unproductive” to the institution of Richen-
berg, there to be executed immediately; and that according to general opinion, this has already been
carried out in the case of other patients who have been removed in like manner. Since this sort of pro-
cedure is not only contrary to moral law, both divine and natural, but is also punishable by death, ac-
cording to Article 211 of the Penal Code, it is my bounden obligation in accordance with Article 139
of the same Code to inform the authorities thereof. Therefore I demand at once protection for my
fellow countrymen who are threatened in this way, and from those who purpose to transfer and kill
them, and I further demand to be informed of your decision.’
The T hird Ser m on in Defi a nce o f the N azis , by B i shop von G a len
2
I have received no news up till now of any steps taken by these authorities. On July 26th I had already
written and dispatched a strongly worded protest to the Provincial Administration of Westphalia which
is responsible for the clinics to which these patients have been entrusted for care and treatment. My ef-
forts were of no avail. The first batch of innocent folk have left Marienthal under sentence of death, and
I am informed that no less than eight hundred cases from the institution of Waestein have now gone.
And so we must await the news that these wretched defenceless patients will sooner or later lose their
lives. Why? Not because they have committed crimes worthy of death, not because they have attacked
guardians or nurses as to cause the latter to defend themselves with violence which would be both legit-
imate and even in certain cases necessary, like killing an armed enemy soldier in a righteous war.
No, these are not the reasons why these unfortunate patients are to be put to death. It is simply be-
cause that according to some doctor, or because of the decision of some committee, they have no longer
a right to live because they are ‘unproductive citizens’. The opinion is that since they can no longer
make money, they are obsolete machines, comparable with some old cow that can no longer give milk
or some horse that has gone lame. What is the lot of unproductive machines and cattle? They are de-
stroyed. I have no intention of stretching this comparison further. The case here is not one of machines
or cattle which exist to serve men and furnish them with plenty. They may be legitimately done away
with when they can no longer fulfil their function. Here we are dealing with human beings, with our
neighbours, brothers and sisters, the poor and invalids… unproductive—perhaps! But have they, there-
fore, lost the right to live? Have you or I the right to exist only because we are ‘productive’? If the prin-
ciple is established that unproductive human beings may be killed, then God help all those invalids
who, in order to produce wealth, have given their all and sacrificed their strength of body. If all unpro-
ductive people may thus be violently eliminated, then woe betide our brave soldiers who return home,
wounded, maimed or sick.
Once admit the right to kill unproductive persons… then none of us can be sure of his life. We shall
be at the mercy of any committee that can put a man on the list of unproductives. There will be no po-
lice protection, no court to avenge the murder and inflict punishment upon the murderer. Who can
have confidence in any doctor? He has but to certify his patients as unproductive and he receives the
command to kill. If this dreadful doctrine is permitted and practised it is impossible to conjure up the
degradation to which it will lead. Suspicion and distrust will be sown within the family itself. A curse
on men and on the German people if we break the holy commandment ‘Thou shalt not kill’ which was
given us by God on Mount Sinai with thunder and lightning, and which God our Maker imprinted on
the human conscience from the beginning of time! Woe to us German people if we not only licence
this heinous offence but allow it to be committed with impunity!
I will now give you a concrete example of what is taking place here. A fifty-five-year-old peasant
from a country parish near Münster—I could give you his name—has been cared for in the clinic of
Marienthal for some years suffering from some mental derangement. He was not hopelessly mad, in
fact he could receive visitors and was always pleased to see his family. About a fortnight ago he had a
visit from his wife and a soldier son who was home on leave from the front. The latter was devoted to
his sick father. Their parting was sad, for they might not see each other again as the lad might fall in
battle. As it happens this son will never set eyes on his father again because he is on the list of the ‘un-
productives’. A member of the family who was sent to see the father at Marienthal was refused admis-
sion and was informed that the patient had been taken away on the orders of the Council of Ministers
of National Defence. His whereabouts was unknown. The family would receive official notification in
due course. What will this notice contain? Will it be like all the others, namely that the man is dead
and that the ashes of his body will be sent on the receipt of so much money to defray expenses? And so
The T hird Ser m on in Defi a nce o f the N azis , by B i shop von G a len
3
the son who is now risking his life at the front for his German compatriots will never again see his fa-
ther. These are the true facts and the names of all those concerned are available.
‘Thou shalt not kill.’ God engraved this commandment on the souls of men long before any penal
code laid down punishment for murder, long before any court prosecuted and avenged homicide. Cain,
who killed his brother Abel, was a murderer long before courts or states came into existence, and
plagued by his conscience he confessed, ‘Guilt like mine is too great to find forgiveness… and I shall
wander over the earth, a fugitive; anyone I meet will slay me.’
Because of His love for us God has engraved these commandments in our hearts and has made
them manifest to us. They express the need of our nature created by God. They are the unchangeable
and fundamental truths of our social life grounded on reason, well pleasing to God, healthful and sa-
cred. God, Our Father, wishes by these precepts to gather us, His children, about Him as a hen shelters
her brood under her wings. If we are obedient to His commands, then we are protected and preserved
against the destruction with which we are menaced, just as the chicks beneath the wings of the mother.
‘Jerusalem, Jerusalem …how often have I been ready to gather thy children together, as a hen gathers
her chickens under her wings; and thou didst refuse it!’
Does history again repeat itself here in Germany, in our land of Westphalia, in our city of Münster?
Where in Germany and where, here, is obedience to the precepts of God? The eighth commandment re-
quires ‘Thou shalt not bear false witness against thy neighbour’. How often do we see this commandment
publicly and shamelessly broken? In the seventh commandment we read, ‘Thou shalt not steal’. But who
can say that property is safe when our brethren, monks and nuns, are forcibly and violently despoiled
of their convents, and who now protects property if it is illegally sequestered and not given back?
The sixth commandment tells us, ‘Thou shalt not commit adultery’. Consider the instructions and
assurances laid down on the question of free love and child-bearing outside the marital law in the no-
torious open letter of Rudolf Hess, who has since vanished, which appeared in the Press. In this respect
look at the immorality and indecency everywhere in Münster today. Our young people have little respect
for the propriety of dress today. Thus is modesty, the custodian of purity, destroyed, and the way for
adultery lies open.
How do we observe the fourth commandment which enjoins obedience and respect to parents and
superiors? Parental authority is at a low ebb and is constantly being enfeebled by the demands made
upon youth against the wishes of the parents. How can real respect and conscientious obedience to
the authority of the State be maintained, to say nothing of the Divine commandments, if one is fighting
against the one and only true God and His Faith?
The first three commandments have long counted for nothing in the public life of Germany and
here also in MünsterThe Sabbath is desecrated; Holy Days of Obligation are secularized and no longer
observed in the service of God. His name is made fun of, dishonoured and all too frequently blas-
phemed. As for the first commandment, ‘Thou shalt not have strange gods before me’, instead of the
One, True, Eternal God, men have created at the dictates of their whim, their own gods to adore Nature,
the State, the Nation or the Race. In the words of St. Paul, for many their god is their belly, their ease,
to which all is sacrificed down to conscience and honour for the gratification of the carnal senses, for
wealth and ambition. Then we are not surprised that they should claim divine privileges and seek to
make themselves overlords of life and death.
‘And as He drew near, and caught sight of the city, He wept over it, and said: “Ah, if thou too couldst
understand, above all in this day that is granted thee, the ways that can bring thee peace! As it is, they
are hidden from thy sight. The days will come upon thee when thy enemies will fence thee round about,
and encircle thee, and press thee hard on every side, and bring down in ruin both thee and thy children
The T hird Ser m on in Defi a nce o f the N azis , by B i shop von G a len
4
that are in thee, not leaving one stone of thee upon another; and all because thou didst not recognize
the time of My visiting thee.”’
Jesus saw only the walls and towers of the city of Jerusalem with His human eye, but with His
divine prescience He saw far beyond and into the inmost heart of the city and its inhabitants. He saw
its wicked obstinacy, terrible, sinful and cruel. Man, a transitory creature, was opposing his mean will
to the Will of God. That is the reason why Jesus wept for this fearful sin and its inevitable punishment.
God is not mocked.
Christians of Münster! Did the Son of God in His omniscience see only Jerusalem and its people?
Did He weep only on their behalf? Is God the protector and Father of the Jews only? Is Israel alone in
rejecting His divine truth? Are they the only people to throw off the laws of God and plunge headlong
to ruin? Did not Jesus, Who sees everything, behold also our German people, our land of Westphalia
and the Lower Rhine, and our city of Münster? Has He not also wept for us? For a thousand years He
has instructed us and our forbears in the Faith. He has led us by His law. He has nourished us with His
grace and has gathered us to Him as the hen does her brood beneath its wings. Has the all-knowing
Son of God seen that in our own time He would have to pronounce on us that same dread sentence?
“Not leaving one stone of thee upon another; and all because thou didst not recognize the time of my
visiting thee.” That would indeed be a terrible sentence.
My dearly Beloved, I trust that it is not too late. It is time that we realized today what alone can
bring us peace, what alone can save us and avert the divine wrath. We must openly, and without reserve,
admit our Catholicism. We must show by our actions that we will live our lives by obeying God’s com-
mandments. Our motto must be: Death rather than sin. By pious prayer and penance we can bring
down upon us all, our city and our beloved German land, His grace and forgiveness.
But those who persist in inciting the anger of God, who revile our Faith, who hate His command-
ments, who associate with those who alienate our young men from their religion, who rob and drive
out our monks and nuns, who condemn to death our innocent brothers and sisters, our fellow human
beings, we shun absolutely so as to remain undefiled by their blasphemous way of life, which would
lay us open to that just punishment which God must and will inflict upon all those who, like the thank-
less Jerusalem, oppose their wishes to those of God.
O my God, grant to us all now on this very day, before it is too late, a true realization of the things
that are for peace. O Sacred Heart of Jesus, oppressed even unto tears by the blindness and sins of men,
help us by Thy grace to seek always what is pleasing to Thee and reject what is displeasing, so that we
may dwell in Thy Love and find rest in our souls. Amen.
NOTE
1. www.priestsforlife.org/preaching/vongalen41-08-03.htm
The T hird Ser m on in Defi a nce o f the N azis , by B i shop von G a len
5
1
Ignoring Gods Children
By Clay Boatright
Dallas Morning News Editorial, November 15, 2008
It is startling to see your life depicted on a television show, especially when that show is a top-rated
crime drama. This week’s episode of Law & Order, titled “Challenged,” showcased the challenges facing
millions of American families, including mine.
The plot revolved around Pete, a 47-year-old man with intellectual disabilities who had been sent
to a state institution by his parents when he was only 3. Willowbrook, the real-life New York institution
closed in 1987, was described as a “hell hole.” Now living in a community home, Pete today enjoyed
his unique group of friends, diverse caregivers and the respect of his employer.
This episode’s moral dilemma questioned parents who willingly place a child with disabilities in a
state institution. It bitterly, and quite accurately, described the immeasurable stress that disabilities
bring to a family and the lack of support they receive.
The writers, however, made one mistake. Several times the dialogue referenced, “that’s how things
were done then,” suggesting times have changed. For many families, things have hardly changed at all.
As the parents of 8-year-old identical twins with severe developmental disabilities, my wife and I
have come face to face with this moral dilemma. Our pediatrician recently told us that we should “pre-
pare to place them somewhere” in the next couple of years. In other words, he recommended we insti-
tutionalize our children.
This happened in 2008, not 1964. While many parents make this difficult decision, it does not
come easy. As reported in The Dallas Morning News, all 11 Texas “state schools” for people with develop-
mental disabilities are currently under investigation by the Department of Justice for alleged abuse.
Most families want to stay together. However, as shown on Law & Order, the physical, emotional
and financial strain on a family without support can be insurmountable. Community-based services
cost less than institutionalization, but Texas people with disabilities endure waiting lists for nearly a
decade before receiving help. Not surprisingly, for families who can no longer go it alone, there is no
waiting required to place their child into our DOJ-investigated institutions.
With almost 100,000 people on waiting lists, and more citizens institutionalized than in any other
state, Texas ranks among the worst five states in the nation for disability services. Collin County has
the lowest per capita funding for people with developmental disabilities in Texas. In cruel irony, Plano
was recently named the wealthiest city in the United States.
In other words, the most prosperous city in America is at the bottom of the bottom for helping
God’s children most in need.
The lack of adequate care for people with disabilities is pervasive. Earlier this week, local news aired
video from a Dallas County school bus showing a driver choking a student with disabilities. While
most professional caregivers are compassionate, abuse is not isolated to certain areas, just as it was not
isolated to the 1960s.
Caring for people is a matter of choice. Our state lawmakers can choose to end the waiting lists,
while the federal government can choose to provide funds to upgrade education, housing and employ-
ment options. Our schools can choose to improve staff training and provide quality programs and
supports. Our churches can choose to respond to God’s word and “treat with special honor” those he
created differently.
While these choices are not cheap, the costs pale in comparison to the destruction of families who
have no choice at all.
Igno r ing G o ds C hildren, by Cl ay Bo a trig h t
2
Clay Boatright and his wife Carole have three daughters, including identical twins who both have severe
autism and intellectual disabilities. Clay serves as Board President for The Arc of Texas, the state’s oldest and
largest nonprofit organization serving people with intellectual and developmental disabilities. The Boatrights
are also active members of Prestonwood Baptist Church in Plano.
1
A Global Call to Reach People with Disabilities
By Rev. James Rene
On a trip to Ethiopia, I met an 11-year-old girl with cerebral palsy. Asha had never left her mud hut home
because of the shame her parents felt and the stigma she was under in her village. Asha spends her days
on an old burlap bed, wearing filthy, tattered clothes, while her mother works the fields and her siblings
go to school. Because of her lack of movement and physical therapy, her limbs, joints, and muscles were
stiff, twisted and bent over. Asha’s mother often comes home to find her on the ground, her clothes soiled
from having wet herself and covered in mud from rolling off her bed onto the dirt floors.
Ironically, Asha’s African name means “Life” but this precious girl has little hope for a bright future
or a better life. An estimated 85 percent of children with intellectual disabilities in Ethiopia will die be-
fore the age of five.
1
In many African, Asian and Middle Eastern countries people with disabilities are viewed as cursed.
A disability is seen as a consequence or punishment for a person’s sins or sins committed by parents
or other family members. As a result, children and adults with disabilities experience severe prejudice,
discrimination and shame. They are marginalized and rejected by their communities, living as outcasts
from all facets of society. Most are uneducated and unemployed with no opportunity to participate in
social, recreational or spiritual activities. Sadly, many children with disabilities are also rejected by their
parents, siblings, and extended family members. They end up being neglected, abused and living in
total isolation. Some are dropped off at orphanages or government-run institutions. Worse yet, some
children are abandoned and left for dead.
During my visit to Ethiopia, I led a disability ministry conference for church leaders and advocates.
I met a group of adults with physical disabilities who had formed an association to support one another
and to advocate for basic rights. As we discussed the issues they face, it was not surprising that their
struggles are common worldwide. These challenges include:
1. Severe discrimination from all levels of society.
2. Little or no educational opportunities.
3. Limited or no job training, skills or employment opportunities.
4. A lack of funds and resources to care for themselves or to help others.
5. Absolutely no government assistance.
We discussed the United Nations Convention on the Rights and Dignity for Persons with Dis-
abilities. Since Ethiopia had signed this declaration, there was hope for change in the future. Later,
I learned that it had become taboo to even mention the UN Convention in their country. It seems
that disability advocacy efforts over the years, such as the UN document, had borne nothing more
than lip service from the Ethiopian government and no improvements were ever made to help them
move forward with their lives. People with disabilities are left to fend for themselves and beg for their
survival. Eighty percent are unemployed, making Ethiopians with disabilities the poorest of the poor
around the world.
2
The Growing Orphan Population in China
On a trip to Tianjin, China, I visited several orphanages that care for children with disabilities. The
vast majority of orphans in China have disabilities. One orphanage tried to find foster homes or adop-
tive parents, but only offered children whom they felt would be considered desirable or presentable for
adoption. Orphans who were not eligible for adoption ended up in an adult government institution. I
asked to visit an “Adult Facility” and was taken there by our host. What I saw was startling and heart-
breaking. Countless children with severe intellectual and physical disabilities wore gray sweat suits.
They sat in overly crowded rooms with shaved heads. The images reminded me of a concentration
camp. Some children’s arms and legs were tied to chairs. Others lay isolated in their beds or cribs. I re-
alized that these children in these dark, gloomy spaces received almost no care or interaction apart
from their basic needs. They never laughed or played with visitors from the outside. It’s no wonder
that the mortality rate of children in some of these institutions exceeds 75 percent.
3
Joni and Friends international missions teams and our international ministry partners can testify
to similar and even more horrific stories of prejudice, neglect, and abuse toward children and adults
with disabilities in every developing country in which we have ministered.
Statistics Regarding People with Disabilities around the World
15% of the world’s population—some 785 million people—have a disability according to the
latest reports from a study by the World Health Organization and the World Bank.
4
200 million children suffer with disabilities
It is estimated that only 5-10% of children, youth, and adults with disabilities are
reached for Christ, making this one of the largest unreached groups of people among
every race and culture.
97% of children with disabilities in developing countries will suffer from neglect or abuse.
In Taiwan, children with mild developmental disabilities are six times more likely to be pros-
titutes than what might be expected in the general population. In countries like Kosovo, girls
with mental disabilities are sold into prostitution as a way to get out of mental institutions.
A national survey of deaf adults in Norway found that 80% of all deaf individuals surveyed
reported sexual abuse at some point in their childhood.
90% of children with disabilities in developing countries do not attend school.
The global literacy rate for adults with disabilities is 2 – 3% (1% for women).
Girls and women with disabilities are three times more likely to be victims of physical violence
and sexual abuse. One group of researchers reports that 90% of individuals with intellectual
disabilities will experience sexual abuse at some point in their lives.
80% of employable-age adults do not work. Many are forced to beg for their survival.
People with disabilities make up 20% of the poorest of the poor.
5
A Gl o bal C a ll t o Reac h Peo p le wi t h Dis a bili t ies, b y Ja m es Re n e
2
How World Religions View Disabilities
We’ve referenced how people with disabilities are shunned by society. However, one would hope that
people who claim to be spiritual might respond with greater compassion. Unfortunately, some so-
called “religious groups” are the source for societal mistreatment, viewing people who suffer with im-
perfections as cursed objects of charity, shameful, and in the lowest cultural classes. Though many
world religions write and teach of love and mercy, those virtues are seldom applied to people with dis-
abilities. The following descriptions are not intended to represent the formal religious views of disability
by these religions, rather they are sketches of the realistic outcomes of religious views that are not bib-
lically-based:
Hinduism A person with a disability is of the lowest caste in the Hindu Caste System. They’re
considered unclean, “impure onesand are treated as untouchables. The individuals are to blame
for their disability and lower caste status due to bad karma resulting from their past lives.
Islam – A person with a disability is an object of charity or disgrace in a “shame and honor”
culture. A disability is that person’s fate. Many Muslims (and Hindus) view the attempt to
rehabilitate a person with a disability as a form of defiance, a refusal to submit to the will of
Allah or an interference of the person’s karma.
Buddhism A person is disabled as the result of a mindset, actions, or sins in a past life (bad
karma). He or she should endure this plight.
Spiritism – A person with a disability has been cursed or has an evil spirit.
Communism – A person with a disability cannot contribute to society; he or she has no use.
Religious Legalism – People with imperfections are objects of charity and the focus of min-
istry projects that highlight results rather than relationships. However, the “real” needs of
those with disabilities are the responsibility of the government, not the religious community.
A Christian Worldview
In contrast to these views, the Bible clearly states that a person with a disability is created in the image
of God (Gen. 1:26-27). Christians believe that God is the one who forms us in our mothers’ wombs
with his plan for our lives and that includes those with disabilities. He takes full responsibility for our
existence (Psalm 139:13-16). God is the one who determines both ability and disability. This is clear in
Exodus 4:11 when God asks Moses, “Who gave man his mouth? Who makes him deaf or mute? Who
gives him sight or makes him blind? Is it not I, the Lord?”
God calls Christ’s Church to reach out and include people with disabilities in his house. And that
includes sharing God’s love and salvation with them, as well as inviting them to serve as members of
the family of God and the body of Christ.
6
A Biblical Response to Common Misconceptions about Disabilities
Misconception #1 – Disability is the result of a curse; a consequence or punishment
for a person’s past or present sins (bad karma) or a family member’s sins.
While on earth, Jesus Christ dealt with the same misconception when his disciples asked about the
cause of a man’s blindness. Jesus replied, “Neither this man nor his parents sinned, but this happened
so that the work of God might be displayed in his life” (John 9:1-3).
A Gl o bal C a ll t o Reac h Peo p le wi t h Dis a bili t ies, b y Ja m es Re n e
3
Prior to Christ’s coming, death, and resurrection, God’s people were given his laws to abide
by. They were under the Old Covenant; Ten Commandments and Mosaic Law. In Deuteronomy
28:15-19 God promised that if they obeyed his laws and statutes, they would be blessed; if they
disobeyed his laws and statutes, they would be cursed. The New Testament reveals that Christ
came to die for all of mankind’s sin and disobedience—past, present, and future. He came to re-
deem us from the curses of the law, to reconcile man back to God, and establish a new covenant
through him.
Christ redeemed us from the curse of the law by becoming a curse for us, for it is written:
“Cursed is everyone who is hung on a tree.” He redeemed us in order that the blessing given
to Abraham might come to the Gentiles through Christ Jesus, so that by faith we might re-
ceive the promise of the Spirit.” —Galatians 3:13–14
Since Christ’s death and resurrection, mankind is no longer under the law and subject to the
curses of the law. Instead, we are now in a season of grace to receive the free gift of salvation in Christ
Jesus (the blessing given to Abraham). Therefore, we understand that disability could not be a curse
as a result of sin in the person or family. Christ died for our sins and has redeemed mankind from
the curses of the law. Proverbs 26:2 even states that curses cannot land on us or do us harm: “Like a
fluttering sparrow or a darting swallow, an undeserved curse does not come to rest.” A person who
is born with a disability or who becomes disabled experiences just one of the many effects of the Fall
of Man (caused by the original sin of Adam), which gave birth to sin, sickness, disease, violence, and
death on the Earth. It is not the result of one’s personal, family, or ancestor’s sin.
Misconception #2 – Disability is the result of a person being afflicted,
oppressed, or possessed by a demon.
The Bible clearly teaches us that Satan is “the god of this age” and that his principalities, powers,
and rulers of darkness (fallen angels/demonic entities) are at war with the Kingdom of God, desiring
to destroy mankind on the earth.
7
Satan has been defeated by Christ’s work on the cross, will be
eternally damned in the lake of fire and is trying to take as many human souls as possible with him.
Scripture reveals demonic activity of many types, including the temptation to do evil, harassment,
torment, and the affliction of people with mental oppression and physical infirmities. In the Bible
we see examples of demonic spirits gaining access into a person’s soul (mind, will, and emotions) or
physical body. We also see Christ and his disciples ministering healing and freedom to them.
The worldwide tragedy throughout the generations has been to incorrectly believe that dis-
abilities are caused by curses, demonic affliction or demon possession. This is false according to
the Scriptures, which are the ultimate source of truth. Many people have been subjected to harmful
deliverance sessions, healing meetings and miracle crusades in misguided attempts to cast out
demons or break curses. Yet, the causes of most disabilities are obvious: genetic or chromosomal
abnormalities, sicknesses, diseases, malnutrition, violence and accidents. In the majority of cases,
Jesus or his disciples healed people whose disabilities resulted from physical, natural, or environ-
mental causes, not from demonic activity. God forbid that we should add to the work of Satan by
projecting our misconceptions and labeling people with disabilities as demonized. That is unbib-
lical. May we be true ministers of the Holy Spirit with discernment, order, love, compassion, grace
and mercy, extended to those whom our Lord desires to reach—every man, woman, and child af-
fected by disability.
A Gl o bal C a ll t o Reac h Peo p le wi t h Dis a bili t ies, b y Ja m es Re n e
4
Misconception #3 – People with disabilities are disabled because they lack the faith to be healed.
Christ healed people who had faith as well as those who had little or no faith. Yet, not every sick or dis-
abled person was healed (John 5). God is sometimes glorified through miraculous healing in our lives
(John 9:1-3). At other times, his glory, grace and power are displayed through our infirmities and weak-
nesses (2 Corinthians 12:9). In James 5:14-15 we are given these prayer instructions: “Is any one of you
sick? He should call the elders of the church to pray over him and anoint him with oil in the name of the
Lord. And the prayer offered in faith will make the sick person well; the Lord will raise him up.”
We also see that every Christian will experience permanent release from all sickness, disability, pain, and
suffering when we die and go to heaven, or at Christ’s second coming when Christians will be taken up to be
with Christ (1 Corinthians 15:43, 54). The timing and the means of that healing are subject to God, whether
here on earth or when one receives his glorified body in heaven (Isaiah 35:5-6). So the whole counsel of God
in Scripture concerning healing teaches that God does not heal people based on their faith, but rather chooses
to heal—or not—according to his divine eternal purposes. God’s ultimate priority is the salvation and trans-
formation of the inner spirit man for eternity, as we see in 2 Corinthians 4:16: Therefore we do not lose
heart. Though outwardly we are wasting away, yet inwardly we are being renewed day by day.”
A Global Call to Reach People with Disabilities
Now that you understand some of the misconceptions and challenges facing children and adults with
disabilities, what will you do? How can you make a difference and bring real change into their lives for
eternity? In this section, we’ll look at some key areas that Joni and Friends and our international partners
are addressing. You can join the growing number of Christians who are joining us through these min-
istries and becoming global disability advocates.
Cause 4 Life Global Missions & Internships
In countries like Ethiopia, we are sending teams of ministry interns (college students, disability ministry leaders
and professionals in disability fields) into rural towns and villages to train special education teachers and help
them develop specialized classrooms. This is a significant breakthrough in places where special education has
been non-existent until recently. Plans to expand into other schools and regions are in the works which will
begin to change the educational landscape and bring hope to those with special needs and their families!
In Bucharest, Romania, and Tianjin, China, Joni and Friends is training therapists and care givers to
provide physical and occupational therapy, medical care, teaching techniques and behavior management
strategies for individuals with various disabilities. We provide God’s loving touch and much needed prac-
tical care for hundreds of abandoned children who suffer from severe neglect and often from abuse in
government-operated orphanages and institutions. With help from our friends and supporters, we can
continue to bring real change in these facilities and justice for precious children with disabilities.
In Uganda and Kenya, we are equipping local churches and ministry leaders through disability train-
ing and evangelistic outreaches. For example, because of our work with our partner in Kenya, the Nairobi
Baptist Church has a thriving disability ministry with multiple outreach programs and annual training
events. They have become a model and a leader of a growing network of ministries.
8
Wheels for the World
The World Health Organization estimates that 65 million individuals are in need of wheelchairs.
9
Joni
and Friends Wheels for the World completes about 20 outreaches per year, providing wheelchairs, canes
A Gl o bal C a ll t o Reac h Peo p le wi t h Dis a bili t ies, b y Ja m es Re n e
5
A Gl o bal C a ll t o Reac h Peo p le wi t h Dis a bili t ies, b y Ja m es Re n e
James Rene has been on staff with Joni and Friends for the last 9 years. For the past three years he has served
as the Director of Cause 4 Life Global Missions and Internships for the Christian Institute on Disability. James
has been instrumental in developing several Joni and Friends national and international ministries, disability
training programs, and ministry resources. He is a frequent speaker at churches, universities, seminaries,
and conferences around the world. James serves as the Joni and Friends country liaison to Uganda to build
strategic relationships and partnerships and facilitate our vision, mission, and country strategy. In addition
to his role at Joni and Friends, he serves as a staff pastor at his home church—Higher Vision Church in Castaic,
California. He is a graduate of Living Faith Bible College and Wagner Leadership Institute.
6
and crutches to individuals with physical disabilities in developing countries. Short-term mission
teams, made up of physical and occupational therapists, wheelchair mechanics, evangelists and others
in supportive roles, will properly fit the wheelchairs according to each person’s disability. While meeting
the physical needs is important, sharing Christ’s love is the ultimate goal, and the Gospel is shared
with each recipient. We also give them a Bible in their native language. Local church pastors and church
members commit to follow up with the new believers and help connect them with a church family.
I’ll never forget meeting Albert as he sat in his back bedroom in Ghana, West Africa. He was approxi-
mately 50 years old, dressed in filthy tattered clothes, with a long, unkempt beard. He couldn’t walk, so he
spent much of his life in his bed or lying on the dirt floor. We were told that Albert had not left his bedroom
in seven years because his family members could no longer lift him. He lived in total isolation from his
community. After hearing of Albert’s plight, our team of physical therapists and mechanics could not wait
to fit him for a new wheelchair. The team worked several hours adapting Albert’s new wheelchair to provide
the proper physical support for the severe contractures he had throughout his whole body.
While this was going on, about a hundred curious children and adults from his village were outside
of Albert’s mud home wondering what we were doing. When our team finished, we rolled him out of
his home for the first time. There was pure joy on the faces of Albert and the onlookers! I shared the
Gospel of Jesus and gave Albert a Bible in his native language right outside his doorstep. He was smiling
from ear to ear as he gave his life to Christ that day. The exciting thing was that not only did Albert
give his life to Christ, but so did many of the children and adults in his village as they also heard the
Gospel. Albert’s nephew received Christ as well and made a commitment to bring his uncle out of his
home daily. Together, they would interact with their community and read the Bible to the children. It
was an amazing opportunity to see lives and hearts changed!
For more information about our international ministry and mission opportunities to reach, serve, and equip people
with disabilities visit www.joniandfriends.org or contact us at 818-707-5664.
NOTES
1. This is the estimate of our in-country partner, Christian Horizons Ethiopia.
2. The International Labour Organization (ILO) reports that unemployment among person with disabilities is as high as 80% in some countries. In
Ethiopia, there are little to no employment opportunities, especially in rural villages and towns.
3. UN Secretary General Study and Summary Report, July 2005 – Violence Against Children with Disabilities, http://www.childinfo.org/files/childdis-
ability_FinalReportViolenceagainstChildrenwithDisabilities.pdf.
4. http://www.washingtonpost.com/national/report-15-percent-of-world-population-is-disabled/2011/06/09/AGZcqBNH_story.html
5. Fact Sheet on Persons with Disabilities, United Nations Enable, www.un.org/disabilities/documents/toolaction/pwdfs.pdf
6. Luke 14:21, 23; 1 Corinthians 12:22-23
7. Matt 16:18; Ephes. 6:11-12; John 10:10; 1 Peter 5:8; James 4:7
8. To learn more about how to get involved with Cause 4 Life, visit www.joniandfriends.org or email us at cause4lifeinternships.org.
9. “Guidelines on the Provision of Manual Wheelchairs in Less Resourced Settings,” http://www.who.int/disabilities/publications/technology/Eng-
lish%20Wheelchair%20Guidelines%20(EN%20for%20the%20web).pdf
1
Hope for the Global
Disability Community
By Rev. Steve Bundy
Hope. It’s what keeps life enjoyable, meaningful and purposeful. People build dreams upon it and wish
for more of it. But for the one billion people in the world affected by disability, hope seems very distant.
1
The daily challenges, discouragement and abuse they face can strip away their hope, leaving them mar-
ginalized in society, as well as in their families and communities. We cannot discuss topics such as hu-
man trafficking, HIV Aids, poverty or injustice without addressing the needs of those most affected by
these atrocities—people with disabilities.
In this paper, we’ll tackle the real needs of the global disability community, the shocking statistics
of our day and the stories behind the numbers. We’ll also move beyond the despair and pain to the
hope we have in Jesus Christ. This hope is available to everyone through his Word, his Spirit and his
Body. It’s a hope that promises peace, joy and community . . . a hope that goes beyond our suffering.
The Global Disability Community
Disabilities impact millions of people in the world, but their effects are especially felt in developing
countries. According to the United Nations, 80% of the estimated millions of disabled people in the
world live in developing countries where resources are limited. Several million of them are children.
According to Disability World, 97% of these children will suffer from abuse or neglect and most will
never have access to health care or education.
2
The World Bank reports that 20% of the poorest of the poor in the world are people with disabilities.
3
The statistics go on and on and include some of the most shocking numbers related to sex trafficking
and abuse, injustice, discrimination and even euthanasia.
Hope in Christ
It has been said that suffering is the common denominator among all humans. The Apostle Paul tells
us in Romans 8:22-23 that all of creation groans with suffering and longs for redemption. Everyone
will suffer in some way because we live in a fallen world. When we think about the ways that people
suffer physically, emotionally, socially and of course spiritually, the statistics confirm that people with
disabilities experience an aggravated degree of suffering in all of these areas.
In fact, people with disabilities have the least access to education, healthcare, vocational opportu-
nities, community life and, unfortunately, church life. We simply cannot deny that suffering exists in
the disability community, nor can we deny that a great deal of this suffering comes about not as a result
of their disability, but because of the world we live in…a world of exclusion, oppression and rejection.
In 2 Corinthians 5:1-10 Paul reminds us that our bodies are temporary “tents” which we dwell in
on Earth. But we long for our permanent “buildings” prepared for us in heaven—that is, complete heal-
ing and restoration. What a message of hope Paul gives to those whose physical bodies or intellectual
abilities—tents—are torn, broken and often twisted by suffering. In Christ their temporary dwellings
are transformed into their eternal homes. There is forgiveness of sins and a relationship with our loving
Heavenly Father awaiting believers.
The Goodness of God
Our message is one of hope—that God loves every person and has a plan for them.
4
Romans 5:3-6 re-
minds us that suffering leads us to the hope found in Christ. Our hope is grounded in the promises
and character of God and the redemption that is found in Christ Jesus.
When I think of people with disabilities who have experienced this hope, I think of a woman in
West Africa named Tafilly. At an early age Tafilly was affected by polio and by her teen years, she had
limited mobility in her legs. Tafilly was cast out of her family home because her father said he did not
want to raise an invalid. Although she found herself living in the street, Tafilly did not give up. She
wanted to learn and hoped for a better life for herself, so she gathered newspapers off the streets and
practiced reading.
Whenever Tafilly came across a book that had been thrown away, she would pick it up and take it
back to her dwelling place. One day, she came across a book with the cover torn off, and it was written
in her local language. As she read it, her life was forever changed because the story spoke of hope…a
hope that involved a loving God who had a plan for her life. His plan included forgiveness for her sins
and a personal relationship with a Heavenly Father. Tafilly was amazed at how moved she was by this
particular book. Then she learned it was written by someone who was disabled too, Joni Eareckson
Tada.
Tafilly believed that if God had a plan for a disabled teenager named Joni, then he must have a plan
for her as well. She gave her life to Christ. Today, Tafilly is married with a family and has a thriving dis-
ability ministry in her community. She has developed vocational training programs for the disabled
and established Bible study groups to reach her city. She is having tremendous impact for the Kingdom.
Tafilly found the only true hope in this world, the hope found in Jesus Christ…the hope that goes be-
yond suffering.
The Global Church - Luke 14 Mandate
There aren’t enough of Joni’s books to reach the 670 million people affected by disability around the
world. But God has a plan to reach them nevertheless. His plan is clear, simple and includes the
Church—your church and mine. He has given his Church a mandate detailed in Luke 14:12-24. In fact,
we often refer to this passage as The Luke 14 Mandate. The language here is interesting because Jesus
speaks directly to the host of a Great Banquet who represented the religious leader of the community,
Hope for t h e Gl o bal D i sabi l ity C o mmun i ty, by S t eve B undy
2
and tells him that he is to be an example of inclusion of those with disabilities. “You,” Jesus is saying,
“are the representation of God in this world.”
When people ask about God’s view of people with disabilities, the answer should be quite simple:
Look at the church…look at the spiritual representation of God on this Earth, look at the spiritual
leaders of our communities. What do their lifestyles tell us about how God views and treats people
with disabilities? Are those with disabilities gathered around their tables?
This challenge was never as clear to me as when I met Sangyou. I want to tell his story by sharing a
personal entry from my journal that I wrote shortly after meeting him.
“Sangyou has forever touched my life! His name, Sangyou, given by his parents, means ‘The Burden.’ He
has carried the weight of that name for over 60 years. Born with cerebral palsy, he had no access to medical
care, physical therapy or adaptive equipment. Unable to care for his physical needs, Sangyou has spent most
of his life on the ground. When I approached Sangyou, he was sitting in his own filth, covered with flies. The
smell of human waste hit me in the face, and I felt an urge to withdraw, but just then a flood of love rushed
through my body. I couldn’t help but embrace the man.
Sangyou’s smile made me forget about his deplorable conditions and see the gentle spirit of the man inside
the twisted body. My heart instantly melted when I felt this thin frame of a man. I thought surely that is the
love of Jesus and not my own. The religious beliefs of the villagers made Sangyou untouchable to others. I
couldn’t help but wonder when was the last time this man had felt the touch of another human being.
‘The Burden!’ His name kept ringing in my ears. As the father of a son with severe disabilities myself, I
cringed at how his parents could give him such an awful name. What were they thinking, adding to the pain
and social stigma their son would have to carry throughout his life?
Instantly, conviction pierced my heart. Am I not just as guilty…isn’t the church which I represent and
the society that I am a part of just as guilty of adding to his pain? Maybe not by what we have said or done
directly, but we may be guilty by what we have not said and have not done. Are we not in fact calling
Sangyou, calling those with disabilities ‘The Burden’ when our attitudes reflect an unwelcome spirit in our
homes and churches? When we go out of our way to not interact with someone in distress? When our worship,
evangelism and fellowship are all planned without the disabled in mind? Are we not saying in effect, ‘you
are a burden?’
Who am I to condemn Sangyou’s parents who have brought so much pain by their words, when I, when
we as a church are guilty of bringing so much pain by our lack of inclusion of those with disabilities?
I quickly learned that Sangyou’s smile was one born in hope—the hope he found in Christ. Sangyou had
given his heart to Jesus years before. And although he longed to be a part of the local church in his village, he
was unwelcomed and had never participated in a church service or fellowship of any kind. He had never had
access to the church, nor had the church ever come to him.
Before leaving, I prayed for Sangyou, and reminded him that in Christ he had a new name, he was no
longer Sangyou, ‘The Burden,’ rather, he was Sangyou ‘The Blessing’ because God loves him and is delighted
that he is his child!
Jesus’ words to those present in Luke 14 was a mandate that the Sangyous of the world should be
at their table. But it was more than just a mandate, it was a rebuke. In the days of Jesus, the culture
surrounding him was much like cultures in today’s world. People with disabilities were viewed as cursed,
outside of the mainstream, marginalized and segregated. Jesus took these religious and cultural views
and turned them on their head. He challenged barriers and revealed the heart of God…the heart of the
King himself. Indeed, people with disabilities are central to the Kingdom of God.
Hope for t h e Gl o bal D i sabi l ity C o mmun i ty, by S t eve B undy
3
True ministry comes out of our conviction, which is given by the Holy Spirit through God’s Word.
The Scriptures are full of commands to minister to the poor, weak, outcast and disabled, but instead
of allowing ministry to influence our culture, we allow culture to dictate ministry. Can the Lord say
about us what he said of King Josiah, “He defended the cause of the poor and needy, and so all went
well. Is that not what it means to know me?” (Jeremiah 22:16).
The Holy Spirit is mobilizing the church globally and we are beginning to see a movement of dis-
ability ministry around the world like no other time in history. God is calling his Body to repent and
obey his command to disciple and serve those with disabilities in every people group in the world. You
cannot find a people group where the disabled do not exist…and many times they’re just outside our
doorway—a door wide open for evangelism.
In 1 Corinthians 12:22, Paul’s message to the early church was that “those parts of the body that
seem to be weaker are indispensable.” In other words, the church can’t fully function without them.
Every member of the body of Christ has a contribution to make. When people affected by disability
are absent from the body of Christ, the church is incomplete.
What is the church missing without Sangyou? What would the church in West Africa be without
Tafilly? What would churches around the world be missing without Joni Eareckson Tada? Who is miss-
ing from your church?
If we are to reflect the Kingdom of God, we must reflect the King. We must work together to create
strategies and partnerships for ministering to those with disabilities in this world. At Joni and Friends,
we have found that the opportunity to reach a community for Christ is often through the doorway of
ministering to those with disabilities. God’s message of love, peace, redemption and hope is exalted
through their lives. If God can give them hope in the midst of their pain, we can all trust that he will
shower us with eternal hope that takes us beyond our suffering!
This paper was first presented in part at the 2010 World Conference on Evangelism in Cape Town, South Africa.
NOTES
1. 1 Billion People Are Living With Disabilities, http://tinyurl.com/3usx3eg
2. Disability World, Issue No. 9, July-August 2001, www.disabilityworld.org/07-08_01/children/global
3. Fact Sheet on Persons with Disabilities, United Nations, www.un.org/disabilities/documents/toolaction/pwdfs.pdf
4. Jeremiah 29:11
Hope for t h e Gl o bal D i sabi l ity C o mmun i ty, by S t eve B undy
4
Steve Bundy is the Vice President of Joni and Friends overseeing the Christian Institute on Disability and
International Outreach. He was a contributing author to Life in the Balance: Biblical Answers for the Issues of
Our Day, and co-executive producer with Joni Eareckson Tada of the Telly-Award winning television
episodes, Making Sense of Autism: Myths That Hide the Truth and Truth for the Church. Steve has served as adjunct
professor at Master’s College and has lectured on disability ministry at educational institutions and con-
ferences around the world. He frequently appears on “Joni and Friends” television episodes, national radio
and has written articles or been interviewed for Christianity Today, Charisma Magazine, Focus on the Family and
others. Steve and his wife Melissa know firsthand the joys and challenges of parenting a child with special
needs, as their own son, Caleb, was born with a chromosome deletion which resulted in global delay and a
secondary diagnosis of autism. Steve holds a B.A. in Theology and Missions, a Certificate in Christian Apolo-
getics and an M.A. in Organizational Leadership. He is a licensed minister and has served as a pastor and
missionary.
1
Why Christian Doctrine Matters
By Dr. Kathy McReynolds, Ph.D.
I must preface this essay by stating that very few of the arguments presented on the following pages are
original. To the extent that I am able to elucidate them, I owe their clarity and genius to many great Chris-
tian thinkers who have gone before me.
1
What I do believe I contribute to this important discussion con-
cerning Christian doctrine is its application to disability. The use of the word “disability” in this particular
context is not a reference to certain people with disabilities per se; but rather, “disability” is used broadly
in order to describe what I believe is the current state of the evangelical church. In recent years the
evangelical church has ignored the source of its divine power: doctrine. In so doing, it has rendered itself
disabled, incapable in many ways of carrying out its mission to reach the most vulnerable (Luke 14).
I was struck by this notion when I read Dorothy Sayers’ poignant book, Letters to a Diminished Church:
Passionate Arguments for the Relevance of Christian Doctrine. With extraordinary wit and charm, Sayers force-
fully argues that the Church has become diminished, incapacitated, disabled if you will, because it has
forsaken vital Christian doctrine which communicates the essence of Christianity; that is, the character
of Christ who is “energetic, dramatic, and utterly alive.” According to Sayers, Christian doctrine tells
us the truth about God, ourselves, and our world. To forsake Christian doctrine, then, is not only per-
ilous for the Church, but it can also mean the unraveling of the very fabric of our society. When this
happens, the most vulnerable in society are always at greater risk. I owe the structure of this essay to
Sayers’ many insights. I seek to advance her argument by emphasizing that when believers forsake
Christian doctrine, they not only neglect their high calling to minister to and protect the most vulner-
able, but they fail to make use of the divine tools God gave them to engage culture: essential Christian
doctrine. It is doctrine which distinguishes the Church from any other institution. If we do not take
our own doctrine seriously, how can we expect our culture to?
Christian Doctrine: Has It Become a Dirty Word?
In the summer of 2006, Biola Connections ran a front-page article entitled, “The “D” Word: Has Doc-
trine Become the New Dirty Word?”
2
Several professors from Talbot and Biola were interviewed for the
article and together they gave some solid evidence concerning the diminishing role of doctrine in the
evangelical church today. For example, a doctrine that the historic Christian Church has embraced
from its very inception is the Trinity. It is a crucial doctrine which gives explanation and insight into
the nature of the Godhead. But as relationships take precedence over essential doctrines in the church,
these explanations and insights seem less important. There are even some evangelical leaders who no
longer think the doctrine of the Trinity is essential.
The Trinity is not the only doctrine to be challenged in recent years. Leaders in the emerging church
movement are calling into question the doctrine of Hell and the exclusive nature of Christ’s claim to
be the only way of salvation. Open theists dispute God’s omniscience, claiming that he cannot possibly
know in advance human actions freely chosen. Recent studies indicate that many young evangelicals
are also unsure about several essential doctrines. The National Study of Youth and Religion, for exam-
ple, found that nearly half of Protestant youth believe many religions may be true, and 36% of them
think it is alright to pick and choose some aspects of the faith and leave the rest.
Dennis Dirks, the Dean of Talbot Theological Seminary, believes that today’s church has strayed
far from its predecessors who vigorously defended doctrine. In fact, Dirks points out, “Doctrine was
so important that entire books of the Bible were written about it, councils met to defend it, and early
converts to Christianity had two to three years of training in it, known as the catechumenate.” The
early Reformers also encouraged this level of training. Today, some people may simply sign a doctrinal
statement (which they may or may not read) or maybe take a few membership classes.
According to Alan Gomes, Professor of Historical Theology at Talbot, the church’s move away from
doctrine began with the teachings of Frederick Schleiermacher (1768-1834), who taught that the goal
of religion was to have a feeling of total dependence upon God. Doctrines which did not address feelings
were considered unnecessary for the Christian life. But, as Sayers asks, if doctrine is irrelevant for the
Christian life, to what indeed is it relevant? Christian doctrine matters intensely. After all, it concerns
the true nature of the universe and the meaning of human life. These are hardly “trivial” matters.
Christian Doctrine: Our Ignorance
Based upon many believers’ description of their own faith, and also upon what several of the new athe-
ists are writing in their latest books, ignorance of the true nature of Christianity runs deep. Consider
for example some of the following questions and answers concerning the Christian faith:
1. Who is God the Father?—He is the Creator, the One who set everything in motion. He is an-
gry most of the time and makes impossible demands on his people.
2. Who is God the Son?—He is somehow associated with Jesus of Nazareth. He was a good man
and a good teacher. He has a lot of influence with God the Father. He seems to understand
human beings and did his best while he was here to reconcile us to God. It was not his fault
that things were as bad as they were.
3. Who is the Holy Spirit?—He is the one who came at Pentecost, but we are not entirely sure
what he is supposed to do on a daily basis. I believe he is supposed to play a role in helping
Christians to feel good about themselves by doing good things for themselves and others.
4. What is the Trinity?—Totally incomprehensible and irrelevant to daily life. All we know is
that the Bible does not mention “Trinity” so it probably isn’t important anyway.
5. What is Faith?—Believing something one cannot see without any real evidence whatsoever.
Feeling good about oneself. Ignoring all scientific fact.
Why C hrist i an Do c trin e Matt e rs, b y Dr. Kathy McRe y nolds , Ph.D .
2
6. What is Sin?—Abortion. Homosexuality.
7. What is Christian Virtue?—Refraining from dancing, drinking, and thinking.
8. What is Reason?—An obstacle to faith.
These answers to important questions hardly do justice to the historic Christian faith. But I fear
that this is an accurate reflection of what many people inside and outside of the church think of such
doctrines. At the risk of sounding critical, these answers reflect an elementary Sunday school version
of Christianity, one which enemies set up in order to attack as too simplistic and irrational, and one
which many adult Christians display as something to hold dear. After all, if some Christian leaders be-
lieve that doctrine has little importance and little to do with daily life, no wonder a vast majority of
congregations and indeed much of society thinks that way as well!
Christian Doctrine: Why It Matters
In her penetrating and deeply insightful essay, “Creed or Chaos,” Dorothy Sayers minces no words as
she puts her finger on the fundamental problem of trying to practice the Christian faith without know-
ing what it is actually all about:
It is worse than useless for Christians to talk about the importance of Christian morality unless
they are prepared to take their stand upon the fundamentals of Christian theology. It is a lie to
say that dogma does not matter; it matters enormously. It is fatal to let people suppose that
Christianity is only a mode of feeling; it is vitally necessary to insist that it is first and foremost
a rational explanation of the universe. It is hopeless to offer Christianity as a vaguely idealistic
aspiration of a simple and consoling kind; it is, on the contrary, a hard, tough, exacting, and
complex doctrine, steeped in a drastic and uncompromising realism. And it is fatal to imagine
that everybody knows quite well what Christianity is and needs only a little encouragement to
practice it. The brutal fact is that in this nation not one person in a hundred has the faintest
notion what the Church teaches about God or man or society or the person of Jesus Christ.
3
Sayers wrote these words in the mid-twentieth century and they were directed toward the Church
of England. I think her words are even more relevant for us today. We have much to lose if we continue
to ignore doctrine, not only in the Church but in society as well. For if Christian doctrine communicates
what is true about all reality: God, the universe, humanity, and society, then to forsake Christian doc-
trine is to invite world chaos on a grand scale. This is serious, and if the Church wants to be taken se-
riously, it must take its doctrine seriously.
In other words, if we are to have any influence in our culture, if we are to carry out our mission to
reach all people, especially those who are most vulnerable, then we must preach Jesus Christ and not
simply Jesus. We have become very good in the church today at preaching Jesus, a good and kind man
who loves us just the way we are. Yes, this makes us feel good; but with this half truth consistently
before the modern mind, it has difficulty equating this Jesus with the One who creates and sustains
the universe: Jesus the Christ.
In her masterful work on Dante’s Divine Comedy, Sayers discusses in a rather unique way just how
important Christology is to daily life. She begins by distinguishing between a natural symbol and a
Why C hrist i an Do c trin e Matt e rs, b y Dr. Kathy McRe y nolds , Ph.D .
3
conventional symbol. A natural symbol is a thing that really exists, which by its own nature represents
some greater thing of which itself is an instance. Sayers points out that the Incarnation, because it is a
historic fact, is the ultimate example—the unique natural symbol of the whole history of humanity
and the whole nature of God and the relationship between the two. This truth also demonstrates the
difference between a natural and conventional symbol. A conventional symbol is something arbitrarily
chosen and can stand for something in which it has little in common. For instance, in pop culture, X
can stand for a kiss, or for any unknown thing (X factor).
When people say today that the Incarnation is merely “symbolic,” what they usually mean is that
it is not a historical fact. But if it is not historic, then it is not a natural symbol, but merely conventional.
In other words, as a conventional symbol, Jesus is not really both God and Man; he is just so good and
moral that he was simply more “like God” than anyone else. But, if the Incarnation is indeed a historic
fact, then it is a natural symbol, and by reflecting on it we can really learn something about both God
and man. This is the distinctive mark of a natural symbol. By being simply what it is, it tells us some-
thing about the thing it represents.
This point about the true nature of the Son of God and the doctrine of the Incarnation is crucial
because it alone reveals the structure of all reality. God is real. Evil and suffering are real. Judgment is
real and is coming. Heaven is a real place. As Sayers puts it, God will “wrench a real good out of a real
evil. The doctrines of the reality of evil and the value of suffering should be kept in the very front line
of Christian affirmation. I mean, it is not enough to say that religion produces virtues and personal
consolations side by side with the very obvious evils and pains that afflict mankind, but that God is
alive and at work within the evil and suffering, perpetually transforming them.”
4
By reaching out to people with disabilities, who are most vulnerable in our society, and to those
who have been afflicted with various kinds of evil and suffering, we can demonstrate to the unbelieving
world that Christian doctrine is vitally important, and is anything but boring and irrelevant. To the
contrary, it is “energetic, dramatic, and utterly alive.” As Sayers so eloquently puts it,
“Somehow or other, and with the best intentions, we have shown the world the typica Christian
in the likeness of a crashing and rather ill-natured bore—and this in the name of One who assuredly
never bored a soul in those thirty-three years during which he passed through the world like a flame.
Let us, in heaven’s name, drag out the divine drama from under the dreadful accumulation of
slipshod thinking and trashy sentiment heaped upon it, and set it on an open stage to startle the
world into some sort of vigorous reaction. If the pious are the first to be shocked, so much worse for
the pious—others will pass into the kingdom of heaven before them. If all men are offended because
of Christ, let them be offended; but where is the sense of their being offended at something that is
not Christ and is nothing like him? We do him little honor by watering down his personality till it
could not offend a fly. Surely it is not the business of the Church to adapt Christ to men, but to adapt
men to Christ.
It is the doctrine that is the drama—not beautiful phrases, nor comforting sentiment, nor vague
aspirations to loving-kindness and uplift, nor the promise of something nice after death—but the ter-
rifying assertion that the same God who made the world, lived in the world and passed through the
grave and gate of death. Show that to the heathen, and they may not believe it; but at least they may
realize that here is something a man might be glad to believe.”
5
References
Wolfe, Alan, The Transformation of American Religion (New York: Free Press, 2003).
Why C hrist i an Do c trin e Matt e rs, b y Dr. Kathy McRe y nolds , Ph.D .
4
NOTES
1. St. Augustine, C.S. Lewis, Dorothy Sayers, J.P. Moreland, Dallas Willard, and many others.
2. Holly Pivec, “Has Doctrine Become the New Dirty Word?” Biola Connections, Summer 2006, 12-17.
3. Dorothy Sayers, Letters to a Diminished Church (Nashville, Tenn.: W Publishing Group, 2004).
4. Ibid. p 61.
5. Ibid.
Why C hrist i an Do c trin e Matt e rs, b y Dr. Kathy McRe y nolds , Ph.D .
5
Dr. Kathy McReynolds is the Director of Academic Studies for the Joni and Friends Christian Institute
on Disability. Kathy has a B.A. in Christian Education from Biola University, a M.A. in Systematic Theology
from Talbot School of Theology and a Ph.D. in Ethics from the University of Southern California. She has
taught in the Biblical Studies Department at Biola University and served on ethics committees for hospitals
and universities. Kathy has received numerous prestigious awards, including the Leading Health Care
Professional of the World by the International Biographical Center in 2009.
1
Gods Story of Disability: The Unfolding
Plan from Genesis to Revelation
By Dr. David Deuel
God has a story. From Genesis to Revelation, salvation history displays the plans of God’s heart, his
mission. The story includes disabilities, because disabilities play pivotal roles in God’s mission to bring
people to himself. Familiarly, his glory and our worship are at the very center. Although entire books
have been written on small details of disability in Scripture, the entire story from creation to eternity
needs to be told. It is, at heart, the Gospel of Jesus Christ, and a basis for praise. In our study, we explore
the Bible’s perspective on disability as it develops in salvation history.
Although references to disability are scattered throughout Scripture, perhaps surprisingly, the topic
does not appear prominently. In fact, when compared with many other matters, the Bible offers little to
say directly about disability.
1
One reason is that God wove his heart’s concern and tender care for those
with disabilities into the fabric of society. It did not stand out because it was commonplace. But Scripture
also gives us encouraging insight into God’s provision for people with disabilities whom he loves.
2
God Gave Us a Beginning Without Disability (Genesis-Exodus)
1. In the Beginning, There Was No Disability.
When God’s created couple, Adam and Eve, first willfully disobeyed him, sin entered the world and
brought pain, suffering, disability, and even death with it (Gen. 3:1-24). Scripture calls this painful re-
ality “the curse” (Rev. 22:3). It is very important to remember that people have disabilities because of
the curse on all creation. Even the animal kingdom has disabilities.
2. As Creator, God Assumes Responsibility for Disabilities.
Responsibility means that God is not just the cause, but the upholder, enabler, and final rescuer of
people with disabilities. Now that is responsibility! This perspective differs considerably from simply
blaming God for disability, which would be serious error. When Moses wanted to explain to God why
he was incapable of serving him due to some inability in his speech, the Lord said to him, “Who has
made man’s mouth? Or who makes him mute or deaf, or seeing or blind? Is it not I, the LORD?”
(Exod. 4:11).
3
This verse not only addresses God’s role in disabilities, it also sets the stage for his pro-
vision through his people.
Although greatly disappointing, it is important to survey the disability perspective of other people
in the ancient world before we focus on God’s people. Among Israel’s neighbors, perspectives on dis-
abilities varied considerably. Treatment ranged from completely rejecting and mistreating people with
disabilities to worshiping them. Sadly, rejection was the norm. Most babies with disabilities were left
to die by exposure shortly after birth. If they survived they were treated as outcasts and consigned to a
miserable life of begging, prostitution and in general, being taken advantage of. Usually, they suffered
a premature death. It was anyone’s worst nightmare.
The other extreme for persons born with a disability was that they might be worshipped as super-
natural beings due primarily to their abnormal behavior or appearance. At least one Egyptian king
with a disability was worshipped for having a condition that left him disfigured. Rather than a poverty-
stricken social outcast, he was pampered, but still an outcast. Whether rejected completely or wor-
shipped, people with disabilities were not accepted. Both the rejection and the worship resulted from
an incorrect understanding of what caused disabilities. In the early period which some call ‘pre-scien-
tific,’ those who rejected the one true God did not understand the true causes of disabilities. The an-
cients typically blamed disabilities on sins or offenses to their gods. With this reasoning, people with
disabilities or their parents suffered because of something they had done wrong.
God’s people differed considerably from their contemporaries in their understanding of the causes
of disability and their treatment of persons with disabilities.
4
Although most did not understand dis-
abilities from scientific perspectives any better than their neighbors who rejected God, they reasoned
that God cared about all people, disabled or not, and so should they. In fact, God was so concerned
about people with disabilities that he asked his people Israel to help those not able to help themselves.
From the earliest days of God’s people, his focus was on seeing the entire community grow spiritually
to become committed worshipers.
3. As God’s Creatures, We Groan with Pain and Sadness for Disability to be Healed.
Disability is a high price of living in a sin-cursed world. Paul reminds us that all creation, including
people with disabilities, “groan” in suffering as we wait for perfect redemption (Rom. 8:19-25). Regard-
less of how blessed we appear, we are all still in pain this side of Heaven. But we also know that “God
causes all things to work together for good to those who love God, to those who are called according
to His purpose.” (Rom. 8:28). That calling includes disability.
Gods Gracious Law Makes Provision for Disability (Exodus-Deuteronomy)
1. God’s People Need Protection by His Law.
People with disabilities were considered part of the larger group called “the needy” or “the afflicted,”
and linked with vulnerability and poverty. This included the mentally challenged who were judged by
their loss of self-control.
5
The group encompassed those who might pass in and out of disability status
several times in their lives and acknowledged God’s sovereign hand was involved in giving and removing
the disability. In fact, everyone entered this category sooner or later if they lived to old age.
6
2. God Tells His People in His Law to Care for Those with Disabilities.
This included punishing those who oppress individuals with disabilities and rewarding those who res-
cue and assist them. God’s Word describes compassion for the people with disabilities within the
God s Stor y of D i sabi l ity: The U n fold i ng Pl a n from G e nesi s to R e vela t ion, b y Da v e Deu e l, M. A ., Ph . D.
2
charter of Israel. For example, “You shall not curse a deaf man, nor place a stumbling block before the
blind, but you shall revere your God; I am the LORD.” (Lev. 19:14). Notice that obeying this command
is an expression of fearing God. One law places a curse upon the one who mistreats a person with a
disability: “Cursed is he who misleads a blind person on the road. And all the people shall say, ‘Amen’”
(Deut. 27:18). The mistreatment of a person with a disability was deserving of severe punishment.
That is because God loves them and cares for them.
3. Job and David Follow the Law by Caring for People with Disability.
Scripture presents them as righteous for their faithfulness. In declaring his innocence before his ac-
cusers, Job explained to them that he had kept God’s law, which required compassionate treatment to-
ward those people who were disabled. He said, “I was eyes to the blind, and feet to the lame” (Job 29:15).
This meant he had helped those who were sight-impaired and unable to walk without difficulty due
to their disabilities. In so doing Job compassionately participated in God’s plan for persons with dis-
abilities, as did others like him.
Similarly, King David assisted Mephibosheth, a young man who was unable to walk because he was
dropped as a baby (2 Sam. 4:4). His father was Jonathan, a friend to whom David had pledged his faith-
fulness. David kept his commitment by showing compassion and caring for this young man: “So
Mephibosheth lived in Jerusalem, for he ate at the king’s table regularly. Now he was lame in both feet”
(2 Sam. 9:13). Notice that David not only offered basic care to Mephibosheth, he brought him to his
table as one would a family member. This was more than kindness.
Gods Prophets Promise Future Hope for Disability (Isaiah-Malachi)
1. God Will Establish the Persons with Disabilities whom He Has Afflicted.
When we look at passages which deal with future things, we once again find that people with disabilities
became recipients of God’s healing—in part because he demonstrates his greatness through healing
them. In that day, declares the Lord, I will assemble the lame, and gather the outcasts, even those
whom I have afflicted” (Mic. 4:6). This passage reminds us that God assumes responsibility for disabil-
ity. It also assures us he will heal them. Other passages show us God’s hand of kindness in restoring
persons with disabilities: “The LORD opens the eyes of the blind…” (Ps. 146:8).
Some passages look forward to a great and future day when God will right all wrongs and reverse
the effects of the curse (Rev. 22:3). This grand event is described in terms of God restoring sight and
hearing: “And on that day the deaf shall hear words of a book. And out of their gloom and darkness
the eyes of the blind will see” (Isa. 29:18).
7
Again, “Behold I am bringing them from the north country,
And I will gather them from the remote parts of the earth, among them the blind and the lame” (Jer.
31:8). In beautiful poetic language befitting the occasion of final healing, “Then the lame will leap like
a deer, and the tongue of the dumb will shout for joy, for waters will break forth in the wilderness and
streams in the Arabah” (Isa. 35:6). And finally, “I will make the lame a remnant, and the outcasts a
strong nation, And the LORD will reign over them in Mount Zion From now on and forever” (Mic. 4:7).
God’s future plans for persons with disabilities offer healing and comfort now.
2. God Will One Day Deliver Persons with Disabilities from Oppressors.
God seeks retribution for violating the laws against misusing people with disabilities. God promises
to rescue people who are disabled from those who take advantage of them. “Behold, I am going to
deal at that time with all your oppressors, I will save the lame and gather the outcast, and I will turn
God s Stor y of D i sabi l ity: The U n fold i ng Pl a n from G e nesi s to R e vela t ion, b y Da v e Deu e l, M. A ., Ph . D.
3
their shame into praise and renown in all the earth” (Zeph. 3:19). The shame spoken of is not only
due to sinning against God, but also to inexcusable social rejection and mistreatment of people with
disabilities. For all those who have abused God’s children with disabilities, God warns of justice and
punishment.
Jesus Offers Hope and a Way for Disability (Matthew-Revelation)
When Jesus came to Earth, in addition to dying on the cross for sin, his mission was to repair the effects
of the curse and fulfill what the law commanded. He revealed what wisdom prescribed and the prophets
had predicted for persons with disabilities. As his commissioned agents, we continue the work he began.
Yet many are surprised to discover that part of God’s plan for people with disabilities was to not only
glorify Jesus, but also to minister to others—not just in their disabilities, but because of them. How do
people with disabilities minister to others? The simple answer is they serve others in many ways, but
first in their need. Seems ironic doesn’t it? Their needs provide opportunities for individuals or groups
to serve God through caring for them. How does this work?
1. People with Disabilities Allow Jesus to Show Compassion, Bring Glory to God,
and Demonstrate that He Is God’s Son, the Messiah.
A. Jesus Had Compassion on People with Disabilities. “And moved with compassion, Jesus touched
their eyes; and immediately they regained their sight and followed him” (Matt. 20:34). And
again, “And moved with compassion, he stretched out his hand and touched him, and said to
him, ‘I am willing, be cleansed’” (Mark 1:42, emphasis added). The Bible calls these miracles
“the mighty acts of God” or “the works of God.” When questioned about the purpose of
healing a blind man, Jesus responded that it was “in order that the works of God might be dis-
played in him” (John 9:1-3). In Jesus healing persons with disabilities, God’s mighty acts are
personalized and put on display for all to see in the perfect example of personal compassion
and fair treatment.
B. Jesus Brought Glory to God by Healing Persons with Disabilities. In response to Jesus’ exercising
compassion by healing people with disabilities, the multitudes praised God. They glorified
God because Jesus showed compassion to persons with disabilities as part of God the Father’s
will. “Large crowds came to him. They brought blind people and those who could not walk.
They also brought disabled people, those who could not speak and many others. They laid
them at his feet, and he healed them. The people were amazed. … So the people praised the
God of Israel” (Matt. 15:30-31, NIRV).
8
When Jesus healed people with disabilities, it brought
glory to God.
C. Jesus Demonstrated that He Is God by Healing People with Disabilities. One day, when John the Bap-
tist sent messengers to ask Jesus if he was God, the Messiah, Jesus pointed immediately to
his miracles on behalf of those who needed help as proof: “Go back and report to John what
you have seen and heard: The blind receive sight, the lame walk, those who have leprosy are
cured, the dead are raised, and the good news is preached to the poor” (Luke 7:22). The fact
that disabilities are included with fatal diseases and harmful poverty demonstrates that Jesus,
as God, desires to restore those affected by disabilities along with all other devastating effects
God s Stor y of D i sabi l ity: The U n fold i ng Pl a n from G e nesi s to R e vela t ion, b y Da v e Deu e l, M. A ., Ph . D.
4
of the curse. The end result is “creation-quality” conditions. Tim Keller said it well in his
book, The Prodigal Son, “Jesus’ miracles were not so much violations of the natural order, but
a restoration of the natural order. God did not create a world with blindness…”
9
2. People with Disabilities Give Jesus an Opportunity to Correct Wrong Ideas
about God’s Love and Human Suffering.
Myth: God Does Not Love People with Disabilities. This notion is a carryover from pagan beliefs. But
the Bible makes it clear that a disability is not God’s disapproval or punishment upon individ-
uals who are disabled. He allows disabilities for his intended purposes; to bring glory to himself,
spiritual growth in people with disabilities, and ministry opportunity and blessings for believers
who serve the disability community.
Myth: People with Disabilities or Their Parents Sinned against God. One example of this wrong idea is
a question that someone asked Jesus regarding whether it was a person with a disability or his
parents who sinned. Jesus responded “neither” and explained that the disability existed “in order
that the works of God might be displayed in him” (John 9:1-3). Jesus’ explanation is clear. The
disability was there so that he might heal that individual. While on the one hand this was a spe-
cific instance, a general principle lies behind it. God allows some people and not others to be
disabled in order to accomplish his purposes.
1
1
Myth: People with Disabilities Lack the Faith to Be Healed. Some people believe that if a person has
enough faith, he or she could be healed. This is not taught in the Bible, but is based on a mis-
understanding of Matthew 17:20 and 1 Corinthians 3:2 which seem to indicate that nothing is
impossible with enough faith. Instead, the Bible teaches that we must pray as those who submit
their wills to God and if it is God’s will, he can heal a person’s disability. This happened during
Jesus’ earthly ministry and on a few other occasions in the Old Testament and the early church.
Most would agree it could happen today. But it has always been done for the glory of God, and
often for the growth of the individual. Many people with disabilities have great faith and live
victorious Christian lives. In fact, their faith may be stronger than able-bodied believers because
of their disability.
3. People with Disabilities Allow Fellow Believers to Demonstrate God’s Love and Faithfulness.
Jesus prioritized spiritual needs but did not neglect physical and cognitive needs. This should be our
role with persons with disabilities. In Acts 6:1-6 we read how Deacons in the Early Church also served
as role models for all believers in assisting others, especially widows. It is estimated that a widow was
about 60 years old on average, and most likely had the common disabilities brought on by aging. With
great confidence that God can use us, we should consider our mission and motives:
A. Our Mission: How Can We Serve Persons with Disabilities? We began this study by saying that
God’s story in Scripture is about his mission on earth. Our mission, which must be consistent
with his, should begin with evangelizing and discipling people with disabilities (Matt. 28:18-
20). This two-stage process should always be our first priority. People with disabilities need
to be in Jesus’ Church learning and growing. Compassionate treatment and mercy ministry
God s Stor y of D i sabi l ity: The U n fold i ng Pl a n from G e nesi s to R e vela t ion, b y Da v e Deu e l, M. A ., Ph . D.
5
should be woven into the fabric of every thought and deed pertaining to disability, not treated
as an additional component of disability ministry or, worse yet, pitted against evangelism
and discipleship as it often is. Once we have prioritized spiritual matters, we must address
what might prevent someone with a disability from participating in the Christian life and
avoid several pitfalls.
We must consider how to lead people with disabilities to Christ. We must not ap-
pear to place conditions on our love for them. This is easy to do. For example, we
must not let unbelievers think we won’t trouble ourselves with them if they do
not become a Christian. This is manipulation and it is wrong.
We must help people with disabilities to grow spiritually in the best way possible.
We must not cause those who claim to be Christians to think that unless they
grow spiritually in conduct, we will treat them like children by punishing them
or ignoring them.
Finally, we must provide opportunities for people with disabilities to participate
in all aspects of church life. They must be enabled to fully engage in worship and
have an opportunity to exercise their spiritual gifts (1 Pet. 4:10). In short, we must
see to it that every aspect of the local church experience is realized in their lives.
B. Our Motives: Why Should We Serve People with Disabilities? Believers should serve God out of both
fear and love for him. There is no contradiction here. Motives are complex. It might help if
we understood some of the direct and indirect reasons God gives us for caring for persons
with disabilities. Hopefully, we can then serve with purer motives. The following motive list
is ranked from the weakest to the strongest.
Because We All May Be Disabled Some Day. In Ecclesiastes 12:1-3, Solomon talks
about the “difficult days” referring to end of life issues. Statistics remind us that
at some point in our lives more than 70% of us will not be able to climb a flight
of stairs. Most of us will become visually and hearing-impaired to the point where
we may not be able to see or hear at all, or at least we’ll require glasses or hearing
aids. These are disabilities.
10
Because Our Eternal Rewards Will Be Based on Serving Selflessly. In Luke 14:12-14, Jesus
instructed a group of Pharisees and a dinner host about humility. “When you give
a reception, invite the poor, the crippled, the lame, the blind. And you will be
blessed, since they do not have the means to repay you; for you will be repaid at
the resurrection of the righteous” (Luke 14:12-14). Here Jesus struck at the heart
when he said, in essence, this is the best kind of service because people with dis-
abilities were not expected to repay. God keeps a record of our good and bad deeds.
Solomon summarized, “The end of the matter is this; fear God and keep his com-
mandments for all must give an account of every deed” (Eccles. 12:13-14). The
Bible calls believers to humble ourselves and serve God for heavenly rewards.
Because We Must Help the Weak. The apostle Paul says our faith will work itself out
in our love toward other people. “In everything I showed you that by working
God s Stor y of D i sabi l ity: The U n fold i ng Pl a n from G e nesi s to R e vela t ion, b y Da v e Deu e l, M. A ., Ph . D.
6
hard in this manner [supporting Paul] you must help the weak and remember
the words of the Lord Jesus, that he himself said, ‘It is more blessed to give than
to receive’” (Acts 20:35). We come to understand the word “weak” as it is used
in other contexts, for example, “And a great multitude was following him, be-
cause they were seeing the signs which he was performing on those who were
sick” (John 6:2). But we must be cautious in defining what actually helps any
individual.
11
Because God Has Empowered Us to Love Well. We thank God for whatever measure of
healthy bodies and minds he has given us. Out of our thankfulness we consider
how we might help people whose bodies and minds do not work well or work at
all. The world of a person who has a disability is often physically difficult and
emotionally painful. For those with mental disabilities the situation is sometimes
even more difficult.
Because Believers with Disabilities are Part of the Body of Christ. One of the most worthy
reasons for serving people with disabilities is that it is the right thing to do. What-
ever responsibilities and privileges fall to all believers in the body of Christ, they
also are due to those with disabilities. We may even find that those with disabilities
can do certain things better than more able-bodied and able-minded believers.
Because Believers with Disabilities Serve Uniquely. Perhaps most importantly, people
with disabilities can minister in incredible ways. In fact, they can minister as
effectively, if not more so, than their sisters and brothers in Christ who do not
have disabilities.
12
Their physical or mental disability, in God’s hands, becomes a
ministry blessing. This brings new insight to Paul’s challenge that all believers in
the Body of Christ have gifts the Church needs (1 Pet. 4:10). He was not excluding
people with disabilities. We are blessed to have them as part of our individual and
collective Christian experience.
The Bible, by treating people with disabilities as part of the assembly in the Old Testament and the
Church in the New Testament, shows us clearly that people with disabilities are just people who happen,
by God’s sovereign plan, to have disabilities. They are not another category of persons, but people with
a wide range of unique abilities. If we desire to submit to biblical teaching, we will treat all individuals
as one of us and give assistance where it is needed.
We would be remiss if we did not conclude by recapturing the spirit of the prophets who saw dis-
ability as ultimately glorifying God. Our greatest blessings in service will come through being a blessing
to others with disabilities and being served by them. God’s story began in a disability-free paradise with
a tree. That is where it ends and reopens for a new and endless disability-free eternity. Jesus entered
our sin-cursed world and brought healing through his death. No wonder John says in the final chapter
of our Bibles, “And the leaves of the tree are for the healing of the nations. And there was no longer
any curse” (Revelation 22:3). There will no longer be any disability.
Not every story finds a happy ending. But for those who love people with disabilities and those
loved by them, the ending could hardly be better—perfect bodies, perfect minds, and perfect fellowship
with God, whose story includes disability.
God s Stor y of D i sabi l ity: The U n fold i ng Pl a n from G e nesi s to R e vela t ion, b y Da v e Deu e l, M. A ., Ph . D.
7
Recommended for Further Study
Disability in the Hebrew Bible: Interpreting Mental and Physical Differences By Saul M. Olyan (Cambridge:
Cambridge University Press, 2008)
Biblical Corpora: Representations of Disability in Hebrew Biblical Literature By Rebecca Raphael (Edinburgh:
T & T Clark International, 2008)
This Abled Body: Rethinking Disabilities in Biblical Studies By Hector Avalos, Sarah J. Melcher, and Jeremy
Schipper, (Leiden: Brill, 2007)
Forms of Deformity: A Motif-Index of Abnormalities and Disabilities of Human Form in Traditional Jewish Literature
By Lynn Holden (Edinburgh: T & T Clark International, 1991)
The Blemished Body: Deformity and Disability in the Qumran Scrolls By Johanna Dorman (Groningen: Rijk-
suniversiteit, 2007)
Disability Studies and the Hebrew Bible: Figuring Mephibosheth in the David Story By Jeremy Schipper (Sheffield,
UK: Sheffield Academic Press, 2006).
NOTES
1. Disability terms are low frequency and vary with the translation: Blind (KJV 82, ASV 79); Deaf (KJV 15, ASV 16); Dumb [= mute] (KJV 29, ASV 31);
and lame (KJV 66, ASV 70).
2. This study follows the contours of the disability theme, and begs a more detailed study of Genesis-Revelation and the theme’s development.
3. All Scripture quotations in this paper, unless noted otherwise, are from the New American Standard Bible (NASB)
Copyright © 1960, 1962, 1963, 1968, 1971, 1972, 1973, 1975, 1977, 1995 by The Lockman Foundation.
It is significant that the Hebrew words used in this passage that translate “mute”, “deaf”, and “blind” are specially marked with a grammatical pattern
indicating physical disabilities. C. L. Seow, A Grammar for Biblical Hebrew (Nashville: Abingdon Press, 1995): 21.
4. Historical studies include Harry A. Hoffner, “The Disabled and Infirm in Hittite Society,” Eretz - Israel: Archaeological, Historical, and Geographical Studies
27 (Jerusalem: Israel Exploration Society, 2003).
5. Olyan, Disability, 62.
6. Interestingly, although the Bible lacks an equivalent term for our English “disability” it presents a perspective on disability that is consistent and
pervasive. While it is true that the disabled were sometimes treated as ritually unclean (Lev. 21:18; 22:22), it seems clear enough that this had to do
with the transmission of disease or the perception of unblemished perfection in didactic symbolic gestures. See Olyan, Disability in the Hebrew Bible.
These small and potentially confusing aspects of disability pale in significance and scope when compared to the Lord’s heart for people with disabil-
ities seen throughout Scriptures.
7. We must be cautious in using Isaiah’s and other writers’ language for sometimes he refers analogically to spiritual disabilities (spiritual blindness,
etc.).
8. The New International Reader’s Version has sensitively rendered the language of disability in this passage.
9. Timothy Keller, The Prodigal God (New York: Dutton, 2008): 112
10. The 2000 U.S. Census found that 19.4 percent of the population is affected by physical or intellectual disability. For a challenge to rethink how we
define, categorize, and view disability from a Christian perspective, see Deborah Creamer, Disability in Christian Theology: Embodied Limits and Constructive
Possibilities (Academy, 2008).
11. Those who would lovingly help those with disabilities must consider how love is best applied. To love is not to develop a dependency, which robs an
individual of dignity. See Glenn J. Schwartz, When Charity Destroys Dignity: Overcoming Unhealthy Dependency in the Christian Movement (Lancaster, Pa:
World Mission Associates, 2007): xvii.
12. See, “Surprised by Disability: Why the Parts of the Body that Seem to be Weaker Are Indispensable,Christianity Today (October, 2008) www.christianity
today.com/ct/2008/october/15.100.html.
God s Stor y of D i sabi l ity: The U n fold i ng Pl a n from G e nesi s to R e vela t ion, b y Da v e Deu e l, M. A ., Ph . D.
8
Dave Deuel, M.A., Ph.D. (Cornell University and The University of Liverpool) is the Director of International
Academic Studies for Joni and Friends as well as the Academic Director of The Master’s Academy Interna-
tional, a consortium of ministry training schools worldwide. Dave served as Regional Director for Joni and
Friends in the San Fernando Valley, CA and in board positions for The North Los Angeles Regional Center,
All Children’s Hospital (Los Angeles), Direct Link for the Disabled and a Governor’s Advisory committee
for Disability (Sacramento). He is Chairman for the Old Testament and Ancient Near Eastern consultation
of the Evangelical Theological Society. Dave focuses his ministry interests on assisting others in start-
ing and developing ministries, primarily on the foreign field. He also ministers with and to persons
with disabilities through Joni and Friends’ Christian Institute on Disability.
1
Christianity: A Knowledge Tradition
By Kathy McReynolds
Science vs. Christianity
To say that there is enmity between the scientific community and Christianity—between the secular
and the sacred, if you will—is to say nothing new. This conflict has gone on since the early days of the
modern era. Recently, however, this battle between science and religion has taken a new turn, one which
ought to concern us all, especially those of us who work with people with disabilities. There has been
a rash of bestselling books by atheists which go far beyond a mere challenge to religion. These best-
selling authors (commonly known as the New Atheists) charge that religion is a plague that needs to
be eliminated. The titles of their most recent books alone reflect their vehemence against faith: The God
Delusion by Richard Dawkins; Breaking the Spell: Religion as a Natural Phenomena by Daniel Dennett; god is
Not Great: How Religion Poisons Everything by Christopher Hitchens; The End of Faith: Religion, Terror, and
the Future of Reason by Sam Harris. These authors have declared a new war on the Church—one which
they fully intend to win.
The way these new atheists see it, science has made religion obsolete. In their view, science has done
a much better job at explaining our world, human nature, and the origins of morality than religion
ever did. Science, they also claim, is light years ahead of religion in proposing ways to create a good so-
ciety— a society that is more “tolerant and free.” The new atheism claims to appeal to our intellect, to
the better part of our nature. It claims to make a stand upon the Truth. This is the crux of the matter.
Is atheism true? Atheists of course claim to have the bulk of evidence on their side—that evolutionary
science has shown religion to be completely irrational, and to be a mere vestige of our primitive nature
that we must simply “overcome.”
A variety of arguments against atheism have been put forward over the years. In a recent article for
Wired Magazine entitled “The Church of the Non-Believers,”
1
Gary Wolf points out that many religious
fundamentalists take their stand upon biblical doctrine and refuse to budge. But Wolf seems to imply
that this stand is not rational; hence, it is questionable evidence from the start. According to Wolf,
other believers argue that nothing in science prohibits belief—that unsolved problems in science demon-
strate that the existence of God might not be impossible.
The problem with this view, Wolf suggests, is that it implicitly accepts science as the arbiter of what
is real and true. This gives atheists the upper hand. Wolf goes on to say that when secular investigations
take the lead, biblical doctrines are undermined. There is not a field in modern scientific research—
cosmology, anthropology, biology—in which competing Christian explanations have survived un-
touched. When it comes to defending biblical doctrines of origins, Wolf says that few defenders of the
faith have been able to hold up under the attacks of the secularists.
In an honest attempt to resist the slide into atheism himself, Wolf has tried to search for some answers
concerning the God of the Bible. What he discovered is a daunting diversity of belief. And then he makes
the following insightful comment, “It is all admirable and stimulating and lacks only the real help any-
body in my position would need: reasons to believe that specific religious ideas are true(emphasis mine).
What Gary Wolf is searching for is knowledge of the truth. He can’t help it. It is the image of God
in him which drives him to do so. Dallas Willard, who wrote the foreword to J.P. Moreland’s book, The
Kingdom Triangle,
2
points out that knowledge is in crisis in our culture. Willard argues that knowledge
is an indispensable function of human life. It enables us to act and direct and teach certain things. If
we lack appropriate knowledge, we simply cannot engage in certain crucial human activities. One has
knowledge of a particular subject when he or she can represent that subject as it is—when he or she
can represent it according to reality.
Willard further points out that throughout most of Western history, the Church was thought to
possess a unique body of knowledge which included specific teachings concerning God, the universe,
human beings, and the nature of the blessed life. This body of knowledge was thought to come to the
Church through general and divine revelation. Enlightenment” and post-Enlightenment thought
has robbed the Church of this precious and lofty body of knowledge and reduced it to mere firings
of neurons in the brain, purely subjective and void of any truth. Willard also notes that in many ways
this view of knowledge has crept into the Church. We are hard pressed to find many Christian leaders
who understand Christian teachings to be a body of knowledge and not merely a profession of per-
sonal faith. Because the Church has relinquished its role as an institution that possesses a body of
knowledge that reflects reality, the secular world has redefined knowledge in such a way as to make
knowledge of God impossible. What the world gives us in return is a thin and brittle reality which is
subject to the whims and discretions of the scientific community. In such a world, no one can truly
know anything other than what the scientist tells us. In such a world, no one is safe, especially those
with disabilities. For if knowledge of God is impossible, so is knowledge of our origins and purpose.
In such a world, there can be no hope for a future. No one will feel the effects of this worldview more
than those with disabilities.
Christianitys Great Fortress: True Knowledge
It is time for the Church to take back what rightly belongs to her, that is, the truth that Christianity is
a knowledge tradition. It reveals to us what is true and real about our world and ourselves. Christian doc-
trines are not merely creeds to which we believers through the ages have given a vote of approval. They
reveal something true about the nature of reality. They are true for all people for all time whether they
believe them or not. The essential doctrines of the Bible (which include natural law and general reve-
lation) are the only means by which we can defend the cause of those with disabilities. The atheists and
secularists who have stolen our truths—truths concerning whose we are, who we are, and why we are
here, have taken them and, because they misunderstand them, are using them against the most vul-
nerable in society. This is being done at an unprecedented level today, especially in genetics and the
neurosciences. Medical researchers have whittled down the definition of the human person to mere
proper brain function and in the process they have dehumanized groups of people who have cognitive
disabilities. It is time for the Church to take back what rightfully belongs to her.
Chri s tiani t y: A K nowl e dge Tra diti o n, by Dr. K a thy M cReyn o lds
2
In his timeless essay entitled, “Learning in War-time,” C. S. Lewis makes a strong argument con-
cerning the duty of those who are educated to protect those who are most vulnerable:
To be ignorant and simple now—not to be able to meet the enemies on their own ground—
would be to throw down our weapons, and to betray our uneducated brethren who have, un-
der God, no defense but us against the intellectual attacks of the heathen. Good philosophy
(sound biblical theology) must exist, if for no other reason, because bad philosophy needs to
be answered.
3
I believe Lewis’ statement reflects one of the essential duties of the Christian life; that is, to speak
for those who cannot always speak for themselves. We must defend the most vulnerable against the
attacks of the new atheists. To accomplish this, the Church must once again embrace essential Christian
doctrine in order to show that it is the saints, and not the scientists, who are the possessors of a unique
body of knowledge concerning God, human beings, and the nature of the blessed life. What is required
for this task is good Christian thinking, and good Christian thinking is grounded in knowing what
the Bible is about. The doctrines of Creation, Sin, Redemption, Incarnation, Church, Judgment, and Eternity,
when taken together, provide a kind of grid through which we can understand life’s most important
issues. This, in turn, can yield the beginnings of a Christian understanding of disability with all the
complexities it brings.
Dorothy Sayers once said that the reason we do not take heaven and hell seriously is that we do not
take this world seriously. We must take seriously the nature of these attacks by the new atheists and
we must respond by taking back what was entrusted to us; that is, the truth about God and his purposes
for creation and humanity. We must take seriously the fact that we indeed have been robbed by secular
scientists who claim that they have the exclusive right to say what is true and what is not. Augustine
equated true knowledge with theological knowledge. He also compared knowledge with vision. If we
use this metaphor and apply it to the new atheists, we can show that they themselves suffer from a dis-
ability: partial visionthey acknowledge true things, but reject the Truth itself. Augustine makes the point
that true things derive from the Truth itself.
Hence, for Augustine, Truth does exist and human beings can know something about it. He dis-
tinguishes between Truth and true things:
1. True things are particular instances of Truth, just as things that are equal are particular in-
stances of Equality.
2. Truth remains immutable, even though true things change. For example, to say that I am
talking right now is a true statement; but in 10 minutes, I might not be talking. But Truth
still remains the same.
3. Truth is eternal, while true things perish. Just as Equality does not perish when two equal
sticks are destroyed, so Truth does not cease when true things perish.
In Book II of Soliloquies, Augustine argues that because it is a contradiction to deny the eternality
of Truth, Truth is logically indestructible. For example, if the world will never pass away, it is true that
the world will never pass away. If the world will someday perish, then that is true. But Truth itself will
abide even though every created thing should perish. However, the question might still be asked, “What
if Truth itself should perish?” Augustine’s answer is, “Will it not be true the Truth has perished?” Thus,
the very denial of Truth’s eternality turns out to be an affirmation of its indestructibility.
Chri s tiani t y: A K nowl e dge Tra diti o n, by Dr. K a thy M cReyn o lds
3
According to Augustine, our minds do not judge Truth; rather Truth judges our reason. If Truth
were inferior to our minds, we would judge it instead of using it as a standard of judgment. We often
judge a person’s mind when we say that this mind is not as keen as it might be, but we do not stand in
judgment of what is eternal or what is Truth. If Truth and our minds were equal, Truth would not be
eternal and unchanging, since our minds are finite, mutable, and subject to error. But it has already
been established that Truth is eternal.
Truth, therefore, must be more excellent than human reason. Truth must exist somewhere; that
is, there must be some basis for truth, but it cannot be anything perishable. It was shown how Truth
remains even when true things perish. Truth, therefore, does not exist in mortal things. But it must
exist somewhere. There are immortal things. Since only God is immortal, he must be the ground of
truth. Thus, Augustine says, “For where I found truth, there I found my God, who is the Truth it-
self.”
4
Christians, therefore, take their stand on the Truth itself which encompasses and acknowledges
the validity of all true things. The new atheists take their stand on true things alone which can lead
to scientific knowledge, and they look no further than this. They are satisfied with this partial vi-
sion” because to acknowledge the Truth itself is to admit that there is a higher authority. And this
they do not want to do. The consequences of this “disability” have been enormous. Consider the
many new technologies today which are used specifically for the destruction of human life (nuclear
bombs, roadside bombs, certain genetic technologies). This is pathology of reason which is completely
severed from God.
Augustine also distinguished between higher and lower reason. The object of lower reason is the
temporary world. Its method is investigation, its end is action, and its result is science. The object of
higher reason is the eternal world where God dwells. Its method is contemplation, its end is happiness,
and its result is Godly wisdom. This notion of higher reason by which the soul is illumined by divine
light has been rejected by scientists today, but for no good reason. The fact of the matter is that scien-
tists could not carry on their own work without the assumption that truth itself can be known. But
they refuse to acknowledge this fact to everyone’s peril. As Pope Benedict XVI so eloquently states,
“Reason capable only of recognizing its own self and that which is empirically certain paralyzes and
destroys itself.”
5
The Pope goes on to discuss the task that lays ahead of us if we are ever going to make
a difference for the good in our culture:
We Christians are summoned today, not to limit reason and oppose it, but to resist its reduction
to the rationality of production. We must struggle on behalf of the capacity to perceive the
good… For that is the true fight on behalf of man and against inhumanity. Only reason that is
open to God, only reason that does not banish morality into the realm of the subjective or de-
grade it to the level of calculations can resist the misuse of the concept of God and sick forms
of religion and bestow healing.
6
This indeed is a high calling, and one to which we must labor and strive. What we must do is
commit ourselves to seeking God’s truth in its totality. It is not enough to become a Christian and
stop striving. The Christian faith is a seeking faith. It is a faith that keeps us on the upward path of
becoming increasingly conformed to the image of Christ. God shapes us into the image of his dear
Son by his Word, his Spirit, and his Community. All truth is God’s truth and he takes all of our ex-
periences, either good or bad, and uses them for his purpose. We need only be willing to hear his
voice and follow his lead.
Chri s tiani t y: A K nowl e dge Tra diti o n, by Dr. K a thy M cReyn o lds
4
NOTES
1. http://www.wired.com/wired/archive/14.11/atheism_pr.html
2. J.P. Moreland, Kingdom Triangle: Recover the Christian Mind, Renovate the Soul, Restore the Spirit’s Power (Grand Rapids, Mich.: Zondervan, 2007).
3. C.S. Lewis, “Learning in War-Time” in The Weight of Glory (Grand Rapids, Mich.: William B. Eerdmans Publlishing Co., 1949).
4. For this brief discussion on Augustine’s epistemology, I am indebted to Ronald H. Nash and to his incredible insight in his work, The Light of the
Mind: St. Augustine’s Theory of Knowledge (Lima: Academic Renewal Press, 2003).
5. Pope Benedict XVI, Values in a Time of Upheaval (New York: Ignatius Press, 2006), 111.
6. Ibid., 112
Chri s tiani t y: A K nowl e dge Tra diti o n, by Dr. K a thy M cReyn o lds
5
Dr. Kathy McReynolds is the Director of Academic Studies for the Joni and Friends Christian Institute
on Disability. Kathy has a B.A. in Christian Education from Biola University, a M.A. in Systematic Theology
from Talbot School of Theology and a Ph.D. in Ethics from the University of Southern California. She has
taught in the Biblical Studies Department at Biola University and served on ethics committees for hospitals
and universities. Kathy has received numerous prestigious awards, including the Leading Health Care
Professional of the World by the International Biographical Center in 2009.
1
Worldview Analysis of Suffering
and Disability: Six Perspectives
By Chuck Edwards
“Worldview analysis” broadens our understanding of an issue by revealing the religious beliefs that are
the foundation for building a set of values, which in turn is the basis for personal behavior. In other
words, what a person believes about God shapes his views about what is right and wrong, and these
moral values are lived out in daily life. The faith assumptions a worldview embraces related to the God
question
1
leads naturally to implications in other areas of thought and life. In this paper we will analyze
five worldviews and what each teaches concerning suffering and disability, as well as compare them
with a biblical worldview. We will limit our exploration of those implications to the nature of humanity
and the view of human suffering in this world.
First, we consider Cosmic Humanism, an umbrella term for the eastern religions of Buddhism and
Hinduism and, derived from those two religions, western-style New Age Spirituality. Another, more
general term that describes this over-arching worldview is transcendentalism. The second major head-
ing under investigation is Naturalism. This is divided into two worldviews: Secular Humanism and
Postmodernism. And the third major heading is Theism, which includes the worldviews of Islam, Ju-
daism, and Christianity.
Cosmic Worldviews
Every worldview has certain assumptions about the nature and existence of God that cannot be proven
in the sense of scientific proof or a mathematical equation. This starting point is presupposed, or be-
lieved, and everything else follows from that belief. This is not to say there are no reasons for holding
certain presuppositions, or that some assumptions are therefore more rational than others. But what-
ever the case, there is a faith element that persists.
For example, the Cosmic Worldview assumes that everything that exists is part of god; god is all
and in all—The One. If this is true, then it follows that humans are part of the god-force that is the ul-
timate reality, described as goodness, blissful peace, and perfect harmony. Suffering, in this view, is ei-
ther an illusion, being a distorted understanding of the actual situation, or it is the result of bad karma
from past lives that must be worked off in this life.
Based on the above set of assumptions, what are the implications for human nature and human
dignity? A Cosmic Worldview offers two responses to suffering. First, if suffering is an illusion, than
through the practice of deep meditation, you should try to “get over it.” This idea is illustrated in the pop-
ular children’s movie, Kung Fu Panda. In scene 13, Shifu approaches the old Master, The Great Oogway,
saying, “Master, I have very bad news,” to which the Master guru explains, “There is just news, there is
no good or bad… there are no accidents… let go of the illusion of control.”
However, this approach does not deal adequately with the physical pain and emotional reality that
people experience. It seems that pain and suffering are real. How can it be the case that what seems so
real is actually an illusion? If suffering has always been an illusion, how did the illusion of real pain
get started? How did humans ever start experiencing pain when pain was never real in the first place?
Common sense tells us that this world is not illusionary, but real, otherwise we would never know
what is real.
A second implication of Cosmic Worldview assumptions is the concept of karma, the view that
what you experience in this life—for good or ill—is the result of how you lived in a past life. Therefore,
if suffering is the result of bad karma, than it is deserved, so we should just “accept it.”
Actor Richard Gere illustrated this view in his response to the 9/11 terror attacks. He said in an in-
terview a month after the attacks, “In a situation like this, of course you identify with everyone who’s
suffering. (But we must also think about) the terrorists who are creating such horrible future lives for
themselves because of the negativity of this karma.”
2
However, this view of karma has several flaws. In their book, Making Sense of Your World, authors
Gary Phillips, William Brown, and John Stonestreet mention three problems.
First, are the victims of evil that is perpetuated by others—including the thousands who died in the
World Trade Center attacks—not victims at all, but really deserving recipients of the suffering they ex-
perience? Second, if people deserve what happens to them, why should we be obligated to provide any
relief? Viewing evil in this way discourages acts which would help to alleviate the suffering of others.
Third, would not this view also demand that we regard those who escape a tragedy as morally upright?
3
This overview shows how Cosmic Worldviews cannot offer a compelling case for why there is suf-
fering, nor can they provide a compassionate solution. But what about Naturalistic worldviews? Do
they fare any better in accounting for suffering and offering a remedy?
Naturalistic Worldviews
The foundational assumption inherent in Naturalistic worldviews is that the supernatural does not
exist; meaning that God, angels, and the human soul are simply manifestations of the human imagi-
nation similar to leprechauns and unicorns. The Naturalist believes that nature is the ultimate and
only reality, and nature has no goal or purpose. Therefore, human life has no inherent meaning. Hu-
mankind evolved through a series of biological processes as well as every other living thing. In this sort
of world, “some people are going to get hurt, other people are going to get lucky, and you won’t find
any rhyme or reason, nor any justice… nothing but blind, pitiless, indifference…as well-known biologist
Richard Dawkins says.
4
Secular Humanism
Secular Humanism is a naturalistic worldview that developed in the United States beginning with the
publication in 1933 of the Humanist Manifesto, which has since been updated in 1973 and 2000. In those
documents, not only is a godless universe endorsed but also ethics are grounded in the situation at
Worldv i ew An a lysis of S u ff ering and D i sabi l ity: Six P e rspec t ives , by C h uck E d wards
2
hand. One form of situational ethics is called utilitarianism, where moral decisions are determined by
which course of action secures the greatest good for the greatest number of people.
The implications of Secular Humanist atheism and utilitarian ethics for human nature and dignity
is summed up by Robin Williams, playing Teddy Roosevelt in Night at the Museum, who said to Larry
(Ben Stiller’s character), “I’m made of wax, Larry. What are you made of?” As “Teddy Roosevelt” under-
stood, “what we are made of” determines who we are. If we are made only of what astronomer Carl
Sagan described as “star stuff,” then we are simply part of the expanding universe of matter in motion,
and since the universe is unknowing and impersonal, human life has no intrinsic value. Any value
placed on human beings is the result of social consensus, it is not an actual state of being.
If human value is simply a choice of the collective society, then we have to agree with internationally
known professor of ethics at Princeton University, Peter Singer, who is attributed as saying,
The notion
that human life is sacred just because it is human life is medieval.
5
According to Singer, and other Secularists, it
is high time we moved on from our ancient understanding of ourselves and embrace the modern story
of who we are: a highly evolved, random assortment of atoms.
Like nature itself, what we call “evil” and personal “suffering” are just the way things are. The Rev.
Colin Bossen, minister of the Unitarian Universalist Society of Cleveland, Ohio states, “…humanism
posits that suffering has two sources: human action (either through folly or malice) and the random-
ness of nature.”
6
Therefore, whether by some other person or nature acting on you, if you happen to suffer,
it is simply bad luck for you.
Since a disabled person is unlucky, than he should try to “get out of it.” Those with disabilities have no
inherent value relative to persons without disabilities. In fact, they are at a distinct disadvantage in the
evolutionary struggle for existence and thus are less valuable than people without disabilities. Therefore,
if a preborn child or newborn infant is found to be disabled in some way, to the point of bringing suf-
fering emotionally or financially for their parents, siblings, or others, the child should be eliminated.
Again, Princeton professor Peter Singer, writes, “If the fetus does not have the same claim to life as a
person, it appears that the newborn baby does not either, and the life of a newborn baby is of less value
to it than the life of a pig, a dog, or a chimpanzee is to the nonhuman animal.”
7
According to Singer, the utilitarian action of killing a fetus or newborn baby will bring about more
overall happiness to a greater number of people. While killing an infant may create short-lived suffering
for the infant, the suffering would be far less than a lifetime of suffering if the infant were allowed to
live or the long-term suffering and hardship of the family members, relatives, and society as a whole.
Singer offers the following assumption for why this action is moral when he writes, “Similarly, the pref-
erence of utilitarian reason for respecting the life of a person cannot apply to a newborn baby. Newborn
babies cannot see themselves as beings who might or might not have a future, and so cannot have a
desire to continue living. … [I]f a right to life must be based on the capacity to want to go on living… a
newborn baby cannot have a right to life.”
8
Another implication of Secular Humanist ethics is that adults who have severe disabilities, either
by birth defect or through an accident, should commit suicide or be killed mercifully so they won’t
put an emotional or financial burden on the able-bodied population. In addition, one of the implica-
tions of state-controlled health care is that persons with disabilities would be eliminated if they pose
an extensive financial burden on the larger community. This is because there is a limit to what society
is able and willing to spend on maintaining human life, and if human life is devalued because of the
prevalent worldview, those considered less desirable will die.
The problem with this humanist view of utilitarianism is that it fails to make a compelling case as
to why a person’s worth is contingent on his “value” to society. Who decides who has this “value” and
Worldv i ew An a lysis of S u ff ering and D i sabi l ity: Six P e rspec t ives , by C h uck E d wards
3
who doesn’t? Why does Peter Singer think he has the right to determine that only people who are ra-
tional and self-aware and who have a desire to keep on living are considered “persons”? Only if God
does not exist can Singer and his fellow Secular Humanists assert their views on who qualifies as a per-
son and who does not.
Moreover, the measure of utility is a very unstable standard, for how does a society determine what
is the greatest “good?” Why should it not be “good” for a person with disabilities to live if that is what
he or she wants? Why should a 51 percent majority decide the fate of the other 49 percent? Or do the
intellectual elites decide who lives and who dies according to their whim? These and other questions
are very problematic given the assumptions of Secular Humanists.
Postmodernism
Postmodernism takes the assumptions inherent in a godless universe to their logical conclusion. While
a Secular Humanist is convinced that the universe can be understood through rational thought and
the scientific method, the Postmodernist believes that if God is not real, than neither are objective
truth nor objective moral values. Postmodernists hold the philosophical position that true reality is
ultimately inaccessible by human investigation, that knowledge is not independently “true” but is
shaped by each particular society (multiculturalism), that truth-claims are actually political power
plays (political correctness), and that the meaning of words is determined by readers, not the authors
who wrote them (deconstruction). In brief, postmodern theory sees reality as what social groups make
it to be. In this view, much of human suffering is perpetrated by the dominant group in a society forcing
its will on the less powerful, causing oppression and suffering on their part.
Postmodernism acknowledges evil and suffering are real but offers no hope or help for alleviating
either. Theologian N. T. Wright sums it up this way, “There is no way out, no chance of repentance or
restoration, no way back to the solid ground of truth from the quicksand of deconstruction. Postmoder-
nity may be correct to say that evil is real, powerful and important, but it gives us no real clue as to what
we should do about it.”
9
Since there is neither hope nor help, if we suffer, we should just “get used to it.
The problem with this postmodern view is that very few people can live that way. That’s because
postmodernism lends itself to a nihilistic perspective, which says that life has no meaning or purpose.
Yet we humans have an inner sense that our lives are for some purpose. While the 1999 blockbuster
film, The Matrix, presents an overall postmodern worldview, at the end of the film Neo tells the Matrix
that things are going to change. He says:
…I don’t know the future. I didn’t come here to tell you how this is going to end. I came here to
tell you how it’s going to begin. I’m going to hang up this phone, and then I’m going to show
these people what you don’t want them to see. I’m going to show them a world without you. A
world without rules and controls, without borders or boundaries. A world where anything is
possible. Where we go from there is a choice I leave to you.
This is postmodernism with a Happy Face... J. A world without rules, controls, and borders is Post-
modernism. Yet, without any ultimate purpose to life, Postmodernism devolves into Nihilism. The
screenwriters created this feel-good ending since Nihilism doesn’t sell! Who wants to see a story with
no heroes, no bad guys, no romance, no hope or promise for the future, nothing but people living
meaningless lives and going nowhere? We long for hope and happiness, not a socially-constructed,
meaningless existence.
Worldv i ew An a lysis of S u ff ering and D i sabi l ity: Six P e rspec t ives , by C h uck E d wards
4
This brings us to a set of worldviews that offers hope that transcends the pain and suffering we ex-
perience here on this earth. The following three worldviews come under the heading of Theism. But as
we will see, only one of the three provides a solid foundation for hope of alleviating suffering.
Theism
The assumptions of Theism are, at a minimum, that God is real, personal, all-powerful, and all-know-
ing.
1
0
These assumptions provide the possibility for meaning in life because God is the author of life.
And there is a future state of being with God in Heaven, where there will be no suffering. But the three
worldviews, Islam, Judaism, and Christianity, are very different in their understanding of how this fu-
ture is achieved—and what it means.
Islam
There are two aspects of Islam that set it apart from both Judaism and Christianity. As Phillips, Brown,
and Stonestreet observe, “First, Islam allows nothing to happen outside of God’s specific decree. God
does not merely oversee human decisions and natural happenings, He ultimately decides them. Islamic
theologian Al-Ghazali writes: ‘Good and evil are foreordained. What is foreordained comes necessarily
to be after a prior act of divine volition. No one can rebel against God’s judgment; no one can appeal
His decree and command. Rather, everything small and large is written and comes to be in a known
and expected measure.’”
1
1
According to Islamic teaching, God’s decrees border on fatalism, diminishing the role of man’s free
will. A scene from the movie Hidalgo illustrates this view. During a horse race across the Arabian Desert,
a Muslim rider falls into quicksand and is languishing when Hopkins (Viggo Mortensen) comes upon him.
Muslim: Do not assist me, just kill me, please, use your weapon. It is God’s will.
Hopkins: Tell you what. You can do whatever the hell you want when I get you out of there.
Muslim: Why did you turn back for me?
Hopkins: Ain’t no prize money worth a man’s life the way I see it.
Muslim: It is written that God leaves us three wishes and grants three wishes. It is God’s will
that I die in this race. Just as it is God’s will who will win.
Hopkins: What about your will? What about your horse’s will? Seems to me that’s what gets
you across the finish line, only then is it written.
In Making Sense of Your World, the authors continue with a second assumption found in Islam, “Sec-
ond, there is no fall of man or of the creation in Islam. While the events of the Garden of Eden were
historical and teach man’s responsibility to obey God’s decrees, it did not result in any essential con-
sequences to man (i.e. original sin) or nature (the curse). What this implies in an Islamic view, then, is
that nothing has gone wrong with the world. In Islam, the world is as it was given by God. This provides a
very different picture of “natural evil” than that given in Christianity…”
12
Natural evil and suffering are
simply part of God’s decrees, not the result of man’s sin.
Islam’s implications for human suffering are summed up in the Quran, where it says, “And most
certainly we [Allah] should try you by means of fear, hunger, and loss of worldly goods, of life or of la-
bor’s fruit. But give glad tiding unto those who are patient in adversity, who when the calamity befalls
them, say, ‘Verily unto God we belong and verily unto him we shall return.’” (Quran 2:155-156) There-
fore, when faced with suffering, we should “grimly bear it.”
Worldv i ew An a lysis of S u ff ering and D i sabi l ity: Six P e rspec t ives , by C h uck E d wards
5
The result of an Islamic view of evil is that there is little incentive, apart from human emotion and
love, to help those who are suffering. If God decides everything that happens, then to help someone
who has a disability is to go against what God has decreed. On the other hand, there are other Muslims
who believe that helping those in need will be counted on their behalf when God judges their works in
this life, and gives them a better chance of heaven. There is even a Muslim organization for helping
disaster victims, The Red Crescent, styled after the Red Cross, an organization founded by Christians
in 1863. Islam, it seems, offers a mixed bag when it comes to the disabled.
Judaism
The assumptions associated with Judaism are the following: God is real, loving, and sovereign, we are
made in God’s image, and we live in a fallen world. So far this accords with Christianity. However, in
contrast to Christian instruction, Jewish tradition teaches that we must work to achieve personal right-
eousness and eternal salvation.
The implication for Jewish orthodoxy is that we have a righteous duty to help those who suffer.
However, there is also an element in Judaism of people reaping what they sow. This is brought out
forcefully in the biblical story of Job, where Job’s friends continually pressed him on how he sinned to
deserve such pain and suffering. In that case, people suffer because they deserve it. Therefore, when we
suffer, we should “repent in light of it.”
The downside of this view is that people who do such good works, thinking it earns them favor
with God, can become proud, and the Bible warns against this kind of pride. In the New Testament
Gospels, Jesus often took the Jewish leaders to task for their pride (see Matthew 23:1-12).
Biblical Christian Worldview
In a biblical Christian worldview there are four foundational assumptions: The first assumption is that
God is real, all-powerful, loving, and sovereign. In addition, God is the creator of the universe and all
living creatures.
The second assumption is that we are made in God’s image (Imago Dei). Therefore, everyone has
inherent dignity, regardless of nationality, race, social standing, ability, or disability. Relationally, we
need each other.
The third foundational assumption is that we live in a fallen world. Not only is humanity fallen,
but the cosmos is fallen as well (Genesis 3, Romans 1). Therefore, since we and the world are broken,
this means that things are not perfect. People are not perfect. President Barack Obama, in his accept-
ance speech for the Nobel Peace Prize, referred to “human imperfections.” We are fallen people living
in a post-fall universe. For this reason, we should expect a degree of suffering as the norm, not the ex-
ception. It’s just the way things are at this time in redemption history.
Unlike the Cosmic Worldview’s emphasis on karma, a Biblical worldview teaches it is a mistake to
think everything that happens to us is the result of something we have done. When his disciples asked
Jesus where to place the blame when a man was born blind—on the parents or the man himself—Jesus
replied that neither had sinned (John 9:2-3). On another occasion, Jesus commented that the people
who had a tower fall on them did not do wrong, falling towers are a natural occurrence due to poor
construction and the law of gravity (Luke 13:4). In the Bible we’re not told exactly why we suffer at a
particular time and in a particular way, only that suffering in general is part of this world.
Fourth—and this sets Christianity apart from every other worldview—Christ brought redemp-
tion through suffering. Jesus’ suffering brought life to others. We are told that our trials provide a
platform for offering hope to others (2 Corinthians 1:3-7). In addition, suffering has the benefit of
Worldv i ew An a lysis of S u ff ering and D i sabi l ity: Six P e rspec t ives , by C h uck E d wards
6
producing perseverance and Christian maturity (James 1:2-4). Therefore, when we suffer, we should
live it out.
What are the implications of the biblical story of creation, fall, and redemption? Since Jesus com-
mands his followers to bear up under suffering and help those who suffer, then we should strive to “relieve
it.” The history of the Church reveals how Jesus’ directives were carried out, as Christians started hospi-
tals, orphanages, schools for all, universities, soup kitchens and disaster-relief agencies. It was the Church
that was at the forefront of abolishing slavery, women’s suffrage, and the Civil Rights movement.
13
Concluding Thoughts
In contrast to the other worldviews summarized, as Christ-followers we are given a different under-
standing of the purpose for our lives. This is because of Christianity’s unique perspective on our earthly
existence and our eternal state.
An Earthly Perspective
We are created relationally yet live in a fallen context. Part of what it means to live in a fallen world is
that there are people with disabilities. Considering this, there are three important perspectives to keep
in mind.
First, it is important to involve the full Body of Christ (including those of other races and persons
with disabilities) when we are discipling the people of God. Otherwise, if certain people get left out, we
are anemic as Christ’s Body.
Second, we need to fight the modern secular and postmodern impulses toward control, efficiency
and convenience as the highest measures of community. We should not seek to control who comes into
our midst, but meet people (like Christ did) where they are. Also, in some situations inconvenience may
be better than convenience and inefficiency better than efficiency. The inconvenience and inefficiency of
those who are disabled forces us to confront our selfish tendencies and may be more sanctifying in the
long run.
Third, the fall means that being disabled is a universal condition. We are all less than we ought to
be. Further, in the biblical narrative, redemption comes via suffering, as Jesus embodied humanity and
experienced a scarred physical body as a sacrifice for us all.
An Eternal Perspective
This current state of living in a fallen world among fallen people is not the way things ought to be or
ultimately will be. God has provided a new heaven and new earth awaiting those who thrust their sins
on the cross of Christ. Then, in the eternal state of God’s presence, evil and suffering will be replaced
with goodness and rejoicing.
NO TES
1. The “God question” is actually two questions: 1) Does God exist? 2) If so, what is God like?
2. “Interview with Richard Gere,” ABC News Radio, 10 October 2001.
3. W. Gary Phillips, William E. Brown, & John Stonestreet, Making Sense of Your World, 2nd ed., (Sheffield Publishing Co., Salem, WI., 2008), p. 153.
4. Richard Dawkins, River Out of Eden, p. 113.
5. http://www.brainyquote.com/quotes/authors/p/peter_singer_2.html
6. Black Humanism’s Response to Suffering by Colin Bossen, http://www.uuworld.org/ideas/articles/162467.shtml, accessed 9/22/2010
7. Peter Singer, Practical Ethics, 2nd Ed., (Cambridge University Press, UK, 1993) p. 169.
8. Singer, p. 171.
9. N.T. Wright, Evil and the Justice of God (Downers Grove, IL: InterVarsity, 2006), p. 33.
Worldv i ew An a lysis of S u ff ering and D i sabi l ity: Six P e rspec t ives , by C h uck E d wards
7
10. When I refer to these attributes of God as “assumptions” I am not implying they are based on blind belief. There are philosophically reasonable
grounds for God being real and having these qualities. Also, the Bible describes God in these terms. So through both human reason and God’s Rev-
elation we can be assured these attributes are true of God. I use “assumption” to mean the starting point(s) for building a worldview. In the same
way every building has a foundation, everyone must start with some foundational beliefs (assumptions) on which to construct the rest of his or her
worldview.
11. Making Sense of Your World, 2nd ed., p. 154.
12. Ibid., p. 154.
13. See Alvin J. Schmidt, Under the Influence: How Christianity Transformed Civilization, Dinesh D’Souza, What’s So Great About Christianity, and Rodney Stark,
For the Glory of God: How Monotheism Led to Reformations, Science, Witch-Hunts, and the End of Slavery, and The Victory of Reason: How Christianity Led to
Freedom, Capitalism, and Western Success.
Worldv i ew An a lysis of S u ff ering and D i sabi l ity: Six P e rspec t ives , by C h uck E d wards
8
Chuck Edwards is an author, researcher, and speaker for Summit Ministries, an educational organization
whose primary purpose is to prepare students for the intellectual and spiritual challenges of college and
beyond (www.summit.org). He is the co-author of the biblical worldview Bible studies, Thinking Like A Christian,
and Countering Culture and a contributing writer/editor for Understanding the Times, 2nd Edition.
1
The Problem of Evil and Suffering
By Dr. Larr y Waters
Shall we receive good from God, and shall we not receive evil?
1
J O B 2 : 1 0 .
Abba, Father, all things are possible for you. Remove this cup from me.
Yet not what I will, but what you will.
M A R K 1 4 : 3 6
Jesus answered, “It was not that this man sinned, or his parents,
but that the works of God might be displayed in him.
J O H N 9 : 3
Evil permeates this world; to live is to suffer. Yet God sovereignly and providentially cares for his cre-
ation. The Scriptures affirm both the wretchedness of the human condition and the genuine, loving
care of him who made all things. Perhaps the most puzzling questions facing humankind are: Why
does God allow evil and suffering? How long must his creatures suffer before God sets things right?
Written by an unknown author, possibly the most ancient literary account
2
in our Bible, the Book
of Job is a mixture of divine and human wisdom which addresses a major life-issue: why righteous peo-
ple suffer undeservedly. “Undeserved suffering” does not imply that mankind is not justly under the
curse as a result of the fall of man in Genesis 3; rather it refers to suffering which is not traceable to a
specific act of personal sin or disobedience. This phrase does not infer that Job is sinless, or that he is
without sin during the cycles of debate. Suffering is undeserved in the sense of actually being or ap-
pearing to be unfair or unjust. The Book of Job is also a prime example of Hebrew wisdom literature
that labors with the concept of theodicy: a defense of the integrity of the justice and righteousness of
God in light of the evil, injustice, and undeserved suffering in the world. If this is so, then the emphasis
of the book is not totally on the man Job and his suffering, although he and his suffering are certainly
central, but also on God himself and his relationship to his supreme creation.
Job, nonetheless, is a book dealing with human suffering, even though the suffering of the innocent
does not encompass the whole of the intent of the author. Although the word “innocent” disturbs
some, it is used here in the sense of innocence of any wrongdoing as the base for the suffering Job is
enduring throughout the book, not innocence in the sense of having no sin nor culpability as a fallen
creation. The Book of Job shows that the sufferer can question and doubt, face the hard questions of
life with faith, maintain an unbroken relationship with a loving God, and still come to a satisfactory
resolution for personal and collective injustice and undeserved suffering.
These observations also need to be addressed not only within the context of a suffering righteous
man named Job, but also within the whole believing community who suffer by fraternity with him.
This means that all believers are involved and share in similar sufferings and struggles. As Francis An-
dersen points out in his commentary on Job, “the problem of suffering, human misery, or the larger
sum of evil in all its forms is a problem only for the person who believes in one God who is all-powerful
and all-loving.”
3
This is not to say that a non-believer does not struggle with the same questions,
rather, if the questions do not lead to a relationship with God, then they are normally used as excuses
for rejecting God, or reasons to dismiss divine claims without actually struggling with the biblical is-
sues. The believer, however, struggles with the seeming inconsistencies and incongruities, attempting
to harmonize these difficulties with faith in God’s Word. All of the questions that relate to God, man,
and Satan—justice and injustice, sovereignty and freedom, innocence and guilt, good and evil, blessing
and cursing—are interwoven within the context of undeserved suffering. The Book of Job and its pres-
entation of undeserved suffering serve therefore, as a dependable, useful model for the believer of any
generation in dealing with these questions.
Satanic Motivation and Method as the Cause of Suffering
While Satan is the prime mover behind sin, evil, and suffering, it is also correct to point out that one
cannot divorce the connection between Satan’s desire and God’s allowance of that desire to become
reality. This friction is clearly demonstrated in the terrible troubles inflicted on Job. Satan is the
cause; God’s people feel the effect. However, God is also at work in suffering. In such times, it is well
to remember that this does not imply that God is detached and uninvolved in what happens to his
people. But, we must admit that God plays in a higher league than we do. His ways are far above our
ways. God is greater than we are in intellect, power and knowledge. His ways are usually past our
finding out (Job 28:23; Isaiah 55:9). God does inflict suffering directly and indirectly for many dif-
ferent reasons, such as judgment, discipline, refining, and more. Yet since the fall of mankind, it is
Satan who is the personal prime mover behind all human misery.
The Book of Job opens when Satan, after traveling throughout the earth, comes before the
throne of God. Job 1:8 reveals three areas of Satanic attack: Job’s righteousness, Job’s fear of God,
and Job’s separation from sin. God, then, issues a challenge to Satan. The devil’s ultimate acceptance
of the challenge is based on these elementary issues that begin here and continue throughout the
Book. Can Job’s righteousness, reverence of God and separation from sin be compromised? Why
does Job live righteously, fear God and separate himself from sin? The allegation of Satan is that
Job fears God only because of God’s gift of protection and prosperity. The prosperity issue and its re-
sultant false theology (the prosperity gospel), then, becomes a major focus in understanding suf-
fering throughout the book. The presentation of this false theology and its challenge is found in
the recorded statements of Satan before the throne of God (chapters 1–2), Job’s lament (chapter
3), and the three cycles of dialogue involving Eliphaz, Bildad, and Zophar with Job (chapters 4–31).
The P ro blem o f Evi l and Sufferin g , by Dr. L a rry Waters
2
The monologue of Elihu (chapters 32–37) and the speeches of God (chapters 38–42) present a cor-
rection of this theology.
Satan’s accusation is directed toward the foundation of both God’s justice and Job’s righteousness.
Satan basically asks the question: Is it love or is it greed and self-serving motives that induce a person
to be righteous, fear God and separate from sin? Satan wrongly assumes that since God protects and
blesses Job, this becomes the foundation of his righteousness rather than Job’s personal intimate rela-
tionship based on love, trust, and true fear of God (1:8–10; 2:3). Satan’s assumption becomes more
troublesome when the traditional human wisdom of the three friends is applied to God. Traditional
wisdom reasons that since God is in control of the world, and because he is just, the only way wise peo-
ple can maintain faith in him is to see all blessing as evidence of goodness and righteousness and all
suffering as evidence of unrighteousness and sin. In his book Out of the Whirlwind, L.D. Johnson correctly
calls this “pragmatic religion” and an “insidious heresy.”
4
Belief in God and subsequent service to him
would then be reduced to a prosperity/pragmatic religious formula or system of works.
After the first two chapters of Job, Satan is noticeably absent from the story. His person is no longer
a factor, but his assumptions, accusations, and theology are still active throughout the dialogue. In-
terwoven within the fabric of retribution/recompense theology, expressed by the three friends who in-
teract with Job, is Satan’s purpose to see God’s highest creation curse God. Satan’s objective is to turn
a righteous man against his just God.
It is interesting that God’s charge against Satan, “you have incited me against him to destroy him
for no good reason” (2:3b) is a horrifying, yet enlightening look into the character of Satan. Humanity
means nothing to him. Mankind means no more to the accuser than a vehicle for cursing God. There-
fore, it must be remembered that Job is not suffering from retribution or recompense for what he has
done or not done, as Satan suggests, rather it is because Satan hates the personal relationship Job shares
with God (1:8). Yet, the three “friends” will support Satan’s theology, and rather than comfort Job, will
be a source of great discouragement and despair.
Chapters nine and ten contain examples of the potency of the false doctrine of the friends and its
influence on Job. It is here that Job made the transition from, “The Lord gave, and the Lord has taken
away; blessed be the name of the Lord. Through all this Job did not sin nor did he blame God
(1:21–22), to “For he crushes me with a tempest, and multiplies my wounds without cause” (9:17–20).
5
Job still holds that God is not unapproachable (9:4–12). He is not a monster (9:13–16). But, in his
despair, Job accuses God of being unfair and unjust (vv. 17–20), since he observes that God seems to
often punish good and reward evil (vv. 21–24). God does not fit the preconceived claims of traditional
wisdom, so, as Job becomes despondent over the swiftness of life (vv. 25–26), he expresses that God
will never forgive him (vv. 27–31), and pleads for a mediator (vv. 32–33). Giving up on that possibility,
Job pleads with God to diminish the suffering so that he can meet God in court and plead his own
case (vv. 34–35). Even though Job sees great inconsistencies in the application of the doctrine by the
three friends (24:1–12), he concludes that God does not really care for him, and that he is caught in
some sort of divine entrapment where God’s loving kindness is absent (10:1–13). He laments his birth,
and denies that he has a destiny (10:14–22). Job is not only captured by false counsel, but he is now
ready for a true counselor.
The Intervention of Elihu
Elihu begins his discourses with a lengthy introduction and expression of anger toward both Job and
the three friends (32:1–10). He feels that both parties have been guilty of perverting divine justice and
The P ro blem o f Evi l and Sufferin g , by Dr. L a rry Waters
3
of misrepresenting God generally (32:1–3; 11–22), and he does not appear to join the three friends in
attempting to uphold their theological views. It would seem that Elihu, unlike the three friends, is at-
tempting to correct their faulty image of God and how he relates to mankind.
Elihu speaks to Job without receiving a reply. In chapter 33, Elihu establishes that God is not silent
during the suffering of Job. In chapter 34, he confirms that God is not unjust. Furthermore, God is
neither uncaring (chapter 35), nor is he powerless to act in behalf of his people (chapters 36–37). Chap-
ter 37 introduces God’s response and returns the discussion to the issue of God’s sovereignty and plan
for Job. Elihu, then, brings to Job a totally different perspective: Your suffering is not because of past sin,
but (1) to keep you from continuing to accept a sinful premise for suffering; (2) to draw you closer to
God; (3) to teach you a true wisdom that reveals God as sovereignly in control of the affairs of your
life; and (4) to show you that God does reward the righteous, but only on the basis of his love and grace.
It is as if Elihu is saying,
“You insist on justice and righteousness, but do you really want to be treated justly? Have you
really considered what would happen if God took you at your word?” …one cannot have a rela-
tionship with God as long as one thinks that there is something in oneself which makes one
deserve God’s friendship—or for that matter, a genuine relationship with another human being
on such terms… God never withdraws from justice, no matter what, no matter how deep the
frustration, the bitterness, the darkness, the confusion, the pain.
6
Elihu identifies himself with Job. He is a fellow sufferer, not an observer (33:6). He helps Job realize
that a relationship with God is neither founded nor maintained by his insistence on loyalty, purity, or
righteousness, but is wholly of grace. Elihu does not see the primary basis of Job’s suffering as sin, al-
though he does not minimize Job’s move toward sin in the dialogue. Rather, for Elihu, suffering be-
comes, among other things, a preventative measure that keeps Job from perpetuation of a sinful, false
theology. Suffering, as a teacher, draws Job closer to God and grace, because God’s sovereign control
and freedom of action over the affairs of Job’s life are not held by the restrictions of a theological system
of retribution/recompense, but are acts of grace and mercy. God, therefore, rewards the righteous in
grace, not because of some human action seeking a deserved response. Job was never the same after his
contact with Elihu.
The three counselors were used to intensify the pressure on Job to accept the traditional doctrine
of retribution/recompense and to inflict greater mental suffering on Job. As agents of the philosophy
of Satan the three friends were very effective in increasing the suffering of an already hurting man.
However, even though Job found inconsistencies with the application of the doctrine, he shared the
premise with the friends of a world founded on a quid pro quo, reward and punishment scheme. This
position only added to his frustration. This quid pro quo premise was contested by Elihu and shown to
be without substance. He prepared Job for God’s response to the debates and Job’s ultimate submission
to his Sovereign. Elihu brought perspective, clarity, empathy, compassion, and concrete help, enabling
and preparing Job to have a personal conversation with God.
God Speaks to Job
God speaks out of the storm, or whirlwind. He begins by charging Job with darkening his counsel by
“words without knowledge” (as Elihu had twice said, 34:35; 35:16). God will not address Job’s suffering
directly during this discourse, nor will he answer the attacks on his justice by Job. After attempting to
The P ro blem o f Evi l and Sufferin g , by Dr. L a rry Waters
4
find answers to unanswerable problems, Job and his friends are now forced to return to God and his
essence. God speaks of his sovereignty and omnipotence as demonstrated in the creation of the earth,
the sea, the sun, the underworld, light and darkness, the weather, and the heavenly bodies (38:4-38).
He then asks two questions of Job (4:1-2): “Will the one who contends with the Almighty correct him?”
and “Will the accuser of God answer him?” Of course, Job and the friends are silent (40:3-5).
The storm motif is found in the second speech (40:6). Chapter 40:8-14 presents the power of God
versus the power of man. God addresses, but does not defend or explain his justice. God does say he is
and will always be just and fair in the administration of the lives and destinies of his creatures. God
alone administers and regulates justice, not Job, not the three friends, and certainly not Satan. The
“Ode to the Behemoth” follows, where God’s own wisdom poetry stresses the power that is in God’s
hands in opposition to that of man or Satan (40:14-24). The second poem (41:1-34) is the “Ode to the
Leviathan” representing the same essential principles. What the behemoth and the leviathan represent
is contested in scholarly circles, but the message is that man has no power over these creatures, there-
fore, he can only find strength and power in God. God is sovereign, omnipotent, just, loving and per-
fectly righteous.
God did not call for the repentance of Job on the basis of a promise that all of Job’s pain would be
explained, that he would be vindicated, or that a restoration to prosperity and a return of all his losses
would be assured. What God did was bring Job to a face-to-face meeting with himself. And, what did
Job learn from this encounter?
Perhaps the first thing Job discovered was that the consuming passion for vindication suddenly
presented itself as ludicrous once the courageous rebel stood in God’s presence. By maintaining com-
plete silence on this singular issue that had brought Job to a confrontation with his Maker, God taught
his servant the error in assuming that the universe operated according to a principle of rationality.
7
It was at that point that Job repented of his misconception of God and God’s freedom, not of the
alleged past sin that was the focus of the three friends (42:7-9). Still, God commended Job, because
even in the face of doubt and pressure from false theology, he maintained a personal relationship with
him and brought his doubts directly to him. Therefore, Satan’s hypothesis (1:9–11; 2:3–4) was proven
false. Job finally rejected human approaches, the approaches of tradition, logic, and all wisdom that
was foreign to what he learned about God and himself. All attempts to explain God and his actions ei-
ther logically, historically or traditionally failed. Job was left with God and God alone. Note again that
God did not address the prosperity issue. The prosperity of Job was returned only after everyone in-
volved understood that all blessing comes by his grace alone, not by the activity and piety of Job or
through acceptance of a false retribution/recompense theology.
Evaluation and Conclusions
Throughout the drama it was established that in the devil’s world there is no justice. It is true that jus-
tice is found in God’s plan, but to assume that the fallen world, under the rule of Satan, is equally fair
is untenable. The failure of traditional wisdom to answer Job’s complaint reveals that the world operates
by the plan of a fallen being, and only by relationship with God can fallen humanity find reason, mean-
ing, and purpose within the injustices of the world. It was the false assumption of Satan, Eliphaz, Bil-
dad, Zophar, and yes, to some extent, Job, that earthly punishment of the wicked and earthly reward
of the righteous was a fixed doctrine that limited God’s freedom to presupposed actions based on that
assumption. A simple example of the fallacy of this assumption was illustrated by God’s provision of
rain. Rain was often seen as a reward or, if withheld, a punishment for human action. Here, however,
The P ro blem o f Evi l and Sufferin g , by Dr. L a rry Waters
5
the rain is not at all a vehicle of morality, good, or evil (38:25–27). Rain falls by the grace of God on
both the righteous and wicked as evidence of the grace of God.
Is it not conceivable that God wanted to show that neither man’s superior piety nor his sin affects
how God administers his plan? Did he not then—and does he not now—administer that plan by grace?
Job’s hope had been in the positive results of a false doctrine, while his friends had extolled the negative
aspects of that same doctrine. First Elihu (chapters 32–37) and then God (chapters 38–42) stated that
these misplaced hopes of a fixed recompense for one’s action have no place in the Divine economy. In
fact, in his final reply (40:3–5; 42:2–3, 5–6), Job acknowledges this fact. This is not to say that the Book
of Job teaches that a person has no obligation to moral and righteous living, or to a commitment to
truth and justice in the face of sin and evil.
What it does say, at least in large part, is that the believer has an obligation to examine his motiva-
tion in coming to and serving God—especially during times of great trial and suffering. Furthermore,
the book does not support the mistaken idea that all suffering is for discipline, or that suffering is al-
ways connected with sin and evil. God does discipline, teach, guide, and direct through suffering, but
he cannot be manipulated by a man-made system of blessing and cursing negatively called the theology
of fixed recompense or positively labeled the theology of prosperity. Neither God nor his plan is obli-
gated to man under any conditions. Once this is clarified and accepted, then the believer is free to ex-
amine his or her suffering on the basis of grace factors. All saints share in the “fellowship of his
sufferings” (Phil. 3:10).
The answers to the questions, “Why do the righteous suffer?” and, “Why is evil allowed to exist?”
cannot be satisfied by one explanation. The many reasons given in Scripture for personal suffering
must all be examined in light of God’s grace. Suffering taught Job that he was righteous because he
had a grace relationship with the Righteous One, not because he had earned it. Job knew his God and
responded with humility, love, and godly fear of God’s sovereignty (42:1-2), realized God’s inscrutability
(42:3), reflected on God’s superiority (42:4), refocused on God’s intimacy (Job 42:5), and repented of
serving God from wrong motivation (42:6).
So, why did God put Job through all of this? Primarily it was to reveal himself to Job. Through this
interrogation, God has taught Job that he alone created everything—the heavens and the Earth, and
all that is in them—and he alone controls all that he created. He alone has the right to do with his own
as he pleases. He is under no obligation to explain his actions to his creation. He alone is sovereign and
unaccountable to anyone.
8
It would, however, limit the impact of the Book of Job if the scope of this message of grace and the
purpose of Job’s suffering was exclusively restricted to an expression of God’s sovereignty. Can a com-
munity of suffering saints find other answers and applications here? Yes! Job’s struggle and ultimate
triumph gives those who suffer a great deal more to apply. For example, as demonstrated in the preceding
pages, the Book of Job teaches the reader that (1) God is not held to a preconceived, fixed, limited concept
of retribution/recompense/prosperity theology; (2) sin is not always the basis for suffering; (3) accepting
false tenets about suffering can cause one to blame and challenge God; (4) life under a retributive/rec-
ompense/prosperity theology is a legalistic system that not only distorts the application of the true pre-
cepts of God’s Law, but also confines God and his grace to human standards of interpretation.
Furthermore, (5) Satan is behind this false system and delights in using it to afflict the righteous;
(6) the devil’s world is unfair and unjust and that, even though humanity may misunderstand the
“waysof God and the “whys” of life, a relationship with God is the only place a person will know
justice; (7) life is more than a series of absurdities and unexplainable pains that one must simply endure,
it is a life linked with the unseen purpose and destiny of God; (8) mankind does not always know all
The P ro blem o f Evi l and Sufferin g , by Dr. L a rry Waters
6
the facts, nor are they at all necessary for living a life of faith; (9) God’s wisdom is above human wisdom;
(10) God’s protection and blessing is based solely on grace, not on a traditional, legalistic formula;
(11) suffering can be faced with faith and trust in a loving gracious God even when there is no logical
or rational reason to do so; (12) God does allow suffering, pain and even death, if it best serves his pur-
pose and destiny for his creation; (13) prosperity/pragmatic religion has no place in God’s grace plan;
(14) suffering can be preventative and protective rather than simply merited; (15) the greatest of saints
struggle with theodicy, and will continue to do so; and finally, (16) because God’s people are intimately
related to him, suffering is often specifically designed to glorify God in the unseen war with Satan.
Returning to the divine courtroom in chapter one, Satan, who was once very verbal, is silenced in
chapter 42, because Job’s response proves that God’s confidence in him was not unfounded. Although
God needs no vindication, the Book of Job shows that undeserved suffering, accepted and borne by a
child of God does, in a sense, vindicate God’s grace plan for his saints.
“True wisdom, like God, defies human reason.”
9
Therefore, true wisdom defies the wrong concepts
of traditional wisdom, and, when properly applied by God’s people during undeserved suffering, it be-
comes a living demonstration of God’s grace and man’s faith: “I have heard of Thee by the hearing of
the ear; But now my eye sees Thee” (42:5).
NOTES
1. All Scripture quotations, unless noted otherwise, are from The Holy Bible, English Standard Version Copyright © 2001 by Crossway Bibles, a division
of Good News Publishers.
2. There is ample evidence that the setting of Job is patriarchal as an historical event, but the date of actual writing may have been much later. See Roy
B. Zuck “Job,” In The Bible Knowledge Commentary, Old Testament, edited by John F. Walvoord and Roy B. Zuck (Wheaton: Victor Books, 1985), 717, for
nine reasons the Book of Job points to a patriarchal period. So also, Gleason L. Archer, The Book of Job: God’s Answer to the Problem of Undeserved Suffering,
(Grand Rapids: Baker Book House, 1982), 16.
3. Francis I. Andersen, Job: An Introduction and Commentary, Tyndale Old Testament Commentaries (Downers Grove, IL: InterVarsity Press, 1976), 64-
65 (my emphasis).
4. L. D. Johnson, Out of the Whirlwind: The Major Message of the Book of Job (Nashville: Broadman Press, 1971), 18.
5. See also 7:17–21; 9:22–24; 10:3; 12:12–25; 13:21–22; 14:18–22; 16:11, 13; 19:6, 21; 21:23; 27:2; 30:20; and 31:35.
6. Walter L. Michel, “Job’s Real Friend: Elihu,” Criterion, 21 (Spring 1982): 31.
7. James L. Crenshaw, Old Testament Wisdom: An Introduction (London: SCM Press Ltd., 1982), 124-125.
8. Steven J. Lawson, When All Hell Breaks Loose. (Colorado Springs, CO: NavPress, 1994), 245-48.
9. Crenshaw, 123.
The P ro blem o f Evi l and Sufferin g , by Dr. L a rry Waters
7
Dr. Larry Waters is presently Associate Professor of Bible Exposition at Dallas Seminary and also teaches
for their World Missions and Intercultural Studies department. He served as a missionary in the Philippines
from 1973 to 1999. His worldwide ministry continues, primarily in the Philippines. He is the author of
Bible and Missions curriculum for the Internet Biblical Seminary connected with BEE World, and a New
Testament Survey for a large missionary organization. Larry also serves as a Member of the Bibliotheca
Sacra Editorial Advisory Committee.
1
According to His Compassion
By Dr. John MacArthur
The God of Scripture is the one true constant in all the universe: “I the LORD do not change” (Malachi
3:6).
1
His temperament and his thoughts are as immutable as his eternal character. Specifically, he does
not alter his Word, revise his will, revoke his promises, or change his mind: “God is not man, that he
should lie, or a son of man, that he should change his mind. Has he said, and will he not do it? Or has
he spoken, and will he not fulfill it?” (Numbers 23:19).
The necessary implication of God’s immutability is that he is not subject to shifting moods, flashes
of temper, fluctuating dispositions, or seasons of despondency. In theological terms, God is impassible.
That means he cannot be moved by involuntary emotions, suffering, pain, or injury. In the words of
the Westminster Confession of Faith (2.1), God is “infinite in being and perfection, a most pure spirit,
invisible, without body, parts, or passions.
Steadfast, Not Stony
Divine impassibility is not an easy concept to grasp. Robert Ingersoll, the famous 19th-century skeptic,
wrote, “Think of that!—without body, parts, or passions. I defy any man in the world to write a better
description of nothing. You cannot conceive of a finer word-painting of a vacuum than ‘without body,
parts, or passions.’”
2
Nowadays even some Christian theologians shun the idea of divine impassibility
because they think it makes God seem cold and aloof.
But that’s a false notion. To say that God is not vulnerable, that he himself cannot be hurt, and
that he isn’t given to moodiness is not to say he is utterly unfeeling or devoid of affections. On the
contrary, Scripture says “God is love” (1 John 4:8). His compassion, his lovingkindness, and his tender
mercies endure forever. The divine affections are more real, more sure, and more trustworthy than
any human emotions could ever be. In fact, the constancy and infinity of God’s tender affections epit-
omize why divine impassibility is such a wonderful truth. The steadfast love of the LORD never
ceases; his mercies never come to an end; they are new every morning; great is [his] faithfulness”
(Lamentations 3:22-23).
The main problem in our thinking about these things is that we tend to reduce God’s attributes to
human terms, and we shouldn’t. We’re not to imagine that God is like us (Psalm 50:21). His affections,
unlike human emotions, are not involuntary reflexes, spasms of temper, paroxysms of good and bad
humor, or conflicted states of mind. He is as deliberate and as faithful in his loving kindness as he is
perfect and incorruptible in his holiness.
The unchangeableness of God’s affections is—or should be—a steady comfort to true believers. His
love for us is infinite and unshakable. “As high as the heavens are above the earth, so great is his stead-
fast love toward those who fear him(Psalm 103:11). And his constant mercy is a secure and dependable
anchor—both when we sin and when we suffer unjustly. “As a father shows compassion to his children,
so the LORD shows compassion to those who fear him” (v. 13). Far from portraying God as unsympa-
thetic and untouched by our suffering, Scripture stresses his deep and devoted compassion virtually
every time it mentions the unchangeableness of God.
Notice that I have quoted almost entirely from Old Testament texts to establish the connection be-
tween God’s compassion and his immutability. The commonly-held notion that the Hebrew Scriptures
portray God as a stern judge whose verdicts are always unrelentingly severe is an unwarranted caricature.
The tender mercies of God are a persistent theme throughout the Old Testament. From beginning to
end the entire Bible presents God as “gracious and merciful, slow to anger and abounding in steadfast
love . . . good to all, and his mercy is over all that he has made” (Psalm 145:8-9). In fact, God’s loving
kindness is often given particular stress in the very places where his fiery wrath against sin is mentioned.
(See, for example, Nehemiah 9:17; Psalm 77:7-10; Isaiah 54:8; 60:10; Habakkuk 3:2). Even the prophets’
most severe threats and harshest words of condemnation are tempered with reminders of God’s inex-
haustible kindness and sympathetic mercy (Jeremiah 33:5-11; Hosea 14:4-9).
Of course, there’s a careful balance that must be maintained here. It is neither wise nor helpful to
pit the divine attributes against one another as if they were contradictory (they are not)—or to act as if
God’s merciful attributes automatically overruled the gravity of divine justice (they do not). “Note then
the kindness and the severity of God” (Romans 11:22). All God’s attributes are equally—and infinitely—
exalted in Scripture.
It is a serious mistake, for example, to pit God’s power against his tenderness or imagine that his
righteousness conflicts with his mercy.
3
It is a particularly egregious error to think God’s loving kind-
ness toward sinners simply cancels out his wrath against sin. Don’t dream for a moment that divine
mercy eliminates the threat of God’s judgment. God would be unjust if he did not punish evildoers.
4
The converse is true as well, and this is the salient point: God’s power cannot be correctly under-
stood apart from his benevolence. In fact, God’s power is best seen in his tenderness toward the helpless,
because his power is made perfect in weakness (2 Corinthians 12:9).
The True Meaning of the Gospel
Of course, God’s fullest self-revelation came in the Person of Jesus Christ—God in human flesh. The
incarnation itself was an expression of sympathy and identification with our weakness (Hebrews 4:15).
In Christ we can see countless expressions of divine compassion translated into human idioms that
we easily understand and identify with—including sadness, sympathy, and tears of sorrow. Though sin-
less himself, Jesus suffered all the consequences of sin in infinite measure—and in so suffering, he iden-
tifies with the misery of all who feel the pains of human anguish. This was the whole reason God the
Son became a man to begin with: “He had to be made like His brethren in all things, so that he might
become a merciful and faithful high priest in the service of God, to make propitiation for the sins of
the people. For because he himself has suffered when tempted, he is able to help those who are being
tempted” (Hebrews 2:17-18). “For we do not have a high priest who is unable to sympathize with our
weaknesses, but one who in every respect has been tempted as we are, yet without sin” (4:15).
Acco rdi n g to H is C o mpass ion, b y Dr. John M acAr t hur
2
Those statements show that divine mercy extends far beyond empathy merely for our physical suf-
ferings. Of course, the loving kindness of God includes a heartfelt concern for our temporal, earthly,
physical welfare—but it is infinitely more than that. Both the compassion of God and the earthly work
of Christ must be seen ultimately as redemptive. In other words, our Lord’s most tender mercies are
concerned primarily with the salvation of our souls, not merely the suffering of our bodies.
Nevertheless, because illness, disability, pain, and all other forms of physical suffering are effects
of the fall and fruits of the curse of sin, God’s sympathy for the human plight includes a special grace
toward those who suffer physically. We see vivid evidence of that in the healing ministry of Jesus. Phys-
ical healing was not the central point of his earthly mission. He came, of course, “to seek and to save
the lost” (Luke 19:10)—to provide redemption and eternal life for sinners. His one message was the
gospel, beginning with a call to repentance (Matthew 4:17) and culminating in the promise of eternal
rest for weary souls (11:29). But along the way, he encountered multitudes of sick, lame, blind, and
other physically-suffering people. He healed every disease and every affliction among the people”
(Matthew 4:23; cf. 15:30-31), including congenital disabilities (John 9; Mark 7:32-35); chronic, medically
hopeless cases (Luke 8:43-47); and cases of severe demon possession (Mark 5:1-16).
Those physical healings were vivid displays of both Jesus’ power and his compassion. They were
proof of his deity and living demonstrations of his divine authority. They established his unlimited
ability to liberate anyone and everyone from the bondage, the penalty, and the consequences of sin. As
such, the healing ministry of Jesus was illustrative of the gospel message, a true expression of divine
compassion, and a definitive verification of his Messianic credentials. But physical healing was neither
the central point of his message nor the main purpose of his coming. Again, he came to make propiti-
ation for sin and to purchase redemption for sinners. And he did that by suffering in their place—dying
for their sins.
The gospel, then, proclaims the way to forgiveness, redemption, a right standing with God, and the
gift of eternal life. The gospel is not a guarantee that earthly suffering will be banished from our expe-
rience. It does not promise immediate or automatic healing from every physical affliction. In fact, suf-
fering itself can be a grace by which we are perfected—molded into the perfect likeness of him who
suffered in our place (1 Peter 1:16-17). “It has been granted to you that for the sake of Christ you should
not only believe in him but also suffer for his sake” (Philippians 1:29). And “the sufferings of this pres-
ent time are not worth comparing with the glory that is to be revealed to us” (Romans 8:18).
That is why no televangelist or self-proclaimed faith healer today can really heal the way Christ and
his disciples did. It is not that Christ has changed or that the power of God has somehow diminished.
The problem is that the so-called faith-healers themselves have misconstrued the gospel.
The true meaning of the gospel is bound up in an accurate understanding of that famous prophecy
in Isaiah 61:1-3, which Jesus read aloud in the synagogue in Luke 4:18: “The Spirit of the Lord is upon
me, because he has anointed me to proclaim good news to the poor. He has sent me to proclaim liberty
to the captives and recovering of sight to the blind, to set at liberty those who are oppressed.“The
poor” whom he promised to bless are “the poor in spirit, for theirs is the kingdom of heaven” (Matthew
5:3). The “captives” to whom he proclaims liberty are “those who through fear of death were subject to
lifelong slavery” (Hebrews 2:15)—meaning those who are in bondage to sin (Romans 6:17). The “blind”
who recover their sight are those who “turn from darkness to light and from the power of Satan to
God, that they may receive forgiveness of sins” (Acts 26:18). And the “oppressed” who are set at liberty
are those who were formerly under the oppression of sin and Satan (Acts 10:38).
In other words, what the gospel announces is something that the physical healings merely symbol-
ized; something more vital, more lasting, more momentous, and more real than temporary relief from
Acco rdi n g to H is C o mpass ion, b y Dr. John M acAr t hur
3
the pains of earthly affliction. The gospel gives us the only true, abiding remedy for sin and all its guilt
and repercussions.
Furthermore, because we gain so many eternal benefits from our earthly sufferings, the mercy that
sustains us through our suffering is actually a greater mercy than if God simply erased every trace of
hardship or difficulty from our lives. To put it plainly, instant healing would not be spiritually as valu-
able to us as the all-sufficient grace that cares for us in the midst of our suffering (2 Corinthians 12:9-
10). “So we do not lose heart. Though our outer self is wasting away, our inner self is being renewed
day by day. For this light momentary affliction is preparing for us an eternal weight of glory beyond
all comparison, as we look not to the things that are seen but to the things that are unseen. For the
things that are seen are transient, but the things that are unseen are eternal” (4:16-18).
Still, because we know God never changes, we can say with absolute certainty that his heart is full
of compassion for those who suffer. Our lives and ministries should reflect that compassion as well—
especially toward those who are burdened with relentless physical agony in this life. We cannot proclaim
the love of God faithfully if we neglect that duty.
A Lesson from David and Mephibosheth
The Old Testament furnishes a wonderful, practical, real-life illustration of Christlike compassion in
the account of David and Mephibosheth. Mephibosheth was a grandson of Saul who was permanently
disabled. From a human perspective, he seemed the least likely person on Earth for David to befriend
and show kindness to. He was the sole surviving male heir of Saul, the one person left on Earth who
might have tried to claim that the throne belonged to him by birthright. He was living in exile when
David found him—forgotten, fearful, and essentially an outcast. He did not seek David’s favor, nor did
David have any legal obligation to him. Yet David showed him extreme kindness in a way that epito-
mizes Christ’s love and perfectly reflects what Christian ministry to hurting people should look like.
Here’s how it came to pass:
David and Saul could hardly have been more different. Saul, towering, stately, physically robust,
had been the people’s choice to be Israel’s king, but he had failed miserably and sinned egregiously, so
God rejected him. God’s choice to be his successor (and to establish the kingly line that would eventu-
ally produce Israel’s Messiah) was David, small in stature, still in his youth, shepherding his father’s
flocks when Samuel anointed him as king. Of course, Saul knew full well that God had rejected him
and blessed David. Saul’s murderous contempt for David was well known. But David did not respond
in kind.
Although David demonstrated repeatedly that he had no intention of wresting the throne from
Saul by stealth or by force, Saul was paranoid about David—and the paranoia eventually drove him
mad. He pursued David relentlessly with the aim of killing him. Saul thus squandered his power and
his kingly authority, opposing God. This continued for years, until Saul’s armies were defeated, Saul
himself was mortally wounded by the Philistines, and he finally fell on his own sword. All but one of
Saul’s sons died at the hands of the Philistines in that same battle (1 Chronicles 10:1-6). “Thus Saul
died, and his three sons, and his armor-bearer, and all his men, on the same day together” (1 Samuel
31:6).
One of Saul’s sons who died that day was Jonathan. Even though Saul had made himself David’s
sworn enemy, Jonathan had become David’s closest earthly friend. In the wake of that disastrous battle
with the Philistines, David mourned greatly not only for Jonathan but also for Saul (2 Samuel 1:17).
That David would have any compassion at all toward Saul or his family was extraordinary. Saul
Acco rdi n g to H is C o mpass ion, b y Dr. John M acAr t hur
4
made David’s life enormously difficult for years, forcing him into nomadic exile, causing David to live
in caves and on the run. Moreover, even when Saul died, the transfer of power from Saul to David
wasn’t a smooth one. Saul’s one surviving son, Ish-bosheth, was wrongfully anointed by Abner as king
in his father’s place (2 Samuel 2:8-9). The confusion caused by that foolish act briefly split the kingdom
(v. 10), foreshadowing the permanent breach that would occur in the time of Jeroboam. But Ish-
bosheth’s challenge to David’s throne ended just two years later, when Ish-bosheth was assassinated
by his own captains (4:5-7). David was displeased by the treachery of the assassins and had them exe-
cuted (vv. 9-12).
David’s response to Saul’s death and his reaction to Ish-bosheth’s murder starkly contrast with the
conventions of the time. It was common for middle-eastern kings in circumstances like David’s to kill
off all surviving family members from the previous dynasty in order to prevent any threat of insurrec-
tion and eliminate all other possible claimants to the throne. It is significant that David’s behavior to-
ward the house of Saul was the exact opposite. He had made a covenant with Jonathan years before,
promising that he would extend his loving kindness to Jonathan’s offspring and preserve them as
Jonathan had done for David (1 Samuel 20:15-16). That is precisely what he did.
And that is why in 2 Samuel 9, we read an extended account of David’s kindness to the one remain-
ing descendant of Jonathan, a disabled son named Mephibosheth. That part of the story begins when
David, conscious of the covenant he had made with his friend, asked, “Is there still anyone left of the
house of Saul, that I may show him kindness for Jonathan’s sake?” (v. 1).
It so happened that “there was a servant of the house of Saul whose name was Ziba, and they called
him to David. And the king said to him, ‘Are you Ziba?’ And he said, ‘I am your servant.’ And the king
said, ‘Is there not still someone of the house of Saul, that I may show the kindness of God to him?’
Ziba said to the king, ‘There is still a son of Jonathan; he is crippled in his feet’” (vv. 2-3).
The story of how Mephibosheth became disabled is told five chapters earlier, in 2 Samuel 4:4.
There we read that “Jonathan, the son of Saul, had a son who was crippled in his feet. He was five
years old when the news about Saul and Jonathan came from Jezreel [i.e., the news of their deaths],
and his nurse took him up and fled, and as she fled in her haste, he fell and became lame. And his
name was Mephibosheth.In the confusion, Mephibosheth’s nurse, who was trying to usher him
to safety, dropped him (or he fell) and somehow both his feet were seriously injured. Perhaps his
ankles were broken or the feet themselves crushed. Either way, the injury resulted in a permanent
disability to Mephibosheth, who for the rest of his life would be unable to walk normally or earn a
living for himself.
It was not until David had finally defeated the Philistines and ascended to the throne without rivals
that he inquired about Saul’s offspring. By then, evidently, some years had elapsed, and Mephibosheth
was living “in the house of Machir the son of Ammiel, at Lo-debar” (2 Samuel 9:4). Enough time had
gone by that now Mephibosheth was old enough to have a young son of his own (v. 12). Lo-debar was
east of the Jordan, and it is very likely that Mephibosheth had gone into hiding there precisely because
he (or whoever was his guardian in childhood) had been afraid David would come after him.
Instead, David requested that Mephibosheth be brought to him. “And Mephibosheth the son of
Jonathan, son of Saul, came to David and fell on his face and paid homage. And David said, ‘Mephi-
bosheth!’ And he answered, ‘Behold, I am your servant’” (v. 6).
David immediately made it clear to Mephibosheth that his intentions were entirely merciful, borne
out of his love for the boy’s father. “David said to him, ‘Do not fear, for I will show you kindness for
the sake of your father Jonathan, and I will restore to you all the land of Saul your father, and you shall
eat at my table always’” (v. 7). This was amazingly generous. David not only made provision for Mephi-
Acco rdi n g to H is C o mpass ion, b y Dr. John M acAr t hur
5
bosheth’s physical and material needs (vv. 9-11), but in effect he adopted him. “Mephibosheth ate at
David’s table, like one of the king’s sons” (v. 11).
Mephibosheth’s response reflects the shame he bore and the unusual humility that is often char-
acteristic of people who have lived as social outcasts for many years: “What is your servant, that you
should show regard for a dead dog such as I?” (v. 8). “Dead dog” was, of course, a term of extreme con-
tempt. To call someone a “dog” in that culture was bad enough. To call someone a “dead dog” implied
double uncleanness. This was just about the worst imaginable term of derision, and Mephibosheth ap-
plied it to himself. He had no sense of significance whatsoever—most likely because of his crippling
injury and because he had been an outcast, in isolation for years. He was unaccustomed to favorable
treatment from anyone, much less the powerful and popular king whom Mephibosheth’s own grand-
father had relentlessly persecuted.
By right, David could have taken over everything that belonged to Saul. He was the new king. In-
stead, he gave Saul’s possessions back to Mephibosheth and put Saul’s one-time servant Ziba, his sons,
and his servants in Mephibosheth’s employ: “You and your sons and your servants shall till the land
for him and shall bring in the produce, that your master’s grandson may have bread to eat” (v. 10).
That verse also records that Ziba had 15 sons and 20 servants, so 35 men immediately went to work to
cultivate Saul’s land! It established a lucrative business for Mephibosheth.
Scripture is careful to record that it came to pass exactly as David decreed: “Ziba said to the king,
‘According to all that my lord the king commands his servant, so will your servant do.’ So Mephi-
bosheth ate at David’s table, like one of the king’s sons. And Mephibosheth had a young son, whose
name was Mica. And all who lived in Ziba’s house became Mephibosheth’s servants. So Mephibosheth
lived in Jerusalem, for he ate always at the king’s table” (vv. 11-13).
Then we have an amazing postscript at the end of the chapter, reiterating what verse 3 already told
us: “Now he was lame in both his feet” (v. 13). The reiteration of that fact conveys a tone of amazement.
Indeed, from a human perspective it is remarkable that the grandson of David’s enemy, already living
the life of a fugitive and an outcast, utterly lacking in any rudimentary form of self-respect—someone
who had nothing whatsoever to offer David in the way of service or honor—would not only be accepted
by the King himself, but also elevated to a position of highest privilege in the royal household, alongside
David’s own sons.
David’s mercy, love, and kindness toward Mephibosheth are exemplary. It epitomizes the grace
Jesus showed to outcasts of society during his earthly ministry, and it is an example every Christian
should follow in our ministry to our culture’s outcasts—including disabled, disadvantaged, and oth-
erwise disempowered people who are our neighbors.
Notice carefully that David’s mercy to Mephibosheth was not a token expression. He did not merely
write an encouraging letter or make a one-time gift of alms. He gave his heart to Mephibosheth. He
shared the palace with him; he gave up his own resources for him; he gave his life to him. He brought
him into the palace, set him up in business, and made him one of his own.
Why did he do this? It was not only because of his love for Jonathan. The language of verse 3 is im-
portant: “Is there not still someone of the house of Saul, that I may show the kindness of God to him?”
He consciously wanted to exemplify God’s kindness.
That is precisely what he did. David’s actions are the very picture of God’s grace to sinners. Just as
David showed kindness to Mephibosheth for the sake of Jonathan, God is generous to believers for
Christ’s sake. In other words, all the benevolence and tender mercies God bestows on us are given to
us not because we deserve his favor. We don’t deserve it. But because we belong to Christ by faith, we are
the recipients of divine blessings that rightfully belong to him. That’s what grace is all about.
Acco rdi n g to H is C o mpass ion, b y Dr. John M acAr t hur
6
An Explicit Command from Christ
We can’t leave this chapter without pointing out that showing mercy to the weak and infirm is the
duty of every believer. “Freely you have received, freely give” (Matthew 10:8, NKJV).
In Luke 14:12-14 Jesus gave us a direct instruction that stands as a mandate not only for the church
but for each individual believer. He said, “When you give a dinner or a supper, do not ask your friends,
your brothers, your relatives, nor rich neighbors, lest they also invite you back, and you be repaid. But
when you give a feast, invite the poor, the maimed, the lame, the blind. And you will be blessed, because
they cannot repay you; for you shall be repaid at the resurrection of the just.” Could that possibly be
more clear? I don’t see how.
Jesus is saying that if you are hosting a celebration or a feast, you shouldn’t invite only those who
can pay you back by giving you a reciprocal invitation. Invite people who have no capacity to pay you
back in any way. If you want to manifest the love and compassion of God, that is the way to do it. True
Christlike generosity means showing kindness that can never be repaid. When you are lavish in giving
to someone you know will be bountiful in return, that is not the generosity of God; that is the typical,
shallow altruism of human self-interest. Only when you are generous to those who are powerless to re-
ciprocate are you truly showing the generosity of God. And if you really want to enter into the joy of
God, there is no better way.
That is a solemn command from Christ. It is a practical mandate that should characterize our re-
lationships with others on a personal level, in the context of our families, and especially in our fellow-
ship with other believers. Let that be the spirit that permeates our dealings with our neighbors.
Now put that command together with everything we have seen about the steadfast love of God; the
redemptive purpose of God in showing compassion; the profuse generosity David displayed to Mephi-
bosheth; and (above all) the living example of Christ, who literally took our weakness and infirmities as
his own in order to identify with us. If all those things illustrate the kind of compassion we’re supposed
to show to the weak and disabled in our communities, it seems shockingly, uncomfortably obvious that
we as believers in Christ—both collectively and individually—need to do more than we are currently doing
to reach out and minister to people in our culture who are disabled, weak, blind, poor, and living in dis-
tress. They are often overlooked by the rest of society. They must not be neglected by the church.
The church was not established as a country club or a fraternity house for fit, cool and stylish peo-
ple. It is a fellowship of those who recognize their own fallenness and utter helplessness, who have laid
hold of Christ for salvation, and whose main business on earth is showing other needy sinners the way
of salvation. If we neglect to reach out especially to those who are blind, infirm, or otherwise disabled,
then we are simply not being faithful heralds of the tender mercy of Christ.
Acco rdi n g to H is C o mpass ion, b y Dr. John M acAr t hur
7
NOTES
1. All Scripture quotations, unless noted otherwise, are from The Holy Bible, English Standard Version Copyright © 2001 by Crossway Bibles, a division
of Good News Publishers.
2. The Works of Robert G. Ingersoll, 12 vols. (New York: Dresden, 1900) 2:361-62.
3. Jewish scholar Abraham Heschel, for example, implied that the Old Testament stresses God’s pity over His authority. “The reality of the divine is sensed
as pathos rather than as power,” Heschel wrote, “and the most exalted idea applied to God is not infinite wisdom, infinite power, but infinite concern.”
Abraham J. Heschel, The Prophets (San Francisco: Harper & Row, 1962), 311. Unfortunately, the Rabbi’s language (“pathos rather than . . . power”) badly
skews the point. The Bible doesn’t order the divine attributes in any kind of hierarchy (“the most exalted idea applied to God… ”). Scripture ascribes
power and pathos to YHWH in equal and infinite measure. For obvious reasons, our finite minds cannot fully apprehend the notion of infinitude,
much less grasp how such disparate attributes can exist together in inexhaustible measure. Still, the right approach is to receive and fully affirm by
faith what God has revealed about Himself, rather than trying to whittle grand biblical concepts down to easily-manageable ideas.
4. That, of course, is the very dilemma the gospel solves, revealing how God can justify sinners and still remain just (Romans 3:26). Christ bore the full
weight of divine wrath against sin and thus paid the price of sin on behalf of those who believe in Him (2 Corinthians 5:21). “Steadfast love and
faithfulness meet; righteousness and peace kiss each other” (Psalm 85:10).
Acco rdi n g to H is C o mpass ion, b y Dr. John M acAr t hur
8
Dr. John MacArthur is pastor-teacher of Grace Community Church in Sun Valley, California, as well as a
best-selling author, conference speaker, president of The Master’s College and Seminary, and president and
featured teacher with the Grace to You radio and television ministries. Since completing his first best-
selling book The Gospel According to Jesus in 1988, John has written many books such as: The MacArthur Study
Bible, Our Sufficiency in Christ, The Gospel According to the Apostles, The MacArthur New Testament Commentary
series and the bestseller Twelve Ordinary Men. John and his wife, Patricia, live in Southern California and
have four grown children
1
Hope is the Best of Things
By Joni Eareckson Tada
Sometimes hope is hard to come by. Like the other week when I visited my friend Gracie Sutherlin in
the hospital. Gracie has been volunteering at our Joni and Friends Family Retreats for many years, and
despite her age of 61, she’s always been full of energy and active with the children with special needs at
our camps. All that changed a month ago when she broke her neck in a tragic accident. Gracie has
always been happy and buoyant, but when I wheeled into the intensive care unit to visit, I did not even
recognize the woman lying in the hospital bed. With tubes running in and out, a ventilator shoved
down her throat, and Crutchfield tongs screwed into her skull, Gracie looked completely helpless. She
couldn’t even breathe on her own. All she could do was open and close her eyes.
I sat by Gracie’s hospital bed and read scriptures to her. I sang, “Be still my soul, the Lord is on thy
side.” I leaned in close and whispered, “Oh, Gracie, Gracie, remember. Hope is a good thing, maybe the
best of things. And no good thing ever dies.” She blinked at that point, and I knew she recognized the
phrase. It’s a line from the movie “The Shawshank Redemption.”
“The Shawshank Redemption” is a story about two men—Andy Dufresne, who is unjustly convicted
and sentenced to life imprisonment, and his friend Red. After many hard years in prison, Andy opens
up a path of promise for himself and for Red. One day in the prison yard, he instructs Red that if he is
ever freed from Shawshank, he should go to a certain town and find a certain tree in a certain cornfield,
to push aside the rocks to uncover a little tin can, and to use the money in the can to make it across
the border to a little Mexican fishing village. Not long after this conversation, Andy escapes from prison
and Red is paroled. Red, dutiful friend that he is, finds the cornfield, the tree, the rocks, the tin can,
the money—and a letter, in which Andy has written, “Red, never forget. Hope is a good thing, maybe
the best of things. And no good thing ever dies.” At that moment, Red realizes he has two choices: “Get
busy livin’ or get busy dyin’.”
Sadly, right now, it appears as though my friend Gracie is busy dying. She is stuck at UCLA waiting
for surgery on her neck, and an infection in her body is running rampant. The doctors are trying to get
her white blood cell count down, but it doesn’t look promising. Now, when visitors come in to see her,
she shuts her eyes against them. Oh, Gracie, hold on to hope. It’s a good thing, maybe the best of things.
Hope Is Hard to Come By
But hope is hard to come by. I should know. I remember the time when I was once busy dying. It wasn’t
long after I had broken my neck in a diving accident that I spent one particularly hopeless week in the
hospital. I had endured long surgeries to shave down the bony prominences on my back, and it was a
long recovery. I had lost a great deal of weight. And for almost three weeks I was forced to lie facedown
on a Stryker frame—a long, flat canvas sandwich where they put you faceup for three hours and then
strap another piece of canvas on you and flip you facedown to lie there for another three hours.
Trapped facedown, staring at the floor hour after hour, my thoughts grew dark and hopeless. All I
could think was, “Great, God. Way to go. I’m a brand-new Christian. This is the way you treat your new
Christians? I’m young in the faith. I prayed for a closer walk with you. If this is your idea of an answer
to prayer, I am never going to trust you with another prayer again. I can’t believe that I have to lie face-
down and do nothing but count the tiles on the floor on this stupid torture rack. I hate my existence.”
I asked the hospital staff to turn out the lights, close the blinds, close the door, and if anybody came
in—visitor, parent, nurse—I just grunted. I justified it all. I rationalized that God shouldn’t mind that
I would be bitter—after all, I was paralyzed. And I didn’t care how much joy was set before me. This was
one cross I was not going to bear without a battle.
My thoughts got darker because my bitterness was no longer a tiny trickle. It had become a raging
torrent, and in the middle of the night I would imagine God holding my sin up before my face and
saying lovingly but firmly, “Joni, what are you going to do about this? What are you going to do about
this attitude? It is wrong. This sin is wrong. Get rid of it.” But I, hurting and stubborn, preferred my sin.
I preferred my peevish, snide, small-minded, mean-spirited comments, grunting at people when they
walked in or out, and letting food drool out of my mouth. Those were sins that I had made my own.
You know what it’s like when you make sin your own. You housebreak it. You domesticate it. You
shield it from the Spirit’s scrutiny. I did not want to let go of the sick, strange comfort of my own misery.
So God gave me some help. About one week into that three-week stint of lying facedown, staring
at the floor, waiting for my back to heal, I got hit with a bad case of the flu. And suddenly, not being
able to move was peanuts compared to not being able to breathe. I was claustrophobic. I was suffering.
I was gasping for breath. I could not move. All was hopeless. All was gone. I was falling backward, head
over heels, down for the count, decimated.
And I broke. I thought, I can’t do this. I can’t live this way. I would rather die than face this. Little did I
realize that I was echoing the sentiments of the apostle Paul, who in 2 Corinthians 1:8 talks of being
“so utterly burdened beyond [his] strength that [he] despaired of life itself.” Indeed, he even had in his
heart the sentence of death. O God, I don’t have the strength to face this. I would rather die. Help me. That was
my prayer. That was my anguish.
God Can Raise Us Out of Hopelessness
That week a friend came to see me in the hospital while I was still facedown counting the tiles. She put
a Bible on a little stool in front of me, stuck my mouth stick in my mouth so I could flip its pages, and
told me to turn to Psalm 18. There I read: “In my distress I called upon the Lord; to my God I cried for
help. From his temple he heard my voice, and my cry to him reached his ears. Then the earth reeled
and rocked… Smoke went up from his nostrils… He bowed the heavens and came down. …He sent from
on high, he took me… He rescued me”—and here’s the best part—“because he delighted in me” (See
Psalm 18:6-19).
1
I had prayed for God to help me. Little did I realize that God was parting heaven and earth, striking
bolts of lightning, and thundering the foundations of the planet to reach down and rescue me because
he delighted in me. He showed me in 2 Corinthians 1:9 that all this had happened so that I would “rely
not on [myself] but on God who raises the dead.” And that’s all God was looking for. He wanted me to
Hope Is t h e Bes t of T h ings , by J o ni Ea rec k son Tad a
2
reckon myself dead—dead to sin—because if God can raise the dead, you’d better believe he could raise
me out of my hopelessness. He would take it from there. And he has been doing the same for nearly
four decades.
Meeting Suffering on Gods Terms
Now don’t be fooled—that was no isolated incident. I didn’t just leave my desperation back there in
the hospital. No, desperation is part of a quadriplegic’s life each and every day. For me, suffering is still
that jackhammer breaking apart my rocks of resistance every day. It’s still the chisel that God is using
to chip away at my self-sufficiency and my self-motivation and my self-consumption. Suffering is still
that sheepdog snapping and barking at my heels, driving me down the road to Calvary where otherwise
I do not want to go. My human nature, my flesh, does not want to endure hardship like a good soldier
(2 Tim. 2:3) or follow Christ’s example (1 Pet. 2:21) or welcome a trial as friend.
No, my flesh does not want to rejoice in suffering (Rom. 5:3) or be holy as he is holy (1 Pet. 1:15).
But it is at Calvary, at the cross, where I meet suffering on God’s terms. And it happens almost every
morning. Please know that I am no expert at this wheelchair thing. I’m no professional at being a quad-
riplegic. There are so many mornings when I wake up and I can hear my girlfriend come to the front
door to help me get out of bed and get ready for the day. She goes to the kitchen, turns on the water,
and starts brewing coffee. I know that in a few moments she’s going to glide into the bedroom, where
she’ll greet me with a happy, “Good morning!” And I am lying there with my eyes closed, thinking, O
God, I can’t do this. I am so tired. I don’t know how I’m going to make it to lunchtime. O God, I’m already thinking
about how good it’s going to feel when I get back to bed tonight and put my head on this pillow.
I’m sure you have felt that way at some point. Maybe you feel that way every morning. But Psalm
10:17 says, “O Lord, you hear the desire of the afflicted; you will strengthen their heart; you will incline
your ear.” “O God,” I often pray in the morning, “God, I cannot do this. I cannot do this thing called
quadriplegia. I have no resources for this. I have no strength for this—but you do. You’ve got resources.
You’ve got strength. I can’t do quadriplegia, but I can do all things through you as you strengthen me
[Phil. 4:13]. I have no smile for this woman who’s going to walk into my bedroom in a moment. She
could be having coffee with another friend, but she’s chosen to come here to help me get up. O God,
please may I borrow your smile?”
And just as he promises, he hears the cry of the afflicted, and before even 7:30 in the morning he
has sent joy straight from heaven. Then, when my girlfriend comes through the door with that steaming
cup of coffee, I can greet her with a happy “Hello!” borrowed from God.
To this you, too, were called. To this you were called because Christ suffered for you, leaving you
this kind of example that you should follow. He endured the cross for the joy that was set before him
(Heb. 12:2). Should we expect to do less? So then, join me; boast in your afflictions. Delight in your in-
firmities. Glory in your weaknesses, for then you know that Christ’s power rests in you (2 Cor. 12:9).
You might be handicapped on all sides, but you’re not crushed. You might be perplexed, but you’re
not in despair. You might be knocked down, but you’re not knocked out. Because it says in 2 Corinthi-
ans 4:7-12 that every day we experience something of the death of the Lord Jesus Christ, so that in turn
we might experience the power of the life of Jesus in these bodies of ours.
Do you know who the truly handicapped people are? They are the ones—and many of them are
Christians—who hear the alarm clock go off at 7:30 in the morning, throw back the covers, jump out
of bed, take a quick shower, choke down breakfast, and zoom out the front door. They do all this on
automatic pilot without stopping once to acknowledge their Creator, their great God who gives them
Hope Is t h e Bes t of T h ings , by J o ni Ea rec k son Tad a
3
life and strength each day. Christian, if you live that way, do you know that James 4:6 says God opposes
you? “God opposes the proud, but gives grace to the humble.”
And who are the humble? They are people who are humiliated by their weaknesses. Catheterized
people whose leg bags spring leaks on somebody else’s brand-new carpet. Immobilized people who
must be fed, cleansed, dressed, and taken care of like infants. Once-active people crippled by chronic
aches and pains. God opposes the proud but gives grace to the humble, so then submit yourselves to
God. Resist the devil, who loves nothing more than to discourage you and corrode your joy. Resist him
and he will flee you. Draw near to God in your affliction, and he will draw near to you (James 4:6-8).
Take up your cross daily and follow the Lord Jesus (Luke 9:23).
I must qualify that last statement. Please know that when I take up my cross every day I am not
talking about my wheelchair. My wheelchair is not my cross to bear. Neither is your cane or walker
your cross. Neither is your dead-end job or your irksome in-laws. Your cross to bear is not your migraine
headaches, not your sinus infection, not your stiff joints. That is not your cross to bear. My cross is
not my wheelchair; it is my attitude.
Your cross is your attitude about your dead-end job and your in-laws. It is your attitude about your
aches and pains. Any complaints, any grumblings, any disputings or murmurings, any anxieties, any wor-
ries, any resentments or anything that hints of a raging torrent of bitterness—these are the things God
calls me to die to daily. For when I do, I not only become like him in his death (that is, taking up my cross
and dying to the sin that he died for on his cross), but the power of the resurrection puts to death any
doubts, fears, grumblings, and disputings. And I get to become like him in his life. I get to experience the
intimate fellowship of sharing in his sufferings, the sweetness and the preciousness of the Savior. I become
holy as he is holy. O God, “you will make me full of gladness with your presence” (Acts 2:28).
And to be in God’s presence is to be holy. Not to be sinless, but to sin less. To let suffering sandblast
you to the core, revealing the stuff of which you are made. And it’s never pretty—the sin we housebreak
and domesticate and try to make our own—is it? No. Suffering sandblasts that stuff, leaving us bare
and falling head over heels, down for the count and decimated.
Meeting Joy on Gods Terms
It is when your soul has been blasted bare, when you feel raw and undone, that you can be better bonded
to the Savior. And then you not only meet suffering on God’s terms, but you meet joy on God’s terms.
And then God—as he does every morning at 7:30 when I cry to him out of my affliction—happily shares
his gladness, his joy flooding over heaven’s walls filling my heart in a waterfall of delight, which then
in turn always streams out to others in a flood of encouragement, and then erupts back to God in an
ecstatic fountain of praise. He gets your heart pumping for heaven. He injects his peace, power, and
perspective into your spiritual being. He imparts a new way of looking at your hardships. He puts a
song in your heart.
I experienced this kind of elation several years ago when I was in Thailand. I am the senior disability
representative with the Lausanne Committee for World Evangelization, and that year 36 disability min-
istry workers from around the world, most of them disabled themselves, gathered at the Lausanne con-
ference in Thailand. There was a tall, beautiful African from Cameroon named Nungu Magdalene
Manyi, a polio survivor who has made it her life’s ambition to rescue other disabled infants who are
left on riverbanks to starve to death because a disability is viewed as a curse or a bad omen by local
witch doctors. Pastor Noel Fernández, blind, using his white cane, came all the way from Cuba. Therese
Swinters, another polio survivor in a wheelchair, joined us from Belgium. There was Carminha Speirs
Hope Is t h e Bes t of T h ings , by J o ni Ea rec k son Tad a
4
from Portugal, walking with her crutches. There we came from around the world—all 36 of us. And we
were celebrating the kinds of things I’ve been talking about in this chapter—how when we boast in our
affliction and glory in our weaknesses, God’s power is poured out upon us.
By the end of the week, we happy people, our ragtag group of disabled individuals, looked around
at this conference and saw that nobody else seemed to be having fun. The conference was a bit stuffy,
as conferences can be when we rehearse theology at one another rather than live it with one another.
Well, our group was having so much fun praising the Lord, our joy just spilled out of our workshop
room. It flooded down the hallway. It spilled over the hotel mezzanine level. And before we knew it,
there we were in this fancy resort hotel lobby, and we were a procession of praise, singing, “We are
marching in the light of God, we are marching in the light of God.” I wish you could have heard me
singing and seen me dancing. Our procession of praise was an audiovisual display of 2 Corinthians
2:14-15: “Thanks be to God, who in Christ always leads us in triumphal procession, and through us
spreads the fragrance of the knowledge of him everywhere.”
You see, we are to God the fragrance of Christ. The world can’t see Jesus endure suffering with grace
because he’s not here on Earth, but you and I are. And we can fill up in our flesh what is lacking in his
afflictions (Col. 1:24), and in so doing become that sweet fragrance, that perfume, that aroma of Christ
to God. What a blessing, a privilege, an honor! What elation! And if I am to remind the Father of his
precious Son who suffered, the apple of his eye turning brown with the rot of my sin; if I am to follow
in his steps, then it is a gift to suffer alongside him, to take up my cross daily and follow him.
“Since therefore Christ suffered in the flesh, arm yourselves with the same way of thinking, for whoever
has suffered in the flesh has ceased from sin” (1 Pet. 4:1). I’m so glad the apostle Peter included that, be-
cause without it we would look at suffering and think that it gives us cause for bitterness, worry, self-in-
dulgence, or some other sin, because we have “earned it.” But do not use your affliction as an excuse to
sin. Rather, “whoever has suffered in the flesh has ceased from sin.So we can endure hardship like a
good soldier (2 Tim. 2:3). We can welcome a trial as a friend. We can face the fiery ordeal that is about to
set us ablaze (1 Pet. 4:12). We can rejoice in the hope of the glory of God (Rom. 5:2). Not only so, but we
can rejoice in our sufferings because we know that suffering produces perseverance (Rom. 5:3).
Hope Never Disappoints
Tomorrow morning I will wake up (I’m going on a Joni and FriendsWheels for the World trip to Africa),
and I guarantee you I’m going to be tired, my neck is going to hurt, my back is going to ache, and I’m
going to say, “O Lord God, I just cannot fly all the way across the ocean. O Lord, 16 hours on a plane.
I cannot do that. Jesus, I can’t do that.” But I will do it because suffering produces endurance, and en-
durance produces character, and character produces hope, and hope never, ever, ever disappoints us
(Rom. 5:3-4). Nothing can disappoint us. Nothing can rob his joy in us, and nothing can rob our joy
in him, neither height nor depth nor things to come nor things past nor muscular dystrophy nor os-
teogenesis imperfecta, not spinal cord injury, or multiple sclerosis (Rom. 8:39), for all things are yours
(1 Cor. 3:21). For you are of Christ, and Christ is of God (1 Cor. 3:23). Therefore, you can be sorrowful
yet always rejoicing; you can have nothing and yet possess everything (2 Cor. 6:10).
Passing on the Hope to Others
We are so rich. We’ve been given so much insight, so much knowledge. And to whom much is given,
much shall be required; to whom much is entrusted, much shall be demanded (Luke 12:48). I may have
Hope Is t h e Bes t of T h ings , by J o ni Ea rec k son Tad a
5
a wheelchair, but there is a need for 18 million wheelchairs around the world. So I cannot sit here in
America on my backside and be content. No. Ken and I will head to Africa with our Wheels for the
World team to deliver not only terrain-appropriate wheelchairs, but also Bibles, and to give the good
news and to teach disability ministry training in churches and to let people there know that cerebral
palsy is not a curse from a local witch doctor. We will shed the light of Jesus who always tells the truth—
not only about redemption but about rickets, not only about the atonement but about autism. We will
shine his light. The way I see it, I’ve been given so much, I must pass on the blessing. We simply must,
must pass on the hope to others.
We must pass on the hope to people like Gracie, with her eyes shut in UCLA, at this point perhaps
hoping that God will take her home before that operation. To people like her and to people like Beverly
and Ron. Beverly is a woman who wrote me the following e-mail a while back:
Dear Joni,
I’m out of hope. [But I am wondering if] you might be able to help my husband, Ron, who
was in an accident last year.
My husband is a pastor. The accident left him a quadriplegic. When he came home from
the hospital he continued to pastor from his wheelchair, but then two months later he was back
in the hospital with an infection. And there have been many infections since then and many
visits to the hospital. My husband, Ron, began to become depressed. He has now resigned from
his church, and he does not get out of bed. He does not talk. And if he answers a question, he
only says, “I don’t know.”
I am at a loss. He does not want the lights on in his room and no TV. He does not want to
live, and he does not care about our family. We have no medical insurance. We all seem to be
falling through the cracks. My husband feels useless and hopeless. We need help.
How do you respond to something like that? Well, I responded by dialing 411 and tracking down
Ron and Beverly’s phone number. I gave them a call, Beverly answered, and I shared with her that I
had received her e-mail. I talked and prayed with her over the phone. Finally I asked, Any chance
your husband, Ron, might want to talk to a fellow quadriplegic?” She was delighted that I was even
interested. She knocked on his door, and he allowed her to tuck the phone receiver under his ear.
And although he would not respond, I talked a little bit of shop about quadriplegia. I talked about
urinary infections and bowel programs and difficulties breathing, and I thought I detected a grunt
on the other end.
I wanted to move beyond those topics, however, and bridge the conversation to spiritual things. I
thought, This man’s a pastor. Surely he knows the Word of God. So I started to share with him several favorite
scriptures that have sustained me through the toughest of times, for example, James 1:2-4 (“Count it
all joy, my brothers, when you meet trials of various kinds, for you know that the testing of your faith
produces steadfastness. And let steadfastness have its full effect, that you may be perfect and complete,
lacking in nothing”) and Romans 8:18 (“For I consider that the sufferings of this present time are not
worth comparing with the glory that is to be revealed to us”). Still silence on the other end. I even sang
to him. Nothing.
Finally, I did the only thing I could think of that I hadn’t already tried. I asked Ron if he had ever
seen a movie called “The Shawshank Redemption.”
“Why, yes, I have,” he said. I couldn’t believe it. He had responded. So I went on, “Well, Ron, do you
remember when Red found Andy Dufresne’s letter? Do you remember what it said?”
Hope Is t h e Bes t of T h ings , by J o ni Ea rec k son Tad a
6
“I… I think so. ‘Hope is a good thing, maybe the best of things. And no good thing ever dies.’”
“Ron, there are 10,000 other quadriplegics like you and me across America, not to mention who
knows how many beyond the borders of this country. And all of them were lying in bed this morning
wondering whether or not they should get busy living or get busy dying. Ron, I’m going to make a
choice to get busy living. Do you want to join me today?”
“Yes, ma’am. Yes, I do.”
“Good for you, Ron, because now you’re in the fellowship of sharing not only my suffering but
Christ’s sufferings. And he’ll give you the grace one day at a time, one day at a time. Sufficient unto
this day are the evil and the trials and the troubles that you’re going to face.”
He put his wife back on the phone, and I proceeded to tell her about our Family Retreats. I asked,
“Beverly, do you think you could get your husband, Ron, to one of our family retreats?” I promised her
that our office would provide scholarship money, which we always do to families who are struggling
with medical expenses. And sure enough, that summer Ron and Beverly went to a Joni and Friends
family retreat in Texas. Shortly after they returned home, I received another e-mail from Beverly:
Dear Joni,
Ron asked me to be sure and write you because this past month has been wonderful. Camp was
a huge blessing, and I don’t think we realized how much of a blessing it was until we got home.
We have made new friends for a lifetime. Ron wants to find things that he can do which will get
him out of the house more. I told him that whenever he’s ready we can hook up our camper to
our truck and go minister so he can share his testimony all over the United States. For the first
time in a year he did not say no. He grinned. Thank you. We have hope.
“Hope is a good thing, maybe the best of things. And no good thing ever dies.” But we live in a dark,
diseased world under the curse of sin. Hell is real. And God owes this utterly rebellious planet absolutely
nothing. But aren’t you glad that he is a God of love, not wanting anyone to perish? And he is out to
convince this unbelieving, sarcastic, skeptical world of his power to save, his abilities to sustain, and
his desire to share his hope.
Misery May Love Company but Joy Craves a Crowd
We have been given so much. Jesus said, “To you it has been given to know the secrets of the kingdom
of heaven” (Matt. 13:11). And “everyone to whom much was given, of him much will be required, and
from him to whom they entrusted much, they will demand the more” (Luke 12:48). God mandates
that we go out into the streets and the alleys and the highways and the byways. He mandates that we
find the poor, the blind, the disabled, and the lame, and help them get busy living, because misery
might love company, but joy craves a crowd. And the Father and the Son and the Holy Spirit crave a
crowd of joy, joy spilling over and splashing and filling the hearts of thirsty people in this world who
are absolutely dehydrated from a lack of hope. They need help from God on high. The Father and the
Son and the Holy Spirit’s plan is to rescue humans. The Father is gathering a crowd, an inheritance
that is pure and perfect and blameless, to join him in the river of joy and the whirlwind of pleasure.
And he is heaven-bent on gathering glad and happy souls who will make it their eternal ambition to
worship his Son in the joy of the Holy Spirit. God is love. And the wish of love is to drench with delight
those who have stepped into the fellowship of sharing in his Son’s suffering.
Hope Is t h e Bes t of T h ings , by J o ni Ea rec k son Tad a
7
And soon, perhaps sooner than we think, the Father, the Son, and the Holy Spirit are going to get
their wish. Perhaps sooner than we think, God will close the curtain on sin and suffering and disease
and death, and we are going to step into the Niagara Falls that will be.
And one day I’m going to leave this wheelchair behind. I cannot wait. I may have suffered with
Christ on earth, but one day in heaven I’m going to reign with him. I may have tasted the pains of living
on this planet, but one day I’m going to eat from the tree of life in the pleasure of heaven, and it’s all
going to happen in the twinkling of an eye. The Lord’s overcoming of this world will be the lifting of
the curtain on our five senses, and we shall see him and we shall be like him, and we shall see the whole
universe in plain sight.
I think at first the shock of the joy that will come from reveling in the waterfall of love and pleasure
that is the Trinity may burn with a brilliant newness of being glorified, but in the next instant we will
be at peace. We will be drenched with delight. We will feel at home as though it were always this way,
as though we were born for such a place—because we were!
I will look up. And walking toward me will be my husband, Ken. I know he loves me on earth, but
I am just a hint, an omen, a foreshadowing of the Joni that I’ll be in heaven. And when he sees me he’ll
say, “So this is what I loved about you all those years on earth.” And I will see Ron and Beverly striding
toward me, their souls’ capacities stretched because of suffering, stretched for joy and pleasure and
worship and service in heaven. Their souls will be large and spacious because they chose to boast in
their affliction rather than wallow in sadness and self-pity.
It is my prayer that Jesus will look at Gracie and he will say to her, “I know you. You came to me
hemorrhaging human strength, and I felt power go out of me, and I touched you and gave you grace
upon grace upon grace.”
Romans 8:18 says that we can consider our present sufferings not worth comparing with the glory
that will be revealed in us. I have shared this before, but I must say it again. For I sure hope I can bring
this wheelchair to heaven. Now, I know that’s not theologically correct. But I hope to bring it and put it
in a little corner of heaven, and then in my new, perfect, glorified body, standing on grateful glorified
legs, I’ll stand next to my Savior, holding his nail-pierced hands. I’ll say, “Thank you, Jesus,” and he will
know that I mean it, because he knows me. He’ll recognize me from the fellowship we’re now sharing in
his sufferings. And I will say, “Jesus, do you see that wheelchair? You were right when you said that in
this world we would have trouble, because that thing was a lot of trouble. But the weaker I was in that
thing, the harder I leaned on you. And the harder I leaned on you, the stronger I discovered you to be. It
never would have happened had you not given me the bruising of the blessing of that wheelchair.”
Then the real ticker-tape parade of praise will begin. And all of earth will join in the party. And at
that point Christ will open up our eyes to the great fountain of joy in his heart for us beyond all that
we ever experienced on earth. And when we’re able to stop laughing and crying, the Lord Jesus really
will wipe away our tears. I find it so poignant that finally at the point when I do have the use of my
arms to wipe away my own tears, I won’t have to, because God will.
Hope may well be the greatest of things, because Romans 5:2 says, “We rejoice in hope of the glory
of God.” I get so excited thinking about how Jesus and the Father and the Holy Spirit are anticipating
on tiptoe that wonderful day when we, the bride of Christ, spotless and pure and blameless, will join
them and swim with them in their river of pleasure. I rejoice in that hope—the hope of God’s being
glorified in himself and our getting a chance to join him. The hope we wait for is our only hope, the
blessed hope, the glorious appearing of our great God and Savior, Jesus Christ (Titus 2:13). It is Jesus
for whom we have prevailed through all of this suffering, and, oh, for the sweetness of melding one
heart into his in that intimacy that is so precious.
Hope Is t h e Bes t of T h ings , by J o ni Ea rec k son Tad a
8
Hope Is t h e Bes t of T h ings , by J o ni Ea rec k son Tad a
9
Joni Eareckson Tada is the founder of Joni and Friends International Disability Center, a nonprofit min-
istry with a global outreach. A diving accident in 1967 left Joni, then 17, a quadriplegic in a wheelchair.
Since then, Joni’s wisdom and influence have been shared with the world through bestselling books,
radio programs, television programs and frequent speaking. Her radio program is carried by over 1,000
broadcast outlets and heard by over a million listeners. Joni is also an accomplished artist and singer. She
has served on the National Council on Disability and the Disability Advisory Committee to the U.S. State
Department.
Is hope really all that hard to come by? I don’t think so. Our hope is for the Desire of the nations.
Our hope is the Healer of broken hearts, the Friend of sinners, the God of all encouragement, the Father
of all comfort, the Lord of all hope. And it is my prayer that the eyes of your heart might be enlightened
so that you might know this hope to which he has called you.
First published in Suffering and the Sovereignty of God, John Piper and Justin Taylor, Editors. Crossway Books, 2006, pp. 192-204. Used by permission of
Joni Eareckson Tada, all rights reserved.
NOTES
1. All Scripture quotations, unless noted otherwise, are from The Holy Bible, English Standard Version Copyright © 2001 by Crossway Bibles, a division
of Good News Publishers.
1
Does My Child Need to be Healed?
A Fathers Reflections
By Rev. Steve Bundy
. . . and a little child shall lead them.
I S A I A H 1 1 : 6
Sitting at the dinner table one evening, my four-year-old son surprised us with a profound question
about his older brother. “Daddy,” Jaron said, “why did God make Caleb with special needs?” Gathering
my thoughts, I responded, “What did you ask, Son?” Jaron repeated his question without hesitation,
“Why did God make Caleb with special needs?”
Caleb, who was eight at the time, was born with a deletion on his number 2 chromosome, resulting in
developmental disabilities, intellectual and physical delays, muscular dystrophy and autism. Caleb didn’t
walk until he was six years old, has challenging autistic characteristics, and has never spoken a word.
I was amazed that such a deep question was coming from my preschooler and paused, trying to
find a way to express my thoughts on a level he could comprehend. Honestly, part of my own heart
still struggles with the “why” of it all. I’m not sure any parent can fully satisfy this question, although
many have found great comfort in the plans and purposes of God.
I turned to my wife Melissa, who had a look of expectation, wondering how I was going to answer
Jaron. Finally, I broke the silence, and began explaining how Caleb was like any other boy except due
to his “special needs” he had to interact differently. God had a plan when he created Caleb and wanted
to use him to touch other peoples’ lives. I told Jaron that one day when Caleb went to heaven he would
be healed. He would run, talk and play like all the other children.
My answer seemed to appease our questioning theologian for a moment. Then he rolled his head
around, looked up to the sky and asked, “Why doesn’t God just heal him now?” Melissa’s eyes were
filling with tears (mine were wet, too). Such a simple follow-up question! With a complicated, some-
times heart-wrenching answer.
We told Jaron that it was not God’s desire to heal his brother right now, but that God loved Caleb
very much whether he could speak or walk or talk. All people are created in God’s image and we bring
him glory by being who he created us to be. I spoke of the gifts and abilities Caleb has and how he can
have a full life in spite of his disabilities. I also reassured Jaron that my answers may not make complete
sense because sometimes we simply have to trust God even when we don’t understand his ways. In
short, I told him that Caleb did not need to be healed.
I wish I could say I had drawn such a simple conclusion shortly after Caleb’s birth. Unfortunately,
that was not the case. The first two years of Caleb’s life were a huge struggle for me, and consequently
us as a family. At that time I couldn’t yet accept Caleb for who he was—I needed him to be healed. I ex-
perienced anger, grief and depression over his condition. I desperately wanted him to be healed and
felt my prayers fell silent at heaven’s doors. My God seemed impotent as my world crumbled. My biblical
theology and real-life experience were out of alignment. I labored to interpret Scripture out of my ex-
perience, instead of allowing Scripture to interpret my experience. Let me explain.
I had been impacted by a theology that erroneously emphasized God’s will for all to be healed…
100 percent of the time! No exceptions! In fact, if there was a sickness, disability or ailment of some
sort, it was due to a lack of faith on that person’s part, or the work of Satan, or sin in one’s life, or a
combination of all three. At the time of Caleb’s birth, my support group was comprised of friends—
functioning under the same theology—who prayed for my faith to be increased, for Satan to be bound,
for sins to be confessed, and for Caleb to be healed! And when he was not healed, it was a clear indica-
tion that God’s favor no longer rested on me. I later discovered that this “Faith-Theology” is actually
“Fear-Theology.” This doctrine focuses on the “works of man,” whose authority and healing is solely
based on one’s perfection of faith. I was in a dangerous, downward spiral and needed a new, God-cen-
tered perspective.
Who Needs Healing?
When we see our children through an eternal perspective rather than an earthly perspective, there is
much to celebrate. In Psalm 127:3 we’re told that children are a reward from the Lord. Psalm 139:13-
14 tells us that they are “fearfully and wonderfully made,” and it was God who knit each of them to-
gether in their mother’s womb. If my mind had been focused on Scripture and the revelation of God
as our Creator, I would have understood that Caleb was perfectly designed by God. Maybe the word
“understood” is too strong; I would have at least been able to accept Caleb and work through my
wounded emotions. But it took a personal lesson for me to grasp these principles.
One of the common challenges of raising a child with disabilities is sleep deprivation. Caleb was
no exception. It’s as if he was born without an “internal body clock.” It wasn’t until Caleb was six years
old that we discovered a combination of medications that helped him get a good night’s sleep (and us
as well). Prior to that, Caleb would sleep irregular hours and randomly wake up crying in the middle
of the night. I remember one night, when he was two years old, he awoke crying. I went to his room as
usual to comfort him until he went back to sleep. As Caleb dozed off, I laid down on the floor, staring
at the ceiling and questioning this mysterious God I claimed to know. I asked why he had not fixed
Caleb. After all, that was really what I wanted. I thought: All the therapies, all the doctor’s visits and all the
special time and attention is not going to help Caleb’s development. It won’t fix him! Think of all the glory you would
receive, Lord. The testimony of his miraculous healing would reveal your glory to so many!
I am not one who would claim to have had many “encounters” with the Lord. No burning bush ex-
periences that I can speak of. But at that moment I sensed the presence of God filling Caleb’s room.
I cannot fully explain it in words. Although I heard no audible voice, as clear as I have ever heard anyone,
these words flooded my soul: Son, aren’t you glad that I did not require you to be fixed before I accepted you?
I couldn’t move. I couldn’t speak. I could only reflect on the words that just pierced my heart and mind.
Does My Ch i ld N e ed to be H e aled? A Fa t hers Refle c tion s , by S teve Bundy
2
In a watershed moment that I can only describe as a revelation, an understanding of the unconditional
love of my Heavenly Father burst into my soul. I was praying for Caleb’s brokenness to be fixed and
instead I came to grips with my own brokenness. In an instant it became clear to me that God, the Cre-
ator of the universe, the Incarnate Word made flesh, the Spirit who moved within man, loved me un-
conditionally and it had nothing to do with my own performance, abilities or even holiness. I was
broken and in denial. I was accepted and loved by God not because of my worth, ability or goodness.
It was because of God’s own love, goodness and existence that I can cry out with confidence, “Abba
Father… Daddy!”
1
My soul was also flooded with an understanding of how utterly selfish, earthly and unloving I had
been to my very own son upon whom I had placed such high requirements. With tears running down
my cheeks, I held my sleeping son in my arms and said, “Caleb, I love you just the way you are, for who
you are, and I don’t need you to be fixed. Today, I truly become your father. You are my son and I’ll
love you unconditionally from this day forth whether or not you are ever healed.” That moment
changed my life and Caleb’s, because he had a new dad. I wish I could say that I’ve always lived up to
my vow to love unconditionally, but I can’t. However, I have been able to accept my son and rely upon
God’s help to continue becoming the father I want to be. That night, for the first time, I realized that
it wasn’t Caleb who needed to be healed—it was me.
Reflecting back on that experience in Caleb’s room a decade ago, I am amazed that I could have
been so blind to the gift that God gave me in my son. On the other hand, we can’t ignore the real dis-
appointments and challenges that daily accompany life with disability. Our family has experienced a
great deal of pain and suffering throughout this journey. And as Caleb gets older the challenges will
increase. As much as I love my son for who he is, I do not always love the way he is. Honestly, there are
many days when I wish Caleb was an active boy without disabilities. But at the same time, he is amazing
and continues to be my greatest teacher. Without a spoken word, Caleb touches more hearts for Christ
than a lot of Christians I’ve known.
For His Glory
I recognize how some people may believe that God receives more glory when a miraculous healing takes
place such as Jesus’ healing of the blind man in John 9. We struggle to comprehend that God has also
ordained glory for himself through the person who finds joy and peace in the midst of their disability,
without ever experiencing healing on this earth.
Two years ago I had this conversation at a Bible college in Belgrade, Serbia, while teaching on the
subject of “Theology and Disability.” I was using biblical and modern examples of those with disabilities
whom God has used without healing them such as Joni Eareckson Tada and Nick Vujicic.
2
The Lord is
using these leaders in mighty ways. A fiery, young student named Philip was on the edge of his seat
during the discussion. Waving his hand in the air, Philip could hardly contain himself, “Tell me how
God can possibly be glorified by not healing Joni and Nick since healing them would surely display his
great power?”
I understood his question. It’s the same one I worked through years before in seminary and on my
own personal journey with Caleb. As we discussed Philip’s view of healing, he articulated the doctrines
he had been exposed to by “faith-healers” on the internet and Christian television. We also talked about
other views of divine healing. Then, I challenged him with this question, “On a global scale, Joni and
Nick have lead millions of people to faith in Christ or a deeper walk with Christ although they have
not been physically healed of their disabilities. Can you name one person in history who has had such
Does My Ch i ld N e ed to be H e aled? A Fa t hers Refle c tion s , by S teve Bundy
3
an impact on Christ’s Kingdom by being healed?” He was stumped. I could see the confusion in his
face as he searched his mind for an answer. Philip could think of no one. One question seemed to dis-
solve the erroneous theology he had been accepting. My point to this young man was not to deny heal-
ing and the glory God receives through it; rather, to challenge him with his belief that healing had to
happen for God to be glorified. He was so convinced that healing was only of a physical nature, that
he had overlooked the fact that biblical healing is first and foremost of a spiritual nature.
Biblical Healing
This is not to suggest that healings have not occurred and resulted in people finding Christ. There
are a number of Greek words used in the New Testament for healing: sozo, hugies, iaomai and therapeuo.
At times these terms are used to refer to physical healing. On other occasions, iaomai and sozo are
used to refer primarily to spiritual healing. For example, in Matthew 9:22 when Jesus spoke to the
woman with the issue of blood, he said, “Daughter, take courage; your faith has made you well (sozo).”
However, in the next chapter, Jesus commissioned the twelve disciples for ministry and gave them
the mandate to “heal (therapeuo) the sick” (Mt. 10:8). Matthew 15:31 speaks of the “crippled restored
(hugiaino).”
These examples are instances of physical healings—that is, to completely cure a condition; but heal-
ing is also for the soul. For example, Ephesians 2:8 reads, “For by grace you have been saved (sozo).”
This verse is not a reference to physical healing, but rather to spiritual healing. The same is true for 1
Peter 2:24, “by his stripes you were healed (iaomai).” Although sometimes used for physical healing,
sozo and iaomai typically carry the meaning of spiritual healing, which is the primary focus of New Tes-
tament healing. Spiritual healing is the salvation of the soul.
Although we use the terms synonymously, “healing” has a much broader meaning than simply to
cure someone.
Cures may eliminate the symptoms, if not the disease or disability itself.
The term healing describes well-being, peace, comfort or support, but may not imply
a cure.
People are sometimes “cured” from a disease or disability by a miracle, therapy or medicine—but
this does not mean that true spiritual healing has taken place. In reference to Jesus, Isaiah 53:5 says,
“The punishment that brought us peace was upon him and by his wounds we are healed.” This peace
(shalom) is the well-being, completeness and reconciliation that Christ provides. Healing refers to “being
made whole” in spirit, as in our healing from sin.
3
In Scripture we see an emphasis on spiritual healing, not physical healing. The soul will live forever;
the body will not. Although physical wellness is encouraged and should be sought, true biblical health
and wholeness relates to the spirit, not the physical. For example, Paul’s physical body was broken after
years of beatings and poor treatment. He reminded the Corinthians that our bodies are like temporary
tents—our new bodies will be in heaven (2 Cor. 5:1). Paul also apparently struggled with a physical dis-
ability of poor sight,
4
which he sought physical healing for: “Three times I pleaded with the Lord to
take it away from me. But he said to me, “My grace is sufficient for you…” (2 Cor. 12:8-9). Though the
Lord denied to restore Paul to wholeness physically, he received spiritual healing—that of community
and acceptance. He testifies of the Galatian church that they would have “torn out [their] eyes and
given them to me” (Gal. 4:15).
Does My Ch i ld N e ed to be H e aled? A Fa t hers Refle c tion s , by S teve Bundy
4
There is a misconception that “wholeness” is the absence of any deficiencies in our bodies or lives,
but everyone has deficiencies. Everyone Jesus healed eventually died. Wholeness is a matter of content-
ment based on one’s perspective—a biblical perspective defines wholeness in terms of relationships,
not physical or material conditions. Christ’s primary mission was to redeem man for eternal life and a
right relationship with the Father (Jn. 3:16). Spiritual healing includes a right relationship with God—
that is salvation and a dedicated life of surrender. His secondary mission was to restore right relation-
ship one to another (Jn. 17:20-21). Therefore, spiritual healing, which would include emotional healing,
involves a right relationship with people—that is the Body of Christ and the community in which we
live. In biblical times, as it unfortunately is today, people with disease or disabilities were often excluded
from community life and part of a person’s healing involved restoring him or her to community.
When a cure was the means to accomplish this, then Jesus did so. Otherwise, his ministry was to
the heart and soul of mankind. For example, in Luke 5:17-26, Jesus healed a man who had been lowered
to him through the roof of a house. Here, Jesus healed the man by forgiving him of his sins (restoring
him to God). He did not immediately cure the man physically, because he was already in community,
as evidenced by his caring friends. It is only when Jesus discerned the thoughts of the Pharisees that he
cured him “so that you may know that the Son of Man has authority on earth to forgive sins…” Even in curing
the man Jesus’ focus was on restoration to a right relationship with God—that is, true healing.
What He Really Needs
I was recently at a conference with Joni in which she was interviewing a good friend of the Joni and
Friends ministry, Robin Hiser. Robin was born with Down syndrome and has lived an active and fruitful
life. She has an amazing love for God and people, using her skills and gifts to minister to youth across
the nation. Watching Robin worship or hearing her pray brings an appreciation for who God created
her to be—just as she is.
During the interview, Joni asked Robin what advice she wanted to give to parents who might have
a child with special needs. Without hesitation Robin stated there are two very important things for
parents to remember. “The first,” she said, “is to always remember that the greatest gift you can give
your child is love—unconditional love.” Tears began to fill my eyes as Robin went on the second point,
“and the second thing is just as important, no matter what, accept them just the way they are—the way
God created them.” At this point the tears were running down my face as pictures of Caleb filled my
mind. When I returned home from the conference that weekend and my wife asked me how it went, I
told her I was reminded of two very important things…
You too may struggle with anger, depression or disappointment with God over your child’s disabil-
ity. Your cries are real and God hears you—he feels your pain. Your prayers for healing may seem to
have fallen short of heaven as you look for evidence of God responding. When we properly place healing
in the light of eternity, we realize that physical and developmental disabilities experienced on this earth,
though difficult and at times very painful, are temporary. Spiritual healing is eternal. We realize that
God has responded with salvation and restoration (healing)—the greatest response he could have given.
When life is lived out in the love and support of the Body of Christ, of family and community, then
the context is set for a life of celebration and wholeness.
My son Caleb may not be healed as people traditionally think of healing. But I can assure you he
has been healed from a scriptural perspective of relationship and love. So, the next time a four-year-
old theologian questions you about healing, you may want to simply reply with a question, “What heal-
ing does he need?”
Does My Ch i ld N e ed to be H e aled? A Fa t hers Refle c tion s , by S teve Bundy
5
NOTES
1. Romans 8:15
2. For more about Nick Vujicic and his ministry Life Without Limbs, visit www.lifewithoutlimbs.org.
3. David Anderson, Reaching Out and Bringing In. (Roseville, NM: Crossing Bridges, Inc., 2008), p. 58.
4. Though the text does not specifically indicate, many scholars believe that Paul’s reference in Galatians 4:15 is related to his having poor or limited
vision, most likely caused by a common eye disease of his day. It is this author’s belief that Paul’s reference to “thorn in the flesh” in 2 Corinthians
12:8-9 is also related to this physical challenge.
Does My Ch i ld N e ed to be H e aled? A Fa t hers Refle c tion s , by S teve Bundy
6
Steve Bundy is the Vice President of Joni and Friends overseeing the Christian Institute on Disability and
International Outreach. He was a contributing author to Life in the Balance: Biblical Answers for the Issues of Our
Day, and co-executive producer with Joni Eareckson Tada of the Telly-Award winning television episodes,
Making Sense of Autism: Myths That Hide the Truth and Truth for the Church. Steve has served as adjunct professor
at Master’s College and has lectured on disability ministry at educational institutions and conferences around
the world. He frequently appears on “Joni and Friends” television episodes, national radio and has written
articles or been interviewed for Christianity Today, Charisma Magazine, Focus on the Family and others. Steve and
his wife Melissa know firsthand the joys and challenges of parenting a child with special needs, as their own
son, Caleb, was born with a chromosome deletion which resulted in global delay and a secondary diagnosis
of autism. Steve holds a B.A. in Theology and Missions, a Certificate in Christian Apologetics and an M.A.
in Organizational Leadership. He is a licensed minister and has served as a pastor and missionary.
1
Praying in the Face of Pain
By David Lyons and Linda Lyons Richardson
This paper is an excerpt from chapter eight of Don’t Waste the Pain (NavPress 2010). Linda Richardson has
had cancer since 2000, and Ian, David Lyons’ son, died of cancer in 2009 at the age of 12.
Praying Through the Moguls
“Until now you have not asked for anything in my name. Ask and you will receive, and your joy will be
complete” (John 16:24).
Praying in the face of pain is not a walk in the park. It’s more like hop ping moguls on a double
black diamond ski slope —more excitement than most of us feel prepared to endure. My son Ian expe-
rienced some abdominal pain while I was in Mexico, and it turned out to be caused by a gallstone—
something often more painful than labor pains. Yet as the doctors discovered the gallstone, some thing
wonderful began to be revealed. After the crisis, our oncologist asked the radiologist to carefully review
the scan to determine the exact reduction of Ian’s tumor. I’ll never forget her response: “What tumor?
I didn’t see any tumor in there.”
A few days later, I wrote this:
March 22, 2008
Thursday was the day of pain. Ian bravely endured the boring of two holes in his pelvic bone
for bone marrow samples. I was there holding his hand, and I contributed to the procedure by
passing out. I’ll always remember Ian’s hand dangling down from the operating table while I
held his hand from the floor.
On Friday, I asked Ian how he’d like to celebrate his two days of relative health before resum-
ing chemotherapy. The crazy idea of skiing came up, the doctor said okay, and we ran with it.
A friend offered their ski-out condo. Another offered discount tickets. So, we were on our way!
Then, as we drove up through the mountains, we received a call from the oncologist with
preliminary results of Ian’s bone marrow tests. The last sample in early February contained
92 percent cancer cells. Now it shows 0 percent! Zip!
We’ll see how Ian does with skiing. I remember him lying in bed at the hospital and the doc-
tor talking about him walking around the block. At the time, that seemed so far out of reach.
Now look at him.
This whole experience has been a bit like a ski slope, with drop-offs and moguls. And spec-
tacular views of God’s stunning handiwork.
So, you want to learn to pray? Sometimes God answers with moguls. Sometimes it’s a marathon.
Praying Without Losing Heart
“Now He was telling them a parable to show that at all times they ought to pray and not to lose heart”
(Luke 18:1, NASB).
In the days that followed our ski adventure, a more thorough analysis of the tests revealed that we
had not yet reached the summit of being cancer free. It turned out that there were suspicious shadows
on Ian’s CT scan and negligible traces of cancer in his bone marrow. Like the pilgrim in Bunyan’s The
Pilgrim’s Progress, we looked ahead and saw a difficult road.
Throughout this ordeal I thought about others with a different story, those who weren’t seeing
their prayers answered the way they’d like. What about those others living with ongoing disabilities,
losing battles with disease, or grieving the tragic death of a child? Did our progress raise hard questions
for them? Did our joy deepen their pain? I wondered how I would be responding if things were going
differently. Our feelings would be different, but our faith, I believed, would be the same.
Praying in the face of pain can be like an obstacle course; some times you end up facedown in the
mud. The question is whether you’ll get up again to press on. The day we received that ominous diag-
nosis of alveolar rhabdomyosarcoma, it felt like an emotional hemorrhage had broken loose in my
brain. The look of grave concern on the face of the nurse practitioner was seared into my mind. I tried
to continue caring for Ian, making phone calls, dealing with what was in front of me. And I called a
dear friend to come. Within an hour he picked me up. I managed to close the passenger door before I
began sobbing and wail ing. I was facing the reality of death. After a while, the torrent slowed. I began
to move on and to live with that reality. I did not give up. But the idea of Ian’s death had been forced
into my field of view, along with the range of possibilities that I was preparing to face, the options I
was prepared to accept from the hand of God. And I was still convinced that God is good.
We were facing a road of persevering to eradicate the cancer and rebuild Ian’s health. The drama of
near death and miraculous progress was passing. The dust was clearing, yet the drudgery of pressing
on through weakness and nausea and pain remained. Praying in the face of pain often requires en-
durance. So we pulled on our hiking boots and trudged on toward the summit we longed to see.
Praying Through Hard Decisions
Pain can be disorienting, bewildering, like an unexpected two-by-four across the side of the head. Our
prayers come out like a mere yelp, and it’s hard to get much beyond that.
In the thick of things, sometimes my brain would freeze, like an overloaded computer. Sometimes
I’d stand in the closet unable to decide what to wear, or wander around in the hospital cafeteria won-
dering what to eat. The simplest decisions were sometimes just too much. My mental and emotional
bandwidth was occupied by the hardest deci sions of my life. I longed for someone to step in and
make the right decisions for us. It was an unwelcome opportunity to connect more deeply with Wis-
dom Himself.
The other day I was discussing a sticky issue with my boss when he said, “That’s your call, David.
You decide what to do.” Something inside me groaned. It would be so much easier if he would make
Pray i ng in the F a ce o f Pain , by D a vid Lyons a nd Li n da Ly ons R ichards o n
2
that decision for me! I wouldn’t have to think and pray in the same way. But leaders make decisions,
and he was spurring me to lead.
The questions we faced as Ian’s parents seemed endless and ter ribly important. God had answered
our prayers to the point where we were nearly certain he was cured. Should we continue the harsh
course of treatment set before us, just in case? It seemed foolish not to. We needed clear direction from
God and great courage to follow that direction.
As a leader, countless times I’d prayed for wisdom from above. Now, as a parent, I needed super-
natural wisdom more than ever. My child’s life was on the line! James 1:5 fit like a glove. After exhort-
ing us to embrace trials as friends, James went on to say: “But if any of you lacks wisdom, let him ask
of God, who gives to all generously and with out reproach, and it will be given to him” (NASB). I real-
ized that James’s promise of wisdom was especially addressed to those of us in pain. So I prayed. Boy,
did I pray!
In the meantime, one of Ian’s best friends beat up one of his not-so- best friends for making fun of
Ian’s bald head. That’s another approach.
Praying Through Our Motives
Some of the wisdom needed in the midst of pain is insight into our own hearts and motives. Pain lays
open our hearts like a surgeon. In 1 Corinthians 4:1-4 Paul made it clear that it’s very hard for us to see
our own motives clearly. In fact, Paul left it to God to sort that out for him. Nonetheless, pain does boil
motives to the surface. So I found myself asking God if our motives were more like Hezekiah’s or Paul’s.
King Hezekiah had been greatly used by God. But when he faced death, it became clear that he was
more obsessed with getting what he wanted than with God’s grand purposes for his life.
In those days Hezekiah became ill and was at the point of death. The prophet Isaiah son of
Amoz went to him and said, “This is what the Lord says: Put your house in order, because you
are going to die; you will not recover.”
Hezekiah turned his face to the wall and prayed to the Lord, “Remember, O Lord, how I have
walked before you faithfully and with wholehearted devotion and have done what is good in
your eyes.” And Hezekiah wept bitterly. (Isaiah 38:1-3, NIV)
Contrast Hezekiah’s attitude with the apostle Paul’s:
For to me, to live is Christ and to die is gain. If I am to go on living in the body, this will mean
fruitful labor for me. Yet what shall I choose? I do not know! I am torn between the two: I desire
to depart and be with Christ, which is better by far; but it is more necessary for you that I remain
in the body. Convinced of this, I know that I will remain, and I will continue with all of you for
your progress and joy in the faith. (Philippians 1:21-25, NIV)
Hezekiah felt that God owed him a long life. He feared death because he thought it was “the pit of
nothingness” (Isaiah 38:17, NASB). So when he faced death, he was desperate, clinging to life like he
was dangling over the end of his existence. How sad! But our merciful God gave the king another fifteen
years. It’s interesting, though, to read the next chapter. In those extra fifteen years, Hezekiah uninten-
tionally destroyed what God had built and preserved through him.
Pray i ng in the F a ce o f Pain , by D a vid Lyons a nd Li n da Ly ons R ichards o n
3
Paul, on the other hand, faced death again and again without fear, without self-pity. He did what
was prudent to preserve his life, but he did not act out of selfishness. Rather, he preserved his life so
that he could serve and bless others.
Why were we praying so hard to preserve Ian’s life? Was it because we feared his death? No! It was
because we believed God had noble purposes for Ian’s life in the years ahead. And those purposes were
already being fulfilled. People all over the world were being inspired by his courage and faith. Even the
Olympic athletes we’d met at the hospi tal were inspired. Somehow they identified with the sacrifice
and focus required of Ian to fight his battle. He spurred them on as they prepared for Beijing. And he
spurred all of us on toward an even greater prize.
Praying for a Miracle
Pain pushes us to stop dinking around with small prayers. You don’t ask for a pistol when you really
need an army. You don’t ask for a bicycle when you really need a truck. Extraordinary needs evoke ex-
traordi nary prayers. Besides, hanging out with Olympic athletes inspired us to think big thoughts. In-
stead of thinking something was too difficult, we began to think, Why not?
We’ve been taught to think big thoughts about God and to ask big things of God. A few months
into Ian’s battle with cancer, it seemed like we were on a roll, seeing miracles nearly once a week. So in
the coming weeks, when I heard an announcement for a big youth conference, I thought, Lord, would it
be too much to ask that Ian would be able to fully participate in this conference? Ian and his two brothers really
wanted to go, and it seemed so timely for each of them. Ian wanted to go so badly that he said he’d be
willing to just sit in the sound room and watch.
This was a big ask. Ian’s previous two chemo treatments had left him with a dangerously low white
blood cell count and a severely com promised immune system, requiring him to stay in isolation. What
we were about to ask for Ian’s blood cell count to be high enough to join a room full of hundreds of
people wasn’t as big as asking the sun to reverse its course (as God had done for Hezekiah), but it
was the same idea: reversing natural phenomena. But in the spirit of “Why not?” we began to pray that
God would miraculously strengthen Ian’s immune system so he could fully participate in the confer-
ence. A few days later, I wrote to friends:
I’m sticking my neck out in prayer for Ian. I so want him to be able to go to the Desperation
conference. Yet his count has dropped below the critical 500 level down to 200. And he was bat-
tling a low-grade fever last night. He seemed so frustrated when we discussed the implications
if his counts don’t rise today. Lord, will You answer our prayers and reverse this before his next
blood test this afternoon? It would be such a blessing. And it would be such a disappointment
if You don’t. Once again, I call on You to pour health and healing into his body.
The very next day Ian’s blood count rebounded beyond the mini mum we were hoping for (500)
and soared to 2,400! I imagine a chart of Ian’s blood counts with skid marks at the bottom where it
had been plummeting to zero but instead did a sudden reversal and raced back beyond 2,000. At this
point, Ian’s immune system was probably stron ger than mine.
What kind of God does that? It was exciting to see him reveal himself like that—to us, to our friends,
and to our neighbors who were all watching closely. Before all this pain, most of our neighbors were
not interested in our faith. Now they were on the edge of their seats watching us pray, and even praying
with us.
Pray i ng in the F a ce o f Pain , by D a vid Lyons a nd Li n da Ly ons R ichards o n
4
We all love miracles, but few of us want to live in the place where we need a miracle to succeed or
survive. We’d rather watch from the audience. But sometimes God chooses us out of the crowd to join
him up on stage, where he intends to amaze everyone. “You there, in the green sweater. Come on up
here.” Not knowing what to expect, we stumble forward, just as curious as everyone else. No, a lot more
curi ous than anyone else. And when it seems like only a miracle will do, we begin to pray as we’ve never
prayed before.
Praying Through Anxiety
We had mountaintop moments in which we confidently stuck out our necks asking for miracles, but
anxiety was no stranger to us during those times. We were filled with faith, but we were still human.
Once again I had crawled out on a limb asking God for something so bigfor Ian to go to the con-
ference and I was anxious out there. In desperation, I clung to Philippians 4:4-8 and waited for him
to show up.
Paul told the Philippians, “Rejoice in the Lord always; again I will say, rejoice!” (verse 4, NASB).
Throughout that day, as we waited to hear the results of Ian’s blood test, I tried to keep myself focused
on the Master, just as Peter needed to keep his eyes on Jesus in the midst of a chaotic storm. The Lord
is not anxious. he knows what is needed.
Then Paul said, “Let your gentle spirit be known to all men” (verse 5, NASB). Regardless of the sit-
uation — and in spite of my natural ten dencies when I’m feeling anxious — I tried to avoid becoming
harsh and forceful with the people around me. Instead, I asked God to fill me with his gentle Spirit so
thoroughly that others would see him and not me.
Paul continued by saying, “The Lord is near” (verse 5, NASB). I thought, Ah! It’s not up to me. I am
counting on You to walk with me through this day, into and through each situation. I know that You can handle it all.
I so readily try to take things into my own hands, especially when I feel responsible. I refuse to do that today. Please
keep me strongly aware of Your powerful, loving, and peaceful presence.
Then Paul got to the heart of it: “Be anxious for nothing, but in everything by prayer and supplica-
tion with thanksgiving let your requests be made known to God” (verse 6, NASB). So I prayed, O Lord,
help me to continually convert every shred of anxiety into prayer. You know the anxiety I am feeling on all fronts to-
day. Right now I commit each front to You. I roll Ian’s situation into Your hands. I trust You with him, his health,
and what is best for him regarding this conference. Accomplish Your purposes today, however You choose.
The passage also contains a wonderful promise: “And the peace of God, which surpasses all com-
prehension, will guard your hearts and your minds in Christ Jesus” (verse 7, NASB). Oh, I need that! I
cried to the Lord. Please make me an island of peace today. Rather, make me an overflowing fountain of peace.
Others around me will need it, too. But it has to be Your peace. Whatever peace I might naturally bring is gone today.
May Your peace surround me like a bodyguard, fending off every anxious thought.
Finally, Paul exhorted us: “Whatever is true, whatever is honor able, whatever is right, whatever is
pure, whatever is lovely, whatever is of good repute, if there is any excellence and if anything worthy of
praise, dwell on these things” (verse 8, NASB). So I prayed, Yes, I refuse the Enemy’s whispered doubts and ac-
cusations. Help me to dwell on what it true, honorable, right, pure, lovely, good, excellent, and worthy of praise—
which sounds like a description of You!
Of course you feel anxious when you’re in pain. Or when you’re hurting over someone else’s pain. The
question is what you’ll do with that anxiety. Paul urged us to convert every shred of anxiety into prayer.
Praying in the face of pain leads us into new spiritual territory, where we learn to pray under fire,
to pray for miracles, to pray when we’re worn out, to pray through our motives, to pray through our
Pray i ng in the F a ce o f Pain , by D a vid Lyons a nd Li n da Ly ons R ichards o n
5
anxi eties. Much of what happens through our praying happens in us. God uses prayer to change us.
But most of what drives us in prayer is what we hope God will do in our circumstances. Will he say yes
or will he say no?
When God Says Yes
As we continued to pray through the summer of 2008, the weeks brought one victory after another,
including the doctor’s amazing reversal about radiation and surgery that I described earlier. I described
that Yes! to our friends this way:
August 12, 2008
God did it! CT scan: 100 percent cancer free! Bone marrow tests: 100 percent cancer free! Plans
for surgery and radiation therapy: Reversed!
Thank you for praying. You play a part just as vital as the doctors and nurses. We use our
hands. You use your knees.
So, how are we feeling? Ian threw his arms around his mom when he heard. Renee called
me with tears of joy. Friends were literally jumping for joy. Ian ran around telling everyone at
youth group tonight. And me? Well, I’m quietly reflective.
You see, today I had lunch with a colleague who has two sons. One is severely handicapped.
The other one was recently killed in a tragic car accident. We cried together as he told me about
how he felt when the police came pounding on his door to tell him.
Why is God calling me to weep with those who weep as I rejoice with those who rejoice? I
find myself remembering John Hersey’s book Hiroshima. The main character was spared “acci-
dentally” from being killed in the nuclear blast. As he ran into the city to find his family, he was
confronted with hundreds of victims staggering out of the city, maimed and burned. It was so
overwhelming that he began frantically running from person to person, apologizing that he
was not hurt. Somehow that makes some sense to me right now.
Why me? Why not my colleague and his son? Why us? Why not them? Does God love us
more than them? NO! He is writing a different love story with them. The angel Gabriel ad-
dressed Mary saying, “Hail! Favored one!” Did she feel favored as she watched her son being ex-
ecuted? Did Elizabeth feel favored when she heard that her son had been beheaded? God’s favor
doesn’t always look the way we imagine.
And there is the heart of Amazing Grace. We tend to associate the phrase “Why me?” with
being hit by tragedy. Instead, that should be our response to God’s blessing.
As I look back, maybe God was preparing me. At that point, I did not know that within a few
months the cancer would sneak into Ian’s brain. The bell was about to sound as we were shoved back
into the ring for another round of praying in the face of pain.
When God Says No
We finished out 2008 with a holiday season full of rejoicing, even as we pressed through hard
chemotherapy. Then came 2009, which turned out to be a very different year. We prayed for miracles
with the same faith, the same fervency, but Ian’s health deteriorated before our eyes.
Pray i ng in the F a ce o f Pain , by D a vid Lyons a nd Li n da Ly ons R ichards o n
6
From David’s Journal
April 24, 2009
Medicine has played its last card. It is very clear to everyone involved that Ian’s healing is in
God’s hands alone.
We’ve seen God step in before. Even the most skeptical doctors acknowledged that Ian has
never followed the norms. He keeps baffling them. With God’s help, he’s won every battle so
far. He’s undefeated and facing his toughest match.
Renee and I are deeply exhausted. Somehow tonight it feels like our emotional and spiritual
support are wearing thin.
The image in my mind is that of a little girl sitting in the midst of a raging battle. Bombs
explode and bullets whiz by, but she does not move. She’s waiting. She’s waiting for her dad,
whom she knows will keep her safe. And we wait. We wait knowing that nothing will keep our
Daddy from accomplishing what he intends. We know he will keep us safe. We’re taking him
at his word.
April 26, 2009
We’ve been praying crazy faith prayers here. I feel like one of those pilots in a Star Wars
movie, strapped in for a life-or-death firefight. I engaged in the spiritual battle in earnest
Saturday afternoon. At 11 that night Renee texted me from home to say good night, and I
replied that it would be awhile before my head would hit the pillow. I was still stoked and
going after it in prayer. But soon the Lord impressed on me that he gives to his beloved even
in his sleep. So I slept until about 6 a.m., then resumed my part in this battle, while Ian car-
ries on his.
Yesterday afternoon Renee and I had a profound time alone with Ian. He was alert and
seemed to be “with” us. Tears were flowing as I said something like this:
Ian, I’m sure that somehow in the midst of all this Jesus is making himself known
to you in amazing and personal ways. And we want you to know that however he is
leading you, we want you to follow him. As far as we can understand his leading, we
believe that he intends to heal you. But if He is clearly telling you that he wants you
to leave us and go home to be with him, then we want you to do that. I really mean
that. Even though in the coming hours and days you’ll hear us intensely battling for
your healing in prayer, if Jesus himself is calling you home, go for it. Don’t worry
about disappointing us. That would be very hard for us, but we’d be happy for you.
However, if you hear Jesus calling you to fight, then I want you to FIGHT with all
you have. I know this has been incredibly hard for you. But if Jesus is telling you to
fight, then he will strengthen you. Don’t lose heart, son. Just follow Jesus however
he leads you. And he will enable you.
Then I strapped in for battle and kept at it for hours with a few breaks. Later, one of the
dear nurses was marveling at Ian and said, “He is fighting so hard!” My heart rose with hope
that Ian had heard his orders from Jesus and swelled with pride over my son’s response.
Pray i ng in the F a ce o f Pain , by D a vid Lyons a nd Li n da Ly ons R ichards o n
7
I prayed fiercely. I prayed as I wanted others to pray for me. I prayed as we had prayed before, when
we’d seen God do the miraculous again and again. But I was about to learn that praying is not always
about getting the results we hope for. Sometimes God has something even bigger in mind.
Questions for Reflection
How has your pain changed your prayer life?
What are the best answers to prayer that you have experienced?
What might it mean for you to “pray with your umbrella open” today?
Don’t Waste the Pain: Learning to Grow Through Suffering, by David Lyons and Linda Lyons Richardson, 2010. Used by permission of NavPress, all rights
reserved. www.navpress.com.
Pray i ng in the F a ce o f Pain , by D a vid Lyons a nd Li n da Ly ons R ichards o n
8
David Lyons is an international vice president of The Navigators. He oversees international initiatives,
communications, and networking of their five thousand staff in more than one hundred countries. David
loves photography and hiking in the mountains of Colorado. David and Renee are the parents of seven children.
David’s personal experience with Internet ministry led him to envision helping others to grow through
their pain through this book and through www.dontwastethepain.com.
Linda Lyons Richardson is a former merchandise-display artist and garden gift shop owner. She graduated
from Montgomery College, University of MD, and studied at Corcoran School of Art. Surviving ten years
of ovarian cancer, she now writes and spends time in her greenhouse. She and her husband Steve have
two children.
1
A Legacy of Prayer
By Joni Eareckson Tada
Baltimore, Maryland
December 1967
I tried to pray this morning. I needed to pray. But the words just weren’t there. I couldn’t think. Was it
because of the injury? The medications? I don’t know. I don’t know. I felt like someone in a little canoe
out on a lake in a heavy fog. I would paddle first one way and then another, but I could never seem to
go in a straight line or get any closer to shore. Everything seemed muffled and strange, and I couldn’t
see any landmarks to guide me.
And then I just got tired of paddling. Tired of even trying.
So instead of reaching for words that wouldn’t come, I just started thinking about Jesus: Walking
the earth doing miracles. Touching the man at Bethesda. Holding the little children in his lap. Hanging
on the cross. And now, lifted up so high. Beautiful, like the morning star just before sunrise.
That’s when it hit me. Jesus was with me in that canoe, out in the fog. My landmark wasn’t out there
somewhere, he was in the boat. And I didn’t need to talk just then. I could rest, feeling him close, know-
ing he was there.
Forty Years Later
That’s not all bad.
The fact is, there are still times in my life when words flee from me. I want to pray. I want to be near
to God. But because of pain or heaviness of spirit, I can’t summon the energy to put a prayer together.
I’m reminded of a little poem from one of my favorite books.
Prayer is the burden of a sigh,
the falling of a tear;
the upward glancing of an eye,
when none but God is near.
My friend Margaret Clarkson, now with the Lord, penned those words. And that bit of verse sum-
marizes so much of what I learned from this godly woman.
Margaret was a missionary in Canada who wrote many wonderful poems—and virtually each one
was born out of her life of severe and chronic physical pain. The last time I was with Margaret was at
Ontario Bible College. We spent lunchtime together talking, me in my wheelchair, and she lying on
her side on a cot. She was in so much pain she simply could not stand up for any length of time. As a
result, Margaret taught me many lessons about praying through pain.
I’m sure you can understand. You’ve probably experienced aching, sleepless nights when prayer
seems impossible, when you simply cannot summon up enough physical or mental energy to put two
sentences together in prayer—let alone pray to God “in his own language,” as I’ve suggested.
Or perhaps you wake up to face another day of watching a suffering loved one—and you are utterly
exhausted and completely unable to gather the shreds of your shattered personality and bring your
unspeakable need before the throne.
Margaret Clarkson experienced many a painful time like this, and I’ll never forget when she said,
“Joni, the first thing we must realize is that it is neglect of prayer or refusal to pray that is sin, not the
inability to pray. If the earnest desire to pray is present, we must not condemn ourselves because we
find prayer hard or even impossible.”
Looking back, I believe my missionary friend was harkening back to Psalm 38 where the psalmist
cries, “Lord, all my desire is before You; and my sighing is not hidden from You” (Psalm 38:9 NKJV).
And elsewhere it says, “The desire of our soul is for Your name and for the remembrance of You” (Isaiah
26:8 NKJV).
That was true of my friend Margaret. Her struggle to pray was never out of neglect or refusal. It was
simply at times her inability to order her prayers before the Lord in a clear and concise way.
But that didn’t really matter, because she never really stopped communicating with God. She of-
fered him her groaning.
And because of that, God fulfilled the desire of this extraordinary woman who truly feared the
Lord. Yet this dear saint waged never-ceasing warfare against allowing her infirmity to gain the place
of power in her life, a warfare against allowing her physical pain to come between her and Jesus.
If you are in pain—or perhaps gripped with grief or anxiety—as you read these words, you may find
prayer a difficult proposition. What you do manage to whisper to God seems feeble and faint.
Maybe so. But that fact doesn’t change the reality of Psalm 145:18:
The Lord is near to all who call on him,
To all who call on him in truth.
Jesus stands at the right hand of God’s throne on your behalf, and he is touched with the feeling
of your infirmities. Are your prayers faint and weak? Take heart. Jesus is praying for you.
And never, never underestimate the ability of our God to use the shakiest prayer of the weakest
saint to move heaven and earth.
Maybe something like the prayers of Corrie ten Boom, in her final days.
Praying in the Spirit
Corrie ten Boom survived the Nazi concentration camps and went on to travel the world to share Christ
with millions. A series of strokes severely incapacitated her, after which she retreated to the sanctuary
of her small home in southern California. But Corrie’s ministry did not stop. Her house became a sanc-
tuary of prayer.
A Le g acy o f Pra y e r, b y Joni Earecks o n Tada
2
Shortly before Jesus took her home, I went to visit with her. I wheeled into Tante Corrie’s house, and
the air was fragrant with the aroma of European coffee. A clock ticked and a kettle whistled. I sat in her
parlor, enjoying old photographs of the ten Boom family while I waited for Pam, her helper, to wheel
Corrie out of her bedroom. When she arrived, we talked—actually I did most of the talking, since the
strokes had severely limited her speech. I also sang to her several favorite hymns. What a grand visit!
Before I left, Corrie grasped her paralyzed hand with her good hand. Then, with great effort, en-
twined the fingers. Pam, understanding this gesture, knelt by Corrie’s wheelchair and looked up into
that determined face.
“Tante Corrie, may I pray with you, too?”
We bowed our heads and Corrie began. Her words were indistinct—part Dutch, part English, and
part neither one—but her voice was strong as she prayed earnestly in the Spirit. The Spirit was, in fact,
the only one who could understand her.
God could understand Corrie’s seemingly jumbled intercession as clearly as he read Margaret Clark-
son’s heaven-directed sighs and groans. Romans 8:26-27 says,
In the same way, the Spirit helps us in our weakness. We do not know what we ought to pray for, but the
Spirit himself intercedes for us with groans that words cannot express. And he who searches our hearts knows
the mind of the Spirit, because the Spirit intercedes for the saints in accordance with God’s will.
Don’t try to diagram the path of these prayers in the Spirit or wrap a precise theological definition
around them. Just know that God knows our every thought, and he has no difficulty sorting out Eng-
lish from Dutch, or prayers from some deep well of spiritual language that could never be translated
this side of heaven.
Margaret’s quick thought in his direction through a searing wall of pain spoke volumes in heaven.
And Corrie’s apparent gibberish—Spirit-aided as it was—may have stopped angels in their tracks as it
came before the Father.
But there is so much more to this mystery of prayer beyond even these wonders. And it shouldn’t
surprise us that rubies of surpassing value may be hard-won through suffering.
The Math of Heaven
Sometimes when my wheelchair gets me down or I feel like giving up because of the encroaching pain
of paralysis, I think of a young woman named Kim, and I am encouraged to persevere.
Perhaps more than any other person, Kim showed me that my life—and your life—counts. And it
counts more than we can possibly imagine.
I first learned about Kim when an elder from her church in Pennsylvania called to ask if I could
contact her with a few words of encouragement. “Kim is a brilliant 26-year-old Christian woman who
has always been active in our church,” he explained. “But last year she contracted motor-neuron disease
and now must stay in bed. She can hardly move and must be fed with a feeding tube.” The elder paused
a moment, then added, “Kim is very depressed. She’s wondering if her life is worth living anymore.”
I telephoned Kim right away. Her mother tucked the receiver against her ear and against the pillow.
I could hardly hear Kim’s voice, her breathing was so faint. We discussed many things, including our
favorite parts of the Bible, the subject of heaven, and prayer. Finally, Kim said faintly and with great la-
bor, “Joni, they want to give me a ventilator to help me breathe, but I don’t know whether I want one.
I’m so tired. Do you think I should go on a ventilator?”
A Le g acy o f Pra y e r, b y Joni Earecks o n Tada
3
For a moment I was speechless. Finally I took a deep breath, whispered a quick prayer, and replied,
“Kim, there are a lot of things to consider—not the least of which is that your decision will affect many
people around you. But of the two choices facing you, I think there’s a better one.” I then proceeded to
tell her about a simple but powerful Bible verse that has encouraged and guided me through the tough-
est times of my forty-plus years of quadriplegia.
Do not forget this one thing, dear friends: With the Lord, a day is like a thousand years, and a thousand
years are like a day. (2 Peter 3:8)
We all know the old adage that God looks at the last two thousand years as only a couple of days
gone by. But what about the other half of that verse? The part about seeing each day as a thousand years?
What kind of math is that?
It’s the math of One who lives outside of time, is not bound by time, and can step in and out of
time whenever he pleases to accomplish his purposes. If we really come to grips with the fact that God
can pick up any 24-hour day he chooses and give it an eternal impact of a thousand years, then each
day of our lives becomes immeasurably important—and brimming with opportunity. Each day God
gives us precious hours to invest in the lives of others—investments which will have eternal repercus-
sions in our lives and theirs.
But let’s carry the math out just a bit further. If 24 hours can have the impact of a thousand years,
then what kind of impact could a single hour have?
I figure about 41 and a half years.
And then what about a single minute?
Maybe something like eight and a half months.
Kim perked up as I began to speak with her about these thoughts. “But I’m in bed,” she reminded
me. “I can’t go anywhere or do anything. How can my life count in this condition?”
“First, Kim,” I replied, “you can pray. No matter how feeble or fainthearted your prayers may seem
to you, they have a very special power with God. It says in Psalm 10:17, ‘You hear, O Lord, the desire of the
afflicted; you encourage them, and you listen to their cry.’
“Do you realize what this means, Kim? It means that the Lord cups his ear to listen when someone
like you prays out of great affliction. He bends over backward when people offer him a sacrifice of
praise. Please hear me, Kim. I mean this with all my heart. God will use your intercessions to shake the
lives of those around you…as well as the destiny of nations.”
It was a big, big thought for Kim, but it intrigued her.
“Your obedience, Kim, counts for eternity. Now is your chance to stretch your soul’s capacity for
God! Your patience and longsuffering and endurance will resound with more glory to God than you
can possibly appreciate right now. As it says in Romans 8:18, ‘I consider that our present sufferings are not
worth comparing with the glory that will be revealed in us.’ If you can hang in there and keep a godly response,
then who can measure the impact? Who can put a value on how God will work through your prayers?”
Kim’s body was feeble. Dying. But there was nothing weak or faint about her opportunities to do
battle in the spiritual realm. I couldn’t help but think of those beaten-up, battered believers described
in the book of Hebrews “who through faith conquered kingdoms, administered justice… shut the mouths of lions,
quenched the fury of the flames, and… whose weakness was turned to strength” (Hebrews 11:33, 34).
Kim laughed as I went on and on. It was sweet to hear.
But that’s the way this young woman chose to live out her days. Can any of us calculate the impact
of her prayers? If she were to live only two more weeks with a perspective like this, that figures out to
A Le g acy o f Pra y e r, b y Joni Earecks o n Tada
4
be 14,000 years’ worth of eternal reward and glory. As she became progressively weaker and weaker,
who is to say that her ministry in time and eternity didn’t become stronger and stronger?
Unseen Realities
The lesson of 2 Peter 3:8 isn’t only for Kim, it’s for all of us who believe in the might of God and the
power of prayer.
Archimedes of Syracuse was a Greek mathematician, physicist, astronomer, and engineer in the sec-
ond century before Christ. Speaking of the lifting power of a lever, it was he who said, “Give me a lever
long enough and a fulcrum on which to place it, and I shall move the world.”
Presumably, even one tiny tap on that cosmic-sized device would move the whole planet. Prayer is
like that giant lever. Our smallest efforts, in faith, can have results that stagger the imagination. Your
prayers—even the smallest, weakest little gasps—can move nations and shape the destinies of multiplied
thousands.
Little wonder that Psalm 90:12 has us praying to God, “Teach us to number our days aright, that we may
gain a heart of wisdom.” So value your days and make the most of every opportunity for doing good be-
cause this is the kind of wisdom God wants you to apply to your 24-hour slices of time.
Life is so short, whether we’re hale and hearty or severely disabled.
James 4:14 warns us, “What is your life? You are a mist that appears for a little while and then vanishes.” No
wonder the Bible describes each day as being like a thousand years—that’s how priceless and precious
they are! Life is fleeting, and of all the things we waste, let’s not waste our sufferings.
I should tell you that Kim ended up living another month and a half after our conversation on the
phone. But as her mother told me later on, those 45 days—she looked at them as 45,000 years—were
some of the most meaningful and important weeks she had ever lived. Her life demonstrates that we
can all get a head start on eternity by understanding—and investing in—the real connection between
this world and the next. Our prayers—as well as our obedience, sacrifices, and Christian encouragements
toward others—have a direct and positive bearing on our capacity for joy, worship, and service to God
in heaven.
Here is a statement that probably goes directly against the grain of anything you’ve ever heard from
our contemporary culture: Life worth living is not found in a set of circumstances—whether pleasant
or painful. Life worth living is found in a Person, the Prince of Life. The Resurrection and the Life.
Jesus is the Way, the Truth, and the Life. He has the words of life. And the moments we invest in praying
for his will to be done in lives, communities, and even nations will extend beyond this life—and beyond
time itself.
Does this mean that every one of our prayers will be answered with a yes? No, but the prayers will
be answered in a way that brings God the most glory—and ultimate good to our lives.
Mary and Martha must have felt perplexed—and personally devastated—when Jesus deliberately de-
layed coming to Bethany after he received news of Lazarus’ illness: Why is the Master ignoring our request?
Doesn’t he care about our brother? Surely he’s forgotten about us.
The Bible tells us that Jesus heard the request and chose not to respond—at first. That divine deci-
sion made life hard for Mary and Martha in that brief season of time. Yet it is usually strange answers
to prayer that hide the deepest, best, and most beautiful purposes.
Mary and Martha did not receive a brother healed from the infirmary; they received their brother
raised from the cemetery. More than that, they received the gift of greater, sturdier, more robust faith.
God is interested in the same for you.
A Le g acy o f Pra y e r, b y Joni Earecks o n Tada
5
Here is a ruby, hard-won through 40 years in a wheelchair: God hasn’t promised me happy endings
to every life situation, but he has assured me of greater faith. And that’s the best ending, anyway.
The Legacy of Mary Rose
Just minutes before I was called up to the platform to address an overflowing convention several years
ago, I met Mary Rose. She shuffled toward me, leaning on the arm of her escort, her gait stiff and her
arm curled against her chest. I guessed she had cerebral palsy. She wore a tan cardigan over a yellow
cotton dress. Nothing fancy. Her glasses sat askew on her nose.
“Joni,” her escort said, “this is my friend Mary Rose, and she’s been waiting so long to meet you.”
Mary Rose stretched out her rigid arm to greet me. Her body may have been stiff, but her smile was
warm. She was excited to meet me, the person who had written the book that had meant so much to
her decades earlier. “And Joni,” her escort said, “Mary Rose has something to tell you.”
“I-have-been-pray-ing-for-you-ev-ery-day,” she said with great effort, “ev-er-since-I-read-you-book.”
Praying for me? Every day? I did some quick math in my head. Seven thousand times this woman
has lifted me up to the Savior! I watched her shuffle away, back into the shadows, as I wheeled out into
the light and the applause. But I didn’t feel important at that moment. God isn’t impressed by my
books, paintings, speeches, and world travel. When it comes to “entering the Master’s happiness,” the
highest accolades will go to people who have labored secretly and loyally in a daily—sometimes hourly—
ministry of prayer.
Someday on the Other Side, when Mary Rose steps into the radiant light to receive her magnificent
reward, I’ll stand happily on the sidelines, cheering and applauding.
Those who have fought battles and conquered kingdoms in the secret places of prayer may never
be recognized or affirmed in this life. But Someone has noticed every moment of that investment. And
their reward will have nothing to do with being bigger or better, well-known or watched, attractive or
charming.
But it will have everything to do with faithfulness.
Reprinted from A Lifetime of Wisdom: Embracing the Way God Heals You, Joni Eareckson Tada, 2009. Used by permission, Zondervan Publishing House, Grand
Rapids, MI.
A Le g acy o f Pra y e r, b y Joni Earecks o n Tada
6
Joni Eareckson Tada is the founder of Joni and Friends International Disability Center, a nonprofit min-
istry with a global outreach. A diving accident in 1967 left Joni, then 17, a quadriplegic in a wheelchair.
Since then, Joni’s wisdom and influence have been shared with the world through bestselling books,
radio programs, television programs and frequent speaking. Her radio program is carried by over 1,000
broadcast outlets and heard by over a million listeners. Joni is also an accomplished artist and singer. She
has served on the National Council on Disability and the Disability Advisory Committee to the U.S. State
Department.
1
The Lost Great Commission:
Luke 13:10 17:10
By Rev. Danl Markham
The Great Gospel Debate
Luke 14 must be considered within the wider context of Luke 13:22-17:10. A. T. Robertson in A Harmony
of the Gospels calls this season in Christ’s ministry “The Later Perean Ministry.” Luke 17:10 notes the
close of the first phase of the Later Perean Ministry as Jesus crossed over the Jordan back westward to
Ephraim or perhaps to Northern Judea,
1
only to return to Perea again through southern Galilee in his
final trek to Jerusalem; thus, he completed the second and final phase of the Later Perean Ministry.
His time in Perea was on the cusp of what is called “The Later Judean Ministry.” About A.D. 30, this
tour into Perea was an approximately three and a half month ministry to the far rural eastern edge of
Israel. Clearly Jesus was withdrawing from Jerusalem to the east because of the growing fury of those
whom he both unintentionally offended and sometimes purposely confronted—the religious leaders of
Judea and Jerusalem. These confrontations more often than not resulted in an embarrassment to the
rulers of the synagogues, the priests, and the Pharisees. Sometimes they were completely humiliated.
In John 10 we read of this confrontation motivating Christ’s move to Perea:
“…do you say of Him whom the Father sanctified and sent into the world, ‘You are blaspheming,’
because I said, ‘I am the Son of God’? If I do not do the works of My Father, do not believe Me;
but if I do, though you do not believe Me, believe the works, that you may know and believe
that the Father is in Me, and I in Him.” Therefore they sought again to seize Him, but He es-
caped out of their hand. And He went away again beyond the Jordan to the place where John
was baptizing at first, and there He stayed. Then many came to Him and said, “John performed
no sign, but all the things that John spoke about this Man were true.” And many believed in
Him there.
2
Scripture tells us that after the common folks of Perea heard Jesus tell the Parable of the Great Ban-
quet, “many believed in him there.” He didn’t simply have a standard marketing plan to minister in
large, urban areas such as Jerusalem, but went into the “villages,” to the common country folk. It is
here that Jesus also commands us to minister—“go out to the roads and country lanes” (Lk. 14:23).
No community—and no person—is too small or insignificant for the ministry of the Great Physician.
While I agree with A. T. Robertson that the geographic and chronological context here is the Perean
Ministry, I contend there is a more important thematic context: that of Christ’s interaction with others.
It is the growing conflict between Christ and Israel’s religious ruling elite. Christ’s teaching in the Luke
14 passage is an impassioned response to the conflict between the religious spirit of the day and the
working of the Holy Spirit; a clash of two kingdoms, of two spirits—a religious spirit and the Holy
Spirit.
Jesus’ teaching in Luke 14:1-24 climaxes with a running debate between Jesus and Israel’s religious
leaders, revealing their increasing jealousy and hatred for him. This passage clearly highlights two king-
doms in conflict. The first kingdom is religious, i.e. self serving, legalistic, judgmental, power hungry,
money hungry, and insensitive to human need. The other is the Kingdom of God, guided by mercy,
justice, faith, righteousness, peace and joy in the Holy Spirit (Romans 14:17, Matt. 23:23). The begin-
ning of this conflict of kingdoms is paralleled in the Gospels of Matthew and Mark (Matt. 12:10, Mk.
3:2). In his book Simply Christian, Bishop N.T. Wright offers this insight:
“God was about to act to bring in the kingdom, but in a way that none of Jesus’ followers (de-
spite his attempts to tell them) had anticipated. He would fight the messianic battle by losing
it. The real enemy, after all, was not Rome, but the powers of evil that stood behind human ar-
rogance and violence, powers of evil with which Israel’s leaders had fatally colluded. It was time
for the evil which had dogged Jesus’ footsteps throughout his career—the shrieking maniacs,
the conspiring Herodians, the carping Pharisees, the plotting chief priests, the betrayer among
his own disciples, the whispering voices within his own soul—to gather into one great tidal wave
of evil that would crash with full force over his head.”
3
The bodacious works of Jesus such as his performing several healings on the Sabbath, upset the
apple cart of the legalistic leaders of Judaism. These incensed, self-righteous and spiritually-hardened
men harbored a growing hatred for Jesus. It should be noted that this rising hatred for him was not only
about acts of healing on the Sabbath or Jesus’ meteoric popularity with the masses. At the center it was
about his proclaiming to be the Son of God (God himself—John 10:33); and indeed he was and is.
This particular series of debates or conflicts eventually ends with a sequence of parables through
Luke 16. “Therefore, the Jews sought all the more to kill him, because he not only broke the Sabbath
[by healing on the Sabbath], but also said that God was his Father, making himself equal with God.”
4
However, there were some members of the Jewish elite who didn’t cling to their religiosity and came to
believe in Jesus as the Christ.
5
So the full contextual framework of Luke 14:1-24 is revealed in Luke 13:10 – 17:10. It’s a conflict
of kingdoms—with the kingdom of darkness attempting to thwart God’s intent for humankind. This
involves two deeply integrated topics: 1) God’s people seeing the full harvest field as God sees it; 2) The
redemption of all who make up that harvest field. Most of this theme of redemption is played out in
these nine parables:
1. The Parable of the Mustard Seed, 13:18-19
2. The Parable of the Yeast, 13:20-21
3. The Parable of the Narrow Door, 13:22-30
4. The Parable of the Great Banquet Feast, 14:15-24
The L ost G rea t Com m issio n : Luk e 13:1 0 17 : 10, b y Dan l C. M arkha m
2
5. The Parable of the Lost Sheep, 15:1-7
6. The Parable of the Lost Coin, 15:8-10
7. The Parable of the Lost Son, 15:11-31
8. The Parable of the Shrewd Manager, 16:11-15
9. The Parable of the Rich Man and Lazarus, 16:19-31
The ultimate prize of the two kingdoms in conflict is the number of souls whose destiny becomes
eternally entwined with Christ the King.
God Is the Life of the Party
Now it happened, as he went into the house of one of the rulers of the Pharisees to eat bread on
the Sabbath, that they watched him closely. And behold, there was a certain man before him
who had dropsy. And Jesus, answering, spoke to the lawyers and Pharisees, saying, “Is it lawful
to heal on the Sabbath?”
But they kept silent. And he took him and healed him, and let him go. Then he answered
them, saying, Which of you, having a donkey or an ox that has fallen into a pit, will not
immediately pull him out on the Sabbath day?” And they could not answer him regarding
these things.
So he told a parable to those who were invited, when he noted how they chose the best places,
saying to them: “When you are invited by anyone to a wedding feast, do not sit down in the best
place, lest one more honorable than you be invited by him; and he who invited you and him
come and say to you, ‘Give place to this man,’ and then you begin with shame to take the lowest
place. But when you are invited, go and sit down in the lowest place, so that when he who invited
you comes he may say to you, ‘Friend, go up higher.’ Then you will have glory in the presence
of those who sit at the table with you.
For whoever exalts himself will be humbled, and he who humbles himself will be exalted.”
Then he also said to him who invited him, “When you give a dinner or a supper, do not ask
your friends, your brothers, your relatives, nor rich neighbors, lest they also invite you back, and
you be repaid. But when you give a feast, invite the poor, the maimed, the lame, the blind. And
you will be blessed, because they cannot repay you; for you shall be repaid at the resurrection of
the just.”
Now when one of those who sat at the table with him heard these things, he said to him,
“Blessed is he who shall eat bread in the kingdom of God!”
Then he said to him, “A certain man gave a great supper and invited many, and sent his ser-
vant at supper time to say to those who were invited, ‘Come, for all things are now ready.’ But
they all with one accord began to make excuses. The first said to him, ‘I have bought a piece of
ground, and I must go and see it. I ask you to have me excused.’ And another said, ‘I have bought
five yoke of oxen, and I am going to test them. I ask you to have me excused.’ Still another said,
‘I have married a wife, and therefore I cannot come.’ So that servant came and reported these
things to his master. Then the master of the house, being angry, said to his servant, ‘Go out
quickly into the streets and lanes of the city, and bring in here the poor and the maimed and
the lame and the blind.’ And the servant said, ‘Master, it is done as you commanded, and still
there is room.’ Then the master said to the servant, ‘Go out into the highways and hedges, and
The L ost G rea t Com m issio n : Luk e 13:1 0 17 : 10, b y Dan l C. M arkha m
3
compel them to come in, that my house may be filled. For I say to you that none of those men
who were invited shall taste my supper’” (Luke 14:1-24, NKJV).
Business of the highest order occurs at feasts centered on Christ—deep, meaningful, and neces-
sary fellowship. It is a wonder to peek into what the Scriptures say of the great final banquet feast.
I believe theend timesbanquet described by the prophet Isaiah is the same banquet Jesus spoke
of in Luke 14.
On this mountain the Lord Almighty will prepare a feast of rich food for all peoples, a banquet
of aged wine—the best of meats and the finest of wines. On this mountain he will destroy the
shroud that enfolds all peoples, the sheet that covers all nations; he will swallow up death for-
ever. The Sovereign Lord will wipe away the tears from all faces; he will remove the disgrace of
his people from all the earth. The Lord has spoken (Isaiah 25:6-8, NIV)
In Luke 14:13 and Luke 5:29, we find the Greek word doche, which literally means “entertainment,
festivities, or wine-drinking.” In the Song of Solomon “he brought me to his banqueting table” (2:4),
reads in Hebrew “he brought me into the house of wine,” thus a place of plenty, a place of joy of the
presence of the Holy Spirit; “for the kingdom of God isrighteousness, peace and joy in the Holy
Spirit” (Rm. 14:17, NKJV). “And do not be drunk with wine, in which is dissipation; but be filled with
the Spirit(Eph. 5:18). Wine throughout the Bible represents abundance, blessing, and joy which result
from the ministry of God the Holy Spirit to us. “Wine-drinking” isn’t an invitation to drunkenness,
but a celebration of joy while feasting and drinking the fruit of the vine at the time of harvest and
plenty, while enjoying God’s blessings. At the time of harvest in ancient Israel (July through September)
the choicest fruit of the vine was the freshest of the juice, before it began rapidly fermenting, which
was within 24 hours after pressing the grapes.
God wants the feasts with which he has chosen to bless us, to go VERY well—the finest of feasts;
and as far as it goes with God, “the more the merrier.” In verse 23 we see that God commands us to
reach these beloved people for him so his “house will be full.”
So the banquet Luke 14 speaks about will never find its equal this side of heaven. However, we can
get a taste of heaven as we bring the poor and those affected by disability into the life of God’s house
by going out and compelling them to come into the church.
In fact, some Joni and Friends Field Ministries along with local churches literally host Luke 14 Ban-
quets—inviting the poor and disabled into the church where they honor them and provide a first-rate
feast for all. It’s an incredible celebration, yet a mere foretaste of what is to come.
I have been privileged to minister the Gospel in several nations, from Russia to Guatemala. Never
have I seen such sweetness in the Holy Spirit, such fellowship divine, such a foretaste of family in heaven
as when I am privileged to serve the poor and those affected by disabilities. I’ve traveled from Krasnodar
and Krasnoyarsk, Russia, to a garbage heap village in Nicaragua and to Joni and Friends Family Retreats
in Middle America. I’ve witnessed circumstances in which God’s love was so thick you tingled from his
near corporeal presence; where joy was so profound you wept, where worship so divine you wanted to
do nothing else.
Isaiah describes it like this:
“Is this not the fast that I have chosen: To loose the bonds of wickedness, To undo the heavy
burdens, To let the oppressed go free, And that you break every yoke? Is it not to share your
The L ost G rea t Com m issio n : Luk e 13:1 0 17 : 10, b y Dan l C. M arkha m
4
bread with the hungry, And that you bring to your house the poor who are cast out; When you
see the naked, that you cover him, And not hide yourself from your own flesh? Then your light
shall break forth like the morning, Your healing shall spring forth speedily, And your righteous-
ness shall go before you; The glory of the Lord shall be your rear guard. Then you shall call, and
the Lord will answer; You shall cry, and He will say, ‘Here I am.’… (Isaiah 58:6-9 NKJV).
Jesus described the same scenario this way:
“When the Son of Man comes in His glory, and all the holy angels with Him, then He will sit on
the throne of His glory. All the nations will be gathered before Him, and He will separate them
one from another, as a shepherd divides his sheep from the goats. And He will set the sheep on
His right hand, but the goats on the left. Then the King will say to those on His right hand,
‘Come, you blessed of My Father, inherit the kingdom prepared for you from the foundation
of the world: for I was hungry and you gave Me food; I was thirsty and you gave Me drink; I was
a stranger and you took Me in; I was naked and you clothed Me; I was sick and you visited Me;
I was in prison and you came to Me.’
“Then the righteous will answer Him, saying, ‘Lord, when did we see You hungry and feed
You, or thirsty and give You drink? When did we see You a stranger and take You in, or naked
and clothe You? Or when did we see You sick, or in prison, and come to You?’ And the King will
answer and say to them, ‘Assuredly, I say to you, inasmuch as you did it to one of the least of
these My brethren, you did it to Me.’ (Matt. 25:31-40 NKJV)
The point is that Christ is powerfully present when we minister to those in need, especially to the
neediest of all—the sick, the hungry, the imprisoned, and the oppressed. As the renowned British Bible
scholar Matthew Henry said of this text in Matthew: “Christ is among us more than we think.” I urge
you to experience Christ in the face of the poor and in the pain of the afflicted. He will surprise you
with his presence when you minister for and to him in these places of suffering. He will pleasantly sur-
prise you when it is you who are ministered to by Christ through those whom you went to serve.
The ancient Scottish monk Angus recorded his thoughts and impressions after beholding a breath-
taking high valley in Scotland, calling it “a thin place.” He meant it was a place where heaven and earth
intersect or a place where one senses he or she is very close to heaven. Such is ministry to the margin-
alized—“thin places.”
Henry Blackaby in his famous book Experiencing God brings out a powerful ministry principle which
essentially says “figure out where God is working and join him there.” Friends, God has flashing red
arrows with reverberating sound effects pointing toward the poor and the disabled. Experience God as
never before in the face of the poor and in the presence of those affected by disabilities. Endless fields
of souls are ready for harvest—myriads upon myriads wait with receptive hearts to hear the Gospel, to
experience the light shining in their dark places; they wait to become your brothers and sisters in Christ.
In Luke 14 Jesus attends a feast put on by a “prominent Pharisee(vs. 1). In the “Parable of the
Great Banquet” (vs.15-24) God the Father invites all, but especially the poor and those affected by dis-
ability (vs. 13, 21, 23). He tells his servants that he is “angry” that his banquet house is not filled with
such people and urges them with passion “go out quickly” and “compel them” (literally, “make them”
or “hook them by the arm” and pull them along) to come “into my house.”
It is plain from this parable that those who were “well-to-do” were not inclined to answer God’s in-
vitation. However, those in need were more inclined to do so. Those in need, or who see their need,
The L ost G rea t Com m issio n : Luk e 13:1 0 17 : 10, b y Dan l C. M arkha m
5
have greater appreciation for what God has to offer. Unless we have a deep understanding of the ruth-
less destruction of our sin and the grievous displeasure it brings to God we will never have need of the
Great Physician to heal us from the greatest debilitating power on Earth—sin and the deadly eternal
consequences it brings. We will never partake of a foretaste of the Great Banquet Feast or experience a
down payment of our inheritance (Eph. 1:14-18), unless we seek healing from our sin.
As Jesus said, “Those who are well have no need of a physician, but those who are sick. I did not
come to call the righteous, but sinners, to repentance.” (Mark 2:17 NKJV).
An excerpt from The Christian Institute on Disability Course Reader (Agoura Hills, CA: Joni and Friends, 2008), pp. 1-6.
NO TES
1. Luke 17:11; John 11:54
2. John 10:36-42, NKJV
3. Simply Christian, Bishop N. T. Wright, p.110, 2006
4. John 5:18
5. John 13:42, 3:1-16, 7:50 and 19:39
The L ost G rea t Com m issio n : Luk e 13:1 0 17 : 10, b y Dan l C. M arkha m
6
Dan’l C. Markham served at Joni and Friends from 2001 to 2010, first as Director of U.S. Field Services
and more recently as Managing Director of Field Services. He currently serves as a consultant to Joni and
Friends. Dan’l has devoted most of his professional life to developing nonprofit organizations, including
Christian ministries. He has a bachelor’s degree in biblical studies and is an ordained Baptist minister.
Markham’s background includes being a newspaper reporter and editor, executive director of a regional
and national nonprofit organization, serving as a county commissioner, a director at an international Chris-
tian relief organization, church planter and senior pastor. He has authored numerous newspaper and jour-
nal articles, recently as a contributor for Disability Advocacy Among Religious Organizations—Histories and
Reflections.
1
The Kingdom of God and Disability
A C om m e n t a r y o n L u k e 1 4 : 1 - 2 4
By Rev. Steve Bundy
People with disabilities are shown as central to the teaching on the kingdom of God in Luke 14:1-24.
However, to understand Luke’s message regarding those with disabilities, we must also recognize
the eschatological or “future-oriented” nature of the broader section of Luke 13-14. One commen-
tator notes:
In two sets of units in sequential parallelism (13:10-35; 14:1-35), Luke explores a series of rever-
sals and paradoxical inversions associated with the manifestations of the kingdom of God, both
in connection with its present manifestation and in connection with its manifestation at the
time for the consummation of all God’s purposes.
1
For our study we will examine only Luke 14:1-24. Although we see the theme of “contrast and re-
versals” throughout the Gospel of Luke, it is seen most clearly in chapters 13 and 14, where Christ chal-
lenges various religious and social practices of the day and begins to introduce the “now and to come”
nature of the kingdom of God.
Religion that Does Not Reflect the KingdomLuke 14:1-6
Christ was invited to eat on the Sabbath with a prominent Pharisee and other guests. Similar to what
Luke recorded in chapter 13, Christ’s teaching here takes place on the Sabbath in the midst of religious
leaders, with a person with a disability as the focal point. The focus highlights both the here and now
and an emphasis on the future: “The language for the meal, θαγειν αρτον [thageiv arton], ‘to eat bread,’
anticipates that of v. 15 (in connection with the Kingdom of God): in Luke’s literary handling, this
Sabbath meal anticipates the eschatological banquet.”
2
This is the fourth time Luke records controversy over the Sabbath (Lk. 14:1). It is obvious that this
is a major issue between Jesus and the religious leaders (see also Lk. 6:1-5; 6:11; 13:10-17). Three of the
four occurrences involve a person with a disability.
3
A “prominent” host had invited Jesus—literally,
one of the “ruling” (αρχοντων των θαρισαι ω ν /arch oton ton tharisaon), meaning he was possibly a
member of the Sanhedrin. The significance is that: 1) those invited were likely of the upper class (Lk.
14: 7, 12), 2) those invited were other religious leaders, including “experts in the law” (Lk. 14:3), and 3)
“he was being carefully watched” (Lk. 14:1).
From the context it appears that they were still gathering to eat when a man with dropsy appeared
before them. The language is similar to that in Luke 13:11 which divides scholars on whether or not
the man was an actual “plant” by the religious leaders. Given the context that “he was being carefully
watched” (Lk. 14:1) and the apparent group of “experts,” it is likely that the man was planted there so
that Jesus could be caught in some trap of his own words or actions.
On a technical note, dropsy is an abnormal accumulation of fluid in the body that causes the body
to swell. It can be quite painful, not to mention making it physically difficult to move around. It is not
only serious in itself but is also a sign of illness affecting the kidneys, liver, blood, and/or heart. Rabbis
of Jesus’ day were of the opinion that a person so afflicted had committed a grievous sin (Nu. 5:11-27).
4
The NIV translation renders verse 2 as “There in front of him was a man suffering from dropsy” (em-
phasis added). The Greek here is literally, “And behold, a man certain there was dropsical before him.”
There is no use of the root word for suffering (πασχω/pascho, used in many NT texts to communicate
suffering; see Rom. 8:18). In other words, the NIV translators inserted the word “suffering” to best
communicate what they believed was the meaning of the text.
It has been said that suffering is the common denominator among all humans. Everyone will suffer
in some way. While some with a disability would not consider themselves “sufferers” any more than the
rest of humankind, most, I have found, would reasonably argue that there is a very real suffering that
does come with certain limitations and challenges resulting from (or associated with) their disability.
This argument, of course, grows in strength as we consider the plight of the disabled in less developed
countries. It is also important to note that suffering does not necessarily have the connotation of “vic-
tim.We see from Romans 8:20 that creation itself longs for redemption. Notice it is also in the context
of suffering that Paul wrote his letter to the Roman Christians (see verses 17-18). Due to the fall of man
in Genesis, all creation—especially humankind—experiences suffering, whether disabled or not.
While Christ certainly came to relieve suffering (Lk. 4:18-19), he also indicated that the poor would
always be among us (Mk. 14:7). In other words, not all healing means complete relief from suffering,
for everyone that Jesus healed eventually died. I have concluded that there are four main categories of
suffering that people experience at some point or another in their lifetime, disabled or not:
1. physical (including cognitive and mental suffering),
2. spiritual (a consequence of sin and separation from God),
3. emotional (circumstances of life such as heartbreak, divorce, loss of loved one, and other
disappointments), and
4. social/cultural (including socio-religious, socio-economic, socio-political, discrimination,
segregation, and the like).
It should be acknowledged, however, that in some cases the degree of suffering may differ for per-
sons with and without disabilities. In many cultures, it is fair to say that some of those with disabilities
have experienced deeper levels of suffering in all four categories than those without disabilities—and
this experience is often lifelong, rather than a one-time “crisis” that has a beginning and ending point.
Much of this suffering has to do with the culture and society in which they are born.
Jumping ahead in this chapter for a moment, we see that while Jesus did provide physical healing
for this man (Lk. 14:4), he later exhorted the host of the meal to include in his life the “poor, the crip-
The K ingdo m of G od an d Disa b ilit y A Co m m enta r y on L uke 1 4 :1-24 , by S t eve B undy
2
pled, the lame and the blind” (Lk. 14:13). While not every person on this earth is physically healed—
in fact, the majority are not—what Jesus provided here was a model that brought healing (relief) in all
four categories of suffering, the context for this healing being spiritual and social relationships.
Think of what spiritual encouragement and support is found in a community of relationships con-
nected to God; what emotional support is found when people around you can relate and “bear one an-
other’s burdens” (1 Cor. 1:3-7); what a change for the good in culture and society takes place when we
learn to accommodate and include “differences” that teach us about life; and what a difference shared
resources can make for those whose physical or intellectual limitations prohibit them from making
gains or having access to certain structures that they would otherwise not achieve or have access to!
Christ was, in a very real sense, creating the model he would later call the Church.
5
As with the woman with a disability in Luke 13, Jesus took immediate notice of this man with a
disability at the Sabbath meal. Knowing the hearts of those in this “hostile” gathering, Jesus asked the
experts in the law: “Is it lawful to heal on the Sabbath or not?(Lk. 14:3). There was a prevailing opinion
among rabbis that healing of the sick or disabled was not allowed on the Sabbath unless there was
a distinct probability that a person would otherwise die that day.
6
The question created a dilemma
for the religious leaders; what they had intended to be used against Jesus had now been turned on
and used against them. The text tells us they remained silent(v. 4). In his commentary on Luke,
Alfred Plummer explains:
The dilemma, if they had planned one against Him, is now turned against themselves. These
lawyers were bound to be able to answer such a question: and if rigorist Pharisees made no ob-
jection when consulted beforehand, they could not protest afterwards. They take refuge in si-
lence; not in order to provoke Him to heal, but because they did not know what to say. They
did not wish to say that healing on the Sabbath was allowable and they did not dare to say that
it was not.
7
In their silence Jesus healed. Taking the man, Jesus—as he often did—touched him during the heal-
ing process. After he was healed, Jesus dismissed the man from their presence, likely in order to remove
him from the situation where those present had a dislike for Jesus and now for this man whose presence
had brought about such embarrassment for them. Caught in their own trap, their concern for their
own religious traditions outweighed their concern for the disabled.
8
Sensing the tension, Jesus once again posed a question to expose the wickedness of their hearts: “If
one of you has a son or an ox that falls into a well on the Sabbath day, will you not immediately pull
him out?” This is a parallel to the context of Luke 13:15-16, with the exception that Jesus here did not
call them hypocrites. This is not because they were any less hypocritical than those he addressed in
chapter 13, but rather because those present had not yet spoken up against the healing—they were still
stumped over not being able to answer the first question regarding the law. Now, once again, they “had
nothing to say” (Lk. 14:6).
In the structure of this sentence Jesus placed the stress on “of which of you(τινυσ υμων/tinus
humon), framing the question as a specific question posed to each one who was present. Jesus also
used the word “immediately” to convey to them that just as they would not delay (another day) but
would think nothing of it being the Sabbath to rescue their son or animal if it were in danger.
There do not appear to have been any restrictions on rescuing a person or animal on the Sabbath
in Jewish Sabbath regulations. There were, however, restrictions among the Qumran people found in
The Damascus Document XIII: “Let not a man help an animal to give birth on the Sabbath day and if she
The K ingdo m of G od an d Disa b ilit y A Co m m enta r y on L uke 1 4 :1-24 , by S t eve B undy
3
lets her young fall into a cistern or ditch, let him not lift it out on the Sabbath.” Jews in general, however,
would not hesitate to rescue their family members or animals.
9
Once again, the religious leaders where
“red-faced” over their self-centered lives of caring more for their own children and animals than the
children of God. We also see that it is a person with a disability through whom the lesson comes—as
will also be the case in the remainder of chapter 14, where Christ illustrated the nature of the kingdom
of God in the consummation of the age.
Blind Hosts and Dishonored GuestsLuke 14:7-11
In verses 7-11 Jesus noticed that the guests were jostling for the places of highest honor. The irony here
cannot be overlooked. Jesus had just healed a man with a disability who had not been invited to the
meal. Rather than celebrating with this man over this miraculous intervention, inviting him to the
table and “hearing his story,” the guests were trying to gain recognition of their importance by means
of claiming the best seats. Jesus had just “claimed” this man with a disability for the kingdom and they
were busy claiming seats of recognition in their religious tradition.
Jesus told them a parable about places of honor at a wedding feast. Jesus likely chose this example
because the places of honor at a wedding were more clearly delineated than they would be for a meal
at the house of one of the Pharisees. In other words, even though it may not have been obvious that
their intentions were to obtain the seats of honor, he used a clear example in order to reveal what was
really happening. The point of “feast,” however, could also have been intended as a direct segue into
the instruction about “whom to invite to a feast” that Jesus was about to give to the host. In the parable
of the wedding feast it is the host who has the final say over who has the seats of honor. Do not overlook
the parallel in this story with what we read in Luke 13 and are about to see in the rest of chapter 14.
Who has the seats of honor in God’s economy, in God’s kingdom? The “Host” will decide.
Jesus stressed humility over pride and promotion over humiliation. Instead of having a self-righteous
attitude that one deserves and should take a seat of honor, Jesus taught that humility recognizes honor
is not determined by class, status, position, or wealth—rather, it is determined by God.
It would be a mistake to think this is a new teaching for the religious leaders. Jesus’ teaching here
echoes Proverbs 25:6-7: “Do not give yourself airs in the presence of a king. Do not occupy the place
reserved for important people. It is better to have someone say to you, ‘Come up here,’ than to be forced
to a lower place in the presence of a prince.” The problem for this group was not a problem of knowl-
edge, but of the heart. Though they knew well the teachings of Scripture, they were full of pride and
self-arrogance. Jesus ended this parable with the words, “For everyone who exalts himself will be hum-
bled and he who humbles himself will be exalted” (Lk. 14:11), much like the way he concluded his
teaching in Luke 13:30, “Those who are last will be first and the first will be last.” In the minds of these
spiritual leaders, the man with a disability was last and they were first. Jesus made clear this is not true
with the kingdom of God.
As if it were not already explicit enough, Jesus now turned to the host in verses 12-14 and spoke di-
rectly to him.
The HostLuke 14:12-14
Here we see one of the most descriptive explanations of the nature of the kingdom in the Book of Luke.
Similar to the pattern in chapter 13, Jesus moved from ministry to those with a disability (Lk. 14:1-6),
to a lifestyle of humility and placing others first (Lk. 7-11), to a lifestyle of daily inclusion of those with
The K ingdo m of G od an d Disa b ilit y A Co m m enta r y on L uke 1 4 :1-24 , by S t eve B undy
4
a disability (including the Gentile, poor, outcast and outsider), and concluded with a future view of
the kingdom.
Jesus gave this instruction to the host: “When you give a luncheon or dinner…” (v. 12). Similar to
the personal application Jesus stressed in Luke 14:5 (“If one of you has a son…”), Jesus also made his
“commission” to the host personal: “When you give a luncheon…” It is important to note that we find
here the first of two “commissions” in which Jesus gave clear instruction on the inclusion of those with
a disability into our personal lives and the life of the church. The first “commission” is to us individu-
ally. If our lives are to reflect the kingdom of God, then we should live like the King, a lifestyle inclusive
of those with a disability. The second “commission” here is to the Church, the representatives of his
kingdom. This is found in Luke 14:15-24, which we will look at shortly.
Notice that Jesus used both “luncheon” (αρι στον/ariston) and dinner (δειπνον/deipnon), which
suggests that Jesus was not merely referring to one particular meal, but rather was communicating the
notion of a comprehensiveness of meals to be encompassed by one’s hospitality. In other words, Jesus
was not suggesting just a special occasional meal; rather, one’s normal lifestyle should be that of in-
clusion of those with disabilities, those “others” not normally invited to a meal in their culture—those
outside their comfort zone of traditional association, those they considered “lowly” and would not
find in the seat of “honor.”
More specifically, Jesus mentioned here the typical guest list of a Pharisee, including “friends, broth-
ers, relatives and rich neighbors” (Lk. 14:12). He added that the motive of the heart is usually that of
reciprocity, a desire to be repaid in some fashion or form. He then provided an alternative guest list for
the host, one that comes from the “Host” of all banquets and has the places of honor already reserved:
“But when you give a banquet, invite the poor, the crippled, the lame, the blind and you will be blessed”
(Lk. 14:13). The contrast in lists was obvious to those present. The first list included those currently
present at the meal; the second list represented the man with a disability who had been healed (and
those with him) but who had not been invited.
This reversal and contrast is one that had been displayed in the life and teachings of Jesus. As Jesus
walked the earth and ministered to the needy he “revealed the Father” (Jn. 1:18), showing us the char-
acter and nature of God. Here he taught that the nature of the kingdom, which reflects the King (the
Host), is such that it has a place of honor for those who have been rejected, marginalized, and cast out
of religious and social settings because of disability or status. This text sets an understanding of the
nature of the kingdom that influences all that the Church is and does. For if the kingdom is one in
which people with a disability have a seat of honor, then the Church would do well to understand the
heart of the King and his love for the overlooked.
A lifestyle of inclusion of persons with disabilities will indeed return blessings, that is, blessings of
the kingdom.
10
As Hendriksen comments, “What minister cannot bear testimony to the fact that some
of the finest lessons he ever learned were given to him by the poorthe small, the sick, the handicapped,
the dying?”
11
Not only will there be an earthly blessing, but a heavenly one as well: “…you will be repaid at the
resurrection of the righteous” (Lk. 14:14). Once again the immediate context for discussion is earthly
ministry (here and now) set in the broader context of eschatology (the yet to come).
The Great BanquetNot What They ExpectedLuke 14:15-24
Once again we see the parallel of emphasis in chapters 13 and 14, with a focus on contrast and
reversal:
The K ingdo m of G od an d Disa b ilit y A Co m m enta r y on L uke 1 4 :1-24 , by S t eve B undy
5
By setting 14:15-24 (with its rounding up of totally unlikely guests for the banquet of the king-
dom of God) in parallel with 13:22-30, Luke establishes a dialectic between human responsibility
stressed here and the priority of God’s grace and initiative… The reversal here is of the expecta-
tion of those who experience the earthly ministry of Jesus and expect to be present at the ban-
quet of the eschatological kingdom.
1
2
As soon as Jesus brought up the resurrection of the righteous, someone at the table quickly jumped
on the topic of the “feast in the kingdom of God” (Lk. 14:15). From the context and Jesus’ response
it is clear that the tone of the one who spoke up was quite “pious.” Having just been rebuked by Jesus
about not caring for the disabled and outcast and being told about places of honor in God’s kingdom
being reserved for the poor, this guest tried to give a corrective reply regarding his (and the other
guests’) position in the great banquet of the kingdom.
This only added fuel to Jesus’ fire. In a sense, he responded with, “You want to talk about the king-
dom? Okay, let’s talk about the kingdom….” He then launched into a parable that is unmistakably a
climactic point in the Gospel of Luke. In chapters 13 and 14 Jesus had ministered to two persons with
disabilities, had twice rebuked the religious leaders for their hypocrisy and their greater concern for
their animals and own affairs than for the outcast children of God (all in his name), had foretold of
Gentiles and outsiders becoming “insiders” in the kingdom of God and “insiders” becoming outsiders,
and had specifically communicated that a lifestyle that reflects the kingdom was in fact a lifestyle of
inclusion of those with disabilities. Jesus now threw the final punch: all he had been teaching up to
this point was simply a reflection of the kingdom to come!
To those present, a discussion of the “feast in the kingdom of God” (Lk. 14) had a clear meaning.
Jews viewed the Messianic kingdom of God in all its fullness as that of a great banquet, with lavish
amounts of food, drink, and fellowship, with God ultimately ruling all the earth, including Gentiles:
“On this mountain the Lord Almighty will prepare a feast of rich food for all peoples, a banquet of
aged wine—the best meats and the finest wines.”
13
The thing symbolized in this way is the full enjoyment of blessedness in the perfected kingdom
of God. The lost are not only humbled so that they submit to the Lord, but they also take a part in
the blessedness of his Church and are abundantly satisfied with the good things of his house. Al-
though the feast is on Earth, it is on an Earth that has been transformed into Heaven; for the party-
wall between God and the world has fallen down; death is no more and all the tears are forever
wiped away.
14
To better understand the radical nature of what Jesus was saying to those present, it is necessary
to reflect upon the common Jewish theology of the day relating to this 700-year old conversation of
“The Great Banquet” in Isaiah 25. Kenneth Bailey in his book Jesus Through Middle Eastern Eyes provides
insight into the beliefs held.
15
When the Jews returned to Judea from the Babylonian exile, the language
had changed from Hebrew to Aramaic.
About the time of Jesus, an Aramaic translation of the Hebrew Scriptures known as the Targum
was used in the synagogues. Some of the translators of the Targum took great liberty in translating
the texts. As a result, the Targum gives us insight into how people in the first century understood
some of the biblical texts.
It is apparent that the translators of the Targum did not care for Isaiah’s all-inclusive vision of
the great banquet: “Yahweh of hosts will make for all the peoples in this mountain a meal. And al-
though they supposed it is an honor, it will be a shame for them and great plagues, plagues from
which they will be unable to escape, plagues whereby they will come to their end.
16
The K ingdo m of G od an d Disa b ilit y A Co m m enta r y on L uke 1 4 :1-24 , by S t eve B undy
6
Following in similar footsteps of the Targum translation, the Book of Enoch (2
nd
Century B.C.)
speaks of a great banquet with the Messiah except that it affirms the presence of the Gentiles. “But the
angel of death with be present to destroy those Gentiles. The banquet hall will run with their blood
and believers will have to wade through it in order to reach the table!”
17
The Qumran community (1
st
Century B.C.) was certain that no Gentiles would be present at the
great banquet. Only pious Jews who obeyed the law would be there. What is also clear from this scroll
is that no one with disabilities would be present. Listen to their Scroll of Messianic Rule as it relates to
the disabled: “No one can attend the banquet who is smitten in his flesh, or paralyzed in his feet or
hands or lame or blind or deaf or dumb or smitten in his flesh with a visible blemish.”
18
By the 1
st
Century, Isaiah’s vision of the inclusive great banquet is completely obscured by certain
prejudices against the Gentiles and the disabled.
1
9
Turning to the self-righteous man, Jesus reiterated in parable form what he had already said about
“seats of honor” and “guest lists” that had on them the names of the disabled and outcasts. He now
indicated that this “feast of the kingdom” in which they had put such self-confidence would in fact be
“filled” (Lk. 14:23) with those about whom he had just spoken. In the parable, a certain man was
preparing a great banquet” and had invited a large number of guests. In those days it was not uncom-
mon to first invite and then send a reminder. The story does not indicate that any had declined at the
first invitation, so they were expected to attend once the banquet was prepared. As the host eagerly
waited for his guests to arrive and enjoy the well-prepared feast, his servant returned with the mes-
sage—no one is coming—as if they were of one mind not to participate in this banquet. Luke makes it
clear in verse 18, which can literally be translated as, “And began with one (consent) to excuse them-
selves all.” As Plummer comments, “There was no variation; it was like a prearranged conspiracy: they
all pleaded that they were at present too much occupied to come. And there was not a single excep-
tion.”
20
Notice that of all the excuses mentioned, not one was a legitimate excuse that would justify “dis-
gracing” the host and his banquet. Buying a field, buying oxen, and getting married are all insufficient
excuses for dishonoring the host. What a powerful analogy for those who will not partake of this great
eschatological feast! It is as if something in their hearts led them to conspire together to hide behind
excuses in order to avoid honoring the host.
As the host listened to the servant he became angry at the illegitimate excuses and ordered his ser-
vant to “go out quickly in the streets and alleys of the town and bring in the poor, the crippled, the
blind and the lame” (Lk. 14:21). A reiteration of the “guest list” mentioned in Luke 14:13, Jesus was
now stressing once again that the kingdom belongs to such as these. That the servant had to go to the
“streets and alleys” (v. 21) conveys the socioeconomic position of the poor and disabled. Similar to
what we would experience in a downtown urban setting, a “street” was the broader, more traveled road
where you would expect to find beggars who are poor and disabled; “alleys” were more hidden, off the
path, and usually where the least of the least would be found. As Hendriksen explains, “the servant is
now sent into that part of the city where the underprivileged people were living; the poor, crippled,
blind and lame, the very people already mentioned in verse 13.”
21
Notice the segregation of the disabled
from the mainstreamed—the servant had to go out past the neighborhoods, hotels, schools, and even
the synagogues to find the disabled.
The master told the servant to “bring [them] in” (v. 21). Hendriksen goes on to comment:
This was probably necessary, not so much because, for example, the blind would not have been
able to find the banqueting hall unless they were taken by the hand and led, but rather because
The K ingdo m of G od an d Disa b ilit y A Co m m enta r y on L uke 1 4 :1-24 , by S t eve B undy
7
all of the groups here mentioned might well entertain serious doubts with respect to the ques-
tion whether a sumptuous banquet could really be for them.
22
A lifetime of neglect, abuse, and discrimination had driven the poor and disabled into the outcast
places of the city. Why would anyone want to celebrate them? Jesus’ teaching and lifestyle redefined
for the Jews of his day what the kingdom of God was all about.
James, the half-brother of Jesus, seemed to have “caught” what Jesus “taught” when he wrote:
My brothers, as believers in our glorious Lord Jesus Christ, don’t show favoritism. Suppose a man
comes into your meeting wearing a gold ring and fine clothes and a poor man in shabby clothes
also comes in. If you show special attention to the man wearing fine clothes and say, “Here’s a
good seat for you,” but say to the poor man, “You stand there” or Sit on the floor by my feet,
have you not discriminated among yourselves and become judges with evil thoughts? Listen, my
dear brothers: Has not God chosen those who are poor in the eyes of the world to be rich in faith
and to inherit the kingdom he promised to those who love him? (Jas. 2:1-5, italics added)
In verse 23, the servant reported that all the master had requested had been done, but there was
still room for more. The master then told the servant to go out again, but this time to the “roads and
country lanes and make them come in, so that my house will be full.This host was gracious and
wanted nothing he had prepared to go to waste—for he had plenty to lavish upon those who had been
neglected by society. “Roads and country lanes” were locations outside the city. Now that those inside
the city had been gathered, his servant was to go outside the city where the “untouchables” would be
living in small shacks and dwellings, many segregated according to disability or disease. The servant
was now to literally compel them to come in (v. 23). The language conveys a strong urging or compelling,
something that was necessary for them. The host desired that his house be “full” of people who were
poor, crippled, blind, and lame; he would not start the banquet until they had all been gathered and
had a place at the table. Those who in the comfort of their lifestyle and self-confidence made excuses
would in no way participate in the banquet. But for those with a disability and others marginalized in
their society, the host made it clear: the kingdom was made up of “the least of these brothers of mine”
(Mt. 25:40).
As he ended the parable in verse 24, it is clear from Luke’s writing that Jesus switched from a parable
of a host to himself as host, speaking directly to those present: “I say to you (plural).” He now made it
a personal address to those listening: you are the guests who made excuses; those who did not make ex-
cuses are the poor, the crippled, the blind and the lame (v. 21).
23
What Jesus makes clear in these verses is his heart for those with disabilities. There should be no
doubt where Jesus stands in his love and compassion toward those affected by disability. Likewise, there
should be no doubt among an unbelieving world where individual Christians and the Church stand
in our care and concern for those touched by disability. As Jesus taught in the account of the Good
Samaritan, “Go and do likewise.”
The K ingdo m of G od an d Disa b ilit y A Co m m enta r y on L uke 1 4 :1-24 , by S t eve B undy
8
NOTES
1. John Nolland, Luke 9:21-18:34, Word Biblical Commentary, vol. 35B (Dallas, TX: Word, 1993), p 721.
2. Ibid, pp 745-746.
3. There are numerous other recordings of Jesus with the disabled in Luke and the other gospels, but three specifically on the Sabbath in Luke.
4. William Hendriksen, Exposition of the Gospel According to Luke (Grand Rapids, MI: Baker Book House, 1978), p 720.
5. Much of the thoughts here on suffering and the church comes from my personal experience working professionally with the physically and devel-
opmentally disabled—as a licensed minister, pastoring families affected by disability and as a staff member at Joni and Friends International Disability
Center—but also and especially, from my experience as a father of a son with physical and developmental disabilities.
6. William Hendriksen, Exposition of the Gospel According to Luke (Grand Rapids, MI: Baker Book House, 1978), p 720.
7. Alfred A. Plummer, A Critical and Exegetical Commentary on the Gospel According to St. Luke (Edinburgh, UK: Morrison and Gibb Limited, 1989), p. 355.
8. See also Luke 13:14, where the synagogue ruler rebuked the woman with a disability and those with her for coming for healing on the Sabbath.
9. William Hendriksen, Exposition of the Gospel According to Luke (Grand Rapids, MI: Baker Book House, 1978), p 720.
10. For further study on the blessings of friendship with the disabled, refer to Joni Eareckson Tada and Steve Jensen, Barrier Free Friendships (Grand
Rapids, MI: Baker Book House, 1997).
11. William Hendriksen, Exposition of the Gospel According to Luke (Grand Rapids, MI: Baker Book House, 1978), p 725.
12. John Nolland, Luke 9:21-18:34, Word Biblical Commentary, vol. 35B (Dallas, TX: Word, 1993), pp 734, 736.
13. ee also Isa. 25:6; see also Ps. 23:5; Mt. 8:11-12; 22:1ff.; 26:29; Mk. 14:25; Rev. 3:20; 19:9).
14. Carl F. Keil and Franz Delitzsch, Commentary on the Old Testament, Trans. J. Martin (Grand Rapids, MI: William B. Eerdmans Publishing Co., 1969),
p. 439.
15. Kenneth Bailey, Jesus Through Middle Eastern Eyes (Downer’s Grove, IL: IVP Academic, 2008).
16. Ibid., p. 310.
17. Ibid., p. 311.
18. Ibid., p. 311.
19. I am grateful for the work of Dr. Kathy McReynolds in summarizing Kenneth Bailey’s chapter on Isaiah 25.
20. Alfred A. Plummer, A Critical and Exegetical Commentary on the Gospel According to St. Luke (Edinburgh, UK: Morrison and Gibb Limited, 1989), p. 361.
21. William Hendriksen, Exposition of the Gospel According to Luke (Grand Rapids, MI: Baker Book House, 1978), p 732.
22. Ibid.
23. J. M. Creed, The Gospel According to St. Luke: The Greek Text with Introduction, Notes and Indices. (New York: St. Martin’s Press, 1957), p 192.
The K ingdo m of G od an d Disa b ilit y A Co m m enta r y on L uke 1 4 :1-24 , by S t eve B undy
Steve Bundy is the Vice President of Joni and Friends overseeing the Christian Institute on Disability and
International Outreach. He was a contributing author to Life in the Balance: Biblical Answers for the Issues of Our
Day, and co-executive producer with Joni Eareckson Tada of the Telly-Award winning television episodes,
Making Sense of Autism: Myths That Hide the Truth and Truth for the Church. Steve has served as adjunct professor
at Master’s College and has lectured on disability ministry at educational institutions and conferences around
the world. He frequently appears on “Joni and Friends” television episodes, national radio and has written
articles or been interviewed for Christianity Today, Charisma Magazine, Focus on the Family and others. Steve and
his wife Melissa know firsthand the joys and challenges of parenting a child with special needs, as their own
son, Caleb, was born with a chromosome deletion which resulted in global delay and a secondary diagnosis
of autism. Steve holds a B.A. in Theology and Missions, a Certificate in Christian Apologetics and an M.A.
in Organizational Leadership. He is a licensed minister and has served as a pastor and missionary.
9
1
Love, Life and Worldview
By Chuck Colson
(Written from remarks given during Joni and Friends President’s Retreat 2009)
As a driven, Type-A personality, there is only one person who can slow me down—my grandson, Max,
who has autism. When Max is in town, he becomes my agenda. We love Max dearly, and he’s taught us
lessons about love that we couldn’t have learned any other way. I’ve come to see that those with so-
called disabilities among us are really gifts of God. Take Joni Eareckson Tada, for example. I can’t imag-
ine living the way Joni does and always smiling. It’s an amazing thing to see God work so powerfully
through her life. Joni and Friends is one of the most important ministries in the country—or in the
world perhaps—because she is one of the most effective advocates for life created in the image of God
and for every life being precious. Joni’s an advocate in two ways—she’s extremely articulate, and she
also lives it.
The German scholars in the eugenics movement of the 1920s referred to “life not worth living.” It
was considered an enlightened view that we would weed out the unfit and create a perfect race. It was
in the salons of the cultural elite in England, the United States and Europe where eugenics became the
fashionable ideology of the day. However, the horrors of eugenics were made manifest during the regime
of Adolf Hitler. We’ve assumed that this all ended after World War II, after the Holocaust, but it’s been
resurrected with a vengeance, and we’re seeing it today in various forms.
Can you imagine looking at Joni’s life and all that she’s accomplished, and saying it’s a life not
worth living? It makes me angry when people start talking about the disabled and their lives being
meaningless, and how they’ll never be able to accomplish anything. I’ve seen firsthand that it’s not true
because Max has already taught our family so much about love. I have come to realize that God sent
Max to me so I could learn about sacrificial love.
How Do I Love Thee?
Children are gifts because they enable us to experience a truly sacrificial love by investing in another
person. It’s the closest we can come to the holy experience of really knowing God’s love. We cheapen
the phrase in America because we only have one word for love. [In the Greek] there are four kinds of
love: storge (affection), eros (romantic love), philia (brotherly love), and agape. Agape is the only one that
is not subjective, it’s objective. Agape love is the very nature of God, who is completely serving others,
giving of himself even to the point of sacrificing his Son on the cross. The only way one can understand
and experience agape love is to put one’s self completely out of the picture. In John 15:13 we read that
there’s no greater love than to lay your life down for your brother. How we treat human life; how we re-
gard life, is the beginning of how we understand all of reality. If we miss that, we miss everything. In
my book The Faith I try to equip Christians to know what they believe, how to defend those beliefs and
why it’s important to know the basic truths of the Christian faith.
1
In the chapter on life it says if some-
one claims to be pro-choice—that is taking innocent life for no reason—then they should check whether
they’re really living in obedience to God and whether they belong in the fellowship of the Christian
church. Life is the key to everything.
The single greatest need of the Christian church is to understand that Christianity is not just a re-
lationship with Jesus, it’s a way of seeing all reality. The logos [is referred to] in John 1:1. Saint John was
a Greek and knew what logos meant to the Greeks. We translate it as the word, but it meant far more
than that. It meant all truth that could ever be known, all truth that ever was in the world. And it’s
embodied in Jesus. We reduce God and minimize him from someone all powerful and over everything.
Worldview and Its Implications
Christianity is a worldview because it tells you everything about how you live your life—whether it’s
law, politics, family, neighborhood, music, science—whatever it is. Christ speaks to each of these issues.
And we must understand that we’re in a clash of worldviews today. Everyone has a worldview. Your
worldview answers four fundamental questions:
1. Where did we come from?
2. Why is there sin and suffering?
3. Is there an answer, is there a way out?
4. What’s my purpose, or why am I here?
The first question is fundamental and the answer defines your worldview. This is why all issues
about life today begin with the question of where did we come from and what is the nature of what it
means to be human? If we get this wrong, nothing else will make sense. Christians answer that we were
created in the image of God—The Imago Dei.
I celebrated my 78th birthday in a women’s prison in Texas, surrounded by 60 women in white
suits. It was a dreary, drab place with no windows. I looked at the women with their scars, no makeup,
hair all askew and told them that they were beautiful, and that I could see the image of God in each of
them. When you go to prison you lose all of your dignity. I know because of the seven months I spent
in prison. They strip search you, take everything away and mail it back home. You’re given a number
and told to do your time without complaining. But I told those women not to pay any attention to
that because their dignity comes from being made in the image of God himself. The women got tears
in their eyes and were filled with joy as they came to understand. I’ve seen it happen in prisons all over
the world. You cannot get dignity from your job, from fame, power, from people saying wonderful
things about you—none of this gives you dignity. Only the fact that we were created in the image of
God gives us dignity.
Secular/naturalists believe in natural selection and evolution and that we’re basically “grown up
germs.” How can you find dignity in this? You’re an accident! An accident doesn’t have any dignity or
a soul. If it is natural selection, what is the process by which that selection is made? It’s the process of
Love , Life and Wor l dvie w, by Ch u ck Co l son
2
survival of the fittest. So the ultimate ethic of secular/naturalism has to be survival. You’ve succeeded
only by surviving at the expense of others.
Christians, instead, believe that every single person is made in the image of God and that everyone
is created equal. That everyone has equal dignity and is entitled to complete respect as a human being
alone among God’s creation. We are His crowning achievement. He created man, created woman and
joined them together as one flesh. That’s the creation covenant and that’s why marriage is so central
to us. That’s why we have to fight that fight to the last drop of blood in us. Because once you’ve sur-
rendered that you’ve surrendered the creation covenant. You haven’t just surrendered the question of
marriage, and whether it can be heterosexual or homosexual, you’ve undermined the creation covenant.
We were created in the image of God in order to be joined together as one flesh in order to procreate
and raise children—that’s the creation covenant.
When Rodney Stark started writing his book, The Victory of Reason, he was an agnostic.
2
He was a
sociologist at Berkeley, the University of Washington and is now at Baylor. I featured it on my radio
program, “Breakpoint,” because it explains how Christianity built the west, and I noted that Stark was
an agnostic. Stark called me the next day and said thanks for featuring his book but that I’d made a
mistake. He said he was an agnostic when he started writing the book, but by the time he finished he
was a Christian. We must examine what Christianity did to build the West, especially its emphasis on
human dignity, the understanding of freewill and how it has enabled us to be the great Western civi-
lization that we are.
The Problem of Sin
The next question you have to ask is: if God created all of this, and we’re really created in God’s image,
why is there sin and suffering? That’s called the theodicy—how could an all-powerful God be also all-
loving at the same time? Albert Einstein believed in God, believed in a rational mind that created the
universe, but he couldn’t get over the problem of why there was evil. I’ve talked to some atheist philoso-
phers who’ve converted and become theists, but they can’t understand the God of the Bible because
they can’t understand the problem of sin. The problem of sin is answered by freewill. God so loved us
that he created us in his image, which means his essence is freedom, his essence is love and you can’t
truly love someone if it’s done under compulsion. So every human being had to be given a free will.
And our first parents disobeyed. They wanted to be like God. Thereafter, human nature was bent. If
you look at human nature today and study it as some psychiatrists and psychologists have done, you’ll
note their observation that, “Human beings are capable of great good and great evil.” All of the prob-
lems you see in the world are a result of people having exercised that free will. God could end it in a
snap and make us all like puppets, but then you couldn’t love him. Or, if you loved him, it wouldn’t re-
ally be love because it would be compelled. He created us to love us as people created in his image. Hu-
man sin causes many problems, but that means humans have responsibility for their own behavior, if
not we wouldn’t have a sense of responsibility.
One of the things I’m most worried about today is what Alexis de Tocqueville prophesied about
America. He said America will have freedom so long as the intermediate structures of the civil society
are strong. But if government ever begins to take that over, people will eventually begin to look to gov-
ernment for their happiness rather than God. And that’s happening today. That’s a very grave threat
and our religious freedoms are in great danger. I was a part of a group of about 60 Christian leaders
who met in New York to come up with a statement called the Manhattan Declaration. In this declara-
tion we reaffirm our fundamental commitment to life, marriage, and religious liberty and reaffirm
Love , Life and Wor l dvie w, by Ch u ck Co l son
3
that we will not give to Caesar that which is God’s, no matter what. We’re at a crossroads in our society.
We’re right at a point where we could tip over exactly as Tocqueville warned.
Oppression and Deliverance
The second question is if you don’t start out with life created in the image of God, then you say we’re a
chance collision and have no dignity. So why is there sin and suffering? Jean-Jacques Rousseau, the fa-
mous philosopher who started Enlightenment thought, said, “Everywhere man is born free, but he is in
chains.” So his thesis was that the reason there’s sin and suffering is that society was oppressing him.
Karl Marx said the same thing. Sigmund Freud said the same thing, adding that you’re sexually inhibited
and that’s why you’re oppressed, and so we should throw off the inhibitions and do anything we feel
like doing. And this would set us free. What it has done has been an invitation to tyrants. If we as human
beings have no innate dignity, and there is sin and suffering in the world, then what you’ve got to do is
give me power to impose my ideology, and I’ll deliver you from that which is oppressing you.
I’ve gone back through history and read every single tyrant’s writings. Hitler was the most recent,
but Pol Pot used to send people off to the killing fields reading Rousseau. The Great Society was filled
with this notion in our own country that we could deliver people from oppression through ideology.
It is the surest road to tyranny. Give up human dignity, make people simply pawns of the state, and
you have tyranny. This is why none of the other worldviews work, because they eliminate the idea of
human responsibility.
The third question of whether there is an answer or a way out, you see with secular/naturalism as
“worldly utopia.” You hear politicians on both parties talking about it all the time saying, “We can
create a perfect world.” And I cringe whenever they do because they can’t create a perfect world. They
can govern; they can restrain sin; they can do justice, but they can’t create a perfect world—only God
can do this… and only when people live by God’s law.
So what do we [Christians] have? I’ve preached all over the world about the substitutionary, atoning
death of Jesus Christ on the cross to free us from our sins. I remember doing it in a Hindu prison with
a thousand men all crouching on their haunches as I preached the message about Jesus: You could be
born again; your sins could be forgiven; and you could have a new life. Hindus do not understand this
because in Eastern religions what you do in this life is what will be done to you in the next life. There’s
really no hope. I watched these guys’ eyes open wide. And then I jumped off the platform and walked
in their midst. They were all untouchables and just surrounded me wanting to touch me, with tears
flowing down their faces. The Gospel is the greatest liberating message ever given in human history.
And it’s a historical fact that Christ came in the flesh and was raised from the dead and lives today,
and we can live accordingly. That’s historically validated. You can prove that Christ rose from the dead,
and I would argue that case in any court because the evidence is overwhelming.
Where the Rubber Meets the Road
The final, most pressing issue is: What is my purpose in life? This is what it all comes down to and
where the rubber meets the road for us. Once you have the Christian worldview down—the first three
points—you then know that you have a purpose. I don’t care if you’re sick. I don’t care if you’re disabled.
I don’t care if you’re in a wheelchair like Joni is. I don’t care if you’re old and feeling weak and feeble. I
love getting up in the morning because I know I’m part of God’s kingdom, and I’m going to do some-
thing today. Maybe it’s just a prayer or a smile to someone who is having a bad day, but I’m going to
Love , Life and Wor l dvie w, by Ch u ck Co l son
4
do something to advance God’s kingdom. We’re never without a purpose. How do you find a purpose
if there’s no human dignity?
I live in Naples, Florida, where it’s beautiful and the CEOs come down to retire at 65 and think
they’re in heaven. They do their golf every day and their drinks at night and meet with their friends,
and after six months they start showing signs of atrophy. They deteriorate because they don’t have a
reason to keep on living. No one is asking for their advice, or deferring to them. So they sit around and
talk about how their gardener is doing a poor job. This is death! This is God’s waiting room. They are
not alive. They don’t have any purpose except to eat, drink and be merry! Live it up! But a Christian
doesn’t believe that, because he believes he’s part of a cause and that cause is to advance God’s Kingdom.
That means helping the poor, ending discrimination, protecting the people who are defenseless and
the most vulnerable in our society. That’s your purpose.
This is why the battle that is going on right now for the heart and soul of America is a battle for
keeps. And the secular/naturalists have the power. Peter Singer at Princeton is the leading advocate of
what he calls Utilitarianism. What are your ethics if you weren’t created in the image of God? What is
the basis of ethics? How do you find a moral truth that applies to all people? You can’t if you believe
there is no truth, no moral purpose, no overarching moral standard. We’re just in this jungle with peo-
ple trying to survive. There’s no right, there’s no wrong. Ethics deteriorate immediately into doing the
greatest good for the greatest number. Doesn’t that sound like democracy—doing the greatest good
for the greatest number?
They asked Columbia Law School students what that question was describing, and they answered
that it was describing democracy. Actually, it’s Hitler’s philosophy. Hitler said, “I’m going to take power,
and I’m going to do the greatest good for the greatest number. I’ll eliminate the people who are defec-
tives.” Under his regime, if you didn’t work for two years you went before a hearing board in Germany
and if you didn’t have a good excuse you weren’t seen again. You disappeared off into a box car and off
to a camp where you were gassed. Get rid of the people who can’t contribute to society. Get rid of them
in utero, get rid of them with infanticide, which is Professor Peter Singer’s idea. He says we should see
what the child is like, even take a few months or even a year, and if the child isn’t going to be what you
want then you can kill him. He argues that animal worth is the exact same as human worth. That’s
why he’s very much involved with People for the Ethical Treatment of Animals. He even said bestiality
was natural because all animal life is exactly the same, so why not? A colleague debated him and said
if bestiality is fine because all consensual sexual relationships are ok, how does the animal consent?
This argument stopped Singer cold for 30 days and then he came back and said you can tell when an
animal wants it.
This man is teaching to packed classes at Princeton. Eugenics is back, and it’s going mainstream.
You see Singer on television all the time. One of his close friends is Robbie George, a professor at Prince-
ton, and one of the brightest men I’ve ever known. He’s the McCormick Professor of Jurisprudence
and says they gave him that chair just to balance out Peter Singer because the alumni were so angry
that they’d put Singer as the chair of the Ethics Department. Robbie watches the classes and says the
kids pour into Singer’s classes with their open minds, and it is so plausible and so logical—if there is
no God—that they buy it immediately.
Harriet McBryde Johnson, a great disability rights advocate but an atheist with whom I’ve had long
conversations, debated Singer and lost because Singer couldn’t imagine how an atheist could believe
anything else. And an atheist can’t. Harriet McBryde Johnson, who has since died, was a very effective
advocate for the rights of the disabled, but there are no rights inherent to the disabled if there are no
rights inherent for human beings. So she lost the debate.
Love , Life and Wor l dvie w, by Ch u ck Co l son
5
This is why I say it all comes back to life, and why I say Joni’s role within the Christian world and
the world at-large today is so incredibly important. Because she disputes the arguments that became
so fashionable in the early 1920s in London, Germany, Berlin, in Philadelphia, New York, among The
Metaphysical Club at Harvard, and with Oliver Wendell Holmes. He handed down the Buck decision
on the Supreme Court—the most offensive decision ever—in which he sterilized a poor woman because
she had come from a family which had three generations of mental disability. The Supreme Court of
the United States ordered that woman to be sterilized. And famously in his decision he said, “Three
imbeciles are enough for one family.” Oh my! We believed that stuff back in the 20s, and we believe it
today. Ironically, it’s the liberals who are advancing this in the name of liberalism. It’s pure nonsense.
It’s saying that if you’re among the majority you’re okay, but if you’re on the margins of society, see
you later.
The Battle Cry
I am convinced that the biggest single weakness of the church is that we have a reductionist view of
Christianity—it’s just me and Jesus. We think we’re in good shape. Jesus is taking care of me, and I’ve
got a great relationship with Jesus. That’s an abomination! Jesus is the logos, the source of all truth, all
understanding about all of life. We Christians have got to get active.
There was a study and a Newsweek cover story that said religion is declining in America because it
showed that religion was down 10 percent by the various measures.
3
I got the sub-data and studied it
myself and found that all of the decline was in liberal churches. It’s because they’re not offering us any-
thing. Actually, the evangelical or born again people were increasing. So there’s a sifting going on in
the church. I want the church to understand what you believe, and then I want you to understand that
Christianity is a worldview and has to be lived out. I want you to understand the implications of the
answers to each of these questions. This is what drove men like William Wilberforce. He saw Christi-
anity as a worldview. That’s what drove him on a 20-year campaign to abolish the slave trade because
he could not imagine that we would take black bodies and put them in the hulls of ships when they’re
created in the image of God. That was his argument on the floor of the parliament as shown in the
movie “Amazing Grace.”
You are sitting as heirs to the greatest understanding of reality human beings can have—that’s the
Christian worldview. Yet we’re losing to a minority of cultural elites in our culture because we don’t
know how to make our case. I teach an hour-long lecture on a proposition made many years ago by Cor-
nelius Van Til: The Christian understanding of reality, the Christian worldview, constitutes the only ra-
tional view of understanding reality. All others are false. What’s the test of truth? That which corresponds
to the way things really are—that’s what truth is. I would argue that you can empirically validate that
Christianity is the only rational way to live, and therefore conforms to reality and therefore is truth.
We’re fighting a battle for our lives. We’re fighting a battle for the life of our culture, for human
dignity, for values in our society when it comes to marriage and life and the fundamental choices. We’re
fighting a battle for religious liberty. We’ve got the case, the facts, and the best argument. If we fail, it’s
on our doorstep. We just didn’t make the case we had. We’re not willing to get serious enough to think
through the implications of what we believe and understand it in order to be able to winsomely present
it to the world.
We have a wonderful case if we will just teach ourselves and learn to apply ourselves enough to
make it. And then make it lovingly. That’s the beauty of Joni—she’s always smiling! I have a friend who
was running a church in Madison, Wisconsin. He is a former marine and a black man who hated whites
Love , Life and Wor l dvie w, by Ch u ck Co l son
6
until his conversion. During a sermon, homosexual advocates broke in and threw condoms at the altar
disrupting the service, and this man was smiling through the whole thing. The press came up and
asked why he didn’t get mad at the protestors. He replied, “I have no more reason to be mad with them,
than if a blind man had stepped on my foot.” Be loving! The ultimate goal of faith is love—agape love!
So we’ve got a great case, if we make it with love.
NO TES
1. Chuck Colson and Harold Fickett, The Faith. (Zondervan: Grand Rapids, MI, 2008.)
2. Rodney Stark, The Victory of Reason. (Random House: New York, NY, 2005.)
3. Jon Meacham, “End of Christian America,” Newsweek, 9 April, 2009.
Love , Life and Wor l dvie w, by Ch u ck Co l son
7
Chuck Colson is a popular and widely known author, speaker, and radio commentator. A former pres-
idential aide to Richard Nixon and founder of Prison Fellowship, BreakPoint, and the Chuck Colson Center
for Christian Worldview, he has written many books, including Born Again, Loving God, How Now Shall
We Live?, The Good Life and The Faith Given Once, for All—that have shaped Christian thinking on a variety of
subjects. His weekday radio broadcast, BreakPoint, airs to two million listeners. In 1993, Chuck was
awarded the prestigious Templeton Prize for Progress in Religion; the one million dollar prize was
donated to the ministry, as are all of his speaking fees and book royalties. In 2008, President Bush con-
ferred on him the second highest civilian award of the U.S. government, the Presidential Citizen Medal
for his humanitarian work with Prison Fellowship. He is a graduate of Brown University and George
Washington Law School, receiving his juris doctor with honors. He served in the United States Marine
Corps, attaining the rank of Captain. He and his wife Patty have three children and five grandchildren.
1
Major Challenges of the
Church on the Path to Maturity
By Dr. Michael S. Beates
The Church. Mention the word and a vast array of ideas and images enter people’s minds. Some may
conjure images of quaint, classical buildings with steeples that house local congregations where they
grew up. Others may think of a grand and profound movement of God across the centuries and around
the world. Our ecumenical creeds remind us that the Church is “one, holy, catholic, and apostolic.”
Further, accepted teachings remind us that the Church is “visible and invisible,” “militant and tri-
umphant,” and that it is “local and universal.” There are many good studies which unpack these im-
portant ways to understand the Church.
The Bible offers multiple images of the Church. The Church is called the bride of Christ, the
temple of the Holy Spirit and the branches connected to the life-giving vine of Christ. But perhaps
the most provocative and instructive biblical image for our purposes is the Church as “the Body of
Christ.” The Scriptures are rich in describing the Church in this manner. But to our surprise, the
one we most often find is not the one that first comes to mind, especially in the West. Over the last
couple of centuries, God’s people have fallen prey to cultural forces which portray the Church as be-
ing full of successful, well-dressed people whose lives are well-ordered and influential in the affairs
of the world.
What the Scriptures show us, however, is the Church as a broken Body, a suffering Body, and finally
by God’s grace, a maturing Body. In this paper, we will explore these three depictions in more detail.
The Church as a Broken Body
God never does things the way we would expect. In fact, throughout history, God takes the conventional
wisdom and practices of the world and turns it on its head. The whole nature of the redemptive work
of God is “upside down.” Instead of using people of power and integrity, or beauty and influence, God
uses unknown people such as Ruth, cowardly people such as Gideon and deeply sinful people such as
David. The Twelve Disciples were culturally insignificant but God used them to achieve his purposes.
Why? So that he alone will receive the glory and the credit for what happens when he works through
such surprising vessels. And of course, the Lord Jesus came as a vulnerable baby, born in questionable
circumstances and raised in a backwater town like Nazareth.
For us to understand the power of God working through his people, we must understand two
things: first, brokenness forces us to see God as the ultimate and only reliable source of power;
second, God, through his Holy Spirit, brings about brokenness in the people he intends to use
for his glory.
God as the Source of Power in Brokenness
When we consider the Church as a Body of broken people, we must remember that in as much as
our culture exalts strength and self-sufficiency, God uses “broken” people. And in doing so, he be-
comes the source of power. Our culture is focused on outward appearance, external beauty, physical
and social power, self-sufficiency, and self-achievement. Yet at the end of the day, we must admit
that these cultural pursuits are idolatry. We make little gods of ourselves. Further, we assure ourselves
that we control our circumstances. Convinced of this, when life “spins out of control,” we often need
therapy to help us cope.
This has never been the way God works with his people. Paul tells us in 1 Corinthians 1:27-31
that God chose what is… foolish… weaklow… despised… things that are not—so no human may
boast before him. It is because of him that you are in Christ Jesus. In his second letter to this same
church, Paul declared outright that his ministry was not from his own strength, but from God’s. In
2 Corinthians 12:7-10, God says to Paul, “…my power is made perfect in weakness.” For Paul to boast
in weakness seems absolutely insane to our modern sensibilities. To admit weakness means defeat
in our world. But in God’s world, to admit weakness and defeat is necessary to accepting him as the
source of real power and purpose. A maturing Church must embrace this truth.
The Holy Spirit Brings Brokenness
Not only is God the source of all power, the Scriptures show that the Holy Spirit brings about bro-
kenness. The Spirit does this in three ways. First, through the faithful study and preaching of
God’s Word, the Holy Spirit applies the truth of Scripture to bring conviction that our pride and
arrogance are a source of weakness, not power. Jeremiah 9:23-24 says we should not boast in riches,
strength, or wisdom (the three most vital human “powers”); rather, if we boast, we should boast
in the L
ORD. And Psalm 51:17 tells us that The sacrifices of God are a broken spirit broken
heart…
The Holy Spirit also uses life circumstances to convince us of our weakness and brokenness. God
often uses tragedy, crisis, death and disability to bring about brokenness. Paul affirmed this in 2
Corinthians 12:7-10 saying, he was given a thorn in his flesh. Though Paul sought relief, and though
God sometimes brings physical relief through healing, God was pleased to work through Paul’s af-
fliction. The psalmist concurred when he said, “Before I was afflicted, I went astray…” (Ps. 119:67).
Affliction can heal us of the disease of depending on ourselves and drive us to depend upon the only
truly reliable source of power: the Lord God.
Finally, the Holy Spirit uses “identification” as a tool to show us our brokenness. As we identify
with Christ and with his people, we recognize that God breaks, blesses, and gives away a transformed
and selfless life to those who are his. Christ is the ultimate example of identification. Through rela-
Majo r Chal l enge s of t h e Ch u rc h on t h e Pat h to M a turi t y, by Dr. Mic h ael B e ates
2
tional ministry to and with broken people (disabled, poor, marginalized, etc.), Jesus identified with
weakness and brokenness. His incarnation, seen in John 1:14 (“The Word became flesh and dwelt
among us…”), brought him to identify with our humanness. And this allowed him to identify with us
through his earthly experience, understanding our temptations and our weaknesses.
1
So likewise, he
calls on us to identify with those more outwardly broken and weak in order to understand our real
state. The Lord Jesus said, “Whatever you did for one of the least of these brothers of mine, you did it
unto me…(Matt. 25:40). As we identify with the weak and marginalized, we not only gain a better
understanding of ourselves, but we identify with Christ as well.
It is humbling to admit we do not measure up, that we are not sufficient, that we are broken people.
But the Body of Christ must grasp this counterintuitive truth in order to find and dwell in God’s power.
We must have the courage to look at each other on Sunday—well-dressed, well-spoken, appearing to
have it all together—and say, “We know better. We are broken people, desperately needing the power of
God to come in our weakness.”
The Church as a Suffering Body
Throughout Christian history wherever in the world the Church holds forth the light of the Gospel
of Christ, believers in Christ have suffered. The early Church began this pattern. In Act 8:1, after the
death of Stephen, a great persecution broke out, and the Church grew and expanded as a result of the
ensuing suffering. God allowed this suffering to come into the corporate life of the Church then,
just as he allows it in the lives of individual believers still today. God’s intention for his Church is that
we identify with and embrace those who suffer and not exclude them from the community of believers.
Suffering as the Body of Christ follows the Savior’s call to suffer, as well as the Apostles’ call and ex-
ample of suffering.
The Saviors Call to Suffering
In His life, Jesus fulfilled the Old Testament prophecy of the Suffering Servant. He was indeed a “Man
of Sorrows… acquainted with grief… who carried our sorrows…” (Isa. 53:3-4, NKJV). Though he is eter-
nally the Son, and the second part of the Trinity, enjoying eternal bliss and fellowship with the Father
and the Holy Spirit, yet, he humbled himself. In his letter to the church at Philippi, Paul reminds us
that Jesus “made Himself nothing”
2
and humbled Himself in a progressively downward manner. First
he became a human being, flesh and blood. For the eternal God, this alone was an act of infinite self-
humiliation. But he went beyond this, taking on the nature of a servant, living as a simple Galilean.
Further, he willingly died, another infinite and mysterious act of suffering and humility. But finally,
he not only died, but died in an act of profound humiliation: as a criminal on a cross, bearing on his
body the sins of the lost. In this act, he experienced abandonment by God the Father (Matt. 27:46) and
became “the Lamb that was slain” (Rev. 5:9-12, NASB). Jesus literally became a curse for us (Gal. 3:13),
taking on our sin so that we might be clothed with his righteousness. Paul reminds us that “For our
sake he made Him to be sin who knew no sin, so that in Him we might become the righteousness of
God” (2 Cor. 5:21, ESV).
John Calvin said the Christian piety of self-denial is “the beginning, middle, and end of Christian
living.” In the Synoptic Gospels Jesus says, “If anyone would come after me, let him deny himself, take
up his cross and follow me.”
3
Jesus calls his followers to a life of self-denial, suffering, and even, in God’s
providence at times, death, for his sake and for the sake of his people.
Majo r Chal l enge s of t h e Ch u rc h on t h e Pat h to M a turi t y, by Dr. Mic h ael B e ates
3
The Apostles Call to Suffering
While the Savior’s call to suffering is clear, the apostles also issued an unvarnished call to suffering.
The Lord foretold this to the disciples in Damascus saying he would show Paul how much he would
suffer for the sake of his name.
4
And indeed, Paul’s testimony included a long list of sufferings for the
sake of Christ.
5
Paul came to the place where he said, “I rejoice in my sufferingsfilling up what is lack-
ing in Christ’s afflictions …” (Colossians 1:24, ESV). Further, Paul declared that his goal in life was to
know Christ, the power of his resurrection, to share in his suffering, becoming like him in his death.
6
The apostle Peter also spoke numerous times of this divine calling for God’s people. He explained
that suffering is an integral part of the normal Christian experience when he said, “Beloved, do not be
surprised at the fiery trial when it comes upon you to test you, as though something strange were hap-
pening to you. But rejoice insofar as you share Christ’s sufferings, that you may also rejoice and be glad
when his glory is revealed” (1 Pet. 4:12-13, ESV). Peter affirmed that God not only calls us to suffer, but
assures us of God’s plan when he said, “And after you have suffered a little while, the God of all grace,
who has called you to his eternal glory in Christ, will himself restore, confirm, strengthen, and establish
you” (1 Pet. 5:10, ESV).
And of course, remember that James opened his letter to the churches saying, “Count it all joy, my
brothers, when you meet trials of various kinds, for you know that the testing of your faith produces
steadfastness. And let steadfastness have its full effect, that you may be perfect and complete, lacking
in nothing” (James 1:2-4, ESV). Suffering, Jesus and the Apostles tell us, is the path to maturity. The
world tells us to seek pleasure, comfort, and security. But the most enduring lessons and the deepest
maturity come through the crucible of suffering.
The Church as a Mature Body
Perhaps the most provocative metaphor the Scriptures employ for the Church is “the Body.” Just
as our natural body grows, so the Church grows. Maturity requires struggle, hardship, pain, and even
brokenness to become, in God’s way and in God’s time, “strong.The mature Church must understand
the role of brokenness and suffering in the lives of believers and the Church must learn to respond to
suffering and brokenness in a manner that gives God the glory. Maturity recognizes that God is at
work through weakness and therefore counts ministry to the broken, disabled, and suffering not as an
obligation, but as a privilege—as if ministering to Christ himself.
The Role of Suffering and Brokenness in the Church
Repeatedly, the New Testament affirms that suffering and brokenness is the path to deeper maturity.
We learn that suffering produces character (Rom. 5:3-6); it produces maturity (James 1:2-4); and it pro-
duces faith (1 Pet. 1:6-7) and deeper trust in Christ (2 Cor. 1:8-11). Not only is this stated propositionally
as true, it is displayed in the lives of the people of God throughout redemptive history. Joseph came
through much suffering to a place where he confessed that even those actions people meant for evil in
his life, God meant for good and for the saving of many lives.
7
Though David was called to a position of power and authority, it was brokenness and affliction
that brought him to deeper maturity. The Psalms are replete with references to his pain, abandonment,
loneliness and brokenness. Through these many difficulties, God sanctified and molded David into
the person he needed to be.
As we noted earlier, Jesus in a mysterious way, though God in the flesh, was brought to a deeper
maturity through suffering. From the writer of Hebrews, we learn that Jesus was “made perfect
through suffering and as such is able to help us in our weakness (Heb. 2:10).
Majo r Chal l enge s of t h e Ch u rc h on t h e Pat h to M a turi t y, by Dr. Mic h ael B e ates
4
Finally, again, Paul unfolds this for us most clearly in 1 Corinthians 12:12-26. There he says that
the Body has some members that are weaker and less presentable. But in God’s providence, just as in
our physical body, so in the Body of Christ, these members are called “indispensable.” What the world
would label as liabilities—those whose lives display weakness, brokenness, ugliness, and neediness—
God calls absolutely necessary for the mature Body of Christ. This is a crucial lesson the Church must
grasp. While we naturally avoid and even reject those who are different from us in their weakness, God
says to embrace and bring close.
The Privilege of Ministry to the Broken
Many cultures stress the importance of being independent. We grow up, especially in the West, learn-
ing to depend on ourselves, not to admit needing anyone to help or assist us on our journey. Being
“self-madein this view is a sign of competence and strength. Being dependent on anyone or any-
thing is a sign of weakness. In reality, this is an illusion—because we all need each other, and even
more we all need God. No one makes italone. We are in fact inter-dependent upon God and one
another. Disability helps us see that we are all broken and all part of the same Body, needing to
give and receive from one another. This in turn keeps each member of the Body accountable to
Christ and one another. People with disabilities have much to contribute to the Body of Christ
and when they are not present, from Paul’s metaphor in 1 Corinthians 12, the Body is incomplete,
lacking essential elements.
God’s intention for the Church, his Body, is that we would grow up in all things…” (Eph. 4:15,
NKJV). Part of growing up is having a proper understanding of serving and accountability to others.
Disability is one way God shows his Church how to become his complete Body. Bearing one another’s
burdens is actually a privilege, a way of assisting in the development of Christ’s likeness in our personal
lives and in the corporate life of the Church. Paul says that if one member suffers, then all suffer (1
Cor. 12:26). As we identify with those who suffer, as we embrace the metaphor of an inter-dependent
Body, we begin to see how we can “bear one another’s burdens” (Gal. 6:2, NKJV). As we suffer and re-
ceive comfort from God and His people, we are also able to “comfort one another” with the same com-
fort we have received (2 Cor. 1:3-7). The Holy Spirit brings forth the fruit of the Spirit” (Gal. 5:22-23)
in those who are disabled and non-disabled alike. The attributes of patience, longsuffering, self-con-
trol, joy, etc. are cultivated and displayed as the maturing Body of Christ embraces those who suffer,
those who live with disability, weakness, and brokenness.
Final Thoughts
The way people react to suffering and brokenness reveals their assumptions about the nature of the
world. Many people assume the world is the way it should be and that suffering is an anomaly to be
avoided at all cost. But the mature Church says with conviction that the world is not as it should be.
In fact, all creation has suffered the effects of sin and the Fall. All creation groans and longs for re-
demption and renewal. Because we admit that the world is broken, we believe there will be a re-making,
a redress of injustice and brokenness. Brokenness creates a longing in God’s children for all the bro-
kenness and weakness to be changed and made right. And in this “making right” God will receive glory
and worship.
The mature Body of Christ says, “For from him and through him and to him are all things”—even
suffering and brokenness—and “To him be the glory forever!”
8
Majo r Chal l enge s of t h e Ch u rc h on t h e Pat h to M a turi t y, by Dr. Mic h ael B e ates
5
NO TES
1. Hebrews 2:17; 4:14-15
2. Philippians 2:7
3. Matthew 16:24; Mark 8:34; Luke 9:23
4. Acts 9:15-16
5. 2 Corinthians 4:7-12; 11:23-29
6. Philippians 3:10
7. Genesis 41:51-52; 50:20
8. Romans 11:36
Majo r Chal l enge s of t h e Ch u rc h on t h e Pat h to M a turi t y, by Dr. Mic h ael B e ates
6
Dr. Michael S. Beates is the father of seven children, the eldest born with profound disabilities. He earned
M.Div. and S.T.M. degrees from Biblical Seminary in Pennsylvania and the Doctor of Ministry from
Reformed Theological Seminary Orlando. Mike teaches Bible and History at The Geneva School in Winter
Park, Florida. Since 2000, Mike has served on the International Board of Directors at Joni and Friends and,
since 2008, on the Board of Reference for the Christian Institute on Disability. He has written magazine
articles, editorial columns and contributed chapters to several books, including “God’s Sovereignty and
Genetic Anomalies” in Genetic Ethics: Do the Ends Justify the Genes?
1
Modeling Early Church
Ministr y Movements
By Rev. Steve Bundy
Michael was a factory worker who had many dreams and desires for his life. He was engaged to be mar-
ried in six months and was already making plans for a future family. Michael wanted a large family
with many children. All that changed one morning when he showed up for work unaware that the ma-
chine he was about to work on had a crack in its frame. Michael started the machine and began to put
a piece of metal into it, just as he had for the past five years. He heard a loud noise and looked up to
see the machine falling on him. Michael sustained serious injuries, including a fracture to his upper
neck which left him a quadriplegic, unable to move his hands or legs, and only limited use of his arms.
Six months later, Michael is supposed to be celebrating his wedding day, but instead he’s lying on
his back, staring at the ceiling and dwelling on his fiancé’s words: “I just can’t live that kind of a life
I am so sorry that I cannot marry you.”
Michael is depressed and lonely. His parents do not know how to help him. They, too, feel angry
and cheated that such a tragedy happened to their only son. They feel as if there’s no one to turn to,
no one who understands what they are all going through. Finally, out of desperation, Michael’s father
picks up the phone and calls you for help. What do you do?
Looking at the Early Church
The Bible tells us to be ready to “weep with those who weep.”
1
It also provides clear examples of how
believers should minister to one another and share each other’s burdens. Luke emphasizes the nature
of the early church as one in which believers cared for one another.
2
Consistent with Luke’s theol-
ogy—that Christ’s ministry was one of reversals and contrasts of the kingdom—in the church, those
who would seem to be on the “outside” are in fact the very ones we are to welcome, embrace and in-
clude. As the early church struggled to find its identity and especially in it struggled to include the
Gentiles, it continually experienced a transformation of head and heart. This transformation inti-
mately connected believers into a community of brothers- and sisters-in-Christ who understood that
an individual’s spiritual and physical needs were, in fact, everyone’s spiritual and physical needs.
This sort of transformation is one that says, “I will not turn you away because of your disability…
for you and I are of the same family.”
This is in line with Luke’s theology of the needy, the outcast and the disabled—and eventually
the Gentile, who will be included in the Kingdom of God and the Church of Jesus Christ. Robert W.
Walls brings this out in his commentary on Acts by pointing out that the koinonia experienced by
the early church was a transformation brought about by the Holy Spirit, a transformation “that has
brought about a fellowship among believers that shares more than common beliefs and core values;
they display a profound regard for one another’s spiritual and physical well being as a community
of friends.”
3
Walls points out the prophetic typology of Jubilee (Lev. 25:10) and favorable year of the
Lord (Isa. 61:2) that was fulfilled in Christ (Luke 4:18-21).
The new community of believers that would follow the risen Lord and Savior would indeed be a
people who exemplify the life and ministry of Jesus among all people including the poor, the blind
and the lame:
All who believed were together and had all things in common” (Acts 2:44, NRSV). At the begin-
ning of his Gospel, Luke uses the Isaianic prophecy about “the favorable year of the Lord” to
introduce the principal themes of Jesus’ anointed ministry (Luke 4:16-18). In particular, Jesus’
actions among the poor and powerless in identifying with their marginal status within Israel
and announcing their deliverance are taken as the fulfillment of this prophecy of the Lord’s Ju-
bilee (Luke 4:21). Jesus’ teaching about sharing possessions envisages the social character of
God’s kingdom where the conditions of the least, lame, lost and last are transformed. God’s
grace does not privilege the rich and famous; God’s liberating love extends to everyone who
calls on the name of the Lord for salvation. However, this Jubilee is possible only because of the
empty tomb and only after PentecostGod’s kingdom reflects solidarity and mutuality rather
than a class system; therefore, believers live together and have “all things in common
4
There are six summary statements in Acts that respectively conclude six panels or blocks of mate-
rial.
5
In the first panel, there are three summary-like paragraphs, each one giving us a glimpse into
the very first days of the early church.
6
The birth and life of the early church came as a result of (1) the
outpouring of the Holy Spirit; (2) growth in numbers of those who believed and; and (3) persecution.
We know from the three summary paragraphs that several characteristics of believers in the early
church stand out. They devoted themselves to: (1) the Apostles’ teaching; (2) fellowship; (3) breaking
of bread; (4) prayer; and (5) performing miracles. Yet in all three summaries special attention is given
to the koinonia that was held among the believers. There was no physical or spiritual need among them
because “they had all things in common” (Acts 2:44). In commenting on this verse, Richard Longe-
necker refers to it as Luke’s “thesis statement regarding the way the believer practiced communal liv-
ing.” Longenecker continues:
Luke is, then, 1) emphasizing that both continuous and extraordinary acts of Christian social
concern were occurring in the early church and 2) tying these acts into the apostolic procla-
mation of the Resurrection… Experientially, the spiritual oneness the believers found
to be a living reality through their common allegiance to Jesus must, they realized, be expressed
in caring for the physical needs of their Christian brothers and sisters. Indeed, their integrity
as a community of faith depended on their doing this.
7
Mode l ing E a rly C hurch Mi n istry Move m ents , by R e v. Steve Bund y
2
Many scholars feel that the early Christians viewed themselves as the righteous remnant within
Israel and therefore had clearly in their minds the words of Deuteronomy 15:4, “There should be no
poor among you, for in the land the Lord your God is giving you to possess as your inheritance, he will
richly bless you.” Simon Kistemaker draws this parallel as well, connecting
the acts of the early church back to Christ’s message in the gospels: “Blessed are you who are poor,
for yours is the Kingdom of God” (Luke 6:20; Matthew 5:3; and the rich young ruler, Matthew
19:21). Kistemaker comments, “The aim of the early Christians was to abolish poverty so that needy
persons, as a class of people, were no longer among them (Acts 4:34a).”
8
Seven Movements of Ministry to Persons with Disability
Our ministry experiences shape our understanding of what ministry should look like. We often think
of effective ministry as that which “captures” the greatest number of people or makes the most use of
the church’s resources. We need to reach as many people as possible and be good stewards of what God
has given us. It is important, however, that our definition of successful ministry not be modeled on
what the world defines as success (“bigger, better, faster!”), but rather on what God calls success.
We must take a personal inventory, look at our hearts and determine our true motivation. This
calls for a time of slowing down, prayerfully seeking God through his Word and cultivating a sensitive
heart toward those who hurt. For ministry to take place among those affected by disability, the church
and individual believers alike must intentionally move toward seven specific areas of ministry.
1. Movement from Programs to Presence (Ministry of Fellowship). When ministering to
those affected by disability, there is no substitute for time. “Programs” should not lead the
way—rather, presence of time, attention and sharing in the journey of the one affected by
disability should take priority. In Acts 2:44 Luke calls this koinonia, that is, having all things
in common… sharing the journey together.
2. Movement from Quantitative Ministry to Qualitative Ministry (Ministry of the Word).
There are no substitutes for, or alternatives sources of hope comparable with the inspired
Word of God. In its truths we find the source of all hope in our affliction, discouragement
and despair. Time is required in order to effectively minister God’s Word to someone affected
by disability. The minister’s eye cannot be on quantity of ministry (numbers); rather, it should
be on quality of ministry (accurately dividing the Word of Truth). Like a skilled surgeon ap-
plying the scalpel to a needed area for surgery, we minister by skillfully applying the Word
of God to one who has encountered a life-altering disability.
3. Movement from a Ministry of Convenience to a Ministry of Conviction (Ministry of
Obedience). Ministry to those affected by disability is not a ministry the church chooses be-
cause it is the easiest ministry; rather, the church engages in such ministry because it is the
right ministry. This is an act of obedience to the Word of God and to our Savior, Jesus Christ.
In Matthew 25:40 Jesus told us that ministry to people in despair, “the least of these brothers of
mine,” is indeed ministry to Jesus himself. Many churches today choose the ministry of con-
venience—ministry to those who fill the pews with the right style of clothing, perfume, hair-
style and bank accounts. By contrast, a ministry of conviction includes those affected by
disability regardless of what they may give in return.
Mode l ing E a rly C hurch Mi n istry Move m ents , by R e v. Steve Bund y
3
4. Movement from Being Understood to Understanding (Ministry of Identification). Every
believer has a place in the body of Christ. Paul told us in 1 Corinthians 12:18-22 that God
has arranged each member of his Body “just as he wanted them to be…” and that those members
who seem like weaker, useless members are on the contrary… indispensable.” The church, de-
siring to embrace and include those affected by disability, must move from conforming
members into the likeness of the church to transforming them into the likeness of Christ.
This process involves moving to a place of understanding each member’s role within the
church, especially those with disabilities. This also includes gaining an understanding of
each individual’s unique journey, struggles, gifts, talents and contributions to the body of
Christ. It is in essence the ministry of identification with those with whom Christ has already
identified.
5. Movement from Being Important to Being Available (Ministry of Prayer). Ministry to
people with disabilities is often a behind-the-scenes ministry. It is not “in-the-spotlight”
ministry that uplifts one’s ego and highlights one’s gifts, but rather a ministry of “downward
mobility,” to borrow Henri Nouwen’s terminology.
9
It is a ministry of humility and of prayer.
It is ministry that sets our own agenda aside to earnestly seek, through prayer and abiding,
to minister to those with disabilities. This ministry involves interceding, by petition and
thanksgiving, on behalf of others. It might entail inconveniences to one’s time, resources
and energy, such as trips to the grocery store, rides to church, invitations to celebrate Christ-
mas together, home repairs and mowed lawns. This is ministry that many would call “unim-
portant,” but is applauded by God as being available to Jesus himself.
6. Movement from Being Heard to Intently Listening (Ministry of the Spirit). In our fast-
paced culture of immediate gratification, ministry to people, especially to those affected by
disability, must be led by the Holy Spirit. We are so programmed to give “answers” that we
rarely wait for the words of the Holy Spirit to inspire and lead us. We need his wisdom to
know the right Scripture to quote, the right prayer to pray, the right relationships to establish
and the right time to help. We need to listen intently to the Holy Spirit. But we also need to
hear the one we are serving. Where are they in their faith development? What are the real
struggles they face in relationships, jobs and daily activities? Do they feel like they fit in at
church? Allow them to reflect on how the Holy Spirit has been speaking to them. What are
they receiving from the Scriptures? As we minister to those struggling with disabilities, we
must restrain our desire to be heard and take time to discover their hearts.
7. Movement from Teaching to Being Taught (Ministry of Reciprocity). Those with disabil-
ities have much to teach the body of Christ about brokenness and forgiveness. Ministry to
these friends is too often seen as a one-way street, as charity or a handout. However, when
those with disabilities find themselves in Christ, they can become mighty ministers and
witnesses to the Savior’s grace, love and mercy. As God uses their physical or mental bro-
kenness for his glory, they teach us how God uses spiritual brokenness to reveal himself
through the church to the world. As Paul stated in 2 Corinthians 1:5, “For just as the sufferings
of Christ flow over into our lives, so also through Christ our comfort overflows.The church must
not miss this great opportunity to minister to those affected by disability and to receive
rich ministry from them.
Mode l ing E a rly C hurch Mi n istry Move m ents , by R e v. Steve Bund y
4
Rejoicing in Life Changing Ministry
Michael’s reaction of despair and hopelessness is not uncommon after a life-altering accident. Joni
Eareckson Tada has documented her own struggles with depression and has reached into the pit to
help draw others out. God used Joni as a lifeline for Ron Huckabee after the former pastor had seem-
ingly given up.
1
0
Out of desperation, Ron’s wife, Bev, sent Joni an email explaining that her husband’s
paralysis, battle with cancer and constant infections had left him feeling hopeless. Joni reached out for
Ron, reminding him of the truths clouded by the fog of depression and helped him see that God could
still use him. Ron went from a depressed, bedridden quadriplegic, refusing to talk to anyone, to serving
as the National Prayer Coordinator for Marketplace Ministries in Dallas, Texas. What changed him?
Hope and a fellow believer willing to come alongside him and help carry his burden.
NOTES
1. Romans 12:15, NKJV
2. Acts 2:42-47; 4:32-35; 5:12-16
3. Walls, R. W., (2002), The New Interpreter’s Bible, The Acts of the Apostles (pp. 71-73). Nashville, TN: Abingdon Press.
4. Ibid.
5. Acts 6:7; 9:31; 12:24; 16:5; 19:20; 28:31
6. Longenecker, R.N., (1984), “Acts,” in The Expositor’s Bible Commentary, Vol. 9 (p. 288). Grand Rapids, MI: Zondervan.
7. Ibid.
8. Kistemaker, S. J., (1990), “Acts,” in New Testament Commentary (p. 112). Grand Rapids, MI: Baker Academic.
9. Nouwen, H., (1992), In the Name of Jesus. New York, NY: The Crossroad Publishing Co.
10. Ron Huckabee shares his story in the Joni and Friends TV episode “Get Busy Living,” http://www.joniandfriends.org/television
Mode l ing E a rly C hurch Mi n istry Move m ents , by R e v. Steve Bund y
5
Steve Bundy is the Vice President of Joni and Friends overseeing the Christian Institute on Disability and
International Outreach. He was a contributing author to Life in the Balance: Biblical Answers for the Issues of
Our Day, and co-executive producer with Joni Eareckson Tada of the Telly-Award winning television
episodes, Making Sense of Autism: Myths That Hide the Truth and Truth for the Church. Steve has served as adjunct
professor at Master’s College and has lectured on disability ministry at educational institutions and con-
ferences around the world. He frequently appears on “Joni and Friends” television episodes, national radio
and has written articles or been interviewed for Christianity Today, Charisma Magazine, Focus on the Family and
others. Steve and his wife Melissa know firsthand the joys and challenges of parenting a child with special
needs, as their own son, Caleb, was born with a chromosome deletion which resulted in global delay and a
secondary diagnosis of autism. Steve holds a B.A. in Theology and Missions, a Certificate in Christian Apolo-
getics and an M.A. in Organizational Leadership. He is a licensed minister and has served as a pastor and
missionary.
1
All Things Possible:
Calling Your Church Leadership to
Embrace Disability Ministr y
By Stephanie O. Hubach
For years, I have listened to my pastor quote various lines from J.R.R. Tolkien’s The Lord of the Rings tril-
ogy as sermon illustrations. While I confess I have yet to read all of the books, my oldest teenage son
recently asked me to spend a marathon weekend watching The Lord of the Rings films—all twelve hours
of footage—from start to finish. Amazed at the depth and richness of the tale, I found myself drawn
not only to the characters, but also to the symbolism and metaphors that reflect aspects of the Christian
life, spiritual warfare, and the kingdom of God. The Lord of the Rings series is an inspiring tale of victory
in the face of seemingly impossible odds, and at incredible cost. One of my favorite lines from the third
and final film in the series, The Return of the King, was spoken by Gimli upon facing the final great battle:
“Certainty of death. Small chance of success. What are we waiting for?”
Since you’re reading this paper, you probably have a passion to see people with disabilities and their
families embraced by your local church. But perhaps you think the task is impossible. Maybe you’ve
tried to get your church leadership on board in the past, and your assessment of another attempt is:
“Certainty of death. Small chance of success.” My hope is that by the time you finish reading this you’ll
have abandoned those thoughts and, instead, only be saying, “What are we waiting for?”
Remember: You and your church leadership are on the same side of the battle to advance the kingdom
of God. Our role is to call each other to greater levels of commitment in that battle—not to fight against
one another. Nor is our job to manipulate others through guilt or coercion. Our responsibility as be-
lievers is to call each other to what God calls us to in his Word. We are not responsible for outcomes.
God is. Jesus reminds us that “with God all things are possible” (Matt. 19:26). When we are free to call
without feeling responsible for outcomes, it encourages us to communicate in Christ-like ways. Only
then can we call our leadership to a better place.
The Scriptural Basis for Calling Your Church Leadership
If you look at Colossians 3:15–17, you’ll see a beautiful framework for the principles to follow in calling
your church leadership. Toward the end of a powerful passage on Christian living, the Apostle Paul writes:
Let the peace of Christ rule in your hearts, since as members of one body you were called to peace.
And be thankful. Let the word of Christ dwell in you richly as you teach and admonish one another
with all wisdom, and as you sing psalms, hymns and spiritual songs with gratitude in your
hearts to God. And whatever you do, whether in word or deed, do it all in the name of the Lord
Jesus, giving thanks to God the Father through him (emphasis mine).
What does this passage show us? Our purpose in calling church leadership needs to be centered in
“the peace of Christ” (vs. 15). Our process needs to be rooted in the “word of Christ” (vs. 16). And our
posture needs to emulate the “name of the Lord Jesus” (vs. 17). The peace of Christ involves being com-
mitted to wholeness. The word of Christ is his truth that transforms our lives. The name of Christ re-
quires that we operate in ways that honor his name in everything that we do—including the ways in
which we call others.
The Purpose of Calling Church Leadership: The Peace of Christ
In the prophecy of the coming Messiah in Isaiah 9:6, Christ is referred to as the “Prince of Peace.” The
Hebrew word that we translate as “peace” is the word shalom. Much more three-dimensional than our
English word peace, shalom carries the meaning of “completeness, wholeness, health, peace, welfare,
safety, soundness, tranquility, prosperity, perfectness, fullness, rest, harmony, or the absence of agitation
or discord.”
1
In the coming of his kingdom, the Prince of Peace brings restoration to all things: to in-
dividual lives, to his church, to society, and to nature. Christians are Christ’s agents in the kingdom of
God—his agents of restoration—his peacemakers.
To bring peace in the context of disability ministry means several things. First, it means just what
the passage says in Colossians 3:15, “Let the peace of Christ rule in your hearts” (emphasis mine). When
Christ’s peace rules in our hearts it “umpires”
2
or “arbitrates” the conflict within us when our two na-
tures war against each other. We let, or allow, Christ’s peace to be what rules us and calls us to do his
will. Peacemaking starts within us before we attempt to be peacemakers in the church.
Next, it addresses what follows in the passage: “since as members of one body, you were called to
peace.” Paul’s passages on the body of Christ (Romans 12:3-8, 1 Corinthians 12:12-31, and Ephesians
4:1-16) stress the interdependence of the body of Christ, and the value of all its parts. Unity in diversity
is his theme. Yet, sadly, this is often not the way the church works in practice. People with disabilities
are generally outside of the body of Christ entirely, or they are believers who live on the fringes of con-
gregational life—marginalized, unappreciated, and underutilized. But Colossians 3:15 reminds us that
as one body, we are called to peace. That means completeness, wholeness and harmony. The irony of it
all! When the body of Christ attempts to operate without all of its members, it actually becomes dis-
abled itself. It is not “at peace.” The church needs to be called to peace within itself.
Our purpose in disability ministry is to be peacemakers who: 1) experience personal peace with
Christ and invite others (including people with disabilities) to find it as well, 2) call the body of Christ
to oneness with all of its members, 3) bring restoration and healing to families who are struggling with
the effects of disability in their lives, and 4) repair the fabric of society, the unraveling of which dra-
matically impacts life for people with special needs.
All T hings Poss i ble: C alli n g Your C h urch Lea d ersh i p to E mbrac e Dis a bilit y Min i stry, by S t epha n ie Hu b ach
2
Barriers to Peace in Pursuing Disability Ministry
Pursuing peace, by definition, implies that there are barriers in place that are in conflict with the pur-
poses of peace. As peacemakers, our goal is to identify and help remove those barriers in ways that
foster oneness. In the context of disability ministry, what are some barriers that church leadership will
need to recognize and own in order to pursue peace for people with disabilities in the church?
Anxiety. Many people have spoken and unspoken fears associated with relating to people touched
by disability. Simply dismissing someone’s fears is not a compassionate way to deal with them. It is
also extremely ineffective. Fears that remain unaddressed simply go “underground” where they remain
until they cannot be suppressed any longer. Fears about disability tend to fall into two categories: un-
warranted and warranted. Unwarranted fears are those that have no basis in reality. When a child is
fearful that she will “catch” Down syndrome from sitting next to her peer in Sunday school, that is a
fear with no basis in reality. When a church leader is worried that starting a disability ministry will be
“frightfully complicated,” that is a fear with no basis in reality. Unwarranted fears are readily addressed
through education. Clear, accurate, timely information communicated with grace and patience is usu-
ally enough to address unwarranted fears.
Warranted fears, on the other hand, require a different approach. For example, risk management
is a topic that comes up in church leadership circles. An unfortunate by-product of living in an increas-
ingly litigious society is that church leaders are often forced to evaluate questions of legal liability that
would never have been addressed a generation ago. Legal liability is a reality that must be engaged in
contemporary American life. There is a basis in reality for fears of litigation, but that does not justify al-
lowing fear to set the agenda of the local church. This is where love comes in. According to 1 John 4:18,
“perfect love drives out fear.” Love is what motivates us to navigate our way through warranted fears—
for the benefit of the leadership, for the benefit of the person with a disability, and for the benefit of
the entire church. Love encourages creative problem-solving that finds a way to create a win-win solution
for the whole Christian community in the face of present realities.
The goal in dealing with anxiety is to pursue peace by helping your church leadership to move from
fear to faith. This is done by validating the feelings that people have, educating on unwarranted fears,
and encouraging a loving response to warranted fears.
Attitudes. Attitudes that permeate the church can appear in a myriad of different disguises. Three
of the most prominent ones that occur in response to the subject of disability are: 1) ignorance, 2) in-
difference, and 3) arrogance. Ignorance is the most common problem that Christians have in relating
to people who have disabling conditions. Lack of exposure to people with special needs and lack of ac-
curate information on disabling conditions can lead to inappropriate responses. As with unwarranted
fears, education goes a long way to mediate the effects of ignorance. Indifference, on the other hand,
is a much more difficult matter. While ignorance doesn’t know what to do or what to say, indifference
doesn’t really care—even if the facts are known. Rooted in issues of the heart, indifference requires a
work of the Holy Spirit to remove it.
Arrogance is slightly different from indifference or ignorance. Arrogance stems from a pre-
sumed (ignorant) posture of superiority that a person believes is justified (indifferent). Societal
arrogance and discrimination against people with disabilities are a deeply entrenched, learned pos-
ture. While today it would be virtually unheard of to deny a person access to a church on the basis
of their race, we continue to actively and passively discriminate on the basis of people’s abilities.
Many of us carry a “superior/inferiorrelational model in our heads and hearts when it comes to
relating to people with special needs. Attitudes of arrogance require both education and sanctifi-
cation in order to improve.
All T hings Poss i ble: C alli n g Your C h urch Lea d ersh i p to E mbrac e Dis a bilit y Min i stry, by S t epha n ie Hu b ach
3
Agendas. Agendas are goals that we’d like to accomplish. There is nothing implicitly wrong with be-
ing goal-oriented, unless (of course) the goal itself is sinful. However, when our agendas become more
important than our relationships with others, we have lost our way. Love for God and love for neighbor
are to be our life’s aim (Mark 12:29–31). The way we relate to each other in the church needs to reflect
this Great Commandment. The goal in dealing with agendas is to pursue peace by helping your church
leadership to identify where agendas might tend to take precedence over relationships. Calling the
church leadership to encourage “equal concern for each other” will promote harmonious body life that
exemplifies the Great Commandment.
Autonomy. The words “shalom” and “autonomy” don’t even feel as if they belong in the same sen-
tence—because they don’t! Wholeness in community and radical individualism are antithetical to each
other. At times, autonomy rears its ugly head in the church. Even church leaders, when feeling threatened
by change, may say, “No one can tell me (us) what to do!” Such a response might cause you to go back
and reflect, “Am I having a demanding attitude?” But if the answer is no, then you have likely encoun-
tered a spirit of autonomy. Don’t be subversive in the way that you introduce disability ministry ideas:
be up front. Call from the Scriptures, but don’t demand. Every person is under the authority of God
himself. He is the ultimate authority to whom we all answer, whether we like our independence or not.
We are all under the authority of the Scriptures, for it is God’s Word and our rule of faith and practice.
The goal in dealing with autonomy is to pursue peace by helping your church leadership to achieve
unity under appropriate authority. This starts with the authority of God himself, then the authority
of his Word, then the God-given authority structures under which your church operates.
The Process of Calling Church Leadership: The Word of Christ
What is “the word of Christ,” and how does that relate to disability ministry? “The sum of God’s utter-
ances”
3
is the meaning of the phrase “word of Christ” in Colossians 3:16. It implies the whole counsel
of God, as incarnated in the life of Christ and his teaching, and as embodied in the entirety of Scripture.
The word of Christ is Truth. And truth is the essential ingredient to the process of godly transforma-
tion. In his epistle to the Romans, Paul says, “Do not conform any longer to the pattern of this world,
but be transformed by the renewing of your mind. Then you will be able to test and approve what God’s
will is—his good, pleasing and perfect will” (Rom. 12:2, emphasis mine). Truth transforms the mind
and, subsequently, the heart. The process of pursuing peace in the body of Christ is accomplished by
communicating truth. As Joni Eareckson Tada once summarized it, “Becoming a disability-effective
church begins with a good knowledge of God’s Word…”
4
Notice, however, that the truth needs to be delivered from a bearing that is personal, positive, and
wise. “Let the word of Christ dwell in you richly as you teach and admonish one another with all wis-
dom…” (Col. 3:16, emphasis mine). The word of Christ is expected to dwell within us to such a degree
that our truth-giving proceeds from the rich overflow of a heart changed by grace. In addition, it is to
be delivered “with all wisdom.” Wisdom has been defined as that which “flows from character and
virtue applied, as we lean into the moment and lovingly act.”
5
Wisdom implies discerning—from mo-
tives of love—not just what to say, but when to say it, and how to say it.
Truth and the Transformational Process
As truth-tellers, we need to remember that transformation is a process, and as such, we need to expect
it to take time. Lots...and lots…and lots of time! God shows tremendous patience with us in working
All T hings Poss i ble: C alli n g Your C h urch Lea d ersh i p to E mbrac e Dis a bilit y Min i stry, by S t epha n ie Hu b ach
4
out his sanctifying process in our lives. How much more should we demonstrate patience with our
brothers and sisters in Christ—even our church leadership! Personal growth in the life of a believer, or
a collection of believers (as in the church), is a progressive but not predictable process. From our own
spiritual journeys, we all know that our maturation is messy at times. It can be “two steps forward, one
step back.” It can feel exponential and then “dead in its tracks.” What does the progressive transfor-
mational process of getting your church leadership on board look like in the context of disability min-
istry? Where do you start? And where can you hope to arrive?
Engage. As stated earlier, all transformation begins with truth. Engage your church leadership on the
truths of the Scripture as they apply to ministering to and alongside people touched by disability. Start
with theological topics on which you can agree, and then challenge them to think more broadly and bib-
lically about disability in that context. For example, when we were beginning a disability ministry in my
church, our church leadership had already built a strong heritage of preaching and practicing the biblical
principles of mercy and justice. We were able to start with those agreed-upon truths as our point of en-
gagement in saying, “How do we need to apply these mandates to the lives of people with disabilities in
our midst?From there, we have slowly worked our way out into more challenging topics and applications.
Explain. All theology has relevance, or it isn’t really theology. After engaging your church leadership
on biblical truths that call us to embrace people with disabilities, explain the ways in which those prin-
ciples actually work themselves out. What does biblical compassion look like in a congregation that
reaches out to people with special needs and their families? How does the doctrine of the image of God
impact our relationships with people on the most ordinary levels? Help your church leadership to con-
nect the dots and see—in ways they may never have seen before—how theology relates to life in the con-
text of disability.
Educate. All truth is God’s truth, and as such, we need to not only communicate biblical truth, but
everyday earthly realities that our church leadership needs to understand. Individuals and families
touched by disabilities face a myriad of complexities and challenges in life that others are often ignorant
of. Serve your leaders by providing them with helpful and accurate information on a variety of topics,
over time. This requires an ongoing process. Topics might include issues such as: the grief experienced
at the onset of disability, familial adjustments, medical concerns, social challenges, legal nuances, the
need for respite care, the desire for respectful relationships and meaningful work (inside and outside
the church) and the effects of disability on marriage.
Your church leadership and congregation will likely rely on you to provide them with continuing
education as a step in transforming your church into a welcoming place for people with disabilities
and their families. Offer it to them at a pace that they can handle, and with a sense of perspective that
disability ministry is not the only ministry of the church that is attempting to educate the congregation
and its leaders.
Equip. After engaging theologically, explaining the practical applications of the theology, and edu-
cating on real-life issues, you will need to equip with practical ideas and support. Equipping puts “hands
and feet” on the ideas you have conveyed to this point. It is not enough to call your church leadership
to the idea of inclusive Sunday school settings, for example. You will also need to provide practical,
hands-on training in order for the church leadership to call the congregation to carrying this out. Con-
ferences, workshops, seminars, special speakers, one-on-one consultations and written or video re-
sources are all different ways to equip your church leadership and your congregation for ministry.
Encourage. Like the coach of a football team, the encouraging truth-teller has done their work of
engaging, explaining, educating and equipping in practice sessions. When game time arrives, the coach
knows to stand on the sidelines and encourage—yard by yard, play by play. There will be times for more
All T hings Poss i ble: C alli n g Your C h urch Lea d ersh i p to E mbrac e Dis a bilit y Min i stry, by S t epha n ie Hu b ach
5
educating and equipping in later practices. But for the moment, it is appropriate to let the players do
the best they can with what they know. Your job in working with church leadership is to encourage
them, and your congregation, to loving action. You can call someone to love through encouragement,
but you can never push them to love with demands, as love, by definition, is voluntary.
Exhort. The further you progress in the transformational process, the more wisdom is required. Ex-
hortation involves calling others to increasingly higher levels of commitment. If exhortation is practiced
prematurely, it can feel like criticism or pressure to those who hear it. Great sensitivity is necessary to
discern the ability of your church leadership to hear exhortation in the context of disability ministry.
Suppose, for example, that your church has been very effective at reaching out to people with phys-
ical disabilities. Appropriate exhortation would involve knowing the right time to ask, “Now, how
about people with intellectual disabilities? Or perhaps your church has supported tremendous
progress at removing barriers for people with disabilities. When is it time to ask, “Now, what is our re-
sponsibility to help remove barriers in our community?” Remember: the transformation process is
not linear or easy. It will have many setbacks and moments of discouragement along the way. Trans-
formation takes time, and it is ongoing. As we embrace truth and grow in it in one particular area, we
will become aware of other areas in our lives that need improvement as well.
Our Attitude in Calling Church Leadership: The Gospel of Christ
In closing, a final overarching theme runs through the passage in Colossians 3:15–17. It is the theme
of thankfulness. “And be thankful” (vs. 15)…“with gratitude in your hearts to God” (vs. 16)…”giving
thanks to God the Father” (vs. 17). Thanks for what? Thanks for the gospel of Christ—the good news.
When genuinely experienced, the gospel of Christ produces an attitude of gratitude in the life of the
Christian. Knowing that we deserve nothing, yet have received everything, at the hands of our loving
heavenly Father—through the obedience of his Son—causes our hearts to swell with thanksgiving. When
we remember the gospel, an attitude of gratitude becomes the atmosphere in which we live, and the
refreshing presence we bring to our dealings with others. As Oswald Chambers stated, “The main thing
about Christianity is not the work we do, but the relationship we maintain and the atmosphere pro-
duced by that relationship.”
6
The coming of the kingdom of God in our lives is truly good news—good
news that contagiously affects what we do and say.
The peace of Christ calls us to be peacemakers in the church and in the kingdom. Disability ministry
calls Christians to bring shalom—completeness, wholeness and harmony—to the body of Christ and the
world around us. The word of Christ is the truth that transforms. Building a disability ministry is a process
that involves teaching yourself, your church leadership and your congregation life-changing truths from
the Scripture. The name of Christ is the posture from which we operate. When ministering in his name,
we represent his character. His claim on us is universal—in all that we do and say—including how we engage
others in kingdom work. The gospel of Christ creates an attitude of gratitude in the life of a believer. Bring-
ing an atmosphere of grace with its presence, the gospel brings newness and hope to those around us.
So, what will your mindset be as you engage your church leadership on the subject of disability
ministry?
“Certainty of death?”
“Small chance of success?”
Or—“What are we waiting for?”
Adapted from All Things Possible: Calling Your Church Leadership to Embrace Disability Ministry by Stephanie O. Hubach, available at www.joniandfriends.org.
All T hings Poss i ble: C alli n g Your C h urch Lea d ersh i p to E mbrac e Dis a bilit y Min i stry, by S t epha n ie Hu b ach
6
NOTES
1. David Silver, “The Meaning of Shalom,” http://therefinersfire.org/meaning_of_shalom.htm, (March 14, 2007).
2. Kenneth S. Wuest, Wuest’s Word Studies in the Greek New Testament, vol. I (Grand Rapids: Eerdmans, 1953), 226.
3. W.E.Vine, Vine’s Complete Expository Dictionary of Old and New Testament Words (Nashville, TN: Nelson, 1985), 683.
4. Joni Eareckson Tada, “How to Minister to the Disabled: Q&A with Joni Eareckson Tada,” RTS Reformed Quarterly, Spring 1999, Vol.18, No. 1.
5. Dan Zink, Website quote, http://covenantseminary.edu, (February 25, 2007).
6. Oswald Chambers, My Utmost for His Highest, (Grand Rapids: Discovery House, 1963), August 4th entry.
All T hings Poss i ble: C alli n g Your C h urch Lea d ersh i p to E mbrac e Dis a bilit y Min i stry, by S t epha n ie Hu b ach
7
Stephanie Hubach serves as Mission to North America’s Special Needs Ministries Director. Mission to
North America is an agency of the Presbyterian Church in America. She also currently serves on the
Lancaster Christian Council on Disability and the Faith Community Leadership Advisory Board. Steph is
the author of Same Lake, Different Boat: Coming Alongside People Touched by Disability and All Things Possible: Call-
ing Your Church Leadership to Disability Ministry. She has been published in byFaith magazine, Focus on the
Family magazine, and Breakpoint online magazine. Steph and her husband Fred have been married for
27 years. They have two deeply loved sons: Fred and Tim, the younger of whom has Down syndrome.
1
Beyond Sunday Mor nings
Creating a Truly Inclusionar y Culture
By Jackie Mills-Fer nald
I knew you before I formed you in your mother’s womb.
Before you were born, I set you apart.
J E R E M I A H 1 : 5 , N L T
We have each been uniquely made by our Creator. Whether we’re tall or short, skinny or large, dark-
skinned or light-skinned, have disabilities or do not—God assures us that every person was and is a
handcrafted, original creation with a purpose.
In science, there is a concept called biodiversity that states any ecosystem with wide and diverse
forms of life is a healthier and more sustainable environment; it is a better, more balanced system than
one without diversity. The same concept applies to our communities, schools, workplaces, and
churches. Our churches should be a rich tapestry of cultures, races, backgrounds, and ability levels. We
should embrace such differences in our churches, not just tolerate them. Why is it, then, that so many
churches have struggled with or failed to include persons with disabilities in the Body of Christ as full
participants and contributors?
Hearing the Call
Many churches big and small have begun to focus on accessibility. This goes far beyond having a build-
ing that is compliant with the Americans with Disabilities Act. The members of these congregations
have had a paradigm shift. These are churches where the staff and members welcome those with dis-
abilities and see them as people first, not defining them by their disabilities. The biggest disability in
the church today is that of attitude and a hardened heart. We are the hands and feet of Jesus Christ
and are called to be like him. In this case, we should love all people, especially those who are different—
those with intellectual, physical, or emotional disabilities.
Over the past several years, more and more pastors, church leaders, and volunteers have begun to
focus programs and support on including all individuals. Although I am certainly not a theologian, it
is clear that when Jesus commanded his disciples to go out into the world and preach the Good News,
it was an inclusive statement. He did not mean only those persons with IQs greater than 70, with strong,
sound bodies—Jesus meant ALL people. He spelled it out for us in Luke 14; going so far as to say, “Bring
in the poor, the crippled, the blind and the lame…so that my house will be full.” We do not have to look any further
than the four Gospels to see with whom Jesus spent his three-year ministry on Earth. Jesus shared his
days with the lame, sick, blind, deaf, mentally ill, and crippled. If Jesus is our model, then we should be
embracing persons of all ability levels into our churches.
I am encouraged as I travel the country and talk with church leaders about disability ministry and
outreach. It is exciting to see churches intentionally developing programs to enable those with disabilities
to experience and participate in worship services or classes. Yet how those with disabilities participate
varies from church to church. The church may have a fully-inclusive children’s ministry program with
specially-trained buddies to assist the children who need additional support. The ministry may take the
form of self-contained classrooms for adults with developmental delays taught by special educators. For
one church, it may look like a special worship service for those with sensory issues. Another church may
educate their congregation about individuals who cannot sit still during corporate worship and help the
members to anticipate occasional outbursts. The programming and types of services depend on church
missions, leaders, staffing, resources, and the needs of the persons with disabilities and their families.
How amazing it would be for the family of a child with a disability or for an adult with a disability
to walk into your church for the first time and be greeted with a warm welcome and a place to connect
or belong. Unfortunately, this has too often been the exception and not the rule. Many first-time visitors
have left churches feeling frustrated, hurt, angry or sad because staff or volunteers were not prepared
to care for and meet the spiritual needs of their loved ones with disabilities.
A Broader Vision
As church leaders, we must continue to think about church ministry and outreach to this population.
We must think in terms beyond just “making Sunday mornings work.” There is a tendency to stop
there, thinking Sunday mornings were successful when they’ve gone off without a hitch or hiccup. But
we must broaden our vision. As a church, we should be developing a cradle to grave mindset—no matter
the age of a person with a disability, there will always be a place or program where he or she can grow,
feeling loved and included. Frequently, churches with existing disability ministries have a fragmented
approach. They may either provide a children’s program or a special-adult program, but not both. Al-
though those programs can be a great place to start, we need to think in terms of a continuum of serv-
ices. We should be creating a church experience and church life for persons with disabilities that mimic
the church life of those without disabilities. The goal is for all persons to grow, connect, serve, and
share in the Body of Christ. If your church already has a disability ministry, now is the time to begin
thinking of what is next. If you have the Sunday morning routine down to an art, how do you continue
to develop from a ministry of disability to a ministry of possibility?
I have a great colleague who is the director of a local disability advocacy group. Nancy likes to say,
“A life like yours and mine.” The quote is often used in the context of creating community, employment,
housing, and transportation options for persons with disabilities. However, the premise could very eas-
ily be applied to the church. How do we create a church experience like yours and mine for all people?
One of the keys is to define people not by what they can’t do, but what they can do or can become.
B
e
y
o
n
d
S
u
n
d
a
y
M
o
r
n
i
n
g
s
. . . C
r
e
a
ti
n
g
a
T
r
u
l
y
I
n
c
l
u
s
i
o
n
a
r
y
C
u
l
tu
r
e
, b
y
J
a
c
k
i
e
M
i
l
l
s
-
F
e
r
n
a
l
d
2
Often, disability ministry is viewed as a ministry of deficits. This misses the assets and gifts that persons
with disabilities can bring to the church. When we look at disability through the lens of deficit, our
perspective is “ministry tothose with disabilities. It needs to become “ministry with and bythose with
disabilities. We must move away from thoughts that disability ministry is a ministry of pity, to under-
standing it is a ministry of great possibility. We need to see disability as normal and diversity as good.
How do we change mindsets to create a fully-inclusive culture in which all people are integrated into
the Body of Christ and are offered opportunities to grow spiritually, connect socially, serve and lead?
Let me share a little about myself and my own journey of disability ministry.
Humble Beginnings
I have been on staff with Access Ministry of McLean Bible Church for almost 13 years. I am an ordinary
person, and not at all qualified to be doing the work I do as the director of one of the largest disability
ministries in the country. But I have a God who daily covers all of my inadequacies and lack of ability.
Over time I have learned my ineptness is covered by a God that is all-knowing, all-powerful, and full
of grace.
Access Ministry began by providing childcare on Sunday mornings for four children with special
needs. We now serve over 500 families impacted by disability, and have a place for all family members
regardless of their ability levels. The ministry continues to grow by creating a fully-inclusive church
culture that cuts across all ministries and throughout every level of leadership. An inclusive culture is
much richer than merely having “special classrooms or programs.” We have an environment where par-
ents and persons with disabilities have choices about the programs in which they will participate and
actually have a voice or say. Persons with disabilities have the right to advocate for themselves and their
wants and needs in church as well as in the community.
A few years ago I was asked to serve on the Operational Team, where strategic planning happens
and large ministry events take shape. During these meetings, questions would arise, such as, “Will the
event be fully accessible? Does it represent diversity? How can we modify/adapt the event so it is relevant
to all?” These meetings have encouraged collaboration across ministry lines and continue to keep ac-
cessibility issues at the forefront of all major church decisions. We’ve wrestled with issues such as how
we could modify full-immersion baptism for persons with poor motor skills or those who are non-am-
bulatory, without compromising our theology or statement of faith. As ministry leaders, we’ve mulled
over how Access volunteers could support the youth ministry so a group of teens with special needs
could attend a beach retreat, as well as how Access staff could train the children’s staff to make inclu-
sion successful for different learners. As we plan church-wide outreach, we make sure materials are
available in Braille and that there are American Sign Language interpreters available for the deaf com-
munity. We’ve come to realize that the ministry has two primary purposes: First, to provide specialized
programming when needed, and, second, to promote inclusion by working with other ministries to
help make them fully accessible.
Serving Together
One of the ways to become a fully-devoted follower of Christ is through serving and giving of time and
talents. Access Ministry encourages and creates opportunities for those with disabilities to serve and
give back. Many of our young adults with disabilities are greeters and ushers, while others serve in the
food pantry or clothing ministry.
B
e
y
o
n
d
S
u
n
d
a
y
M
o
r
n
i
n
g
s
. . . C
r
e
a
ti
n
g
a
T
r
u
l
y
I
n
c
l
u
s
i
o
n
a
r
y
C
u
l
tu
r
e
, b
y
J
a
c
k
i
e
M
i
l
l
s
-
F
e
r
n
a
l
d
3
One special annual event is Turkey Outreach, where hundreds of volunteers help assemble 7,000
turkey dinners to be distributed in the Washington, D.C., area. This past November, we had a group of
adults with disabilities serving shoulder to shoulder with other volunteers for hours on end. It was a
beautiful sight as these young adults felt so valued and empowered while serving the hungry.
What about those individuals with artistic talents or gifts? Have you considered creating places in
the worship service for them to serve and bless others? This past year, Access partnered with the Creative
Arts Ministry to create a performing group called AMPA, Access Ministry Performing Arts. They meet
most Saturday mornings to rehearse songs, drama, and poetry to later be performed in the church or
local nursing homes.
There are so many ways to serve in the church. Everyone needs to feel they belong and are con-
tributing members. Don’t make the mistake of assuming persons with disabilities don’t want to or
can’t serve within the church. Ask them where they would like to serve, and then create a plan to make
it happen. You may need to build in some supports, but many are just waiting to be asked and can
serve without any additional assistance. What a testimony of the Body of Christ functioning as it was
meant to be.
When you look around at leadership positions (staff or volunteer) within your church, how many
positions are filled by persons with disabilities? Employing or hiring persons with disabilities in key
leadership roles sends a powerful message. This is when the paradigm shift from “ministry toto “min-
istry with and by” becomes a reality.
Every summer, Access Ministry runs a camp for children with disabilities and their nondisabled
siblings. We hire many high school and college students, and a number of our staffers have disabilities.
In the past, we’ve had staff with Down syndrome, Asperger’s, and Spina Bifida—and they become pos-
itive role models to exemplify what can be accomplished when a person refuses to be defined by chal-
lenges or obstacles. Persons with disabilities need to be encouraged and empowered to lead in the
church and be provided with opportunities to do so.
Making Connections
In most churches, believers from teens to adults are encouraged to get connected in small groups as a
way of creating community and growing in faith. Does that same focus exist in the creation of connec-
tions for those with disabilities? If the answer is no, a concerted effort needs to go into ensuring all
people are connected with an intimate, caring small group. In order for that to happen it may mean
training small group coaches and facilitators on disability issues and awareness so the groups become
accessible. It may require modifying or adapting small group materials or supplies. Additional supports,
such as transportation logistics or creating buddy/mentor programs, may be necessary. By making a
few modifications, we can make small groups a reality for all.
Looking at Logistics
or Christians to be fully integrated into the church and follow Christ, one will most likely be attend-
ing worship service, connected in a small group, utilizing gifts and talents, and quite possibly have
gone through a membership process and/or baptism. How many persons with disabilities in your
church have been baptized or are full members? We need to look at how to create opportunities for
persons with disabilities to become members of the church as well as be baptized...just like you and
I are able to do.
B
e
y
o
n
d
S
u
n
d
a
y
M
o
r
n
i
n
g
s
. . . C
r
e
a
ti
n
g
a
T
r
u
l
y
I
n
c
l
u
s
i
o
n
a
r
y
C
u
l
tu
r
e
, b
y
J
a
c
k
i
e
M
i
l
l
s
-
F
e
r
n
a
l
d
4
Churches may need to become more flexible in how they perform baptisms. For instance, McLean
Bible Church believes in full immersion. Up to this point, all persons with disabilities have been baptized
in the traditional method. However, as leaders, we have discussed the need to look at other options on
a case-by-case basis for persons who may not be able to be fully immersed due to a physical or sensory
issue. Another powerful component of baptism is verbally giving your testimony. Many persons with
disabilities may not be able to verbally articulate their faith, though they could testify with the use of a
communication device, sign language, or a reader. We need to be ready and flexible for those situations.
We also need to look at the logistics associated with membership classes or membership applica-
tions. People with disabilities may need some assistance or support, which the church should be able
to provide. That support may mean having a buddy or peer in the class, or a person to walk through
what it means to become a member and complete the paperwork. It may involve having a friend or
buddy attend congregational meetings with a person who has a disability. As our participants in Access
Ministry grow into adulthood, we see more and more of our young adults being baptized and becoming
members of the church.
Loving Like Jesus
As we continue to embrace and welcome all God’s people into his house, our churches and church
members become richly blessed as they experience a love like that of Jesus. A love that says, “Come one,
come all!” This is a love that looks beyond color, beyond disability, beyond social status. “The LORD
does not look at the things man looks at. Man looks at the outward appearance, but the LORD looks at the heart.” (1
Samuel 16:7) I enjoy watching people, each one so different and uniquely made by our Creator. I am
reminded of Psalm 139:14 where David said, “…I am fearfully and wonderfully made.” We are each a mas-
terpiece created in God’s image. What an imagination he has! Those with disabilities and those without
are all part of God’s perfect plan.
B
e
y
o
n
d
S
u
n
d
a
y
M
o
r
n
i
n
g
s
. . . C
r
e
a
ti
n
g
a
T
r
u
l
y
I
n
c
l
u
s
i
o
n
a
r
y
C
u
l
tu
r
e
, b
y
J
a
c
k
i
e
M
i
l
l
s
-
F
e
r
n
a
l
d
5
Jackie Mills-Fernald is the director of Access Ministry at McLean Bible Church in Washington, D.C. Her
relationship with Access Ministry began in 1999 as a volunteer. Jackie joined the ministry staff that same
year and in 2000, became the Assistant Director of Staff and Volunteer Development with a focus on recruit-
ment, training, and overall program development. Since December of 2003, Jackie has served as the Director
of Access Ministry and also oversees the Signs of Life deaf ministry.
1
Ministering to Teens with Special Needs
By Julie M. Keith, D.Min.
Today is Sunday, a day of rest and a day when many families in the United States are about the hustle
and bustle of getting ready to attend worship services. These families may have children of various
ages, and those with teens are all too familiar with the struggle to motivate them to attend services.
However, for the Cline family, whose 15-year-old daughter, Stacia, has special needs, there are even
more challenges keeping them from attending services and becoming part of a faith community.
The obstacles facing families who have teens with special needs can be so overwhelming that many
families decide to not even attempt to find a place to worship. For some families, one parent may stay
home with their “Stacia” while the other attends services, or they may attend together as a family, ar-
riving late and sitting in the back ready to make a hasty exit at the end of the service. This is the extent
of many families’ involvement in a faith community. The challenges keep them from developing rela-
tionships with others, as well as the opportunity to get involved in service and Bible studies or small
groups, which would nurture and grow their faith.
For these families, the challenges don’t stop on Sunday morning. There is a daily barrage of juggling
appointments, financial concerns, physical stress, and the strain placed on their marriages. They may
struggle with school districts to find appropriate classes and placement for their teens with special
needs. Each area of development or transition can reveal new obstacles.
Transition Issues and Challenges
Transition issues are always a concern for parents of teens with special needs. Often, parents are not
aware of the steps they need to take to support their teen in the school system. One specific area is
the change from an Individualized Education Plan (IEP) to an Individual Transition Plan (ITP). This
plan should be developed once a teen with special needs turns 14. The ITP guides and directs the
teachers, and supports those involved in transitioning the teen from high school into adulthood. This
plan will lay out the importance of developing social skills, life skills training and work development.
Families like the Clines have faced the challenges of transitioning from elementary education to junior
high and then, finally, high school. Once Stacia entered high school there were many other transition
issues, including:
Transitioning from one home room to many different classes;
A new aide in an inclusion class;
Less focus on academics and more on life skills;
A job or work program;
The widening gap in social skills and ability to interact with peers.
The Challenge of Hormones
Sexuality is another significant challenge for families who have teens with special needs. People often
make the mistake of assuming that since a teen may have the cognitive development of a five-year-
old he or she does not experience the same hormones and feelings typical of the teen years. This could
not be further from the truth. Kathy is a young woman who has Down syndrome. As a teenager she
began to experience the usual physical changes in her body. These changes scared her, and she did
not know how to deal with all of the feelings and emotions. Her parents also struggled with knowing
how to respond. They were fearful of Kathy being taken advantage of because she was so friendly and
trusting. Kathy also began to “discover” boys and become sexually attracted to them. Though her par-
ents knew they had to talk with her about sex, it was even more difficult than it is for parents of typical
teens. These parents need guidance and training on how to talk with their teens about their changing
bodies, sexuality and the importance of private areas no one is allowed to touch. It is a very sensitive
subject, but a critical one due to the statistics indicating a high incidence of abuse in children and
teens with special needs.
Thinking Outside the Box
The ministry leaders who desire to reach teens with special needs will have to become masters at inno-
vative thinking, dreaming and working outside of the box. The traditional methods used by churches
and youth ministry programs often lack the flexibility needed to include teens with special needs and
their families. There are two key elements for creating and developing ministry programs to address
the needs of these families. First, all people are created in God’s image (Genesis 1:26-27). Second, no
two people are alike. Just as no two individuals have the same fingerprints, each person has been
uniquely created by God.
Below are some program suggestions to include teens with special needs and their families:
Start a shadow or buddy program. This idea is simple and easy to implement. A shadow or
peer buddy is someone who has been selected and trained (usually by the parents) to work
with the teen who has special needs. This buddy will assist the teen so he or she can be in-
cluded in typical youth ministry and attend various activities and small groups. It will be im-
portant to develop a shadow/buddy description or contract that can be used so everyone is
on the same page.
Create and develop a specialized class designed specifically for teens with special needs. This
is a great option for teens with more moderate to severe disabilities, because staff and volun-
teers are trained to address some of the behavioral, social and cognitive development chal-
lenges that can keep their families from participating.
Develop a small group for teens with special needs. Many youth groups have gone to the
small group format to foster spiritual development as well as provide opportunities to develop
M
i
n
i
s
te
r
i
n
g
to
T
e
e
n
s
w
i
th
S
p
e
c
i
a
l
N
e
e
d
s
, b
y
J
u
l
i
e
Ke
i
th
2
deeper relationships. Developing small groups for teens with special needs within the group
would provide an avenue for the teens to interact with each other and still be a part of the
youth group. This group can also be a blend of typical teens and those with special needs.
Develop a parent support group for parents who have teens with special needs. This type of
support group would provide an avenue for parents to come together and encourage each
other as well as develop friendships and their own spiritual development. It would be helpful
if the support group was run simultaneously to the youth programs or specialized classes so
the parents did not have to worry about childcare for their teen.
Develop recreational activities and other events that the teens can participate in. Remember
to think about the logistics of including teens with special needs. The following questions
can help in the development of activities:
Are there any physical restrictions that may need to be adapted for a teen using a
wheelchair?
Is the location accessible?
Are extra volunteers needed to assist teens with special needs to be included in the
activity?
Creative and innovative thinking is also needed in the area of developing training for parents. Many
youth ministries offer various types of parent training and education, and parents who have teens with
special needs can benefit from training as well. For example, most parents fret about their children’s
future, but worries can be compounded for parents who have teens with disabilities. Those issues can
be addressed in trainings or seminars explaining Special Needs Trusts, the different housing options
for adults with special needs, and community resources available for teens and adults.
When it comes to training teachers and volunteers, many times the information will cross over,
however, there are some specific areas for serving families with teens who have special needs. From
autism to working with teens who have challenging behaviors, provide training for the different types
of disabilities the teachers and volunteers may encounter. There may be someone within the faith com-
munity who can provide training, or there are many services available through community organiza-
tions. A great resource is the National Dissemination Center for Children with Disabilities.
1
Once
resources have been located, focus on developing relationships with the individuals who can help build
bridges for the families.
Move the Walls in Youth Ministry
Flexibility will be critical as you begin to move the walls in youth ministry. What does it mean to move
the walls? One of the main reasons teens with special needs are not in church or part of youth ministry
is because of the many barriers that keep them from participating. An overall lack of awareness within
the church and youth group in regards to special needs is a typical barrier. A youth pastor friend said,
“When I think about youth ministry and students with special needs, I think about how much I don’t
know. When I become aware of a student that has special needs, I immediately go through a series of
thoughts like, ‘What boundaries are appropriate for him/her? Will he/she understand me?’ I know for
myself I don’t have a lot of education on students with special needs, so the comfort level I feel with
them is not strong and therefore leads to an experience that probably isn’t beneficial for either party.
When you are in a room with a lot of students, the attention I can give to a special needs student,
M
i
n
i
s
te
r
i
n
g
to
T
e
e
n
s
w
i
th
S
p
e
c
i
a
l
N
e
e
d
s
, b
y
J
u
l
i
e
Ke
i
th
3
let alone any other student, is limited since I’m trying to make connections with the students that are
present there for such a short period of time.” This pastor’s lack of education and awareness is similar
to many other youth pastors and leaders.
There is also a need for education and awareness for the teens who participate in youth groups.
Many may know someone with special needs or know a little about different kinds of disabilities, but
may still be timid about interacting with them. Consequently, they do not accept teens with special
needs or know how to include them. Here are some practical tips for breaking down barriers:
1. Create awareness opportunities for typical teens to learn how to accept those with special
needs.
Host a special needs awareness day during youth group. This can be in conjunction
with an all-church special needs emphasis Sunday or during a regular youth group
meeting. Have the students participate in various activities to help them better un-
derstand what it is like to have a disability.
Invite someone who has a special need to share their story and the importance of be-
ing included in a faith community.
2. Organize activities in a non-threatening environment where teens with special needs and
typical teens can interact.
go to a sporting event or amusement park
movies
beach day
bowling
game night at church
3. Model peer relationships which foster inclusion of teens with special needs. The shadow or
buddy program is a great way to demonstrate how to include a teen who has special needs.
A Place for All
Once the walls have been moved and teens with special needs and their families are accepted into the
faith community, the next step is to encourage their involvement. Scripture teaches that every person
has gifts to be used in service to God (Romans 12 and 1 Corinthians 12). Teens with special needs are
no exception. Often teens like Stacia are not aware of their gifts, so the challenge is to create specific
opportunities for involvement in worship and service. There are many helpful spiritual gifts assess-
ment tools available, however, they may need to be adapted in some cases depending on the cognitive
development of the teen. Another way of learning which gifts a teen possesses is by finding out what
they enjoy and are good at. Whether it’s volunteering on the prayer team, serving as a greeter or work-
ing in the church office, it will require some time and trial and error to help these teens discover their
gifts and best places to serve.
Andrew and his parents have been members and involved in church for many years. When Andrew
was in his teens he was encouraged to use his musical gift of playing the drums to be a part of the
praise band. He was thrilled to be able to worship God by doing something he really loved. Andrew
still serves as a part of the praise band and has even branched out to play at additional ministry events
at church.
M
i
n
i
s
te
r
i
n
g
to
T
e
e
n
s
w
i
th
S
p
e
c
i
a
l
N
e
e
d
s
, b
y
J
u
l
i
e
Ke
i
th
4
Garret is another young man who uses his musical gift to serve and worship God. He has Cerebral
Palsy which has affected his ability to move without the aid of a wheelchair, and his speech is very lim-
ited. When Garret speaks you have to listen carefully to even be able to understand. When Garret sings
in worship to God his voice is crystal clear as he communicates his love for the Lord. His worship pastor
knows what an incredible gift Garret has and the blessing it is for the entire congregation, so he provides
opportunities for this precious gift to be shared.
Brenda is friendly and very outgoing. She is always smiling and desires to make people feel welcome
as they enter the church on Sundays. Her job is to pass out the programs and welcome those coming
into service. She happens to have Down syndrome.
Lydia has a love for children and shared this with one of the pastors at her church. Knowing there
was always a need for volunteers to serve in the nursery and in the toddler department at church, the
pastor spoke with the ministry leaders over those areas and made arrangements for Lydia to begin vol-
unteering with the children.
Bryce is a 16-year-old boy who has an incredible gift of being able to read anything, but he cannot
comprehend what he reads. His schoolteacher knew that Bryce needed an opportunity to serve and
give back. She began to work with another teacher whose students were blind and visually impaired.
They came up with a plan for Bryce to read to the students who were blind. The students enjoyed having
Bryce read to them and he was proud that he was able to do something good for his school and com-
munity.
All of these teens were given the chance to use their gifts and abilities to build up God’s kingdom
and build connections. Connection is important for everyone in a faith community. Service is one way
that teens with special needs can begin to bond with others in their church. Connection also happens
as teens like Andrew, Lydia, Bryce, Garret, Brenda and their families are given opportunities to be in-
volved in corporate worship, small groups, specialized classes, support groups, Bible studies and any
other activity where they are able to learn and grow in their relationship with Jesus and those within
the Kingdom of God. Ultimately, connection happens when, “we love because he first loved us.”
Whoever claims to love God yet hates a brother or sister is a liar. For whoever does not love their brother and
sister, whom they have seen, cannot love God, whom they have not seen. And he has given us this command: Anyone
who loves God must also love their brother and sister (1 John 4:20-21, NIV).
NOTES
1. National Dissemination Center for Children with Disabilities, www.nichcy.org
M
i
n
i
s
te
r
i
n
g
to
T
e
e
n
s
w
i
th
S
p
e
c
i
a
l
N
e
e
d
s
, b
y
J
u
l
i
e
Ke
i
th
5
Julie Keith received a BA degree in Associate Ministry with an emphasis in Disability Ministry, a MA degree
in Marriage Family Child Counseling from Pacific Christian College and a Doctor of Ministry degree from
Southwest Theological Seminary. Julie has served as Disabilities Minister at several churches, and currently
serves as the Special Needs Pastor of In His Image Ministry at First Church of the Nazarene in Pasadena,
CA, where she has been since March of 2007. Julie has also worked in social services with individuals who
have developmental disabilities and conducted training and education for staff in this field.
1
Tips for Teaching Can-Do Kids
1
By Pat Verbal, M.A.
Accept one another, then, just as Christ accepted you, in order to bring praise to God.
R O M A N S 1 5 : 7
The key to teaching students with disabilities is to believe that each one can learn and communicate in
some way or another. This is challenging in any congregation, but it’s also a wonderful ministry oppor-
tunity. If you look closely, you’ll see that in every child’s weakness there is a hidden strength. It’s like
mining for gold. It’s a lot of work, but oh, how those nuggets sparkle in the sun. For Christian teachers,
the nuggets represent the Spirit of God within each child.
Teaching these children is more than accommodating their needs—it’s helping them find that spark
of God’s love within themselves. In their book, Lost and Found, Marc Gellman and Thomas Hartman
point children to God’s plan for them. “You are not your body,” they write. “Your body is kind of like
a case for your soul, which is what you’re really like. God gave us much more than we need to live, and
we can lose some of our parts and still live a great life.”
2
Whether students are affected by a disability so deeply that they require a self-contained classroom
or function well among their peers, these “can-do” kids are capable of knowing and serving God with
your help. Teaching them cannot be summed up in a few pages in this paper, but the following overview
will help you better understand the most common disabilities.
Brian Has a Physical Disability
Brian has undergone eight surgeries in six years. Twice he stayed in a half-body cast for six months so he
would eventually be able to whiz around in his four-wheel walker. Wheels are Brian’s love, including his
Hot Wheel collection and his favorite movie, Cars! He even tries to play cars at church, but Brian’s teacher
doesn’t let him play. She insists that he participate in every part of the lesson, because she knows he can!
Learners like Brian have a variety of characteristics that help define physical disabilities such as cerebral
palsy, spina bifida, and muscular dystrophy. They may have restricted mobility and lack muscle coordi-
nation. They can become frustrated over the responses of peers. They often experience fatigue and stress
due to their physical difficulties which may also include problems with speech, chewing and swallowing.
As Brian’s teacher or helper, you should…
Provide a safe environment with freedom to move around.
Allow more time to transition between activities.
Plan tactile learning activities such as finger paint or water play.
Adapt games and crafts to his level of participation.
Sadie Has a Developmental Disorder
Ten-year-old Sadie has autism and doesn’t talk much, but she knows the lyrics to almost every country
western song. Once while waiting for her mother at a cell phone store, she programmed every phone
in the display racks to play different country music tunes. She even carries around pictures of singers
as models for her behavior at home and at school. Learners like Sadie have a variety of characteristics
that help define disabilities such as autism, Rett syndrome, Asperger’s syndrome, and pervasive devel-
opmental disorder (PDD). They can seem to ignore others and fail to answer questions when they’re
actually very aware of what is going on around them. Some children react to excessive or insufficient
sensory stimuli. Others engage in repetitive behavior as a means of self-comfort and also need consis-
tent routines. Students with developmental disabilities can have high or low intelligence, but may
struggle with limited language and social skills.
As Sadie’s teacher or helper, you should…
Go slowly when introducing new activities to her routine.
Provide a quiet place for needed breaks.
Encourage social interaction with a partner or small group.
Be faithful since she likes to bond with one person.
Andy Has a Learning Disability
Andy is a creative third-grader who loves to fish, but hates to read. His dyslexia causes him to process
words differently than other children. Although Andy’s IQ is above average, people sometimes treat
him as less capable because he takes longer to complete tasks. He has trouble sitting still, but doesn’t
think twice about hooking a sales clerk into a conversation about rainbow trout. Students like Andy
have a variety of characteristics that help define disabilities such as attention deficit/hyperactivity dis-
order (ADHD), and speech and language disorders. Students like Andy can be distracted, disorganized
and frustrated. They struggle with low self-esteem and discouragement. They quickly forget instruc-
tions and rules and may be socially inappropriate.
As Andy’s teacher or helper, you should…
Channel his energy into appropriate activities.
Recognize that his behavior is not stubborn disobedience.
Use hands and eyes to guide him, not harsh words.
Provide opportunities for him to move, to touch and to do.
Review lessons with drawing, not reading and writing.
T
i
p
s
f
o
r
T
e
a
c
h
i
n
g
C
a
n
-
Do
Ki
d
s
, b
y
P
a
t V
e
r
b
a
l
2
Megan Has an Intellectual Disability
Megan loves her church, and they love her. With her sweet smile and big hugs, she’s the official Sunday
greeter. People don’t seem to mind that they can’t understand much of what she says. But at age nine,
Megan is still in the first grade, because she was born with Down syndrome (a disorder caused by a
chromosomal abnormality and recognizable by slanted eyes and a flat bridge on the nose). In spite of
Megan’s regular visits with a speech and occupational therapist, her parents fear that she will never be
able to read, write or care for herself. Students like Megan have a variety of characteristics that help de-
fine disabilities such as Down syndrome, Fragile X syndrome, fetal alcohol syndrome, and hydro-
cephaly. They can learn slowly within their range of comprehension but their attention span is usually
short. Some have poor large and small motor coordination and need speech and occupational therapies.
Their mannerisms can be childlike with an innocent lack of modesty. Their health issues may include
heart disease, seizures, visual impairment and hearing loss.
As Megan’s teacher or helper, you should…
Respond to her developmental level – not her age.
Show—don’t tell.
Simplify learning activities and use repetition.
Expect proper behavior and praise her often.
Be firm and loving.
Art is FUN for Children with Special Needs
Ask Brian, Sadie, Andy or Megan what’s their favorite part of class and they may say, “ART!” Here are
some teaching tips for successful art projects.
T
i
p
s
f
o
r
T
e
a
c
h
i
n
g
C
a
n
-
Do
Ki
d
s
, b
y
P
a
t V
e
r
b
a
l
3
Physical Disability Intellectual Disability Learning Disability
Tape materials to the desk or tabletop. Begin with simple two-step directions. Limit the length of task.
Use squeeze bottles for paint.
Sequence steps from simple
to more difficult.
Provide breaks.
Wrap paint brushes, crayons and pencils
with foam hair rollers for easier grip.
Watch for special perceptual prob-
lems, such as difficulty with left-to-
right or up-down distinctions.
Have kids work with partners.
Use felt tip pens that require
less pressure.
Use concrete examples for
demonstration.
Allow the child to stand while working.
Use adaptive scissors.
Take into account developmental
stages to understand what children
are able to do.
Give verbal and visual directions.
Raise or lower table as needed.
Use pictorial cues, mnemonic devices
or color-coding to help memory.
Reduce the number of materials.
Watch for signs of fatigue.
Have the child repeat directions
in his or her own words.
Have an alternative plan for
another art activity.
Use large materials rather than small.
Allow longer time for completion
on an activity.
Be alert for signs of restlessness
or inattention.
Combine art with new technology. Praise the child for his or her work. Avoid stressful situations.
Learners with Visual and Hearing Impairments
The biggest mistake people make with visual or hearing impaired students is acting as though they
have limited intelligence. Adults tend to talk about them instead of speaking directly to them. While
each child is unique, these children can usually enjoy most church activities with a little adaptation.
For example, children with learning impairments may be very articulate in sign language. So, using a
sign interpreter is ideal, but sitting a student near a friend who can take notes on a laptop can also
work. Students who lip read should sit or stand directly in front of teachers in order to allow them to
see his or her face. The key here is to speak clearly using a normal speed.
Students with visual problems may be partially or totally blind. Some do well with large print Bibles
and enlarged lesson materials. Others benefit from lessons on tapes and sensory learning activities.
Bible lessons and hymnals are also available in Braille. It’s good etiquette to say your name when greet-
ing a blind child or adult and to offer your arm as a guide if needed.
Frequently Asked Questions
“What can I do when a student is distracted?”
Make eye contact. Encourage listening skills with a gentle tap on the shoulder and phrases like “Beth,
get ready!or “I need to tell you something.” or “This is important!Use picture schedules and sequence
charts to help her refocus on the task at hand.
“What if I can’t understand a child’s speech?”
Children know when you only pretend to understand them. So, it’s better to ask them to repeat what
they said. If that doesn’t work, ask them to act out what they want. You may need to say, “I’m not
sure what you’re trying to tell me. Let’s ask your mom to help me understand when she gets here,
okay?” This will help ease a child’s frustration and let him know that you care about what he thinks.
In some cases, students can communicate by pointing to symbols on a poster or using hand signals
for “yes” and “no.”
“When children ask questions about someone’s disability, how should I respond?”
Your class will look to you as a model of how to behave around a student with a disability. Your con-
fidence will put them at ease. When they ask questions, don’t give a long explanation. Say, “Billy’s in
a wheelchair because his legs don’t work like yours. He might like you to push his wheelchair, if you
ask him.”
“What’s the best way to help students with special needs learn God’s Word?”
Music! Bible verses set to music stick in the hearts of all God’s children (including adults). Choose
songs with repetitive choruses and use picture charts to emphasize the words. Add rhythm instruments,
marches and sign language for fun. But be aware that some children may simply enjoy listening to
quiet music.
Million Dollar Teachers
You may never get rich teaching children with special needs, but mining for gold pays off. As I walked
into the sanctuary one Sunday, a little girl who has autism spotted me. Emily ran up to me with a big
grin. She threw her hands in the air, waving. I felt like someone had handed me a million bucks! When
T
i
p
s
f
o
r
T
e
a
c
h
i
n
g
C
a
n
-
Do
Ki
d
s
, b
y
P
a
t V
e
r
b
a
l
4
Emily was born, the doctor said she would never walk or talk, so watching her surpass their expectations
has been one of my greatest joys as a teacher.
We proclaim him [Jesus], admonishing and teaching everyone with all wisdom, so that we may present every-
one perfect in Christ. To this end I labor, struggling with all his energy which so powerfully works in me.
Colossians 1:28
Providing the Right Tools
Teaching God’s Word is always a privi-
lege, but it’s especially meaningful with
students who have disabilities. “I’m emo-
tional about teaching children about
God,” says one teacher. “I know how I
feel when I study and feel close to Him.
So, to be able to share that with the chil-
dren in my special education class is
powerful. And to see how they respond
overwhelms me with joy.”
Before selecting the right tools, you must assess the skills of the students in your program. When
a child with a special need visits your church, arrange to meet the family in the foyer. Introduce yourself,
“Good morning, I’m the director (or teacher) of our special needs ministry. May I meet with you for a
few minutes before the service and assist you in placing your child in a classroom?” Give them a wel-
come packet about the ministry with forms to complete at home regarding their child’s needs. Then,
call the parents the following week to answer their questions and get their input, because parents are
your best resource.
Many children and adults with physical or emotional disabilities can use the same curriculum as
other students. Those with hearing or visual impairments may need sign language, CDs, large print
Bibles, or materials in Braille. But for optimal learning with students who have intellectual disabilities,
Bible lessons must be adapted to their level of comprehension.
How to Select and Adapt Curriculum
Only a small number of Christian publishers are addressing the alarming lack of special needs curricu-
lum for churches. I believe the fault lies with churches as much as with publishers. Imagine the outcry
for more teaching tools if 85 percent of U.S. churches had intentional special needs ministries for fam-
ilies affected by disabilities. However, the good news is there are some excellent resources for children
without disabilities that can be adapted with a little practice. Patti Nell, a veteran in special education
and leader at Handi*Vangelism, offers the following advice.
3
What do you tell leaders regarding curriculum?
One size doesn’t fit all! There is a great range of learning abilities within the scope of individuals who
have intellectual disabilities. If you want teachers to be successful, provide them with practical training
on how to teach God’s Word. Good teaching practices can apply to all types of learners. For example:
1) Know and respond to studentsneeds, 2) involve the senses in learning activities, 3) teach for response.
T
i
p
s
f
o
r
T
e
a
c
h
i
n
g
C
a
n
-
Do
Ki
d
s
, b
y
P
a
t V
e
r
b
a
l
5
A Word of Caution . . .
Don’t draw attention to a student’s disability.
Don’t neglect a student’s dislikes or fears.
Don’t overly control or protect.
Don’t take rejection personally.
Don’t use harsh words such as cripple, deaf and dumb.
Don’t tolerate any teasing of other students.
Don’t stereotype or label.
In selecting curriculum that is adaptable, what criteria do you use?
1. Are the lessons true to God’s Word? Some curriculums use a portion of Scripture and then
pull out an application from it that doesn’t reflect the true meaning of the passage.
2. Are the lesson visuals true to God’s Word? Are pictures shown in Bible sequence?
3. Are the lesson visuals and activities age appropriate? For example, in a lesson on prayer for
preteens, don’t use childish pictures or songs.
4. Do the lessons offer a variety of teaching methods and activities geared to all learning styles?
What works best when adapting curriculum for various learning styles?
Intentionally plan something for everyone. Involve all the senses. Use music, drama, role-play, object
lessons, etc. Make sure all activities reinforce the aim of the lesson. Alternate activities that require sit-
ting with activities that involve movement. Use buddies or teacher’s aides to put students in groups
doing different activities geared to their style of learning and comprehension.
How do you personalize lessons to work in a group or with private instruction?
Know your students well. Talk to parents and teachers at school if possible. Know your students’ in-
terests, hobbies and routines. Adapt your Bible teaching to their strengths and weaknesses. Never un-
derestimate the simple joys of reading God’s Word aloud to students and modeling prayer.
Church should be a place where we celebrate the faith journey of children with special needs. Just
as public schools are required by law to develop an Individualized Education Program (IEP) for stu-
dents with disabilities, the church can also use this helpful tool. In the book, Exceptional Teaching,
Dr. Jim Pierson describes an Individualized Christian Education Plan (ICEP).
4
Here are some items
in the plan.
Identifying information: name, age, parents/guardians
Assessment information: present level of religious awareness
Learner’s community activities: experiences, likes and dislikes
Learner’s strengths and limitations: fears, level of directions
Learner’s family involvement: church attendance, desires for child
Goals: long-term goals with several short-term goals
Methods for including the child in the community and church; spiritual development
and service
One father who helped develop an ICEP for his son said, “I dream that my son will one day be able
to sit next to me in church and take communion. Thanks to his ICEP he has learned to control himself
while sitting in a chair for five minutes during story time. I hope that eventually he will be able to get
baptized and become a member of the church.”
In many churches children all go through confirmation classes. One mother worried that her son,
who has Fragile X syndrome, would be left out. So his ICEP included goals such as picking out four
Christian symbols from the ten pictures of symbols which were part of their church’s confirmation
class requirements. Eventually he was confirmed.
T
i
p
s
f
o
r
T
e
a
c
h
i
n
g
C
a
n
-
Do
Ki
d
s
, b
y
P
a
t V
e
r
b
a
l
6
How to Adapt Resources for Diverse Needs
When selecting curriculum, meet with your Christian Education Directors who are probably already
ordering Bible lessons from a publisher that reflects your church’s theology.
These materials can be adapted by limiting the amount of material to be covered in one class
period and preparing pieces according to the abilities and interests of your students. Special aides or
buddies can pre-cut crafts, prepare visuals and/or communication boards or charts. Stories can be
broken down into shorter segments and told using various kinds of repetitious, hands-on activities.
Your lesson plan should dictate your room environment. A creative space with activity stations
can clue your student’s behavior. For circle time with young children, bean bag chairs work well when
placed away from toys, puzzles and craft areas. For children with sensory issues, provide a cozy corner
or a separate room for free play.
Soft music will warm up your welcome for most children with special needs. A small minority
may respond negatively due to sensory sensitivity. Arlyn Kantz is the co-founder of Precision Songs
for children with autism. “Many children with special needs sing when they do not speak,” says Arlyn.
“This enables teachers to systematically approach education goals through the use of music.” In
2006, Arlyn and her team created a CD and Leaders Guide to teach the basics of faith through music
to children with autism. Each song on “Sing To Know What I Believe” has four tracks that move a
child from singing to answering questions about faith. “We believe that every child was made to be
a child of God,” says Arlyn. “And by placing them in our church, God has commissioned us to reach
them.”
5
If the curriculum you’re adapting is limited on options, check out the Big Book series from Gospel
Light Publishers. These resources categorize games and crafts by skill level. In the Big Book of Bible
Skills, you’ll find Books of the Bible cards that can be photocopied on card stock, laminated and cut
apart. Each card has the name of the book in bold print, a simple graphic of the book’s content and
a subject reference. These cards aid in memory and sequencing games.
A good source for manipulative toys for young children with special needs is Beyond Play. This
company combines products from a variety of manufacturers such as toys for sorting, dramatic play,
sensory exploration, and language. To order a catalog, call 877-428-1244 or visit www.beyondplay.com.
As you consider resources for your ministry, keep your eye on the big picture. Make a one- to three-
year shopping list, and ask God for financial blessings. At one church where I served, a caring volunteer
died suddenly and her husband gave a large donation in her name to our special needs ministry. Our
Heavenly Father delights in providing good gifts to his children.
A Word of Encouragement
In the church where I grew up, a huge portrait of Jesus, the Good Shepherd, hung above the altar. As
a child, I pictured myself curled up in Jesus’ arms like the little lamb. But as my faith grew, I realized
that Jesus was calling me to be a shepherd not a sheep. He gave me an overwhelming love for children
that continues to grow after 25 years in children’s ministry.
But I didn’t always understand how to feed all his lambs, especially the ones with disabilities.
Looking back, I see how God prepared me for this ministry. One of my best friends in high school
had a sister with Down syndrome. My son had a good friend in grade school with cerebral palsy. Then,
in 1990 I became the children’s pastor at a church with a thriving special needs ministry. A few years
later, two children with disabilities became part of our family. All these precious children became my
guides and together we’ve traveled the depths of God’s love and grace.
T
i
p
s
f
o
r
T
e
a
c
h
i
n
g
C
a
n
-
Do
Ki
d
s
, b
y
P
a
t V
e
r
b
a
l
7
If disability ministry is a new road for you, you can be excited about what God will show you. If you’ve
been on this path for awhile and feel discouraged, keep close to the Good Shepherd who knows your
heart and can use you to meet the needs of the children in your ministry.
NO TES
1. Pat Verbal, Practical Pathways: Reaching and Training Volunteers for Ministry with Special Needs Children. (Agoura Hills, CA: Joni and Friends,
2007), p. 17-24 revised.
2. Marc Gellman and Thomas Hartman, Lost and Found: A Kid’s Book for Living Through Loss. (New York, NY: Morrow Junior Books, 1999), p. 20.
3. Handi*Vangelism, www.hvmi.org
4. Jim Pierson, Exceptional Teaching: A Comprehensive Guide for Including Students with Disabilities. (Cincinnati, OH: Standard Publishing, 2002),
pp. 201–203.
5. Precision Songs, www.precisionsongs.com
T
i
p
s
f
o
r
T
e
a
c
h
i
n
g
C
a
n
-
Do
Ki
d
s
, b
y
P
a
t V
e
r
b
a
l
8
Pat Verbal is the Manager of Curriculum Development at the Christian Institute on Disability at Joni and
Friends. She is a well-published author of numerous books and articles on Christian education and special
needs ministry and has been a featured speaker, sharing from 25 years of experience as an associate pastor
and school administrator. She has been interviewed on Pastor to Pastor from Focus on the Family, Trinity
Broadcast Network and taught at the Billy Graham School of Evangelism. Pat is a graduate of Azusa Pacific
University and holds a M.A. in Pastoral Studies from the C. P. Haggard School of Theology.
1
A Parents Journey from
Weakness to Power
By Jon Ebersole
I collapsed on my bed feeling like a failure as a father—again. I had become impatient with my daughter,
Amanda, while helping with her nightly routine. Hadn’t I just recently raised my voice at my other
daughter, Jessica, during her driving practice? Feeling like a failure had become commonplace. In my
head I understood that Amanda and Jessica’s cerebral palsy and premature births had affected their
ability to function. But, somehow I couldn’t keep this in perspective when it came to showing them
kindness and patience. I agonized over this as a father and as a follower of Jesus. I was perplexed by
why God wasn’t changing me when I had asked him so many times. The Bible makes it clear that God
wants every parent to be kind, loving and their child’s greatest encourager.
My problem with consistently showing love in my words and actions affected my relationship with
my wife, Peggy, and our son, Ryan, as well. I felt discouraged and the situation seemed hopeless. How-
ever, over time God began to open my eyes to the timeless truth that only as I recognized and accepted
my weakness could I then receive the opportunity to experience his strength.
Disdain for Weakness
I was at the top of my class throughout high school and college. I was elected to lead groups at school
and church. I only missed a few days of school due to sickness. Colds were a nuisance to be endured,
not an illness that sidelined me. I completed assignments on time and exactly as the teacher instructed.
I knew that God was real and I thought my job was to be good and perform according to the highest
standards. I believed that working hard, helping people and being liked were the highest goals in life,
and going to heaven after death would be my reward. As I aged I came to realize:
I was more driven than most.
My expectations—for self and others—were higher than most.
My satisfaction came only when I completed a task or reached a goal.
I was harder on myself than most, focusing on what I could have done differently or what I
had missed, and on the next task to be conquered.
I felt more discontent than most and experienced little joy.
My marriage relationship finally forced me to come to terms with the unrealistic expectations I
had carried for 27 years. Although Peggy was an attractive and fun woman, proximity and intimacy
made it apparent that I was falling short and that my wife was also failing to meet my high standards.
The cracks were starting to show. Following the premature births of our twin girls, my façade of per-
fection began to crumble. The mask I’d been hiding behind came off completely when my daughters
were diagnosed with cerebral palsy at the age of one. I was at the lowest point in my life.
I hated disability. It pained me to see my daughters struggle because of it. After our son was born,
I saw how it affected him as well. Our entire family was impacted by disability. Our life was not what I
expected and my dreams and expectations for an idyllic family were shattered. My frustration came
out in impatience and unkind words, fueled by anger. It was all about me, and while I knew that my
self-focus was wrong, I could not seem to shake it. Somehow, I had gotten stuck.
Eventually, I began learning about God’s sovereignty and His perfect plan. I started to believe it.
My view of God began to change—enlarging, broadening. God used When God Weeps, by Joni Eareckson
Tada and Steve Estes, to point me in the right direction. However, I still could not accept weakness. I
did not want to accept it. I was hanging on to something that continued to impede me from accessing
the joy and contentment that Jesus promises to his followers.
The Allure of Weakness
In Western culture we have a love-hate relationship with weakness. Though we prefer power, we are
also drawn to the one we perceive as the underdog in a struggle. We love when weakness is overcome,
or people persevere and achieve success. Some may remember Eddie “The Eagle” Edwards, a ski jumper
from Great Britain in the 1988 Olympics. His jumps landed him in last place, but he was a crowd fa-
vorite. Why? It was about overcoming weakness. Edwards trained on planks compared to the slick skis
of his competitors. His training area was far from home and sparse. His jumps were short. Despite all
this, the network televised his jumps because people were fascinated by the odds he had overcome to
even compete. Edwards was likable and seemed satisfied with his performance because he had done
his best. He seemed content in his skin, satisfied with who he was, and embraced his weakness.
Though we love to cheer an underdog, we revel in bringing home the gold. Western magazines and
newspapers generally feature those at the top of their game or profession. We have a Hall of Fame for
nearly every sport and activity. We are enamored with the rich and famous. There is a natural draw for
us as humans to excellence, to beauty. I believe it is God-given. We seek and prefer beauty. Our human
nature, especially in the West, twists this innate love of beauty to focus only on the exterior or on the
performance.
Gods Take on Weakness
King Saul had fallen from God’s grace and Samuel, God’s prophet at the time, was sent to anoint the
next king. Samuel seemed to have lost his focus as the sons of Jesse paraded in front of him. God’s cho-
sen spokesperson expressed confidence that he had spotted the next king. As Eliab stood before him,
Samuel said, “surely the Lord’s anointed stands before me.” But the Lord said to Samuel, “Do not con-
sider his appearance or his height, for I have rejected him. The Lord does not look at the things man
looks at. Man looks at the outward appearance, but the Lord looks at the heart.” (1 Samuel 16:7) Wow!
Talk about a humbling experience. The author of all beauty jerked Samuel back in focus by telling him
that David’s size, age, or obvious characteristics were not a factor—it was his heart.
A
P
a
r
e
n
ts
J
o
u
r
n
e
y
f
r
o
m W
e
a
k
n
e
s
s
to
P
o
w
e
r, b
y
J
o
n
E
b
e
r
s
o
l
e
2
Jesus spoke about humility. He modeled it. Note how Jesus’ triumphal entry into Jerusalem on
Palm Sunday was on the back of a donkey. Jesus was never a homeowner; instead he chose to sleep
outside or in the homes of others. He did not defend himself from accusations, but simply laid down
what he valued most, his relationship with the Father, in order to die as a sacrifice for us. In Romans
8:34, Paul says Jesus continues his sacrificial service even now as he sits at the right hand of the
Father interceding for us. Humility is a trait we recognize most when it is absent in others. Although
the human tendency is to justify and defend ourselves, the acknowledgment of weakness is essential
for accepting God and our need for Jesus. The essence of my salvation is that because of my sin, I
cannot connect with God, our Creator. I now understand that I am not enough. Unable to please
God, we require Jesus Christ to bridge the gap between us and God. We have to humbly accept our
state of weakness.
Humility consists of an honest assessment of ourselves, combined with an accurate understanding
that God is who he says he is. We are the created, he is the Creator. We are invited or forced to look
outside of ourselves. We can either turn to God or to some activity that distracts us or an addiction
that numbs us.
My Daughter Models Humility
Paul tells us in Romans 12:3, “For by the grace given me I say to every one of you: Do not think of your-
self more highly than you ought, but rather think of yourself with sober judgment, in accordance with
the measure of faith God has given you.”
Turning to God allows us to say that he is God and we are not. We are not to think more highly of
ourselves than we ought, but accurately. Apart from Jesus Christ, we are nothing. We are an empty glove.
When we invite God into our lives, it is like a hand being put into the glove. Filled, the glove can work
and touch and carry. Only the hand can fill the glove, reaching all five fingers as we acknowledge our
need—our weakness—without Jesus. This is humility. The task is to be the glove, in which God’s pres-
ence and power can be displayed (1 Corinthians 4).
People with disabilities who accept their limitations, whether physical, mental, or cognitive, some-
times see their weakness more accurately. Therefore, they allow God’s love into their lives more fully.
My daughter Amanda says, “I talk with God because I need him more. I am so dependent on him.” My
daughter Jessica says, “Even though it’s sometimes hard to be accepted by kids my age, I know that
God will always accept me and that his love will never change.”
My dependence on God is more important than my ability to perform. Evidence of the fruit of the
Spirit is more important than success. I’ve learned that as a parent my character is more important to
God than my comfort. As a follower of Jesus, I am invited to humble myself, recognize and accept my
weakness. As I receive more grace and mercy, I am better able to comfort others as Paul says in 2
Corinthians 1:4, “…we can comfort those in any trouble with the comfort we ourselves have
received from God.” Pride is dispelled by humility and by an accurate recognition of our weakness and
by how BIG God is. I am now able to help other men see God’s love for them based on who they are,
rather than what they do.
Our God has hidden truth from those who think they are wise. I think of my children when I read
Matthew 11:25, where Jesus said, “I praise you, Father, Lord of heaven and earth, because you have hid-
den these things from the wise and learned, and revealed them to little children.” As caregivers, Peggy
and I often get weary. That’s when we hear Jesus’ invitation to come to him in verses 28-30, “Come to
me, all you who are weary and burdened, and I will give you rest. Take my yoke upon you and learn
A
P
a
r
e
n
ts
J
o
u
r
n
e
y
f
r
o
m W
e
a
k
n
e
s
s
to
P
o
w
e
r, b
y
J
o
n
E
b
e
r
s
o
l
e
3
from me, for I am gentle and humble in heart, and you will find rest for your souls. For my yoke is easy
and my burden is light.”
Jesus Christ is where I have found what I need by finding WHO I need. I can now find purpose in
suffering, in brokenness. Although Jesus’ love for me went only skin deep at first, I eventually tore down
the walls to let him penetrate my heart. His power is displayed in me, not in spite of my weakness, but
because of it. I can now thank God for the difficulties that force our family to turn to him and desperately
need him. Instead of charging forward on my own, I often pause now to seek his guidance and direction.
Weakness Leveraged is Powerful
Weakness drove me into myself, but ultimately to the end of myself and into the arms of our heavenly
Father. While I did not turn away from God or lose my faith when our twin girls were diagnosed with
a disability, I was preventing myself from fully experiencing the love of our Creator. Parents of children
with disabilities are often forced to confront this choice because of life’s circumstances. The disability
can be a help or a hindrance in their faith journey.
Some parents respond to disabilities in their family by taking the victim’s role. Others try to com-
pensate as overachievers. And some have learned to accept their child’s limitations. I recently heard a
Christian woman say that she chose the path of independence and being an overachiever, which resulted
in isolation from others and made intimacy impossible.
So, how do we help parents embrace disability and weakness to find God’s peace? How do we ap-
propriate the power that God has given us in his Son and Spirit? First, we must connect with Jesus
Christ as Lord and Savior, the man of sorrows who took on the most disabling condition ever by be-
coming human. Next, I believe two keys to the mystery are gratefulness and trust. I express gratefulness
for any opportunity to look to God rather than depending on my own resources. And I trust him to
do what he says he will do, which is to be present and faithful with my family.
Embracing weakness is usually a process and is essential in finding calm in life’s storms. I was un-
aware of my weakness for many years, but as I became aware of it, my first response was to try to hide
it. And then I tried to compensate for it by working harder. Finally, I moved to a place of acceptance of
my weakness, and asked God to change and heal me. People began to comment that my transparency
about my struggles and my humanity were helpful. This made it safe for others to honestly examine
themselves and God’s love for them. It increased the likelihood that they too would lean harder on
Jesus. So I shared my weakness with other dads and moms, not because I liked it, but because it helped
those around me. Even if my heart and intentions were not pure, God began to open my eyes to his
mystery. Now, as I begin to more fully embrace my weakness, I remain tentative but have moments of
joy and freedom as I surrender.
God led me through three stages of coming to terms with weakness:
Recognize – notice weakness in a definite way
Accept – endure weakness without protest
Embrace – welcome and include weakness
Keys for parents to remember…
Human resources and effort are never enough.
Life is a process of working out our salvation with fear and trembling.
i
A
P
a
r
e
n
ts
J
o
u
r
n
e
y
f
r
o
m W
e
a
k
n
e
s
s
to
P
o
w
e
r, b
y
J
o
n
E
b
e
r
s
o
l
e
4
Family life is an adventure. It requires boldness.
Share issues and struggles along the way, rather than waiting until they are resolved.
Weakness embraced provides the fertile ground for God to work out his perfect plan for your family.
A Mystery Revealed
In Colossians Paul explains why the power of weakness is hidden when he says, “the mystery that has
been kept hidden for ages and generations… is now disclosed to the saints… with all his energy, which
so powerfully works in me… the mystery of God, namely, Christ, in whom are hidden all the treasures
of wisdom and knowledge” (Colossians 1:26, 29 and 2:2, 3).
The mystery of God’s power showing up in weakness is revealed in Jesus Christ. Joni Eareckson
Tada espouses that people with visible or acknowledged disabilities serve as audio visual aids of God’s
grace. Disability can be a fast track to recognizing, accepting and embracing weakness and connecting
with Jesus. My daughters Amanda and Jessica tell me that as teenagers with cerebral palsy, they need
God. They are dependent on God for his peace. They understand and usually embrace their weakness,
allowing God to display his power, which manifests as contentment as they lean on Jesus and trust
him more.
God’s power shows up best in weakness, according to 2 Corinthians 12:9: “But he said to me, ‘My
grace is sufficient for you, for my power is made perfect in weakness.’ Therefore I will boast all the more
gladly about my weaknesses, so that Christ’s power may rest on me.”
Some parents of children with disabilities kick and fight all the way to contentment. Many never
find it due to barriers of fear and pride. Disability can serve as an accelerant to acknowledging weakness.
I know it has in my life. I have learned to quickly acknowledge my limitations and rely on the help of
those closest to me. I can more easily accept weakness as a part of the human experience. However, re-
joicing in and boasting in weakness as Paul described in 2 Corinthians 12:10 is still a goal. I am not
there yet, but I am on the right path—with my Lord and Savior and Friend, Jesus Christ. I am hopeful
that I will look back one day and realize that I am not squirming quite as much as I have in the past,
as I recognize and accept my own frailty. I look forward to the day when I will share more freely about
God’s power showing up in my life—not in spite of, but because of my limitations. Perhaps one day
more Christian parents will take off their masks and celebrate the incredible power of weakness.
NOTE
1. Philippians 2:12
A
P
a
r
e
n
ts
J
o
u
r
n
e
y
f
r
o
m W
e
a
k
n
e
s
s
to
P
o
w
e
r, b
y
J
o
n
E
b
e
r
s
o
l
e
5
Jon Ebersole has 25 years experience working with people affected by disabilities. He and his wife have
three children, two with cerebral palsy, making his experience with disability very personal. He has served
with Joni and Friends since 1999, and currently oversees the 23 local field ministry offices around the
country. Jon serves the leaders of Joni and Friends across the country with training, guidance and encour-
agement to lead their local outreach. Jon earned a Masters in Social Work from the University of Illinois
and completed a Seminary Certificate of Biblical Studies at what is now Trinity International University.
1
Faith Formation for Adults with Disability
By Jeff McNair, Ph.D. & Kathi McNair, M.A.
Scripture defines faith as being sure of what we hope for and certain of what we do not see (Heb. 11:1).
Belief and trust are arguably the most critical aspects of faith. For the Christian, it is belief in Jesus,
and trusting in the things he has said about who he is. As Jean Vanier, international advocate for indi-
viduals with severe disabilities, has stated, “Trust is continually called to grow and to deepen or it is
wounded and diminishes.”
1
Vanier’s perspective is not unique and serves as one of many that could be
quoted about the importance of growing in faith.
Because people with disabilities are first and foremost people, the types of differences impacting
faith and spiritual development are the same as for anyone else. Personality, life experiences, being a
son, daughter, sibling, parent, professional, employee, employer, high school or college graduate all
impact faith development and understanding. The differences for those with disabilities that impact
faith development typically relate to: 1) the effects of a person’s disability on themselves in terms of
functional limitations, 2) how others perceive their disability, and 3) how society and particularly the
church perceive them. In order to understand these particulars, let us first define faith development.
What is Faith Development?
What changes take place when someone attempts to develop a person’s faith? Faith development the-
ory discusses assessing growth in logic, moral reasoning, social perspectives, evaluating sources of au-
thority, understanding the perspectives of others, developing a coherent understanding of the “world”
and responding to symbols, narratives and rituals related to the sacred. James Fowler, one of the lead-
ers in the assessment of faith development, lists these as the “structures” of faith.
2
It has been stated
that Fowler has “secularized” faith development through his focus on structures.
3
The key question
is, “Are the structures of faith different from the content of faith?”
Obviously the answer is yes because people hold faith in a variety of divergent and conflicting areas.
The structures of faith, although somewhat similar among those who believe, have a variety of foci as
to the “content” of their doctrines (such as Christianity, Judaism, and secular humanism). These belief
systems can vary widely. It is arguable, however, that faith development should address both the struc-
tures and the content of faith.
If structures of faith can be generically applied across faith content areas, then we must consider
whether actual faith development should focus only on these generic structures, or focus on the
content of faith for the Christian, or both. For example, if a person has significant knowledge about
Christianity, does that imply he or she also has great faith? We personally know individuals with sem-
inary degrees who have totally rejected or perhaps never embraced faith in Jesus Christ. However,
strictly on a knowledge basis, they would have more knowledge about theology and aspects of faith
than many people. Although knowledge can contribute significantly to faith, knowledge by itself does
not imply faith.
At the same time, a person may actually grow in faith while increasing knowledge about the object
of their faith. So some factors, although important to faith development, would not necessarily indicate
what the content motivating them would be. Once again, Fowler calls these the structures of faith.
The Bible itself addresses the notion of structures of faith in the well-known faith and works section
of the Book of James (James 2:14-25). Works are a structure that may or may not be motivated by faith.
However, faith is evidenced in a structure—works—that must be present. After all, “faith by itself, if it
is not accompanied by action, is dead” (James 2:17). Content-based faith without structures is dead.
As James later states, that is the faith of the demons (James 2:19). In this case and in many others, struc-
tures are the evidence of faith. Good works could cause observers to wonder whether works were faith
motivated.
For the Christian, the content of faith is extremely critical. Jesus’ comment, “No one comes to the
Father except through me” (John 14:6) is exclusive in identifying what the content of faith must include.
Structures by themselves may contribute to a moral or compassionate person. However, without the
correct content—Jesus Christ—faith is misdirected.
Faith requires both content and structures. These facets are interconnected. Structures are the fruit
on the tree (Matt. 7:15-20) that may tell us about the tree. What we are looking for is an integrated
faith with both content and structures.
From a Christian perspective, another way of looking at the structures and content of faith might
be to consider the following issues. Each includes examples of critical elements of the Christian faith.
However, some can exist simply as structures (the works aspect).
Trust in God and acknowledgement of God in everything (Prov. 3:5)
Love for God (Mark 12:30)
Belief in God (John 3:16)
Passion for God’s desires (Mic. 6:8)
Love for others (Mark 12:31)
Selflessness and being a servant (Phil. 2:4-8)
Knowledge about who God is (Heb. 6:1)
Self-understanding/sinfulness (1 Tim. 1:15)
Purity (Ps. 19)
Courage (Dan. 3:16-18)
Faith develops as we increase our trust in God while decreasing in self-reliance. This is a critical
component of the content and structure of faith. Evidences of growth in trust in God are evidences of
growth in faith. This growth in trust can be evidenced by our personal acknowledgement of God in
everything. Our decisions are guided by prayer—before decisions are made, while we are in the process
of acting on those decisions and in giving thanks for the outcome. In this way, faith recognizes God’s
sovereignty over all aspects of life. This acknowledgement also provides evidence of the reality of God
as being present, as we are never alone.
F
a
i
th
F
o
r
ma
ti
o
n
f
o
r
A
d
u
l
ts
w
i
th
Di
s
a
b
i
l
i
ty
, b
y
J
e
ff
a
n
d
Ka
th
i
M
c
N
a
i
r
2
Faith will also develop as I grow in love for God, in belief in God, and in passion for God’s desires.
Each of these is a critical component for both the content and structure of faith. Evidences of growth
in these areas are evidences of growth in faith.
In contrast, faith may develop as a person grows in love toward others. However, this can be just a
structure of a non-specific faith, a different religious faith, or it can be motivated by the content of
Christian faith. There are people who are very loving toward others, yet are not motivated by Christian
faith. To show love toward others may or may not be a direct evidence of growth in Christian faith. At
the same time, if a person is thought to be growing in Christian faith but is not growing in love for
others, the claimed growth in faith could be called into question.
Similarly, faith will develop as a person grows in selflessness and as a servant of others. Faith will
also develop as one grows in knowledge of who God is, in self-understanding (particularly in the un-
derstanding of one’s self as a sinner), in the desire to be pure and holy as God is and in courage. These
are all structures of faith.
These examples are provided so that those who endeavor to facilitate faith development can dis-
tinguish between general faith development and Christian faith development. It is the latter that we
are interested in developing. This also helps to distinguish structure-oriented, content-oriented, and
integrated faith development. As the church, we often confuse these areas, equating content knowledge
with integrated faith development.
Facilitating Faith Development Among People with Disabilities
Disability includes a variety of effects on an individual’s faith development. People with an intellectual
disability, for example, are often limited in their ability to understand, evaluate, and synthesize infor-
mation. These individuals will therefore be dependent upon those who can explain concepts to them
in an understandable manner. One of our friends with an intellectual disability voraciously consumes
any video he perceives has to do with the Christian faith. This is a positive method to assist with his
reading disability. However, he lacks the ability to distinguish fact from fiction. The impact of disability
on the content of his faith is that he is sometimes confused, believing the last thing he saw in a video.
Movies based upon novels become confused with videos with biblical teachings.
Those with more severe intellectual disabilities process little if any knowledge-based information.
Their disability removes most content as a means of faith development. In the field of Special Educa-
tion, discussion is made of what are called functional skills. Functional skills are those that have a high
probability of being required of someone. This is an important idea to also apply to the notion of faith
development. Depending on what a person’s disability might be, skills that are functional for faith de-
velopment will typically be structures. Things like loving others and considering their perspective, such
as, “Don’t hit others because it makes them sad.”
We must speak only in generalities here when determining which skills are functional for which
person. However, some teachers attempt to force the conveying of knowledge as the primary form of
faith development for people with severe intellectual disabilities. This is unrealistic and unhelpful. We
have visited ministries where individuals who are nonverbal with severe intellectual disabilities are
placed in a room while the teacher conducts a standard Bible study. This makes little sense from a Spe-
cial Education perspective as well as for the development of this person’s faith.
Instead, the focus of faith development in this case needs to become assisting those with severe in-
tellectual disabilities to be the recipients of love and acceptance. To help each one to understand that
he or she is an important part of a group of caring people who love Jesus, learn about the Bible, eat
F
a
i
th
F
o
r
ma
ti
o
n
f
o
r
A
d
u
l
ts
w
i
th
Di
s
a
b
i
l
i
ty
, b
y
J
e
ff
a
n
d
Ka
th
i
M
c
N
a
i
r
3
together, and meet regularly. To know they are with people who are happy to see them and give them
the most freedom they may experience during the week. To spend time with people who pray and be-
lieve prayer is important. To encounter people who do not exclude them, but rather offer them oppor-
tunities to do lots of things they would not have the opportunity to do if they weren’t involved in a
church (like go to the beach, or have movie nights, or barbeques and swim parties, or sing songs with
a big group of people).
The development of this trust and connection with the Body of Christ should be the primary focus
of their structures-based faith development, impacting the way faith is both perceived and developed.
Faith is evidenced in their desire to have a Bible to carry, or requests for prayer for their bus driver or
teacher, or having total access to anyone in the group, independent of what they are doing. In Luke 5:17-
26, we, the Body of Christ, are given the privilege of filling in the gap and bringing people to God. We
are given the opportunity to engage them in the way we express our faith so that it benefits the person
with disabilities in a myriad of ways. We believe the words of Luke 5:20 that state, “When Jesus saw their
faith, he said, ‘Friend, your sins are forgiven’(emphasis added). The faith of friends may therefore have
a tremendous impact on the lives of persons with severe disabilities in their own structures-based faith.
Those with physical disabilities might struggle with knowledge areas of faith in an entirely different
way. How does someone with a severe physical disability accept the sovereignty of God? An inclusive
church can do much to assist such individuals to accept God’s sovereignty through the acceptance
they show and the support they provide. Depending upon the severity of the physical disability, they
might struggle with access to usable materials they can use to grow their faith. Those with sensory im-
pairments may also struggle with access to content knowledge because of a lack of sign language in-
terpreters or materials for those who are blind.
Those with emotional problems might struggle with loving others either because of the treatment
they have received, their lack of trust, or simply their desire to be alone. Such is often the case for indi-
viduals with some forms of autism. Those with more severe forms will struggle with human interactions
while those with milder forms will struggle with rejection.
At the same time, faith can grow through the strengths people with disabilities have related to their
disabilities. For example, a person with intellectual disabilities can be very loving and very forgiving.
We do not apologize for this generalization. These strengths can be built upon to assist in faith devel-
opment. Also, those with some forms of autism have an incredible ability for memory. This could be
built upon relative to knowledge-based faith structures. Those with high functioning autism or As-
perger’s syndrome are sometimes described as “guileless” and unable to lie. Could their black and white
orientation to what is right or wrong be the foundation for faith development?
Individuals with physical disabilities may have developed a fuller understanding of dependence upon
God as a result of their dependence on friends and care providers to assist with basic life necessities. In
this case, they serve as an example of right relationships. People with emotional disabilities might be
more open to accepting others because they are less judgmental about the social skills of others. This
can be a tremendous example to those around them, and should be praised and developed as a charac-
teristic of God’s relations with human beings. We have come to see disability not as a negative, but as
having the potential to add value to the lives of the individuals around them. Those engaged in faith
development must attempt to understand disability in this way in order to assist people to overcome
functional impairments, and to also develop the strengths brought to the process of faith development.
In Special Education there is an idea referred to as universal design. Universal design observes that
accommodations designed to assist individuals with disabilities may actually benefit all people in the
environment. A classic example includes the curb cuts (sidewalk ramps) we see in most cities. These
F
a
i
th
F
o
r
ma
ti
o
n
f
o
r
A
d
u
l
ts
w
i
th
Di
s
a
b
i
l
i
ty
, b
y
J
e
ff
a
n
d
Ka
th
i
M
c
N
a
i
r
4
changes were originally designed to benefit wheelchair users. However, bike riders and senior citizens
have also come to benefit from this environmental alteration. As universal design is applied to faith
development for those with various disabilities, it will likely be observed that others who are not dis-
abled will benefit from the changes made to assist those with disabilities.
Disability Perception and Its Impact on Faith Development
Helping individuals understand their disabilities from a Christian perspective becomes an effort to
understand God’s sovereignty and the social consequences of their disabilities. Independent of what
one’s disability is, the juxtaposition of their understanding of it with the way they are often treated by
others due to disability can cause cognitive dissonance. Often, feelings of rejection are not linked to
the disability they are experiencing. For example, a person may not really recognize that they have a
disability (in the case of those with intellectual disabilities), or may have come to accept and learn to
live with the differences (in the case of persons with physical or sensory disabilities). They may therefore
deal more deeply with how others treat them: “Why don’t people just treat me like I am normal?” Or,
“Why do people tease me and treat me unkindly?” These are comments we have heard from those with
a wide range of physical, intellectual, and other types of disabilities.
One friend repeatedly asks, “Do you think I am strange?” Why does he ask that? Because that is
how he feels based on the way he is treated. The question is not, “Do you think I am strange because
of my disability?” but rather whether or not he is strange as a person. Of course this type of experience
has an impact on faith development, especially if people have allowed society to convince them that
their disability is the defining characteristic of their lives, or that disability in some way devalues them.
It is critical to communicate that in God’s eyes, people with disabilities have absolute equality with
and the same value as any other person. This must be reinforced clearly and often. If a person with a
disability is treated unkindly, it is due to the person providing the unkindness, not the person with
the disability. Our non-judgmental welcoming, overlooking of minor social deficits, and giving of time
in personal interactions communicates volumes concerning how God values all people as members of
his family.
It is also important to mention from a faith development perspective that the presence of individ-
uals with disabilities, including those with severe disabilities, has the potential for significant impact
on the faith of those around them. Henri Nouwen makes this point in his book Adam, God’s Beloved.
4
He relates the story of a friend who did not understand why Nouwen lived and worked with a man
with very severe disabilities. Nouwen’s perspective was, “Don’t you see that Adam is my friend, my
teacher, my spiritual director, my counselor, my minister?” This man, Adam, a person who would be
dismissed by most in the church and in society, was characterized in this way by one of the most influ-
ential Christian writers of the 20
th
Century. The impact of individuals with disabilities on those who
do not have the same life experience can be missed from a faith development perspective, unless we de-
vote time and pay attention as Nouwen did.
How Peoples Perceptions Impact Faith Development
In developing faith among those experiencing various disabilities, we must discuss aspects of corporate
faith versus individual faith. 1 Corinthians 13 tells us that a person can speak in the tongues of men
and angels, be a prophet, move mountains, give everything to the poor, even sacrifice his or her own
life, but without love nothing is gained. For those with disabilities who look at the Christian church,
F
a
i
th
F
o
r
ma
ti
o
n
f
o
r
A
d
u
l
ts
w
i
th
Di
s
a
b
i
l
i
ty
, b
y
J
e
ff
a
n
d
Ka
th
i
M
c
N
a
i
r
5
and for those within the church who have the awareness to self-evaluate, we must ask what we have to
offer those with disabilities in terms of faith development. In too many cases, our examples have shown
too little love toward those in the disability community. We focus on things described as “less impor-
tant” in comparison to love. We show favoritism to nondisabled people in the face of warnings against
such favoritism (James 2:1-13) and then expect to grow their faith.
A friend of ours with severe physical disabilities once commented concerning the church, “Why
would I go to them for help when they communicate they have no interest in me?” This attitude of many
churches toward the disability community must change if we are to have an impact upon their faith de-
velopment. People with disabilities (and their families) will not be drawn to a Christian church that does
not want them as a member or is comfortable with their exclusion. Why would people with disabilities
want to learn and grow in the Christian faith if followers of that faith do not see them as a priority?
However, on the positive side, the church holds great potential as an agent of integrated faith in
the lives of persons with disabilities. There is so much that might be accomplished in the lives of people
if the church takes an interest in them. We have referred to these life changes as “social healing
5
because
some of the most difficult challenges of living with a disability are the social consequences. An accepting
church might begin faith development by acting out the structures of faith in the lives of those with
disabilities, such as by being loving and accepting of others. Those with disabilities would be intrigued
by this treatment and perhaps be open to the content that informed the structures.
Pressing on Toward the Goal
We have worked to develop the faith of adults with intellectual disabilities for nearly 35 years. During
the past 17 years at our current church, Trinity Evangelical Free Church in Redlands, California, we
have hosted a ministry that includes people with a very wide range of intellectual and other disabilities.
Called “The Light and Power Company,the program is structured to encourage faith at the point
where each individual is currently functioning. So although there is content knowledge delivered, it is
not necessarily the major or only faith development focus for any of the participants. We do study the
Bible and memorize Scripture for those who are able to do so. However, there are no limits on partici-
pation based on the ability to comprehend content.
There are also significant times of interaction and relationship building where people can fully par-
ticipate independent of personal characteristics. We include complete access at all points of the pro-
gram, and there is freedom to move around as needed. Our programs also include participation in the
activities of the larger church, including worship, prayer and men’s and women’s ministry events. Be-
cause people with disabilities are full and equal members of the Body of Christ, they are not segregated.
It is critical to their faith development and the development of nondisabled members that we all have
normal access to each other.
In addition, we include opportunities to express how each person is growing in faith and how they
practice faith on a weekly basis. Based on Psalm 1, class members share whether they “sat” (spent time
in faith development through prayer, Bible reading, listening to Christian music, or watching Christian
TV, movies, or video), “stood” (stood up for what is right, resisted temptation, spoke about Jesus to
someone) or “walked” (worked hard at their job, acted as a good citizen, attended church or Christian
programs, or helped a person in need). Each person receives a card with three pictures on it that they
raise to indicate what they have done the preceding week. Activities across the three areas are quite var-
ied, often reflecting a person’s current point of faith development. Opportunities are provided for every
person who desires to pray for one another so that people can be prayed for, but also to represent the
F
a
i
th
F
o
r
ma
ti
o
n
f
o
r
A
d
u
l
ts
w
i
th
Di
s
a
b
i
l
i
ty
, b
y
J
e
ff
a
n
d
Ka
th
i
M
c
N
a
i
r
6
equality all have before God. There is also much good-natured fun and humor customized to each per-
son’s ability to understand. All members, independent of any personal characteristics, are treated with
full respect.
Final Thoughts
To the degree we are able, our efforts in the lives of anyone in whom we are developing faith must com-
bine structure and content in an integrated fashion. The caution of James that faith without works is
dead is a great teaching to reinforce the notion of integrated faith. Disability may present challenges
to faith development, yet it also brings life perspectives useful in faith development for both the dis-
abled church members and the larger church family. The church must begin by including people with
disabilities into the Body of Christ and then grow to understand the indispensable nature of these in-
dividuals to our corporate faith.
NOTES
1. Jean Vanier, Becoming Human, (Mahway, NJ: Paulist Press, 1998), p 48.
2. James Fowler, “Faith development at 30: Naming the challenges of faith in a new millennium,” Religious Education, 99, (2004), p 413.
3. Richard R. Osmer & Friedrich L. Secheitzer, eds., Developing a Public Faith, (Danvers, MA: Chalice Press, 2003).
4. Henri Nouwen, Adam: God’s Beloved, (Maryknoll, NY: Orbis books, 1998), p 52.
5. For more information on the concept of “social healing,” see Jeff McNair, Disabled Christianity, http://disabledchristianity.blogspot.com/search?q=so-
cial+healing
F
a
i
th
F
o
r
ma
ti
o
n
f
o
r
A
d
u
l
ts
w
i
th
Di
s
a
b
i
l
i
ty
, b
y
J
e
ff
a
n
d
Ka
th
i
M
c
N
a
i
r
7
Jeff and Kathi McNair are career special educators, and professors of special education.
They have been involved in ministry to adults with intellectual disabilities for over
30 years. Kathi’s area of expertise is students with learning disabilities. Jeff is the Director of
the Public Policy Center for Joni and Friends, and also directs the Disability Studies Program
at California Baptist University, one of the few graduate programs in disability ministry. He
also directs the university’s program in severe disabilities.
1
Successful Teaching for
Adults with I n t e l l e c t u a l Disabilities
By Linda Smith
Our lesson that night was about heaven. I read from the New International Reader’s Version, an easy to
understand translation: “God himself will be with them and be their God. He will wipe away every tear from
their eyes. There will be no more death or sadness. There will be no more crying or pain. Things are no longer the
way they used to be.” (Rev. 21:3-4) As I pulled items out of a bag, I asked, “Do you think we’ll need this
in heaven?” Tissues and pill bottles were voted down and thrown into the trash. Maracas were voted as
possibly useful in heaven as they could accompany us in worshipping Jesus. Lastly, I showed a picture
of “King Jesus” surrounded by the throngs in heaven. “Do you think it might look something like this?”
As I held up the picture for each of the eight adult students, Richard grew agitated. Leaning toward
the picture, he motioned for me to come closer. I knew his eyesight was failing, so I handed Richard
the picture and he drew it near. After a few moments, his face broke into a smile and with one finger
he gently stroked Jesus and sighed, “Oh.” With that simple gesture Richard was worshipping his King
with depth and integrity. In that moment, everyone in the room was drawn into worship with him, as
we reveled in a King who longs to receive adoration from all those who know and love him.
Teaching adults with cognitive disabilities about Jesus is a privilege; not only because they are gen-
erally appreciative, affirming and enthusiastic, but because of their potential. Since spiritual truths are
spiritually—not intellectually—discerned, these students have the same potential for spiritual growth
as other church members. Spiritual maturity may look different in a person with cognitive disabilities,
but it is just as real!
The key to their achieving spiritual maturity is to have the Gospel and principles of growth pre-
sented in simple terms. Imagine trying to grow in your faith while attending worship services presented
in a language that you only minimally remember from a year of high school French or Spanish. You
would grasp some content, but much of it would be over your head. Adults with cognitive disabilities
have a similar experience when their only spiritual food comes through the pastor’s sermon.
Yes, individuals with cognitive disabilities need to be actively involved in the life of the church.
However, they also need a time and place where they can receive spiritual guidance that is prepared
with them in mind. This could be in a special needs Sunday school class, or a weeknight small group
gathering. Ultimately, if the church ignores the spiritual needs and potential of those with cognitive
disabilities, we do both them and our congregations a disservice.
They Are Adults, Not Large Children
To help these believers grow in their faith we must remember they are adults and should not be treated
like children. Their learning difficulties require teaching that accommodates their deficits and builds
on their strengths, but they should not be taught using preschool material.
Although their reading level or even their developmental level may be that of a 5-year-old, they have
many years of life experience. Like any adult, they deal with problems such as housing issues, the need
for meaningful work, and the decline and loss of aging parents or siblings. They have sexual desires
and a need for meaningful relationships. Aging complicates their health issues, as it does for us all,
and may add to the isolation that is often inherent in disability. When teaching, remember that the is-
sues your students deal with are, in many ways, much like your own. Yet their life situations are unique.
For example, many adults with cognitive disabilities live in a group home. These may be homes that
they did not choose for themselves, where they live with roommates they did not select. Staffing at
these homes is often precarious, with caregivers changing so quickly that a student doesn’t have time
to learn their names. God’s grace and protection are crucial in such difficult situations.
Making the Bible Come Alive
As you share God’s Word with your students, make its truths as clear and uncluttered as you can. One
of the best ways to do this is by using action stories from the Bible. Though you might study Philippians
or probe Isaiah’s prophesies in a typical adult Bible study, adults with cognitive disabilities will benefit
more from the action-packed Gospel of Luke or a lesson on the life of Moses. Those stories are easier
to remember and are more concrete than Paul’s epistles or the lamentations of an Old Testament
prophet. Streamline your lesson by leaving out some story details. For example, when teaching about
David slaying Goliath, omit the parts about David trying on and rejecting Saul’s armor, or the prize
offered to the man who defeated the giant. These details are not essential to the lesson and can distract
from your main thrust.
All of us learn differently—some are visual learners, others are auditory or kinesthetic learners. The
same is true for adults with cognitive disabilities. Presenting your story several times in ways that engage
a variety of learning styles will optimize your students’ experience. If, for example, you are teaching the
story of Jesus stilling the storm, first read the story from an easy-to-understand translation. Then show
a video version of the story from “The Visual Bibleor another movie that presents a biblically accurate
version of the story. Avoid animated versions of Bible stories because they feel like “make-believe.” Live-
action movies help students remember that the Bible story is true. Or, tell the story in your own words,
using pictures or household items as props. Providing students with something tangible to see and
touch helps engage them with the lesson.
Students will best comprehend and remember a story if they act it out themselves. Ask questions
about the main characters in the story and review the plot with them. Although Jesus has the lead role
in the stilling of the storm, for example, other students can participate as disciples or handle props. In
this story, two students can hold up a blue sheet in front of the boat and shake the sheet to create the
sensation of waves. A spray water bottle can be squirted to produce rain! When Jesus says, “Stop!” or
holds up his hand, the waves calm down and the rain ceases. Costumes can be elaborate or basic, or
could simply be a sign that reads “Jesus” or “Follower of Jesus” for students to wear around their necks.
Drama impacts many of our senses. The students see the story acted out; hear the words from others
or speak the words themselves; feel the story as they put on costumes or handle props; and move within
the story as they act it out.
S
u
c
c
e
s
s
f
u
l
T
e
a
c
h
i
n
g
f
o
r
A
d
u
l
ts
w
i
th
I
n
te
l
l
e
c
tu
a
l
Di
s
a
b
i
l
i
ti
e
s
, b
y
L
i
n
d
a
S
mi
th
2
Making Real Life Applications
Even more important than how you tell the story is what you do with it, or why you tell it. As you ap-
proach a Bible story, ask yourself, “What is the most basic truth I want my students to learn from this
story? What message does this passage teach that my students need to hear?” Pray and ask God for in-
sights into their spiritual health and how to reach them.
Let’s continue using the sample lesson of Jesus stilling the storm. Perhaps you decided that the
theme would be, “Because Jesus is with me, I don’t need to be afraid.” Or, maybe God directed you to
focus on, “When I’m in trouble, I should call out to Jesus.” The more concisely you can state what you
want your students to come away with, the better you can build your lesson around that truth. In
reality, your goal is not for the students to be able to re-tell a dramatic Bible story. The goal is that
when they are afraid, they will remember Jesus is with them. We study God’s Word to allow him to
change our character and draw us into a more personal relationship with Jesus, not to master biblical
content. The goal is the same for students with cognitive disabilities. Ultimately, it is the Holy Spirit
who will help a student recall things that he or she learned in class.
Since your goal is bigger than just conveying a story—you’re trying to truly impact their lives—begin
by introducing the truth you want to bring home to the students. Often, teachers tack on an application
at the end of a story and find that their students can’t make the connection. If the application or spir-
itual truth is at the heart of the lesson, you can build around that before, during and after the story.
Share an example from your own life of a time when you were afraid to try something new, but the re-
assuring presence of a parent or teacher gave you confidence to go forward. Or, show pictures of people
with fearful expressions on their faces and ask your students what they think the people might be
afraid of.
Interestingly, if you ask your students directly what they fear, many of them will likely tell you that
they are not afraid of anything. Self-evaluation is difficult for adults with cognitive disabilities, and
they often want to present themselves as stronger than they actually are. Many are very aware of and
frustrated by their cognitive deficits, and hesitate to admit to things that they see as weaknesses. They
fail to understand that fear, for example, is a human emotion we all experience and need God’s help to
face. Gently encourage your students to identify their fears by being honest about your own, and put-
ting words to the fears that may be difficult to express. (“When you are going to a new work place the
first day, does your stomach feel a little upset? Do you wonder what the other people will be like or if
they will want to be your friends?”)
It’s critical that you help your students apply the biblical principles to their own lives, as they will
likely have difficulty making this application on their own. If I hear a sermon on Jesus stilling the
storm, and the pastor’s theme is that Jesus is with us when we are afraid, I start internalizing that lesson
and thinking about situations where I experience fear. I remind myself that Jesus can speak peace into
my situations…whether I am fearful about paying the mortgage, a wayward child or an upcoming
biopsy. An adult with a cognitive disability listening to the story of Jesus stilling the storm may think,
“If I’m ever out in a boat in a storm, Jesus can help me.” He or she won’t respond by correlating the
fear in other areas of life. Your thoughtful teaching can help with this. As you tell the story, draw at-
tention to how the disciples must have felt. “There was no Coast Guard out on the lake; life jackets
hadn’t been invented yet; there was no 911 to call. They were afraid that they might die and they had
no one to turn to but Jesus!”
Then, after the story has been told and perhaps dramatized by your students, help them to articulate
settings where they too feel fearful. Make a list of situations where they might feel afraid as the disciples
did. Although many of your students won’t be able to read, you can write a list and perhaps add a little
S
u
c
c
e
s
s
f
u
l
T
e
a
c
h
i
n
g
f
o
r
A
d
u
l
ts
w
i
th
I
n
te
l
l
e
c
tu
a
l
Di
s
a
b
i
l
i
ti
e
s
, b
y
L
i
n
d
a
S
mi
th
3
picture with it. (Don’t worry if you are not an artist—explain what you are attempting to draw, and
they will forgive your lack of artistic ability. Or, you can ask an artistic helper to illustrate for you.)
Investing time in getting to know your students will equip you to help them make application in
their lives. Because of their difficulty in communication, they may not be able to tell you about their
difficult roommate, or about their sick family member. If at all possible, visit your students in their
homes for social times outside of Bible class so you can discover their interests and strengths. If you
are unable to do this personally, recruit volunteers who can share their insights. For example, if you
discover a student lives with her aging mother and has no siblings, it is reasonable to imagine that she
has fears about her mom’s health and approaching death. If you learn that one of your students shares
a room with a man who has a severe seizure disorder, it would be normal for him to have fears about
what is happening when the roommate is having a seizure. As is true with all ministry, relationships
are key to discipling others!
To help students bring the application home with them, give your students a specific action to take
in response to your lesson. For example, teach your students that when fear comes, they can say to
themselves “No need to fear—Jesus is here.” Talk about the situations they have identified as potentially
frightening, and ask, “What can I say when I start worrying about my mom?” They respond with, “No
need to fear—Jesus is here.” Once this phrase and the truth is in their minds, the Holy Spirit can bring
it back to them when necessary. A song is also a great way to help your students take home a biblical
principle. It needs to be short, repetitive and easy to understand. If no song exists that conveys your
message, adapt the words to a hymn or chorus, or make up words to a tune your students might already
know. For example, you could turn the Disney classic “Heigh-ho, heigh-hointo: “I know, I know, when
off to work I go, Jesus will be right there with me, I know, I know, I know, I know!”
Principles to Hold on to:
As you teach and disciple the adults with cognitive disabilities that God brings to you, keep these things
in mind:
Help them to grow as disciples in their areas of strength—don’t worry about the areas of weak-
ness. Your students will likely have a difficult time with extensive Scripture memory or inde-
pendent Bible study. But they can be effective intercessors, heart-felt worshippers, or some
can share their faith in Jesus with others. They are often less concerned about how others
perceive them, which can give them a boldness that God can use for his Kingdom purposes.
So in your teaching, focus on things like prayer, worship, evangelism, and godly character—
things that are not affected by intellectual abilities.
Facilitate opportunities for them to interact with the larger Body of believers in your congre-
gation. Plan service projects with or for other groups in your church to help your congrega-
tion recognize the gifts and abilities, as well as the delightful personalities, of your students.
Advocate for them. Help others in your church see the beauty in your students that God has
revealed to you. Be open to sharing stories with the congregation about how you saw God
work in a student’s life
Don’t allow the enemy to discourage you or cause you to doubt the value of investing in your
students. God’s Word is clear that he is not a “respecter of persons”—each life has equal value
S
u
c
c
e
s
s
f
u
l
T
e
a
c
h
i
n
g
f
o
r
A
d
u
l
ts
w
i
th
I
n
te
l
l
e
c
tu
a
l
Di
s
a
b
i
l
i
ti
e
s
, b
y
L
i
n
d
a
S
mi
th
4
in his eyes. Your students matter to God as much as your senior pastor does. He hears their
prayers and desires a relationship with each one of them. And he will use them just as they are.
During a recent Joni and Friends Family Retreat, a friend taught a class of adults with cognitive
disabilities about heaven. Sandy used the idea of the TV show Extreme Home Makeover to help students
see that this world we live in is falling apart, and some day, God will make it all new! No need for med-
icine or wheelchairs or lamps there—God will be there, and he is all we will need! She sent her students
home from the retreat with a ring of short Bible verses to help them remember the truths she had
taught. Shortly after the retreat, I received a letter from a student’s father. John, a widower, had attended
the retreat with David, his adult son with cognitive disabilities, and his adult daughter Pam.
As you may know, Pam continues to struggle with Margaret’s absence, as well as the changes in her own life.
Today is the third anniversary of Margaret’s death; it seems harder now than the first two years. David, having
heard Pam and I chatting on the phone the other day about this difficult time of year, came out of his room
with the ring of verses and promises, and told me to assure Pam that we will see Mum in heaven, that God is
coming back, and preparing a home for us!! Now, as you know, David has limited reading ability; despite that
challenge, my best buddy did a masterful job of reading the text, paraphrasing along the way.
Dave got the message, and now closes his presentation, even to me, with “And I believe,as he points to his
heart. After attempting to get Pam back on the phone, she called us last night and I turned her over to “Pastor
Dave” and he again did a wonderful job of witnessing, paraphrasing from the heaven lesson, his favorite!
Our God cares about your students, and he will guide you as you share his Word with them. And
he will use them to build your faith and his Kingdom!
S
u
c
c
e
s
s
f
u
l
T
e
a
c
h
i
n
g
f
o
r
A
d
u
l
ts
w
i
th
I
n
te
l
l
e
c
tu
a
l
Di
s
a
b
i
l
i
ti
e
s
, b
y
L
i
n
d
a
S
mi
th
5
Linda Smith is the Program Manager of Joni and Friends Greater Boston. She is working to equip
churches, support families affected by disability and direct Family Retreats in New England. Shortly after
graduating from Houghton College, she became involved in disability ministry and has served in that field
for over 30 years. Linda is the author of Beyond Limits, a one-year Bible curriculum designed for teens and
adults with cognitive disabilities. She also serves as legal guardian for a young adult with physical and
cognitive disabilities.
1
Exciting Ways to Use the Spiritual
Gifts of People with Disabilities
By Connie Hutchinson
Pink, pink everywhere as far as the eye could see… as the 24-year-old mother-to-be relished every mo-
ment of her first baby shower. It was Tuesday evening, Sept. 2, 1975, and members of the young married
group from the First Evangelical Free Church of Fullerton, CA “oohed” and “aahed” at the plush blan-
kets and pastel onesies on display.
In the midst of the excitement, someone said, “Did you hear about John and Patty’s baby, David,
born on Sunday? He’s been diagnosed with Down syndrome.A hush came over the partygoers as
everyone tried to digest the news and understand what it meant. John was the teacher and leader of
their young married group and this was the couple’s first child. Everyone had witnessed their joyful
anticipation. The awkward silence was broken by these words: “I was at the hospital this afternoon to
see John, Patty, and baby David. They want all of us to understand that their son is a gift from God.
He’s been uniquely created just the way he is by our Sovereign Creator, and God will use David in a
special way to glorify him. Don’t feel sad, but understand that David is the perfect firstborn son for
their family.”
With that, the baby shower continued. Soon, however, the mother-to-be went into labor—five weeks
early. Her husband picked her up from the shower and they went straight to the hospital. On the way,
they talked about baby David’s diagnosis, wondering how they would handle the news if their baby
was born with a problem. What the couple couldn’t have known was that 24 hours later they would
find out their newborn daughter, Julie, had Down syndrome.
I was that mother-to-be and that September day was the day our family personally entered the world
of disabilities. Our daughter, Julie, has taught us that God wants to use every individual regardless of
their abilities or disabilities. He has given us spiritual gifts to use in building up the body of Christ to
better serve one another, to glorify him, and edify others.
Come One, Come All
The Apostle Paul writes in 1 Corinthians 12:7 that God has given each of us abilities to make our unique
contribution to the church. “Now to each one the manifestation of the Spirit is given for the common
good.” We are all diverse, with unique gifts to give for the unity of the Church body.
“If the whole body were an eye, where would the sense of hearing be? If the whole body were an
ear, where would the sense of smell be? But in fact God has arranged the parts in the body, every
one of them, just as he wanted them to be. If they were all one part, where would the body be?
As it is, there are many parts, but one body. The eye cannot say to the hand, “I don’t need you!”
And the head cannot say to the feet, “I don’t need you!” On the contrary, those parts of the
body that seem to be weaker are indispensable, and the parts that we think are less honorable
we treat with special honor…so that there should be no division in the body, but that its parts
should have equal concern for each other. If one part suffers, every part suffers with it; if one
part is honored, every part rejoices with it. Now you are the body of Christ, and each one of you
is a part of it” (1 Corinthians 12:17-23, 25-27).
Several years ago, our senior staff and leaders went through a spiritual gifts assessment program
called Network by Bruce Bugbee, Don Cousins, and Bill Hybels. The program is designed to help church
members understand who God has uniquely made us to be, the biblical nature and purpose of the
church as the Body of Christ, and the unique importance of each member’s contribution. During this
time, as I studied my spiritual gifts and how to better understand God’s design for me in the church,
I was reminded of the great diversity in the body of Christ. 1 Peter 4:10 says that every believer has at
least one spiritual gift. “Each one should use whatever gift he has received to serve others, faithfully
administering God’s grace in its various forms.”
I came to realize that spiritual gifts are special abilities distributed by the Holy Spirit to every believer
according to God’s design for the common good of the Body of Christ. It is imperative that people
with disabilities be given the opportunity to exercise their gifts within the church body. However, for
this to happen, disability awareness training might need to come first. Church members need to un-
derstand the importance and necessity for all of God’s people, regardless of their abilities or disabilities,
to be encouraged to use their spiritual gifts to edify and build up the Body of Christ.
Is that You, God?
In 1992, I was hired as the first Director of Disabilities Ministry at the First Evangelical Free Church
of Fullerton by default. Since the early 70s, our church has had a Sunday school program for people
with disabilities to learn about Jesus while their parents worshiped together in the service. This class-
room was for children of all ages and with various disabilities, both physical and cognitive. Through
the mid-80s this class continued to grow as families were able to go to church while their children with
special needs were cared for by a loving staff of volunteers. This class was going strong and meeting
the needs of several families when Julie was born. However, as the push for mainstreaming and inclusion
of people with disabilities became popular in the early 80s, the enrollment in our special education
Sunday school class started to decline and I noticed that new families with young children with dis-
abilities were not coming to the church. By the early 90s, the class that had once served over 35 people
was down to less than a dozen students. Why was this?
When my daughter, Julie, was 15 she spoke these words to a group of church leaders in California
at a conference for Advocacy for Persons with Developmental Disabilities (ADD):
When I was little, I went to Sunday school like everyone else in our church. When I was six, I
stayed with my mom in the 4-year-old class where she was the teacher and I was her helper.
When I was 10, my sister, Katie, was born and my mom stopped teaching the four year olds.
E
x
c
i
ti
n
g
Wa
y
s
to
U
s
e
th
e
S
p
i
r
i
tu
a
l
G
i
f
ts
o
f
P
e
o
p
l
e
w
i
th
Di
s
a
b
i
l
i
ti
e
s
, b
y
C
o
n
n
i
e
H
u
tc
h
i
n
s
o
n
2
Lots of people thought I should go to the special education class at church because I was dif-
ferent. I didn’t want to. In the special ed class there were students from 10 to 40 years old. One
man was 23 and wanted to marry me. This was scary, and I didn’t like it. Last June, I listened to
my brother talk about starting in the junior high group at church and all the fun things they
did. I wanted to be with teenagers too. Mom and Dad talked with the junior high pastor, and
he said I could be part of the group. I was so excited. I went to summer camp, and I am in the
Sunday morning core group with 10 other girls. It’s fun, but I wish the girls were really my
friends. Maybe if I had been with them from the beginning, they would know me better as a
person and know that I am just a regular person with regular feelings who is more like them
than unlike them. I hope that in your churches you keep everyone together whenever you can.
As I helped Julie articulate what she wanted to convey to the churches represented at that confer-
ence, I realized we needed to make some significant changes in our own church. It was up to me to
help educate our well-meaning staff to understand that we needed to welcome people with disabilities
into the life of our church. It was not enough to just provide a place for them in a secluded classroom
where their gifts were not noticed or utilized. My husband and I met with one of our pastors and helped
him to see the value of having someone on our staff as an advocate for people with disabilities. I was
appointed to the search committee. After two years it became evident there was no one trained in dis-
abilities from our seminaries. At that time there were no classes taught on disability issues in the Chris-
tian academic community. After exhausting every lead, I received a call one evening from the head of
our search committee asking me to consider taking the position. I was stunned and unsure how to re-
spond. I was enjoying my role as a full-time homemaker and mom and wasn’t sure if I was ready to
join the “work force” again. I hadn’t worked outside the home since Julie was born. After two weeks of
prayer, many sleepless nights, and several conversations with my husband, I felt convinced God was
calling me to the ministry.
Keep it Simple
My job description is simply to “identify and break down barriers that keep people with disabilities
and their families from being able to fully participate in the body life of the church.Our Sunday school
classroom for people with disabilities has become an option for those with intellectual disabilities who
want to be together for instruction in the Word, prayer, worship music and fellowship. However, in-
clusion options are now available for children with disabilities, giving them opportunities to be with
their peers. This also helps others learn to be more comfortable interacting with people who have dis-
abilities. We realized people with disabilities needed to be involved in our corporate worship time, par-
ticipating in the sacraments of the Lord’s Table and baptism. As people with disabilities started to
become more visible around our church campus, congregants became more comfortable and began to
realize the value of having them included in various church activities, programs, and in service!
In the early years of our disability ministry, it was very important to have the support of our senior
pastor. In one of his sermons in the early 90s, our pastor at the time, Chuck Swindoll, said, “How
thrilling it is to know that this church, which we all love, has a ministry to people with disabilities.
They are not pushed away into some back room and sort of kept out of our way. They are not in our
way. They are part of our way; to be integrated into the flow and ministry of this church. For if it won’t
happen here, where in the world will it happen?” Chuck understood the value of people with disabilities
and their importance to the body of Christ.
E
x
c
i
ti
n
g
Wa
y
s
to
U
s
e
th
e
S
p
i
r
i
tu
a
l
G
i
f
ts
o
f
P
e
o
p
l
e
w
i
th
Di
s
a
b
i
l
i
ti
e
s
, b
y
C
o
n
n
i
e
H
u
tc
h
i
n
s
o
n
3
Strategic planning was done to help our church understand and accept people with disabilities. Yearly
Disability Awareness Sundays were held. On one of these Sundays, Joni Eareckson Tada was our guest
speaker and she told the congregation thatpeople with disabilities do more for the spiritual well-being
of the church than you can imagine.Over the years, people with disabilities have become more and more
visible on Sunday mornings. One Sunday, Bonnie, who is blind, read the Scripture reading from her
Braille Bible. On another, Becky, who is deaf, stood in front of the congregation and shared through sign-
ing, as our sign language interpreter voiced her message to us. Two of our gifted musicians, Debra and
Lynn, have multiple sclerosis and have shared their struggles and challenges before ministering through
their gift of music. Both women are often part of our worship team, glorifying God with their voices.
It is critical to periodically remind your congregation of the importance of people with disabilities
through church publications and other communication tools. Several years ago I wrote the following up-
date in our church newsletter: “Over the last year, I have watched over a dozen children and teenagers with
disabilities being included in our youth programs here at church. Last month, one of our pastors substi-
tuted for a boy’s basketball class in Talent Factory (our second-hour Sunday morning program for children
in grades 1-6). He noticed that one of the boys on the team had cerebral palsy and how positive and sup-
portive the other boys were. They didn’t seem to be frustrated when he threw the ball out of bounds. He
was accepted as a team player and included. Yes, rules were changed a few times and modifications made,
but that wasn’t important. The pastor knew that through this boy, the other boys were learning how to
apply some of the biblical principles they are taught in Sunday school such as unconditional love, accept-
ance, and the unique way God created each of us. Isn’t that what maturing in Christ is all about?
Several years ago, our Pastor Dale Burke preached a sermon series on the “Purpose Driven Life” by
Rick Warren. Members of the congregation were encouraged to personally examine their lives to help
discover their purpose—what on earth are we here for? Each church member was challenged to reflect
on how the series impacted their lives. What unique gifts has God given us to use for His glory and to
build up our local body? I shared the following with our congregation on the final Sunday of the series:
Ted and Debbie are an active couple in our church who have three children; two with special
needs. Jacob, who has autism, is in our kindergarten Sunday school class and is disruptive. He is
sensitive to sounds, needs structure, does not like to play with other children, has limited speech
and doesn’t like to sit at the story circle with the group. As Debbie and I talked one Sunday, she
made a statement I will never forget. She has come to realize that Jacob’s purpose on earth is to
teach others tolerance and compassion. This is his purpose; his life will make a difference and
some of your children are having the privilege of being taught tolerance and compassion by Jacob
right now in their Sunday school class.
Jacob’s mom, Debbie, meets often with a group of moms in our community who have chil-
dren with autism. She is one of the lone Christians in this group—having been told by several
of the moms that they could never love a God who has done this to a child. Debbie loves these
women. They know about her relationship with Jesus. This is her mission field. If just one person
will be in heaven because of Debbie and Jacob, their lives will have made a difference for eternity!
They are living the purpose driven life, using the spiritual gifts God has given to them.
No Quick Fixes
It has taken time. Attitudes are not changed overnight. You must be intentional, patient and realize
that not everyone will immediately understand the value of people with disabilities and the gifts
E
x
c
i
ti
n
g
Wa
y
s
to
U
s
e
th
e
S
p
i
r
i
tu
a
l
G
i
f
ts
o
f
P
e
o
p
l
e
w
i
th
Di
s
a
b
i
l
i
ti
e
s
, b
y
C
o
n
n
i
e
H
u
tc
h
i
n
s
o
n
4
they have to offer. Our church’s key leadership has provided a consistent example of acceptance of
people with disabilities. Their example, as well as Disability Awareness Sundays, and constant com-
munication, has brought us a long way since our church first decided to start a disability ministry.
Numerous opportunities have been provided for people with disabilities to use their gifts. Some op-
portunities have come naturally; others have been purposefully planned for the benefit of the entire
church body.
Rick is our newly-elected church chairman and head of our elder board. He is a godly man with a
servant’s heart and the gifts of administration and leadership. He has served on our Trustee Board and
as Co-Director of our Next Step building project to mention just a few of the posts he’s filled over the
years. In 1997, Rick experienced a near-fatal auto accident caused by a young woman rushing to get to
work on time. His car rolled off an overpass, and fell 65 feet. His survival was a miracle. The accident
left Rick paralyzed from the waist down. On any given Sunday you can see him navigating around the
church in his wheelchair. His input during our building campaign has been invaluable as he under-
stands firsthand the need for ramps, ADA requirements, and handicap parking spaces for people with
disabilities. He is a true advocate for people with disabilities.
At our church, the Deacon Board Chairman is permitted to supplement the elected deacon board
by appointing additional deacons and deaconesses to serve one-year, non-voting terms. Chairman Tim
purposefully decided it would be appropriate this year to appoint my daughter, Julie, to one of those
spots. Julie is now a 34-year-old woman who lives successfully in her own apartment down the street
from the church. She has a servant’s heart and the spiritual gifts of hospitality and encouragement.
There was some concern among a few that it wasn’t appropriate to have someone with a developmental
disability serve on the deacon board. However, after discussion, prayer and some awareness training,
Julie was appointed and is currently on the bereavement committee and greeter team. She serves cookies
and helps where needed at memorial services and also greets people as they arrive on Sunday mornings.
One of the deacons wrote a note to Chairman Tim:
I want to thank you for bringing Julie to the Deacon Board dinner and introducing her to the
incoming and outgoing deacons. Julie is a very committed Christian and has great insight and
is very prayerful. She will bring an added dimension to our board and I commend you for lis-
tening to your mind and heart. God will use her to reach out to many while she serves. As her
Sunday school teacher for a few years, I can tell you that she is very discerning. Way to go Tim!
Heavenly Rewards
In 2002, a high school boy with intellectual disabilities desperately wanted to be a part of the high
school group at church and attend summer camp. Drew had attended our camp for teens with disabil-
ities but he wanted to go to camp with the “other kids”—he knew the difference. Drew cannot memorize
his phone number, read, or understand how to clock in with his timecard at work. Yet he has sensitivity
for others, love for Jesus and a real desire to share his faith. After strategic planning and input from
his parents, Drew successfully went to camp. This was carefully planned. The results were exciting and
even somewhat unexpected; the high school students genuinely embraced Drew and included him long
after camp. Now, several years later, Drew is an active member of the college group, greets new members,
ushers in our worship service, and is part of the college leadership team. He was picked to go to New
Orleans on a short-term mission team where he participated in demolition work and also shared his
faith. He was the top support raiser for the team.
E
x
c
i
ti
n
g
Wa
y
s
to
U
s
e
th
e
S
p
i
r
i
tu
a
l
G
i
f
ts
o
f
P
e
o
p
l
e
w
i
th
Di
s
a
b
i
l
i
ti
e
s
, b
y
C
o
n
n
i
e
H
u
tc
h
i
n
s
o
n
5
Our Fellowship of Friends class is a group of teens and adults with mild to moderate intellectual
disabilities. As part of their holiday party, they share the Christmas story in a play performed for their
parents, family and friends. This powerful presentation has been so well received that they have been
asked to perform in our Chapel evening service this year for the entire congregation. David, a gifted
speaker and a young man with Down syndrome, has been asked to use his spiritual gift and share the
chapel message that same evening.
Becky, Bonnie, Debra, Lynn, Jacob, Rick, Julie, Drew, and David are just a few of the people with
disabilities in our congregation who are actively using their spiritual gifts to make unique contributions
to our church body. You will find people with disabilities serving on our parking lot crew, as support
group leaders, on the worship team, as ushers, greeters, prayer warriors. I still remember when Joni told
us that people with disabilities would do more for the spiritual well-being of our church than we could
imagine. However, now we don’t have to imagine because we are inspired by their service and their faith
every time our congregation gathers. I can assure you that your church will be truly blessed when all
God’s people are welcomed, allowed, and encouraged to use their spiritual gifts.
E
x
c
i
ti
n
g
Wa
y
s
to
U
s
e
th
e
S
p
i
r
i
tu
a
l
G
i
f
ts
o
f
P
e
o
p
l
e
w
i
th
Di
s
a
b
i
l
i
ti
e
s
, b
y
C
o
n
n
i
e
H
u
tc
h
i
n
s
o
n
6
C
o
n
n
i
e
H
u
t
c
h
i
n
s
o
n
i
s
t
h
e
D
i
r
e
c
t
o
r
o
f
D
i
s
a
b
i
l
i
t
i
e
s
M
i
n
i
s
t
r
y
a
t
t
h
e
F
i
r
s
t
E
v
a
n
g
e
l
i
c
a
l
F
r
e
e
C
h
u
r
c
h
o
f
F
u
l
l
e
r
-
t
o
n
.
S
h
e
h
a
s
s
p
o
k
e
n
a
t
c
o
n
f
e
r
e
n
c
e
s
a
n
d
c
o
l
l
e
g
e
s
n
a
t
i
o
n
w
i
d
e
a
s
a
n
a
d
v
o
c
a
t
e
f
o
r
p
e
o
p
l
e
w
i
t
h
d
i
s
a
b
i
l
i
t
i
e
s
.
C
o
n
-
n
i
e
t
r
a
v
e
l
e
d
i
n
G
h
a
n
a
w
i
t
h
a
W
h
e
e
l
s
F
o
r
T
h
e
W
o
r
l
d
t
e
a
m
,
a
n
d
i
s
c
u
r
r
e
n
t
l
y
o
n
t
h
e
C
h
i
l
d
r
e
n
t
o
L
o
v
e
B
o
a
r
d
t
o
h
e
l
p
r
e
a
c
h
o
r
p
h
a
n
e
d
a
n
d
a
b
a
n
d
o
n
e
d
c
h
i
l
d
r
e
n
i
n
R
o
m
a
n
i
a
.
S
h
e
h
a
s
t
r
a
v
e
l
e
d
t
o
R
o
m
a
n
i
a
,
C
h
i
n
a
,
a
n
d
N
o
r
t
h
e
r
n
A
f
r
i
c
a
t
o
s
p
e
a
k
t
o
p
a
r
e
n
t
s
,
e
d
u
c
a
t
o
r
s
,
c
h
u
r
c
h
l
e
a
d
e
r
s
a
n
d
g
o
v
e
r
n
m
e
n
t
o
f
f
i
c
i
a
l
s
o
n
t
h
e
v
a
l
u
e
o
f
a
l
l
p
e
o
p
l
e
w
i
t
h
o
r
w
i
t
h
o
u
t
d
i
s
a
b
i
l
i
t
i
e
s
.
1
Marriage with a Disability
By Joni Eareckson Tada
My friend Sib looked at me with hopeful eyes, “Joni, I’ve been dating Jesse for some time now… we both
love each other and feel we know one another well. Recently we’ve been talking about marriage. How
would you advise me?” Having worked among people with disabilities for more than 15 years, Sib could
be considered an expert. But this wasn’t about her profession—Jesse was a spinal-cord injured quadri-
plegic in a wheelchair, and he was asking Sib to be his wife.
I cannot recall my exact words, but I wasn’t very encouraging. At the time, I had been married to
Ken for 10 years, and there were pretty rocky moments. I wondered, Does Sib understand what she’d be get-
ting into? Any marriage has its challenges, but add a disability and it’s doubly challenging. To make a long story
short, Sib and Jesse have been happily married for 20 years, have a 17-year-old son, and work together
in ministry.
Nevertheless, I recently asked Sib what she would say if someone approached her now and asked
about marriage with a wheelchair. She thought for a long moment. “I wouldn’t be very encouraging,”
she said with a wry smile.
There is much sacrifice and compromise that happens in order for two to truly become one in mar-
riage. Add a serious disability, and the odds are not in a couple’s favor. Yet there are marriages, including
my own, which have survived and even thrived as couples learn to lean on Jesus Christ. He is that third
strand of the rope which we are told, in Ecclesiastes 4:12, is not easily broken.
Eyes Wide Open
I meet plenty of young girls in wheelchairs at Joni and Friends’ Family Retreats, and virtually all of
them express a deep desire to marry. For some of these girls, happiness in a wheelchair seems elusive;
they seem to believe a wedding ring will somehow fulfill what their disability has denied them. These
girls know that Ken and I have enjoyed a successful marriage for nearly three decades, and they are anx-
ious to follow in my tracks. It’s the same with young men who have a disability—they seem to be looking
for assurance that able-bodied girls will find them attractive; that they are “marriageable.”
However, when I sense that a young person with a disability, whether male or female, is looking at
marriage as the “end all be allI know something’s lacking. If I believe that this person is struggling with
self-image, or is restless with the status quo, or is dissatisfied with God’s plan, I challenge him to seriously
examine the lordship of Christ in his life. Only when a person is happy with God and his purposes,
is he ready for marriage—able-bodied or not. Only when Christ is Lord does a person with a disability
have the necessary resources to genuinely love someone else, to pour out his or her life into someone else.
Love is best expressed in marriage through selfless giving. The problem is that most disabling con-
ditions naturally force a person to think of their own needs first: “I need someone to help me get up in
the morning and go to bed at night… I need someone to help me with shopping and transportation
and medical appointments… someone to assist me with toileting routines… to help adjust me in my
wheelchair, etc.” A physical impairment clamors for one’s undivided attention, often breeding a “me
first” attitude. Self-centeredness is a huge barrier to developing a healthy, loving relationship. It’s the
exceptionally mature disabled person who is able to look beyond the pressing needs of his or her own
condition and be free to focus on the needs of the other.
Join me for a moment in taking a look at a more complete picture of love in 1 Corinthians 13 as par-
aphrased in The Message: “Love never gives up, loves cares more for others than for self. Love doesn’t want
what it doesn’t have. Love doesn’t strut, doesn’t have a swelled head and doesn’t force itself on others.
Love isn’t always ‘me first’ and it doesn’t fly off the handle. Love doesn’t keep score of the sins of others
and doesn’t revel when others grovel. Love takes pleasure in the flowering of truth. It puts up with any-
thing, trusts God always, always looks for the best and never looks back but keeps going to the end.”
Because selfishness has a way of twisting the truth, one doesn’t always see it in one’s self. You’d
swear that your actions and motives were pure (Hebrews 3:13). Thankfully, a disability can be an ad-
vantage here—it “magnifies” selfishness so that it can be more readily identified and dealt with. That’s
important before entering marriage!
When couples dealing with a disability ask for marriage advice, I also point them to Philippians
2:3-7. Nothing reveals true maturity quicker than passages which challenge us to put others first and
to do nothing out of selfish ambition. Marriage is not to be viewed as “a relationship where I get my
needs met.” Rather, it should be, “I’m in this marriage to meet the needs of my spouse.” To enter a re-
lationship with the goal of getting your needs met sows seeds of destruction.
As with typical couples, the person with a disability and his or her companion need to discuss their
individual expectations for the marriage. Love and attraction can be powerful, hypnotic forces that
must be weighed against the realities of what will be required of the spouse without a disability, espe-
cially if that person will be serving as a caregiver. A disability can sometimes foster “trapped feelings”
in the spouse who is a caregiver. There’s the psychological pressure of your marriage being “a-typical;”
the occasional social isolation, and the dreariness of a day-to-day routine. There will also be the in-
evitable sexual limitations due to a disability as well as financial strains to consider.
Many disabled people rely on U.S. government benefits. When they desire to marry, they quickly
discover the stipulations on disability benefits and marriage. In many states their individual support
benefits are jeopardized when they marry. I hurt for those who long to be married, yet are thwarted by
marriage disincentives within Supplemental Security Income (SSI) regulations.
Joni and Friends is working alongside advocacy groups to address unfair marriage disincentives.
We want to help change these Social Security regulations. It is unfortunate that this deterrence to mar-
riage is built into the regulations, penalizing mainly the elderly and the disabled. I am reminded of
Isaiah 58:6, “Is not this the kind of fasting I have chosen: to loose the chains of injustice and untie the
cords of the yoke, to set the oppressed free.” The Christian community has a challenge here. If we indeed
believe these regulations place extraordinary and unfair hardship on the elderly and people with dis-
abilities, we are called to do all we can within our power to untie the cords of the yoke. Perhaps a church
can pool resources to offset the combined income formula, thereby assuring a financial safety net for
a couple affected by disabilities who marry.
M
a
r
r
i
a
g
e
w
i
th
a
Di
s
a
b
i
l
i
ty
, b
y
J
o
n
i
E
a
r
e
c
k
s
o
n
T
a
d
a
2
The dreamy haze of attraction begins to dissipate over time for all couples, so it is critical to take
enough time in dating and during engagement to experience as many of the day-to-day struggles of
living with a disability as possible. I recall several months after Ken and I began dating, I developed a
pressure ulcer which forced me to be bedridden for two months. Ken cleverly devised all sorts of adap-
tive aids, including an art easel which could be positioned over my bed so I could paint. He even became
familiar with emptying my urine-bag on the side of my bed. While I was bedridden, Ken was able to get
a realistic picture of my behind-the-scenes care. Observing his creativity and patience, as well as his
lack of squeamishness with my limitations, assured me that this was a man who could handle my quad-
riplegia in marriage.
When it comes to questions about sexual intimacy or the challenge of day-to-day routines, some
couples feel they must “test the waters” before they marry. When Ken and I were dating, we had lots of
questions about these issues and more. Some people encouraged us to go away together for a weekend
in order to satisfy our natural curiosity, but we knew that would be the wrong path to take. As followers
of Jesus, we understood that my quadriplegia did not give us a special dispensation to relax the rules
about sex before marriage, let alone other questions of modesty. Yes, it would mean entering marriage
with many unanswered questions and lack of experience, but that was okay—we knew we’d be forced
to rely more on God and his resources. And on our wedding day, Ken and I knew our morally pure re-
lationship meant having God’s blessing and favor.
Different Roles
In 1976, long before I ever met Ken or married, I was interviewed by People magazine. I was quoted as
saying that if a man ever asked to marry me, I hoped I would love him enough to say no because of all
that marriage would entail. That was then. Thankfully, when Ken and I married, both of us could rely
on God, a much higher Power than us, to guide us through the certain pitfalls and cobweb of questions.
We understood that it boils down to trusting God and believing he had brought us together. We did
not need to fear the unknown for 1 John 4:18 assures us that “perfect love drives out fear.”
Mike and Renee Bondi had been engaged for almost a year when she became a spinal cord injured
quadriplegic through a bizarre accident, just weeks before their wedding day. While many of their
friends and family expected the marriage to be called off, Mike never waned in his commitment to
marry Renee. One day, shortly after Renee’s accident, Mike visited his fiancé in the intensive care unit.
When she quipped, “Well, honey, I guess now we’ll get all the good parking spaces,” he knew she was
still the exceptional woman he’d fallen in love with. Mike reflects, “I realized that even though Renee’s
body was broken, her mind wasn’t. It was the same person with the same sense of humor that I had
fallen in love with before.”
1
Their circumstances, however, were very different and Renee initially struggled with her role as wife
while she was so dependent on Mike. She pushed him away, feeling as though she did not deserve his
devotion. “What kind of wife can I be?” Renee admits wondering. She was experiencing the conflict
couples feel when faced with the typical roles husbands and wives assume in marriage: husbands work
outside the home, and wives spend their day housekeeping; husbands do yard work and wives do all
the shopping; husbands pay the bills and wives primarily take care of the children, etc. Disability can
upend those roles, many times leaving the spouse with the disability feeling unworthy or frustrated at
not being able to do “normal” things to serve their partner.
I felt the same way when Ken and I first married. The challenge was to come together as a couple
to discover what would make our marriage “work.” In our house, Ken does most of the cooking and
M
a
r
r
i
a
g
e
w
i
th
a
Di
s
a
b
i
l
i
ty
, b
y
J
o
n
i
E
a
r
e
c
k
s
o
n
T
a
d
a
3
shopping. In turn, I am entirely responsible for managing my medical supplies, appointments, atten-
dant care, and wheelchair maintenance. It’s one way I can “contribute” to our life together. And al-
though I cannot cook an omelet for Ken or fold his towels, I invest my time in other activities of value.
I encourage and cheer him on, pray for him, safeguard his reputation, listen to him when he’s hurting,
appreciate his friendships, applaud him and push him out of the house occasionally to go fly fishing
with his Bible study buddies. Ken even tells me that these are the contributions to our marriage that he
treasures the most.
Eventually Renee Bondi was able to employ the same creativity as she and Mike explored things
she could do. She realized that part of a loving relationship is accepting the affections and service of your
spouse. To refuse that affection and service was not a sign of humility, but pride. To their great joy, Re-
nee eventually gave birth to a son, Daniel. Today, many years later, Renee and her helper are able to
drive Daniel to his baseball games and school outings—there’s no need to worry about her role as a
wife and mother!
Gods Power Released through Weakness
A disability can actually be an asset in marriage. Second Corinthians 12:9-10 is God’s reminder that a
significant impairment can be the very stage on which his grace and power show up best. “My grace is
sufficient for you, for my power is made perfect in weakness.” It requires faith (and major effort) to
put this into practice, but a disability can provide built-in reliance on God and his grace—a reliance
that might not come as readily with couples that lack a disability.
Before I became injured and was still on my feet, one of my favorite hobbies was gardening with
my mother. After we married, I asked Ken if I could “borrow his hands” to help me garden in our back-
yard. We spent plenty of Saturdays pruning roses, aerating soil, and planting pansies. Ken learned a
great deal about plants and different types of soil. I, in turn, vicariously enjoyed “using a rake and clip-
pers” through my husband’s hands. To me, it was a revelation that God should use my weakness and
inability (and Ken’s strength and ability) to bring us into a closer bond of unity and oneness. A friend
observed this and even wrote a song about it:
God gave us hands, a gift of love to share.
Hands that can hold, and help, and hug, work perfectly as a pair.
Left and right, together they can be wonderful tools,
But mine can’t be used ’cause they have forgotten how, for now.
May I borrow your hands, mine don’t work so well, but yours will do just fine.
May I borrow your hands, they can work for me, they can be mine for a time.
Helping one another, like a sister and a brother.
May I borrow your hands they can work for me, together we’ll do just fine.
With Christ firmly at the center of a marriage, a disability no longer needs to be a liability, and has
great potential to be an asset! A disability in marriage not only serves as a litmus test for selfishness,
quickly exposing hidden self-interests, but it fosters unity. Jesus says in John 15:12-13, “My command
is this: Love each other as I have loved you. Greater love has no one than this, that he lay down his life
for his friends.” Marriage will constantly have one “laying down his life” for the spouse.
M
a
r
r
i
a
g
e
w
i
th
a
Di
s
a
b
i
l
i
ty
, b
y
J
o
n
i
E
a
r
e
c
k
s
o
n
T
a
d
a
4
A Support Network
The church can and should be helping couples with a disability during every step of their courtship
and marriage. From premarital counseling that ensures both Christians are making the commitment
with their eyes wide open, to hands-on acts of service which provide some relief for the able-bodied
spouse. Often, a disabled person will already have his or her network of support firmly intact before
marriage, but if not, then it should signal caution! When it comes to disability, a couple simply cannot
“go it alone.” Church members can be a life-line for families living with a disability, and help can also
be found through community resources.
The fact is every couple living with a disability needs a support network! I employ several friends to
help me get up in the morning and go to bed at night—I call them my Get-Up-Get-Down Girls. Some
of my helpers opt not to receive reimbursement for their time, but assist me as personal ministry. These
girls are not necessarily trained care attendants; they are simply women who understand what my needs
are, and want to give a hand by helping me exercise, bathe, dress, get in or out of my wheelchair, brush
my hair, put on make-up, etc.
However, the relationship is not all one way. I want them to understand their high calling as servants
of the Lord (who just happen to be helping me). I view their service from the perspective of Colossians
3:23-24, “Whatever you do, work at it with all your heart, as working for the Lord, not for men, since
you know that you will receive an inheritance from the Lord as a reward. It is the Lord Christ you are
serving.I make it a special point to remind them that when they help someone like me with a disability,
they are actually serving the Lord. And rich will be their reward in heaven because of their heartfelt de-
sire to meet a practical need (Matt. 25:34-40). This is why I don’t mind asking for help. I do so, knowing
that when people assist me with my needs, they are increasing the joy and reward of their eternal estate.
A support network will continue to grow and be strengthened if people keep this important focus.
If not, a support network can quickly implode from lack of vision and weariness. Hebrews 12:2-3 has
a great prescription for anyone who loses heart in their service, “Let us fix our eyes on Jesus, the author
and perfecter of our faith, who for the joy set before him endured the cross, scorning its shame, and
sat down at the right hand of the throne of God. Consider him who endured such opposition from
sinful men, so that you will not grow weary and lose heart” (emphasis added).
My husband Ken has the same perspective. Whenever he begins to feel weary or tired, he reminds
himself that his work is for the glory of Jesus Christ. When Ken is focusing on the Lord, he may feel
weary, but his work need not be wearisome; he may feel tired, but his efforts need not be tiresome.
Christ himself set the example, teaching the disciples that he did not come to be served, but to serve
(Matt. 20:26-28).
One final word on a support network, whether it’s employed caregivers, volunteers, or the able-
bodied spouse who helps: it is extremely important to express gratitude. A couple with a disability will
be drawn together through gratitude. Nothing quells love quicker than an ungrateful spirit. However,
once again, a disability can be a bonus, reminding a couple of the importance of saying “thank you”
often—and meaning it! A network of caregivers will be strengthened as a couple affirms their support,
commends their efforts, and frequently expresses gratitude.
Prayer
When newlyweds dealing with a disability in their marriage ask me about daily disciplines, I always
point to prayer. In a marriage, it is prayer that keeps the door open to much needed grace from God.
When there’s a wheelchair, white cane, or walker in the marriage, prayer is more urgently needed.
M
a
r
r
i
a
g
e
w
i
th
a
Di
s
a
b
i
l
i
ty
, b
y
J
o
n
i
E
a
r
e
c
k
s
o
n
T
a
d
a
5
I often say to the newlywed with the disability that she (or he) can do no finer, no more exalted
work on behalf of her spouse than to pray for him. Like we’ve already established, a couple with a dis-
ability needs help. So when the psalmist says, “I lift up my eyes to the hills; from where does my help
come?” he answers his own question with the words, “My help comes from the LORD, who made heaven
and earth” (Psalm 121:1,2, ESV, emphasis added). A wife is not sufficient comfort for a husband. A
man is not sufficient provision for a wife. A stronger Hand must come to his or her aid.
Prayer will soften any rough edges in marriage. Prayer will prevent a spouse from keeping a “tit for
tat” list. Prayer will keep one from harboring a record of wrongs. Prayer will remind me to protect my
loved one’s reputation. It will cause your expectations to be realistic. It will help your love cover a mul-
titude of other’s sins. Most of all, prayer will safeguard Christ’s preeminent position at the center of a
marriage.
Together for Better or for Worse
As with any couple, Ken and I are growing together through the gristmill of everyday life in marriage.
A few years ago, I contracted a bad cold and it moved quickly into my chest. After two solid nights of
constant coughing, Ken rushed me to the hospital. I’m glad we acted. The emergency room x-rays
showed that my lungs were seriously congested. Ken has written about our experience:
The next day, Joni’s doctor diagnosed her with double pneumonia when they saw that both
lungs were filling with fluid.
Those nine days in the hospital were extremely difficult for my wife. I have to admit, they
were difficult for me, too. I felt so helpless, unable to do much for Joni except to press on her
abdomen which enabled her to “get” a good cough. (The nurses kept laughing, saying that they
were going to charge me for “wife abuse.”) I stayed at the hospital every night, making sure she
had someone to be her “muscles” when she needed help breathing. Finally, they sent her home.
We were so relieved to be home! Quadriplegics like Joni have limited lung capacity, and
many don’t live through such an ordeal. This is why we are praising our Great Physician, the
Lord Jesus for replenishing Joni’s strength. Obviously, God has much more work for her to do.
And God has much more work for me to do, too. In the near future, my wife and I will cel-
ebrate our 30
th
wedding anniversary. For all these years, we’ve shared a marvelous ministry and
mission together. And please underline that word together because I have a new appreciation for
what that word means. You see, Joni and I were never more “together” as a married couple than
when she and I were battling against her pneumonia in the hospital. One would think that a
feeling of togetherness would best happen over a candlelight dinner or a romantic vacation.
But isn’t it just like God to strengthen our unity, deepen our commitment, and breathe fresh
romance into our marriage through, well... dealing with pneumonia in a hospital?!
Joni and I were talking about it the other night. I am stronger when I help her, as I support
and stand beside her... plus, she is stronger when she’s “wheeling close” to me, praying for and
encouraging my efforts. It’s a perfect picture of Ephesians 2:22, “And in him you too are being
built together to become a dwelling in which God lives by his Spirit” (emphasis added).
Yes, my wife and I have many more tasks to tackle, many more travels to take, and many
more prayers to offer before the Throne. Until the Lord takes one of us home, we are a team to-
gether. We take our lead from Psalm 34:2-3 where it says, “Glorify the Lord with me; let us exalt
his name together” (emphasis added).
M
a
r
r
i
a
g
e
w
i
th
a
Di
s
a
b
i
l
i
ty
, b
y
J
o
n
i
E
a
r
e
c
k
s
o
n
T
a
d
a
6
I’m not pretending that we are “experts” when it comes to marriage advice, but I will say
this to any couple going through tough times—it’s amazing how God always reveals himself to
us when we come together, needing him desperately. It’s amazing that when we are at our lowest,
and feeling like we can’t go on, the Lord always shows up. And Jesus, the Breath of Life, showed
up at Joni’s hospital bedside every day and every night. And we both—we both together—drew on
his grace. Our marriage is richer and better for it.
I’m looking forward to many more days of life together with my quadriplegic wife. She’s a
gem! And I can’t wait until heaven when we will see the eternal results of our work as we’ve ex-
alted his name together!
I agree with Ken. We’re in this marriage together. And we’re grateful that my wheelchair keeps binding
more tightly the ties that draw us to each other and the Lord. For those of you who will be supporting
and offering counsel to couples with a disability, I can say in hindsight that although marriage is hard
I would again point to 1 Corinthians 13, “And now these three remain: faith, hope and love. But the
greatest of these is love.”
2
NOTES
1. For Better or For Worse, Joni and Friends TV Series.
2. 1 Corinthians 13:13
M
a
r
r
i
a
g
e
w
i
th
a
Di
s
a
b
i
l
i
ty
, b
y
J
o
n
i
E
a
r
e
c
k
s
o
n
T
a
d
a
7
Joni Eareckson Tada is the founder of Joni and Friends International Disability Center, a nonprofit ministry
with a global outreach. A diving accident in 1967 left Joni, then 17, a quadriplegic in a wheelchair. Since then,
Joni’s wisdom and influence have been shared with the world through bestselling books, radio programs,
television programs and frequent speaking. Her radio program is carried by over 1,000 broadcast outlets and
heard by over a million listeners. Joni is also an accomplished artist and singer. She has served on the National
Council on Disability and the Disability Advisory Committee to the U.S. State Department.
1
Ministering to Adults and
the Elderly with Disabilities
By Dr. Jim Pierson
“Children with disabilities become adults with disabilities” is a fact. However, as a director of a chil-
dren’s rehabilitation center, I was taken aback by this assessment from a veteran advocate for people
with disabilities at a regional conference. His comment changed my perspective on my approach to
rehabilitation. It is one thing to teach children to walk; it is another matter to provide them with
somewhere to walk. In spite of my acceptance of this fact, when I became engaged in disability min-
istry, I focused on children. As those children in my very first Sunday school class became adults, I
once again changed my approach to ministry. It is one thing to teach students the exciting stories
of the Bible; it is another thing to provide them with a strong faith in Jesus and a place of ministry
in the church.
There are two groups of adults with disabilities that need to be considered when planning ministry
through the church. First, there are those who were born with disabilities or developed them early. The
child with Down syndrome, who has been in the children’s program for years, will continue to need to
be taught and encouraged to be a part of the life of the church.
Second, there are those people with adult-onset disabilities that need ministry. The member who
is diagnosed with multiple sclerosis at age 35 will need encouragement to stay active and involved with
the church.
The goal of the congregation in both cases is to create an atmosphere that allows both members
with and without disabilities to make these statements, or at least, feel them:
Christians with and without disabilities are equal in the sight of their Creator and one in
Christ.
Everyone, regardless of ability, has access to all of the programs of the church, especially a
place to serve.
People with disabilities will have ministry in this church for their lifespan.
The First Group of Adults to Be Included in Ministry
Let’s talk about adults born with a disability or who have a disability that developed at an early
age. If the adult has been in a program in the church since he or she was a child and/or teen, his
or her faith needs to continue to be nurtured. On the other hand, if the adult is entering the
church’s disability ministry for the first time, a plan for developing his walk with the Lord should
be established.
In either case, five components will provide a solid foundation for the adult’s participation in
the life of the church.
1. Providing a Christian education
2. Embracing faith in Christ
3. Learning to worship
4. Finding a place to serve
5. Locating a community outlet to meet social needs
Providing a Christian Education
The ideal approach would be for the adult to be included in his regular Christian education group.
However, because of the difference between mental age and chronological age of his typical peers, a
separate class approach is better, especially with adults with intellectual disabilities. The class should
function like any other class: have a regular Bible lesson, have social functions, and support a mis-
sionary. In order to keep the members of the class in touch with other adults in the congregation,
sponsor activities that foster interaction between the groups.
Finding appropriate materials for the class should not be difficult. While there are some pub-
lished materials available, the lessons will often have to be adapted to the level of the class members
anyway. Some ideas would be to use materials already in the church library to create a series of les-
sons stressing the positive characteristics of Old Testament heroes, a series of lessons on the life of
Jesus, or a series on the attributes of God. As you get to know the class, the lesson materials will be
easier to choose because you will know their personal struggles and you can format lessons that of-
fer biblical solutions.
If there are only one or two adults with intellectual disabilities in the church, include them in a
typical adult class. Encourage members to take turns sitting with them, assisting them in finding
Scripture references, and making interaction with other class members easier.
Embracing Faith in Christ
The primary objective of the Christian education component is to lead the adult to faith in Jesus
Christ. In regard to adults with intellectual disabilities, people often ask, “Can they comprehend
enough to embrace faith?” The answer is, “Yes!” Often pastors hesitate to baptize persons with intel-
lectual disabilities who request it. How does the minister know when they are ready? It is easy to de-
termine—just ask. Then listen for a response that includes a phrase that says he or she loves Jesus and
wants to obey Him.
The role of church leadership is to teach the Word, provide worship experiences, and set good ex-
amples. The influence of the Holy Spirit attached to the message of salvation will find its way to the
non-disabled heart.
M
i
n
i
s
te
r
i
n
g
to
A
d
u
l
ts
a
n
d
th
e
E
l
d
e
r
l
y
w
i
th
Di
s
a
b
i
l
i
ti
e
s
, b
y
Dr. J
i
m P
i
e
r
s
o
n
2
Learning to Worship
After embracing faith, adults with disabilities should be taught to function as a part of the Body of
Christ. A part of our training for them should be the various facets of worship; items that could be
taken for granted. They need to know the songs of faith, how to pray, to support the church financially,
how to use their gifts and talents for the church, how to tell others about Jesus, how to listen to lessons
from the Bible (sermons), and to live according to biblical precepts.
If a person with a disability is to participate in the worship service, the congregation must create a
welcoming atmosphere. The church leadership should radiate an attitude of acceptance of all of God’s
children. This inclusionary attitude should be conveyed by ushers and greeters who embrace the phi-
losophy.
During the worship service, the members who have disabilities should be encouraged to integrate
with other members. I am familiar with one church which had a large group of attendees from a resi-
dential facility that all sat in a group. This concerned one of the church members so she came up with
an idea to encourage members of the congregation to “adopt” a resident. Both the family and the res-
ident were given “papers” to frame. The “familysat together in church, shared lunch, remembered
birthdays, and other kindnesses common to family.
Finding a Place to Serve
The act of worship will lead to service. The old church bulletin statement says it well: Enter to worship,
depart to serve.” Adults with disabilities need to be a functional part of the congregation. What can
they do? Well, the same things the rest of us do. Everyone has gifts, talents, and abilities that can be
used to make a difference to the congregation. It is a matter of fitting capabilities to the task. Consider
the following options for service:
Greeter: In many cases they can train the regular greeters in the art of being friendly.
Office assistant: Folding, stapling, and organizing materials are nice jobs. They would enjoy
folding the bulletins for Sunday morning or inserting materials.
Cleaning: Picking up items people leave on the pews after the service. Cleaning parts of the
building would be helpful to everyone.
Christian education assistant: Collecting attendance records; delivering materials to and for
the teachers.
Teacher’s assistant: Assist with classes for younger children.
Gardener: Mowing, raking and mulching on the church property or for shut-in members.
Server: Helping prepare and serve food at church functions. Help pack and deliver Thanks-
giving baskets; fill backpacks for needy school children.
Prayer: Be a part of a prayer team.
Worship: Pass the collection plates or serve the communion.
Service opportunities are a good time to build relationships between those with and without dis-
abilities by helping them to get to know one another. Such times of togetherness build friendship, ac-
ceptance, and a sense of being part of the congregation. It might be necessary to do some awareness
training for both groups, but it will pay off. Simply inform each group of what to expect from the other.
Being able to serve helps our adult friends with disabilities feel that they “belong” to the church
family. A dear friend of mine with moderate intellectual disability enjoys being a part of the service.
M
i
n
i
s
te
r
i
n
g
to
A
d
u
l
ts
a
n
d
th
e
E
l
d
e
r
l
y
w
i
th
Di
s
a
b
i
l
i
ti
e
s
, b
y
Dr. J
i
m P
i
e
r
s
o
n
3
On a trip to place flowers on his parents’ graves, I asked him if he had gone to church on Sunday.
“Yes,” was his quick, proud response. “I served the people.” He had passed the communion and col-
lection plates.
Ministry Outside the Church Building
A critical part of your ministry to adults with disabilities is to have a vision of ministry that goes beyond
the church building. There are a variety of opportunities that will enhance your in-house ministry and
broaden your outreach within the community.
First, provide ministry where these adults live and work. You can visit their residential facility or
take a meal to the group home; take trips to movies or sporting events with others from the church.
You can make a brief visit to their workplace, but be sure to check protocol in advance.
Second, volunteer in community organizations serving people with disabilities. Special Olympics
is a wonderful secular organization I recommend. You can allow other organizations to use church fa-
cilities, as well as provide social events for the community. I know churches that organize dance in-
struction, art classes, and sports teams.
The Jesus Prom has become popular in communities across the country. The concept is based on
Luke 14, where Jesus shares the story of a host who gave a party and no one came; so, he invited people
with disabilities.
1
One staff member in charge of disability ministry in a large church noticed that the
members with disabilities did not attend their school proms. This leader set about organizing a prom
just for them. The community donated food, tuxedos, evening dresses, hair styling, transportation,
and money. From its meager beginnings, this event has now grown to nearly 2,000 attendees.
Finally, it might be that the adult with a disability cannot leave their home. If that is the case, find
a volunteer to provide the person with a Bible lesson and some music on Sundays. This can minister
to caregivers as well by providing some much-needed respite.
One-on-One Ministry
Probably the single most important factor in the spiritual development of an adult with a develop-
mental disability is having a mentor. The person needs a caring person to guide them on their spiritual
journey. If the term “mentor” seems too formal, use “friend.”
Key factors for successful mentoring relationships include a welcoming congregation, a supportive
family, a lead mentor, additional mentors, and a friendly relationship amongst all. The lead mentor is the
person who understands what is going on and will involve others as necessary. Any mentoring situation
should be as natural as possible. The right chemistry is essential between the mentor and their proté.
In my years of supporting my friends with disabilities, I have learned that the positive results of
mentoring don’t happen immediately. Trust takes time. Trust is built on consistency.
The following steps will assist with building solid mentoring relationships:
Step One: Learn about your friend’s environment. Where does he live? Does he have a job? What
is his support system? Is his family involved? What is his mode of transportation? What is his
daily routine? What does he do when not at work? Does he have a hobby?
Step Two: Learn about their diagnosis. Remember, a diagnosis happens to a real person with a
name and a story. Online information and a chat with a family member or caseworker will give
M
i
n
i
s
te
r
i
n
g
to
A
d
u
l
ts
a
n
d
th
e
E
l
d
e
r
l
y
w
i
th
Di
s
a
b
i
l
i
ti
e
s
, b
y
Dr. J
i
m P
i
e
r
s
o
n
4
you enough information to help the relationship develop. For example, if your friend has
autism, it is helpful to know that he might not look you in the eye or not enjoy being touched.
You will begin to understand more about their specific disability as you get to know your friend.
Step Three: Give your friend insight into your world. Who is your favorite sports team? Where
do you work? What is the make-up of your family? What is your story? What is your hobby?
Step Four: Learn to communicate with him. In most cases it won’t be difficult. In the case of a
friend whose speech is not clear, do not say or act as if you understand if you do not. There’s no
need to apologize if you do not understand. Just say, “Please say that again.” You might need to
ask your friend to write things down. As you get to know your friend communication will get
easier.
Step Five: Find common interests. It might be sports. It might be church. It could be movies.
Maybe it’s playing cards or a popular table game. You might teach each other a new game. The
point is to land on something that the two of you enjoy.
Step Six: Make the relationship mutual and honest. As in any good relationship, it should not
be one-sided or condescending. The mentor should not make all the suggestions of what to do,
where to go, or pick up the tab. Pre-determining boundaries on how often you meet and the
length of time of the meetings will prevent hurt feelings.
Step Seven: Relax and enjoy your friend as you grow in friendship and faith.
The Second Group of Adults to Include in Ministry
Now, let’s look at the second group of adults we need to provide ministry with in our churches. “With”
is an important word. Most of these people will be people who have attended church alongside you
and have had their lives altered as a result of a disease, a disorder or an injury. When you read in the
church paper that a member has had a stroke, it is time to consider how the church can serve the person
and their family.
Awareness of the most common triggers in adult-onset disability is a good place to start. The fol-
lowing list covers the most common ones that adults will face:
Cardio-vascular disorders of heart disease and stroke often lead to difficulty with motor skills.
Dementia describes a group of symptoms that result when brain functions change. The most
familiar one is Alzheimer’s disease.
Injuries threaten the well-being of many Americans over 65 years of age. The major causes of
injuries are elder abuse and maltreatment. Falls occur about once a year in up to 40 percent
of people over 65; these falls may result in Spinal Cord Injury. People over 75 years of age are
at risk for Traumatic Brain Injury.
Mental Disorders happen to almost 25 percent of the population over 18 years of age. The
common ones are Depressive Disorders, Bipolar Disorder and Schizophrenia, and Anxiety
Disorders (panic disorder, obsessive-compulsive disorder, post-traumatic stress disorder, gen-
eralized anxiety disorder, and phobias).
M
i
n
i
s
te
r
i
n
g
to
A
d
u
l
ts
a
n
d
th
e
E
l
d
e
r
l
y
w
i
th
Di
s
a
b
i
l
i
ti
e
s
, b
y
Dr. J
i
m P
i
e
r
s
o
n
5
Some others are Multiple sclerosis (symptoms appear between the ages of 20 and 40);
Osteoporosis (a million and a half people fracture bones because of osteoporosis, es-
pecially hips); Parkinson’s Disease (as the symptoms become more pronounced pa-
tients may have difficulty walking, talking, and doing simple tasks); and Post-polio
syndrome (25 to 40 percent of adults experience symptoms years after having po-
liomyelitis as children).
Our aging population is another factor to consider for future ministry. According to the Centers
for Disease Control, the number of older Americans will have more than doubled to 70 million or one
in every five Americans by 2030.
2
Coming Alongside
So what are the specific needs of those with adult-onset disability and how can we minister to them?
There will probably not be a need to start a special Bible study class. For most, continuing to attend
their usual class and worship service will not be a problem, unless there are transportation needs or
there is a special health issue. If the person has served in the church, provide supports that will allow
them to continue in that service.
Additionally, your church might consider adding resources to the church library that provide in-
formation on dealing with a new lifestyle, coping with a disability, where to go for help, and a biblical
perspective on disability. Develop a team in the church to do odd jobs for members who can no longer
complete these tasks for themselves. These are great service projects for youth groups.
Be Sensitive to Their Needs
Probably the most important service church leadership can provide for their members with an adult-
onset disability is to inform other members on how to be sensitive. Think about how the disability has
altered their lives and ability to carry out their previous tasks. The following ideas will provide a start.
1. Make the building and grounds of the church user-friendly. Disabilities which impact mo-
bility are usually easier to recognize. Accommodating them is a matter of accessibility.
Survey your grounds and buildings. Can a person in a wheelchair or with a walker or cane
maneuver with no obstacles? If not, what modifications can you make? Check local build-
ing codes to see if there is a specific set of rules for accessibility.
2. People with sensory disabilities may be accommodated by providing auditory and visual
aids. Advise greeters and other church staff to be observant. Generally, for persons with
visual impairments, provide large print and Braille materials. Provide amplification or
interpreters for persons who are hearing impaired. Learn as much as you can about spe-
cific needs.
3. Be aware of transportation needs. Provide it, organize it, or arrange it through a local
provider. Most communities with a public transportation system will have some type
of service that might be utilized. Do not park in spaces designated for persons with
disabilities.
M
i
n
i
s
te
r
i
n
g
to
A
d
u
l
ts
a
n
d
th
e
E
l
d
e
r
l
y
w
i
th
Di
s
a
b
i
l
i
ti
e
s
, b
y
Dr. J
i
m P
i
e
r
s
o
n
6
4. Share the same social courtesies you would share with anyone. Offer your hand to shake.
The person without a right hand will offer his left, touch your shoulder, or do whatever he
does when greeting others.
5. Do not hesitate to ask the person about his disability. Show genuine interest. If he shares
personal information, keep it confidential.
6. Know the services available in your community and share them with the member who has
a newly-acquired disability.
7. Keep the person involved in the life of the church. Encourage people to maintain their former
patterns of friendship with the person. Do not allow them to become isolated.
8. Visit a person who cannot leave their house because of an illness or a disability. Get other
members to follow your example.
9. Include members with disabilities in your activities—attending a Bible study, going to the
mall, walking, or enjoying a movie.
10. Encourage these members to continue to share their talents and worldviews.
11. Do not ask the person to read in a group or participate without asking first.
Conclusion
Whether an adult has had a disability since birth, or since having a stroke, the goal is to guide the
person to an active role in a body of believers. I have a friend who illustrates this goal.
When he was 20, Corey, a fine man with autism, became a member of our church. After attending
a special class for awhile, he started to grow. He needed more stimulation in his Bible study. The solu-
tion was to attend an age-appropriate class. Corey chose the college class. The teachers were responsive
to him and he enjoyed the companionship of his peers. He flourished.
Worship time is the highlight of Corey’s Sunday experience. He enjoys the sermons and often sits
on the pew with the minister. His singing inspires the worship leader. Even though he is sometimes a
note or two ahead of everyone, his enthusiastic approach gives her a boost. Unless there is a family out-
ing or an out-of-town car race, Corey is at church. He is a beloved member.
Most often I have guided his participation in church activities. However, recently the children’s de-
partment made a concerted effort to recruit volunteers for their work. Corey, without any encourage-
ment from me, heard the plea and volunteered. I found this out after the fact.
One morning I walked by the children’s area and, to my delightful surprise, Corey was working.
Watching him interact with the children was refreshing. He has found his niche in our church and his
faith in our Lord is growing. I can’t help but wonder what this involved member will do next. His autism
is no longer a factor. Corey is an active part of his church where he is accepted and serves.
M
i
n
i
s
te
r
i
n
g
to
A
d
u
l
ts
a
n
d
th
e
E
l
d
e
r
l
y
w
i
th
Di
s
a
b
i
l
i
ti
e
s
, b
y
Dr. J
i
m P
i
e
r
s
o
n
7
NOTES
1. Luke 14:12-24
2. http://www.cdc.gov/ncipc/olderadults.htm
M
i
n
i
s
te
r
i
n
g
to
A
d
u
l
ts
a
n
d
th
e
E
l
d
e
r
l
y
w
i
th
Di
s
a
b
i
l
i
ti
e
s
, b
y
Dr. J
i
m P
i
e
r
s
o
n
8
Dr. Jim Pierson has been meeting the spiritual needs of people with disabilities for more than four decades.
His education in speech pathology and special education, his work with a children’s rehabilitation center
and with adults in residential programs, and authorship of five books about disability ministry establish
his reputation. Jim was the 2003 recipient of the Henri Nouwen Award presented by the Religious and Spir-
ituality Division of the American Association on Persons with Intellectual Disabilities. He is the president
emeritus of CCFH Ministries.
1
Trading Control for Gods Grace
By Doug Mazza
Exhausted, I tried to find a comfortable position in the chair that had been my primary residence for
three days. The heart monitor nearly drove me insane as the green digits indicated a heart rate in excess
of 180 beats per minute. My son Ryan, who had yet to reach his third birthday, was fighting for every
breath following his 10
th
brain and skull surgery brought on by a rare chromosomal imperfection that
had deformed his skull, pushed his eyes nearly out of their sockets and disrupted his upper respiratory
system even before he was born.
For a moment, I concentrated on what it felt like to be hugged by Ryan. Despite his deformities,
his brain was developed to its full size and he had a normal potential intellect for his age. So somehow,
through all of the pain and suffering, surgeries and seizures, this little boy had acquired a sweet per-
sonality. In spite of his developmental delays, Ryan would race on his hands and knees to greet me
when I’d get home and call his name. He always stretched out his somewhat deformed jaw into the
warmest most grateful smile I had ever experienced. But that night in the hospital, it all seemed to be
coming to an end. The doctor’s words three days earlier kept ringing in my ears. With a hint of tears in
his eyes, he and a nurse had sat me down in the children’s playroom, locked the door and said, “There
comes a time when medical science has done all it can do and for Ryan I’m afraid that time is now. I
don’t see how he can live longer than two or three more days.”
So there I sat with a few family members, living between the resignation of impending loss and the
hope of a miracle. I knew that my pleadings with God sat on a thin spiritual resume. I believed in God.
I even believed that Jesus Christ was the Son of God. I just didn’t know what that had to do with me.
Certainly, I didn’t have a personal relationship with him—nothing that could be considered intimate.
I believed that God surrounded the world and did with each day whatever it was he mystically decided.
Like lots of people, there were times when I called God into my presence—especially when I was in a
tough spot—so I could ask something of him or, maybe stated more correctly, try to negotiate with
him. And he seemed like a pretty reasonable God to me, usually willing to do things my way. Just the
kind of God many of us want… available on demand!
You see, I was a guy who had to be in control. I was on the corporate fast track, knocking off pro-
motions at will, stepping ahead of my peers, and doing it all years ahead of my time. I received a lot of
feedback from the world affirming that my strength was all I needed. But Ryan had completely thrown
my life compass off kilter. Like every situation I encountered, I had put myself in charge of his recovery,
which was turning out to be the biggest failure of my life. I had exhausted every effort and had no other
place to turn with this enormous painful problem. My pleading prayers were going unanswered, my
ability to manage, shattered. What possible purpose could the life of this child have? I had been offered
all of the bumper sticker wisdom and pop Christianity phrases from all manner of people who, frankly,
just didn’t know what to say. So far, the only role I could see us playing for good was that other people
were grateful they weren’t us!
Three days after my meeting with the doctor Ryan was clearly struggling. I couldn’t even imagine
where the strength to keep up the fight was coming from. I was alone with him about 4:00 that after-
noon. He had been in a coma, completely non-responsive for about 12 hours when he began to stir. I
rose from my chair and leaned forward. He rolled his head toward me, struggled to open his eyes and
recognized me as our eyes met. His eyes penetrated me in a way that has never happened before or since
and I will never forget it. He reached for me with what strength he had left, but a soft cloth was wrapped
around his wrist and pinned to the sheet, protecting the arterial cutdown, which was feeding medicine
into his little body. A look came over his face and I knew exactly what he was thinking: Daddy, help me!
Help me! You’re the one who said I would be ok. You’re the one I trust; I don’t know any power above you.
And my heart broke. It broke because in that moment I knew I had never actually had such author-
ity, and now I had only moments to make things right. I got down close to my son’s ear and for the
very first time, I said to him, “Ryan, I can’t help you anymore. Jesus Christ is going to take care of you
now.” With that Ryan slipped back into his deep sleep, and I slipped down onto my knees on the floor
clinging to the side of the bed, in a complete emotional collapse.
I now know there were a couple of reasons for that collapse. First, there was the obvious emotion
of the moment, which anyone can understand. But there was another reason for that collapse. Have
you ever carried something that was unbearably heavy as far as you could possibly go—maybe just a
little further than you thought you could—and then released it? If you have, then you know the collapse
that follows. I had carried the full weight of being in charge of Ryan from the moment he was born.
That day in the hospital, for the first time, I had unwittingly, in faith, released the most important
thing in my life to the living Christ. I could feel the weight being lifted off my shoulders. I believe that
in that moment of crying out to the Son of God, Jesus Christ stepped forward and lifted that sinful
cross off my shoulders and took it upon his. Years later after reliving that moment over and over again,
I believe that Christ communicated the equivalent of, “I was wondering when you were going to invite me
into this problem, when you were going to turn to me and ask me to take control.” And by his enormous grace,
he did, and I could feel it. Obviously, I was still my son’s father, but I had finally let God take his rightful
place as the one in charge.
In that moment, I learned that God is not going to “elbow” his way into our lives. He wants to be
invited in. The one thing God will certainly allow you to be in control of is what you are going to do
with his Son, Jesus Christ. Accept him or reject him? Invite him in or send him away? His grace requires
no secret handshake or classroom time. His grace is immediately available upon your surrender to him.
He’ll meet you where you are, do the heavy lifting and, with your willingness to receive him as your
Lord, provide the mentorship in your life to develop a deep personal relationship with him. That step?
Well, that step is called faith! Faith requires release. God does not want half of your problem or half of
your prayer. Sometimes we hang on to our issues, fears, problems and needs, as though they were a fa-
vorite worn out old shoe. Jesus wants a relationship with you. If you give him all of you, he delights in
giving you all of himself. He is saying, “Let go.”
T
r
a
d
i
n
g
C
o
n
tr
o
l
f
o
r
G
o
d
's
G
r
a
c
e
, b
y
Do
u
g
M
a
z
z
a
2
As I sat on the floor at the hospital, nurses came to me and urged me to go home since they ex-
pected Ryan to make it through the night. I left the hospital that day a very different man.
Once at home, our family all fell into an exhaustion-induced sleep. At about 10:00 pm the
phone rang. As I forced myself awake, I stared at the phone, unwilling to answer it and audibly re-
sponding, “No!to each of five rings since I knew who was calling. The intensive care nurse said,
“I don’t know exactly how to explain this, but we moved Ryans arterial cutdown from his wrist to
his ankle. I was doing some paperwork and heard a noise behind me. He was standing up on the
bed smiling at me!”
How could that be?! Hours earlier, he was literally on his deathbed. Now, as I arrived at the hos-
pital, I found Ryan, exhausted from his ordeal but lucid and awake. After all the prayers, all the plead-
ing with God, I wish I could tell you that I immediately stopped and thanked God for his miracle.
I didn’t. I was relieved, glad for our good fortune and ready to get to the next step of Ryan’s recovery.
But that moment of releasing Ryan to Christ combined with the later image of him awake and pain
free haunted me for a long time without ceasing. I knew something very important had happened.
But friends, faith is a journey, and God is patient.
In time, I returned to church to see what God had to say about such things. I sought God’s Word
as a stranded man seeks water in the desert, not sure he’ll find it but hopeful with every desperate
step. And God did not disappoint! On the journey, I found this in Matthew 11:28-30, “Come to me,
all you who are weary and burdened, and I will give you rest. Take my yoke upon you and learn from
me, for I am gentle and humble in heart, and you will find rest for your souls. For my yoke is easy and
my burden is light.”
That was strength for another weary step. On the journey, I learned the meaning and value of a
personal relationship with the Living Christ; the Christ that defeated death through his resurrection;
the Christ that desires a relationship with me (and you) on a personal level; the Christ that walked
across the room and lifted the cross of despair off of my shoulders in Ryan’s hospital room that night.
My questions were simple, “Lord, I want to know what the truth is about you. If you are who you say
you are, tell me plainly. And if you are a God of love, how do I get close to you?” And then one day,
there it was, direct, crisp and definitive! BAM! Christ had anticipated my questions, knowing they
are the questions of all humanity. The words exploded off the page, as though they were three-dimen-
sional. Jesus said, “I am the way and the truth and the life. No one comes to the Father except through
me. If you really knew me, you would know my Father as well” (John 14:6-7a).
In God’s time and with his constant faithfulness and patience, the Lord drew me to himself, and
I gave him control. He put his arm around me and proved to me that there is only one source of
power... and it’s not in my flesh. Was I in charge in corporate America? No, I had responsibility, but
it was only by God’s authority.
Any power that we attain by our own works is doomed to be hollow and empty, because it’s built
on shifting sand. We are all differently-abled. Flawed—yet loved by a merciful God. The only real power
we’ll ever have is offered as a gift and is free for the asking from Jesus Christ, who died on the cross for
the purpose of accepting our sins and burdens.
Allow me to quote from our inspiration at the Joni and Friends International Disability Center,
Joni Eareckson Tada. Someone asked Joni, “How could you trust a God who would leave you in a wheel-
chair for 30 years?” She replied, “I could not trust a God who didn’t know what suffering was, who
didn’t know what I was going through. You couldn’t convince me to trust in him... But that he wrote
the book on suffering... and he called it Christ... relieves me. Because I look at the cross and I see God,
beaten, bloody, dried sweat, hammering hatred, flies buzzing... I see a God who understands and em-
T
r
a
d
i
n
g
C
o
n
tr
o
l
f
o
r
G
o
d
's
G
r
a
c
e
, b
y
Do
u
g
M
a
z
z
a
3
pathizes. He is worthy of my confidence, he is worthy of my trust and he is worthy of my faith.”
1
When we refuse to turn our burdens over to God completely, we don’t put him in charge—we dis-
honor him. We’re telling Christ that he died in vain. Instead, we must set aside our earthly pride and
say, “Lord I turn this problem, my disability, my burden over to you.” Only then do we glorify God and
allow him to show us the way through. We will become empowered by the Holy Spirit, the same awe-
some power whose resumé includes creating the universe. You too can be empowered by a living, loving
God that was willing to send his Son, to endure as much pain and suffering as this world has to offer.
Christ demonstrated in the most graphic way that he understands our pain, and he also demonstrated
the ultimate victory! He promises to show us the way out of all our troubles if we turn them over to
him, yield control and seek his will in all situations.
In 1 Corinthians 10:13 we read, “God is faithful; he will not let you be tempted beyond what you
can bear. But when you are tempted, he will also provide a way out so that you can stand up under it.”
When you trust him completely to bring you through, that light you see at the end of the tunnel is not
a train coming at you; it’s Romans 8:28, where God tells us that, “…in all things God works for the
good of those who love Him, who have been called according to his purpose.” I’ve discovered that all
of God’s promises are available to all of God’s people all the time. And, in the end, he promises us vic-
tory, over death forever. Now that’s a contract!
Every day I give thanks to the Lord for my son Ryan, who continues to be a blessing in my life. For
reasons only the Lord knows and will someday reveal to me, as of this writing Ryan has celebrated his
34th birthday! He’s barely five feet tall, weighs just 100 pounds and he’s blind. Ryan doesn’t speak, is
fed through a tube and cannot sit up without being braced in his wheelchair. But he knows my voice
and listens carefully when we read the Word of the Lord. And smiles the whole time I’m reading. I’m
never closer to God than when I am with Ryan.
God answered my angry prayer of, “Why Lord, why? Why the pain? Why the suffering in this little
child?” He can handle our questions; he has broad shoulders. For me, God’s answer has become, “I love
your son, even more than you do. He is my child, too. I created him. I have cried with you when you
sought my comfort. If you have faith in me, I will use Ryan’s life as your inspiration and your body to
work for my special purpose, for in Ryan I see only beauty and innocence made for eternity, not the
broken shell that you mourn.”
Christ did not seek out the healthy, the beautiful, or the physically talented. Christ sought out the
disabled. He constantly hung out with the crippled, the blind, and the disenfranchised of all types. He
touched the untouchables and blessed those that ministered to them.
Before entering Jerusalem for what Jesus knew would be the last time, he gazed out over the city
and wept. He wept for an imperfect humanity. He wept because what he saw was a condemned world
that did not include a single person without an imperfection, without some kind of disability. And he
wept because he loved them all! He knew that he would go to the cross to have heaped upon him the
full burden of our disability and imperfection, and to leave behind the promise that through our faith
in him we can all achieve eternal healing! And that message from the Lord has given me comfort in
the life of a child who I thought had no purpose.
While Jesus, the very Son of God, was on Earth, he gave us clear and direct instructions in Luke 14
regarding evangelizing people affected by disability. In Luke 14:21-32 he tells us to,
Go out quickly into the streets and the alleys of the town and bring in the poor, the crippled,
the blind, and the lame. Go out to the roads and country lanes and make them come, in so that
my house will be full!
T
r
a
d
i
n
g
C
o
n
tr
o
l
f
o
r
G
o
d
's
G
r
a
c
e
, b
y
Do
u
g
M
a
z
z
a
4
Christ said his Father’s house is not full without the praise music that is the hum of a wheelchair,
or the tapping of the red tip cane, or the singing of the developmentally-disabled voice. So there is
more to be done. At Joni and Friends it’s why we wake up in the morning—to acknowledge that God is
indeed sovereign, that all of us regardless of our disability are made in his image exactly as he intended.
Our mission at Joni and Friends is “To communicate the Gospel and equip Christ-honoring churches
worldwide and to evangelize and disciple people affected by disability.” Is God calling you to disability
ministry? Maybe your part is to simply invite a person with a disability to church. Then you will be
able to say, “Yes Lord, I did my part to ensure your house was full!”
NOTE
1. This statement was conceived in a conversation between Joni Eareckson Tada and Dr. Peter Kreeft whose insights on the cross of Christ helped shape
Joni’s early thinking.
T
r
a
d
i
n
g
C
o
n
tr
o
l
f
o
r
G
o
d
's
G
r
a
c
e
, b
y
Do
u
g
M
a
z
z
a
5
Doug Mazza, President and Chief Operating Officer of Joni and Friends, has overseen an explosive era of
growth in ministry and program expansion since coming to Joni and Friends in 1999. Applying his award-
winning expertise and skills in corporate leadership, after serving as senior American executive for American
Suzuki Motor Corporation and Hyundai Motor America, Doug has taken the vision of Joni Eareckson Tada
and helped create all that Joni and Friends is today—the authoritative voice on Christian outreach to the
world’s 660 million people with disabilities and their families. Ministering to his severely disabled son,
Ryan, for more than 30 years, Doug Mazza brings a warm and personal perspective to the development of
every program at Joni and Friends.
1
Caregiving: A Cause for Christ
By Ken Tada
One of the things Ken Tada is known for is sharing his faith with strangers. When he and Joni travel, Ken’s pockets
are filled with salvation tracts, and when delays arise, he is certain that the Lord’s eternal purposes are at work in
the people they meet along the way. In this article from Table Talk Magazine (October 2011), you’ll see how Ken’s
heart as a soul winner sprang from his vow to be Christ to his wife, Joni, and to everyone he meets.
Lots of people agree: I have a beautiful wife. With her ready smile and engaging personality, most people
hardly notice her wheelchair. And when they learn that she writes books, travels extensively, and leads
a dynamic ministry to people with disabilities around the globe, they’re amazed. To most of the world,
Joni Eareckson Tada doesn’t seem disabled at all.
After almost 45 years of quadriplegia, Joni makes having hands and feet that don’t work look easy.
I love that about my wife. I like that she doesn’t make a big deal about her spinal cord injury, but simply
moves forward into life leaning hard on the grace of God. Everybody says the same: Joni seems “nor-
mal;” someone who is not defined by her disability.
I wish it were that simple. Actually, Joni does, too. Most people have no idea what it takes for my
wife to simply get up in the morning. It’s nearly a two-hour routine that includes giving her extensive
range-of-motion exercises, a bed bath, toileting routines, putting on her leg bag, strapping on a corset
and getting her dressed, sitting her up in her wheelchair, brushing her teeth, fixing her hair and face
(not to mention fixing breakfast). And I’ve just described the abridged version! Plus, don’t assume that
at night Joni simply jumps out of her wheelchair and into bed—it’s virtually the same routine as in the
morning, except in reverse. Day in and day out, 365 days a year, it never varies—unless Joni becomes ill;
then it’s even more intensive.
Caring for Joni is something I gladly signed up to do almost 30 years ago when we took our vows
on our wedding day. In sickness and in health, for better or for worse, I promised to cherish my wife
and take care of her to the best of my ability. In the years that followed, never once have I regretted my
decision to marry Joni with her quadriplegia—even in the midst of the many nightmarish ordeals related
to her health and the dreary day-to-day routines. I love my wife with a love that is anchored in Jesus
Christ. But that doesn’t make it easy.
All relationships have their challenges, but when you add a chronic disability, the challenges can
seem overwhelming. You could be a son caring for your father with Alzheimer’s, or a single mother
coping with your teenaged son with autism. You could be the father to a little boy with muscular dys-
trophy, or the wife of a husband who has suffered a stroke. Disability has a way of testing even the best
of relationships. Daily routines that never vary… social isolation… financial pressures… unmet expec-
tations… and a life that is extremely atypical from most people. Without Christ firmly in the center of
the suffering, a caretaker can crack under the pressure of loneliness, guilt, and despair. Little wonder
that the divorce rate in families affected by disability is nearly 80 percent, according to some estimates.
I have witnessed the heartbreaking reality of that statistic. Every summer Joni and I participate in
our Joni and Friends’ Family Retreats where we have the chance to meet hundreds of families affected
by disability who come for the fun, fellowship, networking, times of prayer and Bible study (next sum-
mer Joni and Friends will hold 25 Retreats across the U.S. and 15 in developing nations). But at each
Family Retreat, I’m always amazed at the numbers of single mothers who attend with their disabled
children. Where are the fathers? Again, statistics show it’s usually Dad who bails out, even in the face
of Isaiah 58:7 that says never to “turn away from your own flesh and blood.” Ironically, almost all of these
single mothers never seem to blame their disabled child for their misfortune. Instead, they describe
that child as their “biggest blessing.”
And after years of caring for my wife, I would say the same about Joni. She is my biggest blessing—
especially as I was helping her through her recent battle against stage III breast cancer. The prospect of
losing my wife to such a dreaded disease made all the “baggage” related to her disability seem minor.
The major thing was now rescuing her life! Thankfully, God gave me the grace to put my caregiving
skills into overdrive as I stood by my wife through her mammogram, biopsy, her mastectomy, recovery
and chemotherapy. I was the companion at her side for countless hospital visits and oncology appoint-
ments, and her counselor as we sought out second and third opinions.
Lots of people thought God was “laying too much” on Joni, a quadriplegic in her 60’s who also
deals with chronic pain. Privately, I sometimes wondered if it all might not crush me. But once again,
by the grace of God, Joni was able to make even cancer look easy. And for me? If anything, the long
battle against her cancer strengthened my faith in Jesus Christ, as well as deepened my love for my wife.
Together, through every PET scan and chemo infusion, Joni and I were living examples of Psalm 79:8,
… may your mercy come quickly to meet us, for we are in desperate need.”
And perhaps that’s the secret to good caregiving: a constant awareness of one’s desperate need of
Jesus Christ; a steady reliance on Him. Day in, day out, like breathing in and breathing out. The fact is,
when I’m serving Joni I’m serving Christ, for Colossians 3:23 reminds every caregiver, no matter how
difficult or demanding the routines, Whatever you do, work at it with all your heart, as working for the Lord,
not for human masters.” When my focus is on Jesus Christ, caregiving may feel extremely tiring, but the
work doesn’t have to be tiresome—it’s for him. I may get weary, but life doesn’t have to be wearisome—
again, it’s all for him and his glory. When I minister to Joni’s needs, I am serving the Savior. That fact
is echoed in Matthew 25:33-42 where Jesus says if we feed the hungry, give drink to the thirsty, and
clothe those in need, we are inasmuch doing it for him.
Our Enemy is Not the Disability
Other secrets to being a good caregiver? The enemy is not my wife’s disability (or even my wife when we
disagree on things)! The enemy is Satan. I’m constantly aware Joni and I are in the midst of a spiritual
battle. The devil already hates Christian marriage, and if a wife or a husband has a disability, Satan no
C
a
r
e
g
i
v
i
n
g
: A
C
a
u
s
e
f
o
r
C
h
r
i
s
t, b
y
Ke
n
T
a
d
a
2
doubt feels he’s got the edge. But he’s wrong! Second, Corinthians 12:9 assures us that God’s power
has the edge when we are weak. It’s weak and needy people who are usually more aware of how much
they need the Lord. We also need each other—I’m not too proud to ask for help. Thank God for the
girls who chip in to help Joni, whether at home or at the office! We couldn’t make it without them. Be-
sides, to ask for help keeps me humble (and humility keeps the devil at bay).
Another secret to good caregiving is the need to take breaks and get exercise. While Joni was going
through chemotherapy last year, I was so grateful that her sister flew out to help us. Kathy was able to
give me little breaks in the routine so I could go work out—exercise really gets the endorphins flowing,
clears the head, and cultivates discipline. Even a walk around the block brightened my spirits.
I suppose my final secret to enjoying my role as a caregiver involves friends. Throughout our mar-
riage, Joni has always been supportive of my friendships with several key Christian men who hold me
accountable. One friend lives in Oregon, but we pray and study Christian books together over the
phone. Another friend lives nearby and he’s always ready to get together for lunch, play a game of Gin
Rummy, or invite me to the high desert for an afternoon in the fields with his bird dogs. Always, we’re
mindful to keep Christ in our conversation, for my friends and I know that the King (as we call the
Lord) is the key to genuinely close friendships between men.
One more thing. I have learned the secret of “praying without ceasing.” Caregiving can push you and
your loved one into some pretty tight and uncomfortable places. That should be the signal to pray.
Whenever nerves are frazzled or we’re ready to throw in the towel, one of us will invariably say, “Stop
everything. We both know we’re in trouble. Let’s stop and pray.” Before long, our spirits feel brighter.
The air seems clearer and the atmosphere lighter. The burden has lifted and whatever was harassing
us just doesn’t feel as important.
Caring for someone like my wife epitomizes the heart of Jesus Himself who said, “For even the Son of
Man did not come to be served, but to serve, and to give his life as a ransom for many” (Mark 10:45). It is my joy to
give my life in service to Christ by caring for Joni. For no greater love does a man have for another, than
when he lays his life down for that person. And sometimes that person just may be your disabled wife.
C
a
r
e
g
i
v
i
n
g
: A
C
a
u
s
e
f
o
r
C
h
r
i
s
t, b
y
Ke
n
T
a
d
a
3
Ken Tada taught Government and US History at John Burroughs High School in Burbank, California,
until he retired in 2003. He serves on the Board of Directors for the Joni and Friends International Disability
Center and he and his wife, Joni, lead teams of disability ministry workers across the country providing
practical services and spiritual help to people with disabilities and their families. Ken and Joni have been
married since 1982 and reside in Calabasas, California.
1
Kingdom Matters in Disability
Revised by Joni Eareckson Tada
The material in this paper on the role of the kingdom and the church was originally researched and presented by
Paige Benton Brown at the Presbyterian Church of America’s Women’s Conference in 2006.
You will often hear me say that disability ministry is all about “advancing the kingdom of Christ.” I
often call those who serve in disability ministry “kingdom-minded Christians.” What do I mean by
“kingdom” work and why is serving among those with disabilities a kingdom initiative? My friend in
the Presbyterian Church of America, Paige Benton Brown, has helped clarify the distinctions between
God’s kingdom and his church. In this paper, I have used her insights as a springboard for understand-
ing the role of disability ministry as it relates to the church and the kingdom. Through this, I trust
you’ll see how disability ministry reflects the compassion of the Savior, perhaps in a way that no other
ministry can.
A glance through the New Testament will reveal that the church and the kingdom are not the same
thing. The church is made up of people—followers of Jesus who have been impacted by the preaching
of the Gospel of the kingdom. The church is the elect of the Father, the redeemed of the Son, and the
renewed by the Spirit. In Matthew 16:18, Jesus calls us his church. The church has limited responsibil-
ities outlined in the epistles—it exists to proclaim the Gospel and to call and disciple, equip and train
people in the ministry of God’s Word. The church helps people worship God according to the Word,
encouraging them to love Jesus Christ as they should.
A disability ministry within a church does the same. We call, or evangelize, people with disabilities
and disciple them in the Word; we make certain the preaching of the Word is accessible to them, and
that they have an opportunity to venerate God freely in a church worship setting. We help people with
disabilities grasp what the Word of God means and the difference it should make in their lives. We men-
tor and encourage them to grow in the grace and knowledge of God, helping them discover their spiritual
gifts, and their role of service and leadership within the church. But that’s not our only role in disability
ministry. We have a kingdom role—all people with disabilities in the church have a kingdom role.
Unlike the church, the kingdom is not a group of people. It is a reign, the rule of Jesus, our Lord.
When Christ came to earth, he set up his kingdom. Yes, he set it up in the hearts of those who would
believe in him, but it is much more than that. When Christ set up his kingdom, he did it in a global
sense as well.
1
“The secret of the presence of the kingdom lies in Jesus’ victory over Satan, in his unlim-
ited miraculous power, his unrestricted authority to preach the Gospel, in his pronouncements of
blessedness and the bestowal of salvation upon his people,” writes Dr. Herman Ridderbos.
2
And so,
kingdom work is “pushing out into the world” the effects of the Gospel, reclaiming earth as rightfully
the Lord’s. Kingdom work is mainly a battle against our adversary, the devil, who, when the Fall occurred
in the Garden, committed high treason against the rightful King by usurping God’s authority and set-
ting up his own rival kingdom here on earth. He thinks this earth is his, but he’s wrong. He’s only an
evil tenant and his hostility is always increasing. When Christ came to set up his kingdom on earth, it
meant Satan’s days were numbered. This unlawful usurper only has a short time before he’s cast into
the lake of fire. And in this interim between the First Advent (when Jesus Christ set up his kingdom)
and his Second Coming (when it will be completed), we live in tension—we’ve been freed from the power
of sin, but not its presence; the kingdom has come, but it’s yet to be fulfilled. It’s a struggle, a tension,
a war, and quite a battle.
3
Christ has come, but the world has yet to feel the full impact. Paige Benton Brown uses a World
War II analogy to illustrate this. The first coming of Christ was like D-Day. When D-Day occurred, it
was the turning point of the war; everyone knew it was over for Adolf Hitler. Yet with victory assured,
it was still a struggle as the Allies pushed deeper into the darkness of Nazi Europe. Everybody knew
Hitler’s days were numbered as the Allies advanced, taking back territory the tyrant thought was right-
fully his; but it was still a fight. People died. People got injured. The Second Coming of Christ is like
VE-Day; the day when victory is finally secured. Satan will be cast out and Christ will sit on the throne
of earth restored. Until that time, you and I are pushing deep into the darkness of Satan’s territory.
We are making real in the world what has been accomplished at the cross. We are mopping up until Je-
sus comes back and reconciles all things to himself. All enemies will be under his feet. The whole uni-
verse will rejoice as Christ will rule as King of Kings and Lord of Lords.
Kingdom work is planting firmly in the soil of the world, banners of justice, peace, righteousness,
joy, truth, beauty, and every other kingdom characteristic. While the church restrains and restricts itself
to training and holding people to the Word, the kingdom is not limited. For example, there are limi-
tations for Christian women in the church
4
—Scripture makes it clear that women are not to assume
the office of pastor.
5
However, there are unlimited roles for Christian women in the kingdom—women
represent Christ as leaders in hospitals, corporations, universities, courtrooms, school boards or in
government. The parameters of the kingdom are everywhere. There are limitations for the church in
the world, but none on the kingdom of God.
This makes the church a base camp for the kingdom; a training camp where Christians are equipped
to go out into the world, make Christ real, and reclaim territory under the banner of Christ. No area
of society should go unchallenged for the Lordship of Christ—whether the arts, media, education, med-
icine, business, or politics.
Challenging the World of Disability for Christs Sake
Allow me to use Joni and Friends as an example. Our ministry works alongside the church to evangelize
and disciple people with disabilities, train them in the Word, and teach them to be worshipers of God.
What is kingdom work for Joni and Friends? It’s contending for ethical stem cell research and manu-
facturing Regency Pediatric wheelchairs in prisons. It’s writing articles against physician-assisted suicide
and advocating against state budget cuts that endanger needed social services for people with disabil-
ities. It’s contending for the rights of the intellectually-disabled in Thailand who are chained to the
walls of mental institutions. It’s appearing on Larry King Live and recording awareness-raising public
service announcements. It’s our Policy Center at the Christian Institute on Disability. Even our Family
Ki
n
g
d
o
m M
a
tte
r
s
i
n
Di
s
a
b
i
l
i
ty
, b
y
J
o
n
i
E
a
r
e
c
k
s
o
n
T
a
d
a
2
Retreats and Wheels for the World outreach trips can be considered kingdom work. Joni and Friends’
kingdom mandate is to challenge every area of disability for the sake of Jesus Christ.
You’ve heard the phrase “biblical worldview,” but a worldview is merely an assessment. A worldview,
even a biblical one, is an appraisal of the world, a point of view. But the kingdom is not a view, it’s a re-
ality. It’s an obligation. Paige Benton Brown writes, “We may possess a worldview, but the kingdom
possesses us. We may own a worldview, but the kingdom owns us. It’s a view that always leads to action,
forcing us to ask, ‘How can I get engaged? How can I showcase the truth of Jesus Christ in this area?
How can I use the gifts God has given me to effect transformation in the world?’”
The average Christian is uneasy with this. Sometimes believers assume that only ‘church work’ is
spiritual activity. They think real Christian work is only that which happens in the church and “Who
cares what happens out in the world?” Who cares if unborn babies with Down syndrome are aborted?
Who cares if young men with spinal-cord injuries are being warehoused in nursing homes for lack of
a place to live? Who cares if qualified people with disabilities are denied jobs unfairly? Who cares if
people in comas are euthanized? After all, some Christians think, the whole world is going to hell in a hand
basket, and the best we can do is send out raiding parties into the world to quickly make converts, then bring them
back into the safe walls of the church where we all just hunker down and wait and be safe until Jesus returns.
This view is unchristian; it’s wrong. It is way too conservative. People who hold this view don’t care
if a person eats, as long as he knows Jesus. At the same time, there are people who don’t care if a person
knows Jesus, as long as he eats. This view is wrong, as well—it’s too liberal. It eliminates salvation from
the Gospel of the kingdom. Christians who follow this view see God’s work in the world as no different
from his work in the church. “We’re all God’s children,” they will say, “We’re all under the same um-
brella, and teaching the Bible is really no different from teaching a literacy course. It’s all for God’s
good.” Both conservative and liberal views are wrong.
The correct view is neither conservative nor liberal, but transformational. We are about transforming
the kingdoms of this world to become the kingdoms of our Lord and of his Christ. Paige Benton says,
“Transformational Christians view the church as family, as training camp, as base camp, as boot camp.
The church is a place of preparation where Christians are loved and taught and supported to go out
into the world to effect change.” Christians must carry Christ into the media, schools, in economics
and medicine, in technology and politics. We transform these areas through kingdom work, and as a re-
sult, culture is changed.
The area of disability is in desperate need of transformation, as well. The global plight of people
with disabilities is desperate, and at Joni and Friends, we encourage Christians to use their gifts to serve
God where the needs are greatest. As my friend Paige says, “Go where the kingdom is weakest.” Christ
should be made real where the world is at its darkest. Go into nursing homes or institutions for the in-
tellectually disabled; bring justice and mercy, beauty and righteousness into such places. Serve as ad-
vocates in the disability community, and bring equity and fairness to unjust social policies. Serve at a
Joni and Friends’ Family Retreat and bring compassion to families affected by disability. Serve on a
Wheels for the World trip and push out the kingdom in countries where cerebral palsy is considered a
curse by a witch doctor, or persons with epilepsy are thought to be demon possessed. Let’s transform
lives with the Gospel… let’s transform cultures through kingdom initiatives!
Evangelism in the Kingdom
People wonder how evangelism fits into this view of the church and the kingdom. When we begin liv-
ing out Christ among artists, politicians, educators, and health care professionals, it will trigger the
Ki
n
g
d
o
m M
a
tte
r
s
i
n
Di
s
a
b
i
l
i
ty
, b
y
J
o
n
i
E
a
r
e
c
k
s
o
n
T
a
d
a
3
question, “Why do you live the way you do?” People want to know what makes transformational Chris-
tians so different. Kingdom work prompts the salvation question. It’s what Jesus did. People were drawn
to him. Whenever people spent time with Jesus, they experienced a hunger for his message. When in
the world, we live as Christ would have us live, it prompts the question of “What must I do to be saved
like you?
Recently I met Eunice Im who attends the youth group at the First Mandarin Baptist Church in
Los Angeles. Her youth group, led by Arthur and Sandra Hsieh, supporters of Joni and Friends, often
serves as stewards when we hold Disability Ministry Training Summits. Under the Hsieh’s leadership,
this group of young people also volunteers at Joni and Friends’ Family Retreat at Murrieta Hot Springs
in Temecula. And they raised over $80,000 for Wheels for the World. I learned that Eunice has a younger
sister, Karen, with autism. Up until Eunice’s family attended Family Retreat, she had never looked at
her sister as a friend, but as her “autistic sibling.” Eunice wrote me recently:
I want to celebrate your life because through you and specifically through the Family Retreats
I now experience more of the abundance of life in Jesus Christ. For me, it has meant accepting
and loving my sister. Now, when I interact with Karen, I see a person. I see a person that I
want to get to know, a person that I care about, rather than as a person who has a diagnosis
of autism.
Eunice is an honors student at UCLA where she is studying medicine. This remarkable young
woman plans to go into research to find a treatment for autism. That is kingdom work. And as she
makes Christ real to all those around her, her work—her ministry—is as “spiritual” as the activities her
youth group participates in at her church.
Joni and Friends connects with hundreds of young people like Eunice. When I go to a Family Re-
treat, I meet so many college freshmen and sophomores who are serving as volunteers. At the close of
the week, it is soul-stirring to hear them say, “I’m going to declare a major in special education!” Or
recreational therapy, speech therapy, occupational therapy or physical therapy. That’s kingdom work.
Just like medical researchers like Eunice, or the Christian businessmen that hire the disabled. When
Eunice finally graduates out into the world, I know she will be a transformational Christian; she’ll see
First Mandarin Baptist Church as her family, her training camp, her base camp. She’ll remain strong
doing kingdom work in the world because her church will have restrained itself to its God-given role
of mentoring, discipling and training her.
What role does the church have in politics? None. What do Christians attending a church have to
do with politics? Everything. I hope some in the Hsieh’s youth group will one day run for the California
state assembly. I hope that my young friend, Emily Shanahan, who has cerebral palsy and is a senior at
Cedarville University might one day consider going into constitutional law. I can envision the day when
Emily, like Eunice, will carry the kingdom banner into the world, provoking life-transforming questions
from non-believers.
I can just picture Eunice one day among her fellow researchers. They will be in their lab coats work-
ing alongside her and asking, “What makes you so dedicated? Why are you living like this? How can I
have the peace that you have? Who is this Jesus that you follow?” Eunice will be out in the world shaking
salt, shining light, sowing Gospel seed and making people thirsty for more than this world can give.
She won’t be viewed as a “right-wing radical who only cares about saving people then retreating within
the confines of their church walls… or a Christian who just sits on her hands until Jesus comes back.”
No, her co-workers will view her differently because she cares about this world.
Ki
n
g
d
o
m M
a
tte
r
s
i
n
Di
s
a
b
i
l
i
ty
, b
y
J
o
n
i
E
a
r
e
c
k
s
o
n
T
a
d
a
4
Redemption is Greater than We Think
Jesus loves this world. He created its beauty and variety; its people of various tongues and nations. True,
the Fall marred its image and stained its landscape; it produced a world filled with sin, but it’s still
God’s world. He’s the rightful owner and ruler, and he invites us to partner with him in reclaiming it
under the Family banner. Never be pessimistic about this world. God requires that we be optimistic
and know that good will ultimately triumph. We are to be his change-agents in this awesome divine
plan to advance the kingdom, reclaim the earth as rightfully the Lord’s, and push back the kingdom
of darkness, preserving culture, influencing society, and transforming culture. The Gospel of the king-
dom is about setting things—all things—right.
Heaven is the final restoration of earth under the authority of Christ. People often ask me what I
am looking forward to in heaven. If I were self-centered about it, I could easily say, “Oh, I can’t wait to
get my new body. I’m going to jump, dance, kick around and do aerobics. I’m going to see all my friends
and relatives. I’m going to see my mom and dad who have long-since gone home to be with Jesus.”
We’re so me-focused—even about heaven. Rather, let’s be excited that in heaven, we will celebrate the
crowning of Jesus Christ as King of Kings and Lord of Lords. We’re going to be in that great choir who
will sing, “And he shall reign forever and ever!”
So the goal of redemption is the renewal of all things, not just our souls and bodies. This means
that the Fall is bigger than personal salvation, and redemption is bigger than forgiveness. There’s much,
much more wrong with this world than our personal sin. Everything is poisoned, everything fell under
the curse in the Garden of Eden, and one day everything will be restored—a new earth and new heavens
where peace and justice and love and righteousness are realities. We kingdom-minded Christians live
our lives in view of that goal.
I encourage you to go where the kingdom is weakest, where Satan’s domain is most fierce. Be salt
and light in your communities, in nursing homes, mental institutions, and residential facilities for
disabled people. Make the kingdom strong there. And may your efforts be like the mustard seed be-
coming a tree that fills the whole garden, like the leaven that permeates through the whole loaf. As
my friend Paige says, “We’re not about maintenance.” I agree; we’re about marching. I love to sing as I
leave the International Disability Center each evening. Wheeling down the ramp I’ll sing, We’ve a story
to tell to the nations… or We’re marching to Zion, beautiful, beautiful Zion. Those are energizing words, prin-
ciples with which I inform my conscience, keep my spirit right, and sharpen my perspective so that I
don’t become a pessimist in this warped and poisoned world. I’m not about maintenance and I don’t
want you to be either.
I trust that this message has given you a bigger picture about disability ministry in the church and
in the world. I hope you have better grasped the role of the church to equip you in worship, prayer, and
Bible study. But I also hope you see your kingdom role. So sign up as a short-term missionary for next
year’s Family Retreats, go on a trip with Wheels for the World, become an ombudsman at a local nursing
home where elder abuse is a nasty secret, minister in residential care facilities, become informed on
stem cell research, write letters to the editor of your city’s newspaper, call your senators and congress-
men—and do it as a transformational Christian.
NOTES
1. Jesus talks about the kingdom and what it’s like in the parables of the sower (Matthew 13:18-23), of the tares among the wheat (Matthew 13:24-30),
of the mustard seed (Matthew 13:31-32), and of the leaven (Matthew 13:33). These kingdom parables describe the impact the preaching of the Gospel
has on the world.
2. Herman Ridderbos, “The Coming of the Kingdom,” The Presbyterian and Reformed Publishing Company, Philadelphia, PA, 1962, pg. 82.
Ki
n
g
d
o
m M
a
tte
r
s
i
n
Di
s
a
b
i
l
i
ty
, b
y
J
o
n
i
E
a
r
e
c
k
s
o
n
T
a
d
a
5
3. This is why not every person with a disability who prays for healing experiences a divine miracle. The Bible never guarantees that every person who
requests physical healing will be healed. Why should we single out disease – just one of the results of man’s Fall insisting Christians shouldn’t have
to put up with disabilities. Why not? We put up with hurricanes and other catastrophes of nature. We put up with the sinful attitudes and actions
of people around us. When Christ came to earth to set up the kingdom, He began to put it into motion. But it won’t be completed until Jesus returns
to close the curtain once and for all on sin, Satan and suffering. Then, the eye of every eye will be opened, the ears of all those who are deaf will be
unstopped, and every lame person will leap for joy (Isaiah 35:5-6).
4. 1 Corinthians 11:5; 1 Corinthians 14:34; Ephesians 1:22; 1 Timothy 2:12; 1 Timothy 3:2; Titus 2:4
5. The Presbyterian Church of America often allows women to team-teach with men, as well as in mixed audience settings. Women missionaries serving
on the field often assume leadership positions until such time as man are equipped to serve as pastors and elders.
Ki
n
g
d
o
m M
a
tte
r
s
i
n
Di
s
a
b
i
l
i
ty
, b
y
J
o
n
i
E
a
r
e
c
k
s
o
n
T
a
d
a
6
Joni Eareckson Tada is the founder of Joni and Friends International Disability Center, a nonprofit ministry
with a global outreach. A diving accident in 1967 left Joni, then 17, a quadriplegic in a wheelchair. Since then,
Joni’s wisdom and influence have been shared with the world through bestselling books, radio programs,
television programs and frequent speaking. Her radio program is carried by over 1,000 broadcast outlets and
heard by over a million listeners. Joni is also an accomplished artist and singer. She has served on the National
Council on Disability and the Disability Advisory Committee to the U.S. State Department.
1
Outreach and In-Reach to Families
Affected by Disabilities: Ministering
through Family Groups
By Dr. Dave Deuel
On that bright Southern California day that my wife delivered one of the sweetest little stork bundles
anyone could ever imagine, it was obvious something was wrong. Our daughter moved very little. Later
that night her heart stopped. Thankfully, doctors were able to resuscitate her. After the long wait for
the diagnosis—a full two weeks later—the phone rang and our doctor said, “I am sorry but your daugh-
ter has Down syndrome.” Stunned, I went to the hospital where my daughter was still in an intensive
care incubator. As I gazed broken-hearted at my little Joanna struggling for life, I noticed out of the
corner of my eye that a nurse who helped deliver her was watching in the next room through an obser-
vation window. When she saw how distraught I was, the nurse burst into tears and ran out of the room.
I felt sick. I had not eaten for days. I finally found our doctor who was busy attending to patients. As
we ran down the hospital hallway together, I blurted out, “What do I do?” Stopping abruptly in the
middle of the hall, he looked me straight in the eye and said gently, “Just take her home and treat her
like your other kids, but give her a little extra care.” Although not completely accurate, his advice was
what I needed to hear. Maybe with God’s help I could do this. He then added, “Oh, by the way, another
couple in Valencia just delivered a child with Down syndrome. You should contact them and you can
encourage each other. In one short but life-changing conversation, a wise and caring doctor had moved
me from personal tragedy to personal mission.
We couldn’t wait to call the other couple, Jeff and Shirley. As we talked on the phone with them,
we soon discovered that they were also Christians and seemed as excited as we were to get together.
Amazingly, they not only had a daughter with Down syndrome born within a week or so of our daugh-
ter, they even had a sibling who was her older sister’s age! Shirley and my wife became close friends
almost instantly. Jeff and I were stamped from the same mold—had no siblings, grew up in small
towns, and came from solid Christian homes. The compatibility seemed like a breath of fresh air. We
were not alone. As we walked into their home for the first time, we were warmly welcomed. We started
off by doting over our two little round-faced sweethearts side-by-side in their carriers. The after-
noon passed quickly with chicken on the grill, lots of laughing with a little crying, and plenty of advice
exchanged. Toward the end of our time together, someone said, “Hey, we need to form a group for
families with children with Down syndrome.” Encouraged and blessed, I thought to myself, We already
are a family group.
This section offers some of the lessons we learned about family groups and disabilities during
our times together. Our journey began with many questions. This section is framed by some of the
crucial ones.
What is a Family Group?
We soon discovered that a family group is two or more families who assist one another. Our particular
commitment was toward the process of coping with problems then moving to finding solutions. Cop-
ing is not wrong. It is a phase that almost everyone must pass through, but some seem to get stuck. Of
course there is a period of shock. Our goal was to move beyond passive coping to active problem-solving
as soon as we comfortably could, but without ignoring our emotions. In our group, we especially valued
single parents and those with adopted disabled children, because their needs increase with singleness
and adoption issues. Studies vary on marriages with children who have disabilities, but the divorce rate
is significantly higher than the national average. These marriages break up over stress related to the
disability. This alone is a strong argument for caring family groups.
The primary purpose of a family group is to assist a struggling individual or couple by encouraging,
comforting, and assisting in the context of close personal relationships, and to help them find good
information and service people, and develop problem-solving skills.
What are some crucial questions to ask before starting a Family Group?
We started by identifying specific needs. Because relationships are critical, we focused first on those.
Do the immediate and broader family circles support the family? Can our couples talk to those same
people in their family circle about their child with a disability? These and other family-related matters
are important to everyone, but especially to a couple with a child with a disability. Basically, they are
looking for acceptance and assistance, usually in that order.
We then tried to identify needs for personal development in matters of knowledge, skills and con-
fidence. Pointing out resources became a major objective. Where could families find reliable informa-
tion? How could they identify the right professional people in the schools or local service systems? Just
developing skills for survival can be a critical issue. When parents find information and develop effective
skills they also gain confidence. That confidence is a huge benchmark.
Another question asked is, “What are the available resources?” Locating them is the first challenge.
What agencies, organizations, foundations, and other types of organizations are out there to offer as-
sistance? However, locating them is only half the battle. Accessing the resources can be a bewildering
and discouraging experience.
Finally, “How will the resources reach the needs?” It does no good if you live in a community of
abundant resources, but can’t locate them or don’t know how to access them. When you have a child
with a disability, not many people come offering to provide you with resources. This leads to questions
of how to best structure your group so that you can assist in the ways we described.
How should Family Groups be structured?
There are many ways to organize and structure your group. Each has its own strengths and weaknesses.
First, there are relationship structures. Should you partner one parent with another, or a couple with
another couple, or put both single parents and couples in a mixed group? The best solution seems to
O
ut
r
e
a
c
h
a
nd
I
n-
R
e
a
c
h
t
o
F
a
m
i
l
i
e
s
A
f
fe
c
t
e
d
by
D
i
s
a
bi
l
i
t
i
e
s
:
M
i
ni
s
t
e
ri
ng
t
hr
o
ug
h
F
a
m
i
l
y
G
r
o
ups
,
by
D
a
v
e
D
e
ue
l
2
be a mixture of these structures, focused on supporting the specific needs of your group. Let’s look
at these options, briefly:
Each parent with another. Although you may choose to do a lot of social activities that help
people to get to know one another as couples, there will be times when wives and husbands,
even siblings, need to talk one on one. Although husbands seem less inclined to this per-
sonal level of interaction, the need is as great as it is for the wives. Some argue that husbands
need it more because they will not pursue interaction without some facilitation.
Each couple with another. Couples helping each other one on one is a very effective relationship
structure. But try to be careful that cliques or circles do not develop. These will destroy the
closeness of your group. It is understandable that some couples are more compatible than
others. But for the good of the group, it seems best if this can be avoided. Talking about
this problem openly may help.
Each parent/couple as part of a group. Special speaker instruction is perhaps most effective
in this context. Setting up a calendar will be necessary just to coordinate all the different
family schedules. Group frameworks also make it easier to network with other groups
and organizations. For example, our group chose a national Down syndrome organiza-
tion primarily for the resources, network connectivity, and general organizational support
it offered.
What are some crucial organizational factors?
The same geographical area. If you live in a metropolitan area, you will likely find many
families for your group within a short driving distance. This is a significant factor because
you do not want a group that is so large that you lose the intimacy. After all, a major moti-
vation for such a group is intimate personal support for families. That said, it is great every
now and then to be part of a group of 1,000 or more families that share your struggles.
The same disability. Probably no other structural factor is as important as sharing the same
disability challenges as others in your group. Because disabilities vary considerably in their
nature, scope, and treatment, being able to connect with those experienced and knowledge-
able about your child’s specific disability is crucial. This also helps parents find the right
information, services, medications, and hospitals.
The same needs (e.g., to learn sign language). In our group, about 80 percent of the families
needed to go through open-heart surgery in the first year of their child’s life. The need for
good information, recommendations, and ongoing support is hard to overstate. We came
alongside each other during the surgeries for prayer and encouragement. Even the doctors
commented on how impressed they were with the comforting support. They felt it was ben-
eficial to all of the families involved.
The same organization. Here again, a mixture of options will probably serve you best.
We lived in a booming suburb of Los Angeles where there were many young families with
O
ut
r
e
a
c
h
a
nd
I
n-
R
e
a
c
h
t
o
F
a
m
i
l
i
e
s
A
f
fe
c
t
e
d
by
D
i
s
a
bi
l
i
t
i
e
s
:
M
i
ni
s
t
e
ri
ng
t
hr
o
ug
h
F
a
m
i
l
y
G
r
o
ups
,
by
D
a
v
e
D
e
ue
l
3
children with Down syndrome and many of our children were about the same age. For this
reason, we chose to blend a mixture of group structures. Regarding the selection of an or-
ganization with which to identify, again, we chose a national Down syndrome organization
because it was well-networked and mature as an organization. Examples of other organiza-
tions include churches, schools, or hospitals.
How do you start a Family Group?
Although it may seem like a big challenge to start a group, be assured that it is also great fun. You just
need to take it one step at a time. If you keep your focus on the needs of the group, you will meet needs
and people will seek you out for help. Let’s discuss how to start a group from the standpoint of incre-
mental steps.
Before meeting for the first time, it is good to gather a small group of committed people who will start
and maintain the group. The greater the diversity in this group, the broader reach you’ll have into the com-
munity. This first step requires vision. Feed your vision with good reading, interaction with committed
and creative people, and prayer—these will sustain you and your core group when the going gets tough.
Select an effective form of leadership for the group. Veteran parents make good leaders. The selection
process must be done carefully. Equal consideration might be given to structure and to personal char-
acter and experience. Passion for the role should also be an important factor. Finally, consider the ability
to counsel others since people in the group will look to their leaders for models of how to parent and
how to serve others.
Include several professionals such as doctors, teachers, and therapists. I had the privilege of being
involved with starting a group in Romania. The first two members, Luchia and Dora, were single-parent
mothers whose husbands had abandoned them when they gave birth to children with Down syndrome.
These courageous working moms were the ideal start. One was a teacher and the other a surgeon. Con-
sequently, they not only understood parenting but were also a part of the educational and medical
communities, which are so critical for families with a child with a disability.
Choose a group model but keep it flexible to the needs. I believe structure is commonly overrated
yet essential. If you meet together and enjoy it, a natural structure will emerge very quickly. The Internet
offers a generous and even overwhelming source of information about support groups. It would be
good for you to work through a reliable, disability-specific organization and its guidelines for the simple
reason that a seemingly infinite number of configurations are available.
For the first meeting invite potentially enthusiastic parents and those needing support to a low-
keyed introductory session. It is good to have a mixture of ages and years of experience in your core
group so there is a blend of wisdom from age with the enthusiasm of youth. In that meeting, discuss
how soon you should schedule another meeting and consider future special speakers such as qualified
local service providers. Finally, you should seek the names of those needing support from agencies,
physicians, and other sources, being careful to observe privacy laws.
Be sure to keep a portion of the meetings informal, relaxed and enjoyable. While it is good to be ef-
ficient and avoid the perception of disorganization, people must enjoy themselves and not feel threat-
ened when attending group functions. Nothing will drive families off quicker than if they feel
uncomfortable, left out, pressured or embarrassed. Be sensitive and make sure everyone is included.
People who have children with disabilities experience a lot of discouragement! When they visit your
group they need to feel uplifted, recharged and part of the group.
Establish a referral system for physicians, specialists and other service providers and organizations.
Although potentially risky due to criticism of physicians, teachers, and providers, your group will be
O
ut
r
e
a
c
h
a
nd
I
n-
R
e
a
c
h
t
o
F
a
m
i
l
i
e
s
A
f
fe
c
t
e
d
by
D
i
s
a
bi
l
i
t
i
e
s
:
M
i
ni
s
t
e
ri
ng
t
hr
o
ug
h
F
a
m
i
l
y
G
r
o
ups
,
by
D
a
v
e
D
e
ue
l
4
the best source of information and an ideal context for discussion. Remember to cultivate an atmos-
phere of objectivity, and show zero tolerance for attacking individuals. It is too easy to fall into a men-
tality of professionals versus parents.
Why should my church start a Family Group?
One of the greatest appeals for family groups is that they are mutually beneficial for both families and
their churches. First, let’s consider ways that churches can strengthen families who have children with
disabilities. The emotional and practical needs of these families are obvious and pressing. It is our priv-
ilege to love and serve others, but we love people best by pointing them to the Gospel. This should
never be far from our thinking and our conversations.
Second, family groups can also serve families of children with disabilities by helping parents better
understand their child’s disability. For Christians, it is essential that they consider their child’s disability
within the context of a Christ-centered life.
Finally, family groups will help these families by offering ongoing encouragement to parents.
Churches can make a significant difference in times of challenge. Families want to know how to re-
spond to their difficulties and crises from a biblical perspective. Churches can offer this like no other
organization. Churches can also help parents by keeping them informed of available resources, in-
cluding those based on a biblical worldview.
Now, let’s look at ways that family groups can strengthen the Church. The potential impact of
family groups upon a church is often not realized. Family groups provide another path for outreach
to families who have children with disabilities. Churches should always be looking for effective ways
to strengthen their families and conduct outreach into their communities. These family groups offer
the opportunity to meet real needs.
Second, family groups can mobilize members of the congregation who might not otherwise be
serving. Many people in your church may have a family member or close friend with a disability.
Moved by compassion toward that person and their family, church members might want to help,
but are unsure of how to get started. This impulse is far more common than most of us can imagine.
Family groups provide an opportunity to serve through conversation and friendship. Because they
do not require teaching or other high profile ministry skills or gifts, they serve as good entry-level
ministries.
Finally, family groups offer married couples an opportunity to serve together, even in the context
of their own or othershomes. This is critical. I know a couple who has served together in this manner
for years. They are identified as “the disability ministry couple” in their church and the broader com-
munity. They have had countless opportunities to help people with disabilities and their families.
Having watched them, I am at a loss to think of a better way that a couple could invest their lives for
God’s Kingdom. They look like one of the happiest couples in the church!
How can your church start a Family Group?
The following details may help make a parent group a truly effective local church ministry:
Pray for God’s will and commit the ministry to God. This will be a great opportunity to serve
families who are in need. Although you can do a lot to help them prepare for life with a child
with a disability, please remember that their greatest need is for a saving relationship with
Jesus Christ and for growth in the Christian life. If you prioritize evangelism and discipleship,
you are sure to have an effective ministry in your church.
O
ut
r
e
a
c
h
a
nd
I
n-
R
e
a
c
h
t
o
F
a
m
i
l
i
e
s
A
f
fe
c
t
e
d
by
D
i
s
a
bi
l
i
t
i
e
s
:
M
i
ni
s
t
e
ri
ng
t
hr
o
ug
h
F
a
m
i
l
y
G
r
o
ups
,
by
D
a
v
e
D
e
ue
l
5
You will want to be sure to work with the leadership of your church. Too often ministries of
this nature meet in the church but work outside of the church administratively and relation-
ally. This is your opportunity to fully engage the church in the world of disability. Although
it will take more time and patience to work with church leadership, there is no substitute for
involving leadership in meeting the needs of disabled persons and their families. If you will
be patient and persuade leaders through conversation and effective materials, your church
can be a family’s best resource in times of personal crisis.
Approach a leadership-capable married couple, perhaps one with a disabled family member.
Usually, greater long-term commitment and benefit comes from a family experienced in dis-
ability. On the other hand, we should not hesitate to involve people who have no direct con-
nection to disability. The couple I mentioned before who lead a disability ministry in my
community do not have a family member with a disability.
Read up on disabilities and attend events about ministering to the disabled. You will need to
find a good source, which offers reliable and updated information about specific disabilities,
particularly if the ministry will involve many types of disability. It is crucial that you be informed,
but do not panic. Plenty of good material is available free of charge especially on the Internet.
Reach out to parents, siblings and extended families. Although it’s easier to focus on the child
or the parents, we can’t ignore the siblings or the extended family. At first it may seem like
spinning plates to keep everyone involved, but with time you will improve in your ability to
reach entire families. My observation is that it is both a gift and an acquired skill.
Support the ministry as it develops. Ministry is sacrifice, and yet it can be a lot of fun. How-
ever, fun is not the primary objective. Be prepared to invest your time, energy, and money.
Churches cannot operate like businesses trying to turn a profit in every ministry effort. This
does not mean that you can’t charge for some materials, food and other needed items. It does
mean that you cannot depend on that source alone.
Model positive attitudes about disability from the pulpit to the pew. You will get tired and
frustrated—that is true in all ministries. Ministry is about people, and people bring their needs
and their challenges with them. But you can also look forward to great joy and satisfaction
in serving the Lord by ministering to others. It is, as you may already know, some of the best
of blessings.
Give God the glory for what he accomplishes through your family group ministry. If you
commit the ministry to Christ, pray for his strength, and do all things in the service of others,
you will see God work through your parent group. Be sure to give him all praise and honor.
It can be easy to take the credit or promote yourself, but that is not God’s way in ministry.
Conclusion
It has been 21 years since the day that Joanna Ruth Deuel came home from the hospital that first time.
There have been multiple surgeries, adjusted expectations, outright frustrations, and challenges of all
O
ut
r
e
a
c
h
a
nd
I
n-
R
e
a
c
h
t
o
F
a
m
i
l
i
e
s
A
f
fe
c
t
e
d
by
D
i
s
a
bi
l
i
t
i
e
s
:
M
i
ni
s
t
e
ri
ng
t
hr
o
ug
h
F
a
m
i
l
y
G
r
o
ups
,
by
D
a
v
e
D
e
ue
l
6
sorts when we least expected them. But the joy of life with Joanna is something no one in our family
can do without. Soon, she will walk down the aisle as the maid-of-honor in her older sister’s wedding.
I get to perform the ceremony. There will not be a dry eye in the church. After all, to the people in our
community who love Joanna and enjoy being with her, many of whom will be at the wedding, Joanna’s
participation is an affirmation of our love, not just for her as a person with a disability, but to the com-
munity gathered around her. We share her with them. Instead of being an outcast, she is the center.
She is known, accepted, even appreciated in our community. And we will never forget that our first
community was our parent group.
O
ut
r
e
a
c
h
a
nd
I
n-
R
e
a
c
h
t
o
F
a
m
i
l
i
e
s
A
f
fe
c
t
e
d
by
D
i
s
a
bi
l
i
t
i
e
s
:
M
i
ni
s
t
e
ri
ng
t
hr
o
ug
h
F
a
m
i
l
y
G
r
o
ups
,
by
D
a
v
e
D
e
ue
l
7
Dave Deuel, M.A., Ph.D. (Cornell University and The University of Liverpool) is the Director of International
Academic Studies for Joni and Friends as well as the Academic Director of The Master’s Academy Interna-
tional, a consortium of ministry training schools worldwide. Dave served as Regional Director for Joni and
Friends in the San Fernando Valley, CA and in board positions for The North Los Angeles Regional Center,
All Children’s Hospital (Los Angeles), Direct Link for the Disabled and a Governor’s Advisory committee
for Disability (Sacramento). He is Chairman for the Old Testament and Ancient Near Eastern consultation
of the Evangelical Theological Society. Dave focuses his ministry interests on assisting others in start-
ing and developing ministries, primarily on the foreign field. He also ministers with and to persons
with disabilities through Joni and Friends’ Christian Institute on Disability.
1
Challenging the IEP for My Daughter
with Down Syndrome
By Lori Lucore
One of the obstacles many parents of children with special needs face is the dreaded public school In-
dividual Educational Program (IEP) meetings. But thanks to the knowledge I gained from the Joni and
Friends Beyond Suffering program, I was equipped to overcome this challenge by standing up for better
alternatives of integration for my daughter, Violet, who has Down syndrome.
In May of 2008, I met with the IEP committee at my 12-year-old’s elementary school. Since her first
day in kindergarten, I have always pressed for her full-inclusion and advocated for aid, speech therapy,
and special education. As a result, Violet progressed in reading, writing, and connecting with her peers.
Her helpful nature, self-sufficiency, and sense of humor abounded. I was proud that Violet not only
consistently received awards for Compassion and Perseverance, but that she inspired her classmates. Her
teachers said Violet eagerly anticipated every lesson, and that they wished all of their students showed
such respect and joy.
Transitioning from Elementary to Middle School
Before Violet could progress to middle school, I had to face a team of six school authorities around
the IEP table including the special education director, principal and school psychologist. As a result of
their pre-collaboration, they informed me that my daughter would not be attending our neighborhood
middle school, even though she had already toured the school with her 5
th
grade peers. They recom-
mended that Violet attend a disability program located in a lower income area far from our home.
Their secluded classroom was specifically developed to teach life skills to students with intellectual
disabilities. Violet would not integrate with “normal students” for the next three years. I was shocked,
but held back my tears and tried to resign myself to what seemed like a dismal prediction for Violet
handed down by those in authority.
According to Violet’s standardized test labels, she had the mental abilities of a 5-year-old. But it
was obvious to those who knew her that Violet’s maturity, experience, compassion, stylish dress, and
“cell phone talk” more closely resembled her own age group. However, I agreed to take a tour of the
disability program at the recommended school.
Touring the Functional Academic Curriculum Track (FACT) Class
I arrived at the far-off middle school in the company of my older son who had just returned from Yale.
At our first sight of this “special program” room, it was noticeably dirty, old, and unkempt, and had
very few of the interesting wall displays typical of schoolrooms. There was only one teacher among 20
or more students, although we were told that a couple of these were student aids. Among the students
with “disabilities” was a recent immigrant whose sole impairment was that he spoke only Spanish.
I wondered how much longer it would take him to learn English among speech-impaired students.
In fact, how would any of these children with impairments learn best with only impairments to emu-
late? The teacher showed us the toy-like label-maker that each child was provided for learning to “type”
(keyboard). I gathered that it was not expected for these students to ever use computers. The long-time
teacher showed me the overhead that she used to teach the class collectively. Violet, who has won rib-
bons in horseback riding, been in numerous dance recitals, competitively dribbles and shoots baskets
easily in full-sized hoops, has taken violin and piano, and won ribbons with her art, was now invited
to color with several students—apparently a common activity.
When I asked if the students ever visited the rest of the campus, I was told they did not. Instead, a
few “regular” students came into the room twice a year. In the discussion, I asked if Violet could elect
a mainstream class, and I was informed that only a few students with higher potential had ever taken
an art or music class. (This program had no art or music.) It seemed to me that the students were merely
placated with time-consuming activities and not challenged. The environment was stagnating. I was
even told that this class did not start until 10:00 or 11:00 am although the rest of the middle school
began at 9:00 am—as if the effort to educate this group of children wasn’t worth a full school day.
Leaving that classroom, my son and I were downcast by the thought of Violet’s only option being
such a dreary, isolated, and hopeless environment. I began remembering how excited my daughter
had been to attend the well-lit middle school on the hill in our neighborhood with its state-of-the-
art technology and exciting theater just as her siblings had. I recalled how one of her best friends
was a compassionate, intelligent girl she had met in a mainstream classroom. I could clearly see that
the school system’s premise was erroneous. After taking the class at the Joni and Friends Interna-
tional Disability Center, I was armed with the tools and my theology was strengthened. It was clearly
God-ordained!
Based on the new information and with a heart to provide my child with the best possible educa-
tion, I called the elementary special education director. I shared that I had recently completed the
course and that I could clearly see that the recommended middle school was an unacceptable solution.
I explained that I did not understand why Violet could not attend school in her own neighborhood
with her own friends and siblings. I insisted on touring the Special Education classes at the progressive
middle school in our area. The special education director agreed to a new tour of our neighborhood
school, after hearing the incontestable facts regarding the questionable benefits of segregation.
Another Day, Another Tour
When I arrived at the neighborhood middle school I was introduced to the special education director.
My first impression was that she seemed resistant to including persons with disabilities in her school.
Nevertheless, I offered her the impactful pamphlet from the Christian Institute on Disability (CID) of
Joni and Friends, with which I was proud to tell her I was affiliated. The director commented about
seeing an article in the newspaper about the CID with a photo of Joni Eareckson Tada. As we began to
discuss Violet’s options, I addressed each of their misconceptions with an enlightened truthful argu-
C
h
a
l
l
e
n
g
i
n
g
th
e
I
E
P
f
o
r
M
y
Da
u
g
h
te
r
w
i
th
Do
w
n
S
y
n
d
r
o
me
, b
y
L
o
r
i
L
u
c
o
r
e
2
ment. I pointed out that some of their assertions were not in compliance with the Americans with
Disabilities Act and the school officials had no counter argument.
The director had prepared to have me greeted by a model parent of a daughter with Down syn-
drome who had participated in the proposed “only” option of the FACT class at the downtown school.
This mother was also employed by the school system. She repeated a theme I had heard much in pre-
vious IEPs, that her daughter was best suited to this program because she felt safer in a closed envi-
ronment.
The first misconception was that an isolated environment makes a child feel safer or more confident and so the
child is able to better function.
I countered that Violet would be living in an integrated society, and should be preparing to deal
with the realities of the world if she were to succeed. I confidently argued that isolation limited her
potential. I also explained that from a Christian point of view, we are all parts of one body, the lesser
being more valuable because God’s power works best in our weakness. This principle serves as the
basis of the Joni and Friends International Disability Center, which operates under the Luke 14 man-
date: “Go out quickly…and bring in the poor, the crippled, the blind and the lame…so that my house
will be full.” Further, I expounded that you can often tell the compassion of a society by how it treats
the least of its members. Still sensing pressure to put Violet in the institution-like program, I was
able to back up my views with writings about “the indispensable nature of persons with mental re-
tardation” by CID professor Dr. Jeff McNair, who heads the first graduate program on disability at
California Baptist University.
Amidst their ongoing insistence that Violet did not fit into the accommodations at our neigh-
borhood school, but only in the segregated program for all of the disabled, I asked, “What’s all this
about Violet fitting into your program? She has a right to attend school in her own neighborhood and
that school needs to adapt an educational program to accommodate her.” I challenged that if the
FACT program was of such educational appropriateness and benefit, then why wasn’t it offered at
the larger progressive school, especially since 12 percent of the present population has disabilities?
The ADA requires public schools to make available to all eligible children with disabilities an educa-
tion in the “least restrictive environment” appropriate to their individual needs. I mentioned Violet’s
maturity, and that she was appropriately cooperative and adaptable, which had been confirmed by
her elementary director. I added how she loved to go from class to class, dress in matching trendy
clothes. There was no adequate “excuse” to exclude Violet from a middle school experience.
The second misconception was that a child with disabilities should have only disabled friends and will relate
better with them.
To this fallacy, I pointed out that much of Violet’s previous success in school resulted from freely
associating with siblings and friends who were typical, prompting her to adjust, excel, and learn from
her environment, in contrast to leaving her no option but to emulate disability from others with dis-
abilities. Violet’s school report card from her mainstream 5
th
grade teacher reads, “She is more out-
going in class and initiates more interaction… Violet’s self-confidence has grown and she is a loved
member of our class.” That happened when the bar was set high and she was not segregated.
The third misconception presented was that when our children are in kindergarten, there is little to no apparent
difference, but as the children grow into higher grades, the intellectual differences widen and necessitate separation.
My newly acquired knowledge prepared me to immediately counter by pointing out that the
maturity level of children also grows to account for increasing differences, which fosters a beneficial
tolerance, mutual collaboration, and compassionate ministry to each other. I pointed out how fond
the teachers and students had grown of Violet in her elementary school, and how this accelerated
C
h
a
l
l
e
n
g
i
n
g
th
e
I
E
P
f
o
r
M
y
Da
u
g
h
te
r
w
i
th
Do
w
n
S
y
n
d
r
o
me
, b
y
L
o
r
i
L
u
c
o
r
e
3
an understanding and trust for diversity—something of increasing necessity in our global world. To
know Violet’s loving nature and to see her struggles had taught the students to lift others up instead
of compete, thereby refining their character as societal contributors. These factors would likewise
benefit all those in the neighborhood middle school.
I was finally allowed to tour the newer campus, and to our delight, the Special Education rooms
averaged from only five to 10 students, had computers, bright centers and posters, and were spacious
and well-lit. It was clear to me that the school did not lack resources, but only the motivation to include
those with disabilities. All of the irrefutable facts and arguments I’d gleaned from the Christian Insti-
tute on Disability finally silenced the administrators’ insistence that my daughter be enrolled in the
FACT class. An appointment was later scheduled for an addendum to Violet’s IEP.
Not What Was Expected
For this third meeting to resolve the IEP, I was asked to visit the district office instead of a school. It soon
became apparent that we had been brought to the district office in another attempt to persuade me
to consent to a three-year closed classroom for the impaired. My adult son and I were escorted into
the office of the district director who offered us a seat in front of his large desk and closed the door.
He proceeded to suggest how Violet would be best served in the one district FACT classroom especially
made for the disabled. He consistently said he did not understand what we had claimed about the un-
kempt nature of the facility and flatly denied that students did not integrate with the rest of the cam-
pus, which was a direct contradiction of what the head teacher had told us.
A fourth misconception became apparent during this meeting: Those with mental impairments cannot assimilate
or process grade-level material.
I reiterated what I had learned in the CID class; that it didn’t matter if she processed all data in the
same way as others, but the mere fact that she would be exposed to real life meant that she uniquely as-
similated part of it and was a distinctive part of it. I explained that Violet has matchless talents to offer
(as each individual has, regardless of performance capability) in addition to her valuable character and
perspective that could be beneficial to other students and faculty—not the least of which were love, joy,
and consideration. The district director emphasized that they did not have a program available at our
neighborhood school because there had not been any need for it, as if we were making an irregular, out-
rageous demand. I countered that such was the case merely because students with disabilities were all
diverted (with similar pressure) to the one institution-like program.
The district director asked if I wanted a copy of my rights under law and I answered that I was well
aware of disability law, also taught by the CID. I was able to profess that I believed the biblical promise
that the meek would inherit the earth, and also gave him a pamphlet and informative DVD from the
CID. I immediately saw a change in the district director, who realized I had the legitimate backing of a
powerful organization. I began to sense that we had the means to remove the barriers of a hard-hearted
school system, and dispute the routinely circulated misconceptions that suppress the families of children
with disabilities.
Though the administrators had insisted that Violet would be enrolled in the FACT program, it was
not legal and they finally saw that we would not give in to the status quo that had been forced on so many
others. The district director realized he had no choice but to begin reluctantly writing out an Addendum
to the IEP for “Specialized Academic Instruction daily, separate classes, and support services” for Violet
at our neighborhood school. I knew God was using us to pave the way for others with disabilities. Violet’s
presence at the middle school would be an opportunity to enlighten and soften the hearts of many.
C
h
a
l
l
e
n
g
i
n
g
th
e
I
E
P
f
o
r
M
y
Da
u
g
h
te
r
w
i
th
Do
w
n
S
y
n
d
r
o
me
, b
y
L
o
r
i
L
u
c
o
r
e
4
My son noted the irony that the district director who was so intent on segregated programs and
intensely against Violet’s rights to be an inclusive student in her own neighborhood school, had a phys-
ical disability himself. As I prayed that his life was impacted, I recalled that we are all made in God’s
image, and fallen from perfection. We all have disabilities that God allows to accomplish his glory. In
Genesis 32:22-32 we see that to wrestle with God as Jacob did, resulting in a “wrenched” hip, was to be
blessed,” and to “see God face to face.” Exodus 4:11 demands, “Who gave human beings… sight or makes them
blind? Is it not I, the LORD?” The psalmist in chapter 139 writes that our frames were not hiddenfrom
God, but that we were knit together…fearfully and wonderfully.” A consistent theme of the Bible is that
the meek and the weak are blessed, while the strong are conquered and the wise in the world are
deemed foolish. Jesus himself often reached out to the disabled, declaring in John 9:3, but this happened
so that the works of God might be displayed in him.” Our disability makes God’s ability evident as in 2
Corinthians 12:9, for my strength is made perfect in weakness(emphasis added.) I am so grateful to the
CID for enlightening me and multiplying the blessing of God’s powerful theology on disability.
Time Marches On
Violet’s three middle school years were coming to an end. Surprisingly, her grades had been straight
As in her modified curriculum with special notations of “Positive Attitude/Influence in class” and
“Puts forth a high degree of effort into her work. She is an absolute joy!” Violet’s homeroom teacher
invited us on a tour, including appointments at the high school with various teachers and the director
of special education. I was impressed with the class for students with disabilities—a spacious open
room, one-on-one individualized study with high school students who elected semester credit to assist
a single student, and ample sophisticated computer areas. Caring teachers presented various options
for accommodating mainstream electives. I profusely thanked my daughter’s middle school teacher
for arranging the appointments and personal tour of the high school. He replied, “I set this up because
I want to secure the best for Violet—I genuinely care for her and her welfare!” He had learned to know
her as a person, not as a disability.
A few weeks later at Violet’s last IEP meeting at the middle school, I was surprised to see all of the
attendees whose presence was not mandatory, nor even indicated. The science lab teacher came specif-
ically to offer gratitude for Violet’s contributions to his mainstream Science Lab class. He enthusiasti-
cally described her complete participation, adding that he and all of the students “loved” her. Violet’s
regular education English teacher announced that with minor adaptation, Violet contributed in all
class activities, adding that she wished all of her students had such a positive and helpful attitude. The
physical education teacher was also present to share that Violet’s perseverance had allowed her to keep
up with the regular education kids, and he was now eager to visit and encourage her in sports at the
high school. This team of teachers—in a middle school that had initially rejected her—now appreciated
the differently-enabled! This pattern of accommodation had developed an enthusiasm that would con-
tinue for years to come.
Most surprising was that the district director of special education showed up for Violet’s IEP. He,
too, was smiling, and no longer limping with a physical disability. Listening through our entire IEP
meeting of department heads and administrators, he was particularly attentive to the volunteered tes-
timony of the other teachers. Suddenly, he turned to me and emphatically asked with pride, “So, how
did you like the new special ed program at the high school?” It was then that I realized the impact made
by our previous challenge to the district. All of those arguments for integration and equal accommo-
dations, learned from the CID, were not futile! The improved high school accommodations were,
C
h
a
l
l
e
n
g
i
n
g
th
e
I
E
P
f
o
r
M
y
Da
u
g
h
te
r
w
i
th
Do
w
n
S
y
n
d
r
o
me
, b
y
L
o
r
i
L
u
c
o
r
e
5
at least in part, directly inspired by our confrontation with the district director three years earlier.
This IEP meeting was a celebration of understanding, and synergy created by a diverse group in active
collaboration! The way had been paved for many others to benefit from an excellent school program
of individualized accommodation.
C
h
a
l
l
e
n
g
i
n
g
th
e
I
E
P
f
o
r
M
y
Da
u
g
h
te
r
w
i
th
Do
w
n
S
y
n
d
r
o
me
, b
y
L
o
r
i
L
u
c
o
r
e
6
Lori Lucore has had a heart for serving with correspondence for Joni and Friends since 2007, specializing
in CID issues like bioethics, and currently overseeing resources. She studied International Relations and
earned her B.A.in Business Administration. Above all, she enjoys being a mom—to Violet and her brothers
and sisters.
1
Networking with Disability Ministries and
Organizations: The Power and Witness of
Seeking, Consulting and Collaborating
By Rev. William Gaventa
Networking and the Mission of the Church, at Home and Abroad
Worldwide, people with disabilities, their families and supporters are all dealing with wider societies
in which “the disabled” are often one of the most marginalized groups. The common goals and values
of disability movements around the world, i.e., independence, productivity, inclusion, equal rights, dig-
nity and self-determination, have been codified in national and global documents like the Americans
with Disabilities Act and the UN Declaration of the Rights of People with Disabilities. In many coun-
tries, people with disabilities yearn for that kind of public and legal recognition.
Thus, people with disabilities, their families, supporters, and advocates often share common frus-
trations about social, legal, and economic barriers that cross boundaries of ethnicity, nationality and
religion. That does not mean that the struggles are all the same. To use a parallel example, many of us
involved in ministries with people with disabilities will recognize a moment when we or others say,
“You know, we are all the same. We all have a disability.” That may be true at one level, but the desire
to affirm connection may be done too quickly. It is first of all careless language, because it usually
comes from people whom no one else would call “disabled.” The deeper bond is everyone’s vulnerability
and limitation. Second, I may have a hidden disability, but the struggle in my life is not the same as
someone with multiple disabilities who needs the help of others in dressing, eating, moving, speaking
or getting to, much less into, church.
More accurately, the bond between people with and without obvious disability may be shared ex-
periences of isolation or rejection and a yearning for inclusion and belonging. Context matters. Progress
can be measured in many different ways. We may be, as genetic studies suggest, more than 99 percent
the same around the world. We share common stories as humans, but each person is also unique. Some
struggles and needs simply pale beside others. Our mission means thinking globally and acting that
way through missions, but also acting locally, or even parochially, to minister to and with the disability
community and society in which we are planted. Together we can address needs right in front of us or
hidden in plain sight.
Challenges Facing Disability Ministries
Enter then the Christian church and other religions, in all their diversity of forms and differences. In
the wider world of the “disability community” and the private and public (sometimes called “secular”)
world of supports and services, churches and faith communities have unique and powerful roles which,
like other human “service” organizations, can be used either to help or to harm. This paper will explore
three “worlds” in which disability ministries in the Christian church operate: (1) the wider world of
churches and other religions; (2) the huge assortment of support networks and advocacy organizations
in different areas of disability; and (3) the often confusing array of public and private service organiza-
tions. The church can play a pivotal role in clearing a path through the maze and bridging these worlds,
so that together, we can all build societies in which people with disabilities and their families can par-
ticipate as true citizens as well as members of the Body of Christ.
First, then, let’s explore some of the challenges in each world that may hinder partnership and col-
laboration.
Barriers to Collaboration in Faith Communities
Anyone involved in disability ministries knows that churches or other religious organizations can mir-
ror the social attitudes of the community or society in which they live. Stigma, fear, prejudice, discrim-
ination and/or patronizing attitudes do not stop at the door of the church. The church may not feel
at all like a “sanctuary.”
1
Religious communities can make those attitudes even worse by using God’s name to justify them,
such as through the common questions of “Why?” or “Who’s responsible?” Two scenarios embody
these questions in multiple ways, either explicitly or implicitly. The first is when people with disabilities
and/or their families are asked the same question that the disciples asked Jesus in John 9: “Tell me,
who sinned, this man or his parents?” “What did you do that God sent you this disability?” The second
reflects our inability to help or fix: “If you or we just prayed hard enough, or if your faith was strong
enough, you could be healed.” Both questions are usually not asked of people with other physical mal-
adies like cancer, for example. Both usually lead to feelings of being judged, cast out, and abused rather
than welcomed and included. Variations of these stories happen in every Christian denomination.
Advocates for inclusive ministries often face the assumption, “We don’t have any here.”
2
That may
be true, but the next question is, “Why not?” Statistically, it is improbable that a congregation with
100 members would not have someone with a disability, or who has a family member with a disability.
It becomes a vicious cycle, i.e., individuals or families have not felt welcomed, much less been invited
or sought out, so they don’t come. “Shut-ins” may feel “shut out.” Too often they enter the growing
ranks of the people who identify themselves as “nones” on surveys of religious affiliation.
3
The question for many clergy and congregations is about their lack of ability or capability, expressed
by a lack of training, appropriate resources, and/or funds. (Note the irony—a feeling of “disability
about being able to deal with disabilities.) Ginny Thornburgh and Joni Eareckson Tada are leaders who
have noted that accessibility and inclusion do not start with architecture and funding, but with changed
hearts and attitudes. The Rev. Sue Montgomery, a Presbyterian pastor in Pennsylvania who uses a
wheelchair, draws a parallel between “families.” A family impacted by disability rarely has any training
N
e
tw
o
r
k
i
n
g
w
i
th
Di
s
a
b
i
l
i
ty
M
i
n
i
s
tr
i
e
s
a
n
d
O
r
g
a
n
i
z
a
ti
o
n
s
, b
y
R
e
v
. Wi
l
l
i
a
m G
a
v
e
n
ta
2
before encountering disability. They have to respond and learn as they go. Any church that describes
or prides itself on being a family can do the same.
Barriers to Collaboration for People with Disabilities and their Families
The experience of disability, whether at birth or acquired, raises profound questions about faith,
hope, and love. If you have not heard them directly, just ask any group of individuals or families,
when you are trusted, to “tell you their faith story.” The response is usually one or more of the fol-
lowing three: (1) our pastor and church were just incredible; (2) God really helped us through and
continues to do so, but God’s people never showed up, or (3) We reached out to our pastor and
church, but the questions and attitudes drove us out, or worse, we were asked to leave.
At a recent small conference in Lancaster, Pennsylvania, the key speakers were individuals with
disabilities and their family members. Two mothers of children with disabilities, one with autism
and the other with psychiatric disabilities, relayed their faith journeys, which included being asked
to leave a church—seven times for the first mom and thirteen times for the other. The first woman
shared how she persevered until finding a welcoming congregation. In the second story, the grown
son with mental illness got involved in a new church plant, and invited his parents back in. The ob-
vious (albeit judgmental) question here is, “Who showed the greatest faith?”
Advocacy groups, parent networks and social service organizations may thus become the places
where individuals and families believe the only real help can be found. To paraphrase a beloved psalm,
“I lift my eyes unto the hills, from whence does my help come?
4
It comes from the Arc, Parent to Par-
ent, People First, the state, you name it.” The underlying question is, “Who do people with disabilities
feel like they belong to and with?” Those support and advocacy networks become, in essence, the
community where their voices are heard, needs addressed, and gifts used. In other words, those net-
works effectively become their church.
Barriers in Social and Human Services
Far too often, people of faith take as gospel truth the stereotype that social service organizations,
schools, and advocacy groups are “secular” institutions, with “godlessmindsets, maybe even hostile
to faith. Truth be told, they are secular, in that they are funded by public supports, whether taxes or
charities, with a mission to serve everyone, with or without faith. They understand that they cannot
proselytize. But that does not mean that faith and religion do not play a huge role in the work they do.
First, there is no telling how many professionals or leaders in those arenas do their work because
of their faith and sense of calling. Young people often find and live out their sense of calling to help
others and/or make a difference in a helping profession or organization that is not, and cannot be,
explicitly religious. There is a great void when it comes to opportunities for these professionals to
explicitly share ways that their personal faith informs and supports their work or vice-versa. In my
own work within a number of these professional networks, I have often found real appreciation for
those who have worked to make explicit the often implicit issues of spirituality, faith, and religion.
For example, the respect given to Jean Vanier, Henri Nouwen, and the L’Arche communities goes far
beyond the Roman Catholic world and even religious world.
Second, the sense of professional vocation in human service may have been born from growing
up in a faith community. Many young adults go through a stage of doubt; searching and/or wander-
ing that is not received or welcomed by their childhood faith community, but rather leads to labels
N
e
tw
o
r
k
i
n
g
w
i
th
Di
s
a
b
i
l
i
ty
M
i
n
i
s
tr
i
e
s
a
n
d
O
r
g
a
n
i
z
a
ti
o
n
s
, b
y
R
e
v
. Wi
l
l
i
a
m G
a
v
e
n
ta
3
as prodigal sons or daughters. The result is a conscious or unconscious decision, “If I am going to serve
others, it will have to be through some other path than the church.” They move into professional dis-
ciplines where the language of helping is so different than that of ministry, especially when perception,
truth, or practice is based on the foundations of scientific research and theory. Through their training
and in early roles as helping professionals, they may also run across people with disabilities, family
members, and other professionals who share similar stories, thus reinforcing feelings of disenfran-
chisement from faith.
Third, these professionals move into human service organizations where the walls between church
and state are either misunderstood or, in fact, reinforced by oral tradition or practices that seek to pro-
tect people with disabilities from what can be deeply wounding experiences in church communities.
If, for example, a social worker hears those “church stories,” he/she may have no framework, training,
or policy for how to handle them. The convenient and often useful caution then becomes, “We are
funded by the state and can’t deal with that.” This is akin to the common response of clergy who say,
“I have no training in disability and so our church can’t deal with that.”
The Call to Collaboration
People with disabilities and their families need access to all three worlds: faith communities, support
and advocacy networks, and public human service organizations and supports. They often yearn for
the various sources of support in their lives to work together. The church, pastor and congregation,
especially when allied with others, can help that happen.
Collaboration does not mean the “worlds” become the same. Rather, they overlap, with the indi-
viduals and families impacted by disability encircled by all three. Let’s spell out some attitudes that
can help build collaboration and partnership.
Secular and public services often have resources and skills that can help in ways church con-
gregations cannot. Good public policy, laws, funding, and effective science all have crucial
roles to play. For example, rights in a society that protect human dignity and ensure access
can create a legitimate space for people, i.e., they have the right to be there (school, business,
neighborhood, playground, etc.). However, it does not guarantee a sense of community and
belonging, that new relationships happen, or that friends get made. It does mean there are
more opportunities than in segregated settings.
Congregations have unique power to nurture growth, a sense of identity, belonging, and pur-
pose. Besides family, the most frequent answer to the question, “Who do you belong to?” is
often a “church,” “synagogue” or “temple.” Congregations can be what their signs proclaim
places where people are welcome, known and loved just as they are, places with supports of
all kinds, and an invitation to serve God and others out of a common recognition of
strengths, gifts and calling. People want the same things: a place to belong and to give as well
as receive. That’s why volunteer roles, jobs, and other helping roles within a congregation
make such a difference for people with disabilities and their families. None of us like to be
on the receiving end all the time.
The core values of advocacy and service organizations are independence, productivity, inclu-
sion and self-determination. At heart, those are public and civic values, which attempt to an-
N
e
tw
o
r
k
i
n
g
w
i
th
Di
s
a
b
i
l
i
ty
M
i
n
i
s
tr
i
e
s
a
n
d
O
r
g
a
n
i
z
a
ti
o
n
s
, b
y
R
e
v
. Wi
l
l
i
a
m G
a
v
e
n
ta
4
swer fundamental human and spiritual questions of identity, purpose, belonging and choice.
“Who am I?” “Why am I?” “Whose am I?” “What power do I have to make my own choices?”
5
The answers in the world of faith may be different—such as believing we are far more depend-
ent on God and others than we are “independent and self-made”—but the questions and val-
ues are often very similar.
Faith leaders thus need to understand the values and mission of any public organization in
the same way that professionals in those organizations need to understand the ways those
core values can be addressed by faith communities. For example, people with disabilities need
more than the adjective “disabled” to answer the question of who they are. “Normal” people
usually do not answer with something that may be publicly devalued. Instead, we use place,
faith, job, and interests (e.g. Baptist from Atlanta who works at FedEx and loves the Braves).
The key challenge is listening deeply, translating core values into different contexts, and work-
ing to find a common language. Recent tools in the human service world also being used in
some faith communities, such as person-centered planning for people with disabilities and
their families and circles of support, can do just that. Friends, families, members of one’s
church, and service providers can come together to listen to and support someone’s needs
and dreams, what’s important to them, as well as what’s important for them.
6
When churches embody their own values about hospitality, identity, purpose and belonging,
it becomes a powerful witness in the other worlds of advocacy and services. When congrega-
tions work with advocacy groups and services on those values, it is even better. The stories of
inclusion and membership can ripple outward to those other worlds, just like stories of dis-
interest or alienation do.
7
The same issues also face human service providers. An agency may have a mission statement
that proclaims the value of community and rights, even the right to religious freedom, but of-
ten they do not know how to turn that mission into reality—for example, when consumers say
in their individual growth or activity plans that they want to go to church. The church then
needs to know enough about the “human services system” to work with them through the
philosophical and practical issues. An agency can then understand that spiritual supports and
congregational inclusion can put flesh (or, in human service language, be an outcome) of the
agency values of choice, self-determination, community inclusion, and/or contribution.
You Are No Longer Strangers but Friends: the Power of
Networking and Collaboration
Clergy and congregations have real power to build bridges between worlds once a commitment is made
to doing so. The tools are networking and collaboration, built on the historic skills of faith communi-
ties to ask, initiate, advocate, and act.
With Public and Secular Agencies
Congregations networked with each other in a given community can share strategies for addressing
the public sector and working with advocacy and support organizations. For far too long the “religious
N
e
tw
o
r
k
i
n
g
w
i
th
Di
s
a
b
i
l
i
ty
M
i
n
i
s
tr
i
e
s
a
n
d
O
r
g
a
n
i
z
a
ti
o
n
s
, b
y
R
e
v
. Wi
l
l
i
a
m G
a
v
e
n
ta
5
community” has been known for its absence in the wider worlds of advocacy, support, and services.
Together, congregations can point to a growing number of resources and key organizations to which
people with disabilities, families, and professionals in the human service world can turn. An ecumenical
and interfaith collaboration is a crucial shared witness in worlds of highly networked advocacy groups
and human service organizations.
At the local level of individual congregations, the strategies for collaboration are traditional acts
of outreach and mission into what may feel like a “foreign” mission field.
Invitation. For example, a congregation has one or more children with autism or other dis-
abilities who present issues in communication, teaching, and challenging behavior. Listen to
the parents about what works, but don’t put all the responsibility on them. With their per-
mission, invite the teachers from the child’s school to come give you pointers and/or train
your church school personnel. The Archdiocese of Newark is utilizing the Psychology De-
partment of Caldwell College and other experts in Applied Behavioral Analysis to teach chil-
dren with autism how to attend mass, learn what is needed for First Communion, and more.
8
Hospitality and Welcome. Find out where the agencies and advocacy groups are, and invite
them to do educational programs at your church. Open your building to them for meeting
space. Do collaborative discussions on how your congregation might support the people
served by their agency.
9
Outreach. Go meet them on their turf. Better yet, organize a group of congregations to meet
with leaders of support agencies and advocacy groups. Listen, and explore ways of partner-
ship.
Offering. Offer to help agencies and advocacy groups learn more about your vision and min-
istries, those of other faith communities, and the growing number of resources related to
spiritual and religious supports. Become involved in a community-wide disability awareness
activity, such as Autism Awareness Month. Clergy can offer their skills in pastoral care to
help residential service providers deal with grief, loss, and end of life issues with the people
they serve, staff, and/or family members.
10
Advocate. Help individuals and families in your congregation search for appropriate services
in their struggles with schools or service providers. After a presentation at a statewide Down
Syndrome Association Conference, I invited families to “tell me your church stories.” One
mother got up and said, “We took our minister with us to our daughter’s IEP (the interdis-
ciplinary meeting at a school where a parent meets with numerous professionals to plan
and/or review a child’s Individual Education Plan, meetings at which parents often feel frus-
trated and outnumbered). It was wonderful, we got everything we wanted… they thought he
was our lawyer!”
That story often evokes deep feelings of empathy and laughter, but think of the possi-
bilities. The offer to accompany a parent to the IEP meeting could be a support to a parent’s
concerns, but also a demonstration of a desire to learn what the school is doing so that the
church might adapt some of the same teaching strategies. The reverse is also true. During
one IEP meeting attended by the religious education director, the IEP team, struggling with
N
e
tw
o
r
k
i
n
g
w
i
th
Di
s
a
b
i
l
i
ty
M
i
n
i
s
tr
i
e
s
a
n
d
O
r
g
a
n
i
z
a
ti
o
n
s
, b
y
R
e
v
. Wi
l
l
i
a
m G
a
v
e
n
ta
6
speech and communication issues, was stunned to hear that the child had recently sung in
the Christmas pageant. The same kind of offer could be made to adults with disabilities
and/or families as they face annual planning and review meetings, usually called either an
Individual Habilitation or Service Plan or a person-centered planning meeting.
Interpret. A different communication issue is that the language and styles of communication
in any of these worlds might seem like a maze of unfamiliar jargon to the other. The languages
and practices of spirituality and spiritual supports are being explored by many professional
disciplines.
11
An agency may not feel able or capable to talk about religion, but it can often
address spiritual needs and supports as one of the core person-centered and community-
based supports. Spiritual assessments, personal choice, and appropriate ways for profession-
als to support spirituality as one part of holistic services are concepts and practices around
which shared vision and collaboration can be built.
1
2
With Advocacy and Support Networks
Advocacy and support networks can be a huge resource and ally for congregations in inclusive min-
istries. Start with the individuals and parents you know, professional staff that provide services, and
the internet. Parent to Parent, the Arc, SABE (Self Advocates Becoming Empowered), NAMI (National
Alliance for the Mentally Ill), American Association for People with Disabilities, support and advocacy
networks related to autism, deafness and hearing impairments, physical disabilities, blindness, trau-
matic brain injury… there are multitudes.
Many have some resources or projects focused on working with faith communities and networks,
especially at a national level. As noted earlier, you may find an initial wariness based on negative past
experiences. To build trust, be open to hearing the reasons for their skepticism. Go with the individuals
with disabilities and/or their families you are supporting.
Collaboration can be both practical and public:
Practical: Remember the examples of strategies under invitation, hospitality, and outreach.
Simply hearing the “faith stories” is usually the most powerful way of educating, discovering
practical needs and mobilizing collaborative vision and commitment.
Public: Help with community, state or nationwide awareness activities. Add your voices, as
appropriate, to advocacy initiatives regarding local, state or public policies. You will discover
another multitude of issues involving social, economic and ethical injustice where the voice
of faith may be needed. The challenge, as in any area of mission, is to think globally and act
locally in concrete ways where many small hands, steps, and voices can make a huge impact.
With Other Faith Communities: Seek and Ye Shall Find
An individual congregation has any number of potential allies working at the intersection of disability
and faith. They include:
In the United States, national offices in almost every major religious organization and denom-
ination. Check first with your own.
13
They can offer support and connect you with others.
N
e
tw
o
r
k
i
n
g
w
i
th
Di
s
a
b
i
l
i
ty
M
i
n
i
s
tr
i
e
s
a
n
d
O
r
g
a
n
i
z
a
ti
o
n
s
, b
y
R
e
v
. Wi
l
l
i
a
m G
a
v
e
n
ta
7
Many of those offices and programs are part-time, so your support of them is critical as you
work together to infuse disability ministries into the life and mission of the wider church.
National networks like Joni and Friends, the National Council of Churches Committee on Dis-
abilities, the collaborative Lutheran networks like the Lutheran Developmental Disabilities
Network, Friendship Ministries, and congregations that host national conferences such as
McLean Bible Church.
Initiatives by service providers with congregations such as Bethesda Lutheran Homes and Services,
Volunteers of America in the Southeast, Hope Community Services in Anchorage, Alaska,
and the initiatives by organizations like the National Association of Persons with Disabilities
and University Centers of Excellence in Developmental Disabilities like The Boggs Center
that have produced collaborative resources and projects.
1
4
Ecumenical and interfaith regional networks that have begun in a number of cities and states,
such as the Faith Inclusion Network in Virginia Beach/Norfolk, The Lancaster Christian
Council on Disabilities, the Interfaith Disabilities Network of Atlanta, and the Coalition for
Inclusive Ministries in New Jersey.
Professional associations and other state and national publicly-funded organizations that are paths for
dialogue between “secular” and “religious” arenas, such as:
The Religion and Spirituality Division of the interdisciplinary and international AAIDD
(American Association of Intellectual and Developmental Disabilities) www.aaiddreli-
gion.org.
Statewide offices of federal programs such as the Developmental Disability Councils
who have funded initiatives in developing inclusive congregational supports and train-
ing for clergy and faith community leadership. Examples include New Jersey, Pennsyl-
vania, Texas and Wisconsin.
15
International, interfaith, and collaborative networks such as the L’Arche, the European
Society for the Study of Theology and Disability, the Ecumenical Disability Advocates
Network of the World Council of Churches and the Religion and Disability Studies Group
of the American Academy of Religion. Exciting research and resources from the perspec-
tive of many different theological disciplines are coming out of their memberships.
16
The interfaith, interdisciplinary, and international Journal of Religion, Disability and
Health. (http://www.tandf.co.uk/journals/WRDH) Members of the Religion and Spir-
ituality Division of the AAIDD now receive this journal as a membership benefit. With
a subscription comes access to past issues. Or, check to see if your college or seminary
has subscribed.
Almost every professional discipline and their related associations, conferences, and
publications have had occasional presentations and articles exploring spiritual sup-
ports, including special education, social work, psychology, ethics, medicine, and more.
Increasing numbers of books and manuals by both religious and professional publishers deal-
ing with disability and religion. One example is Including People with Disabilities in Faith
N
e
tw
o
r
k
i
n
g
w
i
th
Di
s
a
b
i
l
i
ty
M
i
n
i
s
tr
i
e
s
a
n
d
O
r
g
a
n
i
z
a
ti
o
n
s
, b
y
R
e
v
. Wi
l
l
i
a
m G
a
v
e
n
ta
8
Communities: A Guide for Service Providers, Families, and Congregations, an excellent book
by Erik Carter, a Ph.D. in special education. It was published in 2007 by Brookes Publishing,
a secular, professional press.
1
7
Amazing demonstrations of the gifts of people with disabilities in the worlds of art and theater, many of
which would be delighted to do exhibits or performances at churches, colleges, seminaries,
or conferences.
Finally, the public arena of media and films. National documentaries such as Praying with Lior and
A Place for All have been award-winning films. One major clearinghouse and distributor of
documentaries, including the classic Ten Commandments for Communicating with People with Dis-
abilities, is www.DisabilityTraining.com.
18
This partial list will have expanded by the time this curriculum makes it to press. The point is
clear—new initiatives and resources are sprouting up everywhere, providing new opportunities to learn
from one another, and then to adapt and apply that learning to our own pastoral and congregational
initiatives.
Conclusion: Embodying and Empowering a Broader Vision and Call
Participating in ecumenical, interfaith, and secular arenas not only gives people a chance to learn, but
also a place to inform others of the creativity and commitment coming from their own ministries. Ec-
umenical and interfaith networking and collaboration can also provide a powerful witness to many in
the public, secular, and professional arenas of disability. These professionals are only just beginning
to see spirituality as a crucial dimension of support and quality of life. We can help them see that there
is a world of faith communities and religious voices involved in the lives of people with disabilities and
their families that is “deeper and wider” than they ever knew. Inclusive ministries, both within congre-
gations and in collaboration with others in the wider public arena, can then focus on both practical
needs and spiritual supports—both body and soul.
As faith communities move from intentional or unintentional exclusion of people with disabilities
and their families to ministries alongside, to and by people with disabilities, they are living out the call
to redemptive witness.
19
When people move from outcast, exile and stranger to member and friend,
from identification by their deficits to commonly recognized gifts, and from receivers of care to con-
tributors to congregations and communities—that is a journey of redeeming those who were lost. Lost
either because they had not heard or seen, but too often in the case of disability, it is because they had
not been seen, listened to, invited, and/or welcomed by the Church.
NOTES
1. William C. Gaventa, “Signs of the Times: Theological Themes in the Changing Forms of Ministries and Spiritual Supports with People with Dis-
abilities.” DSQ (Disability Studies Quarterly), Fall, 2006. 26.4 http://www.dsq-sds.org/article/view/815/990
2. Winifred Anderson, Toby Gould, and James Paul, We Don’t Have Any Here: Planning for Ministries with People with Disabilities In Our Communities. Nashville:
Discipleship Resources, 1986 (One of the earliest resources by a church publishing house.)
3. Robert Putnam and David Campbell, American Grace: How Religion Divides and Unites Us. New York: Simon and Schuster, 2010.
4. Psalm 121:1
5. William Gaventa, “Defining and Assessing Spirituality and Spiritual Supports: Moving from Benediction to Invocation.” What is Mental Retardation?
Ideas for an Evolving Disability in the 21st Century. Ed. Harvey Switzky and Stephen Greenspan, Washington, D.C.: AAIDDMR, 2006.
N
e
tw
o
r
k
i
n
g
w
i
th
Di
s
a
b
i
l
i
ty
M
i
n
i
s
tr
i
e
s
a
n
d
O
r
g
a
n
i
z
a
ti
o
n
s
, b
y
R
e
v
. Wi
l
l
i
a
m G
a
v
e
n
ta
9
6. Dean A. Preheim-Bartel, Aldred H. Neufeldt, Paul D. Leichty, and Christine J. Guth. Supportive Care in the Congregation: Providing a congregational network
of care for persons with significant disabilities, Rev. Ed. Scottdale, Pa.: Mennonite Publishing Network, 2011.
7. Bill Gaventa (2010) “The Power of One.” New Brunswick: The Elizabeth M. Boggs Center on Developmental Disabilities, http://rwjms.umdnj.edu/
boggscenter/projects/documents/ThePowerofOne.pdf
8. Archdiocese of Newark http://www.rcan.org/index.cfm?fuseaction=category.display&category_id=98 Persons Recognized Accepted Included Spirit-
filled Education – The PRAISE Project is the work of talented professional educators with generous hearts in collaboration with the department for
Pastoral Ministry with Persons with Disabilities. Contact Anne Masters [email protected].
9. Bruce Anderson, Our Door is Open: Creating Welcoming Cultures in Helping Organizations. Vashon, Washington: Community Activators, 2010. Audio CD.
http://www.communityactivators.com/home/our-door
10. Bill Gaventa (2011) “Resources in Developmental Disabilities and Coping with Grief, Loss, and Dying.” New Brunswick: The Elizabeth M. Boggs
Center on Developmental Disabilities, http://rwjms.umdnj.edu/boggscenter/projects/end_of_life.html
11. For an example, The George Washington Institute on Spirituality and Health visit http://www.gwish.org/.
12. For an example, see the Quality in Practice Guide on Spirituality from the Council on Quality and Practice, http://www.thecouncil.org/spirituality
QIP.aspx.
13. See listing of National Faith Offices in Dimensions of Faith and Congregational Ministries with Persons with Developmental Disabilities and their Families, 2009.
Ed. Bill Gaventa, http://rwjms.umdnj.edu/boggscenter/products/Product_FaithBased.html.
14. Bill Gaventa and Wendy Berk (Eds.) Brain Injury: When the Call Comes. A Congregational Resource, New Brunswick: The Elizabeth M. Boggs Center on
Developmental Disabilities, Brain Injury Association of New Jersey, and New Brunswick Theological Seminary, 2001; and Mary Beth Walsh, Alice
Walsh, and Bill Gaventa, Autism and Faith: A Journey into Community, New Brunswick: The Elizabeth M. Boggs Center on Developmental Disabilities,
both downloadable from http://rwjms.umdnj.edu/boggscenter/products/Product_FaithBased.html.
15. See files on the “Faith Community Leadership: A Collaborative Project between New Jersey and Pennsylvania” at http://rwjms.umdnj.edu/boggs-
center/projects/Pennsylvania_Faith.html. Also, the Wisconsin DD Council produced an 11 minute DVD entitled Believing, Belonging, Becoming with
four vignettes about congregational inclusion (two with children, two with adults). Available from The Elizabeth M. Boggs Center on Developmental
Disabilities for $10.
16. Disability and Theology: The Call and Promise for Pastoral Leadership and Theological Education, 2010, CD and downloadable audiotapes from The Elizabeth
M. Boggs Center on Developmental Disabilities, http://rwjms.umdnj.edu/boggscenter/products/Product_FaithBased.html.
17. Listing of recent resources is available at http://rwjms.umdnj.edu/boggscenter/projects/Pennsylvania_Faith.html.
18. Praying with Lior, www.prayingwithlior.com; A Place for All, www.divacommunications.com.
19. Bill Gaventa, Pastoral Care with People with Disabilities and Their Families: An Adaptable Module for Intro Courses, http://rwjms.umdnj.edu/boggscenter/
projects/Pennsylvania_Faith.html.
N
e
tw
o
r
k
i
n
g
w
i
th
Di
s
a
b
i
l
i
ty
M
i
n
i
s
tr
i
e
s
a
n
d
O
r
g
a
n
i
z
a
ti
o
n
s
, b
y
R
e
v
. Wi
l
l
i
a
m G
a
v
e
n
ta
William (Bill) C. Gaventa, M.Div., serves as Director of Community and Congregational Supports at the
Elizabeth M. Boggs Center on Developmental Disabilities, and as Associate Professor, Robert Wood Johnson
Medical School, University of Medicine and Dentistry of New Jersey. In his role at The Boggs Center,
Bill works on community supports, training for community services staff, spiritual supports, training of
seminarians and clergy, aging and end of life/grief issues, and cultural competence. He has been a frequent
speaker, trainer, and workshop leader in these areas. As a writer and editor, he has edited newsletters and
several books and written articles and chapters. He served as the Editor of the Journal of Religion, Disability
and Health for 14 years, now as an Associate Editor. Bill has a wife, Beverly Roberts Gaventa, a Professor of
New Testament at Princeton Theological Seminary, and a son and daughter-in-law.
10
1
Bioethics Past, Present, and Future:
Important Signposts in Human Dignity
By Michael J. Sleasman, Ph.D.
As medical research and technological innovations offer more effective means to alleviate suffering,
extend and improve the quality of life, and cure many diseases that have plagued human history, we
are confronted with evermore complex ethical choices regarding the extent to which we will pursue
these interventions. Our age has been identified as the biotech century,
1
given the significance and
promise afforded to biotechnology in the medical arena. For many people ethical questions regarding
embryonic stem cell research, gene therapy, synthetic biology and therapeutic cloning are a far cry from
the early days of medical ethics, when patient care (relationships between patients and healthcare
providers), and professionalism among healthcare providers themselves were the dominant ethical con-
cerns.
2
As bioethics has evolved into an interdisciplinary field of engagement, the questions it addresses
have expanded well beyond the bounds of initial concerns relevant to the realm of medical ethics. In-
deed, as medical research and technological innovations have progressed and accelerated, the very na-
ture of medicine itself is now being questioned. Concerns regarding patient care and the importance
of human touch in clinical practice are being replaced by the drive for disease cures and the cold effi-
ciency of protocol and technique.
In this essay, we will traverse the evolving landscape of bioethics beginning with its traditional
origin in medical ethics and following it through the complex dilemmas of our contemporary, tech-
nologically immersed age. We begin with a survey of the questions and concerns of traditional bioethics.
We then move to explore the contemporary and emerging landscape of what we will refer to as Bioethics
2.0. We conclude by examining the opportunities for the Church to engage the broader culture on
these important bioethical issues.
Classical Bioethics: From Medical Ethics, Reproductive Technology,
and End of Life Issues to the Rise of Biotechnology
Many in the field of bioethics point to a 1962 Life magazine article, entitled “They Decide Who Lives,
Who Dies,”
3
as the emergence of public awareness to the concerns of bioethics introduced through the
innovation of kidney dialysis. Bioethics as a specialized field of inquiry emerged as a contemporary
discipline within a long history of ethical reflection.
4
Though the term “bioethics” is of recent origin,
many of the core concepts of bioethics and its historic sibling medical ethics are found in the Hippo-
cratic tradition and the philosophical tradition.
The Hippocratic tradition served as a primary foundation of Western medicine going back to the
Oath of Hippocrates in the fourth century B.C. up through the very recent history of medicine, and is
still regarded by many as a primary directive of sorts to the medical profession. The Hippocratic Oath,
faithfully recited by generations of medical students, is known for its high ideal of medical profession-
alism and for its famous promotion of the patient’s welfare through the principle of “do no harm.”
This oath and the subsequent tradition of Western medicine that followed in its footsteps held to a
principled practice of medicine. When combined with the Judeo-Christian worldview, these combined
affirmations yielded an unprecedented regard for the value and dignity of human life. These two affir-
mations functioned as dominant guidelines for Western medicine until the advent of the modern era
in the wake of the Enlightenment.
5
The eighteenth and nineteenth centuries saw the impact of the scientific revolution
6
in the rise of mod-
ern medicine and with it the moral responsibility to ask questions regarding the ethics of care and treat-
ment. In this period of medical advances new questions were asked crossing the boundaries of medicine,
philosophy (specifically ethics) and religion (specifically theology). The resulting conversation of medical
ethics (and later what became more commonly known as clinical ethics) was born as a field of inquiry.
In the twentieth century, the horrors of WWII and the human rights violations prevalent in the
push toward eugenics in Nazi Germany (and in the United States as well, though this often is not as
well known),
7
brought greater scrutiny to the medical profession. This scrutiny led to reflections on
the responsibility of medical professionals to their patients, greater attention being given to patient
autonomy and rights and the importance of informed consent in medical practice. Furthermore, special
concern was given to the protection of patients in medical experimentation, which since has evolved
into the contemporary concern regarding human subject research ethics.
Etymologically, bioethics refers to the “ethicsof “life” or perhaps more specifically the “ethics of the
life sciences,” though early in its usage this term was more directly linked to the medical profession. As
scientific research and technological innovation have continued, the broader sense of this term has gar-
nered greater interest expanding the field of inquiry to include ethical questions not directly applicable
to the human, such as animal ethics and environmental ethics. As is clear from the term itself, bioethics
is a sub-discipline within the broader disciplines of ethics. Specifically, it is a category of applied ethics
that reflects upon developments in the life sciences, particularly as these relate to our common humanity.
The tension between the practical concerns of bioethics, which tend toward case-based evaluation,
and the overarching concerns of theory and methodology has been an ongoing debate within bioethics.
This tension has grown more thorns as bioethics has diversified in its interdisciplinary nature. The
conversation has expanded to include specialists and practitioners from the academy (philosophers,
theologians, as well as research scientists and physicians) and the medical practitioners (physicians,
nurses, technicians, etc.) to the legal and policy realm (lawyers, government officials and lobbyists) and
even to those in social services and counseling. The diverse interdisciplinary nature of bioethics often
has led to the general inability to forge agreements in the public square due to the vast methodological
differences and assumptions brought to the table by each of these divergent disciplines.
8
Bioethics 1: The Expanding Concerns
Many people have noted that the traditional questions surrounding classical bioethics dealt with the
ethics of life and death. Not surprisingly these traditional concerns focused quite heavily upon the be-
ginning and end of life, asking such questions about when human life begins and/or how human life
B
i
o
e
th
i
c
s
P
a
s
t, P
r
e
s
e
n
t, a
n
d
F
u
tu
r
e
: I
mp
o
r
ta
n
t S
i
g
n
p
o
s
ts
i
n
H
u
ma
n
Di
g
n
i
ty
, b
y
M
i
c
h
a
e
l
J
. S
l
e
a
s
ma
n
, P
h
.D
2
should end. Indeed, these have been noted as the two initial phases of traditional bioethics, which
theologian Nigel Cameron referred to as the era of the “making” and “taking” of human life.
9
For
ease of reference, we can label these categories “Bioethics 1,” the first era of bioethics, since the cate-
gories generally overlap in their timing and find their origins in the early days of bioethics. Cameron
proposes a third category which he names the “faking” of human life, which we will examine in the
next section of this essay and to which I will refer as “Bioethics 2.0.” As we will see, there is a distinct
transition in the changing face of bioethics between these two phases of bioethics.
Bioethics 1 is identified by a series of key medical advances, landmark legislation and court rulings,
as well as the subsequent ethical questions they raised. Some of the pivotal medical advances included:
the first successful kidney transplant in 1954, the first amniocentesis in 1966 and the first heart trans-
plant in 1967. In the legal and legislative realms, the Supreme Court decision of Roe v. Wade in 1973
and the passage of the first living will law in California in 1976 were equally watershed moments for
the nascent field of bioethics.
1
0
Suddenly unknown questions introduced increasing moral complexity
into the care of the patient. These questions included the allocation of scarce organs and lifesaving
treatments, the knowledge of abnormalities of children still in the womb, the codification of patient
autonomy through the recognition of living wills, and the reproductive rights of a woman’s choice.
For many, bioethics has been represented primarily by the abortion debate. This issue more than
any other has been a hallmark of Christian bioethics and what became known as the pro-life move-
ment. The longstanding legal and legislative battles in the wake of Roe v. Wade have attempted to limit
and/or overturn the precedent of the permissibility of abortion. Furthermore, abortion as a bioethical
issue is seen by many as a watershed topic since it engages some of the fundamental questions re-
garding the so-called “right to life” or what is referred to by many as the “the sanctity of life.”
Relevant questions addressed by abortion include whether humans have inherent value and dig-
nity, as well as the much disputed question of when human life begins,
11
particularly as these are
weighed in the context of maternal autonomy, safety and risk. From a Christian bioethical standpoint,
key questions regarding human personhood and the theological concept of the image of God are
heavily considered. More recent considerations of abortion have focused on the concern for a physi-
cian’s right of conscience—a position which claims that physicians should not be required to perform
(or refer patients for) practices that the physician is ethically opposed to. Recent moves within the
obstetric and gynecological credentialing organizations, as well as discussions regarding healthcare
reform, have raised this to a prominent concern for many Christian physicians.
Another early bioethical concern alongside abortion was that of contraception and reproductive
ethics as a whole. In the wake of the sexual revolution, concerns regarding abortion and contraceptives
took on an entirely different quality with the advent of reproductive ethics. Contraception serves in
many respects as an extension of the issues reflected in abortion particularly for the use of certain
birth control methods (e.g., certain types of oral contraceptives, intrauterine devices, and emergency
contraceptives) that demonstrate abortifacient qualities (i.e., allowing fertilization of the egg and the
sperm, but either discouraging/preventing implantation of the fertilized egg or expulsing it from the
uterus). For others more concerned about the implications to sexual ethics as a whole, contraceptives
reflect the separation of the sexual activity from procreation.
12
Thus, within the ethical considerations
of contraception there are a variety of questions regarding the meaning of sexuality and the appro-
priateness of the use of any form of artificial birth control. More recently, ethical considerations
raised by the development of RU-486 and the “morning after pill” have added professional concerns
regarding whether there also exists a right of conscience for pharmacists who do not want to fill pre-
scriptions for known abortifacients.
B
i
o
e
th
i
c
s
P
a
s
t, P
r
e
s
e
n
t, a
n
d
F
u
tu
r
e
: I
mp
o
r
ta
n
t S
i
g
n
p
o
s
ts
i
n
H
u
ma
n
Di
g
n
i
ty
, b
y
M
i
c
h
a
e
l
J
. S
l
e
a
s
ma
n
, P
h
.D
3
With the first successful human birth resulting from in vitro fertilization (IVF) in 1978, assisted re-
productive technologies (also known as “artificial reproductive technologiesor ART) moved the
proverbial line of how life begins. Procreation, a concept that had theological ties to the divine role in
the origin of children and the miracle of childbirth, was transformed in the face of such beginning of
life technologies and procedures. Suddenly we were faced with the question of whether children are
begotten or made, in which children become more like products and commodities rather than gifts.
1
3
Contemporary usage of “reproduction” as the language for childbearing redefined our ideas of how
children may be born in terms of products, procedures, and technological categories of efficiency and
quality through a firestorm of medical and technological advances. The evolution in reproductive med-
icine and technology moved from simple procedures (e.g., artificial insemination) to more complex
procedures (e.g., IVF), and finally on to the introduction of third party gamete donors (egg and/or
sperm) and surrogacy (i.e., the provision of a woman’s womb to carry a baby to term for another couple).
The expansion of third parties, donors and surrogates, involved in these reproductive procedures have
further complicated marital relationships and the relationship of parents with their children, as well
as creating a host of legal and ethical questions surrounding the nexus of children, property rights,
and third party donors.
Additional reproductive ethics issues also have arisen in the contemporary context. With the in-
creasing value of human eggs for fertility, concerns have been raised over the exploitation of women
through the procurement of eggs by payment for IVF and in some limited cases for research. Further-
more, the explosion of IVF as an unregulated industry in the U.S. has led to a host of questionable
practices including the abortive practice of selective reduction due to the unnecessary implantation of
too many embryos and the freezing of so-called “excess embryos.” As of 2009, between 400,000 and 1
million embryos sit in a cryogenic equivalent to limbo in U.S. fertility clinics, raising the question of
appropriate ends for these embryos (e.g., embryo adoption/donation, termination through unfreezing,
destruction through medical/scientific research). The removal of human eggs through IVF and the
subsequent fertilization of human embryos outside of the uterus also contributed to a scientific journey
that culminates in stem cell research and cloning.
The final classic arena of Bioethics 1 is that of end-of-life issues. As life expectancies were extended
through modern medicine, the elderly progressively face the prospect of dying from long-term disease
rather than as the result of sudden onset death (e.g., from a heart attack or stroke). While the benefits
of extending life are clear, this increasingly extended dying process raises numerous questions such as
resource allocation of limited resources, whether artificial nutrition and hydration are essential basic
procedures, the appropriateness of withholding and withdrawing certain medical technologies and
procedures, and the ethical debates over physician-assisted suicide and euthanasia. As aging research
continues to develop, these issues are being replaced in the contemporary arena by those related to
radical life extension and immortality research.
While the preceding represents the classic arenas of bioethical discussion, the ongoing realities of
limited resources raises a host of healthcare issues related to the philosophy of medicine and competing
economic and policy models of medical practice. The continuing pace of medical advances and the ris-
ing cost of healthcare have led to significant conversations regarding the allocation of resources and
the strained relationship between patients, physicians, and managed care entities. This ranges from
clinical ethics and the cost of care, to the structure of medical education, insurance and medical liability,
pharmaceutical research and drug prices, and the list goes on.
The mapping of the human genome completed in 2003 was the culmination of a 13-year interna-
tional project with profound implications and in many ways designates a key transition from Bioethics
B
i
o
e
th
i
c
s
P
a
s
t, P
r
e
s
e
n
t, a
n
d
F
u
tu
r
e
: I
mp
o
r
ta
n
t S
i
g
n
p
o
s
ts
i
n
H
u
ma
n
Di
g
n
i
ty
, b
y
M
i
c
h
a
e
l
J
. S
l
e
a
s
ma
n
, P
h
.D
4
1 to Bioethics 2.0. This magnificent achievement has led to fantastic scientific discoveries in the realm
of genetics and particularly in understanding human DNA. While early ethical concerns focused on
research into genetic therapies, contemporary concern has turned to the rise of genetic testing options,
the specter of eugenics, and the possibility of designer babies. Particularly when combined with the
advances in ART, these technologies prove to be a dangerous combination. Nearly 90 percent of all ba-
bies diagnosed in utero with genetic anomalies (especially those with Down syndrome) are now aborted.
1
4
With the push toward affordable personal genome testing, there also has been rising public anxiety
over genetic information and privacy. This concern eventually led to the successful passage of U.S. fed-
eral legislation in 2008 that set in place protections from genetic discrimination by employers and
health insurance companies. While this legislation was viewed as a success in addressing the concerns
of genetic information, it came in the wake of nearly a decade of failed legislative attempts and multiple
years beyond the mapping of the human genome itself. This legislative delay serves as a demonstration
of how public policy and legislation often lags significantly behind the science and technology.
1
5
Other bioethical considerations have arisen in that genetic awareness has led to confusion regarding
the distinction between genetic predispositions and genetic determinism. This confusion has led many
to redefine what it means to be human in a purely materialist reading, reducing humanity to mere au-
tomatons of our genetic makeup. Furthermore as genetic sequences are better understood the older
questions of genetic therapies are again on the rise, with their prospects of redefining what it means
to be human.
Biotechnology and other emerging technologies serve as the final categories of traditional bioethics
and also serve as bridges between Bioethics 1 and Bioethics 2.0. In many respects these are the latest
generation of discoveries and “advances” in medical, scientific, and technological research. The most
prominent discussions in biotechnology have been those surrounding stem cell research, human cloning,
and the creation of animal-human hybrids (also referred to as chimeras or cybrids). Other emerging
technological concerns on the horizon include nanotechnology, synthetic life forms, cybernetic tech-
nologies, and the rise of human replacement agendas such as transhumanism. Key issues of ethical con-
cern regarding these biotechnologies include the status of the human embryo, the appropriateness and
limitations of technological interventions, and the difficulty of discerning the difference between therapy
and enhancement.
Much of the public awareness concerning biotechnology has focused on the question of regenerative
medicine, with stem cell research receiving the majority of the attention. Stem cell research is divided into
two types. Embryonic stem cell (ESC) research, which currently requires the destruction of embryos, re-
ceives the majority of the attention but has yet to yield any successful clinical treatments. Non-embryo
destructive stem cell research on the other hand includes adult stem cells, which are derived from such
sources as bone marrow, fetal tissue, and umbilical cord blood. These adult stem cell sources have proven
to be quite beneficial in the successful treatment of a variety of cancers, auto-immune diseases, and blood
disorders.
16
Initially, the flexibility of embryonic stem cells was believed to have greater potential for the
development of treatments and cures. With the development of induced pluripotent stem cells, which
are derived from skin cells or other mature cells and demonstrate the same sort of flexibility of ESC, as
well as several studies that are beginning to point to greater flexibility within traditional adult stem cells,
many are beginning to question whether it is necessary or even effective to use embryonic stem cells.
Bioethics 2.0: The Evolving Terrain of Contemporary Bioethics
With the advent of the last two categories of technological advances (i.e., genetics and biotechnology)
and the issues raised, we discern the departure from Bioethics 1. This transition is not to suggest that
B
i
o
e
th
i
c
s
P
a
s
t, P
r
e
s
e
n
t, a
n
d
F
u
tu
r
e
: I
mp
o
r
ta
n
t S
i
g
n
p
o
s
ts
i
n
H
u
ma
n
Di
g
n
i
ty
, b
y
M
i
c
h
a
e
l
J
. S
l
e
a
s
ma
n
, P
h
.D
5
the questions raised by Bioethics 1 have ceased or that they have lost their relevance, because they
continue to challenge our common humanity on a daily basis. Rather the departure from Bioethics
1 to Bioethics 2.0 is the advent of an entirely new set of questions and issues. The key issues in
Bioethics 1 surrounded identifying the following: When does human life begin? When does it end?
Does quality of life matter? Are all human beings entitled to special value and dignity? What does
this entail? The implications of the decisions tended to be personal and isolated or at least confined
to the sphere of personal or familial decision-making while perhaps at the same time being legislated
and judged at a societal level.
Bioethics 2.0, however, sees a radical shift in the nature and implications of our ethical questions
due to the shift in the very nature of the technologies and their potential impact upon humanity. As
science pushes the boundaries on controlling both the beginning and end of life, leaving the marginal
cases fewer and much more limited in scope, we are less concerned with when life begins and ends. The
impact of these new issues shifts from the person to society with global implications. Even the best in-
tentions, if misplaced, can lead to catastrophic consequences. The challenges of Bioethics 2.0 force us
to begin to ask what it means to be human.
The rise of the computer age and the biotech revolution are finding and will find growing conver-
gence in the remaking and commodification of the human. With the predilection of our contemporary
society toward technology and science to improve the quality of our lives, resistance against the techno-
logical imperative is becoming progressively difficult. As the President’s Council on Bioethics noted in
a report, the challenge with these technologies is that they are not likely to be created with nefarious
ends in mind. On the contrary, it is their potential for dual-use, offering simultaneously the power both
to treat therapeutically and to enhance, that makes them so very difficult to assess.
1
7
It is not the danger
of parents trying to create a super child that will end in designer babies, but rather the parent who wants
the best for their child and tries to secure every genetic advantage possible. It is in those moments when
human beings become mere commodities, instruments as means, rather than ends in themselves. With
all of these pressures, it is no wonder that author Katherine Hayles assesses the belief of researchers such
as Hans Moravec and Michael Dyer that “the age of the human is coming to a close.”
18
Bioengagement: Opportunities for the Church to Engage Culture through Contemporary Bioethics
Bioethics 2.0 calls for a much more comprehensive strategy to respond to the issues before us. The re-
sponses to issues of Bioethics 1 often times have been casuistic, in their attempts to discern proper
conduct to difficult decisions. As the concept of being pro-life became a bumper sticker, the justifica-
tion for human dignity became a vacuous placeholder filled with whatever context one deemed appro-
priate. The theological moorings of the special value and dignity of life as rooted in the image of God
were lost. The lesson learned is that there must be theological substance behind the bioethical positions
we take. They must be rooted in thoughtful reflection of Scripture, but also of the technologies them-
selves. These questions rely on technologies and situations that were inconceivable in biblical times.
We must become adept at understanding the world theologically, moving from convictions regard-
ing what it means to be human and the relationship of humanity both to the rest of creation and to
the tools that we make. We cannot live as if these bioethical concerns are the domain of science fiction
films and literature. They are genuine concerns some of which are already here, some still on the hori-
zon, and some still off in the technological distance. This reality demands that the Church must over-
come its fear of the technical. Whether it is Bioethics 1 or 2.0, both demand that we establish a basic
understanding of the sciences, particularly in biology, if we are to develop informed responses to the
new scientific discoveries and technological innovations of our day. This is nowhere more evident than
B
i
o
e
th
i
c
s
P
a
s
t, P
r
e
s
e
n
t, a
n
d
F
u
tu
r
e
: I
mp
o
r
ta
n
t S
i
g
n
p
o
s
ts
i
n
H
u
ma
n
Di
g
n
i
ty
, b
y
M
i
c
h
a
e
l
J
. S
l
e
a
s
ma
n
, P
h
.D
6
in the discussions over embryonic stem cell research, where so much misinformation is prevalent with
both the general public and within the Church.
Bioethics is a sphere in which the Church has great opportunities for engaging the broader culture
for a variety of reasons. As mentioned earlier, one primary factor is that bioethics deals at the core of
human existence, in all of its frailties and physical imperfections. Additionally, bioethical issues often
occur in the context of great personal struggles. These personal times of difficulty are opportunities for
care and support, for guidance and the demonstration of love. It is worth highlighting that in 2004 the
Lausanne Committee for World Evangelism identified bioethics as one of the 31 most significant issues
in the world relevant to the work of evangelism. The opportunities for the Church in bioethics will in-
clude such traditional approaches as activism and advocacy, but will also demand education and equip-
ping. The Church must move from being reactive to proactive on these pressing issues of our day.
Furthermore, as Nigel Cameron has noted, Bioethics 2.0 is going to demand both a new pro-life
paradigm and a new kind of politics. According to Cameron, this new pro-life paradigm will demand
that we must become better at addressing the emerging bioethical questions, which “are of equal gravity
to our conscience and our civilization in their threat to the sanctity of human life,”
19
rather than re-
ducing everything down to the issue and politics surrounding abortion.
20
Furthermore, the changing
bioethical landscape demands that we make uneasy alliances with those who do not share pro-life sen-
timents, but care deeply for human dignity after birth and are suspicious of technological interven-
tions.
21
The ability to transcend certain differences in beliefs will be necessary as we consider the impact
of these technologies upon our common humanity, for we are merely talking about the future of what
it means to be human.
Additional Suggested Reading:
Bevington, Linda, et al. Basic Questions on Genetics, Stem Cell Research, and Cloning: Are These Technologies
Okay to Use? (Grand Rapids: Kregel, 2004).
Kilner, John, and C. Ben Mitchell. Does God Need Our Help? Cloning, Assisted Suicide, & Other Challenges in
Bioethics. (Wheaton: Tyndale, 2003).
Mitchell, C. Ben, Edmund Pellegrino, Jean Bethke Elshtain, John Kilner, and Scott Rae. Biotechnology
and the Human Good. (Washington, DC: Georgetown University Press, 2007).
Stewart, Gary, et al. Basic Questions on End of Life Decisions: How Do We Know What’s Right? (Grand Rapids:
Kregel, 1998).
Stewart, Gary. Basic Questions on Sexuality and Reproductive Ethics: When Is It Right to Intervene? (Grand
Rapids, Kregel, 1998).
Stewart, Gary. Basic Questions on Suicide and Euthanasia: Are They Ever Right? (Grand Rapids: Kregel, 1998).
Tada, Joni Eareckson, and Nigel M. de S. Cameron. How to Be a Christian in a Brave New World (Grand
Rapids: Zondervan, 2006).
NOTES
1. Jeremy Rifkin, The Biotech Century: Harness the Gene and Remaking the World (New York: Putnam, 1999). Indeed, theologian Brent Waters has noted that
“technology is the way we live and move and have our being in today’s age.”
2. For a detailed history of bioethics consult Albert Jonsen, The Birth of Bioethics (New York: Oxford University Press, 2003.
3. S. Alexander, “They Decide Who Lives, Who Dies,” Life 53 (1962): 102-25. Albert Jonsen notes that these two questions along with “who decides?”
form the three perennial questions addressed by bioethics. Albert Jonsen, Bioethics beyond the Headlines: Who Lives? Who Dies? Who Decides? (Lanham,
MD: Rowman & Littlefield, 2005), 7-8.
4. As a subset of applied or practical ethics, bioethics stands in the lineage of ethical reflection within the philosophical tradition. Simply put, applied
ethics are a form of ethics which deals with the application of ethical theory to a particular profession or context. Ethical theory represents the more
abstract form of philosophical reflection in ethics, dealing not first and foremost with everyday situations so much as with the bigger picture
questions of methodology and overarching theories.
B
i
o
e
th
i
c
s
P
a
s
t, P
r
e
s
e
n
t, a
n
d
F
u
tu
r
e
: I
mp
o
r
ta
n
t S
i
g
n
p
o
s
ts
i
n
H
u
ma
n
Di
g
n
i
ty
, b
y
M
i
c
h
a
e
l
J
. S
l
e
a
s
ma
n
, P
h
.D
7
5. The Enlightenment marks a historic period in philosophy roughly beginning with the writings of René Descartes (1596-1650) and concluding with
Immanuel Kant (1724-1804). While specifics regarding the precise nature, players, and impact of the Enlightenment are disputed within various academic
circles, this period in Western history marked a profound revolution of sorts in ethics, philosophy, politics, religion, and science among other fields.
6. As with the Enlightenment, the scientific revolution is a historical marker in Western thought with a particular interest in the transition from classic
theories of science to modern paradigms of science. Notable figures in this transition which spans the sixteenth and seventeenth centuries include:
Copernicus, Kepler, Newton, and Galileo.
7. Cf. Edwin Black, War against the Weak: Eugenics and America’s Campaign to Create a Master Race (New York: Four Walls Eight Windows, 2003); Christine
Rosen, Preaching Eugenics: Religious Leaders and the American Eugenics Movement (New York: Oxford University Press, 2004; Richard Weikart, From Darwin
to Hitler: Evolutionary Ethics, Eugenics, and Racism in Germany (New York: Palgrave Macmillan, 2004).
8. Cf. H. Tristram Engelhardt, Jr., ed., Global Bioethics: The Collapse of Consensus (Salem, MA: Scrivener, 2006). To be sure the methodological differences
are not solely to blame in this inability to come to agreement. Since bioethics deals with a variety of questions concerning human life, many of the
disagreements lay in fundamental differences in the value and beliefs one attaches to human beings. Thus, it is also a question of worldview.
9. Nigel M. de S. Cameron, “Christian Vision for the Biotech Century” in Human Dignity in the Biotech Century (Downers Grove: InterVarsity, 2004), 25-26.
According to Cameron, the three phases are Bioethics 1 (the taking of human life), Bioethics 2 (the making of human life), and Bioethics 3 (the faking
of human life).
10. Gilbert Meilaender, Bioethics: A Primer for Christians (Grand Rapids: Eerdmans, 1996), ix. Christian ethicist C. Ben Mitchell has noted on several occasions
that the invention of something as simple as flexible tubing was one of these watershed moments leading to such medical technologies as ventilators
and IV lines.
11. Among others the views represented include conception/fertilization, implantation, the point after which twinning can no longer occur, the introduction
of the primitive streak, viability, birth, and the development of sentience.
12. This separation of sexual activity from procreation is referred to as the unitive-procreative principle, which holds that all sexual acts must be both
unitive (the joining of the couple) and procreative (that there must be no artificial hindrance to the possibility of producing children from the unitive
act). Within Christian contexts this is the dominant position of the Roman Catholic Church and is prominent among many Protestants as well.
13. A passing reference to Oliver O’Donovan’s classic discussion on this topic, Oliver O’Donovan, Begotten or Made: Human Procreation and Medical Technique
(New York: Oxford, 1984).
14. Caroline Mansfield, Suellen Hopfer, Theresa Marteau, “Termination Rates after Prenatal Diagnosis of Down Syndrome, Spina Bifida, Anencephaly,
and Turner and Klinefelter Syndromes: A Systematic Literature Review” Prenatal Diagnosis 19(9): 808-812.
15. Genetic Information Nondiscrimination Act of 2008 (GINA).
16. For the latest information on successful trials utilizing adult stem cell sources consult http://www.stemcellresearch.org.
17. President’s Council on Bioethics, Beyond Therapy: Biotechnology and the Pursuit of Happiness (New York: Harper Collins, 2003), 19-20.
18. N. Katherine Hayles, How We Became Posthuman: Virtual Bodies in Cybernetics, Literature, and Informatics (Chicago: University of Chicago Press, 1999),
283. Cf. Hans Moravec, Robot: Mere Machine to Transcendent Mind (New York: Oxford University Press, 1999), 134.
19. Cameron, 34.
20. Ibid., 35-37.
21. Ibid., 37-39. Examples of some of theseuneasy alliancesinclude initiatives such as Hands off Our Ovaries, Institute on Biotechnology & the Human
Future, and the recently formed Center for Policy on Emerging Technologies.
B
i
o
e
th
i
c
s
P
a
s
t, P
r
e
s
e
n
t, a
n
d
F
u
tu
r
e
: I
mp
o
r
ta
n
t S
i
g
n
p
o
s
ts
i
n
H
u
ma
n
Di
g
n
i
ty
, b
y
M
i
c
h
a
e
l
J
. S
l
e
a
s
ma
n
, P
h
.D
8
Michael J. Sleasman, Ph.D., is the Managing Director and Research Scholar for The Center for Bioethics & Human
Dignity. He has served as an adjunct instructor and online course tutor at the college and graduate level of a number
of institutions, including Trinity International University and Wheaton College. Michael received his doctorate in
theological studies from Trinity Evangelical Divinity School. He has co-edited and contributed several essays to the
volume Everyday Theology: How to Read Cultural Texts and Interpret Trends. In addition, he has written a number of
book reviews and articles. Michael has been interviewed on a range of bioethical issues by ABC News Radio, Atlanta
Magazine, CNS News, Family News in Focus, Medill News, Northwestern College Media, and SRN News.
1
Questions People Ask
By Joni Eareckson Tada & Nigel M. de S. Cameron
As authors of the book, How to Be a Christian in a Brave New World, Joni and Nigel have been asked a lot of
questions on topics like stem-cell research, cloning, genetic engineering and biotechnology. In this paper, they will
share some of their answers. However, bear in mind that short answers can never provide the complete response
with such complicated human issues. We encourage you to apply them in the context of the other information and
personal stories you’ve encountered in Beyond Suffering. Joni and Nigel would challenge you to move into a po-
sition to get your own answers, as well as share them with others. They want you to join them in teaching the church
how to live for God in the special world of the twenty-first century!
Does a Clone Have a Soul?
Yes, of course! God doesn’t give souls to some people and not to others. Genesis 1 says that every human
being, every member of our species, is made in God’s image. That means they have souls. We have souls
from the moment we become human (which is when our biological lives start, as fertilized embryos or
cloned embryos).
The fact that bad things were done to begin the lives of cloned people does not affect their status
as people. Never doubt that even tiny embryos are fully human. Not only are they members of the hu-
man species (just like chimpanzee embryos are members of the chimp species), but we know that Jesus
took human form as a zygote, a tiny embryo. That’s when his human life began, and it’s when ours be-
gin as well.
If one day cloned babies are born, they too will be totally human, even if they resulted from the
kind of planning and manufacturing that should never be used to make people. “Designed” humans
are still human; but to the extent that they result from someone’s planning, their human dignity is
compromised.
Sometimes people say, “But the cloned baby is not unique; he or she is a copy.” In genetic terms,
that’s true. But so are identical twins! Twins happen naturally, so there is nothing wrong with being a
twin. Clones happen unnaturally, and of course instead of twins or triplets, you could have ten thou-
sand “identical clones,” all different ages, copies of a celebrity profiled in People magazine.
But genes are not everything. Even in the womb, twins become different in important ways: they
have different fingerprints; their brains form in different ways. So the identical twins we know (and per-
haps you are a twin!) are often similar in uncanny ways, but also different—sometimes very much so.
What Can We Do?
People often ask this question with a sense of resignation, feeling that bad things are inevitable and
that our efforts will go nowhere. That’s not true!
Christians have made a huge difference in history precisely because they were not defeatists. They
believed in a great God! And they could see opportunities all around them to make a difference.
Whether you make a difference in one person’s life, or a nation’s life, it’s a huge difference. We can
see today the impact Christians have made at high levels in politics. We can also see the difference
they have made at ground level. The pro-life movement early on learned that we can do both, must
do both—so we have Crisis Pregnancy Centers and we lobby Congress to push through laws to end
“partial-birth abortions,” defending the unborn victims of violence.
We need exactly the same approach on these wider issues as we have taken on abortion. We need
to live distinctive lives, to testify to our friends and neighbors and coworkers, and to work to defeat
evil and promote what is good at every level in the culture. If we get discouraged, we need to remem-
ber the great example of William Wilberforce and his lifelong campaign to abolish slavery. And we
also need to get better informed, because whatever discouragements we meet, there are always other
places where things are going better. The media will not always help. Not many Americans know
that “therapeutic cloning,” such a huge issue in U.S. politics, has actually been banned north of the
border in Canada.
So there is something everyone can do! You need to think and pray and work out what it is for you.
Should We Use In Vitro Fertilization?
Christians take different stances on that question, and we can understand why. Catholics have been
taught to avoid in vitro since it involves too many moral problems. Evangelicals often haven’t thought
about it at all. Some who have, agree that it is wrong. Others conclude that it all depends on what you
are doing with the technology. It’s ultimately a question of conscience—making up your mind in the
Lord’s presence, after you have studied the pros and cons.
But some things seem clear to us. This is not a routine medical procedure; it is filled with moral
problems. We don’t think you should select the “best” embryos and discard the others. We don’t think
you should create more embryos than you are going to implant, nor that you should implant more
than can be safely carried to term if they survive. We don’t think it is ever right to freeze embryos;
they are human beings, and pro-lifers do not stick other human beings in the freezer. We don’t think
that unmarried women should ever use in vitro; babies should be conceived in the context of marriage.
We don’t think surrogate mothering is ever justified; carrying someone else’s baby for money (a womb-
for-rent) or even for friends and family. And, of course, we don’t think that “donor gametes” should
be used—sperm and eggs from people other than the couple concerned.
Some people use in vitro to have their own babies, carefully restricting the use of the technology
so that these evils can be avoided. Whether you do so is up to you, once you have prayed it through
and talked it through and read all you can on the pros and cons of having a test-tube baby.
“We Have Used In Vitro and We Have Frozen Embryos; What Should We Do Now?”
You know the story of the traveler in Ireland who asked the way to Dublin? He was told: “You can’t
start from here!” In a fallen world, we always have to deal with situations we wish we had not gotten
ourselves into.
Q
u
e
s
ti
o
n
s
P
e
o
p
l
e
A
s
k
, b
y
J
o
n
i
E
a
r
e
c
k
s
o
n
T
a
d
a
& N
i
g
e
l
M
. d
e
S
. C
a
me
r
o
n
2
The key is to remember who your frozen embryos are. They are not things; they are not part of
your body; they are people: tiny, unconscious, frozen people. So what should you do? You should
give them every chance of life. That will usually mean taking responsibility for having them im-
planted, and carrying them to term, if you are (medically) able to do that, as with every baby. It
may be possible for them to be “adopted” by another couple, and programs like Snowflakes help
make that possible. Using a “surrogate” mother to rescue an embryo who would otherwise perish
is of course completely different from deliberately setting out to use in vitro for surrogate moth-
ering—as different as adopting an orphan is from kidnapping or buying a baby.
Are Tiny Embryos Really Human?
When the press quotes pro-lifers, they often suggest that our beliefs are simply incredible. How can
a tiny, microscopic embryo really have the kind of human dignity that brings the “right to life”?
How can it be a he or a she, “one of us”?
When you put it like that, it can sound incredible. Early embryos—zygotes, blastocysts, various
technical words describe them at different stages—are tiny, they are unconscious, they have no
organs or nervous system or brain—and since the 1970s they have been available for experimen-
tation. Some Christians who are definitely against abortion have their doubts. In fact, one of
the most disheartening experiences in the debates about cloning and embryo stem cell research
has been that some “anti-abortion” politicians have decided to trim their sails and come out in
favor of destroying early embryos.
There are two basic answers to the question. One comes simply from science. While tiny em-
bryos appear to us to be very different even from later embryos and fetuses (we use that word
from eight weeks of gestation onwards), the problem lies with us. Our imagination is at fault.
Every fact we have learned about genetics and embryology suggests that we are wrong to harbor
these doubts. All it takes to turn an embryo into a college student is two things: a suitable envi-
ronment and food. So when someone says,That doesn’t look like a human being to me, the
answer is, “that’s exactly what human beings look like when they are young; it’s what you and I
looked like too at that age.” A famous philosopher once wrote an essay with the title, “Was I a
Zygote?” The answer, of course, is yes!
Many, many big shifts in human development turn a zygote into a voter. Some people have
suggested that the biggest ones come after birth, when the new human being becomes self-aware
and able to communicate, or when he or she becomes able to take care of himself or herself
(teens? after college?). The point is that we are biological beings who go through many changes.
Unless we focus on what is special about the human species, we leave ourselves open to racism
and other kinds of discrimination against the handicapped, the elderly, and whatever group of
humans it becomes fashionable to regard as less than human.
But Christians have another answer. For us, it’s easy! We believe in Jesus. And we know that
Jesus became one of us in the incarnation. As soon as his mother Mary conceived him, mirac-
ulously, by the power of the Holy Spirit, his human life as the Son of God began. Read the
Christmas story at the start of Luke’s gospel, and remember that Luke was a physician. He tells
how when Mary was only a few weeks pregnant, she met her cousin Elizabeth, six months preg-
nant with John the Baptist. John “leapedfor joy in Elizabeth’s womb at the presence of the
tiny Jesus in Mary’s giving his first testimony to Jesus. And, of course, we read in Genesis 1 that
every member of the species is made in the image of God. That’s how Jesus could take human
Q
u
e
s
ti
o
n
s
P
e
o
p
l
e
A
s
k
, b
y
J
o
n
i
E
a
r
e
c
k
s
o
n
T
a
d
a
& N
i
g
e
l
M
. d
e
S
. C
a
me
r
o
n
3
nature, because we are already made in Gods image. And it’s how he could become incarnate as
a zygote.
Shouldnt Christians Be in Favor of Cures?
The embryo research debate has sometimes degenerated into a shouting match—at least, from the other
side. However reasonable we try to be, we get shouted at. We try to make a reasoned case about the
need for ethical science, about the dangers of mass-producing humans for experiments, about the fact
that science has in the past done terrible things (remember Nazi Germany). They yell back: “We can
get cures!” It can be a strange thing to be a Christian in public debate today; we are always accused of
being irrational, but we are the ones with the reasoned case!
Of course we favor “cures.” We may be skeptical of hype, and there never has been hype like the ex-
travagant and often very dishonest language used by scientists and biotech lobbyists in their search
for federal money and their desire to avoid any kind of ethical regulation on what they do. We favor
cures that come from ethical research. And the wonderful thing about recent discoveries in the life sci-
ences is that there are many possible ways of coming to the same results. Not many people know that
all of the applications of “stem cell research” to human beings have not come from using embryos at
all, but what are called “adult” stem cells—the cells hidden away in your own body! Check out the web-
sites we list below for the latest details.
Im a Pastor, and I Am Concerned That Our Church Not Get into Politics.
We agree! Churches are not meant to be party affiliated, and only rarely should they get into anything
on the political agenda. Christians come to different decisions on issues of party politics, and our
churches need to remain places where you are free to be Democrat, Republican, or to join smaller parties
that uphold human dignity and freedom. Catholics have tended to be more Democrat (though the
abortion issue has been pushing many of them to vote for the GOP). White evangelicals tend to vote
Republican. African American evangelicals tend to vote Democrat. We make our political decisions for
many reasons, and it’s important that pastors and teachers in the churches don’t tell us, “If you are a
real Christian, you need to vote for X.”
At the same time, churches need to teach the values of Christian living for the twenty-first century.
They should not tell us how to vote, but they do need to tell us that we should vote and get well-informed
about the issues behind elections. Sometimes there will be a big single-issue campaign (like the ballot
initiatives in California on euthanasia and embryonic stem cell research) on which Christians have a
very distinctive view, not party political. This may happen on a local issue, such as a plan for gambling.
The church does not suddenly become “political,” but it needs to give a lead so that its members feel
encouraged to act as Christian citizens, have the best information, and feel confident that it’s right for
believers to take a lead in the culture and campaign for good things and against evil ones. That is what
being “salt and light” in a democracy is all about.
Many Christians think only two options exist: turn the church into a political campaigning group;
or opt out entirely and live as if you were on the moon. Neither of these is the Christian way. A key task
of the church is to educate believers to become informed citizens and to exercise their citizenship for
Jesus Christ. That will never be more important than in the brave new world.
Reprinted from How to Be a Christian in a Brave New World by Joni Eareckson Tada & Nigel M. de S. Cameron, 2006. Used by permission of Zondervan Pub-
lishing House, Grand Rapids, MI.. All rights reserved.
Q
u
e
s
ti
o
n
s
P
e
o
p
l
e
A
s
k
, b
y
J
o
n
i
E
a
r
e
c
k
s
o
n
T
a
d
a
& N
i
g
e
l
M
. d
e
S
. C
a
me
r
o
n
4
Recommended Resources
Magazines, Websites, and Organizations
Ethics and Medicine magazine offers unique Christian perspectives on the bioethics/biotech debates.
www.ethicsandmedicine.com
The New Atlantis magazine broadly surveys issues of science and technology, though with a special focus
on the biotech agenda. www.thenewatlantis.com
The Center for Bioethics and Culture is a Christian network with centers in several states that help ed-
ucate non-specialists. www.thecbc.org
The Wilberforce Forum’s Council for Biotechnology Policy emails a monthly biotech update newsletter.
www.biotechpolicy.org
The Institute on Biotechnology and the Human Future, based at Chicago-Kent College of Law in the
Illinois Institute of Technology, brings together Christians and secularists, conservatives and progres-
sives, in addressing the challenges of biotechnology. www.thehumanfuture.org
Other groups that include some biotech related materials on their websites are:
National Right to Life Committee (www.nrlc.org)
Family Research Council (www.frc.org)
Concerned Women for America (www.cwfa.org)
Focus on the Family (www.fotf.org)
Q
u
e
s
ti
o
n
s
P
e
o
p
l
e
A
s
k
, b
y
J
o
n
i
E
a
r
e
c
k
s
o
n
T
a
d
a
& N
i
g
e
l
M
. d
e
S
. C
a
me
r
o
n
5
Nigel M. de S. Cameron, Ph.D., President and CEO of the Center for Policy on Emerging Technologies,
has been a Research Professor and Associate Dean at the Illinois Institute of Technology where until 2008
he was Director of the Center on Nanotechnology and Society. In 2003, he co-founded the Institute on
Biotechnology and the Human Future. He recently edited Nanoscale: Issues and Perspectives for the Nano Century.
Cameron has served on numerous advisory boards and represented the U.S. on delegations to the UN Gen-
eral Assembly and UNESCO, and been a participant in the U.S./EU dialogue Perspectives on the Future of
Science and Technology. He is a member of the Executive Committee of the U.S. National Commission for
UNESCO, and has testified before both houses of Congress, the European Parliament and the European
Commission’s Group on Ethics in Science and New Technologies. In 2008, he was the U.S. Government’s
nominee to the UN Human Rights Council as Special Rapporteur for the Right to Health. A naturalized
citizen of the U.S., he is a native of the UK where he studied at Cambridge and Edinburgh Universities and
the Edinburgh Business School.
Joni Eareckson Tada is the founder of Joni and Friends International Disability Center, a nonprofit min-
istry with a global outreach. A diving accident in 1967 left Joni, then 17, a quadriplegic in a wheelchair.
Since then, Joni’s wisdom and influence have been shared with the world through bestselling books,
radio programs, television programs and frequent speaking. Her radio program is carried by over 1,000
broadcast outlets and heard by over a million listeners. Joni is also an accomplished artist and singer. She
has served on the National Council on Disability and the Disability Advisory Committee to the U.S. State
Department.
1
What Do We Do Now?
By Joni Eareckson Tada and Nigel M. de S. Cameron
We are standing at a unique point in history. All the advances in technology that have enabled hu-
mankind to move from primitive tribal cultures to complex societies have only begun to prepare us
for what comes next.
We have now begun to use technology on ourselves, to reshape ourselves, to determine what we
shall be—a watershed in the history of the human race. Until now our human nature has been “given,”
something we inherit and take for granted. We can keep fit, eat well, use surgery and medications to
address accidents and ailments. We are who we are, and who God has made us.
On the Threshold
Today we stand on the threshold of a brave new world in which it will increasingly be up to us to decide
who we shall be. In small and significant ways, it already is.
Using in vitro technology with “pre-implantation genetic diagnosis” enables us to weed out genet-
ically sick embryos and perform very early abortions. But it also enables us to choose babies whose tis-
sue and organs we may want to use later, for others.
The cloning debate shows how things will develop. Look at this pattern: First will come some new
discovery, a new technique, an amazing and disturbing achievement. It will dominate the news maga-
zines, and in common with many others, we will worry about what it may mean. The biotech industry
and its allies in the medical and science communities will lobby hard for its acceptance. New scientific
discoveries usually need no law to make them legal; it is the old laws that need to be revised, and that
is hard. Turning outrage and alarm into public policy will prove complex and difficult.
Those who support the new technique will hold out the prospect of “cures”; disabled and sick peo-
ple will get paraded in front of congressional committees and television cameras.
Meanwhile, the biotech lobbyists will play with language and use focus groups to devise the best way
to market this new “product.” Sometimes they will employ an outrageous technique—as in the Harry
and Louise pro-cloning radio ads, when one character asks the other (talking about embryo cloning for
experiments), “Isn’t this cloning?and gets the resounding answer “Noooo!” Dr. Joseph Goebbels, Adolf
Hitler’s propaganda chief, became famous for his declaration that lies need to be big to be believable.
The biotech industry’s “big liethat denies that experimental embryo cloning at all is a terrible warning
of what we shall soon face. The debasing of language will make debate increasingly hard.
Meanwhile, in our first struggle for human dignity in the face of biotechnology, we have barely
made a start. Many worried Christians have moved to the forefront of the campaign to ban cloning.
Yet most others fail to see the importance of the issue or know much about it. Fewer still understand
that this is just the tip of the biotech iceberg. An agenda awaits us that will rival and surpass the sig-
nificance of abortion. The human species is in the process of redesign and reinvention; the “post-human
future” awaits us.
In his famous book commending a Christian view of all of life, Francis Schaeffer asked the question,
How Should We Then Live? How are we to live as believers in the first years of the twenty-first century?
How are we to live, knowing what we know about the mix of blessings and threats that come together
in the biotech revolution—and the profound threat that it could pose to humankind? Are these things
inevitable? Can we resist them? What strategy should we use?
Strategies for the Church:
Salt and Light in the Twenty-first Century
God calls us to be salt and light, and never before has that role been more important. We are light to
declare the truth; we are salt to preserve what is good and deter decay. We are called to be salt and light
in the face of biotech’s threat to human nature and its unique dignity. So what do we do?
Four key strategies need to work together.
1. Be distinctive! The Apostle Paul tells us not to be “conformedto the standards of the world
around us. Never has that principle been more needed than as we face the brave new world.
Just as Christians have learned to “just say no” to abortion, and as they may soon need to
say no to euthanasia, we will be called on to navigate complex uses of technology as we retain
our distinctive Christian identity.
We find little encouragement in how Christians have responded to in vitro fertilization.
Pastors and teachers have ignored it, and many Christians have been through treatment cy-
cles with little awareness of the huge ethical issues at stake. But the debate on cloning and
embryo stem cell research has awakened us to the fact that abortion is not the only issue of
profound moral significance. We are more alert to the emerging biotech agenda. If we can
learn well from this experience, we will become prepared for the demands on our integrity
that we will soon meet. Our discipleship may meet no greater challenges as we step forward
into the vast temptations of the brave new world—temptations in the shadow of Babel.
2. Be informed! The Church of Jesus Christ must be by far the best-informed sector of the
population in respect to these new questions and the threats they pose. That means educa-
tion—and the Church is well able to mount a huge educational initiative for its members.
Only in this way will we become prepared to live distinctive lives, and to serve as salt and
light for human dignity in our culture.
3. Mobilize! We must mobilize. The energy and commitment that have characterized the
Christian response to abortion show what can be achieved. Yet, as we know, political work
on abortion has engaged only a small slice of the Church. Many sympathize; few have acted.
We have vast potential in the Church, with tens of millions of Christians and, side by side
with the educational resources of individual congregations, we have hundreds of colleges,
seminaries, and Bible schools. We have huge parachurch ministries, websites, magazines
Wh
a
t Do
W
e
Do
N
o
w
?
, b
y
J
o
n
i
E
a
r
e
c
k
s
o
n
T
a
d
a
&
N
i
g
e
l
M
. d
e
S
. C
a
me
r
o
n
2
and conferences. As the biotech challenge emerges as the greatest opportunity for salt-
and-light Christian response in this century, we have at our disposal a vast reservoir
of resources.
4. Engage! We must engage. As on so many great issues of the day, some outside the Church
agree with us, and we welcome their agreement and seek to work with them. Such a strat-
egy was the cornerstone of William Wilberforce’s famous efforts to end slavery. This em-
inent British statesman worked with anyone who would work with him to improve the
conditions of the slaves, to end the slave trade, and finally to abolish slavery in the global
British Empire a generation before the Civil War raged here in the U.S. We have worked
with unbelievers on the rights of the handicapped, on pornography, human rights, the
reform of prison conditions, and religious liberty. We must work with others here.
Most people agree with us that cloning is wrong. That includes many religious lead-
ers—some mainline, liberal Christians (who, like the United Methodist Church, are often
pro-choice on abortion)—as well as Jewish and Islamic leaders. It also includes many en-
vironmentalists and pro-choice feminists. Christians need to be ready to work with any-
one who believes that human dignity is at stake in the biotech revolution and is prepared
to work with us. It will bring us side by side with people who take very different views
on other issues—what writer and lawyer Wesley Smith has called “strange clonefellows”!
Be distinctive. Be informed. Mobilize. Engage. Powerful ideas can have powerful consequences—but
we must build strategies and follow through with them if we want our ideas to shape the culture.
That is how we answer those many committed believers who ask us: “But what can I do?”
Sometimes the emphasis is on the “I”—“What can I do?” Every individual, each one of us, can
commit to this fourfold challenge.
Sometimes the emphasis is on the “do“—“But what can I do?” People often ask that question
as a way of shrugging their shoulders, throwing up their hands in horror, turning their backs, and
walking away from a problem that seems too big to face. But the answer is always very practical. In
the rest of this chapter we outline some practical steps we can all take, starting now. We believe in
a great God who has given his people mighty resources for such a time as this. This battle is
winnable. But—to stick with the metaphor of war—we must be prepared to fight.
Abortion and the Biotech Agenda
Key to the educational program that will awaken the Church to the biotech agenda is our com-
mitment to fight abortion. For a generation, abortion has captured the heart and imagination of
Christians like nothing else. From a slow start, evangelicals have joined Catholics in an equal part-
nership in political as well as caring work. As a result, the pro-life movement has grown powerful
in Washington, D.C., and in state capitals around the nation. Through hundreds of crisis preg-
nancy centers, tens of thousands of devoted volunteers work to undermine the abortion culture
in their communities. Abortion has proved the one issue of bioethics that has engaged the con-
science of the Church and commanded its action. Indeed, it has proved the one social issue that
has captured the imagination of Christians on a huge scale. It gives a sharp focus to our political
influence and has been the chief distinguishing mark of our agenda for cultural issues. We seek
a culture of life.
Wh
a
t Do
W
e
Do
N
o
w
?
, b
y
J
o
n
i
E
a
r
e
c
k
s
o
n
T
a
d
a
&
N
i
g
e
l
M
. d
e
S
. C
a
me
r
o
n
3
Yet while abortion stands out as “the” issue for many Christians, fewer than desired have taken
this issue seriously. In every church fellowship you can find a handful of activists. So much depends
on the pastor or priest. It is not that most evangelical pastors and Catholic priests are pro-choice,
but they have different priorities. They do not all agree that this issue is so important.
That is not a criticism (although that depends on their other priorities!). God does not call us
to spend all our time and resources fighting abortion. Believers face many challenges in a culture
that is slowly but surely turning its back on the Christian vision of the world. But in many churches,
the “priorities” are inward-looking, institutional issues such as new buildings.
For many Christians, the great social and cultural issues of our day attract hardly any notice at
all. Most evangelical Christians do not even vote! Many of them seem able to live in almost complete dis-
engagement from the culture and its “salt and light” opportunities. Jesus told the parable of the
Good Samaritan to illustrate how religious people can use their religion to block out love for their
neighbors. All the vast religious activity of our generation, with its buildings and organizations and
meetings, can offer us cover as we ignore the needs of our day and our opportunities to meet them.
We conveniently forget that, for a Christian, every opportunity is also a responsibility.
Second, the pro-life movement has focused almost exclusively on abortion and shown little in-
terest either in the emerging biotech issues or even the growing threat of euthanasia. Abortion, of
course, is not a disease; it is a symptom. The move to liberal abortion is not an isolated development;
it emerges from a much broader collapse in our idea of what it means to be human, and from a
compliant and weak medical profession that has gone along with changing social assumptions. Eu-
thanasia is a further symptom of the same disease.
When Francis Schaeffer and C. Everett Koop issued their wake-up call, Whatever Happened to the
Human Race?—a book and a powerful video series that had a dramatic effect on evangelicals world-
wide—they made exactly this point: that abortion and euthanasia are twin products of the same
abandonment of the sanctity of life.
Third, as we cast our eyes on the unfolding biotech agenda, the pro-life movement’s great
strength—its strong focus on abortion—could also emerge as a weakness. For while abortion is a
vivid example of a larger group of principles—treating people like things, using human beings as
commodities, denying the image of God—in back of abortion lies a new mindset in medicine and
society. We find ourselves in a much wider discussion in which medicine and technology are on
trial. Euthanasia and cloning are not other” issues; they form part of the same issue. And as we
have been arguing all through this book, manufacturing and manipulating human life is evil in
the same way that killing is evil. Abortion, for all its horror, is not the issue; it is merely the plainest
example so far of the abuse of human dignity in our culture. But there are others. And they are
getting worse.
So as we seek to educate the Church, we need to begin with abortion, but not end there. What
lies behind taking human life (abortion, euthanasia), making human life (the copying and manipu-
lation of the new biotech—cloning, genetic engineering), and the prospect of faking life (artificial
intelligence, nanotechnology) is really one principle: the desire for power and control over human
life, our own and the lives of others. It is a desire for power and control to decide, not just issues of
life and death, but what kind of life shall be lived. It’s the Babel desire to declare independence from
God and assert absolute control over us and our affairs. It’s the sin of rebellion against God, let
loose first in the Garden of Eden, sampled in Cain’s murder of his brother, and finally demonstrated
by the builders of the tower. Yet they were just preparing the way for us. What they built with bricks
and mortar we build with eggs and sperm and genes and nanotechnology.
Wh
a
t Do
W
e
Do
N
o
w
?
, b
y
J
o
n
i
E
a
r
e
c
k
s
o
n
T
a
d
a
&
N
i
g
e
l
M
. d
e
S
. C
a
me
r
o
n
4
If we are to work to prevent, under God, what C. S. Lewis called “the abolition of man,” these open-
ing years of the twenty-first century are our strategic moment. We have in our generation the best op-
portunity for Christians to be salt and light. We have a cause so great that we find it hard to grasp its
importance. We have a chance to shape the future for good and for God, and defeat forces intent on
destroying human nature as we know it. Babel is rising again, a high-tech challenge to the glory of God
and the dignity of his human creatures. Today’s Babel builders are out to make a name for themselves
on a far larger scale. God has called us to rule his earth for him. Jesus Christ has summoned us to be
salt and light in the corruption of our own generation. This is our task.
We need to get on with it.
We wrestle not against the media, the biotech industry, and pharmaceutical companies. In this bat-
tle, we wrestle against spiritual powers of darkness.
Christians recognize the Devil as a real and personal being. Scripture calls him a liar, a murderer,
and an accuser of the brethren (John 8:44; Revelation 12:10). He lies in that he pushes the premise that
a tiny “clump of cells in a petri dish” isn’t worthy of moral respect and legal safeguards. The Devil is a
murderer in that he promotes the destruction of human life, whether in a research lab or by the bedside
of a ventilator-dependent, brain-injured person. Finally, he is an accuser of the brethren in that he slanders
Christians, charging us with caring more about “zygotes” than real people with heartbreaking diseases;
he is constantly condemning Christians who work to safeguard life and promote human dignity.
At the Joni and Friends International Disability Center and the Christian Institute on Disability,
we understand it is a moral battle, a battle that focuses on what people believe about the human em-
bryo. We believe that all pursuit of medical advancements reflects somebody’s morals; we don’t want the
media, politicians, celebrities, pharmaceutical companies and the biotech industry setting the moral
agenda. Wise leaders who hold a biblical worldview must be our guides. We need advocates who have
a deep respect for life and a commitment to improve our culture, not diminish it.
You are that advocate. The first handicapped people to be carted off by Nazi medical teams were
disabled people who had no advocates, no one to speak up or stand up for them. When Psalm 140:12
states, “I know that the L
ORD secures justice for the poor and upholds the cause of the needy,” God is
thinking of your hands and your voice.
What Does it Involve?
Promote a pro-life perspective in your church by forming a disability ministry… creating an outreach
into nursing homes… forming a partnership with your local Crisis Pregnancy Center.
Alert your church’s prayer team on the need to cover these issues in prayer. Provide them with infor-
mation on local, state, and national legislation or policies. If your church does not have a prayer team,
organize a group of like-hearted Christians who will agree to bring these issues before the Lord in prayer.
Ask your pastor to address stem cell research in a sermon series, or to include it in Sanctity of Life
Sunday.
Organize a panel discussion on stem cell research at your church.
Ask a Bible college or seminary in your community to hold an off-campus bioethics course at your
church, then invite other churches to participate and advertise the course.
Ask an informed and interested couple in your church to host a short informational seminar on
the ethics of artificial reproductive technologies, including in vitro fertilization.
Plan a Sunday school class using curriculum such as Playing God?: Facing the Everyday Ethical Dilemmas
of Biotechnology by Charles Colson and Nigel M. de S. Cameron, Ph.D.
Wh
a
t Do
W
e
Do
N
o
w
?
, b
y
J
o
n
i
E
a
r
e
c
k
s
o
n
T
a
d
a
&
N
i
g
e
l
M
. d
e
S
. C
a
me
r
o
n
5
Volunteer as an ombudsman at your local nursing home.
Ask how you, or an interested elder in your church, might serve on an ethics committee at your
local hospital.
Sponsor a symposium at your church; gather four or five presenters who can speak to the top-
ics in this book. To locate presenters in your area, contact the Center for Bioethics and Human
Dignity.
Create a small watchdog task force that will investigate bills and initiatives in either your state
assembly or in the U.S. Congress. Contact your state representative of National Right to Life.
Contact your state or U.S. representatives at their district offices; leverage your vote by also asking
a couple of friends to call or write. Follow up the effort by writing or calling your representatives at
your state capital or in Washington, D.C.
Coordinate a letter-writing party to reach your state or national representatives and local or state
supreme court justices. These letters ought to be personal and not sound as though you copied them
from an organized campaign. A personal letter informs not only legislators and judges, but their
clerks and staff who do much of the research for the judicial or representative’s office.
Connect with groups like Not Dead Yet or ADAPT to find out what policies or laws are encroach-
ing on the welfare of disabled or elderly people.
Coordinate a network of writers who are either disabled or elderly to submit op-ed pieces and
letters to editors, most especially newspapers in your state capital or Washington, D.C.
Most of all, share your convictions in thoughtful, reasoned conversations with friends, neighbors,
coworkers, and family members. To be salt and light in your community is to engage people in these
issues, whether waiting in a hair salon, writing a letter to the editor, walking through a nursing home,
talking in the coffee klatch, meeting on a community bioethics board in a hospital, sitting in the
student lounge at college, or spending hours in an emergency room.
You are in a battle for the minds and hearts of men … you are the advocate.
In the book How to Be a Christian in a Brave New World, we tell the story of Larry, a truck driver who
broke his neck and just wanted to die. Here’s what I (Joni) wrote to Larry:
Dear Larry,
I can appreciate the fact that you just don’t want to go on. Really. There are days when I wake up, even now,
after all these years, and think, Lord Jesus, I don’t have the strength. But the weaker I am physically, the
harder I have to lean on the Lord; and the harder I lean on him, the stronger I discover him to be. God always
seems bigger to those who need him most. He is drawn to people like you and me. He’s attracted he has a
special heart for – the weak. And I will tell you flat out, I would rather be in my chair knowing him, than on
my feet without him. I’m going to be praying for you over the next few weeks, asking God to aid and comfort
you … and that the Lord Jesus, the Bread of Life, the Resurrection and the Life, he who has the Words of Life
will help you want to live. In the meantime, I’m sending you some resources and groups in your area who
can serve as your advocate there in the nursing home.
Larry is not better off dead than disabled. The fact is, better to be disabled than follow the wisdom
of this age. Better to follow life… the Resurrection and the Life. And the life that Jesus gives is always
abundant. It’s why Jesus was nailed to the cross. Not only to redeem us from sin, but to reclaim this
world as rightfully his.
Wh
a
t Do
W
e
Do
N
o
w
?
, b
y
J
o
n
i
E
a
r
e
c
k
s
o
n
T
a
d
a
&
N
i
g
e
l
M
. d
e
S
. C
a
me
r
o
n
6
That’s the message that will change Larry’s heart. And it’s the message that, with a lot of prayer,
will change the soul of a society… the heart of our nation.
Reprinted from How to Be a Christian in a Brave New World by Joni Eareckson Tada & Nigel M. de S. Cameron, 2006. Used by permission of Zondervan Pub-
lishing House, Grand Rapids, MI.. All rights reserved.
Wh
a
t Do
W
e
Do
N
o
w
?
, b
y
J
o
n
i
E
a
r
e
c
k
s
o
n
T
a
d
a
&
N
i
g
e
l
M
. d
e
S
. C
a
me
r
o
n
7
Nigel M. de S. Cameron, Ph.D., President and CEO of the Center for Policy on Emerging Technologies,
has been a Research Professor and Associate Dean at the Illinois Institute of Technology where until 2008
he was Director of the Center on Nanotechnology and Society. In 2003, he co-founded the Institute on
Biotechnology and the Human Future. He recently edited Nanoscale: Issues and Perspectives for the Nano Century.
Cameron has served on numerous advisory boards and represented the U.S. on delegations to the UN Gen-
eral Assembly and UNESCO, and been a participant in the U.S./EU dialogue Perspectives on the Future of
Science and Technology. He is a member of the Executive Committee of the U.S. National Commission for
UNESCO, and has testified before both houses of Congress, the European Parliament and the European
Commission’s Group on Ethics in Science and New Technologies. In 2008, he was the U.S. Government’s
nominee to the UN Human Rights Council as Special Rapporteur for the Right to Health. A naturalized
citizen of the U.S., he is a native of the UK where he studied at Cambridge and Edinburgh Universities and
the Edinburgh Business School.
Joni Eareckson Tada is the founder of Joni and Friends International Disability Center, a nonprofit min-
istry with a global outreach. A diving accident in 1967 left Joni, then 17, a quadriplegic in a wheelchair.
Since then, Joni’s wisdom and influence have been shared with the world through bestselling books,
radio programs, television programs and frequent speaking. Her radio program is carried by over 1,000
broadcast outlets and heard by over a million listeners. Joni is also an accomplished artist and singer. She
has served on the National Council on Disability and the Disability Advisory Committee to the U.S. State
Department.
1
Disability, Calling and
A Kind of Life Imposed on Man
By Dr. Rick Langer
Introduction
Disability is commonly seen as an impediment to one’s calling, imposed by outside circumstances or
uncontrollable events, limiting our ability to “become who we really are.” Such limitations on self-re-
alization are obviously problematic, and some have responded by attempting to change our views of
disabilities, denying that they are imposition and emphasizing the goods that they bring. Though
goods can certainly come from disabilities, I would argue that to attempt to re-frame our understanding
of disabilities is to mistake the problem. The real problem lies not with our understanding of disabilities
(however problematic that might be) but rather with our understanding of callings. Callings just are
impositions—and therefore even if disabilities are in some sense an imposition, that does not make
them incompatible with one’s calling. Quite the contrary; it is quite natural to see one’s disability as
compatible, contributing, and at times even constitutive of one’s calling.
In order to make this argument, I will first consider the writings of the 16
th
century Puritan the-
ologian William Perkins. His discussion of calling was one of the most influential of a host of Puritan
writings on calling. Perkins’ analysis will lay a foundation for assessing the contribution of both abilities
and disabilities to an individual’s calling. Finally, a similar application of the notion of calling will be
made to churches rather than individuals. In both cases, it will be argued that we are called to take up
our disabilities and include them as constitutive parts of our divine calling.
Calling in Theological Perspective
Christian conceptions of calling underwent a dramatic change during the Protestant reformation.
A notion that for centuries was applied only to those in vocational ministry was suddenly applied to
all Christians alike.
1
Both the Lutheran and Reformed branches of the Reformation shared this under-
standing. It found its fullest expression among the English Puritans, and particularly in A Treatise of
the Vocations by William Perkins.
Perkins begins by offering a definition: “a vocation or calling is a certain kind of life, ordained and
imposed on man by God for the common good.”
2
Notice that the origin and purpose of a calling are
both external to oneself. Calling originates in God, and its purpose is the common good. Why does Perkins
believe this? His reasoning is well-explained in his text:
The author of every calling is God himself… every man is to live as he is called of God. For look
as in the camp, the General appoints to every man his place and standing… and therein [he is] to
live and die. Even so it is in human societies: God is the General appointing to every man his par-
ticular calling,in performance whereof he is to live and die… Again, in a clock, …there be many
wheels,… some turn this way, some that way, some go slowly, some apace: and they are all ordered
by the motion of the watch. Behold here a notable resemblance of God’s special providence over
mankind, which is the watch of the great world, allotting to every man his motion and calling…
Therefore it is true that I say, that God himself is the author and beginning of callings ...
3
Clearly, a general is concerned for the battle as a whole, not the happiness of an individual soldier.
Indeed, it is assumed that a soldier has enlisted because of a cause higher than his or her own happiness.
Likewise, the wheels of a clock move in a way that only makes sense when viewed as a whole. In both
cases, these ultimate and external purposes are far more fundamental than the individual purposes of
a particular part. And just as the purpose of the call lies external to the person who receives it, likewise
the origin of the call is not from within but from without. Callings originate with the general or the
watchmaker and come as a command rather than a choice. It is, in Perkins words, an imposition.
This definition is strongly at variance with contemporary notions of calling. Most contemporary
discourse on calling centers on self-discovery and personal satisfaction. One seeks a calling, one does
not receive a command. One’s calling is an expression of one’s “true self,” and when such a calling is
found, one finds true happiness and fulfillment. Calling will coincide with our personality and talents,
and serve as a means of true self-expression which will ultimately bless both ourselves and the world.
4
It is clear that disabilities are an impediment to calling in this second sense. They are dis-abilities,
not abilities. They are impediments, not talents. They are an imposition, not a gift. Contemporary no-
tions of calling are ill-equipped to make sense of a disability. And it is precisely at this point that Perkins’
definition of calling becomes so relevant. It is a definition of calling that can make sense of imposition
and find meaning apart from personal happiness. Consider some of the essential elements of a theology
of calling that emerge from Perkins’ perspective:
1. Callings are not chosen. Callings are imposed on people as a matter of logical and theological
necessity. Calling, by the meaning of the word, is always from one person to another. There-
fore, as a matter of logical necessity, they originate externally to the person who receives the
call. Therefore it is strange to speak of “seeking” a calling, or “finding” a calling, or “discov-
ering” a calling. Calls are not sought, or found or discovered; they are answered. Though
they may be mediated in many ways, the originator is always God. As Perkins puts it, “the
author of every calling is God himself.”
2. Calling is often unintelligible at an individual level. First, since calling requires a “caller” as
a matter of logical necessity, a full account of a call cannot be given simply by considering a
single individual. A call sends one outside of oneself and is only intelligible from an external
standpoint. Perkins illustrates this by his appeal to the motions of the gears in a watch that
individually have confused and unintelligible motions, but in aggregate the gears produce
the clock’s steady and consistent motion infallibly marking the times and the seasons.
Di
s
a
b
i
l
i
ty
, C
a
l
l
i
n
g
a
n
d
A
Ki
n
d
o
f
L
i
f
e
I
mp
o
s
e
d
o
n
M
a
n
,
b
y
Dr. R
i
c
k
L
a
n
g
e
r
2
3. Callings serve the good of others. Notice that Perkinsanalogy to the gears of the
watch does not imply that our calling makes no sense. Rather, it implies that in order
to make sense of our calling we will have to appeal to a larger whole—and for Perkins
this larger whole is the “common good.That callings focus on the good of other peo-
ple is not surprising. God is the origin of all calls, but God himself has no need of us.
He lacks nothing we can offer; he has no weakness that we can strengthen; he has no
illness that we can heal. Therefore, a call will always involve a third party—some other
human being or institution that requires our service. Our individual actions become
intelligible in light of the common good of humanity, or the particular purposes of a
church, or of the needs of those God has placed around us. Christian callings are a
call to service.
This theological account of calling raises certain practical questions. Most obviously, if a calling
is “a kind of life imposed on man,” how is it imposed? Surely in a fallen world there are many im-
positions made upon a person. How can one tell if an imposition is from God? Furthermore, it
seems counterintuitive to assume that our desires and abilities are irrelevant to our calling. Surely
performing a calling well has some correlation to one’s native abilities and desires. And it also
seems natural to ask if one’s calling is determined by general principles and personal application
of wisdom, or if it is supposed to come directly from God in some supernatural fashion. Perkins
is not insensible to these questions and makes some attempt to answer them.
Though Perkins defines calling as a kind of life imposed on man, he later talks about “choos-
ing” one’s calling.
5
This apparent contradiction is resolved when one considers Perkins’ guidelines
for “choosing” a calling. He encourages a person to consult his or her “affections [desires] and
abilities.” His assumption seems to be that the passions of our heart and the abilities we possess
are providential gifts of God. Those whom God calls, he also equips with “competent and con-
venient gifts, as knowledge, understanding, dexterity to this or that and such like and thereby
makes them able for the performance of the duties of their calling.”
6
So one’s gifts and abilities
serve as pointers to one’s calling. The God who calls is also the God who creates; we have every
reason to assume that our calling and our individual design were crafted by the will of one and
the same God. Therefore, though the origin of the call is clearly in God, one of the better guides
for discerning our calling is indeed to look within. However, even in this point Perkins is cautious
and comments that “many men are partial in judging of their inclinations and gifts, the best way
for them is to use the advice and help of others that are able to give direction herein, and to discern
better than themselves.” So though one of the first indicators of the true calling of God is our
giftedness and inclinations, these are not best discerned by an inner quest but by the input of
others who know you well.
Perkins also adds that callings are often distributed by human authorities. Again, the assump-
tion here is that all authority is ultimately from God, but the way it is mediated is often through
other human beings who are placed in authority over us. So in virtue of our situation in life and
our location within certain political jurisdictions, we are subject to particular human authorities
who may very well become channels of divine calling.
So to summarize, though the origin of our calling is in God, it is commonly mediated through
human agency. This agency includes our giftedness particularly as seen through the eye of our peers,
our providential circumstances, and our divinely appointed authority structure. One would expect
to identify one’s calling by a convergence of these providentially controlled human channels.
Di
s
a
b
i
l
i
ty
, C
a
l
l
i
n
g
a
n
d
A
Ki
n
d
o
f
L
i
f
e
I
mp
o
s
e
d
o
n
M
a
n
,
b
y
Dr. R
i
c
k
L
a
n
g
e
r
3
Calling, Ability and Disability
Disability connects to this discussion of calling partly because of several interesting parallels between
our abilities and our disabilities:
1. Abilities and disabilities are equally effective in revealing God’s providential design and
therefore point equally well to our calling. Perkins states “…they that enter into any calling,
being utterly unable to perform the duties thereof, were never called of God.” In the same
way an ability contributes to confirming a call, an inability (or presumably a disability)
contributes to the disconfirmation of a call. In both cases, one is attempting to discern
God’s call by the fit between call and aptitude.
2. In Scripture it is clear that not only gifts and abilities come by divine appointment, but
also our weaknesses and disabilities. Moses was concerned about his ability to speak,
Gideon was concerned about his age, Paul was concerned about his ability to see. But in
all of these cases, it is clear that the impediment in question was there by divine intention.
They were apportioned to these men by the divine will. And in each of these cases, what
might have been a disqualifying disability was actually ordained by God to further their
calling in indirect ways. As the motion of the gears of a clock sometimes appear confused,
and certain gears may actually turn in opposition to the hands of the clock, they make an
essential contribution to the final purpose of telling time.
3. Both abilities and disabilities contribute to our social context. Because of aptitudes, one
naturally develops relationships, connections and obligations. It may be connections to
those who share the same abilities; it may be connections to those in need of those abilities;
in either case our abilities connect us to certain authorities, awaken certain passions, and
enmesh us in certain obligations. Disabilities create a social context as well—shared gifts
and shared needs are equally likely to create a context for human relationships. Once this
context is created, all the normal human structures of authority, obligation and relation-
ship ensue. And callings are imposed upon us through these social contexts—whether in
the formal fashion of civil authority which Perkins describes, or through the more diverse
but equally real informal structures of civil society.
4. Though not explicitly mentioned by Perkins, it is worth noting that neither abilities nor
disabilities completely define who we are. In fact, it is often distressing to a person to be
overly defined either by ability or disability. It is both painful and common for those with
disabilities to be labeled by that disability and effectively have their identity reduced to their
disability. But abilities can also constrict one’s identity, for example, the actor who is “type-
cast” by a notable success in a particularly distinctive role. In effect, one’s identity has be-
come defined by a single feature of one’s person and as a result, one’s calling becomes
artificially constrained. So it is well to remember that though both abilities and disabilities
contribute to calling, neither one should be allowed to define one’s calling completely.
Disability and Ability in Contrast
There are also clearly differences between abilities and disabilities—especially regarding their subjec-
tive experience. As was mentioned at the outset, it is common to perceive a disability as an imposition
Di
s
a
b
i
l
i
ty
, C
a
l
l
i
n
g
a
n
d
A
Ki
n
d
o
f
L
i
f
e
I
mp
o
s
e
d
o
n
M
a
n
,
b
y
Dr. R
i
c
k
L
a
n
g
e
r
4
or limitation. It is not a way to express our freedom, but rather a limitation on our freedom. In this
sense, disabilities are the opposite of abilities which usually grant us powers of self-expression. Gifts
are often merged into our self-perceived identity, so we think of ourselves as “a great artist” or a “strong
leader.” Indeed, it is so natural to incorporate our gifts into our identity that we often forget that they
are a gift at all. We feel proud of our gifts, almost as if they were our achievement. Though one can
bear a disability well, it is more common to be proud of how one has born a disability than to be proud
of the disability itself.
Disabilities may also be seen as disruptive to our callings. They impede our ability to fulfill our call-
ing, posing challenges which make it more difficult to accomplish our God-given tasks. Abilities, in
contrast, are generally our allies in pursuit of our calling. They not only serve to confirm our callings
in the way Perkins describes, they enable us to perform our callings well.
It also appears to me that disabilities and abilities both impact our lives, but they tend to do so in
different ways. Abilities shape our lives silently. We assume them to be part of ourselves and take them
for granted. They open doors and create a social context in a way that we perceive as “natural.” In con-
trast, disabilities do not so much order our lives as re-order our lives. They are not so readily assumed
as a background condition because they constantly intrude into our consciousness. They may very well
contribute to our social context, but they often do so in ways that we perceive as an intrusion. They
may be a gift, but they are a gift that was not on our list.
Disabilities as the Call of the Individual
So how, then, do we understand the relationship between disabilities and calling? It is helpful to un-
derstand that callings are generally an imposition, so that a disability is therefore not contrary to the
very concept of calling. However, it would be easy to read what has just been written as an argument
that disability contributes to calling as a negative imposition, merely by closing doors that would oth-
erwise have been open to us. But is there anything positive to be said about the relationship between
disability and calling? And perhaps more importantly, is there a way to make our disabilities generative
of calling rather than degenerative to our calling?
I believe the answer to these questions is, “Yes.” To lay a theological foundation for considering a
more generative view of disabilities, I will appeal to the contemporary theologian Kevin Vanhoozer. In
his seminal work The Drama of Doctrine, Vanhoozer suggests that theology be approached as a theo-
drama. This drama includes the real lives of real people acting in history, as well as the acts of God
himself. For present purposes, I will pick up a single thread of his argument. He identifies the essential
role of Scripture in this theo-drama, but he points out that it cannot function simply as a script func-
tions for an actor:
[Scripture] plays the lead role in training Christian actors to make good judgments… Yet the
metaphor of performing a script does not quite address the problem of having to speak and act
in ways that fit new situations and address new problems.
7
The challenge is that Scripture was written in a different time and place. It was often answering
specific questions at a specific time—whether prophetic answers to the problems of the Jewish monar-
chy, or epistles answering questions of the early church. But we are called to answer contemporary
questions, not ancient ones. Of course, the answers to the ancient questions should shape our answers
to contemporary questions, but how?
Di
s
a
b
i
l
i
ty
, C
a
l
l
i
n
g
a
n
d
A
Ki
n
d
o
f
L
i
f
e
I
mp
o
s
e
d
o
n
M
a
n
,
b
y
Dr. R
i
c
k
L
a
n
g
e
r
5
Vanhoozer likens our situation to an improvisational theater. An ancient script has been given us
to which we must be faithful. However, our contemporary culture poses new questions to us—these
questions serve as prompts, or in the language of improv, an offering. To this offering, we as Christian
actors must respond. Vanhoozer describes the process as follows:
The technical term used in improvising… is offering. Anything someone does is an offer. State-
ments, gestures, actions—all are invitations to respond by extending the action and keeping the
play going. Offers can either be “acceptedor “blocked.” To accept an offer is to respond in such
a way that maintains and develops the initial premise… A block, by contrast, is anything that
prevents the action from developing. The bad improviser says no to offers, rejects the premise
of the game, and thus halts the action… Improvisers are trained to accept offers and to say yes.
8
So in Vanhoozer’s vision, we are actors in an improv theater, responding to the “offerings” in our
particular time and place. Good improv involves “accepting” an “offering” and carrying the action
forward in an authentically Christ-like manner. Bad improv means “blocking” an “offer” and shutting
down the action. It is not so much a bad response as a refusal to respond because it refuses to take up
the “offering.”
With this perspective in hand, let us return to disability and calling. I contend that a disability
comes to us as an “offering.” It is thrust upon us, not chosen. It is called out to us—perhaps from the
audience of contemporary culture but more often by our particular life circumstance. And we, as im-
provisational actors, are called on to respond to the “offering” which is our disability. If we choose to
be good improvisational actors, we must “accept” this “offering,” rather than “block” it. In accepting
the offering, we take it up and include it in the action. In blocking the offering we shun it, push it to
the side, and refuse to narrate it into the drama we are enacting. In the first case, the offering becomes
generative. It is allowed to contribute to the story. In the second case, the offering is degenerative.
It is an interruption to the story, and the audience is left in awkward silence wondering, “What was
all that about?”
The tipping point in making a disability generative to calling is the decision to accept or block it.
It is as if God has come to us through circumstance and issued a call, and we must choose to accept or
block. Every individual confronted with a disability must consider: Will I accept this offering which
God has given me and include it in the story I act out, or will I block and reject, choosing to live around
my disability rather than live through it?
How do we accept or block an offering? Ownership is the first step toward accepting a prompt; dis-
tancing is the first step toward blocking a prompt. When one owns a disability one effectively includes
it in one’s story. It becomes a part of one’s dramatic role, so to speak. When we block, we refuse to in-
clude our disability as part of who we are. It is an odd ornament dangling from the belt of our costume
without explanation. It serves as an impediment to us and an irritant to our audience. And it impedes
and irritates not because it is large or ugly, but rather because it is unaccounted for. It is there for no
reason. It refuses narration.
Accepting the offering of our disability, therefore, entails a willingness to include it in the next step
of our life. It is a choice to go on with it, instead of going on as if it were not there or refusing to go on
at all. With smaller disabilities, this process is relatively easy, both because it is easier to go on, but also
because it demands less explanation to be included in the narrative of our life. If the disability is more
profound, it is easier for the generative process to break down—a person can no longer conceive of a
possible story line that can continue the action but also include the disability.
Di
s
a
b
i
l
i
ty
, C
a
l
l
i
n
g
a
n
d
A
Ki
n
d
o
f
L
i
f
e
I
mp
o
s
e
d
o
n
M
a
n
,
b
y
Dr. R
i
c
k
L
a
n
g
e
r
6
Perhaps the importance of narration and story-telling deserves some further explanation. We con-
tinually make of our lives some sort of narrative—at the very least for our own self-understanding, but
generally also for presenting ourselves to others. I was struck by the importance of this in a conversation
with a good friend. He was trained both as a philosopher and a psychiatrist and I had learned to have
a high regard for his thoughtful insights. I was working on a project on human flourishing, and ap-
pealed to him for insight on what he had found to be the most essential elements of “human flourish-
ing.” After a long pause he said, “People have to make of their lives a narrative whole.” He went on to
explain that unnarrated parts of our lives have a way of demanding narration. We must narrate signif-
icant life events into the story of our lives. Refusing to confess sin, or accept failure, or embrace disap-
pointment, or forgive offenses, leaves these elements unnarrated. And because they refuse narration
they refuse resolution.
Narrating something into a story almost always involves granting it a future and a purpose. Mean-
ingful components of a story almost never make a cameo appearance. They return of necessity. They
may haunt the narrative with occasional appearances, they may surprise with a sudden appearance in
an unexpected place, or they may be consistently woven into the plot itself. There are many options
for narration, but “one and done” is generally not on the list. But it is a tempting strategy for narrating
a disability. At the other extreme, granting a disability a future should not be confused with granting
it eternity and goodness. Too often we demand resolution by having everything bad become good. This
is indeed a common and particularly pleasant form of resolution. But it is common to fairy tales and
G-rated movies. Life is rarely G-rated and it has far more in common with a Russian novel than it does
with a fairy tale. We do not need to try to repaint all that is bad into being good. Our disability can re-
main a bad thing, but it must find its place and purpose within our story. It may be a foil to show true
goodness; it may be a black background to show a polished gemstone with greater clarity; it may be
the sand which creates the pearl; it may be the enemy that is beaten back for a day, but one knows it
will rise again. However it is included, a disability must find its place.
And a final note on narration: the key to good narration is attachment to the hero of the story. The
plot that drives the good story is at every point attached to the protagonist. The same way one makes
sense of the diverse motions of the wheels of a clock by the movement of the hands, so one also makes
sense of all the diverse stories within a story by their connection to the main character. We tend to see
ourselves as the main character of our story, and this tendency is amplified when we are experiencing
pain and suffering. But surely this tendency is mistaken. The main character of our story is Jesus Christ.
It is his purpose that makes sense of our callings, his plot makes sense of our stories. He is ultimately
writing us into his story. We do not simply suffer, we share in his sufferings. We are not merely tempted,
we are tempted as he was tempted. We do not merely wrestle with the flesh, we share in his incarnation.
As we long for release from “this body of death,” we are really longing to join in his resurrection. Our
drama points forward to fulfillment in his Kingdom, and it is foreshadowed in his life, death and res-
urrection.
Disability and the Call of the Church
Everything that has just been said about disability, calling, and the individual has a direct parallel with
the local church. Just as a disability comes unbidden to an individual, likewise disabled members can
come unbidden to a church. The presence of a disability, whether in an individual or in a church, can
feel as if it is a kind of imposition. But an imposition is not contrary to a calling. When God calls, he
does not always call according to the preferences of an individual or according to the mission statement
Di
s
a
b
i
l
i
ty
, C
a
l
l
i
n
g
a
n
d
A
Ki
n
d
o
f
L
i
f
e
I
mp
o
s
e
d
o
n
M
a
n
,
b
y
Dr. R
i
c
k
L
a
n
g
e
r
7
of a church. God ordains gifts and weaknesses, abilities and disabilities. It is easy for an individual or
a church to look at a disability and say, “I have no need of you.” But God has apportioned these abilities
and disabilities as he wills, not as we choose. And no eye can say to a hand, “I have no need of you.” In-
deed, the weaker parts of the body are indispensable. They are to be treated with greater honor. They
constitute a call, which when taken up, will be found to have edified the body.
The most important question regarding disabilities for a church is the same question that comes
to an individual. In Vanhoozer’s terms, will we accept the offering or will we block it? Will we do good
improv or bad improv? Will we allow the disability to be narrated into our story, and brought forward
into the drama, or will we block it?
Sadly, the church all too often blocks the offering.
We often tell our stories around the “normalprogressions of “normal” people. Those who fall out-
side the norms are somehow assumed to be external to the story of the church. Their life comes to the
church as an imposition and an interruption. We must learn to narrate disabilities into the life of the
church. Oftentimes it is the pulpit which most directly narrates the life of the church. It is there that
we make sense of the connection between our contemporary lives, the Scriptures and God’s eternal
purposes. It is there that the improvisational life of the church is brought to completion. The countless
activities of its many members are made sense of within the biblical narrative. Part of the task of the
pulpit ministry is to include the disabled members of a congregation within the story of the church.
And furthermore, those with disabilities have much more than just their disability. Like every other
person they are a composite of ability and disability, and no one ability or disability may be allowed to
control a person’s entire contribution to the life of the church. Finding a place for disabled persons
also involves finding a place for their abilities—serving according to their abilities in all the ordinary
tasks of the church just as any other member would. Indeed, it is not uncommon to find those with
disabilities are even more eager than many other members in the congregation to serve in areas where
their abilities are needed.
And finally, the church must seek to attach her disabled members to the central character of the
narrative—to Christ himself. This must not be reduced to an eschatological hope for healing and com-
pleteness. Living and functioning in the eschatological Kingdom of God is a wonderful hope to which
we all look forward with joyful anticipation. However, joyful anticipation is no replacement for present
participation. The most direct way to attach those with disabilities to the main character of the divine
drama is through attaching the disabled directly to the body of Christ itself as expressed in the sub-
stantive relationships which make up the local church in this present age. In this fashion, our improv-
isational response to disability will express not only an eschatological hope but also an immediate
Di
s
a
b
i
l
i
ty
, C
a
l
l
i
n
g
a
n
d
A
Ki
n
d
o
f
L
i
f
e
I
mp
o
s
e
d
o
n
M
a
n
,
b
y
Dr. R
i
c
k
L
a
n
g
e
r
8
NOTES
1. As Perkins puts it, “Every person of every degree, state, sex, or condition without exception must have some personal and particular calling to walk
in”. Perkins, William. The Workes of That Famous and Worthie Minister of Christ, In the Universitie of Cambridge, M.W. Perkins. [London]: Printed
by I. Legate, 1605, vol. 1, p. 909.
2. Ibid., p. 903. Perkins, and Puritans more generally, distinguished between “general” callings and “particular” callings. The general calling is to salvation
and new life in Christ, and is the foundation of all callings. The particular calling comes to each individual as a life task. This discussion will center
on the “particular calling”.
3. Ibid.
4. For example: “The value of our calling is that it requires us to express the most fundamental truths of who we are. Our true life’s work returns us to
ourselves. Self-recognition and self-acceptance may be our calling’s first gifts to ourselves. And the world.” From Find Your Calling Love Your Life: Paths
to Your Truest Self in Life and Work, by Martha Finney and Deborah Dasch, Simon & Schuster, New York, 1998, p 21.
5. Perkins, p. 913-915
6. Perkins, p. 915.
7. Vanhoozer, Kevin J. 2005. The drama of doctrine: a canonical-linguistic approach to Christian theology. Louisville: Westminster John Knox Press, p. 335.
8. Ibid., p. 339.
Di
s
a
b
i
l
i
ty
, C
a
l
l
i
n
g
a
n
d
A
Ki
n
d
o
f
L
i
f
e
I
mp
o
s
e
d
o
n
M
a
n
,
b
y
Dr. R
i
c
k
L
a
n
g
e
r
9
Dr. Rick Langer is an Associate Professor in the Biblical Studies and Theology Department at Talbot School
of Theology (Biola University), and also Director of the Office for Faith and Learning. He has also spoken
and published in the areas of bioethics, theology, and Christian political thought. Prior to coming to Biola,
he served for over twenty years as a pastor at Trinity Evangelical Free Church in Redlands, California.
He has also taught philosophy and theology at the college and university level for many years. Rick earned
his Ph. D. in Philosophy from the University of California, Riverside, and his Masters of Divinity from
Talbot Seminary.
1
Prenatal Genetic Testing & Disability
By Dr. Kathy McReynolds
The Genetic Revolution
The Genetic Revolution began in 1953 when James Watson and Francis Crick discovered the structure
of the DNA molecule. Their work was foundational for the next major step in the revolution: The Human
Genome Project. On June 26, 2000, Dr. Francis S. Collins, director of the National Human Genome Re-
search Institute, and Dr. J. Craig Venter, president of Celera Genomics, announced at a press conference
held in Washington, D.C., that they had successfully completed the first rough draft of the entire hu-
man genome. President Clinton praised their work and stated that, “Without a doubt, this is the most
important, most wondrous map ever produced by humankind.”
1
The Human Genome Project was originally intended to be a 15-year effort to map the entire human
genome. But the map was completed several months ahead of schedule, probably due to the sometimes
heated competition that came from Celera Genomics. In the end, however, the two rivals made peace,
but decided to remain independent. As it stands now, both sides view this monumental event as a
shared success.
Understanding the genes that make up the human genome is expected to revolutionize medicine
in several ways. Researchers hope to target dysfunctional genes and to eventually prevent and cure dis-
eases such as colon and breast cancer, cystic fibrosis, and diabetes. Many years have passed since Pres-
ident Clinton asserted that this new knowledge will provide us with the immense power to heal. With
confidence at the time, scientists touted that they could virtually eliminate inherited disease. Their
hope was pinned on gene therapy, a technique which aims to cure genetic disease by replacing disease-
causing genes in certain cells in the body. However, gene therapy has proven time and again to be a dis-
appointment. No breakthroughs yet, and they probably won’t happen any time soon.
Researchers also expect they will eventually be able to develop diagnostics and treatments tailored
to individual patients. There is good reason to believe that this goal is more realistic. While attention
was diverted to all the hype surrounding gene therapy, this “micro” genetic revolution was slowly taking
place. Many call this revolution genomic medicine. According to Edward McCabe, co-director of the UCLA
Center of Society and Genetics, “This really is the future. Genomic medicine will be predictive, preven-
tive and personalized.”
2
One example of this trend can be seen with the new heart disease drug, BiDil,
which is marketed exclusively to African-Americans who seem to be genetically disposed to respond to it.
3
The hope, however, is that in the future, doctors will be able to predict a person’s risk for diseases which
involve multiple genes such as Alzheimer’s and diabetes.
But this powerful knowledge is not without significant risks. Many people have concerns about
how their individual genetic information will be used and who will have access to it. Many fear the pos-
sibility of discrimination if their insurance company or employer were to gain access to their medical
records and discover the results of a genetic test that revealed a predisposition to a particular disease.
Indeed, long before the announcement of the completion of the first rough draft of the human genome
in June 2000, there was some evidence supporting the fact that these are legitimate concerns.
In 1990, The American Council of Life Insurance formed a committee to explore the issues related
to genetic test information and insurance. Their primary task was to develop policy guidelines to insure
that genetic information is kept confidential in order to prevent discrimination based on genetic in-
formation.
4
As of 1998, laws have been established in more than half of the states to prohibit health
insurance companies from discriminating based on genetic test information.
5
The primary federal law prohibiting discrimination in employment on the basis of health status is
the Americans with Disabilities Act, which was established in 1990.
6
In 1995, the Equal Employment
Opportunity Commission (EEOC) issued an interpretation regarding the applicability of the ADA to
genetic discrimination. The EEOC argued that an employer who discriminated against an individual
based on genetic information regarded that individual as having a disability. Therefore, these individ-
uals are covered by the ADA.
7
However, people with disabilities are still subject to discrimination, not
the least of which is the unborn.
Prenatal Genetic Testing
It is safe to say that few disciplines in medicine have been more impacted by the genetic revolution and
the possibility of genetic discrimination than reproduction. Prenatal genetic tests are widely used to di-
agnose such diseases as fragile X, cystic fibrosis, and Down syndrome. The list of prenatal genetic tests
is growing, and many people are beginning to wonder why certain tests for conditions such as deafness,
breast cancer and colon cancer are not automatically offered to them. This raises a question concerning
who gets to choose what prenatal tests are offered: The prospective parents? The professionals? The gov-
ernment? One thing is for certain: parents, professionals, and indeed society in general needs to be much
more educated on the meaning of genetic findings or else the consequences could be substantial.
One reason for alarm is that the possibility of genetic discrimination for any number of traits is
rising. Scientists, for example, have recently identified minute changes in some DNA which may ac-
count for some differences in skin color and disease resistance in some races. As news of some of these
findings seep into the everyday conversation of the public, the message seems to be that racial difference
may be more than skin deep. As these discussions become more commonplace on internet blogs and
in the classroom, it is clear that people are beginning to question whether other traits such as intelli-
gence or morality can be attributed to DNA.
For instance, Amy Harmon reports that a blogger in Manhattan described a study that supposedly
linked high IQ to certain pieces of DNA. According to the blogger, an online genetic database showed
that these specific DNA snippets were found more often in Europeans and Asia than in Africans. The
blogger then asserted that just the existence of genetic differences between the races means that the
“egalitarian theory is proven false.” Of course, he left out the fact that the link between IQ and those
DNA snippets is unsubstantiated, and that other DNA snippets attributed to high IQ are more com-
mon in Africans, and that many other factors such as environment play an enormous role in intelli-
gence.
8
Needless to say, it would not be difficult to discredit this blogger’s empty assertions.
Nevertheless, once these ideas infiltrate the mainstream public ethos, the social damage is done.
P
r
e
n
a
ta
l
G
e
n
e
ti
c
T
e
s
ti
n
g
&
Di
s
a
b
i
l
i
ty
, b
y
Dr. K a
th
y
M
c
R
e
y
n
o
l
d
s
2
Samuel Richards, a professor at Pennsylvania State University, discovered this truth when a re-
cent class assignment backfired on him. He asked his students to participate in genetic ancestry
tests in order to prove that racial categories are arbitrary at best. But the opposite position was
taken by many of his students. Richards tells of a white student who was told that she was nine
percent West African, who then participated in a Kwanzaa celebration. This same student claimed
that she would never attend an Asian cultural gathering because her DNA did not match.
The possibility of racial discrimination based on genetics has enormous implications for pre-
natal testing. Do we as a society then discourage certain races from procreating because they may
not be as intelligent and therefore not as useful as other races? What will happen to the notion of
equal opportunity for all? What will become of those with certain genetic disorders such as Down
syndrome? If our society cannot tolerate slight differences in DNA between races, to what degree
can we expect it to tolerate those with genetic disorders?
The Disability Rights Critique of Prenatal Genetic Testing
Before we discuss a disability rights critique of prenatal genetic testing, it is appropriate to say
something about the movement itself. The last several decades has seen the growing influence of
the disability culture which has lead to a disability rights movement. Those with disabilities have in-
creasingly grown wary of an American culture which idolizes beauty, youth, optimum functioning
abilities, and intelligence. They are wary of media which emphasizes physical beauty and strength
with little attention paid to those who might not meet such lofty standards.
People with disabilities and disability advocates are also highly critical of a medical system
which seems to be prejudiced against them by not providing adequate resources for them to func-
tion on their own. They also sense a social pressure to exercise their right to forego any kind of life
sustaining treatment so that others who are younger and more productive can have access to scarce
medical resources. These issues taken together, along with other important medical considerations
that affect people with disabilities, have lead to the development of a disability rights critique of various
issues in medicine.
According to Erik Parens and Adrienne Asch, the disability rights critique of prenatal genetic
testing involves three fundamental points: 1) Prenatal genetic testing undermines the notion that
the meaning of disability is socially constructed; 2) Prenatal genetic testing is usually coupled with
a misunderstanding of what a disability might mean for a child and family; 3) Prenatal genetic
testing indicates a parent’s unwillingness to accept an “imperfect” child.
9
It is safe to say that prenatal testing does indeed portray a certain negative social mindset to-
ward disability in American culture. What is most problematic about this issue is not the diagnosis
itself, but the fact that the diagnosis of a genetic abnormality leads to the termination of the preg-
nancy. Amy Harmon, for example, reports that about 90 percent of pregnant women who are given
a Down syndrome diagnosis choose to have an abortion.
10
This is a staggering statistic. Until this
year, only women 35 years of age or older were routinely screened for the extra chromosome 21.
Now, with the new recommendation from the American College of Obstetricians and Gynecolo-
gists, physicians have begun to offer screening for Down syndrome to women of all ages.
This recommendation not only gives evidence of a negative social mindset, but it also reveals
an enormous misunderstanding concerning what a disability might mean for a child and a family.
In fact, parents of Down syndrome children, convinced of the lack of understanding, are coming
together in order to provide a better appreciation of what it means to raise these special children.
P
r
e
n
a
ta
l
G
e
n
e
ti
c
T
e
s
ti
n
g
&
Di
s
a
b
i
l
i
ty
, b
y
Dr. K a
th
y
M
c
R
e
y
n
o
l
d
s
3
Their goal is to be a positive voice in a medical arena which is often overwhelmed by negative medical
statistics and physicians who believe it is their duty to describe the difficulties associated with raising
a child with a disability.
In some cases, the use of prenatal genetic testing may indicate a parent’s unwillingness to have a
child with disabilities. But, there are just as many situations where parents who have a history of cer-
tain genetic disorders might want to know if their unborn child has acquired any of them. This is so
they may be prepared to care for their child. Again, the problem is not with the genetic test per se,
but with the possible termination of a pregnancy based on the genetic information. Oftentimes, jus-
tification of the termination of a pregnancy is based on the moral status of the unborn child—that
he or she is not a person, but only a potential person. This is not a view that can be justified biblically.
From a biblical viewpoint, there is no such thing as a human non-person.
Besides the preceding three claims, Parens and Asch offer what they call the expressivist argument.
The expressivist argument states that prenatal testing sends a message to people with disabilities
that their lives are not worth living. As Asch puts it, “a single trait stands in for the whole, the trait
obliterates the whole with no need to find out about the rest.”
11
It is a reductionist view of the human
person, one in which people with disabilities often fall victim. It is important now to give further
consideration to the arguments for and against prenatal testing.
Arguments For and Against Prenatal Testing
An analysis of the arguments for and against prenatal testing will begin by examining first those
which oppose it followed by those which support it. This in turn will give a clear picture of the com-
plex array of issues involved in these technologies.
12
Opposed to prenatal testing: Genetics and eugenics have the same goals: the elimination of “lives
not worth living.”
Supportive of prenatal testing: This claim is akin to saying that all geneticists are Nazis, and that
is an unwarranted characterization of most geneticists. While eugenics is exceedingly difficult to de-
fine, there is one blaring difference between 20th century eugenics and prenatal testing today. In the
30’s up until 1945, decisions were a matter of state policy. Today, it is up to the individual to decide.
Oppose: Legally, a woman has a right to choice concerning her pregnancy. This is not the main issue
in this present context. The fundamental issue under consideration here is the choice a woman can
make concerning what kind of child to be pregnant with. It is unethical to make a choice concerning
a pregnancy based solely on the characteristics of the child.
Support: The issues cannot be separated in this way. Suppose a single woman gets pregnant. If she
finds out that the unborn child has a disability, she might decide to terminate because she is not in a
position to care for a child with a disability. She might have limited resources and limited access to
other aid. But, she may be able to care for a “healthy” child who will not require such demanding care.
Oppose: That is a point to consider. There is no question that personal autonomy and free choice
are crucial in any medical setting. However, practically speaking, it is questionable whether a woman
who finds herself in such a situation is really making a free choice. Four reasons for this view can be
P
r
e
n
a
ta
l
G
e
n
e
ti
c
T
e
s
ti
n
g
&
Di
s
a
b
i
l
i
ty
, b
y
Dr. K a
th
y
M
c
R
e
y
n
o
l
d
s
4
put forth: 1) Women often are not fully informed. They are rarely given the full picture clinically con-
cerning a particular disability and the implications for quality of life; they also are not properly in-
formed about the possible psychological impact of ending a pregnancy; 2) Physicians tend to be biased
against people with disabilities. For the most part, they do not understand disability and, therefore,
they see it as something to be avoided rather than embraced. The general consensus among physicians
is that screening is a good and responsible thing to do; 3) There is the notion that because a test is
available, it is good to have that test done. There is rarely time for a woman to think through the im-
plications of a particular test; 4) Society in general is pressuring women to have as many tests as possible
because it is her duty to do so.
In light of these four reasons, it seems that choice is very limited.
Support: Granted, society ought to make sure that women are fully informed on the wide range of is-
sues related to prenatal testing and that they have adequate access to care for children born with dis-
abilities. Apart from these issues, a woman both ethically and legally still has the right to terminate a
pregnancy based on impairment.
Oppose: There is nothing ethical about such a decision. To terminate a pregnancy based on impair-
ment is to make a judgment that people with disabilities do not have lives worth living.
Support: This is not the only reason that can be given for terminating a pregnancy. There are at least
four valid reasons why a woman might choose to avoid the birth of a disabled child: 1) She does not think
disabled people should exist; 2) Society should not be burdened with the disabled. These are eugenic rea-
sons which seem prima facie unjust; 3) Disability involves suffering, and we should not knowingly bring
people into the world to suffer; 4) Parents and siblings of disabled children are burdened with their daily
care routine and thus suffer unduly. If we can avoid this situation, we are duty-bound to do so.
Oppose: The first two reasons are just plain oppressive. The last two are not really about the people
with disabilities at all; they are much more about the way society views impairment. We need to remove
social factors that cause suffering, rather than removing those who suffer with disabilities.
Support: The fact of the matter is that people with certain kinds of disabilities suffer horribly and
then die a miserable death. Are we not morally obligated to do all we can to prevent this kind of unjust
suffering, even if it means in some cases to not allow the sufferer to be born?
Oppose: We can never eliminate suffering completely. It is a fact of life. We are to do all we can to
relieve suffering by having the proper treatments and support in place to help. But, an ethical line is
crossed when elimination of suffering means doing away with the sufferer. If we do this, where do we
draw the line? A person might “suffer” because he/she is short. Shall we prevent him/her from being
born because society has deemed shortness to be problematic?
Support: Ronald Dworkin is opposed to the notion of “fetal interests” and believes that abortion is
not immoral. Nevertheless, it should not be taken lightly. It is the ending of a life. Therefore, it should
be chosen only when the alternative would be much worse for the parents or the child.
Oppose: If this is taken to the logical conclusion, many of us might not be here right now.
P
r
e
n
a
ta
l
G
e
n
e
ti
c
T
e
s
ti
n
g
&
Di
s
a
b
i
l
i
ty
, b
y
Dr. K a
th
y
M
c
R
e
y
n
o
l
d
s
5
Support: This is an emotional appeal, and, therefore, illogical and irrational.
Oppose: The fact remains that prenatal testing can prevent some disabled people from being born.
Support: There is an assumption that a fetus is a person. Fetuses are not persons, but a collection of
cells. Therefore, a disabled person is not prevented from being born.
Oppose: There is an assumption in the medical community that the definition of personhood is set-
tled—that personhood has to do with the ability to value one’s existence and to contribute to society.
However, there are good reasons to believe that personhood has much more to do with essence than
function. The idea that one can be a human being and not a human person is a purely modern inven-
tion. It still remains that terminating a pregnancy simply because of disability is a judgment that dis-
abled people ought not to live.
Support: What about the notion of wrongful birth. The time will come when some people with dis-
abilities will find it unethical to have been forced to be born. Those who insist that all life is valuable
may find their greatest challenge coming from those with disabilities.
Oppose: It is a dangerous thing to entrust the definition of what is ultimately good to finite beings.
We do not owe our existence to ourselves; therefore, we are not at liberty to end our existence. The point
of this discussion is that prenatal testing ought to be regulated. Women should be fully informed about
a wide range of issues concerning disabilities. The fact of the matter is that people with disabilities
have much to offer to society, and they also have a right to life, liberty and the pursuit of happiness.
Support: Granted. Women ought to be better informed on these complex issues. Since there are no
federal laws regulating the use of prenatal testing, medical institutions must take extra measures to
assure this level of information. Under the present circumstances, however, we should rethink whether
prenatal testing should be offered to the whole population. It seems that screening is often used on
the basis of cost-benefit calculations about avoiding the birth of disabled people. In this way, genetics
appears not to be much different than eugenics.
A Theological Critique of the Arguments
In Western medicine, there are very few bioethical principles which take precedence over autonomy.
There has to be a very good reason to override someone’s decision concerning treatment or non-treat-
ment. A physician has a strong ethical duty to make sure a patient is fully informed about his/her con-
dition and treatment, and he/she is bound not to discuss a person’s case with anyone other than the
patient. If a person is clearly a threat to his/her self or others, this may provide just cause to override
patient autonomy without consent. Otherwise, to override someone’s autonomy is to violate his/her
very being. Therefore, the concept must not be taken lightly.
This contemporary view of autonomy can in the modern era be traced back to Kant. Immanuel
Kant communicated four important ideas concerning autonomy which he understood to be based on
human reason alone: 1) Ethics is not a matter of consequences but of duty; 2) A right act has a maxim
that is universalizable; 3) A right act always treats other humans as ends-in-themselves, never as mere
means; 4) People are only free when they act rationally.
P
r
e
n
a
ta
l
G
e
n
e
ti
c
T
e
s
ti
n
g
&
Di
s
a
b
i
l
i
ty
, b
y
Dr. K a
th
y
M
c
R
e
y
n
o
l
d
s
6
Scripture teaches that human beings are created in God’s image and have been endowed by their Cre-
ator with the ability to reason and make choices.
13
This is what sets us apart from other creatures. Now,
this is not to say that God’s image is based on mere function such that if a person loses the capacity to
reason or make choices that he/she is no longer to be considered in his image. Reason and will are prop-
erties of the human soul, an aspect of the essence of God’s image which is stamped upon the human soul
as an image is stamped upon a coin. That stamp makes it what it is and it cannot be lost. God’s image
imprinted on the soul may not function properly in those with certain cognitive disabilities; nevertheless,
human beings who suffer in this way are still persons. If God’s image remained intact in the entire human
race after the Fall, it certainly cannot be lost in an individual regardless of the severity of the disability.
With the Fall came the knowledge of good and evil (Gen. 3). Thus, in a fallen world, it stands to rea-
son that if a human person can use the will for good, he/she can also use it for evil. With regard to pre-
natal genetic testing itself, it is not necessarily wrong from a biblical viewpoint to seek out and gain
knowledge concerning the genetic makeup of an unborn child. A good reason to seek this information
is if there is a possibility of inheriting a particular condition, the parents can be more prepared for the
birth of their affected child. In fact, there are many spiritual and moral benefits associated with the pur-
suit of wisdom and knowledge, especially in this context (Prov. 2 & 3).
However, this information often leads to the termination of a child affected with a disability. From
a theological standpoint, it is never morally justifiable to terminate any pregnancy on the basis of information gleaned
from prenatal testing. There are at least two biblical reasons to justify this position: 1) All human life is
sacred in that every human being bears God’s image; 2) It is an abuse of God’s good gift of free will.
First, as was mentioned earlier, every human being is a human person who bears the image of their
Creator. This image is not based on human function, but on essence, and therefore it can never be lost
or diminished no matter how disabled a person might be. Hence, to terminate any pregnancy is to dis-
card a human person who is valuable simply because he/she exists.
Augustine argues that all things are good insofar as they exist, especially human persons. Simply
to exist is to be good. But what are we to say of an unborn child with disabilities? Is it good if he/she
exists? Yes. It is God who made all persons, even those affected with disabilities. He made them just as
they are (Ex. 4:11). But, why did he make them like this? The Scripture is clear that the “secret things
belong to the Lord our God, but the things revealed belong to us and to our children forever, that we
may follow all the words of this law (Dt. 29:29). And what has been revealed is that we are not to relieve
suffering by getting rid of the sufferer! This is to do evil. But, what is evil? Where does evil come from?
The Bible locates evil impulses in the fallen human will (Gen. 3; 4:6).
In an attempt to elucidate the biblical teachings on the problem of evil and suffering Augustine
says that evil in a human being arises not from some evil principle embodied in his/her nature, but
from the will’s free determination to turn from higher things to lower, from eternal to temporal; to
bind itself to things which, though good in themselves, lack the worth and dignity proper to itself.
Thus evil is to be found in a human being’s free choice to pervert and corrupt his/her own will by turn-
ing aside from that good which is proper to it; that is, the ultimate good which is God.
Every good is from God. Evil stems from the will’s free choice to depart from its true vocation. This
departure constitutes the very nature of corruption and imperfection. Hence evil is to be explained not
as the creation of an incompetent God, not as the handiwork of some evil principle, but as a result of
the abuse of one of God’s good gifts, free will—an abuse which is to be attributed not to the Giver, but
to those to whom it has been given. But what happens when the vast majority of people in a society
turn from higher things to lower things, from transcendent to temporal things, and then reject the
idea that such a process is actually taking place?
P
r
e
n
a
ta
l
G
e
n
e
ti
c
T
e
s
ti
n
g
&
Di
s
a
b
i
l
i
ty
, b
y
Dr. K a
th
y
M
c
R
e
y
n
o
l
d
s
7
For one thing, such a society forsakes the idea that the will is corrupted, at least in some metaphys-
ical sense. Second, such a society claims absolute freedom. This is certainly the condition of American
society, especially with regard to individual autonomy. According to many secular bioethicists, the hu-
man will is sovereign. As long as a patient is fully “informed,” his/her wishes should be granted. This
is the main criteria for any medical treatment. From a biblical standpoint, however, we understand
that we are finite creatures who do not owe our existence to ourselves. We also acknowledge that human
beings are born sinful; the mind and the will are not free from the obscurity of sin. By implication, the
decision-making process can become clouded by selfish motives.
In light of this, we must ensure that women are given the full picture clinically concerning a par-
ticular disability and the implications for quality of life. They must be informed about the possible
psychological impact of ending a pregnancy. The Christian community must expose the physician’s
bias against people with disabilities. They must be shown that it is an abuse of a good gift (free will) to
tell their patients that it is “good and responsible” to have every test done. It is the nature of human
beings to have a continuing desire to know, but women are rarely given the time to think through the
implications of a particular test. Finally, society in general must be reformed. It must stop pressuring
women to have as many tests as possible by implying that it is her duty to do so.
P
r
e
n
a
ta
l
G
e
n
e
ti
c
T
e
s
ti
n
g
&
Di
s
a
b
i
l
i
ty
, b
y
Dr. K a
th
y
M
c
R
e
y
n
o
l
d
s
8
References:
Augustine, The City of God against the Pagans, ed. by R.W. Dyson, (Cambridge: Cambridge University Press,
1998).
Parens, Erik & Adrienne Asch, eds., Prenatal Testing and Disability Rights (Washington, D.C.: Georgetown
University Press, 2000).
Swinton, John & Brian Brock, eds., Theology, Disability and the New Genetics (London: T & T Clark, 2007).
NOTES
1. Bill Clinton, “White House Remarks On Decoding the Genome,” New York Times, 27 June 2000, 8(D).
2. Edward McCabe, “A Doctor for the Future,” New York Times Magazine, 6 November 2005, 70.
3. Amy Harmon, “In DNA Era, New Worries About Prejudice,” New York Times, 11 November 2007, 1.
4. The American Council of Life Insurance Subcommittee, Genetic Test Information and Insurance: Confidentiality Concerns and Recommendations
(Washington D.C.: The American Council of Life Insurance, 1990).
5. See, for example, B.A. Trolin, ed., Mapping Public Policy for Genetic Technologies: A Legislator’s Guide (Denver: National Conference of State Leg-
islatures, 1998).
6. Americans with Disabilities Act, 42 U.S.C., 12101-12213 (1990).
7. See, 2 EEOC Compliance Manual (CCH), 902-45 (March 14, 1995), reprinted in Daily Labor Report (March 16, 1995), E-1, E-23 (citing definition of
disability); and M.A. Rothstein, “Genetic Discrimination in Employment and the Americans with Disabilities Act,” Houston Law Review, 29 (1992):
23-84.
8. Ibid., New York Times, 24.
9. Erik Parens and Adrienne Asch, Prenatal Testing and Disability Rights (Washington D.C.: Georgetown University Press, 2000).
10. Amy Harmon, “Prenatal Test Puts Down Syndrome in Hard Focus,” New York Times, 9 May 2007, 1.
11. Parens and Asch, 13.
12. Many of the arguments and the format for this section were drawn from Tom Shakespeare’s work entitled, Arguing about Genetics and Disability,
which he contributed to Theology, Disability and the New Genetics (London: T & T Clark, 2007).
13. See for instance, freedom as a mental faculty: Ge.4:6-10; Dt.5:29; 1 Ki.20:42; Isa.1:18-20; 43:26; Jer.36:3, 7; Jn.7:17. Our reasoning capacities: Ex.4:11;
20:5-11, Isa.5: 3-4; Hos.4:1; Mic.6:2. Natural understanding: Da.4:36; Ac.17:2; 18:4, 19; 24:25; 1 Co.10:15; 1 Pet. 3:15.
P
r
e
n
a
ta
l
G
e
n
e
ti
c
T
e
s
ti
n
g
&
Di
s
a
b
i
l
i
ty
, b
y
Dr. K a
th
y
M
c
R
e
y
n
o
l
d
s
9
Dr. Kathy McReynolds is the Director of Academic Studies for the Joni and Friends Christian Institute
on Disability. Kathy has a B.A. in Christian Education from Biola University, a M.A. in Systematic Theology
from Talbot School of Theology and a Ph.D. in Ethics from the University of Southern California. She has
taught in the Biblical Studies Department at Biola University and served on ethics committees for hospitals
and universities. Kathy has received numerous prestigious awards, including the Leading Health Care
Professional of the World by the International Biographical Center in 2009.
1
Dignity, Disability, and Bioethics
By D. Christopher Ralston, M.A.
Death with dignity. Human dignity. The dignity of human life. Respect for dignity. These phrases are heard re-
peatedly in contemporary, bioethical debates from disputants on opposing sides of the same argument,
which begs the question: What do these phrases mean and how can they be used in such seemingly con-
tradictory ways? This paper aims to provide initial answers to these questions by focusing on human
dignity and the uses to which that idea is commonly understood. Given this modest objective, what
follows amounts to a cursory sketch. Still, this overview should provide a sufficient starting point for
gaining a deeper appreciation of the potential promises—and perils—of appeals to human dignity in
advocating on behalf of persons with disability in the public square.
Human Dignity and Its Sources
The notion of dignity is ubiquitous in contemporary bioethics literature. Some thinkers endorse the
notion, while others reject it altogether. Despite the currency of the term, there is little agreement as
to the meaning, scope, or implications of the concept. Ruth Macklin, in fact, has recently argued that
the notion is “useless” and can be reduced, without remainder, to the notion of “respect for persons.”
1
In an effort to defend and elucidate the concept, the President’s Council on Bioethics recently published
a volume of essays
2
addressing the concept, “with the aim of clarifying whether and how it might be a
useful concept in bioethics.”
3
As Adam Schulman observes, the notion of dignity is routinely invoked on opposing sides of nu-
merous controversies in bioethics. Thus, to borrow Schulman’s illustrative example, different “con-
flicting intuitions” about human dignity might yield radically different answers to the question of
whether or not, and under what circumstances, it would be appropriate to withdraw life-saving (or life-
prolonging) medical treatments from a critically ill patient in a neonatal intensive care unit who, if he
or she survives, is likely to do so only with severe mental or cognitive deficits.
If one thinks that human dignity rests on our higher mental capacities, then one might argue
that it is wrong to bring a person into the world with a devastating, lifelong mental incapacity,
and conclude on this basis that the most “dignified” course of action would be to allow the
child to die a “humane” death.
Alternatively, one might appeal to a notion of the equal dignity of all human life, regardless
of functioning, in order to insist that every reasonable measure be taken to preserve and pro-
long the life of the child.
Yet again, one might appeal to a notion of dignity rooted in the value of autonomy (very
roughly, the ability to rationally direct one’s choices and actions in accordance with one’s
own values) in order to claim that the decision ought ultimately to be left up to the parents
in this sort of case, out of respect for their dignity and autonomy.
All three advocates appeal, in one way or another, to notions of dignity—yet they arrive at very dif-
ferent conclusions as to the appropriate course of action. Thus, Schulman suggests that human dignity
is, at the very least, “problematic as a bioethical concept,” for “a variety of strong convictions can be
derived from powerful but conflicting intuitions about what human dignity demands of us.”
4
One reason for this difficulty lies in the origins of the concept of dignity. The term arises from a
number of different sources, each of which has a positive contribution to make, but also “brings its
own peculiar difficulties to the application of the concept of human dignity to bioethical controver-
sies.”
5
Schulman identifies four principal sources of the notion of dignity: (1) classical antiquity, (2)
biblical religion, (3) Kantian moral philosophy, and (4) 20
th
century constitutions and international
declarations.
Classical Antiquity
One notion of dignity comes to us from “classical antiquity.” As Schulman explains, the Greco-Roman
term for dignity arises from the Latin dignus and dignitas, the approximate meaning of which is “wor-
thiness for honor and esteem.” The basic idea here is that dignity is ascribed to an individual who pos-
sesses a quality that is “rare and exceptional”—in the Greco-Roman context, usually an “excellence and
distinction” associated with one’s rank or social status.
6
This notion of dignity immediately raises an important question: “What is it about human beings
as such that we find distinctive and admirable, that raises them in our estimation above other animals?”
It also raises at least two key problems for its application in a contemporary setting. First, if human
dignity is to be understood as rooted in excellence, what then is the relationship between technology
and human dignity? If we can enhance or modify human beings technologically, do they then possess
greater dignity than unenhanced individuals? Do technological and/or pharmaceutical interventions
into human nature enhance or diminish human dignity?
7
This first problem highlights a second problem for the classic sense of human dignity—namely,
that “it lends itself to invidious distinctions between one human being and another.” How is a notion
of dignity grounded in excellence to be squared with equally powerful, but potentially competing, no-
tions and ideals that also hold sway in contemporary democratic societies—notions such as equality,
freedom, tolerance and an easygoing attitude? Given these fundamental ideals to which most contem-
porary democratic societies are committed, in order for such a conception of dignity to be of use as a
“robust bioethical concept for our age,” Schulman suggests, “one would have to show that dignity can
be something universal and accessible to all human beings as such.”
8
Di
g
n
i
ty
, Di
s
a
b
i
l
i
ty
, a
n
d
B
i
o
e
th
i
c
s
, b
y
D. C
h
r
i
s
to
p
h
e
r
R
a
l
s
to
n
2
Biblical Religion
A second major source of “a broader, shared notion of human dignity” is the biblical account, par-
ticularly as found in Genesis 1-3, according to which man was created by God, “in his image” (imago
Dei). As Schulman notes, this notion has been interpreted and developed in a number of ways; nev-
ertheless, a central implication of this notion can be identified—namely, that “human beings, be-
cause they are in some respect godlike, possess an inherent and inalienable dignity.” In the biblical
narratives and surrounding tradition, man is pictured as having both dominion and stewardship
over creation. These two pictures, however, can be understood in ways that lead to potentially con-
flicting prescriptive imperatives. For example, the picture of man as having dominion over creation
conveys a sense of responsibility, perhaps even a perfective one, according to which man is respon-
sible, in some sense, to serve as co-creators with God in an effort to perfect or finish his creation.
Understood in this way, the dominion mandate might be taken as positive warrant for such prac-
tices as in vitro fertilization, genetic engineering, or even cloning, here understood as “fixing nature
in a godlike way.”
9
By contrast, the biblical picture of man as steward of creation pulls in a different, more humble
direction, toward an understanding of man as created—as “creatures, not creators.” Here,
…“made in God’s image” has the implication that all human beings, not only those healthy
and upright but also those broken in body or soul, have a share in this God-given dignity....
Seeing human beings as created in the image of God means, in some sense, valuing other
human beings in the way a loving God would value them. It means seeing dignity where
some might see only disability, and perhaps seeing human life where others might see only
a clump of cells.
10
Since these twin pictures of man derived from the biblical account appear to pull in different
directions, it is not immediately obvious how the biblical account can provide action-guiding direc-
tion in controversial questions. Thus, to cite the example Schulman gives here, what are we to say,
from a biblical perspective, about embryonic stem cell research? On one hand, we might appeal to
the equal dignity shared by all human beings, including embryos, to argue that such research is a
direct assault on human dignity. On the other hand, we might argue that the inherent dignity of
man makes healing our preeminent duty even at the cost of justifying all kinds of otherwise morally
questionable research.
11
The point, for present purposes, is not to settle the dispute,
12
but rather to
demonstrate that the notion of human dignity, even when rooted in a concept of man as being
made in the imago Dei, can be appealed to by advocates on both sides. So merely appealing to the
biblical notion of human dignity—without further argumentation and clarification—will not nec-
essarily yield unambiguous implications with respect to controversial bioethical questions.
Kantian Moral Philosophy
Immanuel Kant’s (1724-1804) moral philosophy understands human dignity as the intrinsic
worth that belongs to all human beings and to no other beings in the natural world.” For Kant,
“[a]ll men possess dignity because of their rational autonomy, i.e., their capacity for free obedience
to the moral law of which they themselves are the authors.”
13
Kant thus locates the source of in-
trinsic worth, or dignity, in rationality—specifically, rational autonomy. All and only rational crea-
tures—whether human or non-human—possess this dignity and must be treated with equal respect.
Di
g
n
i
ty
, Di
s
a
b
i
l
i
ty
, a
n
d
B
i
o
e
th
i
c
s
, b
y
D. C
h
r
i
s
to
p
h
e
r
R
a
l
s
to
n
3
This implies a prohibition on the instrumental use of persons—that is, the use by one person of an-
other as a means to his or her own end.
This understanding of human dignity, which locates its origins and action-guiding force in the
possession of rational autonomy, has had a profound impact on the development of ethical thought
in general, and on bioethics in particular. This influence can be seen clearly in concerns with clinical
and research ethics regarding obtaining valid, informed consent, as well as in the protection of vul-
nerable subjects used in medical research.
Nevertheless, the Kantian approach presents a number of difficulties. First, it appears to be an
overly-restrictive account of the moral life. In locating human dignity entirely in rational autonomy,
Kant denies any moral significance to other aspects of our humanity, including our family life, our
loves, loyalties, and other emotions. The Kantian approach may be limited in its applicability to a
whole range of controversial bioethical questions.
A second difficulty with Kant’s approach to human dignity is that the doctrine of rational au-
tonomy itself can be difficult to apply in practice. For example, if rational autonomy is the source of
human dignity, then what are we to say of infants, individuals with dementia, those who are perma-
nently comatose, or those with certain congenital mental impairments? Do such individuals—those
who either do not yet have, have lost, or who never will possess the relevant “powers of rational au-
tonomy”— fall below a minimum threshold for human dignity? What are the limits of rational au-
tonomy? How and to what extent do mood-altering drugs and the like affect it? Answers to these
sorts of questions are less than immediately obvious in the Kantian approach.
1
4
Twentieth-Century Constitutions and International Declarations
Finally, notions of human dignity have enjoyed a prominent place in a number of twentieth-century
political constitutions and international declarations. Many such documents were drafted in the wake
of World War II, with an explicit view toward preventing a repeat of the atrocities committed during
that time. For example, in the preamble to the Charter of the United Nations, the drafters indicate that
one of their purposes, among others, is “to reaffirm faithin the dignity and worth of the human per-
son…”
15
Similarly, the United NationsUniversal Declaration of Human Rights (1948) acknowledges “the
inherent dignity and… the equal and inalienable rights of all members of the human family…
16
More-
over, since 1945, some 37 nations have ratified national constitutions that include an explicit reference
to human dignity.
17
Importantly, these appeals to notions of human dignity in various political con-
stitutions and international declarations have left the term dignity entirely undefined. In these consensus
documents, various groups—with different ideas about the origin, grounding/justification, and
scope/implications of human dignity—appealed to dignity in an attempt to reach political agreement.
The framers of such documents had practical, pragmatic objectives in mind. Thus, they eschewed an
attempt to develop a theoretical account of human dignity, in favor of arriving at a practical commitment
to a notion of human dignity—however conceived—as the basis for a system of inviolable and inalienable
human rights, a system that (it was hoped) would be sufficiently strong to prevent the future occurrence
of such atrocities as occurred during World War II. As such, human dignity in these documents
amounts to a sort of placeholder standing in for that feature—whatever it may be—in virtue of human
beings may be said to be entitled to certain fundamental rights and freedoms.
18
Yet it is precisely this formal and indeterminate character that renders such appeals to human
dignity, as found in these political constitutions and international declarations, largely impotent to
provide action-guiding direction with respect to controversial bioethical questions. On the one hand
Di
g
n
i
ty
, Di
s
a
b
i
l
i
ty
, a
n
d
B
i
o
e
th
i
c
s
, b
y
D. C
h
r
i
s
to
p
h
e
r
R
a
l
s
to
n
4
appealing to human dignity may have the salutary effect of encouraging thoughtful reflection on the
deeper question of what it is that grounds (i.e., justifies) the notion. Moreover, appealing to universal
human dignity in order to establish “a baseline of inviolable rights—in effect, a floor of decency beneath
which no treatment of human beings should ever sink,” may provide valuable resources for use in at-
tempts to prevent “the most egregious abuses of the new biotechnologies (e.g., the deliberate creation
of animal-human chimeras).” Still, as Schulman notes:
…if we are content to regard human dignity as nothing more than an unspecified “Factor X” in
virtue of which we are obliged to treat all persons with respect, then, some bioethicists have
wondered why we should bother invoking it all. Why not dispense with dignity and simply spell
out precisely what “respect for persons” demands of us?
1
9
This is, of course, precisely the approach that Ruth Macklin and others like her advocate. For Mack-
lin, respect for persons can be specified in terms of “the need to obtain voluntary, informed consent;
the requirement to protect confidentiality; and the need to avoid discrimination and abusive prac-
tices.”
20
On this approach, vague appeals to human dignity can be replaced with concrete requirements
informed consent, confidentiality, and prohibitions of abuse and discrimination—that are, in turn,
rooted in the notion of respect for persons. Thus, in Macklin’s view, appeals to human dignity are su-
perfluous at best and should therefore be rejected. Here again, our purpose is not to settle this dispute,
but rather to show that the vague appeals to human dignity found in many twentieth-century political
constitutions and international declarations are unlikely—absent further theoretical work—to be taken
seriously by many in the bioethics community.
What should be abundantly clear from this survey of these four prominent sources of notions of
human dignity is that there is a fundamental question that simply cannot be ignored—namely, the ques-
tion of what exactly it is that grounds human dignity. Without an answer to that question, the normative
(i.e., action-guiding) implications of any appeal to human dignity will remain obscure at best. The need
to consider, and to develop thoughtful accounts of, the answer to this question is more important now
than ever due to the power of technology to reshape human nature in unprecedented ways.
From a Christian perspective, theology is crucial to providing such an adequate account of dignity.
Any such account of the notion will need to be such that it does not deem certain subsets of the human
community (e.g., persons with intellectual or cognitive impairments) to be lacking in dignity.
21
In light
of this concern, Christians must look to theology to supply valuable conceptual resources that con-
strain and correct other approaches to the notion of human dignity.
Conclusion and Action Points
The foregoing overview of the sources and uses of the concept of human dignity suggests a number of
key guidelines, or action points, for those who would advocate on behalf of persons with disability in
the public square—particularly for those who would invoke notions of human dignity in the course of
such advocacy, and would do so from an explicitly Christian point of view.
First, we can identify a number of essentials that any adequately Christian account of human dignity
must satisfy. Specifically, we need a concept of dignity that will:
Be universally shared by and accessible to all human beings. Such a concept must not arbi-
trarily divide the human community into those who have and don’t have dignity.
Di
g
n
i
ty
, Di
s
a
b
i
l
i
ty
, a
n
d
B
i
o
e
th
i
c
s
, b
y
D. C
h
r
i
s
to
p
h
e
r
R
a
l
s
to
n
5
Avoid making dignity an achievement of human beings; instead, it will understand dignity as
being conferred by God on human beings, independent of their achievements.
Illuminate the relationship between technology and human dignity.
Illuminate the relationship between the biblical pictures of stewardship and dominion and
provide guidance as to how those pictures yield specific prescriptive imperatives.
Explain the significance of the imago Dei for human dignity.
Provide an adequate account of the moral life.
Provide a rationale for theological engagement with issues in the public square.
Become widely applicable to and relevant for a variety of bioethical questions/issues.
Such an account of dignity must offer a clear definition of the term; say something about the ori-
gins, grounding, and scope/practical implications of the concept; and make transparent the assump-
tions—religious/theological, ideological, etc.—upon which it rests.
Second, when seeking to articulate a Christian perspective on disability, dignity, and bioethics in
the public square, it is crucially important to clearly articulate what one means by key terms such as
dignity, person, human being, etc. We have seen that, broadly speaking, on a secular account of dignity,
the concept is closely connected with notions of autonomy and the exercise of rational capacities—that
is, human dignity is rooted in rational agency. In a Christian account, human dignity is ultimately
rooted in the imago Dei—that is, since human beings are created by God in his image, their dignity is
neither something that is achieved nor something that can be lost, even in the midst of suffering, the
loss of autonomy, or inability to exercise one’s rational capacities.
Dignity is conferred by Godrather than achieved by human beings.
In this light, it clears that when secular bioethicists refer to human dignity they often mean something
very different than the Christian means. A similar disconnect is likely to be present with respect to
other key terms (person, human being, etc.), so the Christian engaging in public discussion of contro-
versial bioethical issues must be aware of this possibility.
Third, and finally, we must vigorously defend a robust and distinctively Christian view of dignity.
We must suggest—contrary to secularist critics like Ruth Macklin—that theology really does have valu-
able resources to add to the discussion. In particular, further intellectual work is needed on the theo-
logical, philosophical and anthropological grounding of the notion of human dignity. If the concept of
dignity is to be employed fruitfully in public discussions of controversial bioethical issues, it must be
defended against the attacks of its critics and positively shown to be a relevant concept for contempo-
rary bioethics.
22
At the end of the day, this task is a crucial one for the church. From a Christian point
of view, theology has a crucially important role to play in public discussions of controversial bioethical
questions in which concerns about human dignity are implicated. In this regard, Christoph Schwöbel
sums up the role that the church, in light of its distinctively theological view of human nature and dig-
nity, can—indeed, must—play in such debates:
…it is clear that the contribution of the church will have to be both critical and affirmative. It
will have to criticize all views of what it means to be human—as they are expressed in the sciences,
in politics, and in the economy—which define human dignity on the basis of observable attrib-
utes based on the capacities of human nature that humans may possess to a greater or lesser
degree. Against all such views the church must uphold the principle that human dignity as it is
Di
g
n
i
ty
, Di
s
a
b
i
l
i
ty
, a
n
d
B
i
o
e
th
i
c
s
, b
y
D. C
h
r
i
s
to
p
h
e
r
R
a
l
s
to
n
6
grounded in God’s relationship to us requires absolute respect in all stages of human existence
and in all forms in which a human life is lived, and cannot be ascribed relatively in proportion
to our capacities or incapacities. This critical role will be convincing only if it is enveloped by
the gospel the church has to communicate. In virtue of the dignity bestowed upon them by
God, all forms of human life carry the marks of creatures who are called to be images of God.
23
The specific challenge for the church then becomes one of articulating a Christian view of dignity
in language that makes sense to those who do not share these same fundamental commitments. This
suggests a potentially fruitful research project for Christian thinkers doing work in this area, as well as
an urgent and practical mandate for the church as a whole.
NOTES
1. Macklin, Ruth. “Dignity is a Useless Concept.” British Medical Journal, 327, 2003, p. 1419.
2. President’s Council on Bioethics, 2008.
3. Schulman, A. “Bioethics and the Question of Human Dignity.” In Human Dignity and Bioethics: Essays Commissioned by the President’s Council on Bioethics.
Washington, D.C.: President’s Council on Bioethics, 2008, p. 3.
4. Ibid., pp. 4-5, italics in original.
5. Ibid., p. 6.
6. Ibid., p. 6.
7. Ibid., pp. 6-7.
8. Ibid., p. 7.
9. Ibid., p. 8.
10. Ibid., pp. 8-9.
11. Ibid., p. 9.
12. An obvious possible solution would be to argue for a rank-ordering of the two “pictures,” where human “dominion” over the created order is limited
by our status as “stewards” (rather than “owners”) of creation.
13. Schulman, 2008, p. 10.
14. Ibid., p. 11.
15. United Nations, (1948) Universal Declaration of Human Rights http://www.un.org/en/documents/charter/preamble.shtml and United Nations. (1948)
Universal Declaration of Human Rights http://www.un.org/en/documents/udhr/
16. Ibid.
17. Schulman, 2008, p. 12.
18. Ibid., p. 13.
19. Ibid., p. 13-14.
20. Macklin, 2003, p. 1419.
21. Hans S. Reinders takes this up with respect to persons with intellectual and cognitive impairments in: Future of the Disabled in Liberal Society: An Ethical
Analysis. South Bend, IN: University of Notre Dame Press, 2000. “Human Dignity in the Absence of Agency.” In R. K. Soulen & L. Woodhead (Eds.),
God and Human Dignity (pp. 121-139). Grand Rapids, MI; Cambridge, UK: Eerdmans, 2006. Receiving the Gift of Friendship: Profound Disability, Theological
Anthropology and Ethics. Grand Rapids, MI: Eerdmans, 2008.
22. For recent efforts to engage in theological consideration of issues related to disability, including human dignity, see: Reynolds, T. E. (2008). Vulnerable
Communion: A Theology of Disability and Hospitality. Grand Rapids, MI: Brazos Press. Soulen, R. K., & Woodhead, L. (Eds.). (2006). God and Human
Dignity. Grand Rapids, MI; Cambridge, UK: Eerdmans. Sulmasy, D. P. (2009). “Dignity, Disability, Difference, and Rights.” In D. C. Ralston & J. Ho
(Eds.), Philosophical Reflections on Disability (pp. 183-198). Dordrecht, The Netherlands: Springer.
23. Schwöbel, C., “Recovering Human Dignity.” In R. K. Soulen & L. Woodhead (Eds.), God and Human Dignity (pp. 44-58). Grand Rapids, MI; Cambridge,
UK: Eerdmans, 2006.
Di
g
n
i
ty
, Di
s
a
b
i
l
i
ty
, a
n
d
B
i
o
e
th
i
c
s
, b
y
D. C
h
r
i
s
to
p
h
e
r
R
a
l
s
to
n
D. Christopher Ralston is a freelance writer/editor and a doctoral candidate at Rice University in Houston,
Texas. He has served as an Assistant Managing Editor of the Journal of Medicine and Philosophy and as
Managing Editor of the journal Christian Bioethics. Chris is the co-editor of Philosophical Reflections on Disability.
He is a member of the Board of Reference for the Public Policy Center of the Christian Institute on Disability
at Joni and Friends. Chris is a graduate of Biola University (B.A., Communications; M.A., Philosophy of Re-
ligion and Ethics) and Trinity International University (M.A., Bioethics).
7
1
From Whence Come Rights?
By Dr. Kathy McReynolds
Introduction
The Universal Declaration of Human Rights of 1948 was a groundbreaking document which was de-
veloped and disseminated in the wake of the unspeakable human tragedies of World War II. The Pre-
amble opens with the following statement, “Whereas recognition of the inherent dignity and of the
equal and inalienable rights of all members of the human family is the foundation of freedom, justice
and peace in the world.”
1
Article One affirms that “all human beings are born free and equal in dignity
and rights. They are endowed with reason and conscience and should act towards one another in a
spirit of brotherhood.”
The Declaration is still considered a relevant work for many important reasons, not the least of
which is the enormous influence it has had on other documents such as the Convention on the Rights
of Persons with Disabilities. The Convention mentions the Declaration in its Preamble and its impact
is seen in Article One in the following words, “The purpose of the present Convention is to promote,
protect and ensure the full and equal enjoyment of all human rights and fundamental freedoms by all
persons with disabilities, and to promote respect for their inherent dignity.”
2
December 3 was declared the International Day of Persons with Disabilities and the theme in 2007
was “Decent Work for Persons with Disabilities.” The International Labor Organization issued a report
which stressed the need to include people with disabilities in employment, rural development and
poverty to meet the Millennium Development Goals. The Report also noted the significant growth in
anti-discrimination legislation in many countries and also points to the willingness of many nations
to recognize and uphold the International Convention on the Rights of Persons with Disabilities. In
fact, the UN High Commissioner for Human Rights, Louise Arbour, vowed her commitment to increase
the employment of persons with disabilities in her office.
Since we live in a time when the personhood and worth of many human beings are consistently
called into question, few would deny the need for nations to come together and agree to protect human
rights, especially the rights of those with disabilities. But, both of these documents and the Interna-
tional Day of Persons with Disabilities, which upholds the validity of these documents, leave unan-
swered a vital question: Where do human rights come from? The unquestioned assumption seems to be
that rights come from individual governments. If this is what the writers of these documents tacitly
assume, there is great cause for concern over whether these rights will continue to be protected.
After all, the same governments which advocate on behalf of protection for all can just as well reject
it at a future date. If human rights are the product of mere convention or positive law, then, if recent
history is any indication, there is every reason to believe that they may be jeopardized someday. What
is needed to ensure the rights of all is the universal recognition of natural rights. Natural rights tran-
scend individual governments and are derived from the Creator Himself. If there is no natural right, then
what is right is established by legislators. What this means is that there is ultimately no moral basis for gov-
ernment decisions.
What is at stake if we do not recognize natural rights? Consider, for example, the fact that the per-
sonhood of some human beings is consistently being called into question by ethicists who are supposed
to support the protection of basic rights. If a human being can be declared a non-person based on di-
minished abilities, what rights can he or she possibly have? The prevailing view which seems to be re-
flected not only in these documents, but also in many circles in society, is that human rights are
established by the courts and the legislators. In other words, there is no such thing as natural right, but only
human rights. And, human rights are the product of human thought alone. Not many ponder the sig-
nificance of this paradigm shift; but one thing is for sure, it is not just a matter of semantics. Natural
rights and human rights cannot be used interchangeably.
Those who know anything about the terms know at least this much and they are also aware that
these terms carry with them a different understanding of the source of rights. Natural right is derived
from natural law which in turn recognizes that human beings can know something about the tran-
scendent. Human rights, on the other hand, presuppose that human beings are unable to grasp the
eternal. This is the prevailing view and one that believers must challenge. We must be educated on the
differences between natural rights and human rights because the implications of the latter are enor-
mous. The following discussion is an attempt to do just that. From a Christian viewpoint, there is
good reason to believe that God is the source of all rights and we can know this to be true.
Natural Law and Natural Right until the Nineteenth Century
The function of natural law is to connect the principles of reality to the principles of action—to connect
knowledge with morality—so that human beings might act in accordance with ultimate reality. In other
words, natural law presupposes the reality of moral knowledge. Natural law points to the coherence of
reality, to an absolute, unchanging basis for ethics, and to a vital link between the “is and the ought.”
3
Natural law is prima facie knowable to all human beings and binding on all human beings. By defini-
tion, nature is accessible to all human beings; however, as C. S. Lewis points out, the natural is derived
from and has its ultimate source in the supernatural. The moral law necessitates a Moral Law Giver.
Natural law is unique for three reasons: 1) its longevity; 2) its continuity; 3) its sustainability.
4
Few doc-
trines have been discussed or debated in the history of Western thought more than natural law. This
long history indicates not only its enormous influence, but also its ability to transcend time and culture
and remain relevant.
Aristotle (384-322 BC), for example, taught that natural law was universally valid for all people in
every generation and that it was not the same as positive law. It did not depend, in other words, on
what people thought about it. It was understood by everyone by nature. But many argue that Aristotle’s
definition of natural law included support for the “unnatural” suppression of women and slaves. The
Stoics took a more egalitarian position and believed that natural law could be grasped by the logos
F
r
o
m Wh
e
n
c
e
C
o
me
R
i
g
h
ts
?
b
y
Dr. K a
th
y
M
c
R
e
y
n
o
l
d
s
2
(reason) which was latent in the human mind. The Romans had a view of natural law, but they
rarely appealed to it on a practical level. The Apostle Paul, on the other hand, took the notion se-
riously and spoke about a law “written on the hearts” of all Gentiles (Romans 2:14-15).
Augustine (354-430) believed that Adam and Eve lived freely under natural law, but their fall
lead to subsequent bondage under the law of sin; hence that initial gift of freedom was lost. Positive
law then became necessary in order to restrain sin. In the Summa Theologica, Thomas Aquinas
(1225-1274) developed one of the most comprehensive and influential views of natural law and
its relationship to eternal law. Under the general idea of law, Aquinas distinguished 1) eternal law,
which embraces all God’s creatures, rational and irrational; 2) natural law, being that part of the
eternal law that relates to rational creatures as such; 3) human law, which properly consists of nat-
ural law particularized and adapted to the varying circumstances of actual communities; 4) divine
law specially revealed to man.
With regard to natural law, Aquinas taught that God had firmly implanted in the human mind
knowledge of its immutable general principles; and not only knowledge, but a disposition as well.
He uses the term syndersis to describe this dual purpose of natural law. All natural acts of virtue are
implicitly included within the scope of this law of nature; however, in the application of its prin-
ciples to the particular circumstances, a person’s judgment is liable to err; the light of nature being
obscured by sin. Other Medieval theologians such as Scotus (1266-1308) and Ockham (1285-1347)
emphasized divine will rather than human reason as a source of natural law. This view held sway
through the Counter-Reformation period (16
th
-17
th
century); but Pope Leo XIII (1810-1903) used
as the ground of his social teachings the Thomistic view which carried through to his successors.
While the Catholic Church renewed her commitment to natural law and natural right, thought-
ful men outside of the church were challenging the way in which “nature” should be viewed alto-
gether. They were calling for no less than a revolution in the state of nature—one that would free
all men from abusive authorities. For instance, Grotius (1583-1645) argued that nations must rec-
ognize the validity of natural law; but he also asserted that natural law was legitimate “even if we
were to suppose… that God does not exist or is not concerned with human affairs.”
5
For Grotius,
natural law is the dictate of right reason apart from any knowledge of God, indicating that an act,
from its agreement or disagreement with man’s rational and social nature, is morally disgraceful
or morally necessary.
According to Grotius and other writers of the age, natural law is a part of divine law that follows
necessarily from the essential nature of man, who is distinguished from animals by his peculiar
appetite for tranquil association with his fellows, and his tendency to act on general principles.
There had to be established a conception of a state of nature, social in a sense, but not yet political,
in which individuals or single families live side by side. This conception Grotius took, and gave it
additional force by using the principles of this natural law—so far as they seemed applicable for
the determination of international rights and duties.
Thomas Hobbes (1588-1679) further revolutionized the definition of natural law by beginning
not with the biblical state of innocence, but rather with the unruly state of nature. Hobbes’ un-
derstanding of nature involved four points: 1) the hypothetical state of nature in which men are
brutish and unsocial; 2) the right of nature in which men have the liberty to protect and preserve
themselves; 3) the law of nature in which men ought not to jeopardize their own well being; 4)
the social contract in which men consent to give up the right to protect themselves and willingly
submit that right to rulers and authorities who will allow men to live as painlessly as possible.
For Hobbes, good and evil are purely subjective: good brings pleasure, evil brings pain. So rulers
F
r
o
m Wh
e
n
c
e
C
o
me
R
i
g
h
ts
?
b
y
Dr. K a
th
y
M
c
R
e
y
n
o
l
d
s
3
should ensure that individuals be allowed to pursue their pleasures as long as they do not harm
another. Hobbes’ main concern was not truth, but conflict resolution. Thus, Grotius and Hobbes
redefined natural law along Enlightenment themes and ushered in the beginning of an era of con-
ventionalism.
John Locke (1632-1704) agreed with Hobbes’ psychological and ethical egoism, but dismissed
his dim view of the state of nature. Locke argued that men in the state of nature were free and equal
and already obeying natural law. While Locke’s state of nature was more idyllic than Hobbes, his jus-
tification for his position was similar to Hobbes’ in that he grounded his view in human reason
rather than divine revelation. Rousseau’s (1712-78) view on natural law represents one of the first
major shifts in the understanding of its role and function. Rousseau imagined a savage, virtuous
and passionate longing to return to the state of nature, but not by any promptings from rational
faculties. Prior to any use of reason, the savage is moved by self-preservation and compassion for
others. Reason, which was crucial for Hobbes’ and Locke’s understanding of natural law and the so-
cial contract, was virtually ignored in Rousseau’s framework. These conflicting views of the state of
nature in the 17
th
and 18
th
centuries set the stage for a crisis in the 19
th
century.
Kant and the Crisis of Natural Law
It would be difficult to overstate the impact Kant (1724-1804) has had on natural law. He com-
pletely undermined the belief that nature could be a legitimate source for morality. After creating
an epistemological split between nature and morality, he spent the latter part of his career trying
to rectify the enormous problems his views created, but without much success. The horrors of the
Holocaust and World War II provoked a renewed interest in natural law; there was initially a wide-
spread realization that human rights could be threatened if viewed as a product of convention.
But natural law never fully recovered from Kant’s relentless attacks on it. Skepticism about ground-
ing morality in nature has persisted to the point that most contemporary philosophers and the-
ologians speak not about natural rights, but human rights. Few rarely think about the implications
of this shift. However, ideas have consequences, and Kant realized that something had to be done
to recover the validity of the relationship between nature and morality. His motivation may have
been simply to save his reputation as a philosopher. The concern here is much more practical—to
save lives.
In his classic essay on Kant and the crisis of natural law, Leonard Krieger describes exactly what
Kant did to natural law:
Kant’s notorious so-called dualism was a classic statement invalidating, among other things,
the traditional function of the natural law. This is hardly surprising, since his inspirations
were Hume for his theory of knowledge and Rousseau for his ethics—the Hume who had de-
nied the descriptive validity of law in nature and the Rousseau who had rejected the prescrip-
tive validity of any intellectually known law for human action. Kant combined these insights
into a radical and systematic dialectic opposing knowledge to action and nature to morality,
and undermining thereby the very foundations of the natural law as it had been previously
conceived. These foundations, common to the classical and modern schools of natural law…
had included, as their essential feature, a general level of reality, conceivable by reason from
the total nature of all things or, alternatively, of all men, which was the absolute sanction for
general ethical and legal precepts.
6
F
r
o
m Wh
e
n
c
e
C
o
me
R
i
g
h
ts
?
b
y
Dr. K a
th
y
M
c
R
e
y
n
o
l
d
s
4
Kant completely separated the truths of nature from the truths of morality, claiming the former as
knowledge and the latter as unknowable. The former is derived from the faculty of understanding and
the latter from the faculty of reason. Kant thus proposed his famous distinction between things as
they appear to be and things in themselves. The objects of knowledge are things as they appear to be—
things we can sense (phenomena). The objects which are unknowable are things in themselves—things
which are not open to sense: God, moral truths, self.
The realm of nature made up of phenomena or appearances are related to human beings through
knowledge and are characterized by the principle of necessity while the realm of morality made up of
noumena are related to human beings through action and are characterized by the principle of free-
dom.
7
Laws of nature belong to the realm of nature and are produced by human understanding which
operates upon natural objects through the category of causality. These laws endow nature with necessity
and make it “knowable” in a way that morality does not. Kant explains these distinctions in Critique of
Pure Reason and the Metaphysics of Morals:
Consequently, all events are empirically determined in an order of nature. Only in virtue of this law
can appearances constitute a nature and become objects of experience. This law is a law of the un-
derstanding from which no departure can be permitted, and from which no appearance may be
exempted… The understanding can know in nature only what is, what has been, or what will be.
We cannot say that anything in nature ought to be other than what in all these time-relations it ac-
tually is. When we have the course of nature alone in view, ought has no meaning whatsoever.
8
It is important to keep in mind that Kant held that not only does the world act upon the mind
through the senses, but the mind in virtue of various concepts inherent in it is also active. The mind
structures sense data and then makes a judgment about what is perceived. In light of this structure,
Kant proposed his famous distinction between things as they appear to be and things in themselves.
He argued that things actually do exist outside of the mind, but no one can experience them as they
are in themselves. Hence, Kant says that the moral realm does indeed have laws, but they are distinct
from the laws of nature. In his own words, he says the following:
Everyone must admit that a law, if it is to hold morally, as a ground of obligation… must not be
sought in the nature of man or in the circumstances in which he is placed, but sought a priori
in the concepts of pure reason, and that every other precept which is in certain respects universal,
so far as it leans in the least on empirical grounds… may be called a practical rule but never a
moral law… Applied to man, all moral philosophy borrows nothing from knowledge of him,
but gives him, as a rational being, a priori laws.
9
The gist of what Kant is saying is that human beings can only know through the faculty of under-
standing the outside appearances of things and their relation to other things. The only inner reality
we can know is that which we produce ourselves through our own actions. “The laws which govern our
knowledge of externals are natural laws, the laws that govern our creation of internals are moral laws.”
10
To be fair to Kant, what he was attempting to do in creating this distinction between phenomena
and noumena is to rescue human freedom and autonomy from secularized science. Yet he realized that
this distinction could not be logically sustained—that it was in fact an “unnatural” distinction. The
human mind naturally desires and searches for unity. So he sought to unify nature and morality once
again by attempting to show that morality actually supersedes nature by providing a ground for it—
F
r
o
m Wh
e
n
c
e
C
o
me
R
i
g
h
ts
?
b
y
Dr. K a
th
y
M
c
R
e
y
n
o
l
d
s
5
that morality was the “final cause” of nature. It is a relationship between the process of creating reality
and the reality that has been created. Kant then had to show how the moral law could affect the natural
world. In order to do this, he modified nature by adding a “supersensuous” dimension. He explains
how this works in the following passage:
The moral law gives to the sensible world, as sensuous nature…, the form of an intelligible world,
i.e., the form of supersensuous nature, without interfering with the mechanism of the former.
Nature, in the widest sense of the word, is the existence of things under laws. The sensuous na-
ture of rational beings in general is their existence under empirically conditioned laws; therefore,
it is, from the point of view of reason, heteronomy. The supersensuous nature of the same be-
ings, on the other hand, is their existence according to laws which are independent of all em-
pirical conditions and which therefore belong to the autonomy of pure reason. And since the
laws, according to which the existence of things depends on cognition, are practical, supersen-
suous nature is nothing else than nature under the autonomy of pure practical reason. The law
of this autonomy is the moral law, and it, therefore, is the fundamental law of supersensuous
nature and of a pure world of the understanding, whose counterpart must exist in the world of
sense without interfering with the laws of the latter.
1
1
It may seem from this passage that Kant was restoring the notion of natural law in the traditional
sense. But this is not the case. Supersensuous nature is only a possibility in Kant’s view. Possibilities
have no reality in existence, but they can become a reality from a moral viewpoint. The moral law which
is apprehended by human reason creates existence; therefore, possibilities are real guidelines of what
can come into existence, but yet do not exist. Kant demonstrated how this can take place by “creating”
his categorical imperative: “Act only according to that maxim by which you can at the same time will that
it should become a universal law… Act as though the maxim of your action were by your will to become
a universal law of nature.”
12
In a sense, the categorical imperative replaces natural law in the modern
era. What has changed dramatically is that rather than the source for moral rights, natural law becomes
the means to the end of moral rights. What remains the same is that, like natural law, the categorical
imperative is viewed by Kant as universal and necessary.
While on the surface the categorical imperative might appear to be a sufficient replacement for nat-
ural law, Kant encountered a major conceptual problem: the problem of evil. History is littered with
human conflict, cruelty and suffering. It reveals the constant battle between the individual and the
community, between reason and instinct, between morality and nature as it were. The consistent theme
running through history is conflict resolution by which nature is tamed by morality in the process of
historical time. Nature, then, became for Kant a mere idea, a product of human history. Krieger observes
what happened to natural rights in this framework:
History was not, as Kant literally portrayed it, a product of nature, but the idea of nature was
rather a product of history. Thus the natural rights of humanity which he upheld were rooted
not in any stable realities or values of human nature but in its historical destiny—that is, the
progress in general enlightenment, its progress toward improvement. Correspondingly, the
worst of all offenses against natural rights were offenses against posterity.
13
Kant’s notion of history replaces nature and thus subordinates natural law and natural rights to
the political realm. This leads us back to where we began: there is no such thing as natural rights, only human
F
r
o
m Wh
e
n
c
e
C
o
me
R
i
g
h
ts
?
b
y
Dr. K a
th
y
M
c
R
e
y
n
o
l
d
s
6
rights. Kant’s legacy is historicism, the idea that all human thought is bound by history and that history—
that is, political enlightenment—will progress to morality. The theory depends wholly upon man’s ra-
tional freedom and his ability to create moral laws. This was Kant’s way to assure that man would not
become just another natural object subject to the scrutiny of secularized science. Thus, for Kant, God
became a postulate (a possibility) of practical reason, or else there could be no way to ground morality.
But Kant’s successors took historicism to its “logical” conclusion and undermined completely any
knowledge outside of time.
Natural Right after Kant
Kant held that the knowledge of the eternal was at least possible; but by early twentieth century, this
idea was rejected. In his thought-provoking Walgreen lectures, Leo Strauss traces the history of natural
right and pinpoints the rejection of the eternal with the emergence of the historical school. According
to Strauss, the historical school emerged as a reaction to the French Revolution and to the natural right
doctrines that paved its way. The founders of the historical school surmised that universal principles
are by their very nature revolutionary. Universal principles force individuals to judge a political regime
in light of a transcendental rational order; what is invariably found is that the regime falls far short of
the timeless norm.
Recognition of universal principles causes men to resist oppressive social orders; it forces them to
see themselves as pilgrims—as belonging to another world. By denying the existence of universals, the
conservatives of the historical school strengthened the resolve of the revolutionists. The problem was
that the revolutionists had a specific notion of the natural in mind, one that was directed against both
the conventional and the transcendent. Their experiences in France lead the revolutionists to assume
that the natural was individual and that uniformity was unnatural.
In other words, the individual was to be liberated in order to pursue his or her own version of hap-
piness. This ultimately meant that one universal and uniform goal was to be instituted for all people:
the natural right of each individual was something that universally belonged to every individual as an individual. The
revolutionists had already said that uniformity was unnatural; but it was also impossible to individualize
rights to encompass the diversity of all individuals. So a compromise of sorts was reached. The only
kinds of rights compatible with social life, and yet not uniform were historical rights; that is, the rights
of individual groups: rights of African Americans, rights of Jews, rights of women, rights of gays and lesbians, rights
of the disabled.
Localized rights were a middle ground between radical individualism and unnatural uniformity.
14
But did the revolutionists discover something that is true or did they merely create a way of peace? It is
clearly the latter; for the historical school did not “discover” this local approach to justice. One cannot
discover what is in plain sight. The charm of the inwardness of local groups overwhelmed the revolu-
tionists to the point of declaring its superiority to the universal.
The historical school assumed the existence of folk minds; it assumed that ethnic groups were natural
communities; it assumed the existence of laws that governed historical evolution. It also assumed that
the empirical was the only valid source of knowledge. Strauss makes the following stunning observation:
Historicism now appeared as a particular form of positivism, that is of the school which held
that theology and metaphysics had been superseded once and for all by positive science or which
identified genuine knowledge of reality with the knowledge supplied by the empirical sciences…
Thus history was thought to supply the only empirical, and hence the only solid, knowledge of
F
r
o
m Wh
e
n
c
e
C
o
me
R
i
g
h
ts
?
b
y
Dr. K a
th
y
M
c
R
e
y
n
o
l
d
s
7
what is truly human, of man as man: of his greatness and misery. Since all human pursuits start
from and return to man, the empirical study of humanity could seem to be justified in claiming
a higher dignity than all other studies of reality. History—history divorced from all dubious or
metaphysical assumptions—became the highest authority.
15
The very situation Kant sought to avoid with his renowned distinction between noumena and phe-
nomena—the subjugation of man to secularized science—came to pass anyway. History was subsumed
under science, and consequently, so was all of humanity. The empirical study of humanity supposedly
confirms the validity of the local over the universal, the validity of human or group rights over natural,
transcendent rights. The historicist asserts that his position is supported by an abundance of historical
evidence.
To the contrary, however, what history actually shows is that men do indeed abandon certain views
in favor of others; but it does not show us whether or not those views deserved to be abandoned. The
only legitimate way to measure the validity of any view is to hold it up to an objective standard. We
must be able to step out of our own time, and indeed transcend time in order to make that kind of
judgment. Kant knew this, and so did most of the great thinkers of the past. Truth be told, the histori-
cist also knows this. The history of ideas is a history of dismal attempts by man to pervert and distort
the truth to suit his own ends; however, the Truth itself always manages to prevail.
The Truth about Historicism and the Origin of Human Rights
Historicism holds that all human thoughts are historical and destined to perish; this includes all
thoughts and beliefs concerning human rights. Human rights are established by governments situated
in specific times and places. It is good to encourage all legislators to embrace the notion of human
rights; but there is ultimately no higher authority to which they are bound to obey in this regard. Even
if there was such an authority, we could not know it anyway. This is the logical conclusion of histori-
cism. But is historicism true? If it is put to the test, it shows itself to be self-defeating. If all human
thought is historical, and historicism itself is a product of human thought, then it is only temporary
and cannot be true. As Strauss points out, “historicism thrives on the fact that it inconsistently exempts
itself from its own verdict about all human thought. The historicist thesis is self-contradictory or ab-
surd. We cannot see the historical character of all thought—that is, of all thought with the exception
of the historicist insight and its implications—without transcending history, without grasping some-
thing trans-historical.”
16
Is there any evidence that human thought can transcend time? In other words, is there moral knowl-
edge from which are derived natural law and natural right and can we know it? C.S. Lewis adamantly
insists that such knowledge is real and available to us, though obliquely because of sin. Drawing on the
wisdom of the whole counsel of Scripture, Lewis formulated his moral argument for the existence of
God, the Moral Law Giver. It can be summarized as follows: 1) People make comments that presuppose
some moral law: it’s good to keep promises; it’s wrong to be cruel to the innocent; 2) This notion of
right and wrong seems to be universal, though practices may vary from culture to culture.
Several objections have been raised against these ideas. First, many have argued that the moral law
is simply a herd instinct. It is merely human instinct to help a drowning person because we also would
want to be helped. Lewis agrees that we have various instincts, but none of them tell us whether we
should follow them. Therefore, the moral law must be different from instinct. Second, some have in-
sisted that the moral law is nothing more than mere convention taught by parents and society. But
F
r
o
m Wh
e
n
c
e
C
o
me
R
i
g
h
ts
?
b
y
Dr. K a
th
y
M
c
R
e
y
n
o
l
d
s
8
Lewis points out that the moral law must be more than mere convention and this is evidenced by the
fact that there is great similarity in moral codes from one culture to another. This is why it makes sense
to talk about some moral codes being better than others.
Lewis is also quick to affirm that the moral law is not the same as the laws of nature. The laws of
nature merely describe the regularities of nature. The moral law does more than this. It tells us how to
behave. It commands us to do right, and causes guilt when we do wrong. Thus, Lewis moves from the
universal moral law to the Divine Law Giver as the eternal source of ethics and human rights.
In light of these truths, and in order to ensure the rights of all, especially those with disabilities, a
universal declaration of rights ought to boldly and with confidence proclaim the transcendent and
eternal nature of these rights. They are a gift from the moral Law Giver. Such a declaration would
openly reject the fact/value dichotomy forced upon us first by Kant and later by historicism. The only
way to truly ensure the rights of all is to embrace the truth about the origin of rights.
References:
Krieger, Leonard, “Kant and the Crisis of Natural Law,” Journal of the History of Ideas, Vol. 26, No. 2. (Apr.-
Jun, 1965), pp. 191-210.
Smith, Scott R., Truth & the New Kind of Christian (Wheaton: Crossway Books, 2005).
Strauss, Leo, Natural Right and History (Chicago: University of Chicago Press, 1950).
Web sites: Natural law. (2007). In Encyclopedia Brittanica.
http://www.britannica.com/eb/article-9055045.
NOTES
1. Universal Declaration of Human Rights, http://www.un.org/Overview/rights.html.
2. www.un.org/disabilities/convention/conventionfull.shtml.
3. See Leonard Krieger, “Kant and the Crisis of Natural Law,” Journal of the History of Ideas, Vol. 26, No. 2. (Apr.-Jun., 1965), pp. 191-210.
4. Ibid.
5. http://www.britannica.com/eb/article-9055045. Some ideas in this historical section were gleaned from this article entitled, “Natural Law.”
6. Leonard Krieger, “Kant and the Crisis of Natural Law,” Journal of the History of Ideas, Vol. 26, No. 2. (April-June., 1965), 195.
7. Ibid., 196.
8. Immanuel Kant, Critique of Pure Reason (Norman Kemp Smith: London, 1933), 140, 172, 661-662.
9. Immanuel Kant, Foundations of the Metaphysics of Morals, Critique of Pure Reason and Other Writings in Moral Philosophy (Lewis White Beck: Chicago, 1949), 52.
10. Krieger, 197.
11. Kant, Critique of Pure Reason, 153-154.
12. Ibid., 80.
13. Krieger, 204.
14. I am indebted to Leo Strauss for these insights on the emergence of the historical school. See Leo Strauss, Natural Right and History (Chicago: University
of Chicago Press, 1950), 9-15.
15. Ibid., 16-17.
16. Strauss, 25.
F
r
o
m Wh
e
n
c
e
C
o
me
R
i
g
h
ts
?
b
y
Dr. K a
th
y
M
c
R
e
y
n
o
l
d
s
9
Dr. Kathy McReynolds is the Director of Academic Studies for the Joni and Friends Christian Institute
on Disability. Kathy has a B.A. in Christian Education from Biola University, a M.A. in Systematic Theology
from Talbot School of Theology and a Ph.D. in Ethics from the University of Southern California. She has
taught in the Biblical Studies Department at Biola University and served on ethics committees for hospitals
and universities. Kathy has received numerous prestigious awards, including the Leading Health Care
Professional of the World by the International Biographical Center in 2009.